ACTIQ Reviews (FENTANYL CITRATE)

Average Rating: 3.4 (104 Ratings)

Filter Results

Compare ACTIQ with similar:
 ANALGESICS-NARCOTIC    DEA Schedule II   

 Type: Rx Drug

  

ACTIQ  (FENTANYL CITRATE):  This medication is used to help relieve sudden (breakthrough) cancer pain in people who are regularly taking moderate to large amounts of opioid pain medication. Fentanyl belongs to a class of drugs known as opioid (narcotic) analgesics. It works in the brain to change how your body feels and responds to pain. This medication should not be used to relieve mild or short-term pain (such as due to headache/migraine, dental procedures, surgery).   FDA Approval Date: 1998-11-04 (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by length of time drug was taken longest to shortest.

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

Page: 1 2 3 4 5 6


RATING  REASONSIDE EFFECTS FOR ACTIQCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 1  Avascular necrosis/dead shoulder bone Loss of all my teeth at gum line. Disabled and for tooth removal, and dentures, I'm looking at about $15,000. Yeah, right. Am looking for an attorney for civil lawsuit. Anyone agree they should replace our teeth. That's all I want. F 62 20 years
100mcg/hr 1X O
11/21/2020
Email
 5  Fibro, Lupus, migraine,chronic pain None The only medication that made my life bearable. I was on it for 16 years and then they stopped. Now the pain is so bad, and nothing works like Actiq. It made it possible to live, I am a disabled senior with a husband who is partially paralyzed and brain damaged and a paralyzed dog. I have to take care of both of them myself without help. F 61 16 years
800 mcq 3X day
12/26/2016
 4  Botched L3 L4 L5 Anterior fusion Gum infections and teeth loss. Super dry mouth thoroughly throughout the mouth. Inside the gums and tounge, roof of mouth. Literally no saliva in the mouth. Gee I wonder if our teeth and gums needs saliva? Actiq hasn't a defense to hide belong once taken to court in a class action lawsuit. 13yrs of proof right here alone. But shouldn't have to be alone. Disgusting. Considering everybody's suing for just a cup of coffee being spilled or a boon being grazed against. Here I'm talking about serious long term damage. M 64 13 years
400mg 6x a
5/18/2018
 5  6kyphplasties drunk hit me 75MPH Rotted out teeth over $20,000 to try to save them(teeth) it didn't.! it is the only thing that stops my pain. F---in insurance as if Cancer was the only pain the reason cancer gets terminal is because it doesn't hurt usually until its advanced,then its the chemo&radiation that causes the majority of pain.The lobbyists want to make it hard to get &more profit if denied these suckers &I've never had a drug dealer say I got these suckers that wont get you high but if you stub your toe for a mere $55 for a 5 cent sucker I can hook u up. This product that costs 5 actual cents 2make & is 95% sugar. People we are getting scammed.What about a burn,MS, Lou Gerhigs,arthritis. Since when does this government have a right to dictate what is prescribed between me & my doctor who studied pain for 12 college years alone.The politicians are funded by big Pharma & they dont want to pay 4 it.The best way to do that is make it only 1 thing it will pay for it under think of how r Can you please help us fight these insurance companies & the government on the suckers? Why dont they make them like they were in 2002 where they weren't made of chalky, crumbly stuff they were make of real sucker material. I didn't have to go threw a whole days worth due to them crumbling in seconds. The LAST of my life savings is going to a billion dollar industry and thats not enough. Hello immigrating to Canada here I come.Medicine shouldn't be dictated by ability to pay can Canada, England, Australia, New Zealand etc all be wrong to get rid of these blood suckers insurance companies.I am paying the price for some jerk who wants to get high off of this pain that feels like someone hit me in the back with a bat while putting out a fire on my back. Also stabbing when I get back spasms. All this headache & heartache & scare tactics because some idiots probably 1 person put the patch in their mouth. I dont care if those opiate addicts die for screwing things up because Mommy didn't want to say no to Jr male or female and that created unbearable treatment by doctors & people who dont know me in pain and they are usually spoiled young & healthy. Id give anything to get my health back & never touch this medication. I have Sarcoidosis and Lupus due to TCE or trichlorolethyline in our well drinking and cooking and bathing water which gets more potent with steam.I was never sick before this chemical was in my body and I developed rashes and couldn't breathe F 56 12 years
400mcg 6X day
10/7/2014
Email
 5  Chronic pain (degenerative joints) Lost all my teeth, constipation (mestinon provides relief along with otc stuff), hearing loss Actiq is a godsend for me as well. I couldn't even get out of bed before I started taking it. I was taking tons of morphine until I collapsed with respiratory failure, double pneumonia from loss of cough reflex. Actiq allowed me to live again. M 56 10 years
8/17/2008
 4  Extreme pain A number of years after I started taking taking Actiq. Due to taking it 4 to 5 times daily and for years and the contant dry mouth it directly caused. My gums started getting infected and cavities started and there was no stopping the gum infections and tooth decays.No matter how much I brushed and flossed. My teeth started busting and breaking out. All dentists I talked to say drymouth causes tooth decay and gum diseases. Last 5 years I lost around 12 teeth. Its caused by Actiq. No doubt. Like tobacco causes lung cancer and was denied for decades by tobacco companies. Now Mallinckrodt Inc. in Hazelwood MO. and Cyprus Insurance and their adjusters are denying it to save money. For cyprus its all about money. Not the people. The company who is responsible for selling Actiq will eventually lose in class action lawsuit. A big lawsuit. Its time they are held accountable for millions of dollars of ruining gums and teeth without proper admission. LETS ALL GET TOGETHER AND SUE AS ONE. HOW COULD WE LOSE? THE EDVIDENCE IS ALL THERE!!!!!!! M 60 10 years
400
5/16/2015
 3  RA, DEGENERATIVE DISC, FYBROMYALGIA LONG STORY VERY SHORT- BEEN ON THIS ABOUT 10 YEARS, the tooth decay warning WAS NOT LISTED FOR SEVERAL YEARS then added a few years ago...the story of why i had to keep this med. is long, but the bottom line is this, I had NO LIFE prior to this med.& was suicidal. Although it gave me a "life" ALL MY TEETH ARE FALLING OUT NOW AND I CANT AFFORD 30K WORTH OF DENTAL WORK. I AM A YOUNG-LOOKING ATTRACTIVE WOMAN WHO NOW HAS THE SMILE OF A CRACK AND METH ADDICT. LOVELY. NOW WHAT? DONT TAKE THIS MED IF OTHER OPTIONS ARE AVAILABLE AND WORK FOR YOU!!! THIS SHOULD BE CONSIDERED AS A LAST RESORT MED FOR MULTIPLE REASONS, INCLUDING THAT IT IS 100X MORE POTENTANT THAN HEROIN AND MORPHINE. COMING OFF WILL NOT BE FUN... F 42 10 years
6/16/2009
 5  Chiari pseudotumor cerebri ischemia Severe tooth decay while taking brand name Actiq is the worst! I was lucky enough to find a pharmacy that makes sugar free fentynal pops I get 1200 mcg 120 per month for 300! They actually work better for me then actiq. But after 5 yrs of brand name my teeth are shot & I'm only 36! I think the new formula did more damage with its sweettart texture! Swirling those against your teeth was bound to eat away at enammal! So my 5 is not for actiq but the ones my pharm. Is authorized to make. If you live in IL email me for info. I also take Mscontin 75 mg 3 times a day soma & a few other things. I can't use patch due to systemic lupus. Actiq was 5 yrs generic is 3 plus F 36 8 years
8/9/2008
 5  Bilateral TotalJointReplacement TMJ I LOVE this medication because it has been the only medication that has really helped my severe chronic pain from my total joint replacement of my tmj. I also take avinza. From the first day that I started this medication I had NO idea that I would lose all of my teeth. It has been literally terrible on my quality of life. There should be a class action lawsuit because all most EVERYONE that has taken this drug has lost most or all of their teeth. Since my total joint replacement I cannot open very wide at all. I just had to have a total mouth extractions last Oct. and I have had terrible problems. One being that they (meaning the dentist) left me with literally NO ridge at all so I am unable to wear a bottom denture. Now I have to have implant surgery that my insurance will NOT pay for even though all of my doctors say it is medically necessary because my total joint replacment will fail since I have no proper support. My top denture is completely crooked and I have been in more extre If there are any attorneys who are considering a class action lawsuit please email me as I would be interested in getting on board. Although I am not sure that if you sue you would have to stop using the medication and Actiq has been the only pain med to really help my severe chronic pain. It is a very difficult situation and now since my insurance will not pay for my medically necessary implants I don't know where to turn. I cannot eat anything but very soft food and have lost my appetite and only eat 1 meal a day. It is usally oatmeal or applesauce or something along those lines. F 42 8 years
1600 MCG 7X day
11/12/2011
Email
 5  Adhesive capulitis in shoulder None and don't understand all the people that complain when they are taking it not what it was approved for and most are taking 2 to 3 times the strict recommended dosage of no more than 4 a day F 54 8 years
600 mcg
4/22/2013
 5  clinic pain syndrome not much other than the teeth decay, root canals, ect, the up side was it was the only medicine that worked for me, for the break through pain I have, this all due to multiple surgeries,I think around 30 or so, for one problem or another, so always had this constant cronic pain, that for the most part can be unbearable. now at my wits end I'm through pain management x 12 some years now. Dr started me on percecets, but they don't help any, and still taking my Oxicontin. wish my insurance would pay for my actiq, would be cheaper than the hospital, which I know it's going to end up back to. is there anything out there that is around the same strength as my actiq, that I can take. I take Oxicontin 80 mgs,3 times a day for the past couple of years now. insurance just changed through husband's employment, so the new insurance no longer covers my actiq, So looks like I'm back to square one, prob and up in the ER Again on a weekly basis for pain control. tried everything else nothing helped like the actiq, and my Oxicontin combo, and even the Oxicontin insurance after may 1st is going to stop. F 43 8 years
800
3/6/2013
Email
 1  RSD, disc herniations neck, pain Horrible teeth problems, lost most of my teeth, need bone grafting, trying bridgework now, tried fillings then crowns first, fentanyl seeped under crowns into bone and root, causing more damage. shame on actiq manufacturer for promoting off label usage and not advising of the severity of the teeth and bone structure damage that results no matter what precautions are taken. F 49 8 years
1600 mcg 8X day
9/15/2010
Email
 1  Cancer pain Like most, my teeth are falling apart. I'm sick to my stomach to think of my future with "meth" teeth. I'm embarrassed to visit the dentist. They haven't a clue about Actiq and the problems it causes. I broke a tooth tonight but after reading everyone's stories I don't know if I should waste money on temporary repairs (crowns, root canals) when I should be saving up for implants. Of course, I live on disability so I don't know what to do. I loved Actiq before I knew about the damage it caused to teeth. I began taking it around 2003 before there were notices about related tooth decay. If anyone is aware of a law suit please post or email. F 45 8 years
1000 mcg 4X day
6/15/2014
Email
 5  DDD, Cervical Radiculopathy, etc. 4 surface cavities plus 11 teeth with no enamel at the gumline (high risk for future cavities). These were my first cavities ever. I brush my teeth 3x/day & that's probably why I went 6 years with no problems, but now my teeth are a mess. It is not just the sugar, but also the citric acid in Actiq that supposedly contributed to them. I always put the medication on one side of my mouth -- that's where all the cavities were & most of the teeth with the stripped enamel. Works great for pain. Fentanyl is the only narcotic I'm not allergic to. Tried Duragesic, but even the lowest dose available caused an overdose. No other side effects besides the tooth decay. I've gone off it for a month or so at a time to manage tolerance & didn't have any issues. F 32 7 years
12/19/2009
 5  chronic back pain&stomach pain Lost teeth and can't afford new ones.it is the only medication that lets me live without severe pain and now no doctors want to prescribe it because of the ridiculous price and the fda won't approve for chronic back stomach pain and they don't care how much pain u are in they can provide a better quality of life pain is curable but they don't care about people who need it for chronic life changing pain can't work and missing out on my kids best years because of junkies who ruin it for people who need it to live and work and I would like to enjoy life and be able to sleep more then ten hours a week if it wasn't for my kids I wouldn't want to live for much it is sad I loose all my teeth and they went from less then a thousand a month to fifteen thousand a month just because of the fda won't approve for back pain and the clinical trials proved it is a safer and faster breakthrough medication that is a shame in the best country in the world I wish doctors would prescribe it and take their oath seriously there the doctors not insurance company's M 40 7 years
1600&800mc
10/9/2012
 4  Avascular necrosis and severe back I also lost my teeth, but it turned out okay. I always wanted braces and we couldn't afford it so now I have straight teeth now and a great smile. It was a lot of suffering though with the jaw pain and the extensive surgery I needed. Actiq works but I don't understand as an RN why they can't find a formulation besides the patch which I also wear, that will help a breakthrough dose of Actiq last longer than the pops. These pops are addictive but I have one of the best pain specialist in the country and he put me on a maintenance dose of Methadone that helps with that withdrawel feeling in between. The addiction is not addiction, it is a physical dependence when it comes to a person who legitamely needs pain medicine. I have severe Avascular Necrosis and had both hips replaced already. My back is basically collapsing from arthritis and degenerative disc disease as well. I finally accepted the fact that I need the narcotics as much as any diabetic needs insulin, to live a productive life. F 52 7 years
800 mcg 4X day
2/8/2012
 3  Chronic pain I have the other patients have described my teeth started breaking and falling apart right at the gum line I have now lost 13 teeth and cannot afford to have them replaced I even had to have bone grafts done and I am in debt and have no teeth to eat I want to see damages from this company I am a nurse and not read the literature and they do not emphasize the damage that can be done in due to Fentanyl I didn't know for the longest time we thought it was something else and couldn't figure it out until the doctor and I discussed the fentanyl lollipops or actiq lollipops can anyone please help me get help in replacing my teeth and fixing them I was beautiful and had a beautiful smile and now I don't smile anymore because most all my teeth are gone I would never have taken the drug this way if I would have known the warnings are not sufficient in my opinion as a person who reads many abstracts and warnings on drugs they did not due diligence in this case They deserve to be sued it is helpful to stop chronic pain only for a few hours and then the drug drops off and your pain returns even while wearing a patch they should make this drug available in a sugar free form and still to this day this is years since this article was written it is 2016 I cannot get this without sugar but I only found out last month that the fentanyl lollipops are the problem I need help F 53 7 years
1200mcg lo
9/16/2016
Email
 1  Fibromylgia plan on getting dentures, I have lost most of my teeth. Unfortunately Medicare does not care if you have teeth or not! Apparently either does the manufacturer of Actiq, this should be a main warning! Also sugar went up to pre-diabetic, before actiq, I had low blood sugar. I stopped the medication. Enough damage has been done and that is only what I can see and read on a regular CBC. I took great care of my teeth on actiq and still lost them. I believe most people loose their teeth. I think Actiq should make this a main warning or start paying for dentures. If I had it to do over again, I would not start. It does not help that much. I go off, because I went from 70 to 140 on my sugar level, I do not want to add diabetic to my list of issues. F 52 7 years
200 3X day
4/3/2014
Email
 5  severe degenerative disc disease only side effect; I did eventually lose all my teeth except 5 on the bottom Actiq was the very best medication for pain relief without causing sleepiness and lethargy. I was able to care for my mother who had a terminal illness and live a productive lifestyle. I'd trade my teeth again for a quality life. They would not prescribe it for my mother for fear of her falling asleep with it in her mouth; gave her fentanyl patch instead, which I believe contributed to her respiratory failure. She was 79 yrs. old. F 62 6 years
400mcg 3X day
4/14/2011
Email
 5  chronic breakthrough pain worked great back to a normal life again insurance stopped paying for actiq in 2009 now my quality of life went from 85%-10% cannot afford without insurance. insurance won't pay unless I have cancer, why did they pay it for 5 years? F 43 6 years
1200mcg 4X day
3/22/2010
Patient History
  

ACTIQ  (FENTANYL CITRATE):  This medication is used to help relieve sudden (breakthrough) cancer pain in people who are regularly taking moderate to large amounts of opioid pain medication. Fentanyl belongs to a class of drugs known as opioid (narcotic) analgesics. It works in the brain to change how your body feels and responds to pain. This medication should not be used to relieve mild or short-term pain (such as due to headache/migraine, dental procedures, surgery).   FDA Approval Date: 1998-11-04 (Sources: U.S. Centers for Medicare Services, FDA)

      Next Page

BACK TO TOP