There are 282 ratings for the drug: DOSTINEX in the Askapatient database.

Key to ratings for dostinex: 5-Very Satisfied: this medicine cured me or helped me a great deal. 4-Satisfied: this medicine helped. 3-Somewhat Satisfied: this medicine helped somewhat. 2-Not Satisfied: this medicine did not work to my satisfaction. 1-Dissatisfied: I would not recommend taking this medicine.

Page: 1  2 3    Results are sorted by Date Rating Was Added.

Rating	Reason	Side Effects	Comments	Sex	Age	Time Taken		Date Added
				F  M
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3	pituitary microadenoma	extremely tired all the time, nausea, headaches, increased libido, bad circulation, extreme moodswings, depression, night sweats, dizzy, light headed	I took bromocriptine for about two months a few years ago, and had much worse side effects then I have with dostinex. My increased libido is driving me crazy because my boyfriend just can't keep up with me. I'm depressed and can't stop thinking about things. My mind is constantly going. I can hardly get out of bed some days because I'm so exhausted. It's becoming a problem with my job because I have to take off of work so much.	F	27	2.5 weeks		2/1/2010 Email
4	pituatary tumor	I'm supposed to take .5 mg of the generic (Cabergoline) once per week. The first 24 hours after taking the pill I am exhausted. I used to cut the pill in half and take half a pill every 3 or 4 days. It helped. The real problem is the increased libido. I wish one of my doctors would've warned me about it. (I didn't know what was happening to me or why.) Stress makes it worse. In 2009 I stopped taking Dostinex for several months, until the symptoms of my tumor (including the headaches) returned. I just can't handle the raging libido when I'm completely stressed about my job. Now I'm taking half of the prescribed dosage each week. Based on the comments I've read here, I'm beginning to wonder if Dostinex can cause or reduce depression or anxiety. I have noticed my mood has improved since going back on on the generic of Dostinex.	It's far better than Bromocriptine and it works. My 2008 MRI and labs & early 2009 labs were good. No need to increase my dosage of Dostinex, but no talk of decreasing it.	F	37	9 years		1/31/2010 Email
2	high prolactine due to tumor	Headaches, so very tired, lack sex drive, mood swings, anger,constipation, dizzy, lack of interest, depressed		F	27	4 weeks		1/30/2010 Email
4	prolactinoma	greatly increased libido, get very tired at some point in the day, don't handle stress as well, anxiety attacks	at first the increased libido was welcomed but it has become a serious problem, too easily aroused and difficult to quit thinking about sex. The anxiety attacks come less often, probably from changing my life style at my doctors suggestion. I had to resign from a position that had too much stress that wouldn't have bothered me before dostinex.	M	63	6 years		1/28/2010
3	Prolactinoma	Dizziness, Constipation and Bloated Stomach	After missing my period for years, I was diagnosed MRI Scan with a 5mm Tumour. I have been on Dostinex now since 2002. I only started suffering severe and chronic constipation April 2007. Recently I have also started suffering very uncomfortable BLOATED Stomach. After researching Dostinex, I have found it depletes the digestive enzymes via the pancreas and liver to the stomach, hence this explains the constipation and Bloated stomach. Has anybody found a NATURAL way to HEAL this Tumour problem rather than taking a DRUG that has side affects. HELP'!	F	51	7 years		1/26/2010 Email
3	3800 prolactinoma 3mm tumors	I have been taking half a tablet of Dostinex once a week for 4 months. The first week was hell! I felt extremely dizzy all the time, nausea, vomiting, tiredness, I was a wreck. However after a couple of weeks the feeling got better. After 2 months of taking it I got my first period/menstrual after 1 year. Now and then I feel really fatigued, nausea and irritable. I also get sharp cramp like head aches. Despite the side effects I am positive about this drug, its worth it! Sometimes you just have to try and use mind of matter and fight back. good luck to you all.	does anyone know anything about falling pregnant with prolactonemia? We will start trying for children later on this year and i just wanted to know what to expect?	F	24	4 months		1/9/2010 Email
3	pituitary tumor	severe nausea, dizziness, some stomach pains and lack of appetite and libido. weird dreams. possible increase in acne.	Don't know if it's worked yet, but the side effects are less than on parlodel so i hope that it does. not unbearable, in any case, but awfully annoying sometimes.	F	20	1 months		1/4/2010 Email
1	elevated prolactin 35 no tumors	PROFOUNDLY FATIGUE, FLU LIKE SYMPTOMS, CHILLS, HOTFLASHES, DIZZINESS, BLURRED VISION, HEADACHES, UPSET STOMACH, ACID REFLUX,LETHARGY,DECREASE APPETITE, FEEL LIKE I AM GOING TO DIE.BODY ACHES ALL OVER! FEEL LIKE I'VE LOST MYSELF. SHORTNESS OF BREATH, VERY SAD AND EXTREMELY HOPELESS!	I HAVENT TAKEN THE MEDICATION LONG ENOUGH TO SUGGEST TO OTHERS WHETHER OR NOT THEY SHOULD TAKE IT! JUST WANT SOMEONE TO KNOW HOW I FEEL! MAYBE SOMEONE CAN EMAIL ME WITH SOME SUGGESTIONS ON HOW TO DEFEAT THESE EFFECTS!	F	39			12/16/2009 Email
5	Prolactinoma	None I have noticed	Prolactinoma was diagnosed in '05 & I began cabergoline 0.25 mg twice a week. This lowered my prolactin level & reduced size of the prolactinoma rapidly. I experienced increased libido & wish I had been diagnosed earlier as libido had declined without my knowing why. I (also my wife) have been pleased with the results of the medicine.	M	61	4.5 years		12/10/2009
4	prolactinoma	Galactorrhea-leaky breasts, weight gain, decreased libido.	Prolactin levels coming down, weight loss with exercise, no more bloating, increased libido. Only bad things are that I am always tired and my breast size has not yet decreased. Want them to shrink a little but not disappear.	F	26	2 months		12/9/2009 Email
4	prolactinoma	always tired, sometimes feeling week.	Prolactin levels coming down, weight loss with exercise, no more bloating, increased libido. Only bad things are that I am always tired and my breast size has not yet decreased. Want them to shrink a little but not disappear.	F	26	2 months		12/9/2009 Email
5	hyperprolactinemia, microadenoma	slight dizziness	I took dostinex after being diagnosed with a microadenoma and slightly high levels of prolactin (34). This level in itself was stopping me from ovulating, although I had anovulatory cycles with periods. I took this back in 2008 and got my periods a month later. I got pregnant during that first cycle and went on to have a healthy pregnancy - unfortunately it ended badly because our little girl had a genetic disease that we found out about at 36 weeks.... We are now ready to try again, but when I started taking dostinex immediately after childbirth, my levels did not come down as fast. 10 weeks after childbirth, my levels are at 31, I had hoped that the effect would have been the same as before the pregnancy and that the levels would be down around 20 by now if not lower. My endocrinologist is stumped. We have increased the dose from two half tablets a week to one and a half tablets a week to see if that works. Does anyone have any experience of dostinex reducing levels in the weeks following childbirth? My periods aren't back yet, but I am hoping that this increased dosage will start my cycles again like before.	F	31	10 weeks		12/6/2009 Email
3	Pituitary adenoma	Lack of energy, headaches, nausea, hair loss on my head, hair growth on my face & back, short attention span, weight gain, insomnia, and my skin is dry.	After taking bromocriptene & dostinex twice a week for 10 years and having my tumor shrink dramatically, I convinced my Dr to allow me to stop taking the drug to see if my condition would change. My hormone levels remain normal but I'm having bigger problems with low energy, Ive become "anti-social" and my attitude has really suffered, especially at work. This feeling is almost as bad as the side effects from the dostinex. Has anyone else quit taking the drug? How are you feeling?	M	57	10 years		12/3/2009 Email
5	macroadenom	i think i dont have any seriosly side effects	I am so happy that I found the Dostinex .I hope that mi life will go on. Before, i was very depresd	F	28	4 years		11/26/2009 Email
3	Prolactinoma	Occasional headaches and stuffy nose. I notice if I miss a dose I start to feel kinda shakey. I don't know if this has anything to do with not taking the medication.	I've been on Dostinex for about 6yrs. now. I think it has helped me somewhat, I still have the pituitary tumor but it has not grown at all and my breasts still leak a little but not nearly as much as before the Dostinex.	F	42			11/26/2009
3	Hyperprolactinenemia	Very sleepy, tired, constipated	What are your experiences in reducing gynocemastia with cabergoline? And weight loss/libido?	M	21	7 days		11/19/2009
4	Elevated Prolactin/ Microadenoma	Sleepy all the time. I feel like my mind is cloudy/slow. I'm moody and I cry often. I basically feel like crap all the time. However, overall I feel better than prior to starting cabergoline.	My microadenoma is 8mm and have been taking Cabergoline for 3 months. My prolactin level was 60 and after three months on cabergoline it's 72!! My level increased :( I'm going back for a repeat MRI to see if the tumor has grown.	F	31	3 months		11/15/2009
3	Hyper prolactinemia due to Empty Ce	Enlarged painfull breasts, feeling angry often, lack of energy, tremendous weight gain, periods still not regular - it varies from 31 days to 17 day cycles. I'm still battling with severe pms. I still haven't fallen pregnant after using it for 10 months - 0.5mg twice a week.	Dostinex restored my libido. I also experience less drastic periods ie from having 10 day heavy bleeds it has now come down to maximum 5 days and very manageable.	F	40	10 months		10/28/2009
4	macro prolactinoma	tired, dizzy ,anger,edema , depression , the same as all the other people	4.3x3 tumor, prolactin 5400 at first in june 2009, now in October it is at 141 and the tumor is 4x2.3 I am tired a lot but am still working as a farmer/rancher, I guess life will go on. I hope the tumor shrinks more . No good insurance and this is getting very expensive. I pray for a time when I can feel good again.	M	56	120 days		10/25/2009 Email
5	Micro Prolactinoma	Extremely high sex drive. I found myself constantly thinking of my wife and feeling a need to have sexual intercourse. It turned me into an animal basically, always thinking about her, always wanting her. I did have quite a few other side effects as well, nowhere near as beneficial as my sex drive. I would have instant angry feelings, about the most trivial of things. I would just be angry for no reason at all, the slightest thing would irritate me. I would also lose concentration so easily. I found I couldnt focus on anything for long, except obviously my wife and having sex with her. I do experience alot of fatigue, I find myself tired far more than I was before I started this drug. My stomach does have issues being upset more than it used to be as well. The drug is very effective as it has reduced the tumor and kept it from growing back. The side effects can be wonderful if you can identify them early on and learn how to handle them. That is kind of a reason I am here, I really wasn	All and all, I would just say make sure both you and your spouse are well aware of the side effects so that you both understand what is going on and she can help you recognize the bad effects as they are happening, instead of thinking there is something seriously wrong with you, or worse, taking it personally. AS far as the sexual desires, I dont think there are many wives that would be against that from their spouse, especially far into their relationship when things have a tendency to slow down. My wife has two children, and I still find her the most beautiful and attractive woman on earth. I cant get enough of her! This drug could really mess things up if you arent aware of the side effects, if you arent in a strong relationship, I could see how cheating would be an issue, I definately see how the anger flashes are a problem, the lack of focus, the lack of concentration, the irritability, the sleeping patterns, insomnia, the stomach issues. As long as you know to deal with them, then this is a wonderful cure for these types of tumors.	M	39	9 years		10/23/2009
1	Macroprolactinoma	Sexual addiction, sexual compulsion,loss of focus, loss of concentration, complete change in personality	Where to begin? I have a 2cm x 2cm x 2cm Macroprolactinoma. Started out with Dostinex in 2005 and switched to generic in mid 2006. Noticed a change from the generic. Starting in 2005 I became addicted to internet porn. Now in 2009 I finally had a sexual affair and I don't feel in control of myself due to sexual compulsion and addiction. I have hit rock bottom because my partner of 17 years caught me in that affair. I want to quit cabergoline but the alternative [bromocryptine] is even worse. Does anyone know of an alternative to dostinex and bromo or something to take with the dostinex to control the sexual addiction? Please let me know by email.	M	42	4 years		10/9/2009 Email
4	high prolactin level	The first day after I take Doxtinex it feels like I have the flu. I have to stay in bed because my head hurts so badly. I have a decreased sex drive, stuffy nose, occasional headaches, weight gain, constant constipation, and feel tired all of the time.	I started with Parlodel and was able to become pregnant.The initial side effects were horrific. I took Dostinex throughout my second pregnacy and had a healthy baby girl. The only problem was that I could not breast feed because I didn't go off of the medicine soon enough. I have tried to go off of the Dostinex, but my prolactin levels always rise and then I have to start all over again. I do take birth control pills because they seem to keep everything regular. I take Seasonique because with them I only have a period four times year and the week I get my period there are pills with somehwhat of a hormone that doesn't just drop me cold turkey. When I take regular birth control pills I have horrific headaches during the week I'm off and having a period. I am tired all of the time and it is extremely difficult to lose any weight. I do have bouts of anger over nothing in particular and I'm glad to read that it is a symptom most of us share. It does pass, but at least now I can sum it up to having this problem rather than I'm losing my mind. I would reccommend to anyone who is trying to become pregnant that they find a reproductive endocronologist because they specialize in this area. I take .5 of a pill twice a week and my prolactin is now at a zero. After reading all of your comments I might try reducing my dose to see if my symptoms become less. I'm not sure I can cut that already small pill any smaller, but I will definitely try. Good luck to all of you and remember to a	F	38	14 years		9/27/2009
3	microprolactinoma	plenty restless sleeplessnights,bloated stomach,	I have recently been diagnosed with a microprolactinoma, i had not had a period since i had my daughter 5 years ago, before being diagnosd with this, i had really bad headaches, moodswings,aggression and just upset and going mad at the least little thing and really wasnt coping to well with my 5 kids as i always seemed to be angry! also no sex drive which resulted in a split with my partner although i dont blame him....now i have been taking cabergoline once a week for 3 weeks and have to do so for 3 years, i feel so much better already! i feel really happy and hyper the day after taking my med and just feel like i am changing back in to the person i used to be, still no sign of a period yet and still no sex drive what so ever, but i will keep you posted...good luck everyone	F	35	3 weeks		9/25/2009
4	MICRO PITUITARY PROLACTINOMA	HYPO THYROID, 4MM TUMOR, LACK OF SLEEP, HEADACHE, CONFUSION AND SLOW CO-ORDINATION 24HRS WITHIN TAKING 0.25MG ON FRIDAYS. LESS SEX DRIVE, HORMONAL ISSUES, DEPRESSION. PRE & POST PND. WITH 2 KIDS. ANXIETY, IRRITATION TO NOISE LEVELS.	I HAVE COMBATED MOST OF THESE ISSUES WITH ALSO WORKING WITH A NATROPATH AND MY DOCTOR. MY HUSBAND SAID THE BITCH HAS FINALLY LEFT THE HOUSE. NATROPATH BRAND OF METROGENICS FOR ALL THE SYSTEMS ABOVE AND CAREFULL HORMONAL CHARTING OF EVERYTHING FOR 3 MTHS HAS MADE OUR FAMILY LIVE GO FROM HELL ON WHEELS TO HAVING A WIFE/MUM THAT EVENONE EVEN ME LIKES. I WAS DIAGNOSIED AFTER 1ST CHILD AS MILK WOULD NOT DRY UP, 1 YEAR AFTER BREAST FEEDING STOPPED. I COULD HAVE BEEN A WET NURSE. ONLY ON A LOW DOSAGE AND IT WORKS FOR MY FAMILY. BEEN ON IT NOW FOR 5 YEARS. STILL STRUGGLE WITH WEIGHT ISSUES AND THYROID ISSUES. MY HUSBAND IS MY REMINDER TO TAKE IT EACH WEEK. AS WITHOUT IT. THE BITCH FROM HELL IS BACK. EVEN FAMILY AND FRIENDS NOTICED WHEN I STARTED WITH THIS TABLET, BUT COMBINING IT WITH HELP FROM A NATROPATH, & HEALTHY FOOD . IT HAS MY MADE LIFE AS ME THAT MORE PLEASANT. I LIKE ME FOR ME AND NOT THE DOUBLE LIFE I THINK MY BRIAN WAS LEADING ME. AS MY HORMONES CONTROLLED MY LIFE. NOW I DO. WOULD LOVE TO HEAR FROM OTHERS.	F	42	5 years		9/21/2009 Email
4	Macroadenoma	Weight loss, upset stomach, loss of appetite... I also have suffered from a bleeding stomach ulcer which my Dr thinks is related to the upset stomach I have constantly suffered and increased stomach acid since taking Dostinex.	I was diagnosed in January with a 4cm pituitary macro adenoma. I have been on Dostinex now for nearly 9 months. Just had latest MRI and it has shrunk to just over 1.6 cm. Still no return of periods but hormone levels seem to be more stable and I have lost about 10 kilos.... by pretty much not doing anything.... so every cloud... Hopefully by Christmas I should it should be down to a microadenoma and be measure by mm rather than cm!!!	F	29	9 months		8/27/2009
2	prolactinoma	more sleepy than usual, irritability, dizzyness and confusion, shorter memory, severe bloating and tight stomach, mild constipation, restless legs at night, increased sensitivity both physically and emotionally (didnt want to be touched). Increased acne compounded by cystic Acne.	Was diagnosed with 5mm pituitary tumor 9 months ago. Levels in November were 90. Went on dostinex @ .5mg 2x/week and experienced many side effects. By February prolactin levels were down to 50. But by april they were up to 65 and by august they were up to 75. By this time I had not been experienceing side effects quite as severe and for a short while, my sex drive even went up a bit but then went back down. I moved and got a new doctor who incresed my dosage to 1.5mg 2x/week because of the apparant resistance to the old dosage. Now I am experiencing side effects all over again. I really hate the way I feel on this drug and really hope that this new dosage will do the trick because I cant imagine going on a higher dosage. I am 30 and would like to have a baby but aparantly Im not even ovulating yet because my cycles are still not on track according to my doctor. The shortest has been 34 days but most of them are between 40 and 55 days long. Another thing... I have always had trouble with acne, but it got worse closer to when the hyperprolactinemia was diagnosed, then after I went on Dostinex, it got the worst it has ever been in my life... Im talking about cysts deep under my skin that you cant even squeeze to relieve the pain caused by the pressure.	F	30	9 months		8/12/2009
3	Thyroid disorder - pituitary gland	sleepy.		F	46	5 years		8/1/2009 Email
5	Pituitary microadenoma	Very few side effects, some fatigue at first, but compared to parlodel, its been amazing. Did someone say something about getting Dostinex in Korea? I'm living there now and having a hard time finding it and I've only got 4 weeks left of med.	Once my prolactin levels had dropped, which they did, tremendously, I have been able to be maintained on an extremely low dose of Dostinex. I finally had to make the transition to cabergoline generic, which I am not as comfortable with, but couldn't find any more branded after the recall. My tumor is very small, not even a centimeter, but the effects of it were still very obvious to me, including the weight gain, hyper prolactin production, and breast cysts. All of these symptoms have been controlled with Dostinex and I am down to .25mg/week. I tried to come off of it all together, but my prolactin levels began to rise again. All in all, I love Dostinex and its changed my life for the better.	F	26	3 years		6/24/2009 Email
4	Pituitary Adenoma	Shortly after an MRI scan my doctor found a benign pituitary brain tumor because I went in to complain that my breast were leaking in 2003 . Its been 6 years and I am happy to report that my tumor is gone and the side effects were mild but its caused other problems or at least I think its related to my condition. I am not 100% sure if this was because of the tumor or medicine (Dostinex) but for the last 3 to 4 years I have had irregular and very heavy and painful periods that last up to 2 weeks sometimes. My last doctor's visit stated that I was going through the early stages of menopause and have to get more tests done to confirm these new findings. Can anyone relate to this because I don't want my chances of having more children over and/or God forbid a hysterectomy. I also not allowed to stop taking Dostinex until they can determine what is wrong with me now. Again can anyone relate?		F	33	6 years		6/24/2009 Email
3	hyperprolactinemia	Extremely tired all the time, hard to get up in the morning but difficulty falling alseep at night. About 1.5 days after I take the dose I feel like I took a percocet for no reason. Kind of a fuzzy feeling in my head. Headaches between my eyes often. The only thing is my brest do not hurt as much as they did before I started taking it.	I am not sure what to do when I get pregnant. My breast were so full of milk (not secreting) prior to starting this med. When I stop taking it I can't even imagine how big the girls are going to get!!!	F	34	7 months		6/23/2009
5	Micro Prolactinoma	I would get dizziness if I stood up to quickly especially out of the bath.	Started taking dostinex in Sept 08 after a 4mm pitutary tumor was found. I never have had a regular period, usually about 3 or 4 a year. After starting dostinex i had 7 regular periods then fell pregnant first try when we started trying in May 09. I'm now 8 weeks pregnant! I stopped taking the dostinex when I was 4 weeks and will need to go back on it after the baby is born.	F	30	7 months		6/15/2009
5	Pituitary Gland Tumor	I've always taken the medication (Cabergoline) at bed time. Too late and I wake up with a "hang over" feeling. Too early and I can't sleep. I take it right at 10:00 when I go to bed. Routine is essential. Initially... crazy dreams and insomnia. Today, NOTHING! It's as if I've taken noththing. I've been on it for about a year. Tumor has shrunk. Prior to medication, side effects of tumor were: High Blood Pressure, which my endocrinologist refused to believe was related; proved him wrong, High Prolactin levels caused me to lactate! blood sugar levels were erratic. I was miserable. Today, I'm back to my old self. Textbook periods, 28 days to the minute!!!	My only concern that I've read is that it causes heart valve damage when taken for Parkinsons. Any truth to my condition???	F	45	1 years		5/25/2009 Email
4	microprolactinoma	Side effects..hmmm. I have been on this medication for almost 14 years and I haven't really experienced many side effects. Headaches. My symptoms from the tumor decreased so its a blessing!	When I was first diagnosed I was 14 years old. I was first put on Parlodel and it was HORRIBLE! Finally, I seen an endocronologist who gave me Dostinex. In the beginning it was so expensive and it had went down some when the generic version Cabergoline came out. But I have to make sure I always have insurance because I can not afford the meds without it. When I started taking this I had never had a period and it took till I was 21 to finally have one. I was told I would never have children and at 22 I got pregnant. Yay!! This medication has done wonders for me. If your doctor tells you that you can't have children because of this, I say challenge them. Stay on top of your prolactin levels and MAKE the doctors increase your dosage until YOU feel right. We know our bodies, NOT the doctors. You pay them to make you better and stay on top of them until they do. Feel free to email me. I have been through it all with this medication. Good luck and God Bless to all of the women out there struggling to have children because of this disease!!	F	27	13 years		5/15/2009 Email
2	Elevated levels of Prolactin	Major aggression and anger, constant anxiety over every little thing, insomnia, constipation	I switched to Dostinex after suffering major physical side effects with Parlodel i.e. falling asleep on my desk, stuffy nose etc. Given the 2 options, I'll take the physical side effects over the crazy lady any day!	F	32	6 weeks		5/14/2009
2	Macroadenoma	Weight loss, stomach upset, occasional dizzy spells	Just had 3rd MRI that confirms it has not shrunk and is non secreting so been put forward for surgery as now 2mm from optic nerve. Has anyone had this? Keen to find out more from people who have been through it. If so please email me. Thanks	F	28	3 months		5/12/2009 Email
3	Prolactanoma tumor	My 16 yr old daughter has very bad headaches and misses a lot school but keeps her grades up. She has anxiety, tired, dizzy, depressed, blah feeling, upset stomach. The headaches last for days after taking it and she only takes 1 pill a week and at night. Tumor did shrink to 3mm from 6mm.	She is very young and skinny. I think it depresses her to have to take the medicine and complains about it. I feel sorry for her and she will probably be taking it for many years to come. We are switching to a new endocronolgist for a second opion.	F	16	1 years		4/28/2009
3	high prolactin	real bad headaches, no energy, producing milk, weigh gain. depressed.	I started the medicine back in September. My prolactin level was 240. It is now down to a 4.I feel it work for a little bit . I am back to being tired alot, i feel like i am forgetting also Know i am having tingling on the right side of my chest . Ihad a echo done in Decembember and a cat scan all came back normal. I am not sure if this is a side effect. Has anyone else had this proublem?	F	33	8 months		4/27/2009 Email
4	infertility/high prolactin	Extreme energy-can function on much less sleep. Extremely efficient at work-my mental clarity is better than it has ever been. Higher sex drive. Increased thirst. Hyperactive-difficult to calm my mind.	It has restored my period to normal in just 3 months. I have been trying to conceive for 3 years and had short luteal phase due to elevated prolactin (my levels were 33 and they are now 7).	F	36	3 months		4/20/2009
3	prolactinoma	Hi friend, I’ve taking gabergoline since 2003. At first, I thought I was in heaven…the best sex ever and immense energy. But little by little the bad side effects sneaked in and started being hypersexual. I then developed paranoia. I thought helicopters were following me. At first I lost a ton of weight and then I became very strong. There are some very weird, unexplainable side effects, an anomaly. I make other people excited by my mere presence or when I look at people. One of the girls I dated said that it looked like sexuality would come out of my pores. It’s like pheromones or something like that.I have no idea what the heck is going on. Do you know why the original manufacturer stopped making the drug? It almost like this drug amplifies your thoughts or so powerful that it projects your thoughts.	Has anyone had what they consider a successful Gamma knife or Cyber knife surgery.	M	44	4 years		4/15/2009 Email
3	Prolactinoma	Daily headaches (usually right between the eyes), blurred vision, dizziness, nausea, chest pains - started a couple weeks ago(I'm assuming it's anxiety), confusion (I feel like I'm getting dumb!), constipation, feeling "puffy" even though I'm losing weight, loss of interest in most things...overall Blah.	It seems to be working, but is it worth it? These side-effects are terrible. I'm a little jealous that I didn't get the "increased libido" side-effect..at least I'd be enjoying something about this drug. (my husband too!).	F	32	4 months		4/2/2009
5	ELEVATED PROLACTIN	OKAY EVERYONE NEEDS TO READ THIS!!!!!!!!!!!!!!!!!!!!!! I HAVE BEEN ON THIS DRUG PROBABLY LONGER THAN ANYONE IN THE U.S. BECAUSE WHEN I STARTED TAKING IT, THEY USED TO HAVE TO SHIP IT FROM THE U.K. FOR ME. I HAVE HAD ALL OF THE SYMPTOMS FROM THE DIZZINESS, FLU LIKE SYMPTOMS, SLEEPY, LACK OF ENERGY, NO MENSTRUAL CYCLE FOR YEARS,TOOK IT WHILE PREGNANT (EVEN WHEN I WAS TOLD I COULDN'T GET PREGNANT SINCE I HADN'T HAD A CYCLE IN OVER 3 YEARS--YET STILL OVULATED) ETC, ETC. YOU NAME IT, I'VE MORE THAN LIKELY EXPERIENCED IT. I'VE BEEN GOIN TO THE DOCS EVERY 90 FOR THE LAST 16+ YEARS, AND HAVE HAD MULTIPLE MRI SCANS (I SWEAR I PROBABLY GLOW IN THE DARK NOW) WITH ALL OF THIS I DON'T SUGGEST ANYONE GOING TO PARLODEL, I ALWAYS TELL EVERYONE TO KEEP UP WITH THE LAB WORK, AND DON'T SETTLE WITH THEM NOT CALLING YOU. KEEP UP WITH GETTING THE RESULTS. KEEP TRACK OF IT, YOU'LL ALWAYS HAVE IT JUST NOT ALWAYS AS HIGH AT TIMES AS OTHER TIMES. YOU ALSO MIGHT HAVE OTHER PROBLEMS ALONG THE WAY, LIKE THYROID N	I COULD GO ON IN A BOOK TO TELL YOU ALL ABOUT WHAT I'VE GONE THRU WITH THE DRUG, AND EACH OF YOU IS DIFFERENT. I FIRST LEARNED I HAD ELEV. PROLACTIN AT AGE 23 AND I AM NOW GOING ON 39 (MAN TIME FLIES WHEN YOU'RE HAVIN FUN-LOL) PLEASE EMAIL ME--I KNOW I CAN HELP! IF YOU'RE EXPERIENCING IT, I'M SURE I CAN HELP WALK YOU THREW IT--I'VE DONE THE COUNSELING MYSELF--I'M A GREAT LISTENER--AND REALLY THE BEST WAY TO GET BETTER IS TO REALIZE YOU ARE NOT THE ONLY ONE OUT THERE GOINNG THRU IT!! NOW THERE IS MANY OF US--AND WHEN I GOT MY SCRIPT REFILLED TONIGHT THEY ACTUALLY HAD IT AVAILABLE--WHICH IN A NEW TOWN WAS FREAKISHLY RARE--NEVER HAD IT FILLED RIGHT AWAY IN ALL MY YEARS OF TAKING IT!! WE ARE ALL HERE TO HELP EACH OTHER--WE CAN ALL GET THRU IT TOGETHER!	F	38	16 years		3/26/2009 Email
3	microadenoma	runny nose the day I take the pill. Two weeks before my period I get a few days of real "fun" tension headaches (not migraines), which are so severe that I just want to die. Ibuprofen helps on almost OD levels. Other side effects include very "blah" mood, spacing out, and no libido whatsoever. To all of you who got their libido back - Congrats, treasure it.	I currently take 2.5 pills a week - 1 on Tuesday and 1.5 on Friday). I lowered the dosage before for some 5 months, and the proluctin level incresed, so I am back to 2 - 2.5 pills a week.	F	38	5 years		3/13/2009
4	macroadenoma	Upset stomach, weight loss	I was diagnosed 4 weeks ago with a Macroadenoma and my prolactin level was 2900, just had a blood test 3 weeks in and no change in prolactin level. Have another MRI scan in 2 weeks and another blood test. Fingers crossed there will be a reduction!	F	28	4 weeks		2/24/2009 Email
3	Pituitory Adenoma	really uncomfortably tired, sadness, some headaches, lack of sleep, short attention span, heavy period with cramping.	I took bromocriptine while I was pregnant, and then stopped all medication to breast feed my girls and my tumour bleed. I had massive headaches which were then controlled when I went back onto dostinex.	F	36	7 years		2/24/2009
4	Microprolactinoma	Occasionally tired, mild headaches.	I know Dostinex is not recommended during pregnancy, but has anybody out there given birth to a healthy baby while taking Dostinex during first trimester or longer into pregnancy?? Thanks for any feedback.	F				2/5/2009
4	Prolactinoma	First 18 mths only dizziness within 24hrs of taking. Now 24 mths on, I can attribute anger, mild depression, weight gain, crying about nothing.	I was diagnosed before having my 2nd child and was pregnant within 3 mths of starting dostinex. Continued straight after birth taking it so couldn't breast feed. Thought it was a miracle drug until very recently when I started researching my current symptons and thought they might be linked to dostinex. I have stopped taking it, see my specialist in 1 mth (he is on leave!), so I will be able to report to him then if things have improved. I don't know what the alternatives are...	F	38	3 years		2/3/2009
3	micro prolactinoma	fatigue, anger, agression, constipation, feeling like I want to cry all of the time	I have been taking 1 pill 2x's a week and I am noticing very vivid dreams and extreme moodiness. I am very angy and feel aggresive and anxious. I do not feel like myself but I am going to see if my levels come down within the next 2 months	F	33	28 days		2/1/2009
5	Hyperprolactinoma, MicroAdenoma	My hyperprolactinoma (or pituitary microadenoma) was diagnosed almost 13 years ago. After using Parlodel for many years, my doctor switched me to Dostinex which I have now used for about 8 years. It works great for me now. When I FIRST started using it, before the appropriate level was determined, I experienced drowsiness, dizziness, decreased attention span, and forgetfulness. When I couldn't remember my supervisor's name, I knew there was something wrong, so I called my doctor. He backed off my medication and told me to take it at night, and now I don't have these problems anymore. I take 2 tabs 2x a week, on Saturdays and Tuesdays BEFORE GOING TO BED (when I likely have food in my stomach). If I forget to take my pill on Saturday, and take my pill on Sunday, then on schedule for Tuesday, I DO experience some forgetfulness and sometimes an inability to pay attention. So needless to say, it is important to take your pills on schedule. Its powerful stuff. My adv		F	46	8 years		1/28/2009
3	Pituitary Addenoma	Tired,Nauseas, lightheaded, Dizzy, Lights flashing when my eyes are closed, Pain in legs, jaw, arms, numbness,weight loss, Constant sick feeling that wont go away!!	I just started taking Dostinex 3 weeks ago and the side affects are kicking in. Sex drive comes and goes. Weight loss 10lbs in two weeks, but I have been eating healthier. I just feel sick all the time, especially when I wake up in the mornings. Lack of energy and I cant have this I am planning my wedding!!	F	23	3 weeks		1/23/2009 Email
5	Hyperprolactinoma	When i first started on dostinex it was after i had a migraine and my tumor hemmoraged. The tumor was 3.5cm high by 2.5 wide. My prolactin levels were at 30,000 points!!! but after taking dostinex they went down to only 75!! My neuro surgon was amazed at the results after 3 months. I lost 20kg in total, but i was also eating MUCH healthier and also running 3.5km every day (im from australia no miles here, hehe) But!! i do feel cloudy minded (almost like ive had a joint) after taking dostinex.. I take 1 tab 2x per week. Just wondering if anyone else feels like this afterwards... its annoying when trying to make conversation or paying attention to things.		M	28	2 years		1/10/2009 Email
5	micro prolactinoma	dizziness, double vision, fatigue, sleepy all the time	well I am taking dostinex since 2 years and a half 2 per week 0.5 mg my prolactine dropped from 196 to 13.5 range of (0-19.5) my tumor shrinked from 10 mm to 6 mm but the problem that I am facing is that I am sleepy 24 hours, I feel sleepy anytime and everywhere... and now new symptoms of DOUBLE VISION,,, anybody with the same problem contact me and give me recommendation please	F	20	2.5 years		12/11/2008 Email
3	Prolactinoma	Headaches, Mood Swings, Very tired when i take the med, worse periods now with bad cramps. The med just sometimes seem to wear me out.	I've been on the med for 13 months now and the tumor is shrinking very little. It was 10mm and now it is 8.4mm after 13 months on the awful medicine. I am just wondering if it would be better to have surgery and hopefully not have to depend on the meds? Anybody have any suggestions?	F	28	13 months		12/8/2008
4	microadenoma	decreased blood pressure, low sex drive, hair loss, weight gain, insomnia,	I took Parlodel for 2-4 years (got pregnant and stopped for a while). Parlodel was horrible. I was exhausted to the point of being unable to function and gained weight. Then I was put on Dostinex and have been on it for over 10 years. My prolactin has not gone below 70 - so it is still 'high'. But I was able to get pregnant (and stopped Dostinex while pregnant and nursing). Now I have entered menopause and continue the Dostinex. I would love to blame being overweight on Dostinex, but don't know if that is accurate. I do have aches and pains but don't know what is normal as I have been on Dostinex for so long. I think that the generic, which I have taken for many years, is not as effective as the name brand. I believe that my prolactin level was normal when I had the name brand, but remains steady, but high, on the generic. My tumor has remained at 9mm since I was first diagnosed and I do not plan to have surgery. I have yearly MRI's. I have been thru 4 endocrinologists and have	F	51	15 years		12/2/2008
3	pituitary micro adenoma	where do i begin... well lots of muscle pain, headaches, extreme cramps when i get my period, lack of energy, dry mouth, hypotension, i feel very sleepy somedays. I have my good days and bad days but i rather get better even when sometimes i think the medicine is worst than the disease!!!		F	21	8 months		12/1/2008
4	pituitary microadenoma	breast pain, acute back pain during the ovulation days.	My microprolactinoma remains in the same small size, my periods are regular again and my prolactin level dropped from 600 to 20.	F	49	2 years		11/25/2008
3	Pituitary adenoma	I have constant headaches (which vary in intensity from mild to almost migrane-like), nausea, lack of energy, difficulty concentrating, difficulty sleeping, an extremly short attention span, hair loss, problems with short-term memory, increased appetite, sinus problems, & increased thirst.	I've become moody but remain fairly good-natured. My sex drive is back to normal, which is great! However, I am experiencing a total lack of interest in my job. I don't care if I complete tasks or do a good job. This issue is really causing me some grief as I am constantly scrambeling to keep my head above water. These problems all began 10 years ago when I was diagnosed with the pituitary tumor and prescribed dostinex. When switched to the generic version, cabergoline, the problems got worse. I take .5 mg twice a week.	M	56	8 years		11/24/2008
4	microprolactinoma	I think harder to lose weight, some tiredness, some irritability, my anti-depressant not working as well. But otherwise, it's ok.	Look, no one wants to be on medicine, at all. Medicine is not natural or great. But to correct a condition you do what you need to do. My dr. said I only need to be on this .5 twice a week dosage for a few more mos and then we'll cut down. So I will stick it out. Everything has side-effects, you deal as much as you can.	F	35	2 months		11/19/2008
3	Micro Pituitary Adenoma	Headaches, sinus congestion, teeth sensitivity, light headed, hard to concentrate, mood swings very irritable, fatigue, light flashing in the dark, insomnia.	My prolactin level is under control, the tumor is shrunk all this as long I'm on Dostinex, I stop the pill once in a while to rest from it until the symptoms return, I have been thinking "seriously" in having this tumor removed,I don't want to depend on this medication, so I can have a normal live, without all the other symptoms from high prolactin levels and a tumor on my pituitary..... can anybody give me their thoughts about this.	F	40	10 years		11/13/2008 Email
1	hyperprolactinemia	extreme fatigue, mood swings, depression	I started taking this med 0.5 mg tabs (1/2 tab twice a week) for elevated prolactin levels (had MRI and no pituitary adenoma). I became a different person on this. I became extremely fatigued (went from working out 5-6 days a week to none at all), major mood swings and aggression, just the every day task of living became unbearably hard-not a good thing when you have a husband and two young children (age 4yr and 1 yr) to take care of. It took me 4 long weeks to figure out it was the medicine that was making me feel so bad and I immediately stopped. I would rather have leaky breasts for the rest of my life rather than take this medication.	F	36	4 weeks		11/7/2008
4	hyperprolactemia	slight dizzines	I have been taking cabergoline for about nine months... my period returned in a few days after taking it. my sex drive came back as well.... but I have lost it again... i don't know why... i take .25mg per week.. do i need a higher dose... to keep my sex drive?	M	35	9 months		11/6/2008
4	Micro prolactinoma	Same as before, sometimes dizzy when standing up too quickly.	I got my blood test results today and my prolactin has dropped into the normal range! Its 370 (range 85 - 500). I will continue on the 0.5mg per week and see if my cycle becomes normal. Had a period after week 3 on Dostinex.	F	29	4 weeks		10/30/2008
2	Dystonia & restless legs	Severe constipation -No bowel movement 4 days. I took large quantities of Lactulose solution to get a bowel movement again	This helped with my restless legs but Not my dystonia.No sexual effect.was taking 0.5 size tablet every 3 days	M	47	2 weeks		10/29/2008
4	Micro prolactinoma	Sometimes I feel a little dizzy when I stand up to get out of the bath. It subsides within about 20 secs. I rarely drink alcohol, but if I do it affects me more quickly than usual. I drank half a glass of wine within an hour of taking Dostinex and I was so sleepy I had to go to bed. I was worried teh side effects would be worse.	I have just had my first period on Dostinex. I'm only taking 0.5 x 1 week, but I am seeing the specialsit next week after my blood tests to check prolactin levels. I have not had a period for 4 months and 6 months before that. I'm hoping Dostinex will make me regular.	F	29	1 months		10/24/2008
3	piturtary tumor	dizziness, stuttering, hallucinations, double vision, blurred vision, floating feeling, aggression, saddness, forgetfulness, difficulty concentrating, severe headaches, vivid nightmares lack of sexual desire,moody,thirsty,fatique blurred vision,headache, can't stand certain noises and smells.vomiting missed cycles	help with the fatique and headaces and vomiting	F	40	4 years		10/24/2008 Email
3	Macro Prolactinoma	Fatigue, dizziness when standing up too fast due to lowered blood pressure. Side effects went after few weeks although always returned when i increased dosage. Now on quite high dose (1mg per day) and not noticing too many ill effects. Obviously worried about heart valves on this dose but cant live without libido any longer :( so will take the risk!	Drug has been somewhat successful. It has lowered PRL down from 9000 mul (450 US measurement) to 3500 mul (175 US) in 11 months. Libido not returned yet but then PRL is far from normal. I seem to be taking forever to normalise PRL. I am hoping it will be normal in a few more months. I am hoping libido returns like it has with most others here :)	M	29	1 years		10/14/2008 Email
4	microprolactinoma	tiredness, stomach sensitivity	I think it helps. I got my period within a few weeks. I am looking forward to shrinking the adenoma and normalizing my prolactin levels and will listen to my doctor and proceed accordingly. The side effects aren't bad at all.	F	35	1 months		10/11/2008
3	Hyperprolactinemia	Have been suffering from Crazy mood swings,lack of attention, memory problems, inability to lose weight (and I'm TRYING!), increase in breast size, upper stomach pain, feeling weak.	I was diagnosed with hyperprolactinemia (um, spelling??) when I was 23 or so. After rounds of tests and MRI showed I had a minitumor. Went on Bromocriptine first for almost 5 years. When I stopped taking it (just thought I was normal again I guess), I had all my symptoms back in 6 weeks. ( NO periods, milking breats, you get the picture). And Endo told me Bromo was from the Dark Ages and suggested Dostinex. Well. Yes Dostinex works for what it is intended, but I often feel like a crazy person and have outrageous mood swings and feel very aggressive. I am usually peaceful. I have been told pregnancy can "cure" this condition. I am sorry most of you are suffering, but in a way I'm glad because I don't feel so alone like no one understands. Like it's just some "hormone probem". AAHGGHHH.	F	32	2 years		10/2/2008 Email
4	Increased Prolactin / Prolactinoma	No side effects from taking Cabergoline for three months except increased sex drive! 4mm Micro-Prolactinoma diagnosed through Cat Scan.	.5 mg. One pill twice a week. On rare occasion I have stuttered. I repeat questions sometimes, experience forgetfulness and lose focus, but I don't know if it's from the medicine or the condition as I think I experienced those just before I began the medicine. I will ask the doctor on my next visit which is next week to see if Prolactin level has reduced. Has anyone ever heard of someone being able to get rid of the tumor completely with the medicine and never have to take the medicine again?	F	36	3 months		8/25/2008 Email
5	Pituitary macroadenoma	In the beginning, I had palpitations for a few days when my dose was increased from once a week to twice a week. I also had hallucinations when I closed my eyes to go to bed, but that was likely due to optic nerve compression. Other than that, I have been on it for 7 years with no ill effects whatsoever.	The Dostinex shrank my tumor enough (prolactin levels of 6600 to start, 11 currently) to surgically remove, and has kept the tumor from coming back since the surgery in 2002. I am so glad that this came along...I heard horror stories about bromocriptine!	M	42	7 years		8/23/2008 Email
5	pituitary prolactinoma	No side effects other than continuing gerd. GERD started with use of parlodel that I had to take prior to Dostinex being available in Canada.	This drug gave me my life back! Breast size reduced, lost 20 lbs in 4 months, erections came back strong, libido came back wonderfully. As close to a miracle drug as I've found! Take half a pill twice a week since 2000.	M	43	8 years		8/16/2008
3	Pituitary Ademona	Lack of appetite mostly, i could go 24 hours without eating.	I took this medication for prolactin levels measuring 6900 (i had not started my period at the age of 19). It dropped to 100 in 5 months, at that point i stopped taking it and got my first period 3 months later and then another 2 months later each lasting for 3 days. I went for tests again 5 months after i stopped the drug and the prolactin had risen to 250 again. I went for more tests last week and i have a fear it has increased again. I would like to find out from readers if the tumor came back after taking this medication and if you considered the surgery and i would like to find out what side effects you had after taking the drug. I am currently suffering from constipation, vertigo, abdominal pain, lack of appetite and still no period, i am battling to lose weight and my skin is looking terrible (i drink two litres of water a day!). Please email me i would love to hear from anyone at this stage.	F	19	5 months		8/4/2008 Email
3	High Prolactine	Headache,vomitting,lips pain,tongue pain,jaw pain, can't pronounce correctly,dizziness,a lot of wind in the stomach,loose weight.	My prolactine level has dropped from 200 to 60 but the side effects are unbearable.Sometimes I cried at night.	F	30	2 months		8/4/2008
5	micro prolactinoma		I've been taking Dostinex for 2 years. It helped decrease my prolactine. Mentsrual cycles became regular. My sex drive increased dramatically- not it's very high and before I hardly ever wanted sex. Overall, I'm in a much better mood than before. I'm very happy with Dostinex!	F	29	2 years		7/28/2008 Email
3	i have a microprolactinoma	I have been experimenting nausea dizzines tirednes and at times i cry for no reason ,and i also cant sleep.		F	30	2 months		7/23/2008
4	microprolactinoma		I was taking the brand for 3 years and I was fine. Had some insomnia and mood swings at first but they went away. But now I'm having problems with the generic.. Migraines almost every week. How do you order a different generic? Just ask the pharmacist to order something different or you guys buy medication through the Internet. And which generic works better for you? Any info would be appreciated. Thank you.	F	30	5 years		7/21/2008 Email
5	Prolactinoma	I was a bit tired in the beginning of the treatment, but only for a few weeks. I have been a little bit nauseous - nothing too serious. Loss of appetite. Not really a problem in my case as I needed to loose some weight	It has changed my life! I lost 12kg in 2months. I am more happy and positive than ever before. HUGE improvement in libido and confidence	M	29	60 days		7/20/2008 Email
5	hyperprolactinemia	headaches close to the day I'm suppose to take it,extremely tired	When I use the generic pill, the symptoms are much worse including migraines,pain in my bones ( one arm,one leg, one feet, intermitent), joints inflammation, sometimes nausea, lack of concentration. I had brain surgery to remove a meningioma in 1993. In 2003 the tumor grew again and I had 28 brain radiaton treatments.In 2005 I was diagnosed with hyperprolatinemia and began treatment with Dostinex. I definitely have experienced different side effects with brand name Dostinex than with the generic Cabergoline.	F	50	2 years		7/13/2008 Email
3	because of my hormones	constipation,moody,tired,think im going insane,sick,insomia	i lost my baby last year through premeture labour and was in deep depression when a couple of months later my periods still hadnt returned i went to the doctor and they sent me to a mri scan i have a 3mm tumour and my levels were 3000 started taking caberloinge and there down 144 i still feel moody all the time anyone else feel the same and can we have children.	F	23	7 months		7/8/2008 Email
5	macro- prolactinoma	I am just starting dotinex, .5mg 2 times a week, so far the side effects are few and far between but when they are here it is intense (nausea, vomiting, constipation, thinning of hair, and dizzyness)	Its tough but right now, i'd rather the tumor shrink.	F	26	14 days		6/18/2008
4	hyperprolactinemia	Lower blood pressure, "spaced out" a bit the day ater I take it (at night)	I tried Parlodel and Permax. They were terrible. I was started on Dostinex over 10 years ago, and I refuse to ever go back on the others. My diagnosis is unclear; I had very high prolactin, but it was dubious whether there was actually a tumor on MRI. When I started on dopa agonists, I noticed that I slept SO well for the first 6 months or so, then could not sleep at all. (Thank God for Ambien and Sonata!) I am currently weaning down to only 1/4 of a 0.5 mg tab twice weekly; continue to have R breast discharge, but apparently have to live with it. The cost is insane in the US, and without insurance, I have to do the best I can. Personally, my emotions have been MUCH more manageable on cabergoline. My life was much worse without it. If I am not consistent with my dosing, I will get symptoms of menopause and mood swings.	F	40	12 years		6/1/2008
5	Prolactinoma	I had no appetite, very tired,could barely function. Sucked all the fat from just under my skin.	Have been off Dostinex for 1yr. but side effects never left completely. Went directly into having Hypothyroid. (wonder if Dostinex damaged thyroid or something else) My skin and hair is now very dry and my skin is very heat sensitive!!! I feel very lucky my tumor is gone but I would like to see if anyone else has had similar problems.	F	50	9 months		5/26/2008 Email
4	Prolactinoma	At first my erections were wonderful, as if I was 20 years old again. But after taking it for 2 years my erections declined. Now that I'm off it and my prolactin level is still down, my erections are good.	Generic drugs are not all the same! When I switched from the brand name version to a generic I had a terrible response. I had to try three generics before I found one that worked as well as the original. Generics are the same drug but the other things that are added to the pill vary from manufacturer to manufacturer. Anyone who uses generic dostinex should know this!	M	57	2 years		5/25/2008
4	Pituitary Tumor - Increased Prolact	No period for 6 months, a little moody, VERY sleepy, yawn way too much, hot and cold at the same time, a small amount of breast discharge, painful breasts, vision problems, achey joints, some anxiety, very forgetful, headaches, no energy and just completely drained!	Dostinex (cabergoline) has been useful so far. I have been on it for almost 2 months and my prolactin level has gone down about 10 points. It does cause severe laziness and I get pretty sleepy on days that I take it. But it gets slightly better the day after, until I have to take it again. I only take half a pill two times a week. I am a little worried about having to take it for the rest of my life, off and on. But if it means my health or being alert and unhealthy, I'll take it! Please do NOT continue dosage while being pregnant.... big problem! My headaches are still there often, but not as bad as before taking the medication. Although I am starting to feel pressure at the bottom of my throat, like someone has their hands around it - but no problems breathing or swallowing. Just quite annoying and my doctor believes it is a side effect from the medication.	F	23	50 days		4/18/2008 Email
2	Pituitary Tumor	dizziness, stuttering, hallucinations, double vision, blurred vision, floating feeling, aggression, saddness, forgetfulness, difficulty concentrating, severe headaches, vivid nightmares	Dostinex has shrunken the tumor but the side effects are so horrible. Don't know what else to do.	M	36			4/9/2008 Email
4	Prolacionoma	Bad headaches the day after I take the medication. Hard time sleeping, awake 5-6 times a night. Vary painful breasts.	Prolactin has decreased but the side effects are not fun.	F	28	6 months		4/3/2008
5	hyperprolactinaemia	For the first few weeks felt drowsy and kind of hung over after taking medication but that has decreased with time. I take 1/2 a tablet twice a week, I sometimes feel a bit sluggish still the morning after I've taken it but the effect wears off by midday.	After the birth of my daughter when I was 34 I was never able to breastfeed as I developed acute mastitis but was still lactating 18 months later. I had constant leaking, extremely painful breasts as well as other problems that both a breast specialist and a supposed "top" endocrinologist pretty much dismissed as "hormonal problems" post-pregnancy. My elevated prolactin level was discovered but seemed to be disregarded as it was just under 1000 so they kept sending me for blood tests every 6 months to "keep an eye on it". It was only after I saw a new GP last year that I was referred to a different endo who could not believe I'd lived with constant breast pain, low libido and mild depression for so many years without being given any help. Since I've been on the Dostinex my body and my life have returned to how they used to be before I had my daughter, who is nearly 6. Sometimes you have to persevere, you know your own body and you know when it's not wor	F	39	7 months		3/27/2008 Email
4	Ideopathic Prolactinemia	Bad mood swings and sleepiness	Hi everyone. I am now on Cabergoline and it has been about 3 months. I don't know if has lowered my prolactin levels or not. I am waiting for my 6 month check up to find out. I can tell you though it really does give me bad mood swings. I get upset over the smallest things and I relized I am more aggressive now. I hope it is all worth it. I was really hoping that Cabergoline would help me shed some of those opounds I gained with my elevated prolactin levels, but It really has not helped that situation. I will kepp everyone posted. Good Luck.	F	24	3 months		3/18/2008 Email
2	Micro prolactinoma	Headache, kind of a swollen throat, breast pain - ouch!!	This was after one day of taking it. I am waiting to see if my body will get used to this one. The parlodel was horrible, but I am ready to be off these meds.	F	32	1 days		3/8/2008
3	pituitary tumor high prolactin	My tumor is just over a centimeter, I was diagnosed after unsuccessfully trying to find out why I wasn't getting periods for the last 6 years! Eventually a new doctor took an interest, MRI & blood tests discovered a prolactinoma tumor. I had thought my headaches were stress based, but well... apparently not. Side effects: very dizzy (strange sensation of my brain floating around in my head!), nauseous, almost constant headache, exhausted, inability to think clearly. I can’t move quickly or pick up things from the floor, look up etc or drive for the first few days then it gets better. Day after medication is like a bad hangover (without being thirsty), side effects subside as the week goes on and are getting less severe as the weeks go by (I’m in my 4th week).	The hardest is being so worn out and unable to think or do much, I am a manager at work, & in my spare time I dance, run and practice yoga but have barely been able to do any of these things since starting the medication but dance on any day I feel ok again. I take one full tablet a week. I’m lucky living in Australia as the medication costs are mostly absorbed by the government, each tablet works out to be less than AUD$4. Wishing you all the very best and may we all feel much better soon. Have you all noticed the side effects decreasing over time? (The rating I gave is only because this site requires you give one - it's too new for me to know yet).	F	32	30 days		3/4/2008 Email
5	Micro prolactinoma	No bad side effects. It increased my libido and I started my periods again.	I take .25mg 2X a week. I was diagnosed in 1998 and because the tumor was wrapped around an artery, I was not a candidate for surgery. I started medication with parlodel (could not stand side effects) then went to permax (it was horrible also) and for the last several years have used Dostinex (caberoline.) It is wonderful compared to the other meds I tried. I now take it sporadically, on six months off six months. Just going through menopause also.....that may complicate things.	F	57	8 days		2/17/2008 Email
5	Hyperprolactinemia	Slight fatigue. Headaches on days when I'm supposed to take the pill.	I've been taking Cabergoline for over a year after discovering Galactorrhea (breast discharge) and elevated prolactin levels of around 60. Had 2 MRIs and no tumor showed, but I am not convinced. I messed up my pills ever slightly just a couple of weeks ago and the discharge came right back. It's good to know that the pill is working but scary to know I am dependent upon it. I have been happy with the pill - take 2x/5 mg a week. Side effects have been mild to questionably existent. Brought my period back within a month (and my sex drive). On a side note - has anyone not diagnosed with a tumor ever been taken off the medication to find the prolactin levels stay normal? My dr said this could happen but again...I'm not convinced in my case. Would love to hear from you.	F	25	1.3 years		2/11/2008 Email
3	pituitary tumor high prolactin lvl	inability to lose weight, lack of energy, occasional but severe headaches, vision weak at times, extreme nausea, low sex drive,lots of moods swings!	After not having a period for a year and starting to lactate I finally went to the doctor. My prolactin level was high and via MRI I now know I have a tumor. After being on a low dose of Cabergoline for less than a year there was no change in my prolactin level. I now take a higher dosage but what's still considered low of .5 x 2/wk. My level is now at 14 so its on its way down. When I first discovered I had a problem I had gained 45 lbs in 6 wks. Now I can't seem to lose the weight. I'm moody, with sadness and anger, energy level is low, I'm sick to my stomach all the time, occasional headaches so of course I don't feel like walking and running miles a day. I have my period now and they are painful. Since taking the medicine I've had cysts on my ovaries and had to have my gallbladder removed. I'm still trying to figure out what's the point in taking this medicine. Yes, when my levels were higher I gained a bunch of weight that I still can't lose but I didn't have painful periods	F	33	1.5 years		2/1/2008 Email
4	prolactinoma	Headaches,nausea, stopped menstruating, hot flushes, weight gain fatigue	I was diagnosed in 1998 after my periods stopped for over two years, after many visits to a female doctor with no joy as to why, it was on a trip to my now male doctor regarding other issues that the matter arose, he sent me for blood test and it was then that I was informed I had macro prolactinoma. I was not aware until reading this site all these years after that I now realise alot of my problems is down to the condition and drugs, After a recent hospital visit I was informed that my prolactin had increased for some reason, so my drugs maybe increased from half a tablet twice weekly. Has anyone experienced severe snoring????	F	51	9 days		1/25/2008
4	elevated prolactin	dizziness, ringing in ears. I was put on effexor for the headaches but taken off the effexor due to abnormal LFT's -those side effexts are horrible so I am not sure which is which but the headaches have subsided	I am on the generic drug. I was wondering if anyone has a MD in Southeast Florida familiar with the problem. No one seems to get it. My gyn ordered the PRL but I need a follow up and so far I do not feel the neuro or optho are taking it seriously.	M	52	30 days		1/18/2008 Email
4	Idiopathic Prolactinemia		I have had Prolactinemia for about 4 yrs, and in that for years I have not had any periods( I felt Like I was going through Menopause), I gained 60 pounds and my sex drive went down. I was happy to read all of your comments, it made me feel I was not the only one going through this. It has been hard - my old Ednocrinologist just gave me birth control and told me to go on it and it will help regulate my periods. Now I am seeing a new Edno and he has perscribed me Dostinex. I am little worried about taking it, But whatever helps is good. I hope it will help feel like my old self again. I will keep everyone posted when I start the pill. It is really expensive though, but I hope it is worth it.	F	24			1/17/2008 Email
3	low-producing macro prolactinoma	after reading others side effects the only thing that I might attribute to this drug is fairly severe depression and insomnia. I can't seperate the side effects from the medication from the fact that I have suffered with terrible depression, anxiety, and insomnia for many years before taking dostinex	I was diagnosed with the prolactinoma after I finally went to the doctor because my periods had stopped. She sent me to the endo and he took some tests. At the end of the visit he said that it didn't look like it would be anything because I only had some small discharge from my breasts (only after manipulation) and my prolactin level was around 60. He did say that there is the possibility for a tumour but assured me that he really thought there would be nothing to worry about. I was sent for an MRI and I had to wait quite a while for him to phone me with the results. He said that he didn't phone right away because he was so shocked that they had found a large tumour about 1" if I remember correctly. I had to have the surgery and had a CSF leak and a bout with low sodium and diabetes insipidus. Eventually those complications went away, thank God! All this happened in 2001. Since the surgery the tumor has grown back to a size of about 1cm. I have been put on dostinex. By t	F	43	2 days		1/4/2008 Email
5	highprolactin	depression anger anxiety this medicine helped my prolactin levels very well but side effects are very bad. I think because of dopamin because dostinex is a dopamin agonist and dopamin levels can caused pysicological side effecs. I quite dostinex because of side effects. I hope science will discover to decrease prolaktin levels without using dopamine.from google I find that B6 vitamin inhibits prolactin release I will try this vitamin	before using dostinex my prolaktin level was 75 free testosterone level was 4 after using dostinex( 2 years) my prolactin level was 6. yes only six.and my testosterone level was 12. my dose was only half pill once a week. yes my dose was very small but this drug worked very good.but I CAN NOT STAND side effects. I am a math teacher it is a social job but dostinex made me very anger and very anxiety. I altough I am not using dostinex 1 year ( I started to use dostinex 3 years ago) my prolactin level is 29. SORRY MY ENGLİSH	M	36	2 years		12/29/2007 Email
5	Prolactinoma	This is my second rating for Dostinex, I have been now 7 weeks on this medicine taking 2 pills three times a week, that's 3grms a week, and I feel some dizziness and some headache, also some depresion but over all not too bad.	I am writting this second comment after having my second MRI after taking this med for 1 month. I think it is a wonderful medicine in my case, My Tumor size was 5.0x4.5x5.5 cm and now it is 3.0x3.5x1.9 cm, that is around 75% reduction in size. Also my Prolactine has dropped from above 1200 to below 200. All that in one month.	M	34	7 weeks		12/20/2007 Email
3	Prolactinoma	hangover feeling the day after taking, change in personality, stuffy nose, some weight loss	If anyone has any experiences with this drug changing your personality I would be interested in hearing from you. I find the dositnex has made me uncontrollable at times and am worried that my relationships may suffer because of it. The pills have helped control my prolactin though I have gone off without success as the prolactin went up very quickly.	M	28	5 years		12/11/2007 Email
5	Micro Prolactinoma	Hsven't really had any	I take 0.5mg, half a tablet twice a week and can't really complain. Haven't had any major side effects that interfere with my school or work. My period returned after 1 month of taking dostinex and my prolactin levels went down.	F	20	3 months		12/10/2007

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Average rating for drug: 3.7. This page is printer-friendly; use landscape print with background color turned on.

Key to ratings: 5-Very Satisfied: this medicine cured me or helped me a great deal. 4-Satisfied: this medicine helped. 3-Somewhat Satisfied: this medicine helped somewhat. 2-Not Satisfied: this medicine did not work to my satisfaction. 1-Dissatisfied: I would not recommend taking this medicine.

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