COUMADIN Reviews (WARFARIN SODIUM)

Average Rating: 3.1 (876 Ratings)

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 ANTICOAGULANTS THROMBOLYTICS

 Type: Rx Drug

  

COUMADIN  (WARFARIN SODIUM):  This medication is used to treat blood clots (such as in deep vein thrombosis-DVT or pulmonary embolus-PE) and/or to prevent new clots from forming in your body. Preventing harmful blood clots helps to reduce the risk of a stroke or heart attack. Conditions that increase your risk of developing blood clots include a certain type of irregular heart rhythm (atrial fibrillation), heart valve replacement, recent heart attack, and certain surgeries (such as hip/knee replacement). Warfarin is commonly called a "blood thinner," but the more correct term is "anticoagulant." It helps to keep blood flowing smoothly in your body by decreasing the amount of certain substances (clotting proteins) in your blood.    (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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More on COUMADIN: Reviews Summary  |  Drug Safety Information

RATING  REASONSIDE EFFECTS FOR COUMADINCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 3  Multiple DVTs Right Arm Extreme weight gain, nausea, exhaustion, and the list goes on. My comment and question is for anyone that if OFF coumadin for about 2 months and have done a workout bootcamp, not drinking, watching what I eat etc and CANNOT get the weight off. Its like the coumadin is still in my system or something. Is anyone else having issues still after getting off coumadin? How long does this crap take to get completely out of your system???? F 22 6 months
8/1/2008
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 3  pace maker implant Tiredness/fatigue, bruising and bleeding easily, weight gain and vivid dreams Reviewing some of the comments here I feel like I am reading about myself. I had a pace maker implanted in me about four years ago. Though I have had no blood clots the recommendation from my doctor was to stay on Coumindin. I do have fatigue the vivid dreams that I did not have before sure do wake me up at times. Other times I just sleep the whole night without waking but feel like I have not had enough sleep. Hated the weight gain of 40 plus pounds. Did go on a diet last year and am down to my goal weight of 195 which is where I feel good at. I am 6'1". I have not lost any of the other effects of this medicine but I have an appointment with my doctor to get off this dangerous drug. M 58 4 years
7/14/2008
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 3  COMPLICATIONS FROM SURGERY TIRED,VITAMIN K PROBLEM MY DAUGHTER IS 31 WITH NEW BABY AND DUE TO REMOVAL OF FEMORAL IN THIGH TO CORRECT BLOCKAGE PROBLEM IN SHOULDER AREA SHE WAS EVIDENTLY BORN WITH, NOW HAS BLOOD CLOTS IN THIGH. HER SHOULDER IS OK BUT NOW THEY SAY SHE WILL HAVE TO BE ON COUMADIN FOR THE REST OF HER LIFE. SHE DOES NOT HAVE ANY BLOOD DISORDERS.I AM CONCERNED WITH LONG TERM SIDE EFFECTS ON LIVER IF ANY. SHOULD SHE STAY AWAY FROM ANY ALCOHOL? HER NEW VASCULAR DOCTOR SAYS SURGERY OR STITS ARE NOT AN OPTION,BUT I WONDER IF IT'S BECAUSE THEY DON'T WANT TO TRY TO CORRECT A PROBLEM THAT WAS CAUSED BY ANOTHER SURGEON.HAS ANYONE HEARD OF ANY OTHER PROCEDURES THAT SHE SHOULD ASK ABOUT THAT MAY HELP HER GET OFF THIS DRUG COMPLETELY? F 31 1 years
7/13/2008
 3  9cm iliac DVT & multiple, bi-lat PE Nausea, headaches, itchy scalp, gum bleeding, thirsty and poor sleeping. However, I had to go off the OC pill and was put on implanon, which has its own treasure of hideous side effects - so not sure what's causing what [insert frustration!]. The headaches are my biggest concern. I just feel terrible. I look well on the outside, but my sides are not happy. Hopefully the haematologist takes me off the warfarin in December 2008. I have just started walking for exercise as I have been going nutty with my inability to run/swim (previously young, fit and healthy!). Does anyone know if you can still get clots while on coumadin (assuming stable INR?)? Has anyone experienced the headaches lessening? Ps: being a vegetarian on warfarin is a nightmare - green veggies!! F 27 7 weeks
7/13/2008
 3  PE from the pill and long flight Tiredness, bruising easily, bleeding easily from small cuts and gums when flossing teeth, upper centre chest tightness especially when lying in bed at night, very heavy periods, slight hair loss I am happy that it possibly saved my life. I only had to take it for 6 months and I have been off it now for about 1 week. Since coming off it I feel like I have lost my security shield in a way because I become paranoid whenever I get a new pain which I think could be another PE. However, I am happy to be off it. One thing I am greatly concerned about now is that I still have upper chest tightness which I notice more at night in bed, especially when I change positions in bed. I have seen a few doctors and they think it is stress causing the tightness but I don't think so. I have had an ecg and chest x-ray also and the doctor said the results were good. One doctor thinks I could have an inflammation of my chest wall and said to take panadol or an anti inflammatory tablet. I don't know what to do now. Maybe I need to see a specialist and not a G.P. F 37 6 months
7/1/2008
 3  AVR and aortic aneurysm Initially extreme cold, but now either too hot or too cold. Tired most of the time, but particularly exhausted after exercise. Tiredness seems to descend like a cloud and is impossible to avoid. Have suffered two episodes of a TIA where I lost my eyesight due to an embolus. Obviously bleeding and bruising which can be worrying at times and has needed treatment at A&E (even for bruising!) INR has been unstable throughout 2 years, until the last two months or so. Maybe my body is getting used to it! No suitable alternative, or I would change meds. I am also on simvastatin, aspirin, fluoxetine and metoprolol. I do wonder about the mix of tablets and interactions. Some people seem fine on warfarin/coumadin but there seem to be an awful lot of us who have similar side effects. Too many people and too many similar comments for it to be a coincidence. My target INR is 3.5 and I do wonder if it is people at the higher end of the scale that have the problems. M 41 2 years
6/21/2008
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 3  DVT in left calf, PE Constant headaches, moodiness, weight gain of at least 20 lbs, sometimes can't sleep at night, still have chest pains,sad and unsure if depressed. Thank goodness I found this website! I agree with a lot of people about the weight gain. Doctors are hush hush about it! If you see how many times it is mentioned on this page it is ridiculous. I can't wait to get off of it. I want to see if there is a change. Feel free to e-mail if you have questions or just want to talk. It's good to know you aren't alone or going crazy! F 27 8 months
5/21/2008
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 3  SVC clot after PICC line insert Fatigue, weakness, weight gain >30 pounds. Leg and foot cramps, sleep disturbances due to racing heart I do not understand why the drug companies and dr's are allowed to say "no side effects" are associated with this drug. F 53 11 months
5/4/2008
 3  Pulmonary Embolism. Hair loss, depression, weight gain. I do have to say that this medication did save my life and did help with preventing me from having any more blood clots. The downside of this medicine was that I was losing a lot of hair, moreso than your average fall out. I ended up gaining at least fifteen pounds while taking coumadin, even though I didn't change my diet or exercise. The combination of all the side effects may have made me depressed, but I'm a generally happy person so I don't know if the medication contributed to me being depressed as well. F 22 1 years
4/24/2008
 3  PE in both lungs I am not sure if from the medication, but lately my mind feels foggy, extremely anxious, lethargic, and sensitivity to external stimuli. Very easily become cold and it feels the cold feels intolerable. I was on 2-3 INR for a year and then have been on 1.5-2.0 for three years. I think I became addicted to diet colas for energy and now feel really lousy so have stopped the colas, nutrasweet, suppplements used along with South Beach diet. Dr. does not see any neurological signs so may be Coumadin related. M 52 4 years
4/6/2008
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 3  pe in both lungs/factor V-Leiden Weight gain of approx 15 lbs in 5 months. Very dry skin and scalp. Slight rash on face and forehead. Joint pain in shoulders and arms. After having kidney infections, found I had large stone that severly damaged kidney, with 2 stones remaining. At same time dr. noticed large cysts on both ovaries and removed them, (without asking if blood clotting ran in my family). 5 days after pelvic surgery, I went to emergency room with severe chest pain, and spent 10 days in hospital with multiple blood clots in both lungs. Now on coumadin, but want to get off asap, even due to finding out I have the Factor V-Leiden gene. My 70 year old dad (now 93) was put on coumadin & almost died at age 75 due to sub-dural hematoma in brain...So I am really scared to take it forever. Any help would be greatly appreciated. F 52 5 months
3/26/2008
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 3  DVT immediate effect - gas, bloating, constipation, failure to have complete bowel movement; increased appetite; inability to lose weight; lethargy; depression - didn't know why but realized it was Coumadin. I have been taking Coumadin know for 5.5 months. It has kept the DVT from re-occurring. I am not taking the 5 mg a day prescribed - I'm taking 1 mg which my body can handle. Quality of life issue - do I want to feel good or do I want to feel bad and live longer? I want to feel good. One thing I like about this drug - it improved sexual pleasure. M 54 5.5 months
3/23/2008
 3  DVT POST KNEE SURGERY I HAD TO TAKE COUMADIN FOR SIX MONTHS JUST FINISHED THREE WEEKS AGO I SUFFERED WITH HEADACHES,WEIGHT GAIN,BLOATING,SWEATING,HEAVY PERIODS,SWELLING AND PAIN IN MY LEGS ,GETTING OUT OF BREATH EASILY AND HORRIBLE MOOD SWINGS AND NO ENERGY THIS MEDICINE DOES DO WHAT IT IS SUPPOSED TO BUT, HOWEVER THERE ARE MANY SIDE EFFECTS I HAD NO CHOICE BUT, TO TAKE IT DUE TO THE FACT I HAD A POST OPERATIVE CLOT THAT MOVED FROM MY CALF UP TO MY FEMORAL ARTERY OTHERWISE I COULD HAVE HAD A PULMONARY EMBOLUIS THAT COULD HAVE KILLED ME I DO HOPE THEY CAN FIND A MUCH SAFER BETTER ONE IN THE FUTURE I AM JUST THANKFUL TO NOT BE ON IT FOR LIFE. F 48 6 days
3/16/2008
 3  Two clots in leg, one in brain Weight gain, heavy periods, mood swings I don't know if my dissatisfaction is due to the drug or the simple fact that I am chained to it by my blood clotting condition. My first episode was caused by birth control pills and the second two by pregnancy. I was even on heprin and then lovenox during the pregnancy. F 31 2.5 years
3/15/2008
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 3   2 episodes of partial loss of eye sight - INR was tested it was about 1.00. Genetic issues Itchy ankle and sometimes tighes reduced sex drive M 90 days
3/6/2008
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 3  multiple pe abdominal hysterectomy Constant headache, dry skin, constipated, hand and legs go completely numb while sleeping, iritable, depressed, blurred vision, tired, complete body weekness, cold and hot flashes. Of course I am not able to take any hormones after my hysterectomy. Started Estrodial patch day of surgery and ended up with 7 clots in my lung 3 days later. Dont' know if it was surgery or hormone related or not related at all. I hate this drug but am thankful it was available when needed. Took 4 months to get into the "theraputic range". Today is my first day off of coumadin. I begged the docs to take me off. The docs say I should be okay, just need to watch for same symptoms I had. Am scared to death I will get another PE, but am willing to risk it to be off of this medication. Was taking 11mg daily and 12.5 Mon and Fri. F 48 6 months
3/1/2008
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 3  Slight Stroke & Atrial Fibrilation Exhastion, slight weight gain, insomnia, trouble concentrating. After 4 months, still attempting ro regulate dossage. three steps forward and then two steps backward. I am told I will be taking "Warfarin" the rest of my life. I hate being chained to the anticoagulation clinic for my remaining time on this earth - drat it all, anyway! F 73 4 months
2/22/2008
 3  2 DVTs left calf None I kept the INR between 1 and 2 for most of the time on general principles (vitamin K must do something good)and recently took it up to the therapeutic range of 3. M 5 days
2/11/2008
 3  Left leg/PE Skin rash, nose bleed one time, anxiety, severe heartburn and gas, weight gain, difficulty waking in the am I was training for a marathon when this occured. I was on birth control pills and a smoker for 5 years. Family history of blood clots. Found out I have protein C deficiency whatever that is and still waiting on more tests. Getting my blood tested every 2 weeks now. I constantly feel bloated and my things are growing by the minute, even though I am exercising again. Does anyone else have proein C deficiency? How are you losing the weight you've gained? F 26 2 months
1/30/2008
 3  3 DVT in right upper thigh Headaches, heavy periods, irritable, itchy skin, hair loss, hot and cold all the time. I have been taking coumadin since 2000, 2 months after the birth of my daughter. I was on coumadin for a year and a half. Doc said it was ok to get pregnant again. 6 weeks into that pregnancy, I got another clot in the same area. Then a 3rd clot in 2005. I am now on coumadin for the rest of my life. I have constant pain and swelling in my leg. I have to wear the anti-embolism stocking. I have had all the genetic testing done and everything comes back negative. However blood clots have been on both sides of my family. No one can give me an answer as to why I get blood clots, so therefore I can't go off the medication. I take Zoloft for stress, and was taking Topamax for my headaches (which made me feel like I was in another world). I took myself off of the Topamax, and now the headaches have returned. I hate having to deal with this everyday, especially for the rest of my life. I have also taken Lovenox and Heparin injections, which make me more sick. I cannot get my INR at a F 29 7 years
1/28/2008
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