BONIVA Reviews (IBANDRONATE SODIUM)

Average Rating: 1.3 (1602 Ratings)

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 BISPHOSPHONATES

 Type: Rx Drug

  

BONIVA  (IBANDRONATE SODIUM):  Ibandronate is used to prevent and treat certain types of bone loss (osteoporosis). Osteoporosis causes bones to become thinner and break more easily. Your chance of developing osteoporosis increases after menopause, as you age, or if you take corticosteroid medications (such as prednisone) for long periods. This medication works by slowing bone loss to help maintain strong bones and reduce the risk of broken bones (fractures). Ibandronate belongs to a class of medications called bisphosphonates.   FDA Approval Date: 2005-03-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR BONIVACOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 3  Osteopenia I hadn't noticed any unfavorable side effects thus far and was pleased. The past month, however, I've had an upset stomach and bloated feeling, sort chest/back muscles, what feels like a pulled groin muscle or tendon, stiff neck, dizziness (and blacking out briefly when standing after bending over), and severe gastro reflux symptoms. I do have GERD and am on medicine for it but it has been under control. Now it is back even with the medicine and I feel like I have an elephant sitting on my chest and have swallowed a tennis ball that is lodged at the base of my throat. My muscles ache and I am very stiff in the mornings and after sitting. I don't know if any of this is really from Boniva. I've taken it for over two years and would think any adverse reactions would have happened before this. Could it take this long to cause reactions? Is it just the normal changes that have to be expected with aging? It didn't even dawn on me to associate my problems with Boniva at first. I have a doctor appointment coming up and am going to discuss it. I think it's worth stopping it to see if I feel better as all this is miserable and gets me down. How long would that take? I found this site and am amazed at how much other's symptoms sound like mine. I took Actonel weekly for a year or so before this and liked Boniva for the convenience. They did stop my ostopenia progress and my bone density even improved a little. It's a dilema. F 60 2 years
7/11/2007
 1  Osteoporosis I'm writing this for my mother who is 86 years old and was on her third dose of Boniva. A few minutes after taking Boniva she felt extremely hot all over and broke into a sweat. Felt extremely weak, could not see, was disoriented. Fell on the floor and had violent bouts of vomiting. I found her on the floor, got her to sit up against the wall and when the vomiting spasms abated I got her onto a chair. She could not walk and had strong pains in her left hip. I called her Dr. and was told that Boniva could not be the cause of it and that she should be taken to ER. At the ER they put her on IV, did EKG, X-Rays of chest and of left hip and blood tests, they did not show anything abnormal. Her heart rate was very irregular so they administered Diltiazem. This steadied the heart rate and afer a few hours she was released with recommendation to see her primary care phisician and get a cardiac ultrasound. The ER doctor called the doctor who prescribed Boniva and was told that Boniva co I also called the Boniva manufacturer and was told that they had never heard of such reaction. I suspected that they were not telling me the truth. So, I got online and I came across this site. After reading the horror stories I'm convince that Roche Laboratories is not telling all they know about the possible side effects of their drug. I'm going to take a print out of these stories to my mother's doctor and send one to the ER doctor. F 86 3 days
7/12/2007
 1  osteoporosis withing 24 hrs. upper back pain, chest pain, by 36 hrs. aching all over, flu symtoms, fever, 48 hrs. later, some better, fever is gone, still hurting in arms, hands, & neck, numbness of lips, right jaw hurts Will not take again. I must find a better way to build bone mass. F 52 1 times
7/13/2007
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 1  osteoporosis prevention flu like symptoms the first few days and then severe joint and muscle pain all over my body. Have experienced severe joint pain and swelling in my hands, knees and feet. It is very difficult to get up out of a chair or a car. I stopped the pill after two months. It was evident to me that this drug was causing my symptoms. It is difficult to sleep at night because I cannot get comfortable. Every muscle and joint in my body aches. I feel miserable. I have stopped taking the drug and am waiting to see how long it will take for the symptoms to go away. Does anybody know how long this medicine stays in your system? F 55 2 days
7/15/2007
 4  osteopenia I took it for 18 months (150 mg once a month)and had improvement in my last bone density test after 9 months. However, during this second year, I noticed pain in my cocyx and right hip and recently my acid reflux, which has been under control with prilosec, started acting up. Fortunately I came to this website and read the other comments and thought what a fool I'd been. No more Boniva for me. I only wish I could get it out of my system immediately before it creates anymore problems. Thanks folks for sharing your comments. I realize my bones may suffer but at least I feel like I'm in control of my body and my bones! F 57 18 months
7/16/2007
 2  osteopenia Well, I tried both Actinol and Fosimax and within the first hour, I thought I was having a heart attack (severe chest pain,) with both. This was my 3rd month for Boniva and for the first 2 1/2 weeks after taking it, I had the severe bone pain other people have described here. I felt like I was 100 years old--horrible. I am a generally VERY healthy and active person, but I can't describe it any other way than to say every bone in my body hurt--especially hips and legs. About 1-1/2 weeks ago I began feeling better and began exercising again--I am supposed to take it again tomorrow, but my doctor says to go off of it. I certainly don't want osteoporosis, but I couldn't live like that for 2 weeks out of the month. I take no other medication except calcium, so I know it was not a drug interaction. I can't really find much clinical data on these kind of side effects, but it certainly seems to be something other folks are reporting on this forum. I wish there was more data out there about the bone pain and potential long term effects. F 51 90 days
7/16/2007
 1  osteoporosis Took it May, 2007That night I started to get a Headache, Next Day, I WAS DESPERATELY SICK. NAUSEA,DIARREA, THROWING UP, I ACHED SO BAD< IT WAS WORST THAN THE FLU!!!SO, MY DR. SAID , TRY IT ONCE MORE....I Was Very WARY ABOUT TAKING IT>>> But I TOOK IT AGAIN IN JULY 2007. OH MY GOD< I ABSOLUTELY THOUGHT I WAS GOING TO DIE...ACTUALLY AFTER 5 Days SUFFERING < COULD NOT EAT< COULD NOT SLEEP> BACK & FORTH TO THE BATHROOM> DIZZINESS >>>>>I DID ASK GOD TO PLEASE TAKE ME!!!!DO NOT TAKE THIS POISON!!!! NOTIFY THE FDA ABOUT THIS MEDICATION!!!!!! F 66 2 months
7/16/2007
 1  OSTEOPOROSIS its been 4mths since last dose. the severe pain in hips, back,shoulders and arm has finally become almost mild compared to the 1st 2 months. still taking advil, pain meds, etc. no strength has come back to by arms yet. i do see light at end of tunnel. i want this stuff out of me for good. my life has been one severe pain and misery since 1st dose in nov.06. thats eight months stolen from me. F 50 8 months
7/16/2007
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 1  osteopenia After taking Boniva 150mg in the morning, developed muscle aches and fever with chills that night. Woke up with a fever of 102 and could barely move due to the generalized severe muscle aches and fatigue. Was in bed all day sleeping off & on. Felt better the next day, but have continued to experience pain in various parts of my body - neck, ribs, sternum, back and one finger. My GERD has flared up BIGTIME. Taking Prilosec OTC, Mylanta and TUMS to get rid of the epigastric pain. Called by family physician and OB/GYN who prescribed and they were unaware of any such side effects. Thought it might have been a 24 hour virus that was coincidental. I don't think so because I had no other associated symptoms. I hope these symptoms go away and I don't have any permanent effects. It is scary. I think this drug is unsafe. Of course the pharmacy pamphlets only list very rare severe side effects that I am finding out to be very common. The FDA and Roche need to know how bad this drug is. F 46 1 days
7/17/2007
 1  osteoporosis I took one pill(150mg) and within the first 3 weeks suffered severe redness, hives and itching all over my body. I am taking benadryl to control it and hope that it will gradually go away. I will not take another pill. F 84 1 months
7/18/2007
 1  OSTEOPOROSIS EXCRUCIATING, DEBILITATING HIP, BACK AND LEG PAIN. DIFFICULTY STANDING, TURNING OVER IN BED, GETTING OUT OF THE CHAIR. THE ONLY TIME I WAS FREE OF PAIN WAS LYING FLAT ON MY BACK IN BED FIRST THING IN THE MORNING. COULD NOT WALK ANY DISTANCE TO SPEAK OF. IT TOOK 5 MONTHS TO FINALLY ESCAPE FROM THIS PAIN; STILL NOT BACK TO NORMAL STAMINA. HAD X-RAYS, PHYSICAL THERAPY, CHIROPRACTIC ADJUSTMENTS TO NO AVAIL.PAIN MEDICATION DID NOT PROVIDE RELIEF. REPORTED TO ROCHE AND FDA. F 70 4 months
7/20/2007
 1  osteopina severe muscle,bone pain, swelling, trouble walking, sleeping,etc... I'm writing for my mom who is 79 on this for 5 months. Was healthy with only some slight aches and pains, very active. Now she feels 100 and can hardly walk, and is in terrible pain and horrible fatigue, and raise in her blood pressure (she never had hp before this. Also, bloating and severe swelling of her hands. Pain is all over her body esp. hands. Leg and arm weakness. I'm glad I found this site. I called heer DR. this am because her next dose is tomorrow. he made me think I was nuts, and said not to believe what I read on the internet and he has 10 YEARS experience. I told him to read this site, but he just dismissed me and told me she can stop taking Boniva if she wants. I always believe you should trust your own feelings. Luckily, my own feelings have been nagging me all night to look up Boniva I just thought to look it up since Boniva was all she was taking until all this symptons started now she is on 2 hbp meds and lasix and predisone. They also tried Darvoset. I hop F 79 5 months
7/21/2007
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 1  osteopenia I experienced extreme fatigue, bone and joint pain, fever, and abdominal pain. The second dose was even worse. The symptoms lasted three days each time. I thought I was dying. This stuff is lethal. Do not take it unless you want to die! POISON- should come with a skull and crossbones on label. F 45 2 months
7/22/2007
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 1  osteoporosis Initially pain in hips; could barely walk. then pain in shoulders and chest. Now stiff neck/cannot turn my head at all. Worst experience I have ever had with a drug. I am about 115 pounds. Boniva is just to powerful for my body size. First month had minor aches and pains. Second month it hit me HARD! F 57 6 weeks
7/23/2007
 2  osteoporosis numbness and tingling of toes and feet (limping from the pain when arising in the morning) and numbness and tingling of fingers, hip pain Has anyone else experienced these same side effects? F 65 12 months
7/26/2007
 1  osteopenia I started Boniva about a year and a half ago. At first I was thrilled because I didn't have the side effect I had on fosomax or actenol. But now I have put the puzzle together regarding some of the issues I have started to have. Last year I started getting bloated so I went to my gyn. Nothing. A couple of months ago I noticed my jaw hurt when I chewed a lot. I started getting hearburn throughout the month. (Never had a consistant issue before) Two weeks ago I took my calcum pill and burped afterwards and had the worse burning sensation in my throat you can imagine. The nurse practicen put me on prilosec for two weeks. Still getting heartburna and burping after I eat or drink anything. My throat is sore, especially in the am. And I have trouble swallowing dry food. My fingers were swollen and couldn't figure out why. To top it all off the nurse practicin said the heartburn and calcuim incident wasn't due to the Boniva! After reading this site I am convinced that I have damaged m I was only 45 when I started Boniva, due to ostopenia and while my bone density did improve this year, I intend to get off Boniva to see if my symptoms go away. F 47 18 months
7/27/2007
 1  Density test showed bone thinning. Let's just do the life-threatening side effects: Boniva caused the esophagus to bleed, which led to a plunge in blood pressure, and CHF, congestive heart failure. Poison Alert: This "new" drug should not be taken unless you have researched it and come to your own informed decision, independent of your doctor’s advice. The lovable Sally Field commercials can work on your sub-conscious making you feel you should try Boniva but beware. Boniva (bisphophonate) could be dangerous, even fatal. This healthy woman who practiced a perfect life style, never caught up in the "health care system" suddenly is in a struggle for her life. One half of a Boniva pill in May 07, as a cautious approach, followed by one whole pill in June and the lights went out. If your doctor recommends any of the bisphosphonates class of drugs, Google Actonel, Fosamax or Boniva and read and study before you decide to swallow. These potentially dangerous drugs have a long half-life and accumulate in your body, increasing risk as time passes. Please warn people you love that might be frail, petite, thin-boned, sensitive to chemicals or drugs, or in poor he F 74 2 months
7/29/2007
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 1  osteopenia I'm glad I found this site or I wouldn't have known what was going on. Took it for the first time yesterday and was fine. Today I started getting hip, neck, shoulder, and chest pain—pain in places I'd never experienced pain. Clearly it's the Boniva. After reading some of these comments I regret that it will be in my system for at least a month. Also, as someone else mentioned, it's hard to believe this is a "one-size-fits-all" drug and that there's no consideration given to dosing. Most pills on the market come in different mgs. I only weight 95 lb. and think the monthly dose is probably overkill for me. The side effects given do not adequately account for this bone and muscle pain! F 56 2 days
7/29/2007
 2  osteoporosis I have taken Evista (hot flashes), Fosamax/Actenol (stomach problems and burning), and then Boniva. The first two months I had no problem. The third month I didn't have a problem I thought. But a few days after taking, I had a bout with vertigo, dizziness, pain in my back and hips while sleeping, and just feeling foggy, fatigued, and not well. It never occurred to me it was this drug, but I was looking for answers on the internet and found this site. Thank you! I don't KNOW if this is the problem, but I will definitely not take it again. F 56 3 months
7/30/2007
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 1  osteoporosis Muscle and joint pain after two days. Migraines for past three months when before they were under control. Neck pain and shoulder and arm weakness. Burning in my toes and fingers and horrible fatigue. l never take again ! I had the Boniva by injection May 07. I will never take it again.I contacted the FDA last week. Hope they do more research into this horrible drug. I pray this will be out of my system soon and I can feel better. Made my Scleroderma much worse. F 58 1 days
7/31/2007

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