Drug Ratings for COUMADINAverage Rating: 3.1 (795 Ratings)
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Results are sorted by Satisfaction from highest to lowest Key to Ratings: 1=LOW (I would not recommend taking this medicine.) |
| RATING | REASON | SIDE EFFECTS FOR COUMADIN | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
  | F M | | | | |||
| 1 | Recurring DVT in Left Leg | Weight GAIN! Feeling sad, consantly feeling like im in a fog, fatigue, thinning of hair, shortness of breath, acne. | After reading all these posts.. I feel more at ease but angry too! Im sorry for your side effects, but thankful what I have been feeling and the changes to my body, is not just happening to me but other coumadin users. I finally feel like I have an answer. Ive been told I have to be on coumadin for life. I just called to make an appointment with my doctor. I am gong to tell him Im not taking the coumadin and either he offers an alternate or i'll just pay the price. I hate living like this! Im not me and havent been since I started this. HATE COUMADIN.. AVOID IT AT ALL COSTS!!! | M | 47 | 4 years 7.5mg 1X D | 4/27/2011 | 1 | several PE's | No energy, lack of interest in things I use to enjoy, difficult to interact with people ( very different from my pre-coumadin years ), joint pain, sleep more | I wish the drug companies would come up with an alternative for patients who have side effects to coumadin | F | 52 | 12.5 1X D | 4/9/2011 | 1 | A Fib | Easily gained a lot of weight (though I work out every day), itchy skin, general weakness and body achnes, daily joint and chest pains, indigestion, moodiness, lack of sec drive, nosebleeds...you name it. | Going off coumadin has been a lifesaver. I now take pradaxa (only a week) and my symptoms have virtually disappeared. I feel like a new person. Coumadin was the worst drug I have ever encountered. | M | 51 | 2 years 5mg 1X D | 3/26/2011 | 1 | double valve replacement | gained over 50 lbs,depression,crying for no reason.crosseyed bouts,dizziness,always tired even after long periods of sleep, foggy mindedness, total lack of motivation and almost all the other side effects posted | thought i was the only one until i found this site god bless you all.i hate this crap and all its side effects but am told i have to keep taking it for ever by my doctor who also makes a fortune running the coumadin clinic.what is it like having your eyes cross doing 65 in the passing lane during rush hour ???i hope u never have to experience it.i have watched the same people in my clinic change into oompaloompas and pillsbury dough boys and most have developed the same painful hobble and yet i'm told by all the professional drug dealers it's my imagination. was also told by doctor not to try naural thinners too unpredictable but i'm not giving up!!! | M | 59 | 6 years 15mg 1X D | 3/14/2011 | 1 | DVD RIGHT CALF AFTER HIP REPLACEMEN | HAIR LOSS!!!!!! EXTREME FATIGUE, SEVERE JOINT PAIN, VERY COLD!!! LACK OF INTEREST OF LIFE!! THEY HAVE TO KEEP ADJUSTING MEDS EVERY WEEK. I HATE THIS DRUG, ITS RAT POISION | I CANT WAIT TO STOP IT | F | 55 | 70 days 7 1/2 1X D | 3/3/2011 | 1 | A-Fib | Hair loss, intense cold in feet, depression, loss of energy and motivation, severe hallucinations nightly. | I developed A-fib on the mid-April morning my husband passed away. In July, my heart was shocked three times before it went back into normal sinus rhythm. The hallucinations began within a month of taking the drug...the only one I am on...and have increased from once or twice a week to two and three times nightly. What began only at night is now bleeding (no pun intended) into the daytime with hearing noises no one else hears. My cardiologist swears the coumadin is not the culprit but I take nothing else. Strange the hallucinations began a month after the drug was fully in my system. | F | 62 | 2 years 2.5 mg 1X D | 3/1/2011 | 1 | atrial fibrillation (non-valvular) | joint pain, bruising, weight gain, fatigue. too many food and drug interactions. difficult to get INR in range due to taking NSAIDs for chronic low back pain. | Great news for all of you taking coumadin for atrial fibrillation. new FDA approved drug that can replace coumadin is called PRADAXA. go online and check it out. THIS IS REVOLUTIONARY!!!!!!!!!!!!!!!!!!!!!!!!!!! | M | 60 | 10 months 4mg 1X D | 11/20/2010 | 1 | because I have a pace maker and def | easy bruises | F | 80 | 2 months 0.5 1X D | 11/6/2010 | 1 | PE | Light headedness. Tingling nose. Pins and needles feeling in my head, left arm and leg. Left leg is always hurting. GERD's disease. | The doctors have done blood work, MRI and cat scans of the brain. Can't find anything wrong. I feel like I am going to pass out. Hate the light headedness and pins and needles feeling all over. | F | 39 | 3 months 2.5 MG 1X D | 8/17/2010 | 1 | DVT (left leg) & PE | Increased hair loss, severe severe fatigue and weakness, terrible muscle aches, feel like I have the flu. | The Mayo Clinic and NIH web sites describe some of the less and more severe side-effects of Coumadin. Print these pages and show them to your doctor(s). These organizations recognize what Coumadin can do to people. I want to scream when a doctor tells me my symptoms are not from Coumadin but because I am depressed. This is NOT depression! | F | 41 | 30 days 4 MG 1X D | 7/21/2010 | 1 | Bedridden during hospitalization | Up though 3 weeks post 14 days usage: Swollen backside of tongue (affecting ability to talk), cold sensitive, severe itching, agonizing joint/muscle pain, finger joints had razor blade/glass chard sensations, tremendous fatigue, no grip strength, total body weakness. Taking Coumadin proved to be a gruesome experience. Untill I read this website, I had no clue as to the cause of my suffering and fear. Now, I worry as to how long before these remaining side effects are gone ... | F | 54 | 14 days ? 1X D | 7/11/2010 | 1 | massive pulmonary embolism | can't sleep on my side, shoulder joints hurt, diarreah, memory loss. | So now I live in a recliner because I cannot sleep on my side more than a few minutes, not much sex in my recliner either! My knees, shoulders and hips hurt so bad I cannot walk around the block to help get healthy again. So cranky the dog avoids me. I could shoot crap thru a screen door. Started eating pain pills like a fiend, that has to be good for me. One more month, then I throw these things away. I will try nattokinase, but I can't handle coumadin. Let the Lord take me home if that is the only cure for my clots. I can't do my yardwork, so she does, that just aint right. Doctor insists these aren't side effects, but I never had a dang thing wrong until this. | M | 54 | 5 months 2.5 1X D | 6/11/2010 | 1 | DVT | Anxiety and depression are beyond my limits. Confusion, frustration, impaired speech, fuzzy vision, lack of thought and clarity. | Never thought I'd post on one of these types of discussion boards but have nowhere to go. The depression has taken me to zero, absolute zero. I had such a strong personality and now I can barely look someone in the eye. I can't even type what I'd like to say it's so bad. Sorry to whine. I wish the very best to everyone and pray no one endures these types of side effects. | M | 42 | 29 days 8 MG 1X D | 5/17/2010 | 1 | DVT - Caused by Birth Control Pills | This is a follow up. Please see my post from 3/3/2010 for a full description of the side effects I experienced. | I first posted on 3/3/2010 about my horrible experience with this drug. As stated I stopped immediately a month early cause I could not take it anymore. Now it's been nearly 6 weeks later and I'm thrilled to report that I have my life back! After looking into this med more, I'm fairly convinced that it can somehow affect your thyroid. (This is just my opinion.) While I started improving immediately after stopping the med, it was a bit slow going until I started taking a natural supplement called "Thyroid Energy." The kind I take is from Now Foods but I'd think any natural Thyroid booster might help. It's been great! I've lost 10 pounds so far without trying, I have energy, I can FOCUS and I'm no longer losing hair. My business is slowly but surely back on track. I wonder if being on a natural Thyroid booster while on the med would have off set some of the side effects. I don't know, but it may be worth looking into for those of you still on this med and experiencing similar problems. However definitely talk to your doctor first as even natural supplements can be very potent! Best of luck to everyone on this stuff and by all means look into amino acids and supplements that might help, then talk to your doctor FIRST to make sure he thinks it's safe for you before taking anything. | F | 30 | 5 months 10 MG 1X D | 4/18/2010 | 1 | Blood clot in left femoral artery | Extreme nausea, dry heaves, exhaustion to the extend that I can barely stand up. Anxiety and depression. Shortness of breath.Chills and headaches, muscle spasms | Doctor says these cannot be side effects. However, I say the drs should have to take this stuff for a week and then maybe they'll change their tune. I need to be on this for at least 3 months, which I know many of you are on this for longer, but the side effects are wicked. | F | 50 | 11 days 5 MG 1X D | 4/4/2010 History | 1 | DVT | Exhausting fatigue, weight gain (17 1bs), mood swings, anxiety, depression, inability to focus, moderate hair loss with increased graying, SEVERE loss of motivation, increased mistakes, can't think, and now getting to where I can't even function. | My DVT was attributed to birth control pills. The first couple months was okay, but I noticed I was slowly gaining weight. So I increased my workout to a full hour a day and improved my diet, but even after 3 months this has done jack. Hair loss, mood swings, depression & fatigue were very soon to follow, which to me was way worse than dealing with weight gain. I run a business and sure enough, my reports show a strong, steady decline in my production and a large increase in errors since I started this stuff, but especially the past 3 months. This past (5th) month has been the worst. I cannot continue like this. I was supposed to be on it for another month but I'm not taking one more dose, and my Dr is just going to have to deal. I was a good girl for 5 months and I'd rather risk it than go for that 6 month safety net. It's either this or lose my business. Yes, the mental effects are THAT BAD for me. I feel so bad for the lifers!! Hang in there, surely something better will come out in the near future! | F | 30 | 5 months 10 1X D | 3/3/2010 | 1 | occasional heart palpitations | I had palpitations 20 years ago. Having heard bad things about Coumadin, I resisted, but a Cardiologist insisted I take coumadin, also called Warfarin. He scared me I could get a stroke. I got weaker and weaker. None of the doctors could figure it out. Finally my husband called the ambulance, as I could not go the steps myself and took me to the hospital. They found I was very anemic and gave me 3 units of blood right away, 2 more units later. I had to swallow a camera and they saw a bleeding ulcer in my stomach. That is where I was losing the blood. All doctors repeated over and over: "No more Coumadin". I had to stay in the hospital 4 days until I regained 70% of my strength. If you ask me I recommend take that poison off the market. | I would have died from bleeding, if not gone to the hospital. It crossed my mind: The push on Coumadin everywhere, do the doctors get a kickback? I don't know, but I wonder. | F | 82 | 60 days | 1/30/2010 | 1 | atreal fib | breising cold feet and cold all over | M | 76 | 3 months | 12/15/2009 | 1 | Bi-laterral pulmunary embolism | very severe headaches, anxiety to the point I did not want to leave the house, depression, lack of total concentration from WARFARIN had to switch to COUMADIN | I developed a blot clot as the result of wearing a leg cast Sept. 28th. One week after being put on warfarin the headaches started. I asked if it was from the warfarin and the Dr. said not likely. Then all of the other syptoms started and I was put on all different kinds of meds to help (so they thought). The Drs where being very good about it , we live in a small town and the Drs all discussed my condition quite often. Finally after 6 weeks I could not go on any longer, I was losing my mind. I went to see my Dr and begged her for some other alternative to warfarin because I will never make it through the holidays. One of the Coumadin nurses sugested we switch to Coumadin from warfarin. I started the Friday after Thanksgiving and within ONE week I was back to my self again. Well 80%. The funny thing was just because the Drs never heard of someone having these problems on warfarin before, it was like it just doesn't happen! | F | 48 | 59 days | 12/12/2009 | 1 | Mitro Valve Replacement | Depression, No energy, Bruise to easy, Gums bleed when level to high, and clots in kidney and bladder. | I've been on coumadin since dec of 96. That is when I had a mitro valve replacement. What was suppose to be a fairly routine surgery turned into a 13 hr surgery. Long story short, 2 open heart operations, lungs collapsed twice, respirator twice and I coded 3 times, Once on the table and 2 times in room. I have been on this rat poison for to long. I have 2 incidents where my bladder was filling up with clots. Energy is gone, And everytime I ask my doctor why they cant level off my coumadin, he says he is not sure, I wonder sometimes if it is even worth taking. | M | 31 | 13 years | 12/8/2009 | 1 | atrial fib | Tiredness, trips and cost to have Dr monitor, weight gain, no salads or grapefruit | Research needed to find a substitute. Everyone knows that it is rat poison in a reduced dose! | M | 73 | 3 years | 8/5/2009 | 1 | confusion. joint pain dizzy frequently. When I told the doctor he said (via a call from his nurse)that it was not possible that coumadin could be causing this. Today, fathers day, I quit taking coumadin and changed my doctor. I know my body better than any doctor. Quality of life is very important to me; I don't need any doctor essentially telling me "its in your head." As far as I am concerned; he is the jerk, not me! | M | 78 | 4 months | 6/21/2009 | 1 | pacemaker | I am writing this for my mother. She is now is now in a rehab facility after falling and hitting her head. She had a hemorraghic stroke and ischemic. Coumadin levels high. Best guess is that the coumadin caused the hemorraghic stroke, which caused her to fall, hit her head and further cause an ischemic stroke. She is very confused, has a major concussion. She complained up to to this point of extreme fatigue, loss of hair, dry skin. Her life had been reduced to sleeping while on coumadin | We really hope she survives. We do not know if she will ever go back to her normal, very active life. She is now nearly blind from the location of the stroke. | F | 87 | 2 years | 5/21/2009 | 1 | mitral valve replacement | nausea, tired all the time, nighmares,dry itchy skin, hair loss, weight gain, depression, bruising, joint pain, and headaches | I never seemed to have enough air in my lungs to walk anywhere; and believe me I try. I have good days and bad with depression. Lost interest in most things, INR is all over the place at this time why?? same food. Doctors hears complaints but it keeps me alive. I am grateful to be alive after four years of being mis-dignosed and having a blood clot over the diseased valve. had rheumatic fever as a child. Wish there was something else to take! | F | 55 | 3 years | 3/29/2009 | 1 | DVT, leg | severe nausea, diarrhea, headaches, sleep loss, confusion and forgetfulness, "mushy" brain feeling, slurred speech, depression | By the time I reached 15 mg. dosage, I called my doctor, sobbing on the telephone and begged him to take me off this drug. The higher the dosage, the worse my side effects got. The worst part is that the medical profession does not believe this drug causes all these side effects. I am now off of it and taking aspirin instead. | F | 55 | 5 weeks | 3/20/2009 | 1 | stroke, coratid artery dissection | this medicine has made me severely depressed. I was told to take a higher dose by my family physician(who did not check my INR on a regular basis} and my INR was 7.0 which caused me to have a retinal hemmorhage. i am now blind in my right eye do to this. this has caused even greater depression. I am confused, and cannot concentrate. I was a different man 4 months ago and feel that this medication is making me worse - if that is possible. I hate this drug and my wife is looking into herbal remadies that may do the same thing without side effects. any reccomendations? | would like to hear any feedbak for any herbal remedies thatcould replace this drug if possible | M | 49 | 4 months | 3/11/2009 | 1 | stroke,AFIB,PFO | Global weakness and numbness in extremeties,intracranial pressure like hanging upside down on monkey bars and can't get off.Diziness.ligtheadedness. Disabling.Constipation and EXTREME RAPID weight gain. | DON'T TAKE Coumadin or it'll take you!!!! One of the poisonous reactions I've ever had on a medication and cant believe the doc's or pharmaceutical companies don't acknowledge these potential side effects!?#@! Until I found this website everyone was making me feel crazy...like stress was causing my symptoms...or maybe I was overeating due to stress...I in fact have cut my food intake and the weight keeps adding. Just so bad.. Taking myself off of this "wonderdrug". | F | 43 | 3 months | 3/8/2009 | 1 | PE after back surgery | I experienced extreme joint pain and rapid weight gain | As soon as I started taking coumadin I started experiencing flu like symptoms of every joint in my body ached. After 2 months the joint pain was so severe I needed help getting out of a chair after sitting for 10 minutes. I went to my Dr. 3 times to get them to take me off coumidin and they said it was a bad idea. I finally went to a hemotologist and that Dr. explained that keeping someone on coumadin after one episode of PE was more dangerous that the chances of having a second episode. After 5 months of agony I was finally taken off of coumadin and within 24 hours my joint pain went completely away and after one week I had already lost 10 pounds without trying. I would advise if you are having negative results with coumadin to seek out a specialist and find out the truth about this very dangerous drug. My understanding from the specialist I went to is that even if you have risk factors that could lead to a second episode the damages from coumadin far out way the benefits and you are | M | 45 | 5 months | 2/13/2009 | 1 | Blood Clot in Arm | My blood pressure dropped significantly while taking this medication. The first week I felt good without any side effects. During the second week I began feeling horrible. I was tired and felt like I had the flu. I was vomitting every morning. My blood pressure would hover between 70-90. I also had problems staying warm. Cold chills were very frequent! I told thhe doctors that this medication was what was causing these side effect listed above, but I got the same responce over and over: "Coumadin does not have any side effects." My cardiologist took me off of the medication after 3 weeks because he said I was at a high risk for internal bleeding. Also, while I was taking coumadin they could never get my levels right. I was always way too high, yet they never altered the dosage. I have been off of it for 4 weeks now, and I am still having trouble getting my blood pressure back to normal. | I know this medication can really help people who have blood clots, HOWEVER do your research. Have family members do research as well because doctors are under the impression this medication does not have any side effects, which is completely stupid! The more people you can have around that are informed as what to expect when you are taking this medication, the better off you will be. Do not play around with this drug, or take what your doctor says at face value. Get informed and have all the people around you informed as well. | M | 78 | 3 weeks | 1/21/2009 | 1 | DVT in right leg, Factor V Lieden | Tired, cold all the time, Poor concentration and retention, depressed, very difficult to lose weight | This drug has turned my life upside down. I can't do my job well because I am so tired in the afternoon. I have a hard time listening for long periods of time. And I need to lose weight to decrease my odds of having another DVT, but it's extremely difficult. Large amounts of exercise only maintain the weight and I keep decreasing my portions and meals and nothing makes a dent in the scale. Also, I still do not have a stable INR. I've been taking it since last January. I take 12.5 mg every day, but twice a week I take 15mg. It's very high and I'm pretty nervous. | F | 38 | 12 months | 1/21/2009 | 1 | Multiple PE-both lungs /HRT induced | Weight gain, carpal tunnel in both hands, plantar fasciitis in one foot, joint pain, numb toes, cold all of the time except when having hot flashes, eczema on face. | This medicine is practically making life unbearable. I was diagnosed with bilateral multiple PE following the use of the Nuvaring fro HRT for over a year. In the past 2 days, I have not taken my dosage (7.5 3 days a week, 10 mg 4 days a week) because I can’t stand the way feel. I have been on it for 3 months. The Dr tells me I have 3 months left to go. I am seeing another Dr in 3 days to see if I can regulate clotting through diet and supplements instead of Coumadin. Has anyone else done this??? Please let me know. | F | 51 | 3 months | 1/16/2009 | 1 | Atrial Fibrillation | Brusing, body hair loss, bleeding from my tongue when brusing my teeth even though the warfarin is at normal (INR 2.0)levels. General malaise. | Considering this poison was created by the Nazi regime as a rodenticide it is surprising there are not more side effects. It is rat poison, plain and clear. | M | 66 | 700 days | 1/16/2009 | 1 | irregular heart rate | Extreme problems with short term memory loss, weight gain, bruising, cold all the time, sleeping problems | This medication is rat poison. If the reason you are taking coumadin doesn't kill you coumadin will. | M | 46 | 6 years | 1/13/2009 | 1 | p.e.after shoulder surgery | I am extremely exhausted. I can barely get anything done during the day. I shuffle around instead of walking. I have no desire to do anything, even though it is close to Christmas. I am usually very sociable and outgoing. My mind is alway foggy and have extreme memory loss. Sometimes I cannot even put a sentence together. I am usually ok for a couple of hours in the morning and then I can barely do anything. Exhaustion prevails. I have a horrible time trying to sleep. This cannot be normal. Does anyone have any suggestions? | F | 52 | 3 months | 12/13/2008 | 1 | to prevent clotting in the arteries | Lethargic, sleepy, extreme amount of blood in urine. Urine looked like what amounted to a cup of grape juice, only redder. No sign of usual urine color, just foamy red. | This is a frightening drug. My husband was prescribed this drug after his second heart attack. He is only 46 years old. He has a condition called Ectasia. He was put on Coumadin by the hospital he had his attack in. He followed up with his normal cardiologist. NOBODY set him up to have his INR checked. He was on it for almost 3 weeks unchecked. Today he was peeing bright blood, went in and his INR was 9. Has anyone ever had that number? He is in the hospital overnight right now. | M | 46 | 19 days | 12/11/2008 | 1 | multiple trombosis after operation | depression,weight gaining.I ended up not eating,had no apetite and still I was getting fat.Cronique fatigue,couldn't get off the bed,plus realy bad liver ache,stabings of high intensity under my ribcage,right side. Pores of my skin were clogged and had an eruption on my face and body of spots and sebum. Per total I think I was being poisened just like rats(as this drug was used to kill rats) Anyway something changed my life is a NATURAL REMEDY: GUARANA AND GINSENG. Common Names: Guarana, guarana kletterstrauch, guaranastruik, quarana, quarane, cupana, Brazilian cocoa, uabano, uaranzeiro Main Actions (in order): stimulant, antioxidant, memory enhancer, nervine (balances/calms nerves), cardiotonic (tones, balances, strengthens the heart) Main Uses: as a caffeine stimulant for energy as a weight loss aid (suppresses appetite and increases fat-burning) for headaches and migraines to tone, balance, and strengthen the heart, as a blood cleanser, and to reduce/preven | F | 27 | 3 months | 10/19/2008 | 1 | DVT and PE | Warfarin has turned my world upside down. Weight gain (20lbs in 3 months), major hair loss, very bad acne, and memory loss. Not to mention i can't shave my legs or anything else for that matter with out getting major in grown hairs(sensitive skin now). I NEVER had any of these problems before. I am loosing muscle mass and feel as if I am a 70 year old woman. I don't know what to do but cry. The doctors keep telling me its not the medicine but I feel it is, my body is telling me it is. things are not easy, and it is affecting me; I feel for the rest of my life. | Poison to the body. I believe that the drug company is lying about the side effects of this medication. They are the only option pretty much in the states and are trying to keep it that way. | F | 24 | 5 months | 10/14/2008 | 1 | DVT - 3mm in calf | Sleeplessness, waking in the night, and fatigue from the sleeplessness including some dizziness | I was put on Coumadin as my INR wasnt moving up and I had been injecting myself with Aristra for over 4 weeks. As soon as I started the coumadin I would wake at 5am and feel terrible all day. My doctor has said that I can take sleeping tablets, but 2 more months of this feels like a nightmare. I am healthy young woman with a business to run, and I would rather live with the 3mm clot rather than kill myself with this treatment. I have been told there is an international protocole for this treatment, so however big or small the clot is you get 3 months of a prison sentence. Please email me if you have any similar experiences to share | F | 39 | 1 months | 10/9/2008 | 1 | Heart | Tired all the time | Can't sleep or bend over | M | 76 | 21 days | 10/9/2008 | 1 | Atrial Fibrillation | Wake up in the night, impossible to get back to sleep. Cold hands. Concentration difficult. Drier skin. Feel flat. Seem to want to eat all the time. | Intially I was put on Warfarin because of atrial fibrillation. That episode has now vanished, but an echocardiogram suggested a tiny section of the heart was not working 100%. Rest is perfect for my age. Doctor said I would have to stay on Warfarin for life, or chance a stroke or heart attack. Hate the stuff. Probably will never feel right again. The cynic in me suggests that every person prescribed Warfarin is up for a minimum of 12 INRs a year. Very easy money for the doctors' surgery. But there is no real option but to go with the recommendation. Suggested aspirin, but no. | M | 64 | 4 weeks | 7/28/2008 | 1 | atrial fibrillation | tiredness, depression, anxiety, weakness, malaise, lackluster, easy bruising, bleeding, some hair thinning | This drug seems counter-intuitive to me... giving a person rat poison to try to help them? (You did know coumadin was originally designed as a poison to kill rats, didn't you?) In my case (permanent atrial fibrillation) I've been advised by my doctors to take this most of my adult life. Following my heart attack when I was 28, doctors put me on coumadin for the first time. I had a severe reaction and began bleeding through my kidneys within days. I stopped the drug immediately, and have refused it until three months ago, with the stipulation that the doses be kept minimal. I'm now at 10mg four days a week and 12.5mg three days a week. I hate this drug! I do so much to keep myself healthy (diet, exercise, etc.) and here I am taking rat poison! It just doesn't feel right to me, and I want to stop taking it but I'm freaked out by the possibility of a stroke, heart attack or worse... I would like to see clinical data on the actual effectiveness of this drug on a-fib patients... out of 100 | M | 53 | 3 months | 7/27/2008 | 1 | dvt during pregnancy | Weight gain, lethargy, memory loss | Stopped injecting heparin 6months post partum then went on Coumadin. Had to stop breast feeding due to coumadin which I hated. When I told the doctors in the US about my side effects they laughed and said it was because I had a new baby. This may be true..but the side effects stopped as soon as I took myself off the Coumadin (6 months post partum) and now am taking aspirin. This was OK with my doctors on Europe. This drug is a lifesaver, not doubt about that, but doctors in the US are afraid to let you stop taking it. | F | 37 | 6 months | 7/15/2008 | 1 | DVT/PE | Hair loss, joint pain, headaches, severe exhaustion... | I'd rather hang myself on a flag pole and have children beat me like a piñata. Seem to inhibit my active lifestyle. Can't believe no one has come up with a better solution. If anyone knows of a trial on WE-thrombin, I'd like to take part, will even move if it's a geographical difference. | M | 42 | 45 days | 7/2/2008 | 1 | multiple PE's both lungs | hairloss, vivid dreams, bruising, weight gain, sore joints and muscles and legs, shortness of breath, dizzy spells, itchy skin and scalp, memory loss, fatigue, bleeding | I was told that my PE's were caused by prostate cancer treatment for 12 years which tends to thicken blood. That and a sedentary job forms clots. May be true, but I get up and walk every hour now. Totally disgusted with this poison. Screw it! I'm taking myself off this crap this weekend and starting an herbal, Phenocane, a COX2 inhibitor without any known side-effects. I wish I new how long it will take to get coumadin out of my system. | M | 69 | 5 months | 6/21/2008 | 1 | dvt | Hair loss, weight loss severe fatigue after taking for 3 months.Also depression,shortness of breath Unquenchable thirst at times. | I am also concerned about this being a rat poison and most of my side effects macth those of a person that has ingested rat poison | F | 44 | 3 months | 6/20/2008 | 1 | Unidentified cause PE | Muscle pain, especially chest and arms, weight gain, depression, lethargy - inability to exercise/aerobics | I have been taking coumadin about 5 months, and have never had a stable INR. My concern with the drug is my muscle cramps, and feeling completely "spent" after an active regimen of aerobics for 12 months.... everyone (doctors and "friends") have said coumadin is benign! i NEVER felt this... this website and others experiences once again suggests a diff between law and mfr claims. Where is the FDA? | M | 43 | 5 months | 6/8/2008 | 1 | Ext. DVT ankle-upr.illiack vien | Loss of sex drive/libido, loss of appetite, memory loss, severe fatigue/tiredness, severe irritability, periods of anxiety and depression, headaches, extreme acid reflux, mood swings, wieght fluctuation, cold feet, sensitive to temperature ie hot then cold etc, sweating at night, wierd dreams, cant get a good nights sleep, assortment of aches and pains that come and go. | I was diagnosed with extreme dvt in my left leg going from my ankle to my upper illiacc vien (near belly button) in 2006. Right after I was put on coumadin. Ever since I have not been myself and thought I was crazy or it was all in my head. I went to my doctor many times to get the same response (stress/depression/all in your head). Funny I never had these symptoms before taking coumadin. I just stumbled acrfoss this site today and it has changed my life. A huge wieght has been lifted off me - IM NOT CRAZY IT WASNT ME AND ITS NOT ALL IN MY HEAD. I would love to talk to anyone that is also going through this. Im going to my doctor to get off this poison. I would rather stop this drug and chance dying because this isnt living I feel halfway dead. Seeing this site has changed my life | M | 26 | 2 years | 4/30/2008 | 1 | dvt | developed blood clot above knee after breaking fibula below knee,very tired,bad stomach pain,hair loss,2 times had massive unbearable pain in right shoulder couldn't move arm for 2 days nothing helped, anxiety, bad mood swings, night sweats, have period every 2 weeks for 8 days and very heavy | after being on it for 10 months I am on 20 mg and 15 mg every day inr's never consistent but I don't experience the bleeding at all if i cut my leg shaving the blood dries up in about a minute and the blood is sticky I also don't have any bruises at all.On lovenox and coumadin had massive cut on my knee requiring 3 stitches inside and 6 outside bleeding stopped pretty quickly. But I am so tired all the time and it's a different kind of tired like i'm dying tired. I have good days and bad days, mainly bad.Everyone tells me i'm too young to be this tired but glad I see others going through the same thing. I work on my feet about 12 hours a day and have 2 teenage kids so it's hard to rest but now it's different.My stomach hurts so bad not nauseated but intense pain but no blood in stool (plus I hate to throw up and have not had that happen yet) did cough up blood about 2 months after being on coumadin went to emergency room and doctor thought i was crazy for coming in. It was bright red b | F | 40 | 10 months | 4/28/2008 | 1 | Lone Atrial Fibrillation | Fatigue, Swelling, Nosebleeds, Rapid Heart Rate, Higher Blood Pressure, Feeling of falling, light-headiness, nausea | my husband was on this medication for about 3 months, when the Dr. said there was nothing else he could take, he decided to stop taking the medication as he felt the loss of quality of life was not worth the benefit of this medication. We eventually saw a doctor who suggested an alternative Called Sintrom, which has all the benefits of Warfarin but is better tolerated by people who just can't take Warfarin. He has only been taking it for a short time, but so far it seems to be doing the job without the side effects. I pray that it continues to work. The doctor who told us about this drug said a lot of doctors don't know about it, but it has been around for a while. I would suggest you talk to your doctor and see if this is available in your area. We live in Canada, so don't know if it is available in the US or not. Good Luck. | M | 65 | 3 months | 1/17/2008 | 1 | DVT/Lungs filled with clots | Massive hair loss. Depression. Mental fatigue. I also have fibro myalgia. I have taken coumadin for forty years! I have had many surgeries and I think the coumadin is responsible. | Last month I had to be off the 10mg. that I take every day for yet another procedure. I felt better after two days. I haven't felt that good in 15 years. I could go and play with my grandson. It was wondrful! I told my doctor who said coumadin had no side effects. I felt better every day for those five days you can't make me believe it was a five day miracle! I am going to try again tomorrow to talk with my doctor and hope that he can change my meds. | F | 59 | 40 years | 1/16/2008 | 1 | mechanical aorta valve replacement | dizzeness, hairloss, legs feel so heavy they burn, scalp itches, memory loss, pain in shoulders, easy brusing, no sleep, numbness in fingertips, tired, | i opted for a mechanical valve on advice of my doctor----had i researched this drug i would have went for a pig valve or even a cadavere one--------wish i could get off this pill-i also have to take a high blood pressure pill, which also have bad side effects-have to take for the rest of my life-----hopefully one day they will find a better drug- | F | 63 | 11 years | 1/14/2008 | 1 | DVT; heterozygous Factor V Leiden | Fatigue, headaches, lethargy, depression, irritability. | I seem to have headaches constantly. This is frustrating, because any medication you take (NSAID's or Tylenol) impact the PT and INR, and can skew your level. I love to eat salads and vegetables, and now these are taboo. My hematologist states that I have to take this medicine for life. I am giving it 12 months. By then the clot will be gone, and I will go back to being myself. I truly dislike the person that I have become with this blood clot and coumadin therapy. For 53 years I never had any problems, although I am heterozygous for Factor V Leiden. Now, taking HRT post-menopausally, I developed this clot in less than 8 months. What I plan to do is never do HRT again, get off of the coumadin, be myself again, and wish for another 53 years of clot-free life. Being heterozygous caused me to have my daughter testesd. She also is heterozygous. This is good information for her. She never should take an estrogen-based birth control pill. If you have Factor V Leiden, heterozygo | F | 53 | 4.5 months | 1/4/2008 | 1 | Atrial Fibrilation | My 84 year old husband was taking Coumadin for three years. He expeienced a very minor fall in our driveway which resulted in a hematoma on his spinal cord. We were told by his doctors that this is being seen more and more and only in Coumadin users. He experienced severe pain, paralysis, incontenance and anxiety for six weeks before his death from "spinal cord hemorrhage". It was worse than the stroke he had hoped to avoid. We were never advised about this risk! | This "worst-case" scenario regarding the use of Coumadin should be made better known by the pharmaceutical industry. Think twice before taking it. | M | 84 | 3 years | 12/17/2007 | 1 | Supposed DVT | On Coumadin x 6 mos,felt bad entire time. Cannot get PT/INR at appropriate level no matter what dose. Tired, feeling out of sorts, can't sleep, you name it. | Since being on Coumadin, never got PT/INR right, going to office once a week, finally had enough now go only every 3 weeks. Have been as high as 7-9 mg day to as low as 2.5 mg day depending on what nurse I see. Never have salads/greens any more. Not too much bleeding unless on high dosage. Feel worn out on high dose. I am definitely feeling like stopping real soon. | M | 65 | 6 months | 11/25/2007 | 1 | I quit due to hairloss | I quit taking this drug and my Dr switched me to Lovenox because I lost over 50% of my hair. Rat poisen! | F | 40 | 3 years | 11/4/2007 | 1 | Husband on for total knee replaceme | Much nausea, GI upset, pain in abdomen, fatigue, indigestion, weakness, | Husbands reaction to this med caused him to fall behind in his rehab. We had seen three specialists, MRI's, Cat Scans, trying to find reason for his symptoms. We asked his doctor to change to another anticouagulant...but he refused. After taking it for three weeks we changed it ourselves. He went to good ol' aspirin 325mg. | M | 65 | 21 days | 9/25/2007 | 1 | DVT right ovarian artery | Extremely dizzy, weak, tired, aachy, sad, non stop period, levels never good even with good diet. | This drug is poison and I hate it. | F | 32 | 2 days | 8/17/2007 | 1 | Blood clots | My left shoulder often hurts, the same spot I originally had the clot. My feet swell back and fourth..never both at the same time.My leg starts to hurt often leading down to certain areas of my foot. this is every day. I wake up with a Different body part aching. Impossible to lose weight being that that I started the medication the day I delevered my youngest daughter. head aches. I hate the fact that i have to get my blood level checked twice a week..and it is never consistant even though I take the medicine as directed.... | I don't recomend it, it follows with tons of blood work, and plenty of reoccuring dr. visits. | F | 22 | 7 weeks | 8/1/2007 | 1 | Blood Clot in leg | My mother was placed on coumadin for 6 months after finding blood clot in leg. She completed 5 1/2 months of the treatment before her doctor took her off the medication. She has been off the coumadin for 1 1/2 months now, but is still experiencing the same really bad side effects that she had while taking it, only now they are worse. She has burning and pain in her arms and legs (arms are the worst). She says it feels as if someone is holding a hot iron to your skin. Her skin has changed so drastically over the last few months that even a touch leaves a major bruise that lasts for weeks. Her skin feels like paper and brushing against ANYTHING will tear it and it will bleed for days and will not heal. Arms and legs also itch, but the burning and the pain are the worst. The pain and burning are becoming unbearable. Has anyone else that has gone off coumadin experienced these side effects after coming off coumadin? Also, any recommendations on how to treat the burning and pain? | F | 78 | 5 months | 7/21/2007 | 1 | Did not take | Sorry to see so many people suffering from this dangerous drug. Here are some alternatives but work with your doctor. Papaya's enzymes can help dissolve clots but will affect the Coumadin dosage- you will need less (good). Garlic is very good against bacteria and good for cardiovascular system but again makes Coumadin more effective. | Raw garlic 1-5 cloves a day or garlic oil etc. Ginko Biloba also helps thin blood but is safe- less drugs. Nat vit E also good- mixed tocopherols best or lots of nuts. Ginger thins blood also and has many other good properties, anti-dizziness, anti bacterial, raw form digests protein and probably clots. Nattokinase is a good clot dissolver. And Vit D3 - from sun or pills is very important in general- or cod liver oil- also thins blood. See vitamindcouncil.org. Check out James Duke PhD for herbs. Work with your doctor for the right Coumadin dose and get off it asap. | M | 52 | 0 days | 6/29/2007 |