COUMADIN Reviews (WARFARIN SODIUM)

Average Rating: 3.1 (876 Ratings)

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 ANTICOAGULANTS THROMBOLYTICS

 Type: Rx Drug

  

COUMADIN  (WARFARIN SODIUM):  This medication is used to treat blood clots (such as in deep vein thrombosis-DVT or pulmonary embolus-PE) and/or to prevent new clots from forming in your body. Preventing harmful blood clots helps to reduce the risk of a stroke or heart attack. Conditions that increase your risk of developing blood clots include a certain type of irregular heart rhythm (atrial fibrillation), heart valve replacement, recent heart attack, and certain surgeries (such as hip/knee replacement). Warfarin is commonly called a "blood thinner," but the more correct term is "anticoagulant." It helps to keep blood flowing smoothly in your body by decreasing the amount of certain substances (clotting proteins) in your blood.    (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by Satisfaction lowest to highest.

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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More on COUMADIN: Reviews Summary  |  Drug Safety Information

RATING  REASONSIDE EFFECTS FOR COUMADINCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 5  DVT-RIGHT LEG (7 CLOTS BEHIND KNEE) WHILE TAKING COUMADIN I EXPERIENCED HAIR LOSS, FATIGUE, LIGHT-HEADED/DIZZINESS AND MEMORY LOSS. SINCE I HAVE BEEN TAKEN OFF OF THE MEDICINE, THE MOST PROFOUND AND NOTICEABLE SIDE EFFECT THAT STILL LINGERS IS MEMORY LOSS. I THOUGHT THAT ONCE I WAS OFF OF THIS POISON, IT HAS BEEN OVER 2 YEARS NOW, ALL OF THESE SIDE EFFECTS WOULD DISAPPEAR...NOT SO. I HAD A SHINY BALD PATCH ABOUT THE SIZE OF A GRAPEFRUIT IN THE BACK OF MY HEAD. THE HAIR HAS SINCE GROWN BACK...ABOUT A YEAR LATER. I'M PLEASED WITH THE RESULTS OF THE MEDICINE THAT HELPED WITH MY MEDICAL CONDITION BUT I AM NOT PLEASED WITH THE LINGERING SIDE EFFECTS. I STILL HAVE ONE CLOT THAT WAS TOO DANGEROUS TO REMOVE BUT IT IS TIED OFF (BYPASS) AND SHOULD, ACCORDING TO THE DOCTORS, DISSOLVE ITSELF. I CONTINUE TO HAVE ISSUES WITH REMEMBERING BASIC THINGS. F 44 6 months
2/22/2008
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 5  Multiple large PE's I can't say that I have noticed any specific side effects. My problem with it is the testing required. We travel a lot and I am having trouble finding clinics that will do the INR for me Does anyone know of any anti-coagulant clinics in San Diego? F 62 4 years
2/1/2008
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 5  stroke/ t.i.a.'s some hair loss,extensive bruising;especially when doing yard work.queasyness,strange metallic taste to lips and skin,bruising to feet and knees;I walk 3-4 miles per day and my feet and toes swell and turn dark colored. This drug has been a blessing to me because I was unable to take Plavix(strange mood swings)and injecting Heparin caused worse bruises/pain than the coumadin.The worse part of taking this medication is the embarisment of constantly being covered with bruises;people wonder if my husband is a wife beater.Wearing shorts and a t-shirt,or a bathingsuit is upsetting because everyone stares at my bruises. I tell many people I have a blood clotting disorder,and take medications to treat it; everyone seems o.k. with the reason.The bruises ache and hurt constantly. I will have to take this medication for life(oh joy!!!!) F 46 4 years
2/1/2008
 5  Antiphospholipid Antibody Syndrome no side effects as yet I have ischaemic chnages in the small blood vessels of my brain due to many TIA's because of this I have seizures, memory loss, language dysfunction(at times), cognitive dysfunction. Since starting warfarin I have had 75% reduction in seizures, no language dysfunction, my memory is slowly recovering and no TIA's. Warfarin has made a dramatic differance to the quality of my life so far. F 40 3 months
1/5/2008
 5  atrial fib., stroke Frequent bruising, often spontaneous. Nose bleeds. I started Coounadin in 1992. At that time I was monitored at a finger-stick INR clinic. When the clinic closed in 2003 because it was losing money under the federally regulated system of reimbursement, I went off Coumadin, stayed on baby aspirin one a day. My INRs fluctuated too much. Then I had a stroke in 2005. I decided to go back on Coumadin, found the one and only Coumadin Clinic in a doctor's office in town. Then I had some coronary drug-eluting stents put in. That cardiologist put me on Plavix in addition to Coumadin and aspirin. He instructed me to keep the INR between 1.8 and 2.5. I weigh and measure vitamin K foods, and take 2.5mg. Coumadin daily. Well, the stents are still patent after almost 3 years. And no new stroke, yet. Ginger potentiates warfarin unpredictably. Amiodarone raises INR off the scale. Once a month INR monitoring is usually not often enough, for me, at least, in spite of measuring my food. Too many other oncontrolled variables. Patients who can M 79 18 years
1/5/2008
 5  PE during pregnancy MAJOR hair loss, weight gain My confidence/self image took a major hit from the loss of my hair and the weight gain (after already gaining 25 lbs during pregnancy) but I've learned to live with it. I throw on a wig, get a weave, whatever...at least I'm alive. I know so many people who have been killed by clots - I'm not about to complain about the medication that is keeping me healthy. I'm open to emails from ppl with similar experiences... F 26 8 months
1/2/2008
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 5  Superior Messenteric Artery Dissect Rare tear in abdominal requires me to be on coumadin since June 07. What began as a full head of hair is now shedding big time and thinning out terribly. This forum has helped and am using alternative thinning supplements to wean off this dangerous drug asap. Will our hair return after being off the drug coumadin??? Thanks, Ron M 54 5 months
11/10/2007
 5  pulmonary embolism hair loss F 60 6 days
10/8/2007
 5  mech heart valve none I'm lucky and have yet to have a single real problem past first week brusing while dose was all over the place and also on amioderone. I exercise hard, work hard, ski, bike, and take an occasional bruse that I expected to change my life but I've never had an event more serious than a handnail that bled for 2hrs or 50% more severe bruses when I really banged myself up. M 43 2 years
9/2/2007
 5  Blood clots caused from chemo. Some weight gain of 10-15 lbs. Some fatigue. I developed pain in my right hip, but don't know if it is from the warafin. I bruise very easily too. I developed blood clots in my jugular and my right leg after my first chemo treatment. Took Heprin shots and started on coumadin and now I haven't had any since I started on the coumadin- been on it about a year and will be off it as soon as they remove my port. I don't know about the hair loss because I lost my hair from the chemo. It has come back in, but not as thick as before and that may be due to the coumadin. Thank goodness there is a drug to help! F 54 11 months
8/15/2007
 5  mechanical aortic valve bruising bleeding on skin glad to be alive. takes a while to get inr straight, a year for me. always carry bandages with me! not so bad. eating a big salad every day which my doc says is okay as long as i am consistent. inr reflects any new medicine i am on though F 58 1 years
7/21/2007
 5  PE Right Lung and DVTs Light-headedness, burning/itchy thighs, burning in stomach with gas pains, and anxiety. My INR is consistently within the 2 to 3 range. My side-effects seem to be getting better (except for the burning in the stomach). Thankful for the medicine that has kept me alive, but I think it has side-effects even if the doctors say it doesn't. The psychological effects of the PE are much worse than the physical, though, so I wonder how much of my complaints are simply in my head. I notice every ache and pain and think its very serious. M 27 2 weeks
7/17/2007
 5  DVT None I am on Coumadin for life. I have taken the Lovenox shots for 7 months through a pregnancy and after the 3rd DVT. I have never experienced weight gain and actually have lost 20 pounds in the last 2 years. On the other hand, I have experienced enhanced side effects from taking other drugs while on Coumadin. Zoloft made me feel drunk. The side effects of antiepileptic drugs of Gabepentin and Lyrica (dizziness, disorientation, loss of balance, and excess sleep)were magnified to such an extent that I chose not to keep taking them. I just wish there was more literature out there about the way Coumadin interacts with negatively with prescription sedatives. F 51 2 years
5/21/2007
 5  DVT left knee/massive bilateral PE Blood clots due to taking birth control pills. Taking 12.5mgs 6 days; 15mg 1 day. INR is between 2.5 and 3 (I go in every 3 weeks). When I first started the meds I would ache all over, all of my joints would throb and all I could do was lay on the couch. Now this isn't happening. HEAVY periods that last for at least 8 days. Very minimal bruising, no bleeding gums or nose bleeds. I have noticed that my hair is shedding a lot more. African-American Female. Started taking BCPs in preparation for IVF (In Vitro Fertilization) Also discovered that my Protein S level is a little on the low side. Will have it tested at the end of 6 months on Coumadin F 34 5 months
5/10/2007
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 5  Aortic Aneurism/aortic valve replac Insomnia sometimes, heart races/pounds at night (From 55bpm - 70 bpm), cold extremities some times, hazy vision, migrains during the first 2 weeks, sweat at night on occasion. I have only been on the drug for 4 weeks but I have noticed a few side effects. The worst of which is the racing heart at night. I'm not really sure why. I'm also on a blood pressure med Metoprolol until I'm fully healed. I feel fine other than the side effects not to mention my second OHS in 9 years. I don't wan't another if possible. I just hope to be able to return to my active lifestyle and lead a normal life of a 41 yo. M 41 28 days
4/24/2007
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 5  Pulmonary emboli Nothing remarkable. Maybe I have become more impatient but I have always had that problem and think I just get worse with age - not because of Coumadin. I have been taking coumadin since January 2001 and was supposed to take it for only 6 months. Then I had a second episode of P.E and the standard protocol seems to be a lifetime sentence on Coumadin. They could not find the source of the clots so this was the only recourse. I have not changed my diet and eat lots of greens almost every day. The Coumadin dosage was adjusted to suit my diet. It took a while to stabilize but I have been on 5 mg/2.5 mg on alternating days for about 3 years. Maybe it helps that I execercise for at least one hour every day. M 73 6 years
4/21/2007
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 5  Massive bi-lateralPulmonaryEmbolizm initial slight hair loss and weight loss. Now I don't have any problems at all - It's just a part of my life and thank heavens it's there or I wouldn't be here my hands and feet are cold, but they were before the coumadin. I think if most consider this they will admit to this too. F 52 1.5 years
4/10/2007
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 5  blood clot/lung very heavy periods and hair thining out.dizziness in morning.had to get off birth control after 20 years,cannot take any hormones until finished with coumadin. glad to be on has helped keep my blood clot ok F 38 3 weeks
3/15/2007
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 5  Aortic valve replacement I never attributed my fatigue to the coumadin. Also easily bruise. I thought my breathlessness was due to being out of shape. But my once thick head of hair has been falling out in clumps for months. I found this site and believe its due to the coumadin. I've changed so much already -- no high impact anything with the (4 and 7 y.o. kids), I really would like to keep some hair on my head (I'm the mom, not the dad!) Also had extremely heavy periods resulting in my needing an iron transfusion. A uterine ablation solved it at least temporarily. I'll begin with a home, self-testing INR kit this week, which should help me stabilize. I learned alot from reading this site. Thank you. If I'd known all the rigamarole attached to it, I probably would not have elected to have my valve replaced right away. I would likely have waited another 3 to 5 years, since it wasn't an emergency. However, now it keeps me alive, so its a non-issue. F 46 15 months
2/13/2007
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 5  Bypass in leg due to thrombosis I am taking 7.5 mg once daily. I did get very, very itchy -- first, the leg that was operated on, then lower extremities generally and occasionally almost my whole body. It about drove me crazy, because I would scratch and then erupt the skin with bruising and bleeding. This has calmed down but it took probably a good 4-5 weeks. I also found myself bruising very easily -- for example, I brushed up against the edges of some cardboard sheets and my whole arm just erupted in bruises. They did heal substantially within a week or 10 days, though. I am also taking 75 mg of Plaxil and a cholesterol drug, Niaspan, as well as the occasional Vicodin still. I don't know if it's helping, but I am assuming it is -- I'm just trusting my docs. M 55 45 days
1/29/2007

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