Drug Ratings for DOSTINEXAverage Rating: 3.5 (400 Ratings)
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Results are sorted by Date Rating Was Added Key to Ratings: 1=LOW (I would not recommend taking this medicine.) |
Charts & graphs: Reviews Summary for DOSTINEX | Top 10 Adverse Effects (reported to FDA)
| RATING | REASON | SIDE EFFECTS FOR DOSTINEX | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
  | F M | | | | |||
| 5 | 2 manth | No side effect | Its very good | M | 59 | 2 weeks 0.5mg | 6/27/2017 | 5 | Hyper prolactin | Nausea , fever ,swelling of hands and foot | Best result got:) | F | 4 weeks 0.5 mg | 4/27/2017 | 3 | Pituitary tumor/prolactinoma/microa | Short term memory has improved dramatically, I am not forgetting times and dates of plans, conversations I just had, where I set things, and soooooo much more. Fatigue has dramatically improved as well, I am waking up with no problem and not feeling tired all through the day anymore which is something that has really gotten in the way of work. I am doing much better! My vision has improved (I was seeing 2 sets of headlights at night time) which was caused from the pressure of the tumor (5mm) on one side of the optical nerves, and the other side I have ano 11mm mucus cyst in the sinus cavity. My mood went from severely depressed and almost suicidal, crying a lot, to a lot better mood and wanting to get up and face the day. Bad sides of this med, I have been pretty badly nauseous almost daily to the point where I could barely work, dizzy like the room was spinning especially when I leaned my head over just a cm, and fainting if I stood up too fast. Also I have had problems with extreme pins and needles in my hands (like the feeling when your feet fall asleep and start to wake up) along with numbness of my hands. This usually lasts all day on the days it happens. I've also noticed weird cold/hot sensations. Like the feeling of your hands when you have been outside in the freezing cold then run your hands under hot water, my hair is getting extremely thin, I am gaining weight, I've noticed blueish to purple hands. Which the doctor says it is from poor circulation. When I was on t | If anyone has had any of these side effects please let me know, if you know anything that can help any of these please please contact me!!! | F | 26 | 5 weeks .05mg | 1/28/2017 | 5 | Microprolactinoma, 6mm | No negative side-effects. No dizzyness, no nausea, for me it does the job without any negative effects. | Using Dostinex from Pfizer. I've been diagnosed with microprolactinoma 6mm (although a more detailed analysis indicated the probability that actual size is 3mm plus bleeding ). I've been surprised on the fast results. I really wasn't expecting anything before 6 weeks. Sex drive is increased. Energy levels are up. Recovery seems a bit better . I'm training daily and I'm getting faster and better recovery between sessions. Confidence back on track. Since I normally have daily training sessions I cannot comment on strength, cardio increases or weight loss yet. | M | 35 | 3 weeks 0.5mg 2X W | 11/29/2016 | 1 | High prolactin level | I was diagnosed with costochondritis. My breasts and chest would hurt excruciatingly. My obgyn decided to check my prolactin level, it was high. My doctor put me on cabergoline 0.5 once a week for 1 month. I literally on the brink of suicide. The medication is a dopamine antigonist. I had to stop this medication. | F | 35 | 4 weeks 0.5 mg | 9/25/2016 | 3 | prolactinoms | My periods came late. And when it started my flow kept increasing day by day and it has not stopped. I have discontinued the drug and waiting for a miracle | 5 weeks 0.5 | 8/5/2016 | 1 | Prolactinoma | My husband is taking this and the side effects are life altering. Personality changes, mood swings, rage, hyper sexual, compulsive spending, and the worst part is that it alters your thinking so you don't realize anything is wrong. Literally changes your ability to discern right from wrong. | M | 49 | 1 years .25-1.0 | 6/16/2016 | 1 | Prolactinoma | My husband is taking Dostinex for his tumor. Ever since he started taking this drug his personality starting to change slowly. Going out not coming home wants to live a single life. Now he says he doesnt love me. He only takes .05mg once a week. He has to see his specialists for review. I'm saddened that a medication can do this to a personm Yet he thinks his normal. But after reading all the review I def know it's the medication. I just hope their is a solution. | M | 40 | 3 years | 5/18/2016 | 3 | High prolactin levels | I was diagnosed with a pituitary microadenoma 2 months ago , 7.5 mm . I started dostinex . I take it twice a week on Wednesday night and Saturday night . I'm usually very tired the next day , I feel week and have hard time getting out of bed . It makes me feel down and moody . No nausea , constipation but dizzy especially when I get up fast . I'm trying to live with those symptoms until I see what happens | F | 37 | 3 weeks 0.5 mg | 5/14/2016 | 1 | Prolactinmoa | Hyper sexual could not control, jittery, anxious panic attacks tired no energy to excercise Not yourself, and getting off it is even worse!!!!!!! Horrible Drug | Don't take it you won't be you anymore, or life won't be yours!!!!! NoKidding | M | 56 | 5 months 0.5 | 4/7/2016 | 3 | Prolactinoma | Complete fatigue after taking it at a bedtime. My levels are low but I have experienced digestive disorders that seem to be hormonally related. I think I need to take this more consistently though only I hate how tired I feel the next day. | F | 33 | 8 years 5 | 2/18/2016 | 1 | High prolactin levels TTC | F | 35 | 1.0 1X W | 2/13/2016 History | 4 | Prolactinoma | Usual diagnosis from personal research. Small micro, taking cab almost 3 years. Working great except I have developed CRAZY daily heartburn within the past year. I'm trying to figure out if this is a common problem/side effect. Lifestyle has remained constant, food,drink,environment, etc. Also, Not looking to have kids & would like an alternative to Cab, like REGULAR hormones. Anyone know about either please reply. Thanks! | F | 40 | 3 years .5 x2 week | 1/23/2016 | 4 | Prolactinoma | Felt tired, a day or two after taking it. Had smaller dosage than others I see listed. | Took 10 mg/wk for 13 years (listing above only went to 10 yrs). Had prolactinoma removed 3 yrs in, with a smaller remnant left. The neurosurgeon did not want to damage the pituitary. Eventually the remnant disappeared after taking it for those extra yrs. I was just thankful the severe headaches had stopped after the surgery. It's a gradual recovery, not instantaneous. | F | 51 | 10 years 10 mg/week | 1/17/2016 | 2 | Hyperprolactimea | Indigestion, lightheaded | I have been experiencing erectile dysfunction due to high prolactin in my blood due to tumor on my pirtuary gland and the Doctor prescribed Dostinex (Cabergoline)to shrink the tumor and lower my prolactin levels and I have been on this nedication for two months and no improvement. Still with terible ED. I'm to the point of almost committing suicide due to depression. | M | 29 | 2 months .75 | 1/14/2016 | 1 | High prolactin. Ttc | Nervousness, shakiness, headaches,anxious depressed. Crazy meds gonna get off it. Not worth feeling so sick. | F | 40 | 3 weeks .5 | 12/27/2015 | 5 | Pituitary adenoma | None. My doctor recommended I take it at bed time to avoid nausea, so that's what I've always done. | I was diagnosed with a macro adenoma at age 17, and started Dostinex with my Prolactin level in the 900s. I got my period within about 6 months. At age 21, my doctor suggested stopping Dostinex for 3 months to see if I still needed it (the tumor had shrunk so much that it was no longer visible on an MRI for quite some time). Upon checking my Prolactin level, it was very high, but no tumor growth was visible on MRI. Resumed Dostinex and stayed regular until getting pregnant with no problems at age 24. Throughout pregnancy and nursing, I was off Dostinex for 26 months, but there was still no tumor growth visible, though my Prolactin levels were quite high. After I stopped breastfeeding, I resumed Dostinex and started having regular cycles after about 3 months. | F | 27 | 10 years 1mg | 10/1/2015 | 5 | My prolactin level is high | I've never experienced any side effects while taking the medication. It's helped a great deal with getting my prolactin level bck to normal and keeping my tumor from growing. | I get headaches and dizzy spells when I am off my medication due to it being so expensive. | F | 31 | 2 days .5mg | 9/29/2015 | 1 | Prolactinoma | fatigue, extreme dizziness, foggy head, depression, mood swings, headache, nausea, unable to focus | I am on an extremely high dose since I haven't been consistent taking it. When I was taking it very consistently my levels went from 52 to 17 but now they average for about 42. I have been strict on my dose for the last few months since I want to get off this dreadful medicine. My tumor is between 3-6mm and has stayed the same size for 10 years. I really cannot stand this medicine, I have to take it when I am not working the next day because it makes me so out of it. I want to get surgery but my endo is advising against it due to the size. I really cannot keep taking this for the rest of my life. | F | 27 | 10 years 0.5 4X W | 9/17/2015 | 3 | prolactinoma tumour | Light headiness, nausea and the worst side effect for me is the tiredness, I don't want to get up in the Mornings and don't have any energy to do anything. Hard when you work afternoon shift and have to stay awake till midnight. I felt better with the disease before I started medication than what I do now. On a good thing for the medication, my tumour is shrinking and my prolactin levels has gone from 2860 to 132. | I have been feeling very depressed as well | F | 43 | 7 months .05x2week | 7/27/2015 | 1 | macroprolactinoma | First month nausea then heart palpitations i took endral 10 Then hypersexuality. I 'm virgin and cauld not marry as it is rare to find a man want to marry a girl with a tumour even its begnin! I can't overcome blaming myself or thinking in sex most of the time. Before 9month i had an angeled mind i had a virgin mind. | prilactin is 0. 9 But i ve to continue for 2 years to minimize the tumor size | F | 30 | 10 months 0. 5 | 7/15/2015 | 1 | Prolactinoma/tumor | Wow. First few days nothing. 2 week in depression strange anxiety and loss of appetite/nauseous and dizzy, like I could fall over easily. Hypersexuality, almost over powering. I touched my colleague and ask her if she wanted to have sex!? I never acted like this before, every woman I encounter I want to proposition for sex!?? Like so strong sexual desires, but also feeling strong depression, strong mood swings and sleepiness. I just feel...weird, like my personality has been changed. | I do not like this drug at all. Thank god my labs recently said my prolactin has dropped quickly to 4.NL, which i was told is almost below normal, so I feel lucky. I am currently living in a 3rd world country as an English teacher, so many docs here are really unsure what to do or willing to give straight answer. A good doc I spoke with in USA said my tumor did not look aggressive. I will finish out the amount of meds I have then quit them! PLEASE SOME ONE EMAIL ME IF THEY HAVE HAD ANY BIZARRE SYMPTOMS LIKE THIS, tell me I am not crazy! I would rather have surgery then be on this medicine. | M | 35 | 5 weeks .50 2X W | 7/13/2015 | 5 | high prolactin level pituitary gland | OMG.. since I've been on this drug, my body has done amazing things. Weight loss, muscle tone, energy and sex drive. Blood work has been nothing but great. | M | 36 | 2 months .5 | 7/9/2015 | 5 | prolactinoma | Initially (first three months) SEVERE weepiness. Horrible depression, but not all the time, just when I started crying, I couldn't stop. The day after I take it I'm sleepier and more tired than normal. | I take half a pill (0.25 mcg) on Tuesday nights and Friday nights. I'm a little sleepy the next day, but its totally manageable. I have an 11 mm prolactinoma. My prolactin has gone down from 36 to 2. I have no more depression. I barely notice side effects. Great drug, my periods are back to normal. | F | 45 | 7 months .25 mcg | 5/1/2015 | 3 | Hyperprolactinemia | I too just refilled my cabergoline and am experiencing heart palpitations,extreme fatigue,nervousness,etc. AND I just checked & it was filled using PAR not my usual TEVA. I looked at notes written when this happened once before. I can't believe I forgot to ask for TEVA on refill. | I've noticed generally, however, that the day following my taking the cabergoline is when I am very depressed , unmotivated, tired, emotional & irritable. This has always been the case. However the med has def lowered my prolactin. | F | 44 | 6 years .25 2x/wk | 3/10/2015 | 3 | elevated prolactin ....66 | Lost 20 pounds in a month. Didn't sleep for 3 weeks. Stomach pains. Depression and over all feeling of sorrow. Can't stop crying. Constantly jittery. No energency to even go to work. | For the first 9 months I took this medication I got it from Target ..Teva pharma...no problems prolactin dropped to normal and I felt great ...no side effects. In December I was forced to get med through my insurance company mail order. PAR pharma was the manufacturer. It all went downhill from there. my primary and endo drs having stopped medication for now and I am now waiting results of blood work. Anyone else experience different side effects from different manufacturers. | M | 43 | 1 years .50mg a week | 3/5/2015 | 4 | pituitary tumor | Omg been on this probably 15 years! Recently I'm noticing my short term memory is not good. Totally forgot these side effects. Have not gained more weight but not easily lost as well. I started taking my dosage 1x a week? Not 2 x cutting pill in half. Could this have changed the mind.... concerned | Keeps my levels around 22. | F | 49 | 10 years | 2/9/2015 | 1 | Prolactinoma - active | Nausea; heavy, woozy head; headache; extreme tiredness and sleepiness; dizzy feeling; vomiting; hypersomnia - and the very WORST - SUICIDAL DEPRESSION. | This drug is a case where the treatment is worse than the disease. My idiot endocrinologist told me to start out at the full dose and to take it at 9 a.m. Thank God I have learned enough in the last five years to know not to trust a doctor to know what he/she is talking about. So I started at 1/4 of a pill at bedtime instead of a whole one in the morning. It's s good thing. For the next three days I lived with constant nausea, headaches and the feeling that I was only halfway awake. I slept all day and felt horrible when I was awake. Then the fourth day I was supposed to take a second dose, another full pill. I didn't. I waited until I recovered from the first 1/4 dose and tried again. The same thing happened again. The one time I actually took several doses (half doses) according to the prescribed schedule, by the fifth dose I was suicidal. The depression was that bad. Doctors knew about bromocriptine (another dopamine agonist) the 1980s or earlier And now it's 2015 and the best they've come up with is another drug almost just like it. For heaven's sake, these are OUR LIVES you are ruining by expecting us to take these horrible drugs and just "get used to" the side effects. It's no skin off their noses when you call their office and say the drug.isn't tolerable. They just tell you you take it anyway and "maybe the side effects will improve with time." Whose time? Not theirs. Another doctor told me (regarding pituitary tumor treatment) "oh, ed jus | F | 57 | 2 weeks 1/2 mg | 2/1/2015 | 2 | microprolactinoma + high prolactin | Intially: uterine cramping/pain that did not respond to ANY pain meds, combined with aggressive and depressive episodes. Substantial nausea which did eventually dissipate, a period of hot flashes and acne, constipation (did dissipate). After IUD insertion to treat the uterine pain, and dose was upped, two episodes of VERY high sex drive, lasting a few days, followed by aggressive and depressive mood swings, eventually becoming a worsening depression featuring: Lack of motivation, focus and mental acuity, anhedonia, exhaustion, inability to exercise due to oppressive fatigue, no sex drive, hopeless and despairing thoughts, not wanting to get out of bed in the morning, no desire to connect with people, upper portion of emotional spectrum missing; felt just neutral at best, unable to feel happiness or comfort in any form. | Diagnosed with hyperprolactinemia in 2009, with 3mm prolactinoma. Prolactin was at 30, no cycle. Was put on .25mg per week of cabergoline. Within days, I experienced severe uterine cramping which did not respond to ANY pain medication. Dropped to back to half the dose. My cycle returned. Pain: On a scale of 1-10, pain ranged from 3-8, and could last for hours or days. Also had aggressive and depressive moods. Endured this for 4 YEARS. Got an IUD, (Feb. 2013) Pain stopped. Again attempted the .25mg dose. My levels were at 80, dropped to 40, then began to rise again. Dose was upped to 3/4 of the .5mg pill. Sex drive went THROUGH THE ROOF for a week, and then slowly, moodiness set in. Levels were still going up, endo upped dose again to .5mg pill, After 2 days having severe aggressive and depressive episodes, dropped back to the 3/4 pill. Things only got worse; Emotional spectrum went from low neutral at best to absolute despair. Knowing that this was NOT right, I sought therapy and did research. It seemed I was suffering from dopamine depression, which is bizarre because Cabergoline is a dopamine agonist. Depression IS listed in the side effects, occurring in 3% of people. My therapist wanted to see what I was like off the meds. Stopped meds in June 2014,depression lifted though still moody. Currently taking a supplement called Mucuna Pruriens, which contained L-Dopa - VASTLY improved mood, focus and motivation. Levels still high, meds don’t seem to really lower them | F | 38 | 5 years .125-.5mg 1X W | 12/3/2014 | 1 | Macroadenoma - high prolactin | Hair loss, BURNING scalp, nauseous, anxiety, hot flashes, loss of appetite, weight loss | I had a horrible reaction to Cabergoling (generic for Dostinex). My scalp started burning after 3 weeks on the medication and I lost a massive amount of hair. I also completely lost my appetitie and lost 8 pounds in about 2 weeks. The drugs stay in your system too long. If you are considering taking it, I would try a dopamine agonist that does not stay in your system that long to see if you have a bad reaction first. It took me 2 months to figure out that the medication was causing this reaction because it took a while to build up in my system. Be cautious. | F | 40 | 2 months .25 2X W | 11/13/2014 | 1 | headache, insomnia, liver problems | I have had headache, insomnia, bad liver problems! I which I had never take it. Then I had an MRI and the heat dried up my skin. Be sure to stay out of the sun and have no heat on your skin; it will cause brown spots to appear on your skin! I am going to try take vitex(chase berry). Very up happy side effect that can not be reverse by the MRI and dositnex together!!!! | If your dr prescribes dositnex be sure not to have an MRI until meds are out of your system!!! | F | 53 | 1 months .25 | 11/12/2014 | 3 | micro prolactinoma | Migraines (never had these before) insomnia, sudden extreme nausea, joint pain, irritability, exhaustion. Took bromocriptine first for 2 months then switched to this to see if side effects were better. They were different but both terrible. I am struggling to decide which drug is the lesser evil. | F | 26 | 1 months .5 mg 2/wk | 10/18/2014 | 3 | Microprolactinoma | Severe headaches, insomnia, nausea, dizziness, lethargy, strange muscle pain. | I was switched to dostinex after a few months on bromocriptine to see if the side effects were better. I honestly can't say which is worse. They are both horrible drugs that make me feel like I will never get better. | F | 26 | 3 weeks 0.5mg 2X W | 10/5/2014 | 4 | prolactinoma | Acne, constipation, tired, oily skin | F | 25 | 2 months | 9/25/2014 | 3 | pituitary microadenoma | I read through everyone else,s comments with interest as I have been feeling much different since taking the medication. Juts for your information I an prolactinamia with prolatin levels of 1000 with an 8mm benign growth. i have been told I need to be on medication for the rest of my life. So I have had found my self incredibly anxiuos the last few weeks, however I do have bodeline personality disorder, but this is the worst I have felt, so I decided to check if the meds had anyside effects (Dostinex). Seems like it may do, if peoples symptoms are not due to pre existing conditions. But anyways I have started on lexapro (anti anxiety/depressent) to try and find an equilibrium. As I refuse to live a life where I feel poopy 24/7. Good luck people find what works for you :) | F | 27 | 1 months 500mcg 1X W | 9/20/2014 | 2 | Pituitary Microadenoma (Prolactin) | Nausea, headaches, incredibly extreme fatigue, irritability, diarrhea. | Dosage: .25mg once per week (half of a .5mg taken on Sunday night) Cabergoline prescribed for a micro prolactinoma; Prolactin level at 22.5 ng/mL (4.0 - 15.2 ng/mL standard range). Initial symptoms: Extreme fatigue, no libido, lack of muscle tone, trouble concentrating, short-term memory issues. To this point, medication has provided no relief of symptoms; side effects are moderate to severe, lasting from Monday morning until approximately midday Friday. | M | 36 | 6 weeks .25mg 1X W | 9/19/2014 | 5 | Prolactinoma/Pituitary Tumor | The side effects that I have had are pretty much all positive! My personality has FINALLY come back around again -- I have never felt better. Serious sexual arousal as of the last couple of months. My period has come the last three months. I went and got a pedicure about three weeks ago, my normal nail tech said she noticed some white dots in between my toes, they don't itch or anything - I don't know if that has anything to do with it. My feet and ankles do swell, but that could also be from the amount of weight I put on pre-medicine. Also -- I have LOST weight since I went on this medicine and my glucose came down from 126 to 86. I do urinate a lot more often. No headaches, no muscle issues, Irritability has gone away big time. My friends and family have all commented on how I seem like a different person since I started the Cabergoline. | For me, and so far, Cabergoline is the best thing that has ever happened to me with this issue. My Prolactin was around 250 and it is now down in the mid 40s. My doctor wants it down further, so he just pushed me from one pill per week to two. I am hoping that the two pills don't put me into a new realm of side effects. Before I got started with this medication, I asked him, "What are the side effects?" His response: "None - You get better" And after being on the Bromocriptine, I couldn't refuse that. Best of luck to everyone and anyone - I hope it works out. | F | 33 | 5 months .5 2X W | 8/27/2014 | 3 | Micro Prolactinoma | I was diagnosed with a micro prolactinoma 4 years ago when symptoms occurred such as galactorrhea. Side effects I experience include EXTREME fatigue, severe headaches, vertigo when first started taking dostinex, brain fogginess, dizziness if I stand up too fast and just feeling really lousy. I've also had severe problems with my stomach over the last 4 years including bloating, diarrhea and pains not sure if that's related to the dostinex. I went on a trial period for 6months after 3 years where I stopped taking the medication and side effects went away however prolactin levels increased to 880 and starting lactating again so am back on the medication. I am considering seeing a naturopath and trialling something like vitex which has fewer side effects. | F | 21 | 4 years 500 mcg | 8/27/2014 | 4 | Prolactinoma | Extremely high libido and constant sexual arousal. Doctors don't warn you or acknowledge this happens in women. My doc says she's never heard of this side effect in women but I found lots of evidence online that it's common. This is sounds harmless and even funny to some dr.'s especially a male dr. that I had once but this becomes frustrating, embarrassing and problematic for several reasons. On another note, my tumor is shrinking and my prolactin is back to normal. | F | 39 | 3 months .5 mg | 8/22/2014 | 3 | prolactin levels elevated | Dizzy, nausea, chills, hot flashes, dry eyes, extremely tired occasionally I will be confused or forgetful.heartburn | F | 35 | 3 months 25mg 2xWk | 8/14/2014 | 2 | Prolactinoma | anxiety, depression, hair loss, sweaty, personality change, obsessive thoughts | When i started Dostinex back in 2005, i never thought anything of it. It seemed to work since my prolactin level went down and the tumor shrank. Well i believe my personality started to progressively change i became unhappy in life, etc...i stopped the med for about 2 years and the prolactin level went back up with breast discharge. I went back on it , things went ok until it no longer worked. They changed the prescription to 2 x wk in the generic form. I think my depression has worsened since. It was pretty bad before but now i blame it on the medication since i started having hair loss as well. It now all makes sense when i see the posts here. I will try to seek holistic remedies instead. | F | 33 | 9 years 2X W | 8/1/2014 | 1 | Prolactinoma | Severe headache at the back of my head n thinning hair | F | 39 | 10 months .10 | 7/29/2014 | 1 | Prolactinoma | Nausea, headaches, blurred visions, body aches, cold sweats, moodiness, depression, confusion. | I have been using this medication off and on for 5 years now. I was diagnosed with prolactinoma for 11 years now and it took a long time to get the diagnosis. Once diagnosed, I was put on Cabergoline and my periods came back. I became pregnant with my daughter who is now 4 years old. A few years later I missed my period for 7 months straight I was back on the medication. My period returned for 3 months and once again has vanished. I am experiencing headaches - migraine like and worse. Nausea, mood swings (between anger and happiness), I do not have a grip on my emotions at all. I feel like I am going crazy on this medication. I am going to stop taking it - so I don't get my period anymore. I'll deal with it. | F | 30 | 5 years .5 mg 2X W | 7/11/2014 | 4 | leaky breasts/8mm pituritary tumor | Achy joint pain in my legs (my ankles, knees and thighs ache) I usually get full quickly or don't want much to eat I get tired for two days after taking pill (little dizziness) I get aggravated a bit more easily (this I really dislike!) My libido has returned (very happy about that--feel like a woman again) | I've read so many women not having a menstrual cycle prior to being diagnosed. I never experienced that. My periods got worse (huge clots and heavy, heavy bleeding) prior to taking dostinex. | F | 44 | 2 months .25 2X W | 5/26/2014 | 3 | Microprolactinoma | Dizziness, fatigue, weight gain, headaches, hair loss | When I first started taking Dostinex, my muscles were really sore, and I hadn't even worked out or anything. Then my neck started aching for no reason. In the meantime I was experiencing headaches, dizziness, and everything else. Recently, I've noticed hair loss. I have very thick hair, but now it is half the thickness that it used to be! I also gained 10lbs in a month which I worked so hard to lose during the summer. Yes, the medicine has lowered my prolactin levels from 257 to 29 within 3 months and restored my period which I hadn't had for 3 years, but I feel like there are too many side effects for me. | F | 17 | 3 months .5 2X W | 1/19/2014 | 4 | High prolactin Microadenoma | My periods stopped when I was 25, and Dostinex helped them become regular. It does cause lethargy, tingling in the hands, aural migraines, and white lights in my periphery. My OBGYN suggested I take the drug vaginally and that reduced the side effects. He had me stop taking it last week to see if my levels go up because I've been on it so long, and I have since had two migraines within 3 days, and a dull headache. I think these are withdrawal symptoms. I will also have a bone density test done to see if it's had any effects on my skeletal system. | This drug does work, and it has allowed me to ovulate and have two children, but it does have side-effects. The anti-depressant Zoloft makes the lethargic effects even worse...I felt like a zombie during the day, so I'm now taking 150mg of Wellbutrin instead, and have gotten my energy and focus back. I'm thinking that it might work even better now that I've stopped the Dostinex. My advice to the ladies experiencing side-effects, take this drug vaginally (you know it's tiny, so just insert it and it dissolves), and consider the low-dose of Wellbutrin, or the generic to counter the tiredness. | F | 39 | 12 years half .05mg 2X W | 1/16/2014 | 3 | Macro Prolactinoma | Dizziness, extreme exhaustion, blinding headaches for days, increased libido, aggressive behaviour, mood swings, insomnia, shakes, blackening over my eyes just about to faint, nausea, foggy brain, can't concentrate and finally depression. ---------------------------------------------------------- Let me explain my situation. I was diagnosed in 2002 at 17... Never having my period, blood test revealed prolactin level at 10,500. I was put on Dostinex, but it was a gradual step up to my full dose, so never felt the side effects until I got to my 2 tablets a week, then the fun started. I was very aggressive and angry all the time, then constantly sad... Now leading up to 2006 I had quite a tough year with deaths so I just put it down to grief, until it was Christmas Day and I was balling my eyes out because I couldn't find the right words while talking to my mum. I saw my endo, he wanted to put me on anti depressants, I don't think counteracting meds with more meds is smart, so I seemed a 2nd opinion. My tumour was encasing my pituitary, it was 1.7x1.4x1.8cm and just touching my optic nerves. New endo said I was the perfect candidate for surgery so I took that option, after being on bromocriptin for a few months. Fast forward to now 2013... Since surgery my prolactin levels for the for at year were good, but those pesky secreting cells generate quickly, and my prolactin levels were creeping up. They were quickly back up to 1000-1500. Now that my peri | F | 28 | 4 years 2tabs a wk | 12/6/2013 | 2 | Prolactinoma | Scary dreams Skin rash / blistering. On my forearms, back, either side of my neck. Even on the outer labia! Dr precribed anti-fungal. Its been useless. The blisters are tiny, and the patches are growing rapidly. I am stopping the medication. | F | 36 | 4 months 1.25 mg | 11/18/2013 | 1 | slightly elevated prolactin leveks | Depression, anxiety, nausea, loss of appetite, lightheadedness, dizziness, hot flashes, insomnia | F | 25 | 4 weeks 0.5 | 11/9/2013 | 5 | Tumor on pituitory glad | Dizziness, lower blood pressure, nausea after I take it but it passes the next day, fatigue. | F | 44 | 10 years 2 tab week | 9/13/2013 | 1 | my prolactin is high | I'm feeling weak the next day I took it & the pain got worse on my breasts• | F | 6 weeks | 9/10/2013 | 3 | Prolactinom | Tired. Headaches. Extreme fatigue. 2nd time I try this medicine due to a tumor. The most difficult part is trying to lead a normal life and working full time cause some days I feel fine others like I am really sick. Lost my job last time I was on dostinex. My fear is this will happen once again. But not taking medication is not an option I can continue with unfortunately. I quit smoking and started doing exercise 4-5 times a week. It helps. So much I only need half a pill a week instead of 0.5mg last time. | F | 33 | 8 weeks 0.25 mg | 8/12/2013 | 1 | prolactinoma | terrible heachache, muscle contractions, tingling in hands and feet, pain in chest, hysterical laughter | I took dostinex for 9 wks for a prolactinoma (3- 4 mm) since I was lactating. Immediately had a bad headache for days and muscle pain in various parts of my body. Would laugh about nothing almost like I was drunk. My family couldn't believe it! Started getting tingling and numbness in hands and feet and then had an attack of some kind. Waves of nerve pain in my hand, arms, feet and legs. Uterine contractions, pain in both kidneys with radiating pain around my torso. The worst was a pain in the middle of my chest accompanied by nerve pain radiating from it with my arms going limp. Had this for 14 days even though I had stopped the medicine. Have been back and forth to a neurologist who thinks it may have been dostinex interacting with my migraine medicine, sumatriptan. Do not take these together ever! After 4 months, I still have neurological pain in my face(I thought I needed several root canals), hands, feet and throat. Hoping this will all go away! Meanwhile, my prolactin level went up, of course, since I am no longer on the medicine. | F | 49 | 9 weeks 25 mg 2X W | 7/9/2013 | 5 | Highlevel of prolactin and unwanted breast milk | Dizzy and slight headach for the first 2 days after i must have taken the drug | F | 25 | 8 weeks 0.5mg once a week | 5/25/2013 | 3 | Pituitary macroadenoma | first month after taking meds, sexual drive was improved (better erections compared to non existent before, felt better, more postive outlook in general. After second month, felt like crap again, sexual drive almost went away completely, very foggy brain and inability to concentrate Third month now, seems like it slowly improving again but not where I was one month ago | I was diagnosed with low T a several months back and they determined it was due to high prolactin levels (512 - should be between 2 and 18) and a pituitary tumor (14mm). After taking the meds for 2 months, had more blood work done, and my prolactin levels had dropped from 512 to 46. A significant improvement but still considered high and outside the normal range. T levels however are still low, still at 130 where they were before (should be between 300 and 1000. Second MRI showed decrease in tumor as well, down to 7mm. I am hoping that by continuing to take the meds, they will bring my prolactin levels to normal and will hopefully trigger my T levels to kick in and begin increasing...I am not sure why I felt a huge difference between the first and second month of taking the pills. | M | 38 | 3 months 0.25 2X W | 5/23/2013 | 5 | Microprolactinoma | No side effects at all. I don't even feel like I'm taking anything. | I am trying to conceive another child and was diagnosed with high prolactin. An MRI showed a 4 MM prolactinoma on my pituitary gland. I had no symptoms of this tumor other than light periods. My prolactin levels went down to normal just 4 weeks after starting this drug. I have had absolutely no side effects on this medication. | F | 38 | 7 weeks .5 MG 2X W | 5/17/2013 | 3 | pituitary macroadenoma | I have been taking this med for about a year now. I was diagnosed with a pituitary macroadenoma that was over 5cm. My prolactin level was 1900 before surgery. 90 percent of the tumor was removed they could not reach it all because it would have killed me it is wrapped around my Carotid artery. So after the surgery they put me on this med it started making me sick and has caused many other side effects like feeling weak or tired, loss of appetite, rapid weight loss, headache, depressed mood, nausea, vomiting, stomach pain, gas, indigestion, constipation and feelings of anger. At this point I have no other choice if I do not take this medication my surgeon and all my doctors said the tumor would grow back in 2 years or less and it would kill me. I really would like to hear from more people about their experiences with med and if anyone is having all the same side effects as me. I feel as if I am going crazy because I either die or feel horrible forever cause I can never stop taking it. | M | 23 | 1 years | 5/7/2013 | 3 | Menstrual cycle stopped | Neck pain, Migraines, Fatigue, Hot Flushes, Intolerant to heat | F | 35 | 6 years .5mg | 5/6/2013 | 3 | pituitary adenoma | I HAVE BEEN TAKING CABERGOLINE FOR 14 YEARS NOW. IT LOWERED MY PROLACTIN LEVEL AND RESTARTED MY PERIODS WHICH HAD BEEN ABSENT FOR YEARS, BUT I HAVE SUFFERED SEVERE PERSONALITY CHANGES, ANGER, ANXIETY, TIREDNESS AND CONSTANT DEPRESSION. I STILL HAVE HOT FLUSHES AND NEED TO SLEEP A LOT. THE WORST EFFECTS ARE GASTRIC IRRITATION AND CONSTANT STOMACH PROBLEMS. MY LIFE HAS BEEN MADE VERY DIFFICULT BY THIS CONDITION AND THE MEDICATION I FIND HARD TO DEAL WITH. I CAN'T BELIEVE THIS IS AS GOOD AS IT GETS, IN FACT IT SEEMS TO GET WORSE THE LONGER I AM ON THIS DRUG. | F | 57 | 1 years .05mg | 4/17/2013 | 3 | pituitary microadenoma | shortness of breath, can't concentrate, easily confused. no organ reserve. I have one speed, which barely gets me from a to b. can't do sports because i can't push myself to perform. feel like a zombie. | brought down my prolactin and my testosterone up but, can't get me to the normal levels | M | 42 | 2 years 2 pills 3X W | 12/6/2012 |