TRILEPTAL Reviews (OXCARBAZEPINE)Average Rating: 3.1 (368 Ratings)Filter ResultsCompare TRILEPTAL with similar:
Type: Rx Drug
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Results are sorted by Age oldest to youngest. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) |
More on TRILEPTAL: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR TRILEPTAL | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 1 | Facial nerve pain | I felt Ok until day 3 and starting feeling strange. Then I had a blackout and fell and injured my knee and broke my hand. Later that evening I told my husband I was going to lay down as I didn't feel well. He heard a crash and came in the bedroom and found me getting up from blacking out and hitting my face on the edge of the nightstand. I ended up with a badly cut lip that left me with a nasty scar. I ended up in the hospital where they ran all kind of test and discovered I an one of 3% that they know of that has this happened as a result of the med. Maybe it would be more if more doctors reported it. It causes loss of sodium in the blood and I had water on my brain or in my brain forget which they said. No, I would not recommend this to anyone. | 72 | 4 days 3X day | 6/13/2016 | 2 | bipolar | light headed- unmotivated- | F | 68 | 6 months 300mg | 9/30/2014 | 1 | Trigeminal Neuralgia | Nausea, vomiting, sensitivity to light, stomach ache, headache. 4 days after stopping still could not go back to work. Hope it works for you. | F | 68 | 9 days 150 | 11/11/2014 | 1 | Epilepsy | Double vision | I hate it | 68 | 7 years 150 mg | 6/24/2020 | 1 | Possible small seiZures causing TIA | has nearly killed me. Lost 47 lbs in 6 weeks, loss of memory, delirium, extreme brain fog, roller coaster of memory, dillusions, not getting better. Terrible drug. | should not be prescribed. | M | 67 | 2 weeks 150mg | 11/3/2015 | 4 | Bipolar II | Weight gain, lack of coordination, impaired memory, poor depth perception, poor thyroid function, some dizziness | I was on the brand name which worked quite well to keep my moods in check (along with talk therapy, good nutrition, eating & sleeping at precise schedules, no alcohol or drugs, etc.). I enjoy feeling the highs & lows in life so I've kept my doses low. Some years I needed a little extra in the Fall to curb depression and sometimes in the Spring to curb mania (but I never need more than about 600mg total for the day). The side effects were horrible at first but most subsided within a few months and with time/therapy I found ways to cope with the rest. But with Medicare, I had to switch to a generic form, as I could not afford $500+/mo. I became completely unstable, all the side effects got worse and I now have bad anxiety attacks. I am weaning off this drug, adding some lithium and will be trying a new anticonvulsant. | F | 66 | 14 years 225 2X day | 4/19/2016 | 1 | epilepsy | severy itching after the first time perscribed. 4 days latter taken off and given some steroids to help get over the hives and itch | Dr. asked me to try the trileptal again, I did day before yesterday at 9am by Noon I was itching in several places, and by 3pm the hives started showing. The next morning most of the itch and hives were gone, Guess I can'n/won't take that drug again. | M | 66 | 4 days | 3/2/2009 | 4 | seizures | low blood sodium, remedied by increasing dietary salt. Have developed a skin sensitivity and wonder if the Trileptal could be involved. When sitting for more than a few minutes the skin on my back and back of my legs starts burning and stinging. Not terrible pain but very uncomfortable. Anyone? | M | 65 | 4 years | 12/18/2005 | 1 | for sleep and mood stabilizer | Could not sleep at night,,very sleepy throughout the day and couldn't perform at work,headachesstomach ache | Terrible drug,,,I think the dosage was too much | F | 64 | 1 weeks 300mg 2tim | 7/22/2016 | 1 | Bipolar | Anxiety, confused, forgetful, 25 lb. weight gain in 11/2 years, peripheral neuropathy, horrible horrible insomnia, dry mouth 24/7, dry eyes, double vision. | F | 64 | 1 years 300 2X day | 12/20/2020 | 3 | antidepression, because of pain | I believe it has sexual side effects | I thin there could be something out there better, | M | 63 | 6 times | 8/24/2003 | 1 | More than 40 side effects | 18 of more than 40 side effects are due to the reaction Trileptal has with Sodium. The lips begin to chap, heavy levels of Flem buildup in the lungs, throat and sinus track, Oedema Peripheral, balance disorder, speech disorder, Dysphagia, Dyspnoea, Hot Flashes, dry mouth and throat, syncope, Asthenia memory impairment, memory impairment, balance disorder, number and letters are reversed, High sodium levels in the body short circuit the direction of the fingers while typing, even though I a verbally saying the proper letter. Insomnia comes when fluid retention reaches its peak lasting approximately two and a half hours. Fluid retention, the urethra shuts down urine flow to almost nothing and later opens like an uncontrollable flood. Sodium level drops so lower surgery was canceled. Weight increase increases in several days and then decreases 3 to 7 pounds in less than 8 hours dropping sodium level in the body. Trileptal and Naproxen do not work well together, urine turns in t | Bone density continues to be destroyed by Trileptal. Forteo has been used three different times to increase bone density, when stopped bone density declines. Hypothyroidism, RESTLESS LEGS SYNDROME, acid reflux, The nerves begin to tingle on the scalp and begin to spread down into the chest and arms. As the patient, I have been dealing with more than what has been entered, doctors have a difficult time accepting what I am experiencing. They doubt what is being said until they uncover what is taking place. Approximately 12 to 18 months after starting Trileptal I was told I was massively asthmatic. The medications did not work. When seeing a different doctor he did not believe me until one appointment there was no wheezing, no phlegm build-up anywhere to be found. Sodium had been completely dropped from the diet, when I began to use sodium a few weeks later it returned. In the beginning, I was prescribed three 600mg tablets daily. The information I have entered covers some of what I have experienced. I began lowering the Trileptal intake down to just two 300mg pills a day late last year. When I moved to Washington State last November, I began to lower the Trileptal intake and began using RSO - Rick Simpson Oil - Cannabis Oil. The Trileptal was down to just 150mg when I woke up and RSO when I went to bed due to the reaction that took place when taken at the same time. On August 4, only RSO was taken for the Epilepsy and has seizure activity controlled. The major | F | 62 | 20 years 150mg 3X day | 9/5/2020 | 3 | seizures | I experience pain and stiffness in my joints and muscles, a diminished sense of touch, fatigue, and an awkward gait. I used to love to walk and now I find it difficult. I have also gained weight while on this drug. It has worked on the seizures, but at significant personal cost. | I think I'm going to look into changing my medication. This is getting too much to bear. | F | 61 | 3 years | 6/27/2009 | 1 | bipolar | unable to sleep, perhaps mania | drug seemed ok until increased dosage by psychiatrist. | M | 61 | 2 years | 5/27/2005 | 1 | BiPolar II | Headache, blurred vision, SEVERELY WORSENED DEPRESSION, paranoia, fear. This is the worst drug I have ever taken. | M | 61 | 5 days 150 1X day | 8/23/2012 | 4 | Epileptic seizures | I'm still taking this medication. I still experience these side effects: tiredness and poor memory. If I take my dosage too early, I still will get numb lips and double-vision. | I now take the generic version of Trileptal, Oxcarbazepine. I noticed no negative effects switching the generic version. I also now take 1500 mg each day , 750 mg AM and 750 mg PM. | M | 60 | 30 months 750 MG 2X day | 3/21/2024 Patient History | 3 | Bipolar disorder | Hyponatremia, thin bones, osteoporsis, microscopic colitis | Found it to be a great stabilizing drug for many years, last 6 years not so good! Side effects constant. | F | 60 | 12 years 1800mg 3X day | 6/13/2015 | 2 | Bipolar Disorder | Dizziness, significant muscle weakness, loss of coordination, face looks like I have bad acne. Helps with mood swings, but it's screwing everything else up. Have fallen several times. | Didn't realize the muscle weakness is typical for many with this drug, and it's become progressively worse. Am decreasing dosage to 750/day to see how this works. | M | 60 | 18 months 900mg 1X day | 11/6/2016 | 5 | mood stability/PTSD/depression | unclear as to whether this medication is responsible for some, slight hair loss | this med has helped with severe depression and PTSD | F | 59 | 1 years | 5/22/2007 | 2 | occipital neuralgia | Some difficulty concentrating; mild drowsiness, wt gain. Dosage of 150 mg 1x per day. | I really don't know if this drug worked. My symptoms subsided after a few days....probably on their own. The first Neurologist I saw misdiagnosed my condition as Trigeminal neuralgia. More important than any drug, is to find a competent MD that will work with you. I would be very cautious about selecting a foreign born Neurologist in SW Florida....especially the ones who have difficulty communicating in English. | M | 58 | 16 days | 4/21/2007 |
TRILEPTAL (OXCARBAZEPINE): Oxcarbazepine is used alone or with other medications to treat seizure disorders (epilepsy). FDA Approval Date: 2000-01-14 (Sources: U.S. Centers for Medicare Services, FDA)