Drug Ratings for COUMADINAverage Rating: 3.1 (795 Ratings)
Compare COUMADIN with similar: |
Results are sorted by length of time drug was taken from longest to shortest Key to Ratings: 1=LOW (I would not recommend taking this medicine.) |
| RATING | REASON | SIDE EFFECTS FOR COUMADIN | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
  | F M | | | | |||
| 5 | Deep VEIN Thrombosis | Without coumadin, I will die. I hated this drug at the beginning.I've lost my hair at 39, my figure, my fun personality, and dear friends. It killed many good fun things around me and .YES!, Its rat POISON. Is anyone still working a high profile job? I 've had to for our family medical. I can't do it anymore. I have fainted at work, costantly fatigued, I don't trust myself, I'm in chronic pain. How much wosre can this get??? I've been on coumadin treatment for 11.6.years . I will be on it for the rest of my life.As long as I can afford to pay for it. I feel and understand the pain everyone of you is goiing through. | F | 51 | 365 years 7..5 1X D | 8/26/2011 | 1 | DVT/Lungs filled with clots | Massive hair loss. Depression. Mental fatigue. I also have fibro myalgia. I have taken coumadin for forty years! I have had many surgeries and I think the coumadin is responsible. | Last month I had to be off the 10mg. that I take every day for yet another procedure. I felt better after two days. I haven't felt that good in 15 years. I could go and play with my grandson. It was wondrful! I told my doctor who said coumadin had no side effects. I felt better every day for those five days you can't make me believe it was a five day miracle! I am going to try again tomorrow to talk with my doctor and hope that he can change my meds. | F | 59 | 40 years | 1/16/2008 | 3 | dvt, p.e. | coldness, weight gain, bloating, | anyone with any feedback? | F | 51 | 33 years | 4/29/2007 | 5 | 4-pe, 6 dvt, family history | I am cold all the time. Occassionaly, I do get headaces and feel light headed. I easily bruise and at times my coumadin has been too high and required medical attention. | I am a lifer when it comes to coumadin. I cannot survive without it. I understand that it has many side affects, but they have been manageable for me. Besides, it sure beats the alternative! | F | 48 | 32 years 5 mg 1X D | 12/5/2011 | 5 | mitral valve replacement | bruising, cold all the time trouble keeping INR theraputic, diet restrictions are the pits. I love my spinach,asparagus and broccoliand a quarter cup is just a tease. | My sister died while on plavix I'm not saying it killed her but her quality of life was not as good while she was on it as mine has been on coumadin. I understand the young womans concerns about pregnancy and coumadin I was on it during the first 4and 1/2 months of my first pregnancy and was fortunate enough to have a healthy son. The reason I stopped taking it for the second half of the pregnancy was that they found out it wasn't needed with porcine xenografts. I worried thru the whole pregnancy then had another child, another pig valve, another child, then an artificial valve was installed necessitating coumadin again. the birth defects that can happen from Coumadin are horrific and pregnancy should be avoided at all costs. We were lucky not everyone is, but all in all I give Coumadin a big thumbs up. | F | 54 | 30 years | 12/6/2006 | 4 | Factor V lidden | The blood bank bruises my arms they go in then they half to wiggle and twist the neddel to finely get blood flowing I look like I have been in A dog fight. | M | 70 | 30 years 7.5 MG 1X D | 7/23/2010 | 3 | Mitral valve replacement (twice) | Depression, anxiety, weight gain, severe fatigue, disturbed sleep and a lack of concentration. I have been taking wafarin for 27 years and I have found that the longer I am on drug the worse the symptoms seem to be getting. It has been sheer determination on my part to try to lead a normal life. | This drug did save my life and for that I am extremely grateful! The side effects have either not been sufficiently researched or ignored. I have been told by my Dr's on numerous occasions that there is no alternative for me. I have done what I could to alleviate or minimise the side effects, not to mention the money that I have spent trying to "heal" myself :0)The side effects can be debilitating at times. I think it is time that the manufacturer does something about it as there are more of us that suffer from the side effects than those that don't!! | F | 41 | 27 years | 12/23/2008 | 4 | A-fib, Stroke, Mech Heart Valve | Spacey Feeling, Chilled Easily, Dehydrated Skin, Frequent Episodes of Internal Bleeding, Short Term Memory Loss, Absent Mindedness, Tiredness, Bruising, Excessive Bleeding, Heavy Periods | I have been on Coumadin for over 21 years for Chronic Atrial Fibrillation, Stroke/TIA history, and a mechanical heart valve. My target INR is 3.5, which may explain the unpleasant side effects. When my INR is at target range, I do not suffer strokes, TIA’s, or clotting near the valve, which is a blessing. But, high fluctuating INRs, do cause frequent internal bleeding episodes. Because I work full time, this is a major inconvenience. At this point, I have no other choice but to continue this medication. In all honesty, I am thankful for this medication, but if stopping it was an option (and I have been tempted), I would do it in a heart beat. | F | 48 | 21 years | 11/28/2008 | 4 | Mitral Valve re-placement | Hair loss with good re-growth (not balding), fatigue if dosage is missed, issues with memory (could be due to aging)and depression (stuck with this for the rest of my life - no wonder I am depressed), issues with bleeding and had 2 strokes - blot clots at the base of my brain. | Wonder drug, I am still alive, but much prefer the Heprin needles I took when I was pregnant. No brusing,no bleeding and its just the best. But has very damaging effects on ones bones. Oh and very expensive $12.00 per needle per day. | F | 41 | 21 years | 1/4/2010 | 4 | Atrial fibrillation | bleeding, fatigue, itching, rash | I was taking coumadin (Wafarin) for over 20 years. For the first 13 years my biggest problem was excessive bleeding if I cut myself and occasional nose bleeds. In the last 7 years I noticed dark spots appearing on my skin whenever I’d bang against anything. I became more fatigued. I developed a rash. I had unbearable bouts of itching. My mental capacity diminished to the extent that my neurologist told me I am losing it. I understand I am 86 years old. Within the passed three months I was hospitalized twice for two bouts of rectal bleeding. Each time the doctors could not find the immediate cause though they did decide the risk of stroke was less then returning to the hospital for a third bout of bleeding. Since I have been off the medication I have more energy and more interest in the world around me. There is enough of a change in my demeanor for friends and family to comment. My overly thin skin is free of black and blue marks. I do not know if my itching and rash will disappear but I certainly hope so. I take one full aspirin a day and so far it has kept me from a stroke. I decided in the hospital that the risk of a stroke was more acceptable than the risk of bleeding every five weeks. I spoke to my doctor about what I believe to be Coumadin’s side effects and he stated that with certainty that these are not side effects of the drug. I can state with the same certainty, he is wrong. | M | 86 | 21 years 3 mg 1X D | 5/22/2010 | 2 | DVT | I have been on coumadin for almost 22 years. I think of coumadin as both good and bad. The good is that it has saved my life. The bad is the side effects. When I first went on coumadin I began having trouble sleeping, which has still continued. I do not have the energy I once had. I have also felt like I have ADD while on coumadin. To summarize: anxiiety, lack of energy, sadness, and yes at times depression. I asked for almost twenty years if there were any side effects of coumadin, to which my hematologist said no. Finally, a primary care doctor informed me that there may be links to coumadin and depression/anxiety. He began to study this after his mother went on coumadin and he noticed the effects on her. | There is yet to be any other alternative for people with DVT. I am 100% convinced that there are grave side effects. (lack of energy, sadness, and depression/anxiety) | M | 38 | 21 years | 4/28/2008 | 4 | Ileo femoral DVD, left leg | I had a massive dvt when I was 23... Fit and highly active, unexplained, so they put me on long term warfarin. I've been a little irresponsible with inr and missing dosage, and as a result, they're moving me to a new drug. | Personally, I would like to think that some of the ailments being described are as a result of warfarin, especially weight gain! Before reading this site, I had heard that warfarin can cause water retention but I would heavily discourage you in taking diaretics as this is in part what helped make my dvt so big. Evenso, my experience of the last 20 years is this: if you are getting headaches, chest pain or any other non-normal events, either see a doctor, or remember that you have suffered a life threatening event and anxiety is a natural reaction to this. I used to wake up in cold sweats believing that I was having a PE or something. This happened for years, even now sometimes. Just take a deep breath and relax. Take more exercise, do something at least once a day. I play badminton at least 3 times a week and feel good for it. But I do still get anxious. It's only natural and can cause all sorts of phantom symptoms. Good luck to you all. | M | 43 | 20 years 8mg/day 1X D | 7/16/2012 | 2 | Valve replacement | Extreme fatigue, weight gain, blurred vision, extreme leg pain, cannot sleep and now nose bleeds | I have been on comadin for 20 yrs after a aortic valve replacement. I did not have any side effects at all at first, but now I am experiencing them. Also, my protime numbers are off the chart, from 2.5 - 4.0 in a matter of days. What is wrong? Has my body had enough of coumadin? I am seeing my cardiologist within the next month, maybe he will have answers. | F | 57 | 20 years 5 mg 1X D | 3/19/2010 | 3 | DVT | Initially, for about the first three years my extremities were very cold. Now, I do not have that effect. However, I can say that I have suffered bouts of anxiety/depression over the years from coumadin. My doctor would always say that it was all in my mind. Recently, I have seen a different doctor that explained that there is a link between coumadin and anxiety/depression. He has placed me on an anti anxiety drug. I think it is somewhat working. | Coumadin is a very strong drug, and other people need to be educated about it. | M | 36 | 19 years | 10/25/2005 | 5 | atrial fib., stroke | Frequent bruising, often spontaneous. Nose bleeds. | I started Coounadin in 1992. At that time I was monitored at a finger-stick INR clinic. When the clinic closed in 2003 because it was losing money under the federally regulated system of reimbursement, I went off Coumadin, stayed on baby aspirin one a day. My INRs fluctuated too much. Then I had a stroke in 2005. I decided to go back on Coumadin, found the one and only Coumadin Clinic in a doctor's office in town. Then I had some coronary drug-eluting stents put in. That cardiologist put me on Plavix in addition to Coumadin and aspirin. He instructed me to keep the INR between 1.8 and 2.5. I weigh and measure vitamin K foods, and take 2.5mg. Coumadin daily. Well, the stents are still patent after almost 3 years. And no new stroke, yet. Ginger potentiates warfarin unpredictably. Amiodarone raises INR off the scale. Once a month INR monitoring is usually not often enough, for me, at least, in spite of measuring my food. Too many other oncontrolled variables. Patients who can | M | 79 | 18 years | 1/5/2008 | 3 | Two artificial heart valves | I have been on coumadin for roughly 16 years and the more time that goes by the more I hate being on a blood thinner. Not that I have a choice, but my hair is INCREDIBLY thin. I eat a very healthy diet and even take supplements and basically my doctor said I would just have to live with it because Coumadin can have that effect. | While growing up I was under the impression that I could still safely have children, just as long it is planned and I get onto heparin for the first trimester. Now I've been told that it's extremely risky having a child when you've been on coumadin for awhile. My doctor actually told me I should look into adoption because monitoring my pregnancy would give him grey hair and be extremely high risk. | F | 28 | 16 years | 10/13/2007 | 5 | Mechanical Aortic Valve | The medication is literally a life saver. You have to watch your blood levels very closely so your blood does not get to thick or thin. I bruise easily. | It is very important to educate yourself on any drug you are taking as much as possible. I am also a big believer in the self testing machines offered. I manage my own I&R and it works well with my busy life style. My surgeon highly recommended it. | M | 46 | 15 years | 9/19/2006 | 5 | None | Hair Loss: It is most likely genetics Fatigue/ Muscle Loss: You are most likely out of shape due to the fact that you changed your lifestyle due to Coumadin. You can live an active lifestyle with Coumadin if you are careful. Depression: You were most likely depressed before Coumadin...now you have an excuse. Diet: You can eat/drink whatever you want to as long as long as it is factored into your dosage. Headaches: Most likely that is a diet issue. If you eat healthy and are hydrated, you should be good to go. Bleeding Gums: Use a soft bristle tooth brush and have your INR checked...it is most likely too high. For most of us Coumadin was forced upon our lives. Yes it is a pain in the a$$. Yes there will be some type psychological effect, but it is psychological. At some point you will have to let it go and live your life...it is too short to live in a box and blame everything on Coumadin. | M | 39 | 15 years 9 1X D | 5/27/2012 | 1 | 5 dvt's in left thigh | Tiredness, weight gain, moodiness, hair loss, a feeling of being | I feel terrible all the time. The higher the dose the worse I feel. I need to be on it for life. At this time I think I would rather take my chances!!! I am so tired of feeling this way!!!!!!!!!!!!!! | F | 39 | 15 years | 8/5/2005 | 5 | Aortic Valve Replacement | The only side effect that I can with confidence blame on coumadin is that I get cold much easier than before. I'm losing my hair even though there is no evidence of balding on either side. On the good side, bruising isn't as bad as I expected. I don't play with sharp things anymore. | My history is that I was very unstable. For the first few years I was getting tested 2-3 times per week. I've stablized at about once per week, although I occasionally make every 2 weeks and even made it to 3 weeks one time! | M | 51 | 14 years | 4/10/2005 | 4 | DVT - Knee to hip | weight gain, irritability, stomach/digestive issues | I've been on this for 13 years and will be taking it for the rest of my life. | M | 37 | 13 years | 4/20/2009 | 1 | Mitro Valve Replacement | Depression, No energy, Bruise to easy, Gums bleed when level to high, and clots in kidney and bladder. | I've been on coumadin since dec of 96. That is when I had a mitro valve replacement. What was suppose to be a fairly routine surgery turned into a 13 hr surgery. Long story short, 2 open heart operations, lungs collapsed twice, respirator twice and I coded 3 times, Once on the table and 2 times in room. I have been on this rat poison for to long. I have 2 incidents where my bladder was filling up with clots. Energy is gone, And everytime I ask my doctor why they cant level off my coumadin, he says he is not sure, I wonder sometimes if it is even worth taking. | M | 31 | 13 years | 12/8/2009 | 5 | Aortic valve replacement | No side effects that I am aware of.It is just a bit of a pain for any invasive tests or surgeries. | I have been on Coumadin for over twelve years due to aortic valve replacement with a St. Jude mechanical valve. For patients like me there is no alternative and I wouldn't be here without it. For those having trouble staying in range, consistency is the key. This includes diet and activity level. The really bad thing about this drug is the total lack of understanding by so many medical and dental professionals. It DOES NOT thin your blood, that is an old wives tale. Coumadin(warfarin) prevents the absorbtion of vitamin K in your liver(vitamin K is the blood clotter in your system. It also does not make you cold because your blood is too thin, that is pure baloney. | M | 70 | 12 years | 9/2/2008 | 4 | Heart attack | Due to a heart attack 12yrs ago I was put on Coumadin.They say it was a genetic clotting factor and I would take coumadin for life. When I was in the hospital(12 yrs ago) I had my first experience with a UTI. I had been married for 42 yrs without having any bladder problems. Since then I have had recurring UTI and for the past few years they are becoming more frequent. I am now having them at least every 3 months. Of course this means treatment with antibiotics,pyridine and antifungus meds for yeast infections. Coumadin inhibits Vitamin K which helps the good FLORA in the intestines,vagina and urinary tract. Could this be the reason for so many UTI's and yeast infections?Theatibiotics are killing the good flora and the body is unable to regroup due to coumadin preventing vitamin K to replenish the flora. I have been to specalists and have been MRIed,scoped,CAT scanned. All parts are fine and I know the drill(Cranberries,which way to wipe etc). If any one has this s | F | 71 | 12 years | 5/18/2007 | 4 | I had DVT when I was 14. | longlasting bruising. Especially if I accidently hit my leg or arm to a chair or a table the bruise gets too dark and stays for years. Really I am not exagerating. | F | 26 | 12 years | 12/25/2004 | 3 | Lupus | Memory loss, hair loss, tiredness. | I have been taking Coumadin for long time and did not know any alternatives. Recently my doctor advised me of all side effects of Coumadin. It was shocking to learn how bad this medication affect some people. I am looking into switching to increase dosage of Omega-3 fish oil instead of Coumadin. | M | 41 | 12 years 6 1X D | 10/14/2011 | 5 | Just the usual bruising and a little additional bleeding when I cut myself. | I have a blood clotting disease, APS, Coumadin has saved my life. | M | 76 | 11 years | 7/5/2009 | 4 | Factor V Leiden | I have been on Coumadin since 1998 got my first blood clot in 1995 and after surgery in 1998 was diagnosed with Factor V. Really I haven't had any side effects. | If it wasnt for coumadin I would not probaly be alive.. Living with Factor V you have to be on coumadin the rest of your life. Right now I am off the coumadin and taking Lovinex shots for I am having 6 teeth pulled. In 2005 I had a tooth pulled and ended up with a clot in my colon..that was scarey.. have had clots in my right leg and lung.. | F | 47 | 11 years | 12/13/2009 | 4 | Aortic Valve Replacement | Anxiety, depression, dizziness, stomach problems the last 2 years. The dizziness is the worst thing. Can't drive over high bridges, can't look at high bridges. Feels like I'm leaning sideways. | I take 8-9 mg per night, depending upon INR results | M | 52 | 11 years | 7/27/2006 | 4 | DVT in leg, encompassing every vein | slight loss of hair, bruising lasting longer than normal, and when bumping into table or chair occurring deaper. Skin thinning, sunburn easily, nail thining, and in my opinion, my teeth are suffering from it as well. They are just falling apart. | I have been on coumadin for 11 years. I have noticed the hair falling out, the nails thinning and the skin thinning. I would like to have a tester at home to call in the results, otherwise it is an hour trip to my doctor or I have to go to the local hospital and pay $40 for a test. If anyone out there is experiencing any teeth problems, I would like to hear from you. I too have recently noticed a weight gain. | F | 49 | 11 years | 10/1/2005 | 1 | dvt | fatigue,hair loss,numbness in my feet,hands,cold feeling,dry,brittle hair,itchy skin,weight gain | Have been on coumandin for 11yrs now. My whole life has changed for the worst.Constant lab visits. My weight gain is awful,although i excercise. I walk and bike daily and i don't loose the weight!!!!! I eat well, i don't eat junk foods AT ALL...My hair loss is terrible. Used to have beautiful curly,bouncey hair. Now its's sooo coarse. | F | 49 | 11 years 7.5 1X D | 7/30/2011 | 1 | mechanical aorta valve replacement | dizzeness, hairloss, legs feel so heavy they burn, scalp itches, memory loss, pain in shoulders, easy brusing, no sleep, numbness in fingertips, tired, | i opted for a mechanical valve on advice of my doctor----had i researched this drug i would have went for a pig valve or even a cadavere one--------wish i could get off this pill-i also have to take a high blood pressure pill, which also have bad side effects-have to take for the rest of my life-----hopefully one day they will find a better drug- | F | 63 | 11 years | 1/14/2008 | 5 | I'm a clotter it runs in my family | your either to thin or not thin enough , weight gain | If it hadn't been for Coumadin : I wouldn't be alive today , I've had clots in heart my lungs and my legs and my brian as well, I even had 1 blow up in my lower part of my head I'm very very lucky to be living and alive the clot had caused a stroke and ever since then I have major migraine headaches daily and taking meds for them and will be to no end , Tho taking this med changes your life is because you have to be very careful, I have been on it for many years and will be for the rest of my life , I did gain weight while taking this med and yes it hard to lose it but it takes will power to lose it , eat a normal diet and you'll do fine | F | 47 | 10 years | 8/5/2008 | 4 | Anti-phospholipid; 3 strokes | Tiredness and fatigue mainly. Some depression including one severe case. Disrupted sleep patterns - either too much or not enough. Also on a lesser scale aching legs, stomach cramps, bloating, and sensitive skin including sun burn very easily (ie while wearing sun screen). None of these things were a problem pre-Coumadin. INR fluctuates wildly at times and has never been considered stable. | It is not the nicest thing to be told the drug you have to take for the rest of your life is a poison, but without it I would be either dead or brain damaged. Coumadin, for all its problems, has more than likely saved my life (which is why I rated it a four). I have often spoken to my doctor about the tiredness, had any number of tests but never put it down to the Coumadin. Seeing that about half of the respondents cited tiredness or fatigue I guess I have my answer. It sounds strange but it is oddly reassuring to read about the common experiences so many have had and feel "normal" for a Coumadin patient. Until something better comes along I will stick with it. Thanks to all for sharing your experiences too. Stay well. | M | 37 | 10 years | 2/4/2008 | 4 | Factor 5 - two dvts different times | WEIGHT GAIN, water retention, fatigue, joint/muscle aches, hair loss, dizziness | I am told by multiple doctors I need to be on coumadin for life. I am tired of the side effects, and the doctors not listing when we, the patients, tell them of the side effects. The weight gain started when I went on coumadin, before that no issues. I walk four miles a day plus do additional exercises, watch my diet, it does not matter. The only time I have felt cleared headed, no joint pain, and lost weight since being on coumdain was when I had major surgery and used heparin instead of coumdain. I am going to investigate natural options such as foods that thin the blood and see if other things can be done instead of taking drugs. | F | 51 | 10 years 10 mg 1X D | 8/11/2010 | 4 | DVT - right leg | Obviously, bruise easier now. Definitely get colder easier than before the coumadin - kind of a deep chill that takes a long while to go away. Cold hands & feet. Stomach upset, especially gas. (Also take Plaquenil, so I get a combined effect.) | Have had no recurrence of DVTs, but have antiphospholipid syndrome, so will remain on the meds indefinitely. Have had a few problems with ovarian cysts & had one rupture about 3 years ago - not a good thing when taking coumadin - bled out & had a clot form in my abdomen the size of a honeydew melon. Also have Lupus, so hard to say whether the coumadin is a factor in my fatigue. Dosage has been very stable over the past few years - now only have to get tested every 6 weeks. | F | 33 | 10 years | 10/14/2005 | 4 | DVT 2X and Pulmonary Embolism 2X | Often experience cold hands and feet. Beginning of hair loss may be side effect. | I am grateful for this drug since it is keeping me alive but I want to be off it sooo bad! I want my life back...I want to play hockey and football again without the risk of getting serious bleeding. | M | 37 | 10 years | 9/16/2005 | 3 | DVT | I took this medicine for 10 years. I thought I had all of the side effects everyone else is complaining about.... | However, I have recently quit and I still have headaches, stomache aches, insomnia, blurry vision... Maybe it wasnt the coumadin.. | F | 44 | 10 years | 11/19/2009 | 1 | Doctors misdiagnosed me | Fatigue, severe hair loss, nausea, severe head aches, stomach aches, pain throughout my body to the point of not being able to walk, skin discoloration, skin falling of my leg, hives, severe itching, bloody eyes, blood blister hanging from my eye, shortness of breath, weight gain, irritable, exhausted all the time, facial problems - veins popping, breaking out, | 10 years instead of six months of Warfarin, rat poison, I feel have slowly taken away my life. | F | 60 | 10 years 4 mg 1X D | 6/17/2011 | 1 | DVT | Hair loss tired all the time, body aches headaches legs hurt a lot. | I hate taking it . I did stop taking it at one time but blood clots got much worse. So have been back on it again for years . I thought it was all just me until I read what others are having the same thing . | F | 73 | 10 years 5mg 1X D | 10/18/2011 | 5 | amputee, dvt | tenderness of skin, no bruising, swelling or other visual signs. | F | 65 | 9 years | 8/15/2004 | 5 | DVT, PE , genetic clotting | Extremely lucky not to have side effects that bother me.. no headaches or weight gain. Hair loss, but guess that's more age than medicine. | With my second blood clot, dr said I just barely missed having a "catastrophic event". I would be dead without coumadin. Both parents died from PE before family realized they each carried an inherited blood disorder. When I started on coumadin, dr told me not to change my lifestyle. Told me not to eat a lot of food with high vit K, but to go ahead and have salads everyday if I want and the dr would adjust my coumadin to my diet. I still play tennis 2-3 times a week (I do bruise badly if hit by a ball, but figure that is a small price to pay to be alive), and eat pretty much what I want. I have been on 10 to 12 mg daily for 9 years and my monthly INR stays pretty much in the acceptable range. | M | 59 | 9 years | 9/29/2008 | 4 | Multiple DVT's | Based upon what I am reading, one of the major side effects is weight gain. Since I've been on Coumadin this time is weight gain. I've gained approximately 50 lbs. over the last 9 years. | I've had DVT's 3 times and a PE once since the age of 22. My last DVT's was 9 years ago. It was possibly caused by excessive air travel. Since that time I have been on Coumadin and will be on it for the rest of my life. | F | 50 | 9 years 17.5 1X D | 8/11/2010 | 5 | 3 DVT, 1st when pregnant, Factor V | Just some bruises from time to time. Normal to get a bruise, but they are darker since on coumadin. | Being on coumadin saved my life! I had endometrial cancer post menopause, and it allowed me to bleed sooner than if I had not been taking coumadin, thus catching the cancer at a very early stage. | F | 62 | 8 years 6mg 1X D | 5/5/2011 | 4 | pigs valve | F | 63 | 8 years 5 mg 1X D | 8/15/2010 | 4 | Mechanical Aortic Valve, a-fib | Excessive bruising, some weakness in legs. | vary between 3 & 5 mg daily. No real change in 'quality of life'. It is a pain in the butt when you need any type of surgery, the get 'off' then back on. | M | 75 | 8 years | 7/10/2007 | 3 | DVT AND PE AFTER C SEC | TIRED, HAIR LOSS, WEIGHT GAIN, HEART FLUTTERS FROM TIME TO TIME WITH CHEST PRESSURE, NUMBNESS IN ARM, MEMORY ISSUES. | ITS SCARY, I HAVE ALWAYS WEIGHED 110-115 NOW WEIGH 155 AND HAVE WEIGHED UP TO 163. I HATE THE MEMORY ISSUES AND ITS HAPPENING MORE FREQUENTLY. I HAVE NO ENERGY AT ALL. I HAVE SPOKEN TO DOC ABOUT ALL THESE THINGS AND I GET THE SAME ANS ITS NOT THE MED. AND I HAVE BEEN TOLD ITS A FOREVER THING FOR ME TOO. I WAS TOLD I WOULD BE A WALKING TIME BOMB WITH OUT IT. SO WHAT CHOICE DO I HAVE? | F | 42 | 8 years 9 1X D | 5/23/2012 | 2 | TIAS | Dizziness no energy felt like my legs were on fire painful bones body ached all over could'nt understand what was wrong with me, my Dr. has now put me on baby asprin and the difference I feel is unreal feel like I am back to normal. | F | 67 | 8 years | 11/5/2007 | 3 | Mechanical Mitral Valve | I've experienced fatigue, forgetfulness(short term), depression, loss of motivation to do "anything"; I just don't feel and act like I used to. | After my first mitral valve repair, I felt good and had energy. Then after the second surgery and the valve being replaced with a mechanical valve (and the coumadin) I feel like I've been sliding away as each year passes. The first two years post surgery, my INR was across the board 1.2-9.2 and we couldn't get on top of it. I experienced several TIAs which led to neurological tests, a home INR monitor and several years of coumadin futzing. Now that I am not in a stressful(management)at work and I have a regulated schedule (sleep/food) my INR stays within range (3-3.5), the side effects seem to have increased in intensity. It is helpful to read that others have similar experiences with Coumadin. And I agree with those here who've been looked at in disbelief by doctors when they describe side effects not listed on the Rx, I just know that I have to take this for the rest of my life and that is disconcerning for my quality of life. | M | 40 | 7.5 years 12.5/15 1X D | 9/9/2010 | 5 | Lupus Like Anticoagulant | I am cold sometimes and sometimes tired. I do have headaches, but I believe it is from lack of Estrogen. I take Topamax 2X daily to help them. My knees get achy, but I work in a job that requires me to stand and it is on a tile floor, so this could be the problem. I do take a nap when I am extra tired. I just listen to my body. My fingernails do not grow very well any more. I will be taking this for life, so I am just trying to make the best of it and living life to the fullest! | I have not had any hair loss. No problems with weigh gain, as I do strength training 3 times a week, yoga one day and a couple days of cardio. I eat every 3-4 hours daily and I am very consistent with what I eat. I believe that my INR is in range because of my eating and exercise habits. This also helps my attitude. I do have to take name brand, Coumadin, not Warfin in order to stay in range. | F | 56 | 7 years 10 mg 1X D | 3/14/2011 | 5 | Bipolar pulmonary emboli | At first, any cut or scratch that I got bled quite profusely for perhaps 5 minutes. I have the odd spell of mild dizziness, but don't know if that's from the warfarin or not. I've experienced mild chills when relaxing in my recliner, but I don't notice them when I am up and moving around. I bruise easily, but bruises are not painful. | My first experience with blood clots in my lungs in Jan of 2004 saw me in hospital for about 8 days, on a heparin drip, and pills. Once my dosage was regulated and I was able to go home, I have had few problems with it. However, the internist let me come off it after two years, I was off it for approximately 3 months, and the blood clots came again, so now I am on it for life. It isn't a problem for me, no trouble regulating it, and have my blood test once a month. I eat pretty much what I want and it doesn't seem to affect it - i.e. grapefruit, cranberries and their juice, greens, etc. I always did eat all of those things and have not had to change my diet. The chills were bothering me a little, hence my interest in this site. They are not really bad, but are somewhat annoying, and I wondered if the warfarin could be causing them. | F | 84 | 7 years 4 & 4.5 mg 1X D | 1/23/2011 | 5 | heart valve replacement | Often feel chilled to the bone. Tired. Use to have a lot of patience and now get quickly frustrated. Bruise easily. Sick to my stomach all of the time. | Take it to keep alive, however, long for a day when I am not sick to my stomach and feel cold,tired and edgy. Wish someone would find an alternative or a diet list. | M | 58 | 7 years | 9/24/2004 | 5 | 3 DVTs | I'm always colder then everyone else. I didn't think it was the coumadin but now I see it might be that. I also think I get out of breath quickly. I feel like my blood is too thin. Today 7-1-05 It was about 85 degress and really humid. I was cleaning deck chairs with my son and by the time I finished I was sweating profusely and thought I was gooing to pass out. I get out of breath easy I can't walk up the stairs withoug getting out of breath. Yes I am overweight. | M | 49 | 7 years | 7/1/2005 | 5 | DVT | Hair Loss, Headaches, Mood Swings, Nervousness, Weight Stabilization (I can't seem to lose weight) | I developed a DVT after a bunionectomy. My hematologist performed lab tests & found I am Positive Factor V & also positive anticardiolipin. It seems that patients who have Lupus have the positive anticardiopin HOWEVER, I have tested negative on all counts for Lupus which puts me in the "rare" group. Due to these two positive lab rslts, I will be on Coumadin for the rest of my life. At the beginning, my INR was very regular. I have to be at a high(about a 3.2). However, in the past two yrs, my dr cannot stablilize my dosing. My headaches are recurrent & I was put on high blood pressure pills for my migraines. I feel as though this treatment is a cop-out. To this day, I still feel very strongly that my headaches are contributed to the Coumadin. When my dosage changes from mth to mth, it takes a toll on my body. This is when I become increasingly tired & without a doubt, more headaches are observed (BY ME!). It's as if my body is trying to adjust to the ch | F | 38 | 7 years | 6/3/2008 | 4 | Massive PE 2001, PTE surgery 2002 | Clouded memory, word mixing, short term memory issues, extreme nervousness in stressful situations... As for my Weight gain I believe this to be due to too many cheeseburgers and not necessarily the warfarin. I have days where I feel like crap, but I put my mind towards getting off my behind and doing something constructive. Usually after I start doing something I feel better. | I am a lifer on this stuff. Have been taking it for 7 years now. I do find that I have trouble mixing words in stressful situations like giving presentations or talking to my boss...makes me feel like a retard sometimes...Oh well, I just get over it, life is way too short to stress especially over what other people think. I do not have any other issues really...I play bass in a rock band and do not have problems learning songs so doing what I love is not affected by this. Yes it is a poison, but so is breathing Los Angeles air. The choice is yours, and a positive attitude is 100% the solution. | M | 29 | 7 years | 7/2/2009 | 4 | 3 DVT's lower left leg | Have not really had any side effects. Have recently been having frequent headaches, but I don't know if that is truly related to the medicine. | Found out after my DVT's in 1998 that I have a Factor V mutation and was initially put on coumadin life long. Had to switch to heparin while trying get pregnant and then pregnant w/my son. After that was told I didn't really have to be on it life long, so there was a gap of about three years of no medicine - and I worried every time I had a pain in my left leg. Was on Lovenox while pregnant w/my daughter (born in 2004). My hematologist told me that the opinion had changed and I really **should** be on life long anti-coagulant therapy so went back on to coumadin. Because of my insurance I had to switch to warfarin and have not had any regulatory problems - my INR has been between 2 and 3, and my dosage is 7.5mg M,W,F and 10 mg the rest of the week (I get checked once a month and have been on this dosage for five months). I truly do not like taking this medicine, but I feel much better about taking it rather than having more clots. I recently found out that both of my children inh | F | 37 | 7 years | 1/24/2006 | 3 | Aortic and Mitral Valve Replacement | Cold in winter, very tired, spacey, slight to moderate depression, no weight gain, lost weight, no hair loss, sex drive lowered | Taking it for life 10mg per day, able to stabilize PT/INR level as I measure my lettuce, greens, etc very carefully, have been stabile - on same amount - for years. | M | 45 | 7 years | 6/29/2007 | 3 | DVT in my right leg from taking Yaz | Fatigue, memory loss, dizziness, bruising, headaches.. In general I am not the same person I was before. I can no longer work in the field I was in for 24 years. I was in the Meat packing industry, but my doctor advised me to leave my job due to the medication and my usage of knives. | After taking Coumadin and knowing how it makes me feel, I could never do my job as a Meat cutter again, I do not have the energy or the strength anymore. I have shortness of breath as well and I never had that prior to taking this drug.. | F | 47 | 7 years 7.5mg 1X D | 2/11/2013 | 3 | Dvts and PE's | Always tried, numbness in fingers, hands, feet and toes. Aching muscles. Not sleeping well. Weight Gain, heart palpations, out of breath and lack of concentration. Always forgetful. And I have just been diagnosed with mild osteoporosis. | After reading all the comments, I started doing more research. All the symptoms listed are for anemia. Thin blood. The symptoms are real but there is nothing else to treat long term clotting and the side effects do not outweigh the results. It’s a struggle but I will continue to look for alternate treatment for blood clots | F | 52 | 7 years 7.5 1X D | 9/26/2011 | 3 | 3 DVT in right upper thigh | Headaches, heavy periods, irritable, itchy skin, hair loss, hot and cold all the time. | I have been taking coumadin since 2000, 2 months after the birth of my daughter. I was on coumadin for a year and a half. Doc said it was ok to get pregnant again. 6 weeks into that pregnancy, I got another clot in the same area. Then a 3rd clot in 2005. I am now on coumadin for the rest of my life. I have constant pain and swelling in my leg. I have to wear the anti-embolism stocking. I have had all the genetic testing done and everything comes back negative. However blood clots have been on both sides of my family. No one can give me an answer as to why I get blood clots, so therefore I can't go off the medication. I take Zoloft for stress, and was taking Topamax for my headaches (which made me feel like I was in another world). I took myself off of the Topamax, and now the headaches have returned. I hate having to deal with this everyday, especially for the rest of my life. I have also taken Lovenox and Heparin injections, which make me more sick. I cannot get my INR at a | F | 29 | 7 years | 1/28/2008 |