BONIVA Reviews (IBANDRONATE SODIUM)

Average Rating: 1.3 (1602 Ratings)

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 BISPHOSPHONATES

 Type: Rx Drug

  

BONIVA  (IBANDRONATE SODIUM):  Ibandronate is used to prevent and treat certain types of bone loss (osteoporosis). Osteoporosis causes bones to become thinner and break more easily. Your chance of developing osteoporosis increases after menopause, as you age, or if you take corticosteroid medications (such as prednisone) for long periods. This medication works by slowing bone loss to help maintain strong bones and reduce the risk of broken bones (fractures). Ibandronate belongs to a class of medications called bisphosphonates.   FDA Approval Date: 2005-03-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR BONIVACOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 1  Osteoporosis I am sick again today. I have been sick with severe flu like symptoms for eight months since I first took Boniva in January 2006. Second and last dose was in February and symptoms reappear every month since February, on or about the same day of the month like clockwork. Severe muscle ache, bone and joint aches like horrible arthritis, fever, sore throat, headache. Lasts for 4 or so days then I feel ok, but never my usual self. I'm afraid I am going to feel this way forever. I have been hospitalized twice and every test run to find out what is wrong, but all negative. The doctor won't even consider it's the Boniva. Horrible drug. Why doesn't anyone in the medical community look into this. I wonder if there is there an antidote? F 56 2 months
8/29/2006
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 1  Osteoporosis My wife (who is 58), took Boniva on the morning of 8-28-06... that evening she began to experience bone pain in her back and sternum. It worsened to excruciating pain during the night and morning hours and after a call to her doctor at 4:00 AM, he advised her to immediately go to the ER. I brought her to the ER a few minutes later. It tore me up to see her in so much pain. The ER doctor had to go look up the side effects, and came back and said that the symptoms that she had, were indeed side effects of Boniva. He recommended Ibuprophen and Tylenol, and also to call her doctor later that morning, which she did. Her doctor disagreed with the ER doctor and said that Boniva does not cause those side effects. He told her that it was a viral infection, and to continue with the Ibuprophen and Tylenol and to have a follow-up visit with him the following day. She went to see him as scheduled, and she again described the symptoms to him... he said that he was going to check into some more research. He came back a few minutes later, and said that he would have to, "eat his words"... he had checked the latest research with Harvard Medical and found that 14 percent of women have the same symptoms that she described. He apologized to her that he had put her through that. He said that he would not ask her to go on Fosamax or Actonal because it was in M 1 days
8/31/2006
 1  osteoperosis Severe neck/shoulder pain for 6 days that made me cry. Had to go to UC could not stand the pain anymore. Told to take 3ibuprofen every 3-4 hrs plus Vicodin at night to sleep. Had to have ice on neck constantly and even missed work. Also previous to this episode had severe back, collar bone and muscle pain. I am a healthy person and could not understand what was happening until I linked it to this terrible med. My MD said to quit taking Boniva. Hope this nightmare ends. I will find a natural alternative and never blindly take these terrible things again. F 61 9 days
8/31/2006
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 1   ..... He said that he would not ask her to go on Fosamax or Actonal because it was in the same class of drug. He said that he was going to try to find an alternative that would be more "natural or organic". He also mentioned another drug called Fortical which is in the form of a nasal spray, and he was going to do some extensive research with Harvard Medical before asking any of his patients to go on that. M 1 days
8/31/2006
 1  Osteo Severe cramps in legs, feet & stomach, fever & chills, nausea (with dry heaves)and diahrrea. within 8 hours of taking the the second monthly dose my mother experienced these extreme symptoms which lasted all night and tapered off slowly the next day. She was weak for another day. She will not be taking Boniva again. F 80 2 months
9/2/2006
 1  Osteoporosis Bloating, vision problems and "red eyes", gum sensitivity, metallic taste in mouth, muscle aches, hip pain, fatigue...just don't fell well! I started wtih Actenol first and had flu symptoms so doctor prescribed Boniva. I started in Jan.2006, and a few weeks later had a nagging cough that would not clear up! I eventually went on an inhaler and that cleared. But, not for the last few months I have had bloating, vision problems, hip pain, water doesn't even taste good! sore muscles and fatigue. I'm going to the doctor 9/7/06 to get off! Any suggestions on a good alternative or foods to help with osteoporosis?..looking for a natural way to strenghthen my bones. F 52 8 months
9/4/2006
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 1  osteosporosis Within a few days of taking my first and only Boniva, I experienced muscle aches and pains like a bad flu.. they are not painful.. just achey.. but nothing really makes it go away. I was very active and exercised often.. One pill taken in June 2006 has changed my life and three months later.. I am hoping that it hasn't changed forever. My lower legs always ache.. although less than in the beginning.. symptoms will disappear and then reoccur.. more on than off.. Very depressing.. Each day I struggle to be my happy self. F 60 1 months
9/6/2006
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 1  Dexa dxd osteoporotic Femoral neck Severe pains in the Sternum, upper thoracic vertebrae (right across the sternum), scapula and nearby ribs from the next day after taking the once monthly Boniva tablet. It hurts even to breath or bend, or turning etc. Never had any such pain in my life. This in not cardiac pain. It is the bone pain. Although, I never took any non-narcotic pain meds before, I had to take them to function. But they did not help much. Today is the 4th day after taking the first Boniva and there is no sign of pain going away. Do not know how long this last! Obviously, I am not going to take the Boniva next month when it becomes due for the once a month dose. The Boniva package insert does not say anything about Sternal or other bone pains. However,they combined the pains into musculoskeletal and back pain. But, the table in their package insert shows very minimal difference regarding the pains between the boniva takers and placebo. Furthermore, according to their literature, only about 2% increase (betterment) in femoral-neck bone mineral density (BMD) after 2 years (24 months) use of Boniva compared to placebo.That % is so small!!!! Perhaps one can get a much better percentage increase in BMD by taking the daily Calcium,Vit D +/-estrogen (for females) without going through this hell of a sternal & upper back etc., pains. I am not going to take Boniva and I do not recommend it to others for the reasons stated above. M 1 months
9/7/2006
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 1  osteopenia This is my 3rd month and each month on the 2nd day I feel like a truck hit me in the area of my upper back and shoulders. I have unbearable pain in my left arm and shoulder that does not feel better no matter what I take for pain. I cannot even sleep on my left side or lift my arm up. I will not be taking this medication again. I thought that maybe after a few months the side effects would go away. They DO NOT! F 50 3 months
9/7/2006
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 1  Osteopenia I could barely function. My whole body ached and I felt horrible! Not to mention my stomach cramps. And I only took it once!! Is this medicine worth it? For me NO. I am pursuing alternative methods of treating and healing myself and I know it will be worth it. F 46
9/7/2006
 1  osteoporosis, loss of bone mass Pain and weakness in right hip and outer thigh bone, bloating, constipation, extreme fatigue, weakness and joint-popping in both knees. Pounding heart beat and insomnia. Also slightly elevated blood pressure, probably because of the pain and loss of sleep. None of these symptoms prior. I am normally very healthy - work fulltime outside the home. My doctor prescribed it as an alternative to Actonel, which caused severe flu-like symptoms and neck and head pain. Frankly I felt fine before I started either pill. Just took my second once-monthly tablet two days ago -- symptoms worsened this month. starting by the evening of the day I took the pill that morning. Evidently both Boniva and Actonel work the same way -- the worst of all the symptoms in me is in the joint pain. F 68 2 months
9/7/2006
 1  osteopenia/post-hysterectomy menop. Numerous adverse side-effects: the worst has been excruciating lower back pain which literally immobilizes me particularly when I get out of bed in the AM. Other bone/joint pains,too.One month I had debilitating flu-like symptoms for 4 days and 2 other months I've felt as if I have a cold for 2-3 days; frequent mild/moderate headaches; bloated feeling and distended stomach area; eye redness w/light sensitivity; waking upseveral times at night. With some skepticism after reading "official" boniva information, I nevertheless pressed on with enthusiasm as my doctor told me it was a must after having had a total hysterectomy to eradicate uterine cancer. He was already treating me for osteopenia and said this would bring on sudden menopause and certain rapid increase of bone loss. After the 2nd month, I spoke to his nurse who consulted with him. She informed me that my symptoms were minimal and many of his patients were on Boniva with little or no problems. I was encouraged to continue. I did, but not with blind faith. I have more carefully tracked symptoms and physical reactions that I have never had or in the case of headaches, seldom have. The continuing excruciating back pain is the (physical) catalyst along with more information I have learned since I began taking it on 5/2/06. This includes the personal account of a lifelong friend (also on Boniva) who recently was rejected by her dentist for a root canal becaus F 51 4 months
9/9/2006
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 1  Osteopenia and ob/gyn I had upper respiratory symptoms constantly and was told I had sudden lowered immunity and that it was viral infections. Also told I had sinus infections. Bloodtest showed abnormal liver results. I was told that all of my symptoms were due to viruses. I took 2 monthly tablets (oral) and have not felt well since. Interestingly, I am getting notices from the pharmacy as to why I'm not taking my monthly Boniva, and when I asked them, they said that they ha an agreement with Roche and Glaxo Smith Kline to send the monthly letters. I can't seem to find out how long this stuff stays in your system. I too have insomnia, and I had never conected all of my sudden "weird" symptoms to this, although I did stop taking it, because I felt so awful. Do not take it. It is promoted by the drug manufacturers to make billions. I will try alternative medicine, take calcium, in moderation, and exercise more. Thank you for this site. F 63 60 days
9/9/2006
 1  osteoporosis I experienced severe chest pains which spread throughout my body by the end of the day after I took my initial dose. I also was feverish, fatigued and had chills. The day aftr taking my first dose I woke up with severe chest pains - like I had been hit hard. The pain worsened and spread throughout my entire body. I could hardly move (thankfully still had a few vicotin left over from a car accident a few months earlier). By mid-day I was running a fever and could do nothing by lay down. The symptoms were better the next day, but it was 3 days before I could return to work. Although by the end of the week most of the pain was gone, I still felt weak and tired. The fear that the symptons would kick in again and be permanent will keep me from taking this drug again. F 54 1 months
9/10/2006
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 1  bone loss Acid reflux, fever, aching joints in the legs and wrists. I have taken Boniva for 3 months and each time I have had severe heartburn. I also ran a fever several hours after taking the first pill. Only recently did the bone pain begin. I have since stopped taking Boniva and am still enduring the pain in my bones and joints. I would STRONGLY advise anyone looking for an osteoporosis medication to choose something with a much lower dose - even if it is once a week. F 61 3 months
9/12/2006
 1  Osteoporosis Since my last posting and my last once-a-month pill (July 5, 2006) I am experiencing a heaviness in my jaws, muscle tingling and fatigue in my hands and arms. The spasms in my feet have very much decreased. The gastric problems have been greatly helped by these products: Rhizinate, Mastica, and PhytoZyme. Whereas I had to sleep propped up by 2 pillows, now it's just a little camp pillow under my own. I'm concerned about how my muscles and jaw feel. Perna Plus seems to help. Look these products up. They are natural and have helped. Read The Myth of Osteoporosis by Gillian Sanson. I further agree with the person(s)who believe that we are experiencing an ALLERGIC reaction to bisphosphonates. I tried benadryl one night on an impulse and it seemed to relieve some of these side effects, supporting my suspicion that I'm allergic to the toxic boniva. F 55 10 months
9/15/2006
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 1  yes After taking Boniva for 2 months, I woke up and was unable to walk. My left ankle has swollen and is red. I went to the Orthopedic doctor and was told my ankle is filled with fluid. He X-rayed my ankle and there is no boken bones. I did'nt realize at first it could be related to Boniva. I am now in a cast up to my knee and am in excruciating pain. My ankle and toes are red and swollen. I am going back today 9-19-2006 and am going to tell the Ortho about Boniva. I am not taking it again and only hope this problem goes away. I am going to stop taking Boniva. F 68 2 months
9/18/2006
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 1  prescribed for bone loss Feeling faint, fever, extreme sharp pain in feet, ankles and hands. Stomach pain (not cramping) and all through my back. Like I was having labor back pains! Could hardly walk. Major flu symptoms. Considered ER. Called Dr. He told me to not take it again. I knew that! But since this is a time released med. what am I supposed to do until it is out of my system? I can't drive, walk much because I am so weak. Does anyone have any suggestions as to what to do to gain my strength back? F 59 1 days
9/26/2006
 1  doc recommended pain in hips down side of legs,severe muscle spasms in shoulders and neck, deep bone pain at base of neck, high blood pressure, increased heart rate,unrelenting "hunger" pains,numbness on the right side of my head, fatigue, increased incidences of migraines. This drug is a poison! Symptoms came on rather slowly and were well masked. Then bam! All at once. Pain in the base of my neck would bring me to tears. I will never take this drug again. I have received GREAT benefit from Rolfing (a particular type of body work that work on the muscles and tissue), and from my chiropractor. I had pain shooting down my legs every time I would stand or get out of the car. After one session of having the back of my legs rolfed, I have NO pain. Went to the gym the next day, was able to resume weights, stretches,use the eliptical...unbelievable, really. I strongly recommend anyone that has used, or is currently using Boniva to seek out a GOOD Rolfer (and chiropractor)to help with the side effects. Good chance that they will recognize the symptoms even before you do. I live in San Diego area, if anyone needs a referral. Otherwise, ask your chiropractor or physical therapist. I have also tried Fosomax and Actonel with bad results. Poisons, all of them! F 49 12 months
9/29/2006
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 1  bone loss Started taking Boniva in Feb./ankles were stiff and painful. 2nd pill in March/breast rash, one breast swollen, and fever. Discontinued Boniva. April/both breast are swollen. Doctor thought I had breast infection even though after one month of anitiboctics, continued swelling & itch like nothing I have ever experience before. After June, the itch is gone but one of my nipples are swollen and the other is wrinkle. Has anyone had these side effects from Boniva? If you had any side effects, please post on this website. F 69 2 times
9/29/2006

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