and Dosage
| Key to ratings for mysoline: 5-Very Satisfied: this medicine cured me or helped me a great deal. 4-Satisfied: this medicine helped. 3-Somewhat Satisfied: this medicine helped somewhat. 2-Not Satisfied: this medicine did not work to my satisfaction. 1-Dissatisfied: I would not recommend taking this medicine. |
| Rating | Reason | Side Effects | Comments | Sex | Age | Time Taken and Dosage | Date Added | |
| | F M | | | | ||||
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| 4 | familial (essential) hand tremor | started with 25mg daily for couple of days, then morning and bedtime, then 50mg daily etc, then titrated up to 250 am and bedtime. Face feels flushed, headache a lot but tremor is lessened. Don't know if I want to increase it more or not at this point. Will discuss with neurologist. I doubt there will be any added benefit by increasing dosage vs side effects. For those still searching suggest www.essentialtremor.org for detailed info. | M | 73 | 3 months | 1/11/2009 | 2 | essential tremer | drowsiness, confusion, unsteadiness, losing words, so slowed down mentally I feel stupid and can't function | I am taking 200 mg a day and it hasn't helped my tremor at all. I can't take inderal because my blood pressure is already too low. I'm trying to give it a chance, but I can't live like this much longer. | F | 48 | 1 months | 6/14/2008 | 5 | Essential Tremors | Maybe some tiredness but cannot differentiate from Tenormin and other drugs | M | 80 | 16 years | 5/28/2008 | 3 | essential tremors | sleepy | took it for awhile,stopped, tremors seemed worse,taking it again but see no effect except sleepy 50 mg daily | M | 64 | | 4/19/2008 | 5 | epilepsy | none | After my diagnosis in 1999, I spent years trying different drugs that had side effects I couldn't tolerate. This drug has worked perfectly for me. Ironically, my Dad, who is a GP, tells me that Mysoline is a step away from the phenobarbitol I was given for a time as a young child. | F | 45 | 6 years | 2/1/2008 | 5 | Epilepsy | some headaches | I have been taking this medication to control myoclonic seizures, I take a small dose and it works very well in controlling them. I got pregnant a year after taking it and continued to take it throughout the pregnancy. The doctor thought the worst thing that would happen to the baby would be a cleft palate or lip. I had preterm labor with my first baby, but not as bad as with my second. Not sure if the medication caused this or it I would have had it anyway. But I do have 2 very healthy babies, without any side effects from the meds. I was also able to nurse both of them for a least a year each. | F | 27 | 5 years | 5/3/2007 | 3 | essential tremor | dulled down, extreme exhaustion about 5 hours after taking it, intensifies the effect of alcohol | I am a reasearcher and take mysoline to do laboratory work. I took inderal first, but I have asthma and it ended up exacerbating my asthma. Anyway, mysoline does help a little, I found I take 12.5 mg (1/4 of a pill) 2 hours before what I am doing and it helps - but I need be done before five hours or I become stupid and screw up my experiments. I once took it once a week for an ongoing experiment for 12 or so weeks and I do think by the end the side effects improved. I really wish I could just take inderal. That is a great drug for the shakes. Note, I take this drug as needed. | F | 27 | 4 years | 11/4/2006 | 3 | essential tremor | drowsiness, lack of energy | very effective in reducing the tremor | M | 55 | 2 months | 6/15/2006 | 1 | essential tremor | double vision, slows brain function, it's a downer | M | 78 | | 5/26/2006 | 4 | essential tremors | Some iritability. | Helped a great deal with my tremors. | F | 55 | | 4/21/2005 | 4 | essential tremors | Some iritability. | Helped a great deal with my tremors. | F | 55 | 4 years | 4/21/2005 | 1 | hand tremors | Walking around in a fog / very tired even though took before bed | did not seem to help my tremors after taking for 6 weeks. I felt that I was too out of it to function. | M | 40 | 6 weeks | 1/14/2004 |
| Key to
ratings: 5-Very Satisfied: this medicine cured me or helped me a great deal. 4-Satisfied: this medicine helped. 3-Somewhat Satisfied: this medicine helped somewhat. 2-Not Satisfied: this medicine did not work to my satisfaction. 1-Dissatisfied: I would not recommend taking this medicine. |