Drug Ratings for ZONEGRANAverage Rating: 3.0 (78 Ratings)
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Results are sorted by Date Rating Was Added Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 |
Charts & graphs: Reviews Summary for ZONEGRAN | Top 10 Adverse Effects (reported to FDA)
| RATING | REASON | SIDE EFFECTS FOR ZONEGRAN | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
  | F M | | | | |||
| 2 | One seizure | Lost 35 pounds in less than two months on 100 mg due to no appetite neurologist dropped dose to 50. Gained back all the weight and more. Numbness/tingling in throat, tongue, feet, hands. Double vision (terrible). Other problems not sure related but after reading comments I think so | Just in recent days started with weird "sores" or rash on leg and arm doctor can't identify. Sore muscles in chest/arm. Itching all over. I'm afraid I've become allergic to the Zonisamide but I refuse to take any other seizure medication since I only had one three years ago and neurologist has no idea what caused it. I believe it was from my doctor lowering my Synthroid (thyroid med) for no reason from .150 to .112. I'd like to stop taking seizure med altogether but I'm scared TO take it and scared NOT TO for fear I'll have another one. | F | 63 | 3 years 50 | 6/25/2017 | 3 | epilepsy | Agitation, irritation, hostility, impulsiveness, suicidal thoughts, raised Dilatin | Zonegran seemed to be good until it built up in my system and I increased it to 5500mg per day. FDA nor the maker provided a warning stating it has negative side effects on patients who have had trauma and/or surgery. Because this information was lacking on the container I had impulsiveness, hostile feelings, agitation, and suicidal thoughts to name a few things. It also resulted in me retiring early from a position I've held over 17 years. Another warning that was missed is that this med can increase Dilantin and I became toxic on Dilantin. Carefully and thoroughly research the med yourself and I would say that it's not best to trust someone totally because he or she has a piece of paper stating that an md was received. "FDA Approved" is another thing that doesn't guarantee this med is safe and all possible impacts are listed/known and that a neurologist is aware of hem. | M | 50 | 6 months 400 1X D | 7/4/2016 | 4 | Migraine | I get extremely tired, and very low. I lack motivation to do very much. I can be moody when Im tired and I was never like this before this drug. However it has stopped migraines....except during my monthly periods. The migraines are not as severe in this time but I still have one for a few days. I assume Zonegran doesnt help hormones! | I am relieved to have this drug. I was on Topamaz before Zonegran and I find this much better. My migraines are less frequent and I have a much better quality of life. I would like to reduce the dose to test if I can reduce it. | F | 47 | 4 months 100 1X D | 6/5/2016 | 1 | Chronic back pain | Severe Anxiety, Depression(not normally depressed) Suicidal, Panic Attacks(never had before). Muscle tightness | I'd be really careful starting this medication. It made me into someone I wasn't normally and almost committed suicide. Anxiety/Panic went away almost immediately when I stopped taking zonegran. My whole body relaxed when I stopped taking the medication. I tried this medication for chronic back pain from lumbar back fusion and cervical neck degenerative disk disease. | F | 42 | 3 months 100mg | 5/19/2016 | 1 | seizures | Can't taste food it all tastes the same will it come back after time??? ;( feeling emotional but still early days may not be the Zonegran for emotions don't know! | F | 45 | 2 months 200mg | 4/16/2016 | 4 | migraine | insomina and very hyper at first abdominal pain | F | 40 | 30 days 100 1X D | 3/4/2016 | 1 | seizures | Memory loss Stuttering incapable of speech dizziness angry depressed crying stomach aches diarrhea unable to eat no ambition to do anything this is a medication from hell I felt this way 24 hours a day for over2 years and was still having seizures all the doctors did was increase it milligram by milligram now I'm going through the side effects of coming off of it the same thing all over again if they offer you this run like hell find a new doctor they probably own a stock to all of you coming off of it I wish you well God bless | The horrible medication they should take off the market it is almost like an illegal drug that drag you into it put you through hell to go on it and off of it this is the horriblest thing I've ever been on to everyone on it good luck I wish you well god bless you all | F | 1 days 600 | 3/2/2016 | 5 | Epilepsy | increased thirst, chapped lips, peeling skin, drowsiness, short term memory loss, stuttering, jerking of the limbs. | Helped a great deal!!! No more seizures since I started taking it!! | F | 16 | 2 years 100 MG | 1/30/2016 | 5 | Migraines | Tinglingly and numness in hands and face causes an itchy feeling, Periodic loss of appetite or weird cravings, hot flashes/fevers , insomnia/weird dream,and somedays my brain doesn't think quite as well as it did I feel like a dingbat | I was having 4-5 migraines a week I have had two since starting this med finally some relief the migraines I did Have were caused by very stressful days the day prior | F | 21 | 3 months | 1/21/2016 | 4 | Bipolar (mood swings) | Pros: I had a lot of weight loss (about 25 lbs) and it cleared up my skin beautifully. Cons: It absolutely slows down thought process and I've lost a degree of my wit, sadly. My mind is nowhere near as sharp as it was when I wasn't taking this medication and I've also noticed that it makes focusing quite difficult as well. | Aside from the side effects it has done it's job as a mood stabilizer for me. I've taken many different medications for the same reason but this is the only one that's seemed to work for me and have the least undesirable side effects. | F | 27 | 2 years 200mg | 12/16/2015 | 1 | Epilepsy | Slower mental processing; inability to find specific words in context, couldn't keep up in a long conversation with one person, forget my train of thought, reading became harder, an overall understanding what was going on or explain anything was hard. | It helped stop my partial complex seizures but at the cost of slower mental processing. I will be going back to Lamictal. the switch occurred because we did not know that the other medicine I was on was a seizure stimulant so now hopefully I will be right back to where I was before zonegran came into my life and disrupted things. VERY dissatisfied. | F | 21 | 1 years 200 2X D | 9/7/2015 | 4 | Chronic Migraines, Seizure | Dizziness, tiredness, My actual dosage is 100 MG 2 times a day, but I decreased it to just before night time unless my migraines are really bad due to the reaction with my Cymbalta. | I've had chronic migraines (when I say Chronic, I mean I had crippling mind blowing head aches every day of my life since I was 9 years old) finally in 2011 I had a grand mal seizure due to an addiction overdose. I was an addict as well since a teenager. Combination of many things I was taking in great quantities was to much. After that, I was put on Topamax for my seizure (and I told the neurologist about the migraines to) in part the Oding was me trying to take stuff to rid the headaches ruling my life - well how it started years ago. The Topamax was a godsend for a year and half. I mean it took away my headaches, but then they'd come back so they would increase it. Finally a year later it just stopped working, but I requested to change the medication. I hated Topamax - it made my arms, feet, hands numb, my taste changed, and I was so forgetful & had the worst memory. I lived in a brain fog. Zonegran was so much better. It did cause some dizziness, but nothing like Topamax. My memory and overall brain fog went away (tho the adderal come down often causes it now to :/) and everything improved. I do get more headaches than on the Topamax, but I believe it could be due to the Adderall as well. They usually come when I am coming off Adderall. I don't feel like this medication is as effective, but I feel like the side effects are much much less. | F | 27 | 3 years 100 MG 1X D | 8/8/2015 | 1 | Migraines | Weight loss, complete loss of appetite. Eating made me physically ill. Lack of food increased my migraines. Nightmares, anxiety, irritability, no energy, depression. | F | 35 | 2 months 300 mg | 7/15/2015 | 5 | Migraines | slight loss of appetite, improved mood, less tired, less irritable, less headaches, less neck pain | I feel like this drug has been a Godsend for me, my severe episodic migraines and chronic daily headaches were interfering with my life and work to the point that I was fearful I may have to go on disability. I was laying in the bed most all the time so tired and depressed fearful of another attack even when I didn't have a full blown headache. I took Topamax but had to unpleasant side effects. Zonegran and meloxicam have really made a difference for me. | F | 42 | 7 days 100MG 1X D | 5/11/2015 | 5 | Migraines | So far so good. I have a little eye pain which is manageable but none of the crazy side effects I had with Topamax. Topamax caused tingling in feet so bad I couldnt walk, terrible memory recall to the point that it was affecting my job and just plain fuzziness in the brain. I also did not lose weight like a lot of people do so that is not a side effect that everyone experiences. I havent lost any weight with zonegran either but it is a low dose. | I am also interested that a previous poster commented that it was helping her migraines on the right side. I also get all of my headaches on the right side and it appears to be helping so far. Just wondering if there is a coorelation. | F | 41 | 1 weeks 25 | 5/4/2015 | 4 | chroic migraine preventative | Just started this drug. Was taking Propranolol as a migraine preventative for about a year and a half which had stopped working for me and which I believe had caused a deep depression. Was reluctant to start zonisamide/zonegran because i thought it might work like Topamax which was a horrible experience - tingly hands, foggy thinking. So far Zonisamide is working well on keeping the chronic migraine pain on the right side of my head away and I my energy is beginning to come back. I am starting to feel normal again -- I also have a smaller appetite which I am going to take advantage of and really fix my eating habits. I hope this drug will continue to be effective for the chronic migraine pain. So far so good. | F | 46 | 2 weeks 100mg 1X D | 4/26/2015 | 5 | Seizures | I can function on this medication , my hair don't fall out, My speech is not bad , I am not confused.. I was even able to take it while pregnant and my babies are healthy | F | 38 | 5 years 200 mg | 4/24/2015 | 4 | Seizures | Difficulty sleeping, drowsiness during the day, forgetting words, | I like it! It saved me. It allows me to work and function as a normal human being. I was on Keppra and then Trileptal. Those caused more seizures. It was crazy!! | M | 52 | 6 months 400 | 3/24/2015 | 5 | Myoclonic Epilepsy | Extreme weight loss (20+lbs) in a short amount of time, loss of appetite, extreme nausea (particularly in am), irritability. These have gone away now that I have fully adjusted to the medicine. This took me approximately 1 year, but everyone is different. The nausea still shows up once in awhile but is bearable. Now all I notice is trouble recalling words (takes a little longer to find the right word). | THIS DRUG IS NOT FOR EVERYONE! I was diagnosed with epilepsy when I was 8 years old and was extremely lucky to have an excellent neurologist/pharmacist team to help me find the perfect drug for me, which even still took 10 years. I have tried Keppra, which did not control the seizures, I have also tried Depakote, which the side effects were outrageous. This drug takes time to adjust to and find the correct dosage as any other drug, the difference is for me was the nausea. I can only assume it was because of the rapid weight loss that was occurring. I should mention one of the side effects of Depakote for me (the previous drug before zonegran) was weight gain, so I was approximately 40lbs overweight so weight loss was not an issue. *If you do not have extra weight to lose, this is not a good drug for you* It was the rapid drop that made it so difficult. This only lasted for about 3 months for me (until we found the correct dosage). One thing I wish someone had told me is to make sure to eat a healthy snack about 1hr- 2hrs before bed such as fruit. Also carry snacks such as granola bars or nuts. I never wanted to eat, but new if I ate even a few almonds it would make my nausea 10x easier to deal with. My nausea only lasted until I became acclimated with the drug (approximately 6m), my weight loss plateaued shortly after that. I have been the same weight since. I am a little concerned about the delay to recall the correct words. But as this is my only real side effect, for | F | 28 | 10 years 300mg 2x D | 2/18/2015 | 4 | Migraine prevention | Occasional weird dreams, slight fatigue, some memory loss (difficulty recalling words). Overall it has improved the migraines I've had for 17+ years but I make sure I get plenty of rest each day, drink lots of water, eat well and exercise. I do have weird dreams that will bring on unprevented migraines but all in all it has helped. I'd like to eventually come off the drug though cause I'm skeptical of memory loss | F | 34 | 4 years 300mg | 9/27/2014 | 4 | Epilepsy | Anorexia weight loss of 20 pounds loss of energy . Depression when the dose was increased higher than 400 mg a day. This medication does control the seizures and the depression was directly related to the dose increase. I have intractable seizures so I put up with the side effects but not the depression. Seizures are controlled with this medication Keppra and Banzal | F | 52 | 8 weeks 300mg | 9/24/2014 | 1 | Epilepsy | Weight loss, irritability, expressive aphasia, inability to focus or comprehend what others are saying at times, Sleepiness, Loss of appetite, depression | I felt like I was going to just wither away and die if I continued taking this medicine. There was no hope if I continued it...it wasn't helping with my seizures regardless...I have absolutely nothing positive to say about this drug! It did nothing but make me look like a skeleton. | F | 29 | 7 weeks 400 mg 1X D | 8/30/2014 | 5 | Juvenile Myoclonic Epilepsy | Increase in thirst, minor slurring of speech at times, weight loss, decreased appetite, occasional hot flashes. | M | 11 | 1 months 125mg | 4/19/2014 | 5 | Epilepsy | I've been on this for 4 years now with minimal side effects and seizure free. I maintain a VERY healthy diet to keep the fatigue, headaches, and brain fog to a minimum but I also make sure I get plenty of rest as well. The odd thing is, I only just started loosing my appetite and lost 20 lbs. not sure if it's the RX. I also recently went off BC, so it could be a combo. But it's the weirdest thing! I've been on Keppra and Lamictal before and they both affected me poorly in the personality dept, so I'll take what Zonegran throws my way any day! | F | 29 | 4 years 300mg | 4/3/2014 | 4 | seizures | drowsiness, weight loss, odd headaches and feelings of confusion | It took at least six months to acclimate to this drug; I had a hard time with the side effects while getting to the dose I needed. But now my seizures are under control and side effects are minimal. I find it's important to get a good night's sleep and eat regular meals, to prevent problems with side effects such as headaches. | F | 52 | 18 months 400mg 1X D | 2/19/2014 | 3 | SEIZURES | MEMORY LOSS LOSS OF SMELL AND TASTE | F | 54 | 1 years 100mg | 11/25/2013 | 2 | Epilepsy | Extreme sleepiness ....very difficult to find words....slow thought processing.... has not yet helped with seizures | going to continue for a while longer to see if side effects go away and things get better | F | 5 | 3 weeks 60 2X D | 10/29/2013 | 1 | seizure | My 8-year-old son starting taking Zonegran at 11:00 P.M. last Saturday. At 11:30 P.M. the next day he started becoming dizzy and disoriented. A half hour later, he fell to the ground and had a grand mal seizure. This lasted about 6-8 minutes. In the hospital ER, he had a severe headache and abdominal pains. My neurologist was not convinced it was the drug, but we disagree. My son at age 8 has never had a seizure without a fever--which places him as atypical, and this one was in the absence of a fever; however, he did have a fever the following day. | M | 8 | 1 days 25 mg 1X D | 9/4/2013 | 2 | Psuedo Tumor Headache | EXTREME fatigue, slowed motor and cognitive function - forgetting words and the like, feelings of extreme panic after I take it, sleep paralysis/ horrible dreams. | Haven't noticed any positives yet since it's only been 4 days, but at the rate the negative side effects are coming I don't think i'll make to a week. Worried the side effects will end up causing a schizo-effective episode. | F | 22 | 4 days 100mg 2X D | 8/18/2013 | 5 | migraines | Sleepiness, sometimes forget words, not sure if that is from medication. | F | 58 | 4 years 400 mg | 8/6/2013 | 1 | Weight loss, insomnia | Have all but lost my sense of smell and taste. At first things tasted or smelled funny. Then I couldn't smell or taste at all. I am tapering down now since I have lost the weight and do sleep at night, I hate to think the sense of smell is lost for good! | Prescribed Zonegran when I came off of Elavil. Needed to loose 20-30 lbs and sleep at night. I did loose the weight and have been able to sleep. But have a lot of anxiety and terrible problems with smell and taste. | F | 56 | 1 years 300 mg 1X D | 6/22/2013 | 2 | Headache prevention | Depression, mood swings, lost of concentration, crazy animAl nightmares, and still have headaches | F | 23 | 2 years 100mg | 4/26/2013 | 1 | rsd pain | they just took me up to 500 mg aday i dont like it but what to do for pain they will not give out pain medswe will see how this go | F | 18 | 9 months 500mg | 11/12/2012 | 2 | Trigeminal Neuralgia | see things not there. Depression. Sucidal thoughts.Cold spots on legs and feet.Memory problems.Thinning hair.Made kidney problems. | I was taking Zonisamide for Trigeeminal Neuralgia. At first i wasnt having any prolems with it at all. But then as we increased the dose it really knocked me for a loop. The neuroligist wanted to raise it to 400, and when i went to 300 it felt like my kidneys were processing glass. I could barely walk it hurt so much. Thats also when i started seeing stuff. Like i'd see spiders crawling across my pillow or bugs that werent there. just small stuff. i thought i was loosing my mind. Im still on a lower dose and the systems have abated but not completely gone away. i go soon for surgery then hopefully can stop taking the meds for this. must remain hopeful. | F | 50 | 9 months 100 Mg 1X D | 1/19/2012 | 3 | to prevent migraines | so tired i was falling asleep at my desk. this never improved in the month taking it. i couldn't drink enough caffeine to wake myself up, so much caffeine it was creating digestion problems. as time went on i became more and more anxious on top of the grogginess, and some past anxiety disorders came up like phobias. i got really jumpy and was concerned i would have a panic attack. i haven't had these issues for 18 years but it was starting to come back. i would so much rather have a constant migraine than have the mental health issues i used to have and panic attacks. my doctor agreed i should stop taking it immediately. i've been off for 3 days but i'm still feeling tired and jumpy. i hope the anxiety goes away so i'm not preoccupied with past phobias (spiders, bugs). this sucks. | unfortunately it is the only drug i've found so far that helps with my extreme light sensitivity, but i prefer light sensitivity, migraines, or any physical problem over anxiety disorders. | F | 35 | 30 days 25mg 1X D | 8/11/2011 | 1 | Migraine Prevention | Increased Anxiety, Agitation, Difficulty Falling Asleep, Just Felt WEIRD. | I was supposed to increase my dose by 25mg a week until I reached 100mg. At 50 mg, I began to feel agitated, edgy and snappy which is NOT like me at all. I already take Celexa for anxiety, and haven't had issues in some time. I had a mild panic attack today, and am stopping this medicine ASAP. Not much change with my migraines, and I hate the way I feel. | F | 31 | 2 weeks 50 mg 1X D | 7/31/2011 | 4 | Epilepsy | Hair loss every time my dosage was increased. I eventually had to wear a wig for a while. Once I was on the dosage for a while, my hair would start to grow back, but at the start I was getting my dosage increased regularly so it never had much chance. Now, my hair is thinner than it once was, but I at least don't have to wear a wig. Other than that, nothing I can for certain pin on the Zonegran...possibly it is the cause of increased insomnia, but possibly not. | It has certainly helped, and is one of the only seizure medications that doesn't seem to want to make me gain weight. | F | 38 | 1.5 years 300 mg 2X D | 11/28/2010 | 5 | epilepsy | First few weeks insomia, hair loss , weight loss butt after few weeks all came back to normal | I did not have any episode in 3 years. Love it. And now Im 6 month preggo. | F | 32 | 3 years 300mg 1X D | 3/11/2010 | 2 | epilepsy | Insomnia; Kidney stones | Zonegran is one of the two seizure meds. I take. The insomnia would be debilitating if I couldn't sleep during the day to make up for the sleep loss at night. I know Zonegran is the problem, because my other med causes no side effects, but within an hour of taking the Zonegran, I'm "wired", & toss and turn. Also, causes kidney stones: I never had a kidney stone in my life before I started this med. I've talked to the docs about changing meds or times that I take them, but no go. | F | 58 | 5 years 100 mg 4X D | 3/8/2010 | 3 | Partial Epliepsy | None really | Started to take in 2004 after control with Depakote and Tegretol XR peaked. Helped for a while but has not totally cured the seizures; still occur approximately twice a month. | M | 21 | 5.5 years 200 Mg 2X D | 2/28/2010 | 1 | bipolar 2 | Super anxious to the point of tears, hair falling out, very tired. | Took this to replace Topamax, which worked wonders for me, but made my hair fall out. This does the same, but without the mood stabilizing effects. | F | 33 | 5 days 25mg 1X D | 2/9/2010 | 4 | Bipolar,GAD,Social Anxiety,ADHD | Mild hallucinations, zombie like state that went away after the first 2 weeks, memory loss | I take Zonegran as a mood stabilizer to help control my Bipolar rapid cycle. I was taking Abilify also but had to quit due to extreme side effects. I take 150mg daily with my coffee along with 15mg Adderall. The first 2 weeks I was a zombie but once I adapted I noticed a positive change in my mood swings and my panic/anxiety attacks have stopped. I have days where I feel like I have alzheimer's but they're few and far between. I do experience mild hallucinations usually "snow" or the room will shift. To me these side effects are manageable compared to what I was going through before. | F | 31 | 1 years | 1/14/2010 | 3 | epilepsy | anxiety, increased heart rate, decreased appetite,anal leakage(eww), moodiness, extreme lethargy, depression, severe memory loss | i was diagnosed with epilespy in april of 09 and my original neuro (who was a quack) perscribed lamictal..but i had two other partial seizures and it caused me to hallucinate and have horrible nightmares.I consulted another neuro who suggested i try zonegran...His goal was to get me to 400 mgs over a 4 week (take at night my seizures happen in my sleep..or right before i wake up)period. Initially i noticed a loss of appetite and irritability/moodiness. As my dosage increased, I felt like a dope, i couldnt remember anything and it was extemely difficult to stay awake. If i needed to take any other medicine, forget about it. Often times i wouldnt take this med because the side effects for mixing both werent worth it until this past dec i had a seizure at work...if u dont have any life threatening side effects try to stick with it for about 3 mos before giving up, sometimes your body has to adjust..i know i have to be consistent and i'm not so thats my problem | F | 30 | 9 months | 1/12/2010 | 1 | Headache prevention | Severe anxiety which led to rapid heartrate and high blood pressure. Was taking 100 mg/night, and the two days I tried 200 mg/night led to obsessive anxiety bordering on paranoia. Even 100 mg proved to be too much and I had to stop taking it. It also caused some mental "dopiness", i.e. I couldn't think what I was doing or trying to say. (A lot of "um, um" moments.) | Unfortunately, it also did nothing for preventing my headaches. Even if it had, though, I could not have continued taking it. I was well on my way to a heart attack, stroke, or possibly even a nervous breakdown. | F | 38 | 2 weeks | 10/23/2009 | 2 | High CSF pressure | Left arm weakness and slight left leg weakness | M | 57 | 21 days | 9/24/2009 | 2 | migraines | weight loss, never hungry, hardly urinated at all, skin always smelled like urine | 100mg every night. It did absolutely nothing for the migraines and I didn't like the side effects I experienced. | F | 55 | 1 years | 6/12/2009 | 3 | seizures | Very dizzy, swollen gums, loss of appetite, sleepy, I had insomnia on my previous seizure med, this put me to sleep. All I wanted to do was sleep. I could not function. I was in a cloud. I was taking 200mg @ night. Lips and tongue were numb. Weight loss. Unclear thinking. I called my doctor and he cut the dosage to 100 mg. but then I had a seizure. The first one in 2 years. I felt better taking 100mg. wasn't as dizzy. I liked the idea of the weight loss, but since I had a seizure my med was changed. | I could not function on this medicine. I was taking 200mg. I couldn't even drive. Once my dosage was cut, I did feel a lot better, but it didn't work for me because I had a seizure. I only have seizures at night when I'm sleeping. | F | 39 | 1 months | 6/6/2009 | 1 | migraines | ~!~!~!~!~ANXIETY~!~!~!~!~!~irritability would be putting it mildly! I snapped at my daughter for calling my son a nickname I have called him in the past (so the name SHOULDN'T have bothered me, and in retrospect DIDN'T). I was so stressed about everything, and while I live a VERY stressful life as a single mom and fulltime student, things were exagerated, and I couldn't eat, or sleep and I was visibly shaking from the stress!!! AHHHH! | I understand my symptoms are rare, I decided to switch taking the pills from at night to the morning (because originally I had heard they would make me sleepy so I took them at night, when I couldn't sleep I wanted to try to take them in the morning, because it was out of routine I FORGOT to take them that morning... and by that afternoon ALL that stress started to MELT away and I could feel my body untense, and my whole body hurt... because for the past month and some my entire body had been TENSED UP, and then and there I decided I WOULD NOT take those pills EVER AGAIN!!! As far as the headaches/migraines go... it worked... but it was NOT WORTH IT to feel like THAT! If no migraines makes me a horribly irritable stressed out freak attack, then I'd rather have the migraines thank you (and anyone who's ever had migraines knows that's pretty durn bad to say that)! | F | 29 | 3 months | 3/3/2009 | 2 | headaches & seizures | I was never hungry, It was very difficult to study concencentrate, and remember pretty much anything. Within 3 weeks after I went off it the first time I had my second seizure. | I was on it for 5 months for my headaches, and it didn't help, so my neurologist switched me to another medication, when I had my 2nd seizure. I went back on it, and while I didn't have my siezures I had all of the same side effects, so it wasn't worth it. | F | 21 | 10 months | 11/18/2008 | 5 | epilepsy | dry mouth, tiredness, dizziness, weight loss, gum problems | no seizures since taking this drug; 100mg in morning and 100mg in evening; dizziness disappeared after a few weeks; lost 30 lbs and have kept it off for over a year without any trouble just have a smaller appetite; play tennis everyday so obviously got over tiredness and sleep like a rock; drink 64 oz of water plus per day and have since starting this drug; very happy; glad my doc encouraged me to stick with it... | F | 48 | 16 months | 11/14/2008 | 5 | migraines | none | Take 100mg every other night, can do this because this med has very long half life. Also makes it very affordable as a generic. Took a full 3 months to work for me but after trying Depakote, Lamictal, Topamax, Elavil with no help and many side effects love this medicine. Have been on it for 4 years and has given me my life back. I still have some symptoms from migraines and migrane syndrone but they are 80% better. My neurologist said making me 50% better would be a success. | F | 50 | 4 years | 10/8/2008 | 2 | migraine prevention | After a satisfactory year on Zonegran which did greatly reduce frequency & severity of my migraines, the medicine caused severe neurological pain, curtailing my range of motion in my arms so much that my husband had to help dress & undress me. I saw an orthopedist as well as a neuro, had an MRI, muscle and nerve testing done at great expense. After tapering off the Zonegran, it took six months but I eventually returned to normal. | Having said that, my experience may have been one in a million. If the neuro problems hadn't shown up, I would have stayed on Zonegran for a long time because it was great for my migraines and had the nice side effect of keeping my weight under control. But it hurt a lot and it was scary. | F | 54 | 18 months | 7/25/2008 | 3 | chronic daily headache | minimal weight loss; Kidney Stone | Was so disappointed! Took this drug for 2 months. At the onset it didn't seem to help, but after approximately 2-3 weeks my daily headaches were gone when nothing else had worked. HOWEVER, be sure to heed the warnings to drink alot of water so that you don't develop kidney stones - apparently I didn't drink enough because I developed a kidney stone. I discontinued the drug so that I won't have to go through that pain again! | F | 4 | 2 months | 4/25/2008 | 4 | Post traumatic stress disorder | None that I am aware of. | My psychiatrist prescribes it for PTSD from childhood, along with 2 mg. Ativan at night about 2.5 hrs. before bedtime. The combination of Zonegran/Ativan has worked well for me for insomnia thus far. | F | 59 | 2.4 years | 3/28/2008 | 3 | migraine and bipolar | severe anxiety and agitation. Nervousness. Insomnia. Weight loss. Possible worsening of depression. | It has helped my migraines which required several Imitrex shots a week prior. I had no idea of the severity of the anxiety before taking, and I am a pharmacist. At one point I thought I was going senile. None of the common literature says anything. It's really a toss up as to which is worse at this point. I am taking Lamictal for the migraines as well, and I have added Wellbutrin to try to help the depression. Now I think I may need to add an SSRI or benzodiazepine. I guess anything is better than a migraine. | F | 30 | 6 months | 9/11/2007 | 2 | epilepsy | None at first. After about a month I started getting nausiated frequently and experianced frequent stomach cramps. Also felt very tired and "out of it". | Going to talk to my dr about going back on Lamictal | F | 25 | 3 months | 8/9/2007 | 2 | Epilepsy | Completely drained, loss of appetite, irritable, and an all around lack of motivation to do anything. | No improvement on the seizures. | F | 25 | 1 months | 7/23/2007 | 5 | migraine | weight loss, increased thirst | I am on 100mg every night. I have not had any side effects except for weight loss. This is the only med that has kept my migraines under control! | F | 27 | 1 months | 3/18/2007 | 5 | Migraine | 200mg at night. I took this drug before I went to bed. I had to sleep with the light on just until I fell asleep because of extreme hallucinations that haunted me. The hallucinations were so real too. I saw monks hovering over me... It felt like a salvia trip sort of. Besides this it works SOO GOOD for migraines preventative treatment. It works similar to Topamax just without the nasty, unbearable side effects. Topamax made me stupid, cold hands feet, speech problems, waking dreams and sleep paralysis. | This works soo good for migraines without the nasty side effects. It made me lose a ton of weight too. I gained it back when I stopped taking it for a bit but that could be because of a few other reasons though. | F | 24 | 1.5 years | 3/6/2007 | 5 | Epilepsy | I feel dehydrated, which isn't so bad it makes me drink more water which is good for you and I have the muchies. Other than that I feel good, I have energy, I'm very clear headed. I like this stuff and so far no seizures, I hope it keeps up! | F | 34 | 1 months | 2/23/2007 |
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