BONIVA Reviews (IBANDRONATE SODIUM)

Average Rating: 1.3 (1602 Ratings)

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 BISPHOSPHONATES

 Type: Rx Drug

  

BONIVA  (IBANDRONATE SODIUM):  Ibandronate is used to prevent and treat certain types of bone loss (osteoporosis). Osteoporosis causes bones to become thinner and break more easily. Your chance of developing osteoporosis increases after menopause, as you age, or if you take corticosteroid medications (such as prednisone) for long periods. This medication works by slowing bone loss to help maintain strong bones and reduce the risk of broken bones (fractures). Ibandronate belongs to a class of medications called bisphosphonates.   FDA Approval Date: 2005-03-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR BONIVACOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 1  Osteoporosis/Arimidex I developed osteoporosis as one of the side effects of the BC medication Arimiex. This is the 4th month of taking Boniva. Couldn't figure out what was wrong with me - nausea, gastro-intestinal problems, no appetite, low energy, my left arm hurts so badly that I want to cry and now I've developed lower back pain and joint pain in my arms. I will stop taking this medication much to the dismay of my oncologist. Going to an accupuncturist/nutritionist to find out what to do instead. I would not take this medication again, even though the Drs. seem to insist on it for osteo F 60 4 days
2/20/2007
 1  Osteopia 12 hours after first dose, I experienced violent vomiting, sleeplessness,cramps, leg joints, constant nausea,pain in my lower back, stiff joints, overall lethargy. When I eat, I get sick and have to vomit again. Menstrual like cramps in my lower intestine. Loose stools. F 56 2 days
2/22/2007
 1  ostopenia I had taken Fosamax for six months. Each week I experienced a "Fosamax Headache" one day before the next dose was due. These were debilitating headaches, sensitivity to light and sound. Dr. suggested taking next dose one day early, to avoid onset of headache. Huh? so it would be once every six days Fosamax? Switched to Boniva.I would be especially interested in others with headache prior to next dosage Boniva now presents once a month "Boniva Headaches." Perhaps one headache a month is better than one headache a week, but would prefer NO headaches. I have been taking Boniva for three months, and am about to stop. This last dosage was particularly high impact as I forgot the date and after the onset of the headache, noticed that I was one day overdue! I would be especially interested in others with headache prior to next dosage. Next dosage does relieve headache, but I will ride out the next and last headache. NO MORE FOREVER!!!!!!!!!!!!!!!!!!! F 63 3 months
2/25/2007
Email
 1  osteoporosis I posted the first part of February with the information that within 12 hour of taking my first and ONLY once a month Boniva I suffered from severe vomiting, diahrea and muscle spasms. Since then I spent 3 days in the hospital for the most excruiating back & diaphram spasms you can imagine. I also have primary progressive multiple sclerosis (PPMS) - this medication(?) POISON excaberated my MS and my mobility is considerably worse than it was prior. Will I get it back? It's highly doubtful considering the progression of PPMS. Am I going to SUE Roche P*HARM*aceuticals? You bet your bottom dollar! PLEASE PLEASE PLEASE contact a product liability attorney and go after Roche for the harm they have done to each and every one of you. Make them ANSWERABLE for the damage they have done. F 54 1 days
2/28/2007
 1  Osteopenia Bloating, Stomach upset, Knee pain I took 1 Boniva in January and now its February and am having joint pain and stomach pain and cramping. I can't believe I am getting symptoms now. F 52 1 months
2/28/2007
Email
 1  osteopenia Before I started taking Boniva I walked 3-5 miles per day. About 2 weeks after my first dose, I experienced debilitating pain in my right knee and leg. I had 2 MRIs~knee and lumbar spine, a bone scan, 2 venus doplars and EMG to test for nerve damage. In the middle of all of this I tried some PT and it made it hurt more! I was sitting in the doctor's office waiting for yet another test on my leg when I read an ad for Boniva with Sally Fields at the top. It said, Side effect may be severe leg, bone or joint pain (I was experiencing all of them). My doctor agreed that I should stop taking Boniva and see what happened. I took my last of 3 doses on December 18 and I am just starting to think that my leg is a little bit better. I still can't stand or walk for more than a few minutes. I'm a teacher and have missed an enormous number of days and have to spend most of the day sitting (not an easy thing to do for a teacher). I hate this drug and I'm hoping that some day soon it will le F 53 3 months
3/1/2007
 1  mild osteoporosis heart pulputations, chest pain, hurts to breathe, extreme back pain. Feels like I was beaten up. This is the once a month dosage. After 2 days notice side effects. Couldn't figure out at first what was causing my chest and back pain. Then read side effects from pharmacy brochure and I knew it was the Boniva. Never again am I taking this drug. F 43 2 days
3/3/2007
 1  osteoporosis I have previously posted in the past. I felt like I was run over by a train! My GYN Dr. told me yesterday, that Boniva is Not more potent just because it is a once a month pill,My Pharmicist told me it is!She said it is a Big misconception, (ya right)Then she said to me if you break your hip, like others who have, I will probably die!And I will get a Big hump on my back in the near future.I told her I couldn't take the severe pain Boniva caused me.I told her I walk, and take calcium every day, She just looked at me like I was nuts! And said most people tolerate it very well. It didnt matter what I said. Gee, thanks Dr. for your understanding.My Mom had taken Fosamax for many, many years, and has had a broken Femur, Tibia, and a broken hand twice while on this Medicine. I guess it did nothing to prevent the breaks, Maybe it even caused them to happen!! F 53 1 months
3/4/2007
 1  Osteoporosis Fine all day, until evening. My hips started to hurt and by bedtime it hurt to lay on my side and hard to turn over. Severe chills, headache, neck pain, and significant hip pain. I looked like I was 100 years old trying to walk. God did not give me this body to put poison in. Obiviously He was reminding me. I will never take this again. F 48 1 times
3/4/2007
 1  osteoporosis Extreme pain in arms, legs and neck. Difficulty sleeping at night due to the pain. F 73 3 months
3/5/2007
 2  Osteopenia I did not have any side effects the day I took this drug. Today is my second day and I have gas, bloating, cramping, and aching like I have the flu. I am not sure if I will take a second dose. I will see how the month goes. F 60 2 days
3/6/2007
 1  Osteopenia I took Boniva first thing on a Sunday morning, and followed the instructions diligently. I had no immediate side effects, but around 8PM that night, it hit me - stomach cramps, gas, nausea, and diarrhea. I also became extremely tired; chills set in when I went to bed, and lasted several hours. I felt a bit better the next day, but the discomfort returned after each meal. I was also dizzy and fuzzy-headed - couldn't concentrate. I went to work on Monday but felt poorly all day, and went right to bed at 7PM. I stayed home on Tuesday, with an overall feeling of exhaustion and weakness. I called the doctor who had prescribed this drug, and he said he never heard of Boniva causing these problems; he recommended that I see a gastro specialist. I told him to read the Boniva information pamphlet, which states otherwise. Anyway, as of Wednesday, the sypmtoms are mostly gone, thankfully, and I'm back at work. I will not be taking this medication again. I can't afford a repeat of these debilitating symptoms. Diet and exercise will be my primary method of defense against osteoporosis. F 57 4 days
3/7/2007
 4   I have neck pain and shoulder pain but have had shoulder pain before taking this drug. Now the pain is going down my whole right side and sometimes when I turn a certain way it hurts like crazy but I notice the pain most when I try to go to sleep. I have just noticed that the pain really, really gets bad right after I take the pill. I have been on this pill for nearly a year but it just dawned on me that this pill may be causing these pains. I guess because I had neck and shoulder pain before I never thought this pill was doing it to me. The fact that last night I could have just sat here and cried the pain was so bad that I am taking myself off of it. I want to see if the pain goes away so I can judge for myself what is causing it, drugs or do I have something else wrong with me. Ladies, let me tell you one thing for sure, we are the ones that know our bodies better than any one else. I have asked my Dr. if the medicine could be causing this pain and he didn't think so but I w Going off this pill and I am going to judge for myself if not taking it makes any difference in how I feel. F 58 1 years
3/9/2007
 1  osteoporosis Twelve hours after I took Boniva, I developed back and neck pain. For the next 48 hours, I was in extreme pain, hardly able to sit up or stand. I had fever and muscle spasms. My doctor prescribed a muscle relaxer (Skelaxin) and did lab work to check my muscle enzymes and a urinanalysis. She concluded that it was most likely the Boniva. I am now on the 4th day, and I don't feel normal, but I can function. I am reluctant to take any drug in this class (Fosamax or Actinel) so my doctor suggested I try Miacalcin. Anyone tried Miacalcin? F 49 1 days
3/9/2007
 1  begin osteopenia, loss of 3/4 " I have had back pain, lower, and alternating hip pain, couldn't bend , but barely. I get muscle spasms in upper back also with minimal activity. I started it Jan 12th, and today was to be my 3rd dose. I am not going to take it again. I have had to sleep on the couch,away from my spouse, thinking it was my bed causing the problem, and with a heating pad nightly, couldn't exercise, or have sexual activity. The last time sex was tried, I was left with such severe muscle pain/spasms in my hips I was screaming ! Symptoms are slightly better now, as it is the day to take it again, but I am going to try (continue) Calcium, Vitamin D-which I read our need in general may be as high as 3,000 IU, which prevents cancer. Also I am taking Magnesium. I have a book which I write down my mg of calcium intake daily in, foods, etc. I am Lactose intolerant--which is probably the cause , primarily of the ostoepenia. I take a couple meds which cause constipation, and thought I couldn't take Calcium tabs- A friend told me she didn't trust anything that was once a month-wondering what that was doing to the body, now I am thinking the same. I was a nurse-so was more comfortable with the medical establishment than her--not so much now ! F 53 2 months
3/12/2007
 2  osteoporosis Joint pain and aches. I thought it was arthritis beginning until I read these emails. I now believe it is from the Boniva. The balls of my feet actually ache and are tender to touch. Every knuckle in my hands are achy and now my fingers seem to be swelled up. I am not sure if I will continue this medication. I did take Actonel for almost a year and I can't remember having any side effects like this. F 53 5 months
3/13/2007
 1  osteoporosis *** PLEASE CONTACT ME VIA EMAIL WITH A DESCRIPTION OF SYMPTOMS FOLLOWING TAKING BONIVA IF YOU ARE INTERESTED IN A CLASS ACTION LAWSUIT*** PRIVATE INFORMATION WILL BE KEEP STRICTLY CONFIDENTIAL UNLESS YOU YOURSELF GIVE APPROVAL T0 RELEASE IT**** CRITICAL ---- FILE AN INCIDENT REPORT WITH THE FDA !!!! BONIVA - ROCHE PHARMACEUTICALS ***MUST*** BE HELD ACCOUNTABLE. EMAIL: [email protected] F 54 1 days
3/18/2007
 5  osteoporosis None whatsoever! I was shocked to read all of these horrible problems experienced while taking Boniva! I took Fosomax for almost two years and then started taking Boniva. I took it for another nine months and had a bone density test, which indicated that the meds have helped me move from the Osteoporitic ranges of T scores to the Osteopeneic ranges......great results! I have not had the first side effect and feel as though these meds have helped me beat the odds against a disease that has crippled previous generations of my family members. If you are considering taking either Fosomax or Boniva, please try it before making a decision based upon others' experiences. If I had read the entries on this website before I had started on Fosomx and Boniva (and based my judgement solely on them) I would never have taken the meds that may well change the course of my senior years. F 55 9 months
3/19/2007
 1  Osteoporisis Took Boniva Monday for 1st time. By Wednesday afternoon I could barely walk. Extreme right hip pain radiating down my leg. Had to buy a cane so I can at least walk around some. Pain seems to be bearable if I take 800 mg ibuprofen. Had some pain benind right shoulder blade which has disappeared now. At first I thought I had hurt my back from moving furniture around but the pain just kept getting worse. Each night I go to bed hoping that in the morning I will be pain free. So far am still in pain. When will the pain stop? I see my dr. tomorrow and will let him know that I am unhappy about this. He never mentioned this side effect. F 54 7 days
3/19/2007
 1  Diagnosed with Osteopenia Side effects began about 4 days after first monthly pill. Muscle around neck became inflamed. Felt like stiff neck and down my spine - bones and muscles ached. Then a strange sensation and pain began in my arms, elbows, wrists, and hips set in -malaise. Thought I had symptoms of flu or worse - multiple sclerosis. Went to doctor - he dismissed all as symptoms of the flu. These symptoms prevailed. Took second pill the next month and within 3 days my entire body felt arthritic. I became short of breath. Arms, neck, elbows, hips, and backbone were in much pain. Almost fainted twice while teaching. Found this website and realized that my condition was due to the Boniva. Now 7 weeks after the second pill, I still have numbness in my hip, pain moves around, primarily still in elbows, left hip, and neck. This has been a very debilitating and tiring 3 months so far. Though the shortness of breath has subsided, not all of the symptoms are completely gone - 2 pills and 3 months later. Hope F 56 2 months
3/21/2007

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