AROMASIN Reviews (EXEMESTANE)

Average Rating: 1.9 (145 Ratings)

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 Type: Rx Drug

  

AROMASIN  (EXEMESTANE):  This medication is used to treat certain types of breast cancer (such as hormone-receptor-positive breast cancer) in women after menopause. Exemestane is also used to help prevent the cancer from returning. Some breast cancers are made to grow faster by a natural hormone called estrogen. Exemestane decreases the amount of estrogen the body makes and helps to slow or reverse the growth of these breast cancers. Exemestane is usually not used in women of childbearing age.   FDA Approval Date: 1999-10-21 (Sources: U.S. Centers for Medicare Services, FDA)

  

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5=HIGH (this medicine cured me or helped me a great deal.)

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More on AROMASIN: Reviews Summary  |  Drug Safety Information

RATING  REASONSIDE EFFECTS FOR AROMASINCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 1  Stage 2 ductal carcinoma Painful & achy joints, even finger, wrist, thumb pain. UTIs, although I'm sure my oncologist would disagree with me re: medicine as a cause. My brain feels like it is in a permanent fog state. Was on anastrozole for short time. Joint pain some days almost unbearable. I would sit on the sofa with heating pad. Dr then gave me a hiatus for about two months. Pain got better but didn't go away. Dr then started me on Exemestane (Aromasin). Been on about two months. Had pretty bad joint pain early, then subsided. Only had joint pain periodically. Have noticed lately that discomfort is coming more & more frequently. Had UTI about 2 1/2 months ago & now I have another one. It's weird, but, there are days when I feel normal when I go to the BR. Then like today, I'm miserable feeling pressure everytime I go to the BR. It feels like I have a constant bladder infection. Can anyone else identify with these symptoms? F 67 1 days
25mg
10/4/2016
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 3  High risk for breast cancer Reading the reviews making me think to stop aromasin, with all the side effects. F 48 1 days
9/23/2016
 1  Stage 2 Breast Cancer with no node Hot flashes, numbness in arms, nausea, reflux, extreme fatigue and shortness of breath along with anxiety.This is my 3rd cancer drug and the cancer or radiation was not as bad as these drugs. I feel sure if the doctors tried them they would pitch them in the trash can. F 67 4 months
9/23/2016
 1  breast cancer joint pain bladder pain urethra pain hot flashes ear problem leg cramps I posted below but wanted to update my situation. I am not going to take any more aromasin. My family doctor has put me on 3 different antibiotics saying I have kidney infection but no relief. I read where estrogen is needed by the bladder to keep it healthy and I believe I have interstitial cystitis. My family doctor prescribe oxybutynin for the bladder spasms and it has helped and I also bought some AZO which helps too but from what I read this could be permanent. I feel worse since taking aromasin. I felt better after my mastectomy and wish I had never gone on aromasin. Since the other drugs all affect estrogen I will not be going on anything else. I have been off aromasin about 2 months now. The leg cramps and ear problems are gone and the hot flashes are less but I still have horrible bladder/urethra irritation and joint pains in one elbow and hands. F 60 45 days
25 1X day
8/21/2016
Email
 1  Stage I/II Breast Cancer The oncologist first prescribed Arimidex, which I only took for 4 months due to the severe joint pain. I could barely get in and out of my car. I was then prescribed Aromasin and tried it for about 18 months and the hip pain became so bad I could not sleep and my cholesterol was almost 300. So I took a six month vacation from the drug. My cholesterol is now well under 200 and the hip pain is almost gone. While I understand that the first five years after a cancer diagnosis are very important, if I continue to take this drug I will end up on a statin and pain medicine. Taking those will only cause even more side effects. I am talking with a naturopath to look for some alternative ways to prevent any future occurrence of cancer, there has to be a better way than this drug. F 62 2 years
25mg 1X day
7/27/2016
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 1  breast cancer Hot flashes, joint pain in hands sometimes so bad I could not use fingers which I need to do my job. One elbow joint pain. Bladder pain and pressure like an infection but it wasn't an infection. Antibiotics did not help. This drug is horrible for me. My oncologist is NOT happy I stopped it and refuse to try it again. I felt like I had a bladder infection but antibiotics did not clear it up. Since I work in a lab I did my own urine tests and could see I had bladder irritation signs but no infection. About 3 weeks after stopping the drug the bladder symptoms are gone. My knuckles in my hand hurt badly and I have trouble using my fingers and they "lock"up sometimes. I also have one elbow that hurts. I talked to my oncologist nurse today who said I can go back on the meds since I have been off them a month and the hand pain is NOT from aromasin. I am still having hot flashes. I believe the drug is out of my system but the side effects and damage the drug causes is not gone which is why the hot flashes and pain is still there. I told the nurse I will not take anything until the pain is less. I know my body and I know from another drug I took years ago it can take MONTHS to get over the side effects and damage from the drug. I wonder if it worth trying something else. I was given a 4% chance of cancer returning with the drug and 8% without. I had a mastectomy and no chemo or radiation needed. F 60 50 days
25 mg 1X day
7/12/2016
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 2  Stage 1& Stage 2, Dbl Mast,Chemo tx Mainly, severe mood swings - depression and anger/rage, severe pain on my knees causing difficulty to walk after getting up then pain goes away, insomia, weight gain. My mom was placed on same medication for 5years and saw the same SE on her. On a side note, breast ca doesn't run on our family. We are both BRCA neg. Knowing the SE, I was mindful of what I am feeling and I try to control the SE as much as I can. I keep myself busy most of the days so I don't feel depressed. As for the anger/rage, I identified my trigger sources and I try to avoid them as much as I can (not 100% successful). I watch what I eat but I'm also not 100% successful on this category. I have gained weight (and I thought it was due to chemo tx). My onc have given me clonazepam to help me sleep and relax at night. I also take tylenol (with codeine) to help with the pain. My onc also told me he thinks I should be on this drug for 10years (vs 5yrs for my mom) bec new study came out showing better outcome for my stage of cancer to stay on it for 10years. I try not to think about this. F 46 5 months
25 1X day
5/20/2016
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 3  DCIS Stage 1 Diarrhea, vaginal bleeding, insomnia, weight loss The vaginal bleeding is what really disturbs me - I can live with the other side effects. Now I need to have hysteroscopy to determine if there is any other reason for the bleeding. F 65 15 months
25 mg 1X day
4/11/2016
 3  Breast Cancer invasive stage 1 Some joint pain, my back continues to crack throughout the day. Was on Arimidex for 5 months. By the 5'th month had difficulty getting out of chairs and walking for first few minutes up. Knee pain and hip pain at night made sleeping very difficult. Dr switched to exemestane. But I first stayed off both for a month. Joint pain is better but will see what this month will bring. Back cracking is bizarre. At least I don't look 90 when I walk. If symptom return to same degree I won't wait it out this time will ask ti switch. Gained 10 pounds so far. F 55 30 days
25 mg 1X day
3/25/2016
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 1  HER2 +, Estrogen + Stage 1A breast I thought I was losing my.mind, couldn't understand why I started having extreme joint pain in my hands, then in my hips & ankles. I am extremely frustrated that their was no forewarning by my oncologist. I have been taking this pill for only 3.5 weeks. I played soccer & worked out during chemo, yet I almost feel worse now than during chemo. F 44 4 weeks
3/24/2016
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 1  Stage 1 breast cancer Severe muscle and joint pain, swelling in my right hand, fatigue and depression, insomnia, headache and brain fog. Pain worse when laying down and mornings. No energy and no desire to do anything, decrease in libido, more tearful and emotional than usual. Not worth it!!!! I took Arimidex for a few months with same type side effects, when I stopped taking it the side effects subsided. But after just one month of Aromasin I stopped taking it and 3 months later still have severe pain. Does anyone know how long this will continue? I am done! F 56 30 days
25 1X day
3/22/2016
Email
 2  Breast cancer stag 1 Big toe pain fire sensation within the same foot. Weight gain of 10 pounds not stopping averaging about 1.5 pounds a week. My Dr. Told me to quit because I am also ostopena I am scared but relieved… F 51 2 months
25 mg
3/20/2016
Email
 1  Breast cancer Depression extreme fatigue acid reflux lethargy neutropenia nausea A very difficult medication to tolerate I have to push myself each day to walk or swim as this makes me feel better the fatigue is difficult to live with F 56 3 years
25
3/7/2016
 4  Stage 2 Breast Cancer I have been on this drug for 6yrs 6mths and intend to complete 7yrs, could be longer. Dr says it could return, so taking this 2 more years makes me feel more comfortable. Weight is kept ok with reasonable healthy eating and walking 30 mins a day 5 days a week and 2 classes of aerobic / Pilates. It takes a great deal of effort, but after I feel so much better with no stiffness and aches until end of the day. F 57 6 years
25mg 1X day
2/27/2016
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Patient History
 5  estrogen enhanced Breast cancer I have EVERY side effect of this drug and am already considering stopping it. Weight gain and no stamina indeed. Loosing hair, nausea, EVERYTHING. I feel poisoned. F 59 1 years
25
2/15/2016
 1  I had hormonal breast cancer Sore feet aand other joint pain. Less energy, and a feeling of a ''confused'' brain. Tiredness, lethargy! Depression on some days! I have gained weight! I am upset, that I have gained so much weight, an yet lack the stamina, to do effective exercise! F 54 1 days
1/27/2016
 2  ductal carcinoma insitu suddenly sugar has spiked i have not had any other issues but suddenly my sugar was running high. I have had it under control F 63 6 months
25 1X day
12/31/2015
 1  Breast cancer My feet are on fire, very very tired, extremely thirsty , weight gain and over feeling just yucky! F 61 21 months
25 mg 1X day
12/27/2015
Email
 2  Breast cancer (DCIS) stage 0 Hot flashes severe, weight gain, joint pain. 0nly 2 weeks taking it. Now oncologist added Boniva for osteopenia. Made me think and decided to stop. Heard horrific things about Boniva. Had lumpectomy and radiation one breast. Why be miserable? My prognosis is very good without drugs. I'm active and exercise. Feel I made good decision and still at low risk. Oncologists practice cookie cutter medicine. They have a drug to combat side effects for other drugs. Not happy with how I felt on aromasin. Won't try anything else. F 57 2 weeks
12/6/2015
Email
 1  Intraductal Papilloma w/Dysplacia Although I was not diagnosed with BC, I'm high risk since my mom is a bc survivor. I've been on this drug going on 9 months. At first I didn't notice really any side effects except fatigue and that was after about a month. A couple months later I started developing insomnia; joint pain in wrists, hips, ankles and feet. After about 4 months on this drug, I developed trigger finger in both thumbs. There were days where it became exceptionally painful to walk because the bottom of my feet felt like they were on fire. When I went for my follow-up to see my onc, I told her about the se's and as many of you have already experienced, my onc was very dismissive about my complaints which I resented. At first I wasn't having any issues with weight gain because I'm a T1 diabetic who carefully watches what I eat but suddenly in less than 1 months' time I've gained almost 14 lbs! I'm also going through horrible mood swings to the point I'm either crying uncontrollably or I'm feeling something akin to 'roid rage' all within a span of a couple minutes. Between the sudden weight gain and the extreme mood swings I am going to see my onc and tell her I want off this drug. As a Type 1 Diabetic I got very sick in Aug 2015 and didn't realize I was in Diabetic Ketoacidosis and that by the time I was in ICU I'd had 2 mild heart attacks. My Diabetes is a bigger threat to me right now than the chance of bc plus I don't know why the onc would put me on this drug given I don't have bc but high risk. I don't like this 'one size fits all approach'. Sure glad to find this website and have the kind of validation I need to show my doctor this is not 'all in my head'. My best to each and every one of you. F 56 9 months
25 mg
12/6/2015

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