COUMADIN Reviews (WARFARIN SODIUM)Average Rating: 3.1 (876 Ratings)Filter ResultsCompare COUMADIN with similar:
Type: Rx Drug
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Results are sorted by Satisfaction lowest to highest. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 |
More on COUMADIN: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR COUMADIN | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 5 | 1 DVT + 6 PE,Prothrombin Factor II | easy bruising, heavier and markedly more painful menstrual cycles, hair loss, always extremely cold, bleeding gums, extended bleeding episodes when I cut myself or have dental work | I started Coumadin in 12/2007 after suffering 7 clots post surgery. I was then diagnosed with genetic thrombophilia (Prothrombin Factor II). Coumadin saved my life. After my sister died from a single PE and the same blood disorder, I was put back on Coumadin for life. My doctor will NOT permit Warfarin (generic) because he states it is not as closely regulated for dosages in generic form. Name brand only for me. It saved my life -- and keeps me alive. http://stoptheclot.org | F | 39 | 2 years | 7/28/2009 | 5 | stroke-APS | When my INR is too low I get brain fog, headaches, aches in joints, hands shake and fatigue. When my INR is closer to 3.0 or higher, these symptoms go away. I also have been dx with reynaud's syndrome, fibromyalgia, and lupus. I've been on this since my stroke in July 2001 at age 48. I was told I have anticardiolipids in my blood. | F | 56 | | 7/18/2009 | 5 | Just the usual bruising and a little additional bleeding when I cut myself. | I have a blood clotting disease, APS, Coumadin has saved my life. | M | 76 | 11 years | 7/5/2009 | 5 | atrial fibrillation | one month ago I had a spinal stroke and now Im not able to walk. Im paralysed from my waste down. my side effexts where major bruising all over my body. while I was hospitalized I started getting terrible neck and lower back pain after several hoursof bad pain, I realized that I could not feel or move my legs. the nurses assure me that I was stable and later I found out that I had a stroke in my spine my INR levels where higher than 15? not sure how they got that high? please everyone on coumanin get checked and question everything..... My Dr. said everything was normal?Thanks god Bless. I will keep theraphy going and with gods help I will be able to walk again. | now I wander should I stay on coumadin or chance getting another stroke? | M | 64 | 1.5 years | 4/7/2009 | 5 | pulmonary embolism | F | 34 | 7 months | 3/29/2009 | 5 | Atrial fibrillation | Not much really. The worst thing was that I dropped something heavy and sharp on one of my toes and covered half my foot in blood before it coagulated, plus it seemed to take a long time to heal. I understand that toes can be a danger point for some reason. I also do the occasional cutting myself while shaving, although I haven't noticed too much coagulation time if the cut is very small. All-in-all, I haven't really had much in the way of problems. | This medicine works like a charm and as long as I continue having my p-time tested, I feel reasonably certain that I am okay. Having to take it for the rest of my life worries me, though, because I do not know what else is going on "behind the scenes" inside of me. However, unless the atrial fibrillation gets cured (seems unlikely so far), I'd rather take this than have a stroke. | M | 61 | 4 months | 2/21/2009 | 5 | pulmonary embolisms | I experienced light headedness on a couple occasions. I'm extremely fatigued ALL the time. Hours after I wake up I still feel groggy. I am having an increasingly hard time with concentration. I feel depressed. | It took weeks for me to get my INR over 2.0 and I've had some difficulty keeping it there. I was alternating 12.5 and 15 mg for about a month. Now I'm taking 15 mg daily. I am a lawyer so I spend a great part of the day doing analysis and writing. I've noticed over the last month or so that I am getting writer's block a lot and have a hard time concentrating. It's not that I'm daydreaming, but it takes me forever to make progress on my assignments. I feel like I'm in a mental fog and get overwhelmed easily. | M | 37 | 3 months | 2/14/2009 | 5 | DVT/PE | Dry mouth/always thirsty, Muscle/Joint pain like when you have the flu, WEIGHT GAIN of almost 15 pounds, hyper-sensitive areas of the skin from time to time, changes in hair and skin (dryness), kind of spacey, hard to concentrate sometimes, get really hot at night without sweating, cold chills like before you get sick w/flu or common cold, thinning skin, purpura, overly fixated on getting ANY kind of injury, stiffness in neck and other joints in addition to mild pain. Have fallen twice during my drug therapy and FREAKED OUT! Both times my ample ass saved me..once slipped coming down stairs at home, once tripped on vacuum cleaner cord. | I had DVT that progressed to PE's after some extended periods of travel and being immobile in bed with the Flu. Dr thinks that HRT gave me my risk factor\are calling it a "provoked" event. I have been on Coumadin since March 3, 2008. I have had 3 CATs of the chest, 2 leg dopplers, and maintain an INR of 2.0-2.5.I no longer eat hardly anything w/Vit K. Got a list off the internet that gives amt of Vit K in different foods.Site is Dr Gourmet. Helps me manage diet. I keep gaining weight no matter what I do. Supposed to get off Coumadin at 1 year anniversary but would be lying if I said I wasn't nervous. No genetic/blood risk factors or disorders. Had symptoms for MONTHS but didn't put them all together until after the event. Am married to a Doctor and he didn't even put it all together until I couldn't breathe. I can't seem to get the e-mail on this site to work. Anyone who would like to e-mail me can do so at [email protected]. Would love to talk to anyone who was on | F | 54 | 10 months | 1/25/2009 | 5 | PE/Factor V | Periodic anemia, heavier periods, bruising, and worst of all...I am FREEZING most of the time. Summer is bearable, but winter is unbearable. I have to sit in front of my heater with layers of clothes, drinking coffee and still COLD. The other troublesome side effect is low blood pressure, which really sucks.I have other symptoms many of you mentioned, but as I also take other meds and have other conditions, I cannot be sure they are related to warfarin. Those would include, tiredness, mild weight gain, dry skin, some hair loss, reduced physical endurance. | Coumadin and Lovenox saved life in 2002. I have Factor V and am told I will take it the rest of my life. I have accepted that. Staying alive is more important than the discomforts and other associated risks. I have noticed that my side effects were worse when I first started the drug. I don't know if they have lessened or I have just gotten used to it. The only thing I can't get used to is being cold. The hypotension and anemia are not pleasant either, but I have adapted. | F | 33 | 6 years | 1/14/2009 | 5 | DVT, PE , genetic clotting | Extremely lucky not to have side effects that bother me.. no headaches or weight gain. Hair loss, but guess that's more age than medicine. | With my second blood clot, dr said I just barely missed having a "catastrophic event". I would be dead without coumadin. Both parents died from PE before family realized they each carried an inherited blood disorder. When I started on coumadin, dr told me not to change my lifestyle. Told me not to eat a lot of food with high vit K, but to go ahead and have salads everyday if I want and the dr would adjust my coumadin to my diet. I still play tennis 2-3 times a week (I do bruise badly if hit by a ball, but figure that is a small price to pay to be alive), and eat pretty much what I want. I have been on 10 to 12 mg daily for 9 years and my monthly INR stays pretty much in the acceptable range. | M | 59 | 9 years | 9/29/2008 | 5 | Aortic valve replacement | No side effects that I am aware of.It is just a bit of a pain for any invasive tests or surgeries. | I have been on Coumadin for over twelve years due to aortic valve replacement with a St. Jude mechanical valve. For patients like me there is no alternative and I wouldn't be here without it. For those having trouble staying in range, consistency is the key. This includes diet and activity level. The really bad thing about this drug is the total lack of understanding by so many medical and dental professionals. It DOES NOT thin your blood, that is an old wives tale. Coumadin(warfarin) prevents the absorbtion of vitamin K in your liver(vitamin K is the blood clotter in your system. It also does not make you cold because your blood is too thin, that is pure baloney. | M | 70 | 12 years | 9/2/2008 | 5 | Pulmonary Embolism | None. | At first I thought it was going to effect my diet (eliminate leafy green vegetables, etc.) but by loading up on the leafy greens one month and limiting them to almost none in another month, the doctor was able to adjust my coumadin to a level where diet is not a factor. My INR is always in range no matter what I eat. So far I haven't had any bleeding problems. | F | 58 | 6 years | 8/11/2008 | 5 | I'm a clotter it runs in my family | your either to thin or not thin enough , weight gain | If it hadn't been for Coumadin : I wouldn't be alive today , I've had clots in heart my lungs and my legs and my brian as well, I even had 1 blow up in my lower part of my head I'm very very lucky to be living and alive the clot had caused a stroke and ever since then I have major migraine headaches daily and taking meds for them and will be to no end , Tho taking this med changes your life is because you have to be very careful, I have been on it for many years and will be for the rest of my life , I did gain weight while taking this med and yes it hard to lose it but it takes will power to lose it , eat a normal diet and you'll do fine | F | 47 | 10 years | 8/5/2008 | 5 | PE both lungs w/ DVT lower rt leg | Had my PE & DVT in Apr '06 and been taking Warfarin/Coumadin ever since. Occasionally I get cold hands or full body, but only during the winter. I tire very easily but that may well be due to potential lung damage from the clots. I tend to sunburn easily too, however I have NOT had any memory or hair loss or most of the other things others are having. No problems sleeping however I am experiencing a few small bouts with depression lately and am going to my Dr to sort that out. I do not think its related to the Coumadin as this is 2+ years since I started taking it. | Spent a week in the hospital with it all. D-dimer test had a reading of over 5000 and I was told by the Dr that I was extremely lucky to be alive after I passed out. Many die within the first 60 minutes. I was given a 'test' drug w/ my approval to break up the clots and clear them out, plus I had a filter installed for a couple months, otherwise I'd have been on oxygen for a minimum of 6 months. The Dr thinks the PE may have damaged my lungs somewhat, thus my tiring easily. Otherwise I'm a happy camper with it. Until something better comes along I'll continue to take it as I'm told I'll be a Coumadin (Warfarin) lifer. | M | 59 | 2 years | 6/9/2008 | 5 | 16 Inch DVT left leg | always cold, heavy period, hair loss (minor bunches of strands), dizziness, easy bruising, gum bleeding when brushing teeth, bloating and headaches during the time may or may not be related to the medicine | I was on it for a year. It worked! | F | 22 | 1 years | 6/5/2008 | 5 | DVT | Hair Loss, Headaches, Mood Swings, Nervousness, Weight Stabilization (I can't seem to lose weight) | I developed a DVT after a bunionectomy. My hematologist performed lab tests & found I am Positive Factor V & also positive anticardiolipin. It seems that patients who have Lupus have the positive anticardiopin HOWEVER, I have tested negative on all counts for Lupus which puts me in the "rare" group. Due to these two positive lab rslts, I will be on Coumadin for the rest of my life. At the beginning, my INR was very regular. I have to be at a high(about a 3.2). However, in the past two yrs, my dr cannot stablilize my dosing. My headaches are recurrent & I was put on high blood pressure pills for my migraines. I feel as though this treatment is a cop-out. To this day, I still feel very strongly that my headaches are contributed to the Coumadin. When my dosage changes from mth to mth, it takes a toll on my body. This is when I become increasingly tired & without a doubt, more headaches are observed (BY ME!). It's as if my body is trying to adjust to the ch | F | 38 | 7 years | 6/3/2008 | 5 | PE right lung | I feel tired but can't tell if it is the drug or the after effects of the PE; I also have pain in my shoulders and trouble raising my right arm. Again, I don't know if it is the drug or the PE. | After an initial couple of weeks with both lovenox and coumadin, I now have stabilized with INR around 2.5-3.0 while taking 5mg daily. I don't really have any major complaints; I have not had to make major changes in my diet or in my alcohol use (1-2 glasses of wine daily). The biggest change for me was having to give up my razor and use an electric one instead as a precaution. My greatest concern is not knowing how long I have to take it. My doctor told me to expect at least nine months, but could be much longer because they really don't know what caused the PE. It could have been the estrogen I took to relieve my hot flashes (I have a metastatic prostate cancer, which requires that I take androgen blockers and suppressants; they produce a male menopause with all the effects that women suffer). | M | 62 | 30 days | 5/30/2008 | 5 | I had post op complications, PE | My side effect are the usual hair loss, tired, weight loss instaed of weight gain, dry skin, cold, anxiety, watery eyes, loss of apertite(unless that's from the high blood pr. meds | I owe my lfe to warfarin, I would be gone without it, it was scary , when I went in to a clinic 1 and 1/2 days post op I only had trouble breathing, my blood oxygine level was 75% and dropping, but i had no significant symptoms, which made it real scary. Now that I am off the warfarin after 6 months, i too feel insecure without taking the warfarin, but the bad symptoms are slowly going away, but I still get excessive fatigue, so I have been reading about Protein S deficiency? and think there might be a corralation between blood clots and protein deficiency? | F | 51 | 6 days | 4/20/2008 | 5 | mechanical aortic and mitral valves | Suddenly my INR is off the wall I was 7.2 went to hopital and they gave me to much vitamin K and now I cant get over 1.4 so hepburn needles self administered in my belly again. I also experience rapid heart rate mostly at night and have recently last couple of days I cant seem to sleep enough which is a switch since I mostly dont sleep well with being so hot and a rapid heart beat. I go into atrial fibulation frequently i am not sure if the coumadin INR level being so low is a side effect . I am taking 15 mg a day of coumadin plus the injectable hepburn but i am alive and that is a good thing | F | 49 | 1992 days | 4/19/2008 | 5 | DVT in hepatic portal vein | None that I can pinpoint, other than the *wonderful* side effect of it curing all of my fibromyalgia/chronic fatigue symptoms that I had for over ten years. If Coumadin is causing any of the symptoms I deal with, they're nothing compared to those caused by chronic fatigue syndrome. | To those who consider Coumadin a poison, remember that it's poison to rats, not humans. Chocolate, for example, is sheer delight for people, but it will kill a cat quickly. Also, keep in mind that many of the symptoms reported on this site can also be related to the actual disease going on. I've had great results with it. | F | 49 | 4 years | 2/22/2008 |