COUMADIN Reviews (WARFARIN SODIUM)Average Rating: 3.1 (876 Ratings)Filter ResultsCompare COUMADIN with similar:
Type: Rx Drug
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Results are sorted by Satisfaction lowest to highest. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 |
More on COUMADIN: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR COUMADIN | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 5 | Lupus Like Anticoagulant | I am cold sometimes and sometimes tired. I do have headaches, but I believe it is from lack of Estrogen. I take Topamax 2X daily to help them. My knees get achy, but I work in a job that requires me to stand and it is on a tile floor, so this could be the problem. I do take a nap when I am extra tired. I just listen to my body. My fingernails do not grow very well any more. I will be taking this for life, so I am just trying to make the best of it and living life to the fullest! | I have not had any hair loss. No problems with weigh gain, as I do strength training 3 times a week, yoga one day and a couple days of cardio. I eat every 3-4 hours daily and I am very consistent with what I eat. I believe that my INR is in range because of my eating and exercise habits. This also helps my attitude. I do have to take name brand, Coumadin, not Warfin in order to stay in range. | F | 56 | 7 years 10 mg 1X day | 3/14/2011 | 5 | Bipolar pulmonary emboli | At first, any cut or scratch that I got bled quite profusely for perhaps 5 minutes. I have the odd spell of mild dizziness, but don't know if that's from the warfarin or not. I've experienced mild chills when relaxing in my recliner, but I don't notice them when I am up and moving around. I bruise easily, but bruises are not painful. | My first experience with blood clots in my lungs in Jan of 2004 saw me in hospital for about 8 days, on a heparin drip, and pills. Once my dosage was regulated and I was able to go home, I have had few problems with it. However, the internist let me come off it after two years, I was off it for approximately 3 months, and the blood clots came again, so now I am on it for life. It isn't a problem for me, no trouble regulating it, and have my blood test once a month. I eat pretty much what I want and it doesn't seem to affect it - i.e. grapefruit, cranberries and their juice, greens, etc. I always did eat all of those things and have not had to change my diet. The chills were bothering me a little, hence my interest in this site. They are not really bad, but are somewhat annoying, and I wondered if the warfarin could be causing them. | F | 84 | 7 years 4 & 4.5 mg 1X day | 1/23/2011 | 5 | 3 DVTs | Lots of clotting with periods, that are heavy and painful | I took it for 6 months when I was 20 for my 1st DVT and now have been on it for almost 4 years for a 2nd and 3rd. I will be on it for the rest of my life. The only real complaint it that it makes my period painful! I have really bad clots with it and they are now lasting almost 2 weeks. (And for a big bummer, just found out that OB stopped making their Ultra tampon. I want to cry!!) Other than that I wouldn't know I was on it...I'm lucky I don't bruise at all (and I did the first time I was on it)! YAY | F | 27 | 3.7 years 7.5 1X day | 10/15/2010 | 5 | 23 inch DVT and multiple PE's | Unsure of side effects, as I was very healthy before DVT and PE. I know that the coumandin has caused GI Issues. I take Nexium for the stomach pain. | I was hospitalized for five days. Discharged on my 40th bday. I was diagnosised with a 23 inch DVT and multiple PE's. The hemologist believes that it was due to the birth control pill. Realized after blood work that I had a gene mutation of which I should have never been on. But, I was on it for over 15 years no problems. Just had ultrasound today, 5 months later. Clot free but value vein damaged in upper thigh. I have been wearing compression stockings throughout treatment. I will be off of Coumandin in Sept. Hooray!! I hope to never get a DVT again. I have to admit I am nervous to get off of drug. But, happy to be done. I want to be able to eat whatever and have some cocktails. Good luck everyone. Lastly, mental issues are mainly due to the severe diagnosis. Therapy was helpful. I recommend it. | F | 40 | 5 months 5 mg 1x 1X day | 8/23/2010 | 5 | Multiple bilaterial PE's | Mostly weight gain since last Sept. when I collapsed from the PE's. Glad to see I'm not alone and hopeful that when I stop in a few weeks I can start losing weight. | F | 49 | 1 years 7.5mg 1X day | 8/13/2010 | 5 | DVT in upper right arm | significant hair loss, blurry vision at times, bruising, scattered brained at times. | Hi! I am so glad that i found this website and that i am not the only one having the side effects i am having. I was thankfully in the hospital when the DVT was found in my upper right arm, which was caused by me lying on that arm when unconscious (due to having pnemonia and a bad mix of medications) a few days prior to that day that the clot was found. I was then hooked up to a heparin drip for 7 days and then started taking Warfarin while in the hospital and had my INR taken every morning for over the week i was in the hospital and my dose of warfarin was changed according it the INR reading. When i was discharged from the hospital i had to go back to the hospital every 3 days for the first 3 weeks for my INR levels and am now going every 7 days to 10 days for my INR levels. I hope that i am not going to be on this much longer but that all depends on what my doctor tells me at my next appointment. I look forward to reading other peoples experience on Coumadin/warfarin. Best of luck to everyone here! | F | 36 | 4 months 11mg 1X day | 8/12/2010 | 5 | none | INR varies upon with diet. Healthy equals thicker, less fruits/vegs equals thinner. I eat healthy and let the dosage increase, as necessary. Absolutely no bleeding issues. Do everything I did previously, including hiking, weight lifting, running. | M | 56 | 480 days 10 1X day | 6/15/2010 | 5 | coronary aneurysms | My son is ALWAYS cold, I have to constantly have a jacket with us. He of course bruises very, very easily especially if his levels are high (which they have only been a few times). He also of course bleeds easily (childhood cuts and bruises are FUN!) Being a child his diet is unlimited, we just have to adjust his medication as needed. He tends to level out, spike, then bottom out and it's time to increase the dosage. | M | 7 | 5 years 5 MG 1X day | 6/10/2010 | 5 | Bi-lateral PE Several | Tingly or pain in arms at random moments. Feeling like I'm not all there in the mind, like an idiot. Pain in knees. Legs fall asleep when laying down. No appetite at all. | I miss being able to eat collard greens, and I hate feeling like my arms are asleep all the time. I'm glad this is saving my life and I am very thankful. These side effects are sort of affecting my daily life. I can't run six miles a day anymore cause I'm exhausted from the medicine. I just am not a fan right now. | F | 19 | 34 days 5-7 mg 1X day | 6/2/2010 | 5 | AF | None | Must have worked because I did not have a stroke. | M | 57 | 6 months 7.5 1X day | 3/23/2010 | 5 | Lupus Anticoagulant Anticardiolipin | COLD and decreased concentration | I am not a doctor but surprised when I hear others stating issues that they have. My hematologist saved my life after 2 DVT's and has educated me well on the drug, my diet and consistent testing and NEVER missing a dose. I do not take generic Warfarin as could not get regulated on it but do very well on brand. I eat whatever I want but must maintain a consistent diet. As an example, if I eat the same amount of greens each week, I stay in line with my INR. With global travel, it can be difficult but I manage by not having broccoli, spinach, leafy green lettuce etc in my diet everyday in case I cannot find it on the road each day. Doctor says the extreme cold problem is not related to the med but all coumadin users would tell you differently. I will be on this drug for the remainder of my life. The alternative is not acceptable. | F | 52 | 5 years 12.5 mg 1X day | 2/23/2010 | 5 | Factor V Leiden; DVT x2 | Definitely cold hands and feet; mild hair loss and thinning nails; a little lethargic, but can get my energy going with good sleep and regular exercise. | It has definitely saved me and I will probably be a "lifer". Mild side-effects better than risk of PE, leg ulcers, losing limb, permanent circulation problems. 1st DVT age 31, caused by FVL + OC use (all my obgyns said OCs were "safe" to take over a decade - ha! all women should be tested for FVL prior to OC use). 2nd DVT age 38, just like stats say higher risk within 8 years of first occurence. I would like info on alternative/natural remedies (TCM, chinese herbs, etc) which help whole body rather than just interfering with vit K. Healthy oils, ginger, garlic, grape juice, dan shen, dong quai, ginseng... I want to know more about their actions on blood proteins that can work together in preventing clots. | F | 38 | 8 months | 1/26/2010 | 5 | DVT... | fatigue, decrease in muscle strength, abdominal pain, diarrhea and hair loss. Although, I am not sure if the hair loss was due to the Coumadin or stress of the experience as I am still losing hair. | I was diagnosed with a DVT on 9/30/09 due to taking the birth control pill Loestrin 24. I was aware of the serious side effects that could be caused from taking the pill but didn't think I would experience any due to my age, no history of family clots, and I don't smoke. My DVT was located in my right iliac vein with extension into my inferior vena cava. Dr. told me it covered a large area. I started on Lovenox which I took for about 2 weeks then switched to Coumadin which I believe saved my life. I didn't appreciate the side effects, but it did help. I'm still alive. My INR level fluctuated quite a bit in the beginning. I started taking 2.5 mg, then 5 mg, then ended up taking 7.5 mg which finally stabilized my level. I had a follow-up cat scan on 12/29/09 and the clot is completely gone which was surprising. I am no longer taking Coumadin. My hematologist told me on 12/1/09 that my clot may not be gone within 3 months, and that I may have to be on Coumadin for 6 months or longer. Luckily, the Lovenox followed by Coumadin took care of it in 3 months. I did not develop any PE. | F | 22 | 3 months | 1/18/2010 | 5 | double pulmanary large emboli | none. Careful avoiding getting cut. | Got clots on trans Atlantic flight. Hadn't had this problem before on long flights. Probably genetic. Had several genetic tests and they were negative including MTHFR. Sister carries double defective MTHFR gene. Have stayed at 4 mil.1x a day all the time for stable PT control. | 68 | 3 years | 12/23/2009 | 5 | Massive DVT, Factor V, Occluded IVC | Slightly colder, increased flatulance | Require 15-20 mg to stay at 2.5 to 3.5 INR.Lovinox had negative effect, maxed out on heparin with no response, argatuban worked great(70-100 aPTT). Working fine so far. | M | 45 | 2 months | 12/14/2009 | 5 | Heart Ablation Surgery/Arrhythmia | Bruised easily, bleeding more when cut. | I have no idea if Coumadin kept me from having a stroke or blood clot during my heart arrhythmia and ablation surgery, but I was taking it for prevention and it did it's job. The side effects I listed to the left seem to be a given since this drug is a blood thinner. I've experienced no other side effects. In fact I feel great and hope to stop taking this drug in January after my follow-up ablation appointment. | M | 35 | 4 months | 12/11/2009 | 5 | DVT, left leg | The only major side effect? Awful tastes: bad eggs; rotten eggs; sour milk; rotted hide and flesh; constantly tasting these things anytime I salivate, breath checks out OK but tastes are just awful! | M | 31 | 15 days | 11/27/2009 | 5 | DVT/PE | Not sure if these are all attributed to coumadin or if its part of the recovery/healing from the blood thicking. Here it is. Mental focus, decrease in muscle strenght and stiffness in the hip/lower back early morning and after walking for about 40 min. | I strongly recommending fighting your way back to health. Don't give up. I found simple sugar help alot with mental focus. I've stumble on this after I was force to quit tobacco smoking and alcohol drinking. So I turned to candy and caffine. Yes, I put on 30 -35 lbs in the last 6 mths. Prior to all this, I also lost 125 lb and going back to some of thing I did to lose the weight. I've started over the weekend and already notice a reduction in the stiffness and increase in energy. Good luck and don't stop fighting. | M | 51 | 6 months | 11/10/2009 | 5 | Mitral Valve Replacement | Tiredness, anxiety,weakness, once in a while dizziness, depression, not feeling like me | I dont know if it is the medicine, but it is weird that so many other people with different help problems are experiencing the same thing. I dont know what to say other than, they dont give you any true information before putting you on this medication. I am a lifer and I am thankful everyday there is something here that can assist with me having as normal of a life as possible and being able to live a long life with my family. I just wonder why they dont have any support groups for younger people as this would be of a great help. i am so tired of people saying it is no big deal, it is just a little pill and you will get use to it....I COULD SCREAM!!! i just want to be as normal as possible. I feel more calm seeing others my age and older going through the same things. I wish there was a group that specilizes in this mess because i just soo depressed. Let me not even get started when it is time for my period, i feel like a truck has run me over with how tired i get, plus the millions of pads and tampons i have to use. Ok...I feel better now. :) | F | 30 | 1.5 years | 11/9/2009 | 5 | Anticardiolipin | Terrible heart burn, stomach aches, heavier blood flow | I had multiple blood clots scattered throughout the upper and lower parts of both lungs. I take 3 mg tablets on monday, and the rest of the week I take 4 mg. Although it's frustrating that I have to take this for the rest of my life, it has saved my life. | F | 22 | 1 years | 7/30/2009 |