COUMADIN Reviews (WARFARIN SODIUM)

Average Rating: 3.1 (876 Ratings)

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 ANTICOAGULANTS THROMBOLYTICS

 Type: Rx Drug

  

COUMADIN  (WARFARIN SODIUM):  This medication is used to treat blood clots (such as in deep vein thrombosis-DVT or pulmonary embolus-PE) and/or to prevent new clots from forming in your body. Preventing harmful blood clots helps to reduce the risk of a stroke or heart attack. Conditions that increase your risk of developing blood clots include a certain type of irregular heart rhythm (atrial fibrillation), heart valve replacement, recent heart attack, and certain surgeries (such as hip/knee replacement). Warfarin is commonly called a "blood thinner," but the more correct term is "anticoagulant." It helps to keep blood flowing smoothly in your body by decreasing the amount of certain substances (clotting proteins) in your blood.    (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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More on COUMADIN: Reviews Summary  |  Drug Safety Information

RATING  REASONSIDE EFFECTS FOR COUMADINCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 4  PE's Lupus Anticoagulant, Factor ll lower back pain,bleeding gums when i brush to hard, bruising,bad taste in my mouth,run down feeling, get cold and the chill's in cooler temp's,worse in winter, but in warm temp's and summer I get hot flashes and over heated real easy, I swear i can feel the blood travel threw my vein's( Real WEIRD feeling)I have put on weight but I,m not as active as i once was, so that could be part of the reason. I guess you can say coumadin is saving my LIFE!I have NOT had another blood clot since THANK GOD!! I have TWO Blood Clotting Disorders.I have to take coumadin for the REST of my LIFE. I hate the twice a month INR/PT blood work.My doctor wants my INR between 2.5 and 3.0,but I struggle to keep in my range. I have been as high as 4.9 But I,m more afraid to be under 2.5 than over 3.0 Life is not the same,it's a constant fight. When people can't see any physical problem's on the outside with you, they think your full of it when you say you don't feel good.But everyone who is taking this drug knows how your own body feels!! M 52 1.5 years
5mg 1X day
3/26/2010
 4  Factor V Leiden - excessive clots has made my teeth extremely sensitive, almost painful at times F 48 8 months
1/25/2010
 4  Blood clots & strokes Factor 5 Leiden here, too. I had 3 strokes in one year all on the right side, but but damage left in 4 different locations on the right side. Docs thought it must be a hole in my heart. It wasn't. It wasn't until 3rd stroke that Leiden 5 disorder was discovered in my tests. No particular side effects during the first six months. After taking coumadin for six months my PCP prescribed an antibiotic for an upper respiratory infection. She didn't have me check my coumadin pt or inr while taking it. The interaction caused my pt to go up to 5.6 and I developed a 3x2cm cranial bleed. This time the bleed was in the occipital area in the left hemisphere. I had difficulty processing what I was seeing. Ultimately, I couldn't read. My neurologist was quite angry at my PCP. My PCP thought that 5.6 was high, but not enough to worry about, but my neurologist said we should worry if it reaches any amount over 3.0. Lessen learned, the hard way! Gotta remember those interactions! I can read and write now, as evidenced by my post, but it was the strangest feeling in the world. F 55 4 years
1/7/2010
Email
 4  Mitral Valve re-placement Hair loss with good re-growth (not balding), fatigue if dosage is missed, issues with memory (could be due to aging)and depression (stuck with this for the rest of my life - no wonder I am depressed), issues with bleeding and had 2 strokes - blot clots at the base of my brain. Wonder drug, I am still alive, but much prefer the Heprin needles I took when I was pregnant. No brusing,no bleeding and its just the best. But has very damaging effects on ones bones. Oh and very expensive $12.00 per needle per day. F 41 21 years
1/4/2010
 4  Factor V Leiden I have been on Coumadin since 1998 got my first blood clot in 1995 and after surgery in 1998 was diagnosed with Factor V. Really I haven't had any side effects. If it wasnt for coumadin I would not probaly be alive.. Living with Factor V you have to be on coumadin the rest of your life. Right now I am off the coumadin and taking Lovinex shots for I am having 6 teeth pulled. In 2005 I had a tooth pulled and ended up with a clot in my colon..that was scarey.. have had clots in my right leg and lung.. F 47 11 years
12/13/2009
 4  PE - now LA cold all the time. Hair loss. Somewhat blurred vision. Weight gain. Always look bloated and puffy. Awful menstrual cycles. I dont feel normal! I know this medicine is supposed to keep me alive but sometimes I wonder if all this is worth it. I have to take 13mg daily due to the LA. My doctor and hematologist say that all these things I complain about are not related to the coumadin but come on do they not listen to what people taking this medicine are saying? We can not all be making this up. I was told by my hematologist that there is a now a drug being tested on hip replacement patients that if all goes well with it it will be out within a year.... For those of us that have to be on it forever there may be hope! F 41 8 months
10/17/2009
Email
 4  atrial fib after knee replacement s I have had a lot of hair loss, pressure in lower abdomen and upper abdomen. Some sharp pains in abdomen from time to time. My doctor said coumadin doesn't cause these symptoms. I am also on toprol for the atrial fib so I am not sure what is causing any of these symptoms. F 67 6 months
10/12/2009
Email
 4  DVT both calves/PE both lungs Insomnia, dry hair, oily skin, diarrhea, belly fat (but not sure if this is related to Coumadin). So far nothing major. However, my Coumadin clinic has slowly been increasing my dose from an initial dose of 3 mg daily to 12 mg daily. I've only been on the 12 mg dose for a couple of weeks. INR is stable btwn 2-2.2. I do have some insomnia, which was VERY bad when I also had to take injectable Arixtra as an adjunct to increase INR. My doctor prescribed Ambien and this helps. My hair is very dry but so far no major hair loss. I am starting to have oily skin and breakouts, but I'm not sure if this is because of the Coumadin or because of being taken off of oral contraceptives b/c of clotting. Also, my belly is normally a little flabby so I'm not sure if the Coumadin is making it worse yet. Diarrhea and GI upset have been very noticeable. I'm nervous about being on this drug, but so glad to be alive! F 37 2 months
9/23/2009
Email
 4  DVT left leg & PE right lung Initially I had heart burn and some mild body aches with bruising in areas where Lovinox injections were required during "bridging" to Coumadin and adjusting dosage. 5.5mg daily seems to have me around 2.6 where Doctor wants me to stay on it for six months. This stuff seems to be doing the job and side effects gone except for ocassional mild headache. So far the mental part of dealing is the hardest. Thank God for modern medicine. I am happy to be able to post... M 45 1 months
9/6/2009
Email
 4  blood clot after knee replacement Bruised easily -- to be expected. I experienced a great deal of hair loss. My doctor says it saved my life -- how can I say anything too negative. I would take it again if another clot developed. F 52 9 months
8/17/2009
 4  Mulitple Pulmonary Emoboli hair loss, weird lumpy rash on back of shoulder and decolletage considering it has saved my life the side effects are not bad. both are slightly upsetting from a vanity point of view, but I am hoping that when I finish (i get to finish..) my treatment in 2 months the hair and skin will resolve itself... F 31 4 months
8/3/2009
Email
 4  Factor V Leiden Hair thinning out, dizziness upon standing,chest pains at night,drying of facial skin,times of major anxiety and confusion. I noticed one more strange side effect since I started taking Coumadin. I have random erections throughout the day and my size has increased. I'm not trying to go off topic here or sound perverted either. M 41 2 months
7/10/2009
 4  Massive PE 2001, PTE surgery 2002 Clouded memory, word mixing, short term memory issues, extreme nervousness in stressful situations... As for my Weight gain I believe this to be due to too many cheeseburgers and not necessarily the warfarin. I have days where I feel like crap, but I put my mind towards getting off my behind and doing something constructive. Usually after I start doing something I feel better. I am a lifer on this stuff. Have been taking it for 7 years now. I do find that I have trouble mixing words in stressful situations like giving presentations or talking to my boss...makes me feel like a retard sometimes...Oh well, I just get over it, life is way too short to stress especially over what other people think. I do not have any other issues really...I play bass in a rock band and do not have problems learning songs so doing what I love is not affected by this. Yes it is a poison, but so is breathing Los Angeles air. The choice is yours, and a positive attitude is 100% the solution. M 29 7 years
7/2/2009
 4  Aortic Valve Implant Hair Loss, Weight Gain, Heavy Menstration I had open heart surgery in December of 2006 (I was 33) as a result of a dissected aorta. Dr's decided to go with an Aortic Valve Implant which, in their opinion, will allow me to live a next-to-normal life without another surgery. Unfortunately, I will have to be on Coumadin for the rest of my life and I probably won't be able to have children because of the need for Coumadin. I've been working out (swimming 1 mile & Bike 4 miles five times weekly) for two months now and have been frustrated because, while I feel my body changing, I have not lost one pound. Now, I'm wondering if it's the Coumadin. If so, there is not much I can do about it other than keep working out. F 35 3 years
6/21/2009
Email
 4  a-fib excessive bruising,blood in urine,hair loss i had open heart surgery for blocked arteries in october 2008 and developed a-fib. i am on multiple drugs for high blood pressure and high cholesteral. i want to come off of the coumadin and am considering having an ablation procedure to correct the a-fib. F 58 7 months
5/24/2009
 4  2 clots in leg and several in lungs I’m very tired. I don’t sleep through the night and once I wake up it is extremely difficult to go back to sleep. I’m having vivid dreams, which I never had before. I find my concentration is slipping away at times and I tend to forget small details, such as my fax number at work. I'm still having blood work twice a week. My INR level is staying around 3.4. I ride a Harley, which the Dr. wants me to give up due to bleeding issues. I do carry a much better first aid kit with me now. I may have to be a lifer as my identical twin brother tested positive for Factor V. I've been told I can't be tested for Factor V because I'm on coumadin. But if he has it, I'm sure I do. M 52 3 weeks
5/20/2009
Email
 4  Portal Vein Thrombosis major dizziness, weight gain (especially in stomach), sensitive to heat (get overheated very quickly), crazy nightmares for the first month, hair falling out, bad menstrual cramps/heavy periods, overall feeling of just not 100% (I am usually extremely active,fit, thin, healthy so this is a major bummer) Yes, my blood clot is gone, but these side effects are just miserable. I am wondering if Lovenox shots are an option. But, as everyone else has stated on this site, the doctors and nurses just think I am crazy! I am actually seeing 2 hematologists and they both tell me that these are not likely side effects of the drug. I have tried both generic and brand name and they are both the same. F 34 3 months
5/10/2009
Email
 4  2 nd time clot in leg & Factor V Bruising,Longer and heaver periods,Skin rash,Dry skin,Problem, concentrating,Trouble sleeping,Sometimes very hot when it is freezing inside and very cold when hot,Joint pain,Itchy scalp,Severe depression, Anxiety,Decreased sexual drive,Night sweats, Huge mood swings with increased irritability Overly fixated on getting ANY kind of injury,Weird dreams/nightmare, Dizzy, Numbness in the toes,Gas and bloating Weakness,Blurred vision, chect pains, Purple toe nails. This is my 2nd clot and I am a lifer. This time I feel like my life was been twisted upside down. The side effects are driving me crazy and there is nothing I can do to make it better. I just have to keep my head high and try to remember that I am lucky to be alive. F 31 6 months
4/28/2009
 4  DVT - Knee to hip weight gain, irritability, stomach/digestive issues I've been on this for 13 years and will be taking it for the rest of my life. M 37 13 years
4/20/2009
Email
 4  DVT - Left Calf Tiredness, easily bruised, nose bleeds, if INR gets too high; I'm starting to have hair loss, and I've always prided myself on having thick healthy hair. It did save my life. I'm hoping to be removed from coumadin, or having the dosage lowered, when I visit my doctor on 4/14/09. F 66 1 years
4/11/2009

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