COUMADIN Reviews (WARFARIN SODIUM)Average Rating: 3.1 (876 Ratings)Filter ResultsCompare COUMADIN with similar:
Type: Rx Drug
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Results are sorted by Satisfaction lowest to highest. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 |
More on COUMADIN: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR COUMADIN | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 3 | PE, stroke, aortic valve replacemen | since my stroke on 2-24-2010, They have been unable to maintain my INR between 2.5 and 3.0. Was sappose to go home today from rehab hospital but INR was 2.3 so they made me stay. They give me lovenox injections plus coumadin 7.5 mg daily but so far can not maintain INR level. Dont want another stroke. Any suggestions? | M | 54 | 3 years 7.5/5mg 1X day | 3/25/2010 | 3 | Atrial Fibrillation | Hair loss, weak nails, thin skin, cold/icy feet and hands. Intolerable periods. Irregular sleep patterns. | As a nurse, I know this is a life-saver. As a woman on the move it has alot of side effects no one talks about. Coumadin prevents clots and strokes. So who can stop it. But who can explain how to deal w the hair loss, weak nails and skin. The extreme cold intolerance. The nauseau. I have other co conditions - thryoidectomy, severe periods requiring IUD placement. I am also on an antiarrythmic - so who is to say what causes what. But most MD's won't even venture a guess. We have to! | F | 52 | 6 months 7.5mg/5mg 1X day | 3/4/2010 | 3 | DVT Right Leg Bi-lateral PE's | Bad Headaches, Short term memory loss, vision, cold | The stuff is not nice but keeps you alive. I was on it for 6 months and miserable, scared but started getting back in shape. Went off for 6 months and had another DVT now I am on for life. I coach a youth cycling team and ride a couple thousand miles a year. I am a little more careful and wear the best helmet money can buy. Activity makes most of the side effects go away but overdoing it gives you the absolute worst headaches of all time. Stay positive and keep moving. | M | 43 | 1.5 years 7.5 1X day | 3/2/2010 | 3 | DVT | muscle and joint pain, fatigue. | F | 49 | 3 months 2.0mg 1X day | 2/25/2010 | 3 | Factor V | Cold feet, easy bruising, AWFUL periods!!! Sometimes heart palpitations. Tired(but I work 2 jobs and have 2 kids). No weight gain or hair loss. | With my first pregnancy at 24 had severe swelling in my legs. during my second pregnancy at 26. I found that I had factor V so I was put on Lovenox then heparin closer to the birth and stayed on it for 6 weeks after. A couple of months after that my legs hurt all the time and were swollen. My INR was 0.1. So because of that they recommended I started coumadin. I now take 10mg and my INR stays around a 1. Which still seams like a really high dose even tho my INR still is not great. Every once in a while, maybe because of something I eat my blood will get very thin and I can feel my heart doing crazy things. I would really like to come off but I don't want the chance of a clot, just had a aunt die of a PE. | F | 28 | 2 years 10mg 1X day | 2/3/2010 | 3 | Factor V Leiden/ clot in Kidney | Cold (chill to the bone)feet all the time some times there is nothing that can warm them,hands too but not as much, tingles in toes and fingers, Have noticed hair thinning, Dizzy upon standing almost passing out sometimes, tired, | Compared to a clot I guess it's not bad. You can definitely tell when your levels need to be checked. I am considering going off coumadin for a time this year to see if symptoms come back. When I was off about 4 years prior to my clot, I would get severe double vision out of nowhere and I would have to wait for it to pass. I went to several Doctors but none thought of clots. My Doctor now said they could have been very small clots. I was also on the "pill" so that may have added to it and being off of it may help not to have these episodes with clots. It would be nice not to be cold all the time. Anyone else experience this? | F | 30 | 1.5 years | 12/6/2009 | 3 | DVT | I took this medicine for 10 years. I thought I had all of the side effects everyone else is complaining about.... | However, I have recently quit and I still have headaches, stomache aches, insomnia, blurry vision... Maybe it wasnt the coumadin.. | F | 44 | 10 years | 11/19/2009 | 3 | Multiple BiLateral Pulmonary Emboli | Constant head aches, lower back pain, mild depression, slight loss of alertness (feeling "not all there"), bruising, bloody nose, dry skin, shorness of breath (clot related) | I'm SO very happy to have found this. When I discuss my recent side effects, they tell me they are not related to coumadin. I NEVER had headaches before taking coumadin. I have had a headach EVERY DAY since leaving the hospital. The lower back pain is enough to make me cry in agony and no amount of Tylenol helps. I can't take aleve or Ibuprophen because my INR level goal is very high (4.0) and I've already had pulmonary bleeding. I REALLY REALLY hope this isn't permanent because after just one month I can't take it. I'm glad this medicine is saving my life but the side effects are getting worse. Thanks for this site, Its good to see other young people on this drug too. Look forward to hopefully setting up some kind of talk group. I do web-design so Im thinking of setting up a message forum (if there isn't already one). Please e-mail me if you are interested in the forum for discussing your life and how you have adjusted or are coping... | M | 23 | 1 months | 11/10/2009 | 3 | Pulmonary Embolism | Extreme Fatigue, Bloating (esp. around my eyes), incoherent thinking and decision making, mild depression. | I understand why I was prescribed this medication and am aware of how life threatening PE's can be...however, judging by my experience and reaction with Warfarin I would not recommend anybody should take it unless absolutely neccesary, and if so, find an alternative option if your condition is long term. I am not a person who has been exposed to a lot of medication throughout my life, but I can honestly say that even though this drug has the ability to prevent clotting, its side effects have the ability to destroy your own personal thought process and wellbeing. Take this drug with extreme caution if you have to, and make sure you warn family and friends of the possibility you may become quite a different person (see my side effects). Be aware your doctor will advise you that Warfarin is not responsible for your side-effects. Don't argue...but don't believe either. | M | 38 | 8 months | 11/9/2009 | 3 | Pulmonary Embolism and Endocarditis | 20 pound weight gain, change in hair texture and substantial hairloss, bloating, lower back pain, super tired all the time | I suppose that this medicine is helping me to get rid of the blood clots due to the PE, but the side effects have become difficult to live with. Just so super tired all the time, bloated with lower back pain, and the hairloss is hard to live with. I can't wait to get off this medicine, even if it is helping me. | M | 57 | 5 months | 11/8/2009 | 3 | Atrial fibrillation | Fatigue, fatigue, fatigue. Easy bruising. Now diarrhea. | I was put on this stuff with no @^!^%@ instructions, except don't eat salads. That was it. I fell and my leg swelled up like a baloon. Went to the ER. They did little and sent me home. At four am the next morning my daughter-in-law had to rush me back to the ER as I has lost so much blood into my leg my blood pressure had dropped to 75/45. I had blood transfusions and spent 3 days in the hospital. A couple of weeks ago I started taking resveratrol only to discover it has the same blood thinning effect as coumadin and my INR shot up to 6.8 and I got severe diarrhea. Until I read the posts on this site I never connected my severe tiredness to the coumadin - I thought it was my heart medicine. I read there is a new drug coming out that is much better. Let's hope! | M | 73 | 2 years | 10/22/2009 | 3 | Mitral Valve Repair, A Fib., P.E. | Intermittent dizziness, lack motivation, cold hands & feet, no perspiration, wake up at 5:00 a.m. every night, blood in tissue when I blow my nose. | I spent nearly an entire month in the hospital. I originally went in for surgery to repair my Mitral Valve and at the same time have an ablation to treat my Atrial Fibrillation. A couple of weeks later I was home only a few days before I started to have complications from the surgery and the COUMADIN! I was losing consciousness and rushed back to the hospitals I.C.U. to find out that I had blood clots in my lungs, fluid (1.5 liters to be exact)in my chest and an I.N.R. near 12!(toxic) After a Greenfield Filter was placed in my Vena Cava to catch any more clots, a chest tube to rid my body of the fluid, and plenty of vitamin K, did I begin to recover from this nightmare. Upon my discharge my Dr. adjusted my coumadin from 7.5 mg to 2.5 mg. I now go for routine blood work and I have had my Dr. call and tell me to skip a day here and there because my I.N.R. levels are higher than 3. I think I'm sensative to this drug and I will definately hold the Dr. to his word that I'll be off of Coumadin in 6 months! | M | 43 | 45 days | 10/20/2009 | 3 | P.E | feeling cold, fatigue, depression, chest pains, i have had vaginal problems since. | The one i am most bothered about is my mental state. i have never even questioned or thought that warfarin would ever make me depressed but i have realised that its when i started it 8 months ago is when my head started to go funny. it hasnt really changed my life style and it dosent make me worry or paranoid so i know its not me being silly. i went home for a few days and forgot my warfarin and it was actually my boyfriend that said that i've changed as a person and i'm alot happier and then it clicked and i said that my head does feel different. i know that if i say these things to a doctor they say warfarin has nothing to do with it. but i am certain it has. and seeing what people have said on this site has made me even more certain that i'm not making this up. | F | 22 | 8 months | 10/19/2009 | 3 | BLOOD PRESSURE | This may sound strange but has anyone else experienced "throw-backs" after taking this drug. I might be sitting on the bed after taking this medication and I will get thrown back. I have learned to hold on to the wall or to sit carefully after taking a dose. | F | 85 | 10 days | 10/18/2009 | 3 | Multiple Bilateral Pulmonary Emboli | Gained 10lbs and belly fat and yes, I am blaming the coumadin since I haven't changed my lifestyle from before I was on it. I am so tired lately because the vivid dreams I have every single night don't allow me to get quality, restful sleep. The smallest bump or pin prick hurts much worse than it used to. I am almost always cold and am dreading the Wisconsin winter even more this year. I get numbness from time to time in my hands and feet. Had some lower back pain when I first started but it has gone away. | My doctor said that I should eat whatever I want (green vegetables, etc) and can drink socially and he will adjust my coumadin around my life, NOT the other way around. I am not thrilled being on this drug but I understand the necessity of it for the time being. However, I am going to see a hematologist to talk about long term use. If I can get off of this drug in 6 months to a year, then that's what I would prefer to do - so I am going to get multiple opinions and weigh my options. It is not fun being told that you have to be on this drug in order keep from getting more blood clots but there are compromises that can be made so it does not affect your life anymore than it has to. If your doctor does not work with you on a compromise, then find another doctor who will. My doctor is very focused on making sure that I am healthy and have as 'normal' of a life as I can. And if you don't already have a medic alert bracelet, I would suggest getting one for the duration you are on this medicine. If you were in an accident and unconscious and bleeding, it would let medical personnel know that your blood is thinned and they should be extra cautious about your chances of bleeding out. Gruesome and not fun to think about, I know, but it's something to keep in mind. | F | 28 | 3 months | 10/1/2009 | 3 | Pulmanary Embolism | I've been really cold/Sometimes my extremeties go numb...but I guess I've always been that way since I'm anemic...I have horrible gas pains and digestive issues... | My I&R levels have been fluctuating...Hopefully I don't have to be on the drug forever so I can go back to my normal lifestyle...I miss Brocolli (I'm only 19) I don't want this drug to control my life =( | F | 19 | 3 months | 9/30/2009 | 3 | PE in left lung | Been on coumadin for about a month. The side affect are horrable. Nause,light headed, can't sleep, headaches, under constant stressed, the crazy dreams... | I know the stuff is a live saver, but it sucks. And from what i'm reading I'm not the only one that feels that way. Was so happy to find this site and see that there are a lot of people with the same feeling and symptoms. Also was sirprised that a lot of you had the same reaction from your doctors. Mind kinda blow me off when I told him about my side affect. If your on the stuff good luck. | M | 44 | 1 months | 9/21/2009 | 3 | blood clots in leg | hair loss, itchy skin, weight gain, cold all the time, dizzy after taken the meds, bladder infection and lower back pain. bruising and periods so heavy that I have to be off my feet for days! | well the weight gain is due to the non exercise, the bladder infection and lower back pain was new, still waiting on that info, I think the med is working due to the clots getting smaller and the veins are looking better, but it is taking a very long time, will be a lifer on this stuff. this is really a life changing thing! Always having to be so careful about getting cut, and what you can do, I am an active person so this is a huge change for me. Work in a restaurant as a cook, around a lot of knives and cutters, think I am going crazy? you would be right. not supposed to be up on the feet more than 4 hours at a wack, not very likely with my job. | F | 46 | 3 months | 8/29/2009 | 3 | pe | itching,joint pain,being cold, | have to be more careful with food choices ,careful with activities with grandchildren but thankful that i am alive and will take this medication for however how long it takes whether 6 months or the rest of my life. | F | 58 | 3 weeks | 8/20/2009 | 3 | Blood clots in legs & lungs | Feel tired all the time, stomach pain, troubel concentrating, feeling cold, food lost it's taste. | I wish there was a medication that would dislove blood clots without the severe side effects. I have to be on blood thiners the rest of my life and it is very upsetting to think every day for the rest of my life I have to feel this terrible. | M | 51 | | 8/14/2009 |