SAVELLA Reviews (MILNACIPRAN HYDROCHLORIDE)

Average Rating: 3.0 (158 Ratings)

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 Type: Rx Drug

  

SAVELLA  (MILNACIPRAN HYDROCHLORIDE):  Milnacipran is used to treat pain caused by a condition called fibromyalgia that affects the muscles, tendons, ligaments, and supporting tissues. This medication is a serotonin-norepinephrine reuptake inhibitor (SNRI) that works by helping to restore the balance of certain natural substances in the brain (neurotransmitters).   FDA Approval Date: 2009-01-14 (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by length of time drug was taken longest to shortest.

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

Page: 1 2 3 4 5 6 7 8


RATING  REASONSIDE EFFECTS FOR SAVELLACOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 1  pain non fibromyalgia Panic attacks, memory loss, red blood count low requiring transfusions, anger, no desire to do anything, inability to think or comprehend at an advanced level He is post doc educated and could not read or converse at a high school level. He was scared all the time and would lash out irrationally. He didn't remember what he said or saw hours even minutes sometimes later. M 55 6 years
50 MG
5/11/2016
Email
 5  For fibromyalgia pain In the beginning dealt with a lot of nausea, and pain until the dose was increased to 100 mg twice a day. The nausea was on as ling as I took the Savella with food - a carb. Savella saved my life! I am a mother of three, and I was in a lot of pain and slowing down more and more. Savella let me have my life back and the ability to be a mother to my children. I am so very grateful! F 47 5 years
100 MG
1/23/2015
Email
 5  FMS, CFLIDS Began with clinical trials, so I have been on this medication a bit longer than those who started after FDA approval. It has changed my.tolerance of FM symptoms Significantły. If you are oink this medication and your insurance will not cover it, or no ins. Coverage at all contact Forest Pharmaceuticals in St. Louis, MO and talk with them about you're positive experiences with Savella and request their Patient Assistance Program. Some paperwork, easy, straight forward. Once approved the work I 90 Day increments and mail the meds to you prescribing doc where you will pick it up. A short tel call after that all required to continue, ard a new written Rx from the doctor. Please use the PAPS the pharmacy companies have just for this purpose. Please do not just stop taking something that is doing wonders for you. F 46 5 years
50 2X day
12/21/2012
Email
 5  Fibromyalgia some dizziness and slight weight loss in the first month, but have maintained a constant weight since. I've been extremely happy with Savella. I was first on cymbalta, which was ok, so I thought, then my Dr switched me to Savella, huge pain relief! I had a brief experience after about a year of taking it where my Dr switched me back to cymbalta, and the pain was unbearable! Within weeks of switching again to savella I was again pain free (minus the occasional flare-up). I've been on it a little over 3 years and am now able to again play tennis, volleyball, etc. and live my life without the pain and exhaustion :) F 29 3 years
50mg 2X day
7/13/2012
 5  Fibromyalgia In the beginning, nausea, sweating, it took a month or so to really help with pain. The side effects were so bad, I almost quit taking it. But, I am glad I stuck it out. The side effects went away and so did most of my pain. Savella has really helped me function and enjoy moving everyday. F 50 3 years
200mg
6/3/2014
 5  fibromalgia None F 49 2 years
100 MG
7/18/2012
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 5  Fibro,MFPS,Raynauds,RPS,CI,& more Some vivid dreams, but many side effects people think they have from Savella can many times be traced to other things. I could say I had hot flashes, but I was 52-53 at that time. That's called menopause. Many sides effects I could have attributed to the Savella were in reality caused by other things. I went off all my meds(oxycontin, etc.) in 2008 to go on the study for Savella. Unfortunately I got the placebo. I literally almost died. My BP shot up to 210/120 for 8 months. I was totally bedridden the whole time. I went on Lyrica and gained 50 lbs. in 5 weeks, plus it did nothing for the pain. Then my kidneys shut down. Finally by June of 2009 Savella went on the market. I could feel a difference in 1-2 weeks. I went on the highest dose fairly quick because my pain is so severe and causing other health problems. Just remember it is not a pain pill. It will not get rid of ALL the pain. It will not work for everyone. Nothing man does will get rid of this illness. You will have to listen to your body to help manage your pain and other symptoms. And most of all, if you have fibro, as I have for 25 yrs., realize that everything you do will have a consequence to your health. Fight the urge to be overly focused on the pain. I have been on just about every drug and holistic pill there is. Savella hasn't gotten rid of all my pain, but it has worked the best for me. You HAVE to give it more that 1 day or week to see a difference. F 55 2 years
100 mg 2X day
5/31/2011
Email
 4  Fibromyalgia prostate enlargement, urination problems (incomplete evacuation, slow stream) after a few months, heart flutter after about 1 year, light headedness after 2 years. I am taking Savella during the day in combination with 1800 MG of Neurontin at bedtime. For the last two years the combination has really helped my FMS symptoms of pain and cognitive problems. The best 2 consecutive years I've had in the last 20. Neurontin alone had worked in the past but eventually its effectiveness waned so my rheumatologist added Savella. The heart flutter and light headedness is bad enough that I'm backing off of the Savella. M 48 2 years
75 MG 2X day
9/13/2014
Email
 4  fibromiagia Started out with bad hot flashes,sometimes bad headaches,but the worse is my memory. Loose tract of what I say, can't find the words to say what I want,can't remember one day to the next, can't remember conversation's I had. I can't remember period!!!!! The worst is driving,and I can't remember where I'm at, or where I'm going,scared me half to death!! Dr says normal for my age. I feel like I have Alzheimer's!!!! If I can get past being stupid in the memory department, yes Savella has helped me to get out of bed, pain wise. I can do more without the pain, but if I overdo I pay dearly the next day. F 59 2 years
50mg twice
12/16/2015
Email
 3  Depression Swollen prostate, frequent urination, sweating, increased pulse and BP. Good for social anxiety and depression in that it is a clean medication, doesn't cause cognitive impairment as the SSRI's do. No noticeable withdrawal upon discontinuation. It was aggravating my prostate badly, so I had to quit. M 54 2 years
100 mg/day 1X day
12/28/2014
Email
 1  Fibro Profound and incapacitating memory loss that occurred gradually over time. Got so bad I could not remember how to run my coffee maker. MD thought I had Lewy bodies but mercifully the MRI was fine. Dangerous medication with memory issues during the drug trials but somehow still got through the FDA. F 61 2 years
6/4/2020
 5  depression F 42 1 years
100 2X day
5/19/2010
 5  m.s Sweating bad M 43 1 years
50 2X day
9/26/2010
 4   Hot Flashes, day and night sweating, end of finger and toes experience cold/white/pain. Thought my hormones were off but I got them checked Do they offer in discounts for their drug coustomers. F 48 1 years
50 1X day
9/24/2011
Email
 3  Fibromyalgia DANGEROUSLY high blood pressure and heart rate. I ended up on BP meds and thyroid meds after starting this medication, and sadly cannot recommend this medication to anyone. Yes, it helped with the fibro symptoms for awhile, but the episode of my BP being 200/120 . . . I could've had a heart attack or stroke. I'd rather be in pain. F 52 1 years
50 mg 2X day
6/29/2014
Email
 3  Fibromyalgia Constipation,sweating,stomach ache,head aches, vivid dreams,increased heart rate. It helps with the pain and tingling and severe fatigue I experieced so I can function yet the side effects are very challenging too. Mostly I'm glad I can function and continue to work. F 46 1 years
100 2X day
9/1/2014
 1  Fibromyalgia After titration period no side effects. Seemed to help with energy a few days then it no longer helped. Dr put me on 100 mg tablets twice a day instead of 50. Still hasn't helped and no pain relief the whole time. Now to come off of it! Had fibro for 30 years. No drug approved for fibro has helped. Only tramadol for pain was great. They no longer want to be humane and give pain meds when needed. F 55 1 years
100 mg 2X day
8/1/2023
 1  Chronic Pain Hot flashes, sweating, terrible urinary problems (felt like I had a constant kidney infection at 100 mg) lessened when dose decreased but still caused irritation and frequent urination. Horrific withdrawal I thought I had found the answer the first couple months and had my life back. My pain was 90% gone. I could deal with the sweating and hot flashes but the urinary problems were too much, I was in the bathroom at work every five minutes. Stopping this drug was the worst nightmare I've ever had, and I've tried lots of meds. Took six months to get off and still don't feel normal and have strange brain zaps sometimes. F 34 1 years
100
2/28/2017
Email
 1  Fibromyalgia After titration period no side effects. Seemed to help with energy a few days then it no longer helped. Dr put me on 100 mg tablets twice a day instead of 50. Still hasn't helped and no pain relief the whole time. Now to come off of it! Had fibro for 30 years. No drug approved for fibro has helped. Only tramadol for pain was great. They no longer want to be humane and give pain meds when needed. F 55 0 years
100 mg 2X day
8/1/2023
 5  Fibromyalgia None that I am aware of except possibly sweating a bit more. Savella is my miracle drug. Before Savella I had tried EVERYTHING from gabapentin (very minimal relief,) to Lyrica (make me feel like I was on illegal drugs,) and Cymbalta (1 pill, made me feel so crazy I called a friend to "babysit" me and my kids until my husband got home) and everything in between. Savella enables me to live a much more active and "normal" life, I am no longer a slave to FMS or to painkllers. Sadly at 130.00 a month I cannot afford it without insurance and after 9 months of taking half a dose to stretch it out (since insurance went away) I am weaning off it. The weaning is bad and my FMS symptoms are through the roof...I even took a full pill tonight just so I can be mobile to bake my sons birthday cake and not be so foggy headed tomorrow. I am hoping a low-cost clinic will help me...soon, because I cannot live like this. Honestly Savella gave me my life back and now finances preventing me from getting Savella are taking my life away again :( One warning is to check drug interactions CAREFULLY, I can't even take cold medicine and I was taking tramadol (Ultram) at first and ended up with seratonin syndrome and nearly passed out at my kids' birthday party in 2009. Luckily I made the connection, went to drugs dot com for the interaction checker and realized what was wrong and called my doctor right away. My poor doctor felt horrible, but the drug was so new (on the marker a few months) when I began taking it that there was very little in F 32 27 months
50 mg 2X day
8/18/2011
Email
  

SAVELLA  (MILNACIPRAN HYDROCHLORIDE):  Milnacipran is used to treat pain caused by a condition called fibromyalgia that affects the muscles, tendons, ligaments, and supporting tissues. This medication is a serotonin-norepinephrine reuptake inhibitor (SNRI) that works by helping to restore the balance of certain natural substances in the brain (neurotransmitters).   FDA Approval Date: 2009-01-14 (Sources: U.S. Centers for Medicare Services, FDA)

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