ZONEGRAN Reviews (ZONISAMIDE)

Average Rating: 2.9 (90 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

ZONEGRAN  (ZONISAMIDE):  Zonisamide is used with other medications to prevent and control seizures (epilepsy). Zonisamide is a sulfonamide anticonvulsant and a carbonic anhydrase inhibitor. It is unknown how zonisamide works to prevent seizures.   FDA Approval Date: 2000-03-27 (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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More on ZONEGRAN: Reviews Summary  |  Drug Safety Information

RATING  REASONSIDE EFFECTS FOR ZONEGRANCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 2  One seizure Lost 35 pounds in less than two months on 100 mg due to no appetite neurologist dropped dose to 50. Gained back all the weight and more. Numbness/tingling in throat, tongue, feet, hands. Double vision (terrible). Other problems not sure related but after reading comments I think so Just in recent days started with weird "sores" or rash on leg and arm doctor can't identify. Sore muscles in chest/arm. Itching all over. I'm afraid I've become allergic to the Zonisamide but I refuse to take any other seizure medication since I only had one three years ago and neurologist has no idea what caused it. I believe it was from my doctor lowering my Synthroid (thyroid med) for no reason from .150 to .112. I'd like to stop taking seizure med altogether but I'm scared TO take it and scared NOT TO for fear I'll have another one. F 63 3 years
50
6/25/2017
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 1  Seizures Just don t stop seizures. Take 500 mg. Don t work F 60 3 years
100mg
6/1/2018
Email
 4  Post traumatic stress disorder None that I am aware of. My psychiatrist prescribes it for PTSD from childhood, along with 2 mg. Ativan at night about 2.5 hrs. before bedtime. The combination of Zonegran/Ativan has worked well for me for insomnia thus far. F 59 2.4 years
3/28/2008
 3  pain from nerve compression lost 6 lbs, loss of appetite, constant feeling of mild nausea, taste of foods have changed, insomnia, word retrieval problems and forgetfulness Has minimized the numbness and pain in my legs from nerve compression in my spine. F 59 3 months
300 1X day
7/16/2017
 5  migraines Sleepiness, sometimes forget words, not sure if that is from medication. F 58 4 years
400 mg
8/6/2013
 2  epilepsy Insomnia; Kidney stones Zonegran is one of the two seizure meds. I take. The insomnia would be debilitating if I couldn't sleep during the day to make up for the sleep loss at night. I know Zonegran is the problem, because my other med causes no side effects, but within an hour of taking the Zonegran, I'm "wired", & toss and turn. Also, causes kidney stones: I never had a kidney stone in my life before I started this med. I've talked to the docs about changing meds or times that I take them, but no go. F 58 5 years
100 mg 4X day
3/8/2010
 2  High CSF pressure Left arm weakness and slight left leg weakness M 57 21 days
9/24/2009
 1  Weight loss, insomnia Have all but lost my sense of smell and taste. At first things tasted or smelled funny. Then I couldn't smell or taste at all. I am tapering down now since I have lost the weight and do sleep at night, I hate to think the sense of smell is lost for good! Prescribed Zonegran when I came off of Elavil. Needed to loose 20-30 lbs and sleep at night. I did loose the weight and have been able to sleep. But have a lot of anxiety and terrible problems with smell and taste. F 56 1 years
300 mg 1X day
6/22/2013
Email
 2  migraines weight loss, never hungry, hardly urinated at all, skin always smelled like urine 100mg every night. It did absolutely nothing for the migraines and I didn't like the side effects I experienced. F 55 1 years
6/12/2009
 3  SEIZURES MEMORY LOSS LOSS OF SMELL AND TASTE F 54 1 years
100mg
11/25/2013
 2  migraine prevention After a satisfactory year on Zonegran which did greatly reduce frequency & severity of my migraines, the medicine caused severe neurological pain, curtailing my range of motion in my arms so much that my husband had to help dress & undress me. I saw an orthopedist as well as a neuro, had an MRI, muscle and nerve testing done at great expense. After tapering off the Zonegran, it took six months but I eventually returned to normal. Having said that, my experience may have been one in a million. If the neuro problems hadn't shown up, I would have stayed on Zonegran for a long time because it was great for my migraines and had the nice side effect of keeping my weight under control. But it hurt a lot and it was scary. F 54 18 months
7/25/2008
 4  seizures drowsiness, weight loss, odd headaches and feelings of confusion It took at least six months to acclimate to this drug; I had a hard time with the side effects while getting to the dose I needed. But now my seizures are under control and side effects are minimal. I find it's important to get a good night's sleep and eat regular meals, to prevent problems with side effects such as headaches. F 52 18 months
400mg 1X day
2/19/2014
 4  Epilepsy Anorexia weight loss of 20 pounds loss of energy . Depression when the dose was increased higher than 400 mg a day. This medication does control the seizures and the depression was directly related to the dose increase. I have intractable seizures so I put up with the side effects but not the depression. Seizures are controlled with this medication Keppra and Banzal F 52 8 weeks
300mg
9/24/2014
Email
 4  Seizures Difficulty sleeping, drowsiness during the day, forgetting words, I like it! It saved me. It allows me to work and function as a normal human being. I was on Keppra and then Trileptal. Those caused more seizures. It was crazy!! M 52 6 months
400
3/24/2015
 4  migraine prevention very sleepy a couple hours after taking, (not a problem since I take it in the evening) present nausea may be related to the drug reduced my number of migraine days from 15 to only 5 per month. I'd have rated it a 5 if I wasn't suspicious that the mild intermittant nausea I've had for awhile now might not be related to the zonegran. But I'd rather have occasional mild nausea than migraines! F 52 8 months
4/14/2006
 1  Mania Depression, rash, sore throat, insomnia I believe more research should be done on this medication before being prescribed for mood disorders. F 52 6 weeks
8/12/2004
 5  Migraines The only side effect I'm having is very vivid dreams. I wish I would have the lack of appetite/weight loss, but never have had that effect from this drug (this is not my first time taking it). Working for my migraines - right now, at least. Better than the Ajovy I was taking before, and the Trokendi before that. F 51 45 days
100mg 1X day
9/4/2022
 5  migraines none Take 100mg every other night, can do this because this med has very long half life. Also makes it very affordable as a generic. Took a full 3 months to work for me but after trying Depakote, Lamictal, Topamax, Elavil with no help and many side effects love this medicine. Have been on it for 4 years and has given me my life back. I still have some symptoms from migraines and migrane syndrone but they are 80% better. My neurologist said making me 50% better would be a success. F 50 4 years
10/8/2008
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 3  epilepsy Agitation, irritation, hostility, impulsiveness, suicidal thoughts, raised Dilatin Zonegran seemed to be good until it built up in my system and I increased it to 5500mg per day. FDA nor the maker provided a warning stating it has negative side effects on patients who have had trauma and/or surgery. Because this information was lacking on the container I had impulsiveness, hostile feelings, agitation, and suicidal thoughts to name a few things. It also resulted in me retiring early from a position I've held over 17 years. Another warning that was missed is that this med can increase Dilantin and I became toxic on Dilantin. Carefully and thoroughly research the med yourself and I would say that it's not best to trust someone totally because he or she has a piece of paper stating that an md was received. "FDA Approved" is another thing that doesn't guarantee this med is safe and all possible impacts are listed/known and that a neurologist is aware of hem. M 50 6 months
400 1X day
7/4/2016
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 2  Trigeminal Neuralgia see things not there. Depression. Sucidal thoughts.Cold spots on legs and feet.Memory problems.Thinning hair.Made kidney problems. I was taking Zonisamide for Trigeeminal Neuralgia. At first i wasnt having any prolems with it at all. But then as we increased the dose it really knocked me for a loop. The neuroligist wanted to raise it to 400, and when i went to 300 it felt like my kidneys were processing glass. I could barely walk it hurt so much. Thats also when i started seeing stuff. Like i'd see spiders crawling across my pillow or bugs that werent there. just small stuff. i thought i was loosing my mind. Im still on a lower dose and the systems have abated but not completely gone away. i go soon for surgery then hopefully can stop taking the meds for this. must remain hopeful. F 50 9 months
100 Mg 1X day
1/19/2012
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ZONEGRAN  (ZONISAMIDE):  Zonisamide is used with other medications to prevent and control seizures (epilepsy). Zonisamide is a sulfonamide anticonvulsant and a carbonic anhydrase inhibitor. It is unknown how zonisamide works to prevent seizures.   FDA Approval Date: 2000-03-27 (Sources: U.S. Centers for Medicare Services, FDA)

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