COUMADIN Reviews (WARFARIN SODIUM)Average Rating: 3.1 (876 Ratings)Filter ResultsCompare COUMADIN with similar:
Type: Rx Drug
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Results are sorted by Satisfaction lowest to highest. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 |
More on COUMADIN: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR COUMADIN | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 3 | Bilateral Pulmonary Embolism | Headaches, Brain Fog, slurred words, fuzzy vision. Stomach upset, body aches, depression, cold intolerance, anxiety. | I know this drug has helped me from developing more clots, but dang. Feeling like crap for a year now, no energy, extreme anxiety, depression. Stomach troubles. I hope I can get off this poison soon. | M | 46 | 1 years | 8/13/2009 | 3 | Portal Vein Thrombois / Factor V L | Headache, fatigue, forgetfulness, depression, abdominal pain, I bruise easily, painful menstrual cycles, hair loss, always extremely cold or hot | I'd gallbladder surgery in Jan. and 7 days after went back for an emergency (blood clot formed in my pv) doctors said that PVT is a rare case, I stayed in the hospital for 7 days. where I had Heparin iv, lovenex shots and went home taking cumiden (rat's poison). My Hematologist said I've Factor V and will have to take it for the rest of my life but I'm trusting in God that this will not happen. A blood test every 2wks. My life style has changed completely is hard not being able to eat my salads. I really don't want to continue with this but at the same time I thanks Jesus Christ my Lord and Savior and my doctors that they gave me a second chance. If my alarm doesn't sound I'll forget that I need to take my medicine. Pray and trust in God. | F | 49 | 7 months | 8/9/2009 | 3 | DVT, PE, Lupus Anticoagulant | weight gain. feeling blah & tired. can't deal with stress or multi task. pretty forgetful, unorganized and just plain dingy.... | I am fighting the weight gain thing with Weight Watcher's. Starting to feel less tired, does help to get up off the couch & do something...ANYTHING! my attitude is better and I'm on the anti-depressents and THEY SOOOO HELP!! I'm hoping this keeps getting better since I too am a lifer. I guess I just wanted to update from my 6-16-09 comments. I agree ATTITUDE does help!! | F | 41 | 4 months | 7/8/2009 | 3 | DVT - double PE | Weight gain, lethargy, blurry vision in the morning | I had a venous thrombolysis to remove a 2 foot petrified blood clot. Was in the ICU for 5 days. Two weeks later I clotted again and they repeated the procedure and put in 18 inches of stents in the artery. I am on 12.5 mg but they have trouble keeping me theraputic. One week I am at 1.5 PT/INR and the next week in the ER getting a brain CT because the INR is so high. I put up with the drug because I kind of like living. I still fly and ride the harley and do other nonsensical stuff. | M | 55 | 2.5 years | 7/2/2009 | 3 | venous thrombosis in brain | Constant weight gain. Inability to concentrate- foggy head at times. Joint Aches. Depression. FATIGUE! | My doctor is unwavering about 1 full year on Warfarin. I am barely going to make this. I don't have nausea, but some days feel dizzy and always, always, extremely tired on this crazy stuff. I was extremely concerned when I kept hearing that there are NO side-effects to this drug. ANY time you take a foreign substance into your body there IS a side-effect. The fact nobody in the medical world wants to admit this or research these common persistant symptoms further is odd and disconcerting. I have no hair loss but I've only been on Warfarin for three months and have gainded 15 pounds. Hard to lose when they want you to keep your diet the same so as not to effect your INR. | F | 47 | 3 months | 6/26/2009 | 3 | Splenic infarct; multiple PE's | The biggest concern is hair loss. As a 68 year old woman, I am terrified that I will soon be bald. In the 3 years on coumadin, I have lost more than half of my hair. I am truly weighing life as a bald person or taking my chsnces w/o coumiden. | Does ANYONE have an alternate treatment that doesn't cause hair loss? Please help me. | F | 68 | 3 years | 6/21/2009 | 3 | DVT cluster in left leg & PE | extreme fatigue, aches in joints, numbness in arms, swelling in left leg, lots of dreaming, feel BLAH & unsociable most of the time, weight gain. | I have been diagnosed with Lupas Anticoagulant. They will retest me in about 2 months. I hope that I really dont have this crap! I hate taking this med. even though I havent slept this good in years. But I hate being so tired & worn out, cranky & unsociable. Paranoid about cutting or bruising myself-- I am a klutz so the worry is warranted. But still hate it. Do not want to take this forever. But so glad to have found this website. Cause my doctor also acted as if I was crazy & these side effects were all in my mind!!! And now I know, they are real. Thanks!!! | F | 41 | 3 months | 6/16/2009 | 3 | PE, DVT, Factor V, Prothrombin | Severe weight gain, fatigue, hair loss, heavy periods, more susceptible to cold, joint pain, memory loss, trouble focusing. | I initially started taking Coumadin when I was 24 after I had a PE and was diagnosed with Factor V, and Prothrombin abnormalities. After two years on the medication I was begging the doctor to take me off. I could not do anything except sleep. I had tremendous weight gain going from a size 8 to a size 14! I was switched to Lovenox shots when I began trying to have a family and there was an immediate difference. I began losing weight without even trying, even when I was pregnant and trying to put on more weight. Shortly after my children were weaned I was put back on Coumadin because of the side effects of Lovenox and all of the old symptoms came back, including the weight. The only difference is the fatigue either it is not as severe as before or having been sleep deprived with young children my body has adjusted. | F | 34 | 6 years | 6/7/2009 | 3 | 2 DVTs/PEs within 8 years no reason | Tired and memory loss.Bruising.Started at age 28 stopped after 6 months but had to start again age 36 for the rest of my life. | At first, I lost weight but gained it back. Had a stomach virus which caused my levels to double. Did the Heparin shots as well while trying to get pregnant but am back to coumadin-adopting now. | F | 38 | 2 years | 5/4/2009 | 3 | blood clot | fatigue, bleeding of the gums and frequent menstrual periods, some nausea. | n/a | F | 39 | 2 months | 4/20/2009 | 3 | DVT/PE | I had a dvt/pe in May 2007 and went on coumadin for 6 months. In January 2008, when they took me off it, I felt like a veil of fatigue had been lifted. I knew I had been tired while on coumadin, but it became very evident when I was off it. Unfortunately, I've had another dvt/pe in February 2009 and I am back on coumadin (warfarin, really) It's been 2 months so far this time and I'm feeling tired, I seem to be depressed (although almost dying twice and being off work for 4 weeks could have something to do with that?), I have normal moments and then severe down moments - crying etc. I have some join pain - but I've been stepping up exercise, so that could be from the exercise. | Does anyone have any thoughts as to the differences between coumadin and warfarin? | F | 41 | 2 times | 4/13/2009 | 3 | DVT/PE. FVL & Lupus Anticoagulant | Fatigue, joint pain in hands, heel pain, lack of concentration, leg still partially swollen, increased belly fat. | Initially I was very fatigued, just walking from my front door to my car was exhausting but my dr put it down to my 5 days of bed rest. Some days I have great energy, other days I go walking and have stop to sit down. Joint pain led to further blood tests resulting in a new diagnosis of Factor V Leiden and Lupus Anticoagulant Syndrome so now Warfarin may be a lifetime companion. Would love to hear of any alternative therapy and if anyone else still has swelling. Warfarin did the job of dispursing the clots but I'm wondering if my leg is damaged and what the long term effects might be. | F | 49 | 7 months | 3/29/2009 | 3 | Clotting disorder due to lupus. APL | Hard to say what are side effects of the drug or symptoms of the lupus. They are very simular. When I first went on it after throwing small venous clots to my fingers, the first thing I noticed was it changed my T3 lab value. My T4 was normal and my T3 climbed to 11. I'm not on cytamel and I'm not hyperthyroid. Fatique has steadily gotten worse but so have my heart valves so not sure cause. The weight gain has been very difficult to take. My weight was stable for several years. After being on coumadin for 6 years now I've gone up 20lbs and it will not budge with dieting at all. My hair fell out after back surgery 18 months ago but has all grown back in. My joints always hurt but I do think they got worse on the coumadin. I'm holding on to the hope that the new drugs in trials will be out soon and we can replace coumadin.......it has too many restrictions and side effects. | Something that struck me when I found this site was the number of people that developed clots after orthopedic surgery. I'm a nurse and we see that here too. I wonder how many patients have underlying clotting diorders or autoimmunity, they do not know about, before they have surgery. So many of the side effects people talk about here are what we with autoimmumity deal with everyday. Any of the Docs on here have a opinion on that? And do you no when the other drugs will be available? It will mean so much to so many to have new anticoag. meds. | F | 54 | 6 years | 3/8/2009 | 3 | A/ Fib | Memory loss, leg cramps, feel cold even on a hot day when all others have their jackets off, I'm weating two jackets. 7.5 mg | M | 77 | 2 years | 2/26/2009 | 3 | DVT/Factor V | Cold. Muscle cramps. Memory loss and confusion while on the generic. Take 4mg per day. | I was given Warfarin and my side effects were even worse until I got off of Warfarin. Now just cold and a few cramps. I take vitamins to control the muscle cramps. I requested/insisted on the real stuff, Coumadan and the side effects are now minor. I am a bit cold and can't loose weight. Within a day or two after switching I felt like my old self once off Warfarin. I workout everyday with no fatigue problems. My Doc seems to think that I will be on this forever and that is something that will not happen. I think they are affraid of being sued. INR levels are fine currently and can be maintained with diet changes in addition to plain old aspirin. I have no problems having a few drinks on a weekend. The Americian Heart Assoc. has a great piece on factor V and do not recommend a lifetime on Coumadin. Go look at this piece and you will see the odds are very small for a recurrance. A lifetime of rat poison is not for me. Can't wait till May and goodbye Coumadin. Doc and I will battle then. | M | 60 | 9 months | 2/11/2009 | 3 | AVR and aortic aneurysm graft | Fatigue attacks! Tiredness descends and I HAVE to go to sleep, but then I'm ok again. Always extremely cold or extremely hot. TIAs when coumadin levels have dropped and temporarily lost eyesight. Bleeding from bowels. A general fogginess/forgetfulness. Also, goes without saying, very bad bruising. | I have a high tagert INR due to TIAs. INR levels fluctate badly for no apparent reason,(Alcohol, vitamin K, aspirin etc. all monitored carefully.) | M | 41 | 3 years | 2/9/2009 | 3 | DVT/PE after ankle surgery | Hair loss, fatigue, skin rash, headaches, dry skin, problems concentrating, trouble sleeping, cold hands and feet and sometimes very hot when it is freezing inside, joint pain, heavy periods and cramps, itchy scalp with small res sores, severe depression, anxiety, excessive weight gain and unable to loss even with diet and exercise,decreased sexual drive, dry hair and changes in hair texture, feel psace out often and forgetful, too many things, not sure if put them all | You have no idea how much it helped to rad the comments at the same time they scared me to death. I suppose the medicne has helped me, but I am not sure it is worth feeling like you are not you anymore. At least I am no crazy and I am not alone--there's a lot of us out there trying to go by. I wish drug companies cared and that doctors listened a bit more to their patients. So often I felt like I was loosing my mind and even wondered if I was imagining all these things I am feeling and that no one around me seems to understand or take into account based on what the doctors say. I can't wait to get of this medicine and claim my life back, have a child, be me again. I feel for all of you that are in the same boat. Yoga and meditation seem to help a bit, counseling, exercise. Don't give up. I am really considering getting off the medicine in a few weeks when I get tests that assure me that I no longer have clots. Good luck! | F | 32 | 6 months | 1/30/2009 | 3 | DVT right calf | Freezing hands, Sleep problems: Insomnia, night sweats and wake up with numbness in arms, Lethargic, Huge mood swings with increased irritability, Joint pain, Blood shot eyes, Diarreah | Just started taking coumadin 4 weeks ago, am transitioning from Lovenox. Experienced none of these problems with Lovenox over the past 6 months. I live in the mid-west and am used to cold winters, now I can't walk my dog 1 block with out my fingers feeling frozen and in agonizing pain. Have to run them under warm water coming in from the cold each time. | F | 38 | 1 months | 1/29/2009 | 3 | DVT | fatigue, excessive weight gain, hair loss | I was prescribed warfarin sodium (coumadin) after developing a bloot clot in my leg, attributed to being on the pill. During the 4 months I was on it, despite going off the pill and massively cutting down on alcohol consumption, I GAINED 25 pounds. After I was off the coumadin, I had my thyroid tested, as I do every year. I was diagnosed with mild hypothyroidism and prescribed synthroid about two months ago. I haven't gained any more weight, but haven't lost any either. I note weight gain was not listed as a warfarin side effect, but synthroid (thyroid replacement) indicates that it is not absorbed as well when on coumadin. Could there be a link between regular thyroid function and coumadin as well? Seems like a lot of the coumadin side effects (weight gain, dry skin, fatigue, memory/concentration problems) are also symptoms of hypothyroidism. | F | 34 | 4 months | 1/27/2009 | 3 | DVT. PE. | Weight gain. Dry, itchy scalp with sores. Dry, itchy skin. memory not as clear as it used to be. Loss of hair on arms, legs and eyelashes. Loss of libido. Tired (but not to the extent that I am overly bothered - I just sleep more lol). | I am taking Warfarin, and whilst it is doing its job I will certainly put up with the 'not so good' bits. What I can't understand is that if everyone on here have very similar symptoms, why are the doctors saying that Warfarin doesn't have any side effects, we can't all be wrong, and as someone else said, we are the people taking the medication. | F | 47 | 10 months | 1/19/2009 |