COUMADIN Reviews (WARFARIN SODIUM)

Average Rating: 3.1 (876 Ratings)

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 ANTICOAGULANTS THROMBOLYTICS

 Type: Rx Drug

  

COUMADIN  (WARFARIN SODIUM):  This medication is used to treat blood clots (such as in deep vein thrombosis-DVT or pulmonary embolus-PE) and/or to prevent new clots from forming in your body. Preventing harmful blood clots helps to reduce the risk of a stroke or heart attack. Conditions that increase your risk of developing blood clots include a certain type of irregular heart rhythm (atrial fibrillation), heart valve replacement, recent heart attack, and certain surgeries (such as hip/knee replacement). Warfarin is commonly called a "blood thinner," but the more correct term is "anticoagulant." It helps to keep blood flowing smoothly in your body by decreasing the amount of certain substances (clotting proteins) in your blood.    (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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More on COUMADIN: Reviews Summary  |  Drug Safety Information

RATING  REASONSIDE EFFECTS FOR COUMADINCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 3  multiple DVT's Extremely heavy periods, fatigue, headaches I started getting headaches about 2 months after starting on coumadin for DVT's. I'm sure the headaches were also stress related due to the situation! However, since then I've been diagnosed with a prothrombin gene mutation and have to be on coumadin for the rest of my life (I'm 26 years old). I'm exhausted all of the time, and I'm ready for bed at around 8-9 every night. I'm in the process of applying to medical school, and I feel like it's affecting my ability to study and focus. I didn't really think those were possible side effects because they're not listed as side effects. After reading other comments about fatigue from this medication I'm definently going to talk to my doctor! Feel free to email me with any questions or comments! F 26 2 years
5mg 1X day
12/8/2010
Email
 3  Atrial fib My Mom takes Warafin and complains about joint pain, flatulence, weight gain, and has stomach cramps immediately after eating most of the time. Mom doesn't have much problem with Warafin, but we don't know if Warafin is causing her side effects since she also takes high blood pressure and a water pill. Mom is very active with two senior groups and is constantly on the go. On Thanksgiving Day, her PCP called and told her to stop taking Warafin for a few days due to her blood test results the day before the Thanksgiving. She was going to a cardiologist for her atrial fib, but she was very upset with the service she received from his office, she was never informed in a timely manner regarding her blood testing and how her Warafin should be adjusted, so she dropped him, but she can always see another cardiologist whenever necessary. Just a reminder to the posters here, if you decide to get the flu shot this year, it's mixed with the H1N1 (swine flu) vaccine, and it is 10 times stronger than last year's injection according to AARP magazine. There has been one death reported from the flu shot given to a 64 year old Warafin patient who died from a brain bleed, so have your INR checked more often if you choose to get the shot this year. My Mom opted not to get it, since the vaccine is always changing, especially this year, and she has no way of knowing how it will react with Warafin, and she doesn't want to go to the doc to get checked more often after the shot. Her doc was urging her to get injected, but he never mentioned more frequent blood testing would be needed or that H1N1 was in this year's injection! F 81 5 years
2.5 1X day
11/29/2010
 3  DVT Right leg Shortness of breath and short chest pains. Was directed to go to the emergency again and tell them of the problems as other doctors wanted to rule out clot possibilities. Had blood drawn from wrists and elbow to check level of 02/in them, chest xray reveiled nothing, no CT scan. I was released after 4 hours and given paxcil and lorzapam for anxiety. I still believe the coumadin is causing the breathing problem. Just hope no clots are lingering where they shouldn't be. Forward Hoooooooo F 53 16 days
5mg 1X day
11/23/2010
Patient History
 3  2 Massive left leg DVT's: 6/03,1/09 FATIGUE!!!, drippy nose, heavy periods, easily cold, weight gain (due to lack of energy to work-out) My original DVT was in my left leg and massive: groin to ankle. Diagnosed as possible MAY-THURNER SYNDROM...They placed left common illiac stent from belly button to groin and put me on coumodin. I started to notice my severve Fatigue (and other symptoms) might be caused by taking coumadin, but that was not mentioned to be a significant side effect. So, i tried to go off of it. I noticed a tremendous improvement and felt like my old self again. Four months after going off it, i got my second DVT, required more elaborate re-stenting and had to go back on coumadin for life. UGH. I rated it a 3: because I hate the side effects, but it keeps me alive!!! F 47
10-15mg 1X day
11/21/2010
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Patient History
 3  PE fatigue, chills, insomnia, general feeling of being unwell. Menstruation is extremely heavy and clotty, leaving me light-headed and dizzy. How do you rate something you don't know is actually working without further CT scans or X-rays? I gave it a 3 just to be in the middle. Was prescribed the med for 6 months for PE's related to an bowel resection. Got 4 months to go. In addition to the fatigue caused by the Coumadin, I also have to deal with fatigue caused by radiation treatment for cancer. The double whammy is about wiping me out. I'm also having problems with short term memory however given my level of fatigue, that may be the cause rather than the Coumadin. There's a daily feeling of light nausea which is really not good since I'm supposed to report anything like that to my GI doctor. As it usually occurs about 2 hours after taking my dose, I'm hoping that it what causes it rather than more problems in my intestines. My cycle has gotten extraordinarily regular, something new since being on the drug. The level of cramping is pretty severe however, but I try to remind myself that it's nowhere near the level of pain I had before or after my surgery. However, if I had to be on this through menopause I might kill someone. On the plus side, I have not had a migraine in 2 months. I don't get it, but at least it's something positive. Since my favorite migraine drug involved aspirin, I'm glad that I haven't had to deal with that or try yet another drug. I'm so over doctors right now. F 46 2 months
2mg 1X day
10/25/2010
 3  aortic valve replacement short term memory loss, inability to focus at times, weight gain, bloody stool, dry skin, brief periods of being cross-eyed. I had my aortic valve replaced 3.5 years ago and began taking warfarin. My father had talked about warfarin making him feel like he was "in a fog"sometimes and I can really relate. I often get words crossed up mid sentence, or forget a point I'm trying to make, while someone else is speaking. I've been overweight most of my adult life, but after 2 full months of excercising 45-60 minutes a day, 3-6 days a week, I managed to lose only 3-5 lbs, which at my weight can be just fluid. I have had bloody stool off and on for the years since taking warfarin and as my blood gets thinner, it is a constant presence. Twice during a workout and once in a store, I suddenly found that my eyes crossed and looking around made me nauseous. Once it lasted an hour and a half, one only 5-10 minutes, and just today less than 2 minutes. M 38 3 years
10mg/day 1X day
10/16/2010
 3  pre op anti coagulant Night sweats Lethargy. They're still increasing my dose. This is a nasty drug but I should only need it for a few months... F 56 20 days
7.5mg 1X day
10/13/2010
 3  bilateral pulmonary embolism, dvt, Acne, dizziness, fainting while sitting, blood in urine, heavy period, fatigue by about 2 pm I need to lay down, restlessness when trying to sleep, forgetfulness, knee pain, and lack of appetite I'm glad its keeping me alive but the side effects have been debilitating F 23 30 days
10 mg 1X day
9/21/2010
 3  Mechanical Mitral Valve I've experienced fatigue, forgetfulness(short term), depression, loss of motivation to do "anything"; I just don't feel and act like I used to. After my first mitral valve repair, I felt good and had energy. Then after the second surgery and the valve being replaced with a mechanical valve (and the coumadin) I feel like I've been sliding away as each year passes. The first two years post surgery, my INR was across the board 1.2-9.2 and we couldn't get on top of it. I experienced several TIAs which led to neurological tests, a home INR monitor and several years of coumadin futzing. Now that I am not in a stressful(management)at work and I have a regulated schedule (sleep/food) my INR stays within range (3-3.5), the side effects seem to have increased in intensity. It is helpful to read that others have similar experiences with Coumadin. And I agree with those here who've been looked at in disbelief by doctors when they describe side effects not listed on the Rx, I just know that I have to take this for the rest of my life and that is disconcerning for my quality of life. M 40 7.5 years
12.5/15 1X day
9/9/2010
Email
 3  PE Hard to say exactly, but I haven't felt "good" since going on it. Tired, back aches, muscle aches...but don't know that that is directly related to the warfarin. Was only suppose to be on it for a year, had the blood test and the gene for increased likely hood of blood clots. Now my doctor wants me on it for life and that is a scary thought. I don't like all I've read about side effects, but not thrilled about the thought of another blood clot or PE either. Wish there was a place to go to get factual basic information about effects of long term use and about alternatives. Hard to find that info F 51 1 years
10 1X day
8/27/2010
 3  PE Right Upper Lobe & DVT Rt Calf Fatigue/low energy, Sensitivity to heat, increased joint pain, do not feel like normal self Many doctors have told me that comundin does not have side effects other than issues related to bleeding. I was placed on coumadin 2x and when I came off the coumadin the first time my energy levels turned to normal, my joint pain decreased, and I felt like my normal self. Unfortunately, I am coumdin again and I am due to come off the coumadin in September. M 47
20-22 mg 1X day
8/10/2010
 3  dvt in leg & pe Fatigue, hair loss, memory problems, speech issues Supposedly there are no side effects from coumadin so when I was having extreme fatigue, hair loss, memory issues, and tripping over my words like I had a few too many, I decided to Google the drug. I'm so glad I found this sight! In March I was hospitalized with a dvt in my left calf and a pe in my right lung. I've been on warfarin 4 months and just had my leg checked. My clot is gone which is great but I have to continue the drug until September and then the Dr is going to do extensive blood work to make sure there's no issue with my blood. He's assuming birth control is the cause. Biggest frustration is medical field says there are no side effects. I know it's the drug since everytime they increase the dosage my symptoms increase! It obviously treats clots and is necessary but it'd be nice if doctors would recognize what we all are experiencing. F 40 4 months
7.5+ 1X day
7/25/2010
 3  DVT in calf/Factor V FATIGUE, some hair loss (not extreme...no bald spots or anything, just more coming out in the shower), mild memory issues (I agree with the, "Did I take my medicine?" comment below!), weight gain, dizziness, some episodes of heart pounding hard when lying down. While I am thankful for this medicine for getting rid of my clot (from Factor V + Nuvaring + long road trip), the side effects are bad, and yes, my doc (who I like and respect) won't admit that they are from the coumadin. Fatigue is the main problem. I have found that the following help (which is why I'm posting, to help others on this stuff): 1. Consistently get 8 hours of sleep a night. You can't cheat yourself on sleep at all on this stuff. 2. Moderate exercise. Yes, you're tired, and the last thing you want to do is work out. But do something....bike, walk, lift weights. It helps some with energy and water retention. 3. Drink more water than usual. I found that I was not as thirsty as I usually am on this med. However, drinking more water seemed to help with the water retention (I would lose weight literally within a half hour of drinking a bunch of water!), dizziness, a bit with energy, and also with the heart pounding issue. This med seems to mess with the water balance in your body. 4. Do what they say and go easy on the alcohol, which increased the side effects for me. No more than two drinks in one sitting, and drinking a couple times a week tops. You can drink, but you have to be careful. Good luck everyone! My heart goes out to folks who are on this long-term. F 36 3 months
8 1X day
7/21/2010
 3  Blood clots throughout right arm Depression, forgetfulness (especially very short term memory; like did I take my medicine or not?), lack of concentration, constantly misplacing things, mind is in a fog a lot, lower back pain. I'm sure there's more but, like I said, I forget a lot of things! I had LEFT shoulder surgery on 01/25/10 and wound up with extensive blood clotting throughout my RIGHT arm after surgery. All signs point to poor positioning of my body during surgery. I was put on Warfarin a few days later after being hospitilaized and treated with Heprin. I'm not sure how much the Warfarin has helped the clots. My arm still "pumps up" with light exercise, is shaky and I have a real hard time with my hand writing. After a few lines it's like I lose control of my fingers. Overall, my experience with this drug is the worst 6 months of my life although the depression symptoms have tapered off (thank God). I went to my doctor after a couple of months on this drug to talk about my symptoms. He said that depression was common in patients with blood clots but that it could not be from the Warfarin. He pulled out his handy pocket PC and looked at the listed side effects so he knew he was correct. To that I said BS! He prescribed me a anti-depressant that I took for about 3 days. It made me so feel so bad that I could hardly get out of bed. I'm just waiting for the end of this month to get off of this stuff. M 43 6 months
5mg 1X day
7/10/2010
 3  DVT Left leg Light headed, can't find the right words, sound stupid in business meetings, am stupid, in a constant fog, irritable and intolerant, tired all the time. I feel like I wake up every moring with a hangover - headached, feeling horrible. It's a life saving drug. It's a good drug because it can quickly be reversed. But, I'm so sick of feeling horrible, and my work performance is suffering, and I'm miserable. I can't stand this another day! 46 160 days
7.5 mg 1X day
6/15/2010
 3  Rt overian DVT Light Headed, dizzy, increased irratability, memory fog, slower reflexes, increased weight, extra dry skin I have been on this before and didn't like it, but when the Doctors are saying take this or die what choice dose that leave me. I want to be here for my kids, but what kind of a Mom can I be when I am so hazy. The best part(haha) is that my Coumadin Clinic is trying to blow me off and isn't listening to what I am having to deal with, as in it isn't common to have these side effects. I am about to finish this round and try and take control of my life back. F 33 3 months
4mg 1X day
6/10/2010
Email
 3  bi-lateral PEs Cold a lot of the time, sharp constant pain in both thumb joints, loss of grip strength, possible increased pain in knees (they are arthritic to begin with), decreased strength, depression, weight gain. Of course I am scared, my mother had a stroke at 62 and her father had a fatal one at 65 and I am 57. However, the quality of my life is gradually decreasing to the point I wonder if it is worth it to be on this medication. I am glad I found this site. I was told my thumb pain was carpal tunnel yet none of the prescribed therapies relieve it. I have 2 more months to go. Have stable !NR (2.9) Am keeping track of what I am not supposed to eat because it may increase bleeding. When I am off of this - daily Vitamin C &E, and a baby aspirin! F 57 4 months
10mg 1X day
5/28/2010
 3  DVT, Pulmonary Embolism Slight weight gain, COLD much of the time. Time to get off of this stuff!!! F 40 6 months
10 1X day
5/19/2010
 3  Pulmonary Emboli Fatigue, nausea, dizziness/lightheadedness, bleeding at the tiniest little scratch, depression worsening, thyroid seems to be getting inflamed(red, swollen neck) and TSH(thyroid lab) is going UP I am taking Coumadin to combat PEs resulting from Yasmin birth control pills(i was prescribed them to reduce hot flashes, for hormone replacement therapy). I was on Yasmin for less than one month. The coumadin certainly is doing it's job, but I look forward to the day, probably months from now, that I can stop taking this drug, get some energy and normalcy to my life back...oh, and I look forward to eating my salads again. F 44 16 days
10mg 1X day
4/25/2010
 3  Bi-Lateral Pulmonary Embolism Cold limbs, headaches, bruising, and the depression is getting worse every day. I just recently got out of the hospital for bi-lateral pulmonary embolisms. I am 25 years old. I have been under an incredible amount of stress - full time job, full time college, 2 year old boy, and life threatening diagnoses. I was beginning to think that something was wrong with me cause now I have a constant feeling of being sad, struggle to find anything to be happy about, I'm irritable and mean to my boyfriend. So, out of curiosity I did a search of coumadin and depression and all this stuff popped up. Why didn't my doctor warn me about this? F 25 23 days
7.5 mg 1X day
3/31/2010

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