Drug Ratings for SAVELLA

Average Rating: 3.2 (125 Ratings)

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    New! Reviews Summary for SAVELLA  | Top 10 Adverse Effects (reported to FDA)

RATING  REASONSIDE EFFECTS FOR SAVELLACOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
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 1  Fibromyalgia Nausea, vomiting, severe stomach pain, diarrhea, gas, bloating, headaches, anger, irritable, no appetite, weight loss This medication is awful. I started on the sample pack from the doctor's office. My symptoms began the day I took the 50 mg dose. Severe vomiting and diarrhea. My doctor told me to wean off the drug. I took my last dose of 12.5 mg yesterday. I will NEVER take this medicine again. I would rather suffer daily flares then swallow a Savella pill. Dangerous drug! F 43 2 months
25 mg 1X D
4/16/2014
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 4  cronic pain Constipation for 1st 3 weeks seems to be better this week. I feel a little bit on edge as far as my temper but not much different than when I was enduring all the pain with onlt tramidal for pain. I do feel as if it has helped with the pain. The pain is still there but seems to be much less intense. Would continue on this medication except my insurance company is telling me I need to try something cheaper & this drug is not in their plan. My Dr. is going to talk to her drug rep. & see if they can help in some way. Would like to stay on this med at least untill I retire next year. I have a very physical job in a warehouse & I seem to function better with this medication. F 56 4 weeks
50 mg 2X D
12/2/2013
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 5  Fibromyalgia No side effects at this point. I've been on the highest recommended dose (100mg twice per day) for about 2 months. Prior to that, I started with the tiration pack, and took that for 2 weeks. Then, my dr. increased my dosage slowly, to 50 mg. twice per day. I took that dosage for about a month, and I didn't notice any decrease in my pain. My dr. explained that it usually takes about 2 months (on the highest dose that will work for you) to start feeling relief in pain. I tried to be patient. Now, after being on a total of 200 mg. per day, my fibro. pain has greatly diminished. I still have pain, but it's gone from a level 10 (horrible, horrible pain...can't function) to a level of 2 (still have numbing, aching pain, but I can live with it). My pain was where it was greatly effecting my quality of life, and I literally didn't want or feel like doing much of anything. I was on Lyrica for about five months, and Lyrica worked at first, but after four months, it completely stopped working for me. Savella has been a lifesaver for me. For those of you who cannot afford the Savella, please go to the Savella manufacturers website and go to the Patient Assistance area. You can get Savella for free, if your income qualifies. Please don't go without it, if it is helping you. F 54 2 months
100 mg 2X D
8/25/2013
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 1  Fibro & CFS Severe memory loss, 3 times I was driving down the road and had no clue where I was, who I was or where I was going. And I had my 6 kids in the van with me. Very Scary! I still have memory problems today. Other problem, tingly scalp, nausea, cramping, hot flashes, increased heart rate and blood pressure. I had really bad mood swings, went off on my children for no reason. I felt jittery, had my 1 and only ever panic attack on this medicine. Helped with my pain a bunch. Normal pain level a 12 on a 1-10 scale. While on meds I would say a 3-4. I felt like I had energy again, but. The side effects were WAY too BAD! F 34 2 months
50 mg 2X D
7/27/2013
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 2  Fibromyalgia Headaches, nausea, heart pounding, crying spells, agitation, insomnia, sweating. Unfortunately, these side effects were severe enough that I had to stop taking this medication. It was effective for joint pain and stiffness, but the side effects were just too much. F 46 2 months
50mg x 2
7/2/2013

 1  Fibromyalgia I had the worst case of constant sweating & at night soaking my Bed. The only reason I took Savella was because it is an approved Fibromyalgia Drug. - I am already taking Lyrica, which took a while to find the right dose, so that I no longer wake up in the morning and my hands and feet do not work (As though I have severe Arthritis in my extremities). I started feeling well on the 1st dosage of 50mg 2xday, but kept going higher until I was at 200mg 2xday, which gave me no more relief and caused weird side effects, so I stopped taking it, only to find out that I really needed it. I now take 100 mg 2 x day and it works great with no side effects. - 3rd drug is Cymbalta, of which I am in need of to stop Depression and some pain. - Summary; Savella may work for some, but the side effects outweighed the Pro's for me taking this drug (of which I feel more than likely works for many others). I however, take Lyrica & Cymbalta to function & continue working. I have found through my very rare Family Doctor who specializes in Fibromyalgia (Dr Janet Ciarkowski) the exact comination of medication that works for me. M 46 2 weeks
20? 2X D
3/24/2013
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 5  FMS, CFLIDS Began with clinical trials, so I have been on this medication a bit longer than those who started after FDA approval. It has changed my.tolerance of FM symptoms Significantły. If you are oink this medication and your insurance will not cover it, or no ins. Coverage at all contact Forest Pharmaceuticals in St. Louis, MO and talk with them about you're positive experiences with Savella and request their Patient Assistance Program. Some paperwork, easy, straight forward. Once approved the work I 90 Day increments and mail the meds to you prescribing doc where you will pick it up. A short tel call after that all required to continue, ard a new written Rx from the doctor. Please use the PAPS the pharmacy companies have just for this purpose. Please do not just stop taking something that is doing wonders for you. F 46 5 years
50 2X D
12/21/2012
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 5  Chronic disabling pain Constipation, insomnia F 44 1 months
25mgs 2x
11/27/2012

 2   My doctor had me work up to a full dose of this medication, but I couldn't last that long. While the first few days were fine, as I increased the dosage it became so painful that even the pressure of my hands on my thighs would be too much. All I could do was lay in bed and cry. I felt weaker and more tired than usual when I took this medication. I haven't found side effects like this anywhere else, so it is possible that this is just a strange side effect isolated to me. F 26 7 days
30MG 1X D
11/23/2012
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 1  Fibromyalgia Panic, personality change, forgetfulness, burst of anger, literally craziness, racing heart I was put on this to help with my numbness and tingling. It was a horrible mistake. I have been on medicines throughout my life and never felt the way I did. I forgot where I was driving (with kids in the car), blew up on my son who did nothing wrong, cried and was sick. It was horrible. My heart was racing, I was clammy and just couldn't function. I almost went to the er. It is most likely my inability to handle too much serotonin, or whichever it is, but yikes! F 28 6 days
30 1X D
11/19/2012
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 1  Chronic migraines Sweat like a stuck pig, head felt like it was on fire. Dreams were awesome though. Had to quit after 7 days. M 50 7 days
5 2X D
8/23/2012

 5  fibromalgia None F 49 2 years
100 MG
7/18/2012
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 5  Fibromyalgia and + ANA Insomnia and felt like I couldn't lie still but that went away after about 3 weeks. I've been having problems since 14 so the insomnia was nothing new since I haven't slept thru a night in years because of my nawing joint pain and discomfort. I feel great after being in this for almost 3 months. I still have my days but that's a lot better than everyday being miserable. F 24 3 months
50mg 2xD
7/13/2012

 5  Fibromyalgia some dizziness and slight weight loss in the first month, but have maintained a constant weight since. I've been extremely happy with Savella. I was first on cymbalta, which was ok, so I thought, then my Dr switched me to Savella, huge pain relief! I had a brief experience after about a year of taking it where my Dr switched me back to cymbalta, and the pain was unbearable! Within weeks of switching again to savella I was again pain free (minus the occasional flare-up). I've been on it a little over 3 years and am now able to again play tennis, volleyball, etc. and live my life without the pain and exhaustion :) F 29 3 years
50mg 2X D
7/13/2012

 1  Back Pain Heart Pounding,High Blood Pressure,Extreme Nausea,Vomiting,Stomache Pain, Irritable, Hot Flashes, Sweating Worst Medicine Ive Ever Taken!!!!! F 18 1 days
50MG 2X D
7/12/2012
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 5  Fibro Fortunately NONE Having my first flare up since starting Savella. I'm scared to increase the dose because it may not work. Going back to the doctor tomorrow for help, none of the opioids worked this was the only drug that gave me any relief. F 48 4 months
50 mg 2X D
6/12/2012

 5  Chronic joint and muscle pain I started with 15 mg a day for a week and they 15 2X a day for a week 25 and 15 a day for a week. 25 and 25...25 50...50 and 50 a day. My dr had me start very slow because of the side effects and it helped. I would get nausea about 90 minutes to 2 hours after I took the pill and my heart raced and I could not sleep at all. I also noticed I was short of breath and if I did anything that took effort (mowing the yard) I could not catch my breath. It would take about 4 to 5 days for my body to get use to it and then it was time to does up again. I also lost about 5 pounds and my body felt flushed. After two months of the pill the my side effects are gone except the shortness of breath and I donít require as much sleep as I did before. I do notice if I donít eat at regular intervals I get nausea but if I eat it goes away. It took my pain away!!!!! I have been dealing with pain since I was a teenager and the last few years it has taken away my life. This medicine has been amazing even with the crapy side effects. It was scary as hell that first month with my heart racing and being short of breath ( I even went to the hospital one night because of chest pains) but it was worth it. What is one month of hell compared to a life that is pain free. I have more energy, I am happy, I am motivated to live again. I fixed my garage door after I replaced a leaky faucet all on the same day!!! I feel amazing. I am hoping with time the short of breath goes away. But even still, I am very satisfied F 32 2 months
50 2X D
5/29/2012
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 3  Fibromyalgia Savella made me sick, as if I were pregnant. I didn't correctly wean off of cymbalta, so I was overdosing to begin with. However, once on savella alone I did notice that my limbs werent as numb and also that I didn't seem as fatigued. The pain was worse though, and my vision became messed up again F 28 3 weeks
50
5/21/2012
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 1  Bipolar/chronic pain Wow so taking this medicine was one of the weirdest experiences I've ever had. At first I was incredibly nauseous and felt like I had to burp or I'd throw up. Then I got incredibly irritated. I just wanted to bitch to everyone about how I felt cause honest I felt sick at first. Not to mention my body was so hot. Then I felt so wide awake and couldn't stop laughing uncontrollably. Literally, I couldn't stop laughing and nothing was funny. I had to actually try not to laugh. During this time I had so much energy I was debating doing a workout video. lol Finally the laughing wore off but was still wide awake. I dont know what the hell my doctor was thinking putting me on this medicine. Its stupid. I was supposed to take this medicine twice a day. Basically if I did I'd be a nutcase that couldn't function. This was terrible for me and did not react will to my mental disease. Made me incredibly manic so I couldn't sleep. Finally I surrendered and had to take my saphris. Seriously what a weird night. F 23 1 days
50 2X D
5/17/2012
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 5  CFS I'm the 62 year old male who recently posted about Savella. It did wonders for my cfs but adversely affected my heart. To update: The cfs problems returned within 2 days of ending Savella. Now I'm on Norco 5mg, twice a day, one in morning and one in the afternoon. It does a good job of knocking out the pain and fatigue. I know people go nuts when you mention using an opiate because of the addiction potential. They need to back down. I intend to stay on the Norco as long as my m.d. allows. M 62 6 weeks
50mg 2X D
5/11/2012
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 5  CFS Savella did wonders for my CFS. It knocked out 90% of my fatigue problems. But I had to get off it. It substantially increased my heart rate. The blood pressure went up, too. My cardiologist wanted me off it. I'm on a pacemaker so I have a danger of other heart problems so there's no need to aggravate my heart. I'm hoping against hope that the CFS doesn't return. Savella is a good drug for CFS. I, unfortunately, had a side effect that wasn't tolerable. M 62 6 weeks
50mg 2X D
5/9/2012
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 2  fibromyalgia When I started Savella, I had hot sweats, nausea, vomitting, a great deal of anxiety and worst of all an increase in blood pressure. I went up to 100mg because I was not seeing any benefits, but the side effects were much too severe. I had to be started on a second blood pressure medication to even be able to tolerate a 50mg dose. Due to the bad side effects, I decreased again to 25mg. That had much less side effects except for my blood pressure. It seemed OK for a while but my blood pressure became very unstable and my doctor took me off of Savella due to the high risk of stroke or death from high blood pressure. I think savella wants to blame peoples blood pressure reactions on SSRI antidepresants being taken with it, but I think the Savella itself is a high risk drug for high blood pressure without them. It did help, but is not worth the risk of death. I wonder how many people it has killed or caused a stroke in. I predict it will eventually be taken off the market. F 48 8 months
25mg 2X D
5/1/2012

 3  Tension Type Headaches Extremely lethargic, irritation on small things, major side effect was my inability to pass urine properly. Severe lower abdomen pain, with back pressure. I've had TTH for 5 years now, I switched from clonazepam (Klonopin) to Savella as a trial drug. The medication definitely was working on the receptors and I was feeling much better. I had less frequent headaches, no unilateral dispersion of pain on the right side of the head. Although the side effects of the pain in the groin and lower abdomen compelled me to stop taking this medication. If women are not having the same problem, this might be a better drug for them. After 1 week of taking the medication, I returned to my normal routine, and I experienced severe pain in my legs, pain in my chest, shortness of breath, dry nostrils, I wanted to go to the rest room, but then I could not pass any urine, which made my body go cold. M 27 1 weeks
50 2X D
4/24/2012
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 2  fibromyalgia Increased anxiety, high blood pressure, severe flushing, nausea. F 33 4 months
100 mg
4/21/2012

 5  Chronic severe pain None. It relieved the constant unrelenting pain in my hands I had been experiencing for 6 years during the 1st wk of titration. Now pain in shoulders is bearable. F 52 3 months
100mg 2x/d
3/17/2012
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 3  Fibromyalgia I experience the hot flashes and sweating. I sweat anyway but it's increased a good bit. I felt completely stoned with my first dose. I just increased this morning to the 25mg twice per day so still waiting to see what happens. My head itches/tingles after every dose. I still sleep ok. No nausea yet. So far, so good. Nothing to report yet on how it helps pain. F 32 5 days
25 mg 2X D
3/16/2012
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 3  Fibromyalgia - Severe Aches Extreme nausea, vomitting Switched to Savella from Lyrica due to over 50# weight gain in just 6 mos. & other adverse side effects. Nausea was mild w/ titration pack, but once regular dosage started, it got worse each day, ultimately resulting in vomitting about an hr. after each dose. Before the vomitting, I started to feel some relief from the deep, unrelenting aching & pain from the Fibro. Was so disappointed to have to discontinue it. 38 1.5 months
50 MG 2X D
3/12/2012
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 1  Fibromyalgia I became extremely agitated, irritable,and suffered with a severe headache with my blood pressure up on the second day of taking to 170/130 with my heart rate at 120's. I felt like my head was going to explode. I went to the ER immediately and was diagnosed with Seritonin Syndrome, which is life threatening. I was told by the ER doctor to never take this drug again and that she has seen this syndrome with serval other patients recently. This drug is new and not widely researched. When combined with other types of SSRIs it can cause serious, sometime irreversable effects. There needs to be more studies on this drug. MD's need to have more information regarding interactions of this drug with other drugs one may be taking. IF ANYONE is on this drug, please monitor your blood pressure and heart rate especially with any dose changes. F 40 2 days
12.5mg 1X D
2/4/2012
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 4  fibromyalgia increased BP and heart rate loss of appetite tingly scalp Starting on titration pack helped me to adjust to Savella. Taking 50 mg twice a day works well; anymore than this causes hypertension, and less just doesn't maintain the pain and fatigue well. F 50 18 months
50 mg 2X D
1/1/2012

 5  fibromyalgia The first several weeks were tough with nausea and strange craving. For weeks I could only eat goldfish crackers. But after about 8 weeks that disappeared. Now the only real side effect is weight loss,but I'm not complaining about that. F 35 4 months
50 mg x 2
12/27/2011

 2  Depression Initial startup was pretty hard. Lots of anxiety, muscle tension, etc. and at every dose increase. Now I'm at 100mg. and for depression I would say it hasn't really done anything either way. I'm going to give it a full 5-6 weeks though and report back. F 47 24 days
50mg. 2X D
11/21/2011
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 5  Fibro/Chronic Fatigue Side effects were mild nausea in first few weeks which has now gone. Worst was the strong heart beats or palpitations at night time. I have reduced dosage to 25mg 2 times daily and they have almost completely gone away. I love this medicine!!! I feel better now that I have in past 8 years. More energy, less brain fog, more endurance, less pain and stiffness. I am waking up at 7am and actually staying awake without having to take provigil. I actually did yard work and painting yesterday and the day before went on a long walk with my son and the dogs! Wow - never thought I would be able to do that again! This has been a miracle for me and I feel like I will be able to go back to work now and take care of my kids instead of being a lump just surviving!! F 52 4 weeks
50 2X D
11/17/2011
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 4  FM, herniated disk pain, arthritis After 3 months -- 50 mg Savella helped reduce the overall pain threshold dramatically (though it did not get rid of it entirely). I titrated to full dose slower than recommended to avoid side effects. I believe that helped. It has helped considerably -- and allowed me to get back to my life. The side effects (headaches, heart, BP, urination, etc) were significant but most minus heart issues went away in 3-6 weeks (because of the heart issues I was going to stop taking it -- bad and pretty scary - but because of pain relief I didn't want to stop). The heart issue side effects stopped at 2 1/2 months. Most people won't see it through long enough to see the side effects disappear. So glad I did. F 54 3 months
50mg 2X D
10/23/2011

 1  Fibromyalgia Difficulty urinating (very slow), tiredness, out of breath with exertion, increased heart rate, worsening of constipation, hot flashes and severe sweating at times, worsening of pain. I take methadone for pain, which also causes most of the side effects I have listed, but Savella has now worsened them. I have only taken for 8 days, but have seen no lessening of FM pain. In fact, there has been a huge increase in pain to the highest pain level I experience (it constantly feels like it used to feel only after a day of substantial over-exertion). I don't think I'm going to stick out the remainder of the trial period due to the side effects and in reading the notes from other male users, it doesn't seem to help men at all, only some women. M 50 8 days
50 MG 2X D
10/11/2011
Email
 3  fibromyalgia I took Savella titration pack for the full 2 weeks. Insomnia with very little sleep not helped by sleep aides was my worst side effect. .I wouldn't have been able to take this without an anti-nausea pill. Sweating only lasted the first week Some relief from the Fibromyalgia pain and it helped with anxiety. I tried to stick it out because I had hope for it after reading other reviews. Imagine my surprise when the pain management doctor seemed very upset when I didn't stop this drug after the side effects did not subside after "3 or 4 days"...so he stopped it on my 2 week follow up visit. F 56 14 days
titration 2X D
9/28/2011
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 4   Hot Flashes, day and night sweating, end of finger and toes experience cold/white/pain. Thought my hormones were off but I got them checked Do they offer in discounts for their drug coustomers. F 48 1 years
50 1X D
9/24/2011
Email
 1  Fibromyalgia Doc switched me from Cymbalta and Lyrica to Savella. It is awful. I have been on this med just 5 days. I have brain zaps, dizziness, jerky, twitchy movements, nightmares, awful insomnia despite taking 2 Ambien, intense sweating, night sweats/chills, cold feet and hands. My ears are ringing, head thumping, headaches and I am having cognitive issues including forgetting words, slurring and repeating myself. I feel like a zombie! Caution!!!! F 50 5 days
2X D
9/17/2011

 3  fibromyalgia major weightloss, nausea, vomitting, supresses appetite, wears off quickly. anyone know something similiar that will decrease pain and not cause so much weight loss? In six months i have lost 12 pounds. Is this normal? I'm thinking maybe the dosage is too high, but can't see cutting dose, lots of pain still exists on high dose. I have regular tests every six months, no other significant reason of weight loss. Heavier sweating than usual. F 31 6 months
50mg 2X D
8/20/2011
Email
 5  Fibromyalgia None that I am aware of except possibly sweating a bit more. Savella is my miracle drug. Before Savella I had tried EVERYTHING from gabapentin (very minimal relief,) to Lyrica (make me feel like I was on illegal drugs,) and Cymbalta (1 pill, made me feel so crazy I called a friend to "babysit" me and my kids until my husband got home) and everything in between. Savella enables me to live a much more active and "normal" life, I am no longer a slave to FMS or to painkllers. Sadly at 130.00 a month I cannot afford it without insurance and after 9 months of taking half a dose to stretch it out (since insurance went away) I am weaning off it. The weaning is bad and my FMS symptoms are through the roof...I even took a full pill tonight just so I can be mobile to bake my sons birthday cake and not be so foggy headed tomorrow. I am hoping a low-cost clinic will help me...soon, because I cannot live like this. Honestly Savella gave me my life back and now finances preventing me from getting Savella are taking my life away again :( One warning is to check drug interactions CAREFULLY, I can't even take cold medicine and I was taking tramadol (Ultram) at first and ended up with seratonin syndrome and nearly passed out at my kids' birthday party in 2009. Luckily I made the connection, went to drugs dot com for the interaction checker and realized what was wrong and called my doctor right away. My poor doctor felt horrible, but the drug was so new (on the marker a few months) when I began taking it that there was very little in F 32 27 months
50 mg 2X D
8/18/2011
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 5  Fibromyalgia Sweating but it is subsiding. After just one day, I slept like I never slept before! My side hip pain stopped & more energy. I could turn in bed without waking up but I slept through the night. I just sweat but that is OK. 50% less pain and pain is a 3 and not an 8! Was on Cymbolta but didn't work and side effects. Was on Doxepin and 10 lbs. heavier. At 50 mg. I have some nausea but I just started the dosing pack and doctor said to continue till I get used to medication. Worth a try. Have had fibromyalgia for 23 years and this is the only thing that helps the pain! F 54 11 days
50 2X D
7/11/2011
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 3   none yet, but are still just on the 12.5 twice a day not so sure about it, also take methadone so am really concerned about combining the two medicines F 58 8 days
2X D
7/2/2011

 4  Fibromyalgia Slight nausea the first week of taking the titration pack with the increase in dosage from 12.5 to 25 to 50. The morning pill makes me tired after taking it. Savella decreases all of my fibromyalgia symptoms. It does not make it completely go away, but I have tremendous relive from it. My "bad days" or "flare ups" still occur, but I am still able to work and function during the day while taking savella. It has really decreased my pain, headaches, body fatigue, and sleep disturbances. F 19 4 weeks
50 2X D
6/13/2011
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 4  fibromyalgia I started med as precribed up to 50mg twice a day,(tried to go up further but could not). I had nausea for the first 3 months. Cut back to 25mg twice a day. Had relief for constant aching and pain from scale of 15(yes my pain was bad) to maybe a 2. Side effects included insomia, constipation, skipped beats to the point of having it evaluated, and high blood pressure which didn't response to medication much, occasional zings in my head. Decreased dose to 12.5 twice a day and had some improvement in side effects and still had relief of pain. I always called it a wicked drug due to the side effects. After a year and 3 months I slowly weaned myself off of it and have kept my pain at a tolerable level which I can take excedrin or ASA. B/P has gone to 117/69, heart rate to 80 and no longer have irregular heartbeats.Would never go back on due to side effects. F 63 548 days
12.5 2X D
6/12/2011
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 5  Fibro,MFPS,Raynauds,RPS,CI,& more Some vivid dreams, but many side effects people think they have from Savella can many times be traced to other things. I could say I had hot flashes, but I was 52-53 at that time. That's called menopause. Many sides effects I could have attributed to the Savella were in reality caused by other things. I went off all my meds(oxycontin, etc.) in 2008 to go on the study for Savella. Unfortunately I got the placebo. I literally almost died. My BP shot up to 210/120 for 8 months. I was totally bedridden the whole time. I went on Lyrica and gained 50 lbs. in 5 weeks, plus it did nothing for the pain. Then my kidneys shut down. Finally by June of 2009 Savella went on the market. I could feel a difference in 1-2 weeks. I went on the highest dose fairly quick because my pain is so severe and causing other health problems. Just remember it is not a pain pill. It will not get rid of ALL the pain. It will not work for everyone. Nothing man does will get rid of this illness. You will have to listen to your body to help manage your pain and other symptoms. And most of all, if you have fibro, as I have for 25 yrs., realize that everything you do will have a consequence to your health. Fight the urge to be overly focused on the pain. I have been on just about every drug and holistic pill there is. Savella hasn't gotten rid of all my pain, but it has worked the best for me. You HAVE to give it more that 1 day or week to see a difference. F 55 2 years
100 mg 2X D
5/31/2011
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 5  fibro sever sweating, constipation, HBP The first week taking this medication was not easy. The second was better. When I started taking the full dosage of 50mg 2xday, it was the worst. I stuck it out because I hoped this med would benefit me. I am so glad I did. I sweat terrible for 4 hours after my morning dose but am not bothered by it after taking my evening dose. I am on BP meds and had to have them increased. Constipation is tolerable, it has to come out eventually! I have noticed that I have nausea if I miss my stomach meds. But the one thing that I am happy to tell you is that I cannot remember when i felt this good, probably at least 15 years. I still have pain in the morning but it is nothing like before. I can put up with the side effects because it helps me to live a normal life. Before Savella, I didn't want to live if I had to be in constant pain. It works for me. If you are dealing with the side effects and don't know if it is worth it, stick it out longer if you are not in life-threatening danger, you may be glad you did. F 43 3 days
50 2X D
5/16/2011
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 2  Fibromyalgia dizziness, loss of apatite, mood swings, itchy scalp, sweaty, hot flashes. F 23 3 weeks
50 mg 2X D
5/2/2011
Email
 1  Fibromyalgia - PAIN My heart rate started going up. Then pressure in my chest and neck with palpitations. Also, it made me nauseous every time. This was on low dose and got worse as the dosage went up. Also sweating at night, mostly just before awakening. Light headed & out of breath at times. First of all, I've had Fibromyalgia for 20 years. I'm in horrid pain. I also have Complex Regional Pain Syndrome from falling (Fibro imbalance) down the last stair and spraining my ankle badly, damaging the nerve. Then there's my Chronic Fatigue, Migraines, Cluster Headaches. They took Darvocet off the market. I used Gabapentin for my Fibro and it works pretty darned good and no side effect. But I get a lot of severe pain. I use Soma mostly for my muscle spasms. I try to keep my meds down to as low as I can tollerate without being too on edge of pain. I have gastritis so taking pills is no fun. Yes, I know how to take these pills properly. I went from getting obese from Fibro to now being skinny. I'm having difficulty keeping weight on at times. Like right now. I'm off the Savella because my heart pumping madly drove me nuts and felt awful not to mention light headedness and out of breath, as mentioned. Since it did nothing positive and did do somethings negative, I went off of it slowly. I can take none of the other pain medications out there and am really ticked off that I can not have my Darvocet. I am now on the Gerson Diet. It is extremely difficult. The positive thing here is, no Migraines and no Cluster headaches. Yea! God helps us all! F 55 30 days
1X D
4/2/2011
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 2  Fibromyalgia anxiety, depression, insomnia, excessive sweating Had no effect on my joint/muscle pain caused by Fibromyalgia, so I stopped after 8 weeks. Just another SNRI that supposedly cure all ailments (depresion! anxiety! panic attacks! pain! fibromyalgia! OCD!.....doctors have no idea what the f&*$ they're prescribing, or how these drugs work. It's reprehensible. F 27 8 weeks
100 mg 2X D
3/24/2011
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 3  Nerve pain in my leg itchy scalp, insommnia, enlarged prostate, weight loss, frequent night time urination with interrupted flow. I took Lyrica for over a year and my physician recommended I try Savella because I wasn't getting much relief for the pain. I haven't seen any change in pain with Savella either but I'm getting side effects that I never had with Lyrica. M 59 2 months
50mg. 2X D
3/23/2011

 5  Fibromyalgia no side effects I have diabetes and conditions related to Diabetes, Sjogrens, acid reflux, year round seasonal allergies and Fibromyalgia. I take meds for all conditions. I started at 12.5 mg 2 times a day 7/14/10, increased to 25 mg 2 times a day on 8/25/10 and increased to full dose 50mg 2 times a day Nov 1, 2010. I wnated to introduce the drug slowly to make sure there would not be any extreme med interactions. The fibro pain has been reduced 65%. I feel better than I can remember in a very long time. F 55 4 months
50 mg 2X D
3/11/2011
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 1  fibro Took one dose of 12.5 mg and had the most horrendous headache, nausea, and depressive symptoms. Do not recommend! F 33 1 days
12.5 1X D
2/25/2011

 4  Fibromyalgia dry scalp, sometimes itchy didn't have this as a chronic problem until started taking medicine (switching shampoos helps); initially face flushed easily, not so much now. Heartbeat weird at times; vivid dreams sometimes. Nausea, but taking it after food helps; probiotics help too. I found this medicine to help. The fatigue lifted fairly quickly after I started and the numbness/pain went away. I was less angry/irritable after taking the medicine. Now if I overdo it or get sick, some symptoms come back. I have a lower than normal white blood cell count, but that is not due to the medicine. I struggled with being sick during the fall and winter and found my fibro symptoms coming back. I received acupuncture treatments weekly for a month while on Savella and my fibro symptoms went away without having to up my dose. I think Savella works but it can not work alone. Need to eat healthier - Acupuncturist said Omega-3 foods help for fibro, and have a more regular bedtime and excercise. If I do not do this, Savella doesn't work so well. But Savella did greatly reduce my numbness/pain and my fatigue and my irritability/moodiness. But in order for me not to up my dose, I had to start taking care of myself - limiting activities, doing low-impact excercise, eating healthier, and doing acupuncture. F 32 7 months
50mg 2X D
2/18/2011

 2  Fibromyalgia ringing in ears, constipation, depression-uncontrolled (depression was moderately controlled prior to taking Savella) Savella has not worked for me. It did at first, but after my body got "used" to it, the dosage had to be raised for effect (x2)and the same thing happened...worked for about 2 weeks, then stopped working. F 57 6 months
50 mg 2X D
2/18/2011

 1  fybro swollen prostate,inability to empty bladder.pain in groin would like to hear back from other people who have same effect's,would like to hear what medical pro's recomend. Am stopping dose . M 47 4 days
50mg 2X D
2/15/2011
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 1  back pain, fatigue excessive sweating, hot flashes, racing heart rate, extremely high blood pressure still having back pain and fatigue M 41 21 days
25 2X D
1/29/2011

 5  Fibromyalgia Fast heart rate, pounding heart, foot cramps It has been like a miracle drug for me. I can now function with little to no pain. Wish the side effects were less, but I will deal with that. F 50 4 months
50 2X D
1/27/2011

 3  chronic daily headache Hot flashes, flushing, heart palpitations, difficulty sleeping, weepy feeling, brain zaps seemed to help my head pain at first, side effects not as bad as other meds I've tried for headache (tricyclics, AEDs). worth a try IMO for those who have "tried everything". F 42 8 weeks
25 mg 2X D
1/26/2011

 2  Nerve pain Chest pain, Shortness of breath just walking to toilet and back, HBP, pulse rate to 109 (resting), Palpitations, constipation, foggy memory, sweating/ hot flashes, sore muscles, irritable/mood swings, It did seem like it maybe was going to help with the pain in leg and bottom of feet. Too bad I was really hoping for some relief M 55 12 days
25 2X D
1/25/2011

 5  FM 1 per day (12.5 mg)NO SIDE EFFECTS and really controlling my pain and depression. Savella is a GREAT medication AT A LOW DOSAGE. I am newly diagnose with FM (I have been treating ďarthritis painĒ for years) but progress to very painful "Hit by a Bus" type of pain about 4 months ago. Lyrica 75 mg stopped pain but left me feeling high and started retaining water weight. I tried Lyrica 25 or 30 mg but it did nothing for my pain. Then the doctor tried me Savella trial pack 12.5 mg Ė no problems, but Savellaís next white pill, I think itís 25 mg, I started getting heart palpitations and chest pain, hot flashes and increased my blood pressure. My doctor suggested I I use only the 12.5 mg (the lowest dosage) 1 per day. It took a few days for me to start feeling better but Iíve been on 1 per day (12.5 mg) for over 3 weeks now with NO SIDE EFFECTS and it is really controlling my pain and depression. Savella is a GREAT medication AT A LOW DOSAGE. The prescription is very expensive even with insurance so my dr. wrote my prescription for 2 pills per day, but I only need it once per day. So a prescription (60 pills) last me for 2 months which is a great help. Savella works great for me at a lower dosage. Donít give up, I know I almost did, keep trying meds at low dosages to control pain and avoid side effects. Iím feeling much better now, so I will try to start walking/exercising again. God bless everyone. F 45 3 weeks
12.5 1X D
1/10/2011

 1  Fibromyalgia drowsiness, severe hot flashes. I feel like I'm on fire inside. My muscles hurt so bad it wakes me up in the middle of the night. I can't get comfortable. Joint pain has worsened. Don't know if it's from the Savella. Just overal weak and tired all of the time. F 35 15 days
50 mg 2X D
12/19/2010
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