COPAXONE Reviews (GLATIRAMER ACETATE)

Average Rating: 3.5 (300 Ratings)

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 Type: Rx Drug

  

COPAXONE  (GLATIRAMER ACETATE):  This medication is used to treat a certain type of multiple sclerosis (relapsing multiple sclerosis-MS). It is a protein that is thought to work by preventing your immune system from attacking the nerves in your brain and spinal cord. This effect can decrease the number of periods of disease worsening (relapses) and prevent or delay disability. It is not a cure for MS.   FDA Approval Date: 2014-01-28 (Sources: U.S. Centers for Medicare Services, FDA)

  

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5=HIGH (this medicine cured me or helped me a great deal.)

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More on COPAXONE: Reviews Summary  |  Drug Safety Information

RATING  REASONSIDE EFFECTS FOR COPAXONECOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 4  Multiple Sclerosis Huge lumps , burning , itching , sometimes extreme pain when injecting [usually in hips and legs] Every once in awhile when I do a injection the drug does not inject into site properly so when I pull out the needle the medicine sprays everywhere. I also noticed that after 8 years some lumps are not going away. I have huge indents at sites. Permanent damage to injection sites. Bruising. I am using the auto inject. F 33 8 years
20 MG 1X day
3/28/2012
Email
 4  MS Feels like a beesting. At first I only had redness for about an hour. Then all of a sudden I started getting huge lumps everywhere I injected with a lot of itchiness and swelling and redness that lasts for days, to weeks. I had to skip a couple days because of the soreness and lumpiness. Most of the lumps have shrunk into very small buttons after almost a week, but a few are still very agitated. F 18 30 days
20 mg 1X day
3/9/2012
 4  MS burning and itching with redness to site which lasts for about 10-15 min. Except when I inject my thighs they last all day with soreness. My Blood Pressure has been running very low 74/42 and I dont know if thats because of the copaxone But I believe it is. I woke up last year 02/2011 and collapsed and I couldn't see , double vision , walking side ways and had a severe migraine with nausea that lasted for 2 weeeks. The ER said it was a migraine. I had a MRI done and the first neurologist I went to said, You have a migraine take this", He gave me topamax and said I'll see you in 6 months. I went to the next nuerologist and besides having chronic migraines since I was 16, they ran all kinds of tests to rule out everything,and they even did a spinal tap that was negative. But my MRI had signs of new progressive lesions growing in my head from 6 months ago and had been since 2003. So, they monotoired me and I got worse around christmas,woke up and had leg spasms from the groin down to my ankles and it felt like charlie horses and I couldn't walk. I had trouble with my urine. My doctor finally said you need to come in for some chemo/IV infusion therapy. I have had that twice in two months and it sucks. I was diagnoised with MS in 01/2012. Before that I was working as a nurse and had to quit my job. My symptoms vary day by day but pretty much are vertigo, paroxymal hemicranial headaches, leg spasms, cannot stand for no longer than 30 min at a time and low blood pressure which makes me dizzy, lightheaded, and tired which I am battling everyday right now. Does it get any better? I cant tell if the shots will help but my legs do feel better. F 33 2 weeks
20 mg 1X day
2/15/2012
Email
 4  RRMS Large swollen lumps that are hot, red and itchy. Last about a week and then fade to ghost bruising that doesn't go away. Im taking Zyrtek nightly and using cold pack before and after. I also tape on a cotton swab with Lanacane after injecting manually. During the day I put on topical Benadryl. Does anyone have any other "tricks" that might help me? I would love to get some relief from the side effects. F 45 30 days
20 mg 1X day
8/29/2011
Email
 4  MS Bee sting, lump, itchiness F 32 4 months
20 mg 1X day
8/12/2011
 4  MS Copaxone was great for the first 1.5 yrars. Then one evening right after the injection I started feeling hot and got a bitter taste in my month, my chest felt heavy and I could bearly breath I got bad stomach cramps and had to go to the bathroom I was terrified went to the ER and they told me it was a reaction to the medication. not another reaction for a year then it just happend again last night, I called my Neurologist and she said that other patients on that medication have been passing out, and told me to stop taking it. I go see her next week hopefully we can find something else to keep my relapse remittin MS in check. F 47 4 years
1X day
8/1/2011
Email
 4  RRMS I get the usual injection site reactions, a hive sometimes, and the ghost bruises that stay for awhile. My main concern right now is that I feel I am immunosuppressed. Every three to four weeks I am coming down with a cold that often requires the use of antibiotics (azithromycin) to get rid of. This has been going on for the last 7 months and I don't know how to live a productive life like this. My doctors cannot figure it out, and their only answer is that it is likely the copaxone which I am quite reluctant to stop. Is anyone else experiencing this? I have not had a relapse in exactly one year. I think copaxone is an excellent treatment for MS and the injection site reactions are really quite negligible (for me personally) given that I would much rather have a hive than optic neuritis or another such relapse. F 29 1.5 years
20mg 1X day
7/15/2011
Email
 4  RR Bee sting, lil knots at injection site and weight gain. The weight gain is the biggest problem. I am having such a hard time getting it off. I want to stop the injections. I have tried Avonex but ended up in the Er with an allergic reaction, wasn't a fun weekend. I'm tired of having MS & I'm tired of doing these injection. Sick & tired of being sick & tired... Copaxone is a good medication. I would want to do any other drug for MS unless they finally got oral drugs for MS… F 46 8 years
1X day
2/24/2011
Email
 4  RRMS I've had the bee sting effect early on but after 15 months, it is much diminished. I have been very happy with this drug. I was DXed when I was 45, but looking back had symptoms for about a decade. I had the welts early on, and itching, but all that went away after the first few month. I rarely see any site reactions now. Every person reacts differently, but I recommend trying Copaxone to see if it works for you. M 47 438 days
40 1X day
2/22/2011
Email
 4  Ms 1or 2x/year - violent rigors, severe pain around kidneys. These reactions tend to occur if I have given the injection IV instead of S/C. I chk carefully there is no blood in the cannula of the syringe B4 I inject now. I'm a nurse. F 54 10 years
1X day
12/24/2010
 4  RRMS Some stinging and redness @ the injection site that dissapates in a few hours. I am a Registered Nurse but have been symptomatic for 2 years but was only officially diagnosed last month. This is my first med attempt. The informational session with the RN from Shared Solutions helped as I had already begun injections when the med. arrived and she could not meet with me until the following weekend. Warm pack before injections helps. I do not use the ice pack afterward (too cold). I have not seen a change in any of my symptoms but my memory is terrible. I don't know if it is a side effect of the medication or progression of this disease but I can't think or concentrate, short term memory loss and difficulty finding the right words. I f/u with neuro. in Jan. and will revisit the topic then...If I can remember to. F 44 23 days
20mg 1X day
12/10/2010
Email
 4  MS It feels like a bee-sting and I get a pretty nasty welt after, which lasts a few days. Nonetheless, I have to say it beats injecting into the muscle! F 36 8 days
1X day
12/8/2010
 4  DIAGNOSED WITH MS Bee sting feeling after injection despite using warm packs, cold packs, etc. (everything that the nurse told me to use); next day I have severe itching and swelling around the sites, using benadryl cream but does not help. F 55 1 months
20MG 1X day
12/1/2010
 4  ms burning itching redness sore I have been taking Copaxone for only 12 days, the pain is pretty bad, it actually hurts tp put my pants on because of my thigh, hip, and stomach injection spots. They are all sore even a week after injection. My arm was so bad the other day I couldn't sleep on my side. But despite all of this, I am feeling better (obviously only mentally since it's only been 12 days) but I have an answer for whats wrong with me and this will help me. I am too young to let a disease slow me down, I havent even had a chance to have kids so Copaxone is very imporatant to me. F 23 12 days
20 1X day
11/29/2010
 4  ms 58
20MG 1X day
11/24/2010
Email

Patient History
 4  ms I take copaxone once a week - could only tolerate injecting once a week. First five years, I injected two to three times a week. After 6 years, went off medicine for 3 weeks and had an attack. Went back on the medicine and ms improved. Believe this drug has helped me. Have bumps on my thighs from all the injections and still feels like a bee sting for 24 hours after injection. Numbing area with an icepack helps. Will continue to take this drug - ms has improved and stabilized. F 54 12 years
1X W
10/30/2010
 4  Relapse/Remitting MS common injection site reactions...lump, redness, stinging, itching. Also had 4 extremely bad reactions. Heart palpatations, shortness of breath, pain up and down my spine followed by at least 1 hour of severe tremors and shaking. I was relieved to read that others have experienced the severe shaking after having a reaction to an injections. Several had told me that the shaking had nothing to do with the injection and was extremely rare. I have learned that if the injection is unusually painful going in it is likely I will have a severe reaction. I always take my injection at night so that if I have a reaction, I am home and able to ride it out. The benefits of Copaxone out weigh the few bad reactions so I will continue to take it. F 61 4 years
1ml 1X day
10/13/2010
Email
 4  MS For over 11 years I just had the usual injection site reaction,raised red egg-shaped area, warm to the touch. Then this year I have had 2 extreme reactions to Copaxone. The first was in January and the second was in Oct. where I was extremely hot (a dry hot like I felt I was going to combust) and racing heart, feeling faint and sick which lasted for about an hour then I was freezing cold. I was shaking all over. Put socks on, my robe any my husband made me some hot tea but he had to give it to me because I was shaking so badly that I couldn't hold the cup. It finally subsided but still didn't feel very well the next day. F 55 12 years
30 mg 1X day
10/11/2010
Email
 4  RRMS Itching, lumps, swelling, sometimes bruising I really appreciate everyone's shares and suggestion. I was dx 2009 and on copaxone 2 mo's. I feel less fatigued, but perhaps that's my imagination. I don't want another relapse, that keeps me motivated to inject. It's not bad, right before I auto-inject I tell myself "it doesn't hurt, it doesn't hurt!" My worst spot is my thighs, big swelled lumps. Not much fat there. Lasts 3-5 days. I bought 2 heat packs and yesterday, at work, sat them on my thights at my desk most of the day. Today I'm icing them. Nurse suggested massaging lumps with fingertips to "break up" lumps. F 46 2 months
1X day
9/16/2010
 4  I have M.S Minor swelling at injection site and stinging for about 5 minutes I was so afraid of the side affects that I cried before my first injection. I was fine and was pleasantly surprise that I had the strength to inject myself with the auto injet. No where near the trama I had thought Copaxone injections would be. M 42 2 days
1X day
9/4/2010
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