COUMADIN Reviews (WARFARIN SODIUM)Average Rating: 3.1 (876 Ratings)Filter ResultsCompare COUMADIN with similar:
Type: Rx Drug
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Results are sorted by Satisfaction lowest to highest. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 |
More on COUMADIN: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR COUMADIN | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 2 | DVT & PE in both lungs | Cold most of the time and when I'm not cold, I'm sweating and flushed feeling. I've had episodes of feeling faint and weak. My eyes are blood shot as soon as my INR reaches 2.9 or above. My hair is falling out and I'm developing a bald patch. My weight fluctuates, but I'm not sure if that's due to the inablility to exercise. My skin bruises and heaven forbid I knick myself while shaving. I am constantly tired and I can't get to sleep at night. | While I'm grateful that there is a drug out there to help us, I feel the same way as everyone else...Why isn't there something better? I may have to be on this the rest of my life due to the damage my leg endured and the recently diagnosed clotting disorders, and that scares the hell out of me. | F | 24 | 5 months | 1/16/2008 | 2 | venous sinus Thrombosis | All ways tired, Unable to keep my body temperature stable either I am freezing or having night sweats. Constant bruising even on my toes top of my feet fingers and hands. Bleeding for no apparent reasons from small cuts. Some times I don't even know I am bleeding until I find dried up blood some where. Mood swings weight gain, looking puffy. Heavy periods with large clotting. Joint pain as if I have the flu. GI problems. Tingles in my hands and feet. | One week the blood test is at the right lvl next time it will come up as I am not even on it. It has not broken down the blood clot in the vein in my brain. I have been on it for 5 months now | F | 37 | 5 months | 1/15/2008 | 2 | A fib | Cold all the time, reflux, bloating, gassy, and definite weight gain. | Hopefully after my heart cath I will be able to come off this crazy medicine. I do not like how I feel taking it. | M | 52 | 3 months | 1/10/2008 | 2 | fvl and 2 provoked DVT's | Sleep much longer than before and just cannot wake up at usual time. Feel very foggy. Water retention, less urine output than before. Very bad joint, back, hip pains. When INR is too high I have heart palpitations. Most notable is hair loss. I have always had long, thick hair, but now it falls out from the roots just washing it in the shower and gently brushing it fills my hairbrush. The only good thing is my leg with the DVT has improved, with reduced swelling and less pain. But I absolutely hate the coumadin side effects. I took Lovenox shots for 17 days and would far prefer giving myself those shots again instead of taking this poison. | Some scientists somewhere should invent something better than a drug that is also used to poison rats for us to cope with factor V Leiden and other clotting disorders. Just because coumadin/warfarin is cheap is no reason to stop pharmaceutical research aimed at a better drug for clot control. I HATE THIS DRUG!! | F | 45 | 4.5 days | 12/29/2007 | 2 | Sinus Venus Thrombosis | It started with extreme weakness, irritability, lack of appetite which came back an then some. Very confused, dizzyness, short memory loss, problems with language and vocabulary, lalck of concentration. Very tired all the time, and depressed. Numbness in the am of hands, very distracted at times, and vision sometimes blurry. | I was diagnosed with SVT in June 07 from a sever headache I thought. Started heparin and coumadin in the hospital, released in July, and my racking horse fell with me in Sept. 07 which cased a terrible head and face injury. My brain bled (subarachnoid hemorrage), the docs stopped coumadin, now that the brain has stopped bleeding and I am out of the hospital, they have me back on 7.5 mg a day and want to increase it. I plan to talk to doc and come off the med and go on aspirin or plavix or some other anticoagulant.Sorry, I do not recommend this med for a long period of time. I would also like to hear from others with same or like experience. | F | 41 | 6 months | 12/25/2007 | 2 | DVT - right calf, bilateral PEs | dizziness, loss of appetite, confusion, memory problems, very intense weird dreams, loss of energy, feeling foggy, get freezing cold very easily, sadness for no apparent reason, skin getting kind of papery and pale | They believe it was oral contraceptives that gave me the DVT. I am used to being pretty athletic and sharp/clear. Typically, I enjoy rigorous exercise and train daily at the gym 5-6 days a week (cardio & weight lifting). I'm usually in great shape and am an upbeat overall happy person. But this medicine is making it all very hard. Some days are worse then others and the bad days are extremely frustrating. To make it worse, the clinicians I see at the coumadin clinic all say these are not side effects of the medicine. And they sent me to the ER - where I sat for 6 hours freezing half to death - to get a CT scan of my head. It came back negative (big surprise) and the doctors looked at me like I was being hypochondriacal or something. (However, these are the same ER docs that sent me home - twice - with severe PEs - untreated and undiagnosed). Thankfully my primary care did her homework on the medicine and does see these as side effects and she's been very supportive. She t | F | 37 | 2 months | 12/7/2007 | 2 | DVT, 2 genes that cause bloodclots | It makes me so tired and puny. I constantly fall asleep, even in public. My hair falls out in clumps. I'm always cold. If I have one drink I feel like throwing up. I get nauseous very easily. | I'm stunned that this many people have the same side effects, but none of them are listed. Warfarin sodium is the same thing in rat poison. I feel like I'm poisoning myself with this stuff. I'm only 25 and they want me to take this for the rest of my life? No thank you! | F | 25 | 2 years | 12/5/2007 | 2 | aortic valve replacement | I have had migrains for over 25 years, now the headaches are worse, with new dx of occipacal neralgia (nerve HA). Mood swings very irritable and snappy. Gastro upset (bloating, gas, pain in right side) ct, xrays and US all negative. Pretty much feel crappy all the time with no energy. Just thought it was me until I read this sight. I am a CMA and work at a clinic. Thought I was going crazey until I see many people feel the same. | There is hope, Im in the medical field and the drug companys have been working on an alternative drug which wouldnt interfere with food and vitamins. This is the most frustating thing with this med. I like my greens, sneeky trick one large salad/broccili one drink, keeps your INR in range. For people that complain about chest pain check your magnezium level, mine was low due to decreased vit k intake. Low mag. causes muscle spasms, which your heart is one big muscle. Im sensitive to any adjustment done on my med., for people that dont stay in range, the generic has a tendency to flucuate your INR. I pay a higher copay for coumadin and my ranges are now stable. Plus the generic gave me the worst acid reflux I had ever had. Hope some of this helps others. Wish the ins. company's would read this sight so I wouldn't have to pay 40 instead of 10. | F | 43 | 7 years | 12/1/2007 | 2 | TIAS | Dizziness no energy felt like my legs were on fire painful bones body ached all over could'nt understand what was wrong with me, my Dr. has now put me on baby asprin and the difference I feel is unreal feel like I am back to normal. | F | 67 | 8 years | 11/5/2007 | 2 | dvt | hair loss, dull headaches, fatigue, lots of dizziness and nausea. sadness, but not sure if that is from the medicine itself or from dealing with the side effects. | F | 30 | 3 months | 10/10/2007 | 2 | Bi-lateral multiple Pulmonary embol | Fatigue, light-headedness, headaches, skin problems | I'm another one they couldn't get the dosage right on. I'm tired of getting up in the morning feeling OK but knowing once I take my medication I'm going to feel like garbage for hours. I was told not to worry about what I eat, they'd just adjust the dosage to match. I found it was better to go ahead and avoid greens. Before going on Warfarin I had some flakey skin around my eyebrows on occasion but now it has spread down the bridge of my nose onto my cheeks and even inside my ears. Quite lovely. I've also experienced sharp pains in my ankles. | M | 52 | 3 months | 10/7/2007 | 2 | atrial fib | weight gain of 20 lbs even with exercise and nutrition supervision, swelling of ankles and hands, severe muscle spasms of upper back and neck, excessive brusing, dizziness when standing, difficulty in regulating therapeutic level even with nutritional supervision. I am thankful for the blessing of no blood clots, but this is a horrible way to live. | F | 55 | 3 months | 8/1/2007 | 2 | DVT right arm/ P.E. in both lungs | Depression, dizziness, cold chills and lack of sleep at night but then restlessness during the day. | If anyone knows of a natural aid for depression that will not have any drug interactions, I would like to know. | F | 19 | 1 months | 6/27/2007 | 2 | Arterial Fib | I have had a 20 lb weight gain within 2 months, edema, swollen ankles, legs, thighs, body, hair loss, back and joint pain, cold intolerance. Sometimes hard to focus, loss of stamina, sex drive, itch all over, and dry skin, especially legs and arms. | Hate taking it, but dont want blood clot. | M | 48 | 3 months | 1/7/2007 | 2 | antithrombin III deficiency | hairloss patches, energy level has dropped severely, tired all the time and have to take naps which I never had to do before, joints ache,swelling of legs on and off, weight gain. Wish I just could feel like myself again. Full of energy and rarely got tired after any activities, etc Trying to go with the flow but it really really stinks. | Have to take it for life unfortunately wish they would find another drug with less side effects. I am worried about the long term use and effects on your body. But there is no other choices or options at this time. | F | 46 | 2 days | 11/7/2006 | 2 | P.E. right lung | Got cold very easily even in intensely hot weather, bruising, bug bites would not heal, hair loss. | My INR would never stabilize (I was on 15 mg once a week and 12.5 the rest of the time), I was only in theraputic range twice in 6 months. I had to stop eating anything with vitamin K in it to try and figure out what was causing the low INR readings. Try eating no salad, no watermelon, no salad oils, no cranberries, etc. when on a long-term weight loss program, and during the summer to boot! Needless to say my weight loss came to a halt during my time in coumadin jail. Doctors could never really explain the cause of my P.E. other than taking a stab at it and blaming my birth control (ortho tricyclen). My pulmonologist wanted me on coumadin for 9 months, I called it off at 6, no longer able to tolerate the constant doctor appointments and the eating restrictions. I have no clotting factors. My only concern now is that since stopping the coumadin 6 days ago, I seem to be extremely itchy! I thought at first it was bug bites, but I'm not sure. Anyone with experience stopping coumadin | F | 30 | 6 months | 9/12/2006 | 2 | low risk blood clots | WOW! SO GLAD we found this site!! I have had severe and debilitating headaches, chills, general all over bad feeling...also, very sensitive skin, hair loss. | Due to a long term hospital confinement, I developed low risk blood clots in lower leg area. I was only to be taking the drug for 3-6 mos. but I would not have been able to rehabilitate and recover if I had stayed on Coumadin - doc finally said okay to take an aspirin a day and recheck with ultrasound in a few weeks. We were not told anything about these side-affects and all the docs tried to tell us it wasn't Coumadin...very, very frustrating!!! I believe there is a way to have your doc report this to the FDA...PLEASE DO!! So others don't have to go through this!! | M | 43 | 20 days | 9/7/2006 | 2 | 2 x rt leg clots, FVL homozygous | Mostly just exhaustion, lack of energy and headaches, cold hands and feet, body aches, slight nausea on occasion. Maybe weight gain but it is early days yet... | I have always been an active and energetic person, and it has really blown me away how much this drug has affected my energy levels. I pass out every night and wake up feeling like I can hardly open my eyes every day. I am a lifer on the rat poison now, which is hard being only 26, what with the dietary and activity restrictions (used to be a keen basketballer, which is out of the question now). On the plus side, my liver will no doubt be grateful in future that I can't drink a great deal!! Positive attitude is everything. Feel free to contact me if you have any questions and good luck to all :) | F | 26 | 2 months | 9/6/2006 | 2 | 2 x rt leg clots, FVL homozygous | I just posted a second ago about my experience - I meant to add that my INR is stubbornly refusing to go up, and I am stuck on 1.6 - my dose is currently at 8.5mg daily but will no doubt increase next test, and I am still having to do the Clexane shots in the stomach every morning (2 months and counting!) :s | F | 26 | 2 months | 9/6/2006 | 2 | Clot at base of my brain | Depression-severe; loss of appetite, but gain in weight; muscle pain all over; hot and cold; feet and hands numb and cold; insomnia; anxiety | F | 52 | 8 weeks | 8/18/2006 |