COUMADIN Reviews (WARFARIN SODIUM)Average Rating: 3.1 (876 Ratings)Filter ResultsCompare COUMADIN with similar:
Type: Rx Drug
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Results are sorted by length of time drug was taken from shortest to longest duration (reviews with no time reported listed first). Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 |
More on COUMADIN: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR COUMADIN | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 4 | bilateral multiple PE's | Fatigue, sore mouth (feels like it is burning), back pain, severe headaches, anxiety, bruising | Since my PE's were due to being on the BC pill at the ripe old age of 48 I had to go off the pill (Kariva) immediately and am not sure that the side effects are due to hormone changes, coumadin use, or both. This whole experience has been very scary and I am so glad there is a drug to help stop the blood clots from forming. My headaches are very severe and now my doctor wants me to see a neurologist. Yippee!!! Oh Well...I'm happy to be alive!!! | F | 48 | 3 months | 7/29/2007 | 4 | DVT left leg | The first two months I was only cold. The last three weeks I've been very hot/flushed, headaches, lethargic and just not feeling well. | I've been on about 11 weeks now. This drug is just ravaging my body. Has anyone else felt this burning hot, flushed feeling? Feel very free to email me. | M | 50 | 3 months | 7/28/2007 | 4 | DVT in right arm | First couple of weeks experienced headaches which have since subsided. Weight gain of 6 pounds. Feel bloated. | When diagnosed with DVT, doctors agreed the clot was a result of my taking birth control pills (Ortho-Tricyclen). So I stopped taking the pill the same day I was diagnosed. My target PT/INR is between 2.0 and 3.0; however, I have only managed to be within the range twice. Since I began taking the med, I have had to get my PT/INR every week until recently when I now have gone every 2 weeks for the last two tests. Today was 3.8; tomorrow I actually have vascular studies scheduled to determine if the clot has dissolved. I'm crossing my fingers that the doctor decides to take me off the medicine if all is good with the vascular study as my doctor did mention at the start of the therapy that he felt I would not be a life-long coumadin patient. Although the medicine seems to have done well with ridding me of the clot in my opinion (I no longer can see nor feel the clot in my arm), I must admit that the weight gain has become bothersome to me. | F | 31 | 3 months | 7/10/2006 | 4 | DVT | muscle/joint pain. severe headache upon discontinuation | Diagnosed with a DVT after knee surgery. Found a good balance pretty quickly where my INR was just above 2.0 and my dosage was 10mg on the nose. Tested weekly and it never changed even with the occasional broccoli or leafy greens. Had enough energy to keep (light) excercise and working out. I heard that was good to help a DVT dissolve. Close to 3 months I felt the muscle or joint pain kicking in making it harder to lift, so I'm glad the was when my doctor said I could get off of it. NOTE: There might some withdrawal effect from this med, because I had a screaming headache the week following discontinuation (no weaning). I've never had bad headaches or migraines and it was so bad I got a CT scan to make sure a clot didn't travel to my brain. Came out negative, so it must have been the med. | M | 43 | 3 months 10mg 1X day | 3/2/2015 | 4 | PE blood clots both lungs, abdomen | I'm satisfied that the medicine helped - obviously I'm not stupid enough not to appreciate that the blood clots are gone! But, now am not sure whether the severe anxiety I've been having is from the medical crisis and other stress at that time, or whether to think the coumadin contributes to or causes it?(I actually take Jantoven, due to possibility a severe reaction I had was to warfarin - could have been from any of several Rx's I was given early on but doc changed me to Jantoven anyway.)It's been 3 months since the PE and anxiety has increased, plus now I've had episodes of feeling very detached or like I can't control or rein in my thoughts. So frightening to me that I've an appointment to see a psychiatrist in a couple of weeks. | F | 53 | 3 months | 7/23/2008 | 4 | DVT and PE | Water retention, severe weight gain (18 lbs in a month), hair loss, headaches, severe mental fogginess and memory loss, weakness | After reading everything people put on here, I now know I'm not going crazy. My doctor wants me on coumadin for 6 months. I've had difficulty staying within the INR rating of 2 to 3 even though I am very careful with my diet, etc. I ended up with DVT and PE due to birth control. My doctor was trying to stop my menstrual period for 6 months to get my iron levels back up (I was so anemic the iron levels did not register on blood tests). She had me double dosing and it caused the DVT. My doctors have been very good about explaining everything that happens with coumadin, but I didn't think the side effects would be this severe. | F | 46 | 3 months | 10/1/2008 | 4 | Portal Vein Thrombosis | major dizziness, weight gain (especially in stomach), sensitive to heat (get overheated very quickly), crazy nightmares for the first month, hair falling out, bad menstrual cramps/heavy periods, overall feeling of just not 100% (I am usually extremely active,fit, thin, healthy so this is a major bummer) | Yes, my blood clot is gone, but these side effects are just miserable. I am wondering if Lovenox shots are an option. But, as everyone else has stated on this site, the doctors and nurses just think I am crazy! I am actually seeing 2 hematologists and they both tell me that these are not likely side effects of the drug. I have tried both generic and brand name and they are both the same. | F | 34 | 3 months | 5/10/2009 | 4 | DVT - lower leg | Fatigue | I consulted the anti-coagulant clinic about the fatigue and was told this was not a side-effect that they recognised. However, the clinic had over-prescribed my dosage. INR was supposed to be between 2.0 and 3.0. My INR at the time I felt fatigue was 3.62. Once my dosage was reduced and my INR fell below 3.0 the fatigue went away. I suspect an overdose of warfarin causes fatigue and, as overdose is a misuse of the drug, this side-effect does not appear in the list | M | 37 | 3 months | 3/13/2009 | 3 | DVT cluster in left leg & PE | extreme fatigue, aches in joints, numbness in arms, swelling in left leg, lots of dreaming, feel BLAH & unsociable most of the time, weight gain. | I have been diagnosed with Lupas Anticoagulant. They will retest me in about 2 months. I hope that I really dont have this crap! I hate taking this med. even though I havent slept this good in years. But I hate being so tired & worn out, cranky & unsociable. Paranoid about cutting or bruising myself-- I am a klutz so the worry is warranted. But still hate it. Do not want to take this forever. But so glad to have found this website. Cause my doctor also acted as if I was crazy & these side effects were all in my mind!!! And now I know, they are real. Thanks!!! | F | 41 | 3 months | 6/16/2009 | 3 | venous thrombosis in brain | Constant weight gain. Inability to concentrate- foggy head at times. Joint Aches. Depression. FATIGUE! | My doctor is unwavering about 1 full year on Warfarin. I am barely going to make this. I don't have nausea, but some days feel dizzy and always, always, extremely tired on this crazy stuff. I was extremely concerned when I kept hearing that there are NO side-effects to this drug. ANY time you take a foreign substance into your body there IS a side-effect. The fact nobody in the medical world wants to admit this or research these common persistant symptoms further is odd and disconcerting. I have no hair loss but I've only been on Warfarin for three months and have gainded 15 pounds. Hard to lose when they want you to keep your diet the same so as not to effect your INR. | F | 47 | 3 months | 6/26/2009 | 3 | Pulmanary Embolism | I've been really cold/Sometimes my extremeties go numb...but I guess I've always been that way since I'm anemic...I have horrible gas pains and digestive issues... | My I&R levels have been fluctuating...Hopefully I don't have to be on the drug forever so I can go back to my normal lifestyle...I miss Brocolli (I'm only 19) I don't want this drug to control my life =( | F | 19 | 3 months | 9/30/2009 | 3 | Multiple Bilateral Pulmonary Emboli | Gained 10lbs and belly fat and yes, I am blaming the coumadin since I haven't changed my lifestyle from before I was on it. I am so tired lately because the vivid dreams I have every single night don't allow me to get quality, restful sleep. The smallest bump or pin prick hurts much worse than it used to. I am almost always cold and am dreading the Wisconsin winter even more this year. I get numbness from time to time in my hands and feet. Had some lower back pain when I first started but it has gone away. | My doctor said that I should eat whatever I want (green vegetables, etc) and can drink socially and he will adjust my coumadin around my life, NOT the other way around. I am not thrilled being on this drug but I understand the necessity of it for the time being. However, I am going to see a hematologist to talk about long term use. If I can get off of this drug in 6 months to a year, then that's what I would prefer to do - so I am going to get multiple opinions and weigh my options. It is not fun being told that you have to be on this drug in order keep from getting more blood clots but there are compromises that can be made so it does not affect your life anymore than it has to. If your doctor does not work with you on a compromise, then find another doctor who will. My doctor is very focused on making sure that I am healthy and have as 'normal' of a life as I can. And if you don't already have a medic alert bracelet, I would suggest getting one for the duration you are on this medicine. If you were in an accident and unconscious and bleeding, it would let medical personnel know that your blood is thinned and they should be extra cautious about your chances of bleeding out. Gruesome and not fun to think about, I know, but it's something to keep in mind. | F | 28 | 3 months | 10/1/2009 | 3 | blood clots in leg | hair loss, itchy skin, weight gain, cold all the time, dizzy after taken the meds, bladder infection and lower back pain. bruising and periods so heavy that I have to be off my feet for days! | well the weight gain is due to the non exercise, the bladder infection and lower back pain was new, still waiting on that info, I think the med is working due to the clots getting smaller and the veins are looking better, but it is taking a very long time, will be a lifer on this stuff. this is really a life changing thing! Always having to be so careful about getting cut, and what you can do, I am an active person so this is a huge change for me. Work in a restaurant as a cook, around a lot of knives and cutters, think I am going crazy? you would be right. not supposed to be up on the feet more than 4 hours at a wack, not very likely with my job. | F | 46 | 3 months | 8/29/2009 | 3 | massive PE both lungs | no hair loss (knock on wood). dry skin. WEIGHT GAIN (15 lbs in about a month and a half). NO sex drive. seroius WATER RETENTION. bloated almost half the time. bruising. sensitivity to hot and cold. | So far I'm not to happy. My clots were blamed on birth control. I am a newly-wed with no sex drive, I am having a terrible time loosing the extra weight, and I am constantly arguing with my doctors about my diet (I love veggies and am lowering my calorie intake to combat the weight gain). If the real cause of my clots was in fact birth control (which I am obviously no longer on), I am taking this drug for no reason. I am definately not happy with the effects I have experienced, and am worried that as this progresses I will experience more of the side effects listed on this site. | F | 24 | 3 months | 8/10/2008 | 3 | Bilateral PE's Factor V Leiden | Extreme fatigue all day and stomach discomfort until around noon can't keep anything in stomach and leg pain and hip joint pain and lower back pain | F | 51 | 3 months 7.5 | 6/9/2014 | 3 | Dvt left leg | Miserable nights. Tingling in feet arms, buzzing in ears, fatigue, depressed, no appetite. Just want to get better!!! | F | 46 | 3 months .5 | 2/25/2014 | 3 | DVT left leg (2 in 10 yrs) | Heavier periods, unexplained blisters from mild activity, not preceded by the discomfort that usually warns you you're going to get a blister. (e.g. using a screwdriver, stirring cake batter). I'm glad I don't have hair loss or weight gain. | I am concerned about the link between warfain and osteoporosis. The associated restrictions limit my ability to follow the normal dietary recommendations for maintaining bone density. I probably have to take warfarin for life now because of having two clots. I'd be interested in exchanging e-mail with others. | F | 39 | 3 months | 12/3/2006 | 3 | Atrial Fibrillation | Now 3 months on Coumadin, it doesn't get any better. Wake up most mornings with a headache, lower backache. Dry skin and hair, some hair loss. Cold hands. This drug has made me very despondent, no desire to do things without a lot effort. | There seems to be no alternative and appropriate medication I can take. Can only hope all the pharmaceutical companies researching this area, come up with an alternative product sooner rather than later. Life feeling like this, is not life at all. | M | 64 | 3 months | 10/4/2008 | 3 | Blood clot left lung/left leg | I keep getting told that this drug does not cause weight gain but I find this hard to believe. In two months I have gained 10 kilos ( probably around 20 pounds ) and there is nothing else to justify this weight gain. I started running/walking 5km a day and still am gaining weight!!! I have also been itchy, broken out in pimples, depressed and find it hard to fall asleep. | This has probably been a drug I really need but I cant help wondering if there is a natural alternative such?? | F | 29 | 3 months | 5/29/2007 | 3 | D.V.T. left calf | WEIGHT GAIN, fatigue, irritablity, hair loss and cold feet | I KNEW my SUDDEN weight gain had to do with this medicine, yet my doctor AND his nurse kept saying it didn't! HA! Thanks to the other comments here, I now know they're full of crap! While I may have an UNDERactive thyroid (and I'm on med's for that too), I can now go to the doctor on Monday and tell her that I want off this medicine. Either that or she'd better be ready to recommend a different doctor to me! | F | 37 | 3 months | 5/3/2007 |