BONIVA Reviews (IBANDRONATE SODIUM)

Average Rating: 1.3 (1602 Ratings)

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 BISPHOSPHONATES

 Type: Rx Drug

  

BONIVA  (IBANDRONATE SODIUM):  Ibandronate is used to prevent and treat certain types of bone loss (osteoporosis). Osteoporosis causes bones to become thinner and break more easily. Your chance of developing osteoporosis increases after menopause, as you age, or if you take corticosteroid medications (such as prednisone) for long periods. This medication works by slowing bone loss to help maintain strong bones and reduce the risk of broken bones (fractures). Ibandronate belongs to a class of medications called bisphosphonates.   FDA Approval Date: 2005-03-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR BONIVACOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 2  osteoporosis Difficulty swallowing, jaw 'clicking' when I sing or talk, horrible joint pain the first 3 dosages but that did go away after the fourth month, recent heartburn when I never had any before, weight gain. Will be calling my doctor tomorrow after reading the emails on this site! I will not take another pill, especially with the extremely annoying jaw clicking I just developed a few days ago. I will manage the osteoporosis with diet, extra calcium, and exercise. F 49 10 months
7/23/2006
 2  Osteoporosis I'm taking the once a month dosage and this is my first dosage. It's only been 3 days, but I've experienced flu-like symptoms; chills and chest pains as if I had done pushups all day: I couldn't even roll over in bed on the second night. It's better today, but my shoulders ache; the left shoulder worse than the right. I have pain in one of my fingers... very unusual. I hope I dont' get any more symptons. I will discontinue use of this product. I would rather take the risk of fracturing a bone than these painful and extremely unwelcome symptoms. F 62 3 days
7/24/2006
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 1  severe osteoporosis Just started once-a-month pill a week ago. Running a low-grade fever,flu-like symptoms, ache/hurt all over, energy lever is O. Called my doctor and he tells me these are not side effects of the drug. All I know is I didn't feel this way before I will not be taking another pill. F 60 7 days
7/25/2006
 2  Osteoporosis Within an hour of taking my first dose of Boniva, I had horrible stomach pains. I spent my morning alternating between lying on my bed in a fetal position and vomiting. I was aware that it would make me nauseous, but it was much more drastic than Fosamax (which I quit taking because I didn't like being "sick" once a week). I also have some aches and pains that most commenters are describing, but I think it has more to do with all the yardwork I've been doing. Two days after taking it, I developed a sore throat. I'm curious if anyone else has darker urine. This started two days after taking my first dose, and I stay fairly hydrated, eat well, etc. But the color of my urine is somewhat shocking. F 41 3 days
7/26/2006
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 1  Osteopenia Chest pain, shortness of breath, heartburn. I am so glad I found this website. I thought I was crazy, but after reading other responses, I am definitely going off the drug. Actually went to emergency thinking I was having a heart attack. chest pain, shortness of breath and tingling in my hands. My heart is in great shape. Has anyone else experienced shortness of breath? Going to the General doctor on Friday and my gastro-intestinal next week to make sure its nothing else, but in thinking about this, it all started when I took Boniva. Started feeling better last month about 3 days before the next pill. About 3 days after taking it, the symptoms were back F 56 3 months
7/26/2006
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 1  osteoporosis Horrible pain in all my joints, especially, knees ankles, lower back, knuckles. My Mom is in her 90's and is in better shape than me thanks to Boniva!! F 53 1 days
7/26/2006
 1  moderate osteoporosis Chest pain started that night, felt very "flu-like", and then weird joints (pinky finger, one toe) were excruciating! Thank everyone for contributing to these ratings! This pill now frightens me, and will not pass my lips again. F 54 3 days
7/27/2006
 1  bone scan showed thinning of hip Sever pain in legs, hips and back. I could hardly walk or roll over in bed. Cramps in fingers. Cough after first and second dose and the pain started after the third dose. I will discontinue use. Glad to read these reviews and I hope the pain stops after a few days. F 72 3 months
7/30/2006
 1  Osteopenia One day after starting Boniva I have had overwhelming fatigue,light headeness, flucuation in blood pressure, numbness and pain on left side of face and ear, tooth pain, wierd taste in mouth, thirst and dry mouth. All of which have lasted 3 1/2 weeks. What can I do to get this one Boniva out of my system? There is no phone number or email address on the Boniva package insert. Who can advise or answer questions? F 64 24 days
8/1/2006
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 1  to prevent bone loss My mom took 2 pills one month apart and experienced terrible side effects including migrating joint pain. The pain worked it's way up to the mouth and tongue where she is experiencing difficulty talking and swallowing. December she was dancing, by May she needed a walker and now she is bed ridden. It is hard believe that these pills can cause such severe side effects in a select handful of people but the effect on my mother has been nothing short of devestating. The doctors thought she had Myathenies Gravis as she exhibited similar symptoms to MG but the tests came back negative. Her problems all started when she took the Boniva in Jan. Coincidence? I dont think so. We need an antidote for this poison. F 80 2 months
8/7/2006
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 1  Osteoporasis Completely damaged my vocal cords within 20 minutes - I followed the directions carefully. I am not 2 1/2 months with hardly any voice and I have no volume in my voice at all. I am afraid I will have this horribly raspy voice the rest of my life - it is a good thing I was not an opera star - anybody suing, sign me up! F 58 1 days
8/8/2006
 1  Osteopenia Severe constant pain in lower back, hips and thighs unrelieved by any pain medicine, chiropractic adjustment or massage. Gastric distress, stomach upset and diarrhea or loose stools. Ache all over, particularly in joints and muscles of arms and legs. Difficulty turning, rising, lifting. No strength. Mild cough. Extreme bouts of reflux and heartburn. Overwhelming fatigue, weepiness and depression. Some insomnia. Feverishness then followed by chills and back to feverishness. Quality of life substantially impaired by over all SICK feeling. Took three doses of once a month Boniva. Symptoms appeared within two weeks of first pill, but I did not make the connection. Symptoms became more severe after second pill when I began to question my ability to continue my life, which was nothing but unrelenting deep bone and body pain and the other symptoms listed in the left column. Put 2 and 2 together after 3rd pill, now ten days after ingestion. Going to Dr to get this documented and will never take this medication again; it's like a slow acting poison!! I am hoping I will soon rebound, but I fear it's going to be a long month or months......? Seeking physical therapy, but questioning if it will help while still in my system. I am a breast cancer survivor and this horrible pill had me thinking it had reoccurred in my bones! BEWARE! F 47 3 months
8/11/2006
 1  osteopenia After first dose i was fine for a few days, then had chest pain like a deep muscle ache on right side below breast. This moved to the back on that side, then I had an ache all around the chest as if something were squeezing my chest. Then it moved into my shoulders and neck. Difficult to sleep, relieved a little by Hydrocodone. I finally connected all of this with Boniva - nothing else different in my life, no new physical activity. I am suspected to have fibromyalgia, so I'm intrigued to hear others who may have it make a connection. I hope this goes away soon! I wont take any more Boniva. I will try to increase exercise instead. F 67 1 days
8/13/2006
 1  osteoporosis After second dose, severe back pain from spine to ribs on right side and also chest pains; could be hiatal hernia affected by drug; it has lasted now for 4 weeks and I am so down about it. I want to feel normal again and how long does it take for this drug to dissipate. Even Roche(drug manufacturer)had no answers for me. The drug companies are to quick to release their product. greed, greed, this drug is lethal,at least for me and I will not take any drug of this nature again....Any of patient's side effects that roche considers rare should be reported to roche by calling their 1-800-526-6367...They need to know and either recall the drug or consider these side effects the norm. There are too many women who have complaints......Also notify the FDA; not that it will do any good; everything is all so politically connected. F 65 2 months
8/13/2006
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 1  osteoporosis, with reflux and GERD Given one dose through IV port by injection. Told it would bypass gastrointestinal tract where my problem was, and go straight to the bone. Terrific burning and swelling of injection site and from there to shoulder. Hospitalized with IV antibiotics on diagnosis of cellulitis. 3rd day blood culture clear, diagnosis chemical phlebitis. Now 3 weeks later; extreme weakness, reduced swelling, more pain, still icing, using vicodin This form of drug only 6 months on market; should never have been approved. May not recover for months. I appear to be the first to report on the IV form, and this site will not let me list my usage as one IV injection 3 weeks ago F 84 3 weeks
8/16/2006
 1  SEVERE OSTEOPOROSIS NEW AND EXACERBATED BONE,MUSCLES, TENDON PAINS THROUGHOUT MY ENTIRE BODY. ALARMING SPASMS AND JOLTS IN LOW BACK LIKE SPINE IS CRUMBLING.GENTLE PHYS THERAPY,ONCE A GODSEND, NOW MAKES PAIN WORSE WHEREVER I AM TOUCHED WITH KNOTS IN MUSCLES,SHOOTING PAINS AND SPASMS IN AREAS THAT FELT GOOD TO THE TOUCH WHEN APPLIED BEFORE MY BONIVA. DIGESTIVE DISTRESS, BURNING TONGUE AND CHEST, VILE TASTE AWAKEN ME AFTER 1 HOUR PROPPED UP IN BED. ANTIDOTES THAT NORMALLY WORK AS FAT FREE MILK, OR CHAMOMILE,OR A LEAF OF ROMAINE LETTUCE OR EVEN RANTIDINE OR CALCIUM TABS (1 AT A TIME) ALL OF WHICH NORMALLY HELPED ME, NOW MAKE ME FEEL WORSE. GLANDS IN NECK HURT AND HEADACHE, ALL BOTTLED SPRING WATER,EVEN FIJI WATER TASTES METALLIC NOW. A TOXIN IS INVADING MY SYSTEM. IN MID JULY I QUESTIONED IF IT WAS THE BONIVA GIVING MENEW SHARP AND ACHING HIP PAINS. I COULD NOT REACH OR PICK UP ANYTHING OR SIT ON TOILET WITHOUT CRYING PAIN, AND GETTING UP REQUIRES HELP OF TOWEL BAR AND TUB SUPPORT. I AM 134 LBS AND 5'7&quo WHEN RIPE AND DELICIOUS FRESH FRUITS AND VEGGIES MAKE MY DIGESTIVE SYMPTOMS WORSE, SOMETHING IS VERY WRONG! SUDDEN NEW SYMPTOMS HAVE WORSENED AFTER EACH DOSE OF BONIVA. GRATEFUL FOR ANYONE WITH ANTIDOTE TO PLEASE CONTACT ME F 73 3 months
8/17/2006
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 1  OSTEOPOROSIS Horable pain in back & chest, felt like a knife going through me. Couldn't turn over in bed or walk to the bath room with out pain. it was the first & last for me.Never dreamed I could hurt so bad. I'll take my chances with out it. I took the IV F 67 2 days
8/18/2006
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 1  Osteopenia I took my one and only dose of Boniva on 1-15-06, and had a heart attack at 3AM on 1-18. I saw my doctor for a check-up on 1-11, and was feeling great. I had lost 20# and was living a healthy lifestyle. Labwork done on 1-6 was normal. I had pain in my lower jaw and teeth on 1-17. At 3AM I woke with severe pain in my upper back, chest, and left arm. I had indigestion and nausea. My heartbeat was irregular. I went into denial and decided it must be my GB. I took to Ibuprofen and it eased up in an hour, but continued with mild pain. I went to the ER at 4PM on 1-18, since my doctor was off. I was feeling weak, dizzy, and faint. I was told I had had a heart attack. My blood calcium level had dropped from 9.5 on 1-16 to 8.3 (below normal.) The cardiologist found 40-50% blockage on a cath, and said my MI was probably caused by a spasm. I was put on heart meds. Earlier heart testing had showed only MVP. I am feeling OK now, but will have to take meds for the rest of my life. Boniva should be monitored for possiblity of bringing on a heart attack from decreased blood calcium level. F 66 1 days
8/20/2006
 1  mild osteoporosis, early menopause nausea, diarrhea, fever, chills, extreme fatigue, scratchy throat and raspy voice beginning within a few days of first (only) dose. I thought I had the flu, but when it continued for quite some time I looked into this medication and realized other people have had a similar reaction. I had not researched it before taking and will not take another dose. Thanks for providing this database. F 52 1 months
8/27/2006
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 1  Osteopeida / mild Osteoperosis The 6 months I was on Bonvia was an absulute nightmare leaving me with unexplained crippling joint, muscle, bone aches. I felt like I had the flu some days, and other days I could not get out of a chair without help. Dr's puzzled, tested for Lupus, Lyme, etc. and all negative....5 tests over this time and I didn't improve. I emailed Roche and all they said was to take Calcium with vitamin D, which I was already doing. After learning about the dead jaw bone problems, and being scheduled for root canal, I decided to call Roche Customer service, staffed by nurses. I was told to immediately stop taking the Boniva, call my primary and to by all means delay the root canal,and to contact my surgeon. She was vague about how long it remains in your system, mos, yrs? Two mos I'm the Boniva, there is improvement, but still needed Advil for pain. I just saw a Rheumatologist, and I am ALLERGIC to the ibandronate family of drugs. She perscribed Methylprednisolone, and in the first 3 days I lost a Roche needs to be proactive, revise the new Sally Field promotion and mention the pain ful side effects, or allergic reactions so that those taking or thinking of taking will realize what the risks are. On a positive note, my second bone density test showed, still in Osteopeonic condition, with a 10% increase in the spine and 2% in the hips. This reverts back once the drug is out of your system over time I was told by Roche, so one must seek another alternative medication to maintain this improvement. F 64 6 months
8/29/2006
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