COUMADIN Reviews (WARFARIN SODIUM)

Average Rating: 3.1 (876 Ratings)

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 ANTICOAGULANTS THROMBOLYTICS

 Type: Rx Drug

  

COUMADIN  (WARFARIN SODIUM):  This medication is used to treat blood clots (such as in deep vein thrombosis-DVT or pulmonary embolus-PE) and/or to prevent new clots from forming in your body. Preventing harmful blood clots helps to reduce the risk of a stroke or heart attack. Conditions that increase your risk of developing blood clots include a certain type of irregular heart rhythm (atrial fibrillation), heart valve replacement, recent heart attack, and certain surgeries (such as hip/knee replacement). Warfarin is commonly called a "blood thinner," but the more correct term is "anticoagulant." It helps to keep blood flowing smoothly in your body by decreasing the amount of certain substances (clotting proteins) in your blood.    (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by length of time drug was taken from shortest to longest duration (reviews with no time reported listed first).

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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More on COUMADIN: Reviews Summary  |  Drug Safety Information

RATING  REASONSIDE EFFECTS FOR COUMADINCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 3  Paget Schroetter Syndrome I've had a headache since taking this and was told by my doctor that I'm making it up (nice huh?). Recently I've gained weight, which is strange because as soon as I learned of my impending surgery, I began eating healthier and increased my exercise routine. It's reassuring that I'm not the only one feeling this way! This drug is helping me, but has way too many side effects and limitations. F 26 2 months
8/11/2005
 3  PE in both lungs Thank you God! I found this site when experienceing fatigue, unable to sleep, light headedness, stomach upset, bruising, etc and being told by my doctor that there is nothing wrong with me, I'm just depressed and full of anxiety. I was told there are no drug side effects. Of course there will be some depression caused by serious health issues. This is after only 2 office visits. I'm fighting for RESPECT. How many people actually ever get off this drug??? F 54 2 months
8/17/2005
 3  Pulmonary Embolism Dizzy, light-headed, weak, tingly, chest and leg pain. Tired, sleepy, major headaches. Nausea in the morning - feel like puking, stomach ache, heavier periods, and legs feel thick. I was put on Coumadin for blood clots in my lungs - I got them from the birth control pill I was put on. I was hospitalized for a week in September 2006 and haven't had a day where I can actually say "hey, today I feel better." It's constant discomfort. I have been getting huge headaches, I was given a Vicodin once for the headache and I felt no relief at all. The next time I had a headache, I was given 2 Percasets and felt somewhat better. I was getting my blood drawn every 4-6 hours the week I was at the hospital and now I'm getting my INR checked every Monday. It's been 2 months and I have had my dose switched many times because the anti-coagulation service can't seem to find the right dose for me. It has been low and it has been high. It's been 2 months already and out of those 8 weeks I think it's only been fine maybe a week. I guess things can always be worse but Coumadin is for sure not the best medication out there. F 23 2 months
11/23/2006
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 2  2 x rt leg clots, FVL homozygous Mostly just exhaustion, lack of energy and headaches, cold hands and feet, body aches, slight nausea on occasion. Maybe weight gain but it is early days yet... I have always been an active and energetic person, and it has really blown me away how much this drug has affected my energy levels. I pass out every night and wake up feeling like I can hardly open my eyes every day. I am a lifer on the rat poison now, which is hard being only 26, what with the dietary and activity restrictions (used to be a keen basketballer, which is out of the question now). On the plus side, my liver will no doubt be grateful in future that I can't drink a great deal!! Positive attitude is everything. Feel free to contact me if you have any questions and good luck to all :) F 26 2 months
9/6/2006
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 2  2 x rt leg clots, FVL homozygous I just posted a second ago about my experience - I meant to add that my INR is stubbornly refusing to go up, and I am stuck on 1.6 - my dose is currently at 8.5mg daily but will no doubt increase next test, and I am still having to do the Clexane shots in the stomach every morning (2 months and counting!) :s F 26 2 months
9/6/2006
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 2  DVT from groin to ankle I have been feeling lightheaded eye twitchy major body aches tingling in my feet legs and face at times my anxitey gets worse the longer I'm on this my INR has never been stable and I'm exhausted most all the time. M 35 2 months
5mg mostly
4/18/2012
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 2  DVT left leg I have been very forgetful and uninterested in things I am so used to doing. For example, I am a full time College Student. I am a senior and can't concentrate at all. I have a feeling of detachment and can't really get a grip. I noticed that I would take my medicine everyday, but I would write something completely different. I opted to take two online courses and can't sit at the computer to even read. I want the old me back:( F 41 2 months
10 MG 1X day
2/16/2011
 2  Rt knee DVT Constant fatigue, horrible hair loss, stiff joints, numbness in my toes, always feel cold, depress (probably from the hair loss)and diarrhea. I've tried talking to my Dr about the side effects that I've had since starting this poison and he assures me that this is not related to the medication. I'm pretty sure he's full of crap especially after reading this site. I'll be seeing him next week and will be showing him this site...or maybe I'll get a new Dr. F 40 2 months
11/28/2009
 2  DVT - right calf, bilateral PEs dizziness, loss of appetite, confusion, memory problems, very intense weird dreams, loss of energy, feeling foggy, get freezing cold very easily, sadness for no apparent reason, skin getting kind of papery and pale They believe it was oral contraceptives that gave me the DVT. I am used to being pretty athletic and sharp/clear. Typically, I enjoy rigorous exercise and train daily at the gym 5-6 days a week (cardio & weight lifting). I'm usually in great shape and am an upbeat overall happy person. But this medicine is making it all very hard. Some days are worse then others and the bad days are extremely frustrating. To make it worse, the clinicians I see at the coumadin clinic all say these are not side effects of the medicine. And they sent me to the ER - where I sat for 6 hours freezing half to death - to get a CT scan of my head. It came back negative (big surprise) and the doctors looked at me like I was being hypochondriacal or something. (However, these are the same ER docs that sent me home - twice - with severe PEs - untreated and undiagnosed). Thankfully my primary care did her homework on the medicine and does see these as side effects and she's been very supportive. She t F 37 2 months
12/7/2007
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 2  pulmonary embolism dizziness, memory loss, fatigue switched to Arixtra - one shot per day - and I feel infinitely better. It's like I got my brain back!! I could not have gone much longer with the coumadin - it was getting more and more difficult to think. it is so worth giving yourself a shot once a day to be able to live a normal life. also has no food interactions like the coumadin does. F 41 2 months
11/22/2008
 1  because I have a pace maker and def easy bruises F 80 2 months
0.5 1X day
11/6/2010
 1  Mechanical Aortic valve replacement Stomach sickness, moodiness, sore and aching, sensitive to pressure, always cold, often spaced, occationally bloated, overall an unhealthy feeling. I cannot imagine doing this for the rest of my life. This drug is totally ruining my relationships and my usefulness at work. I felt better when I was at risk for death (seriously). Where are all the other drugs for this that are being used in Europe and Canada?! I am miserable!!!!!! M 34 2 months
average 6 1X day
12/18/2011
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Patient History
 1  PE Headaches face breaking out up and down INR. I am talking with doctors due to my PE being associated with hysterectomy I am negative for all tests. My daughters are all testing positive so we are trying g to figure out what to do. My conclusion is coming off the rat poison and gettin on with a normal life again. I worry more about the effects of Coumadin than the PE I had symptoms of DVT that my doctor ignores that is why I ended up with it. I know te symptoms and I have Lovenox on hand. Quality I'd life at his point for me is my objective. F 41 2 months
3-5
7/8/2012
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 1  2 DVTs in calf post-hip surgery Painfully cold, numb, tingling, aching feet. Extreme sensitivity to touch. Inflammation/edema. Fingers constantly cold. Headaches. Nausea. After taking this drug for two months, my surgeon has agreed to switch me back to heparin. The discomfort associated with the twice daily injections are nothing compared to the pain and agony I have endured while on Coumadin. F 51 2 months
varies 1X day
9/14/2011
 1  suspected pe/clot aft hysterectomy At first a dull headache, joint pain and stiffness then swelling of the legs and inner thighs and heaviness in arms. Now no headache but other symptoms remain though come and go. I've had hot feet at night now for three days. Every day it's what's it going to be today? I am also at least 15 pounds heavier than when i went into hospital (for hysterectomy) late April and I had even lost weight after surgery before being put on the Warfarin. today i bumped myself and have a painful swollen bruise. I am only going to be on this for six months. I see from all the posts here that there are many side effects which are not listed on that rundown you get with your pills. I called BristolMyersSquibb 800-332 2056, and spoke to the pharmacist. He admitted that bilateral swelling (slow)in the legs is a side effect of the drug. This is not something any of my doctors have ever thought was a side effect. The Bristol Myer pharmacist seemed very interested in hearing what other side effects I had. This is all done anonymously. Everyone should call and let them know what the real deal is. Obviously there are things occurring that should get documented. It's hard enough to be on this drug to also feel like a hypochondriac with your doctors. I recently went to a number of specialists (vascular, blood) to rule out possible problems. Some doctors may not understand that we once felt pretty good and now we're legitimately concerned that we've got a whole slew of things to deal with since being on the drug. Please feel free to email me with F 45 2 months
6/23/2006
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 3  DVT -caused by an airplane flight dizziness, short-term memory loss, depression, exhaustion, headaches, weight gain, soreness/stiffness, gas and bloating, pain and exhaustion in my eyes Thank god for this wonder drug which means I don't have to be hospitalized, but boy are the side-effects unpleasant. I am normally a very active person, but am finding it very hard to muster any energy on this drug. At the gym I am not able to do nearly as much as I normally do, and the same with walking, running, hiking, and everything else. No wonder I'm depressed! F 31 2.5 months
10/4/2008
 3  PE Right Lung Excessive shedding of hair, chills, night sweats, dry skin, fatigue, heavy menstrual cycles Starting taking after the birth of my son. Physician wasn't very informative and automatically told me I would need to take it for 6 months or more. I only had one blood test and he didn't advise me of any side effects or does or don'ts such as limit greens and no cranberry products. Thank God for prescription inserts that give some drug interaction information. I stopped taking warfarin approximately 1 1/2 weeks ago. I am currently looking for a new phsyician but in the meantime, praying over myself. I don't know if the medication was helping or not but I do know that it was causing some ill effects and it seems like I am not the only one. Keep the comments coming. F 34 2.5 months
1/3/2008
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 5  Antiphospholipid Antibody Syndrome no side effects as yet I have ischaemic chnages in the small blood vessels of my brain due to many TIA's because of this I have seizures, memory loss, language dysfunction(at times), cognitive dysfunction. Since starting warfarin I have had 75% reduction in seizures, no language dysfunction, my memory is slowly recovering and no TIA's. Warfarin has made a dramatic differance to the quality of my life so far. F 40 3 months
1/5/2008
 5  pulmonary embolisms I experienced light headedness on a couple occasions. I'm extremely fatigued ALL the time. Hours after I wake up I still feel groggy. I am having an increasingly hard time with concentration. I feel depressed. It took weeks for me to get my INR over 2.0 and I've had some difficulty keeping it there. I was alternating 12.5 and 15 mg for about a month. Now I'm taking 15 mg daily. I am a lawyer so I spend a great part of the day doing analysis and writing. I've noticed over the last month or so that I am getting writer's block a lot and have a hard time concentrating. It's not that I'm daydreaming, but it takes me forever to make progress on my assignments. I feel like I'm in a mental fog and get overwhelmed easily. M 37 3 months
2/14/2009
 5  DVT... fatigue, decrease in muscle strength, abdominal pain, diarrhea and hair loss. Although, I am not sure if the hair loss was due to the Coumadin or stress of the experience as I am still losing hair. I was diagnosed with a DVT on 9/30/09 due to taking the birth control pill Loestrin 24. I was aware of the serious side effects that could be caused from taking the pill but didn't think I would experience any due to my age, no history of family clots, and I don't smoke. My DVT was located in my right iliac vein with extension into my inferior vena cava. Dr. told me it covered a large area. I started on Lovenox which I took for about 2 weeks then switched to Coumadin which I believe saved my life. I didn't appreciate the side effects, but it did help. I'm still alive. My INR level fluctuated quite a bit in the beginning. I started taking 2.5 mg, then 5 mg, then ended up taking 7.5 mg which finally stabilized my level. I had a follow-up cat scan on 12/29/09 and the clot is completely gone which was surprising. I am no longer taking Coumadin. My hematologist told me on 12/1/09 that my clot may not be gone within 3 months, and that I may have to be on Coumadin for 6 months or longer. Luckily, the Lovenox followed by Coumadin took care of it in 3 months. I did not develop any PE. F 22 3 months
1/18/2010
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