COPAXONE Reviews (GLATIRAMER ACETATE)

Average Rating: 3.5 (300 Ratings)

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 Type: Rx Drug

  

COPAXONE  (GLATIRAMER ACETATE):  This medication is used to treat a certain type of multiple sclerosis (relapsing multiple sclerosis-MS). It is a protein that is thought to work by preventing your immune system from attacking the nerves in your brain and spinal cord. This effect can decrease the number of periods of disease worsening (relapses) and prevent or delay disability. It is not a cure for MS.   FDA Approval Date: 2014-01-28 (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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More on COPAXONE: Reviews Summary  |  Drug Safety Information

RATING  REASONSIDE EFFECTS FOR COPAXONECOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 2  RRMS Brief stinging similar to a bee sting. Welts at first, few later. Arms are most sensitive and I don't usually inject in arms. Feel more tired than prior to taking it. It is, in my experience, almost impossible to recognize results with this med. Would my MRI show stable lesion formation anyway? I went 15 yrs without taking a DMD. Neuros want their patients on this, but admit it's not a cure and maybe it will halt progression... F 66 10 months
20 mg 1X day
1/23/2011
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 5  RRMS Some swelling at injection site. Stinging/burning after some shots. Tenderness. Sometimes minor brusing. I have found that gently pressing on the injection site w a cotton ball right after the shot for 1 full minute helps with keeping the lumps and bruising to a minimum. Apply cold pack after. Keep 5 syringes at a time in a room temp bag so I don't have to wait to inject. Thank goodness there is a drug on the market that is not an interferon. No relapses since on it. Hope to be on it for decades or until a cure. This drug is to lengthen time between relapses and lessen bad effects from relapses. Not meant to treat current symtoms or even help with fatigue. F 48 4 months
20 mg 1X day
1/3/2011
 5  MS Injection site "Bee Sting" but this seems to be less severe each time. Some redness and a lump (again less severe each time). Overall I'm actually excited with this treatment. Dx 2003, I tried Avonex for first 2 1/2 yrs. Hated side effects. Was on Tysabri 3 years and had shingles twice now trying Copaxone. I have to say I'm very happy. I don't have to rely on my husband for Avonex injections (I couldn't give myself the IM injection) and don't have to rely on an Infusion center for Tysabri. The needles don't hurt and my hopes are the site reactions will be minimal after some time. F 47 21 days
20 1X day
12/30/2010
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 4  Ms 1or 2x/year - violent rigors, severe pain around kidneys. These reactions tend to occur if I have given the injection IV instead of S/C. I chk carefully there is no blood in the cannula of the syringe B4 I inject now. I'm a nurse. F 54 10 years
1X day
12/24/2010
 4  RRMS Some stinging and redness @ the injection site that dissapates in a few hours. I am a Registered Nurse but have been symptomatic for 2 years but was only officially diagnosed last month. This is my first med attempt. The informational session with the RN from Shared Solutions helped as I had already begun injections when the med. arrived and she could not meet with me until the following weekend. Warm pack before injections helps. I do not use the ice pack afterward (too cold). I have not seen a change in any of my symptoms but my memory is terrible. I don't know if it is a side effect of the medication or progression of this disease but I can't think or concentrate, short term memory loss and difficulty finding the right words. I f/u with neuro. in Jan. and will revisit the topic then...If I can remember to. F 44 23 days
20mg 1X day
12/10/2010
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 4  MS It feels like a bee-sting and I get a pretty nasty welt after, which lasts a few days. Nonetheless, I have to say it beats injecting into the muscle! F 36 8 days
1X day
12/8/2010
 4  DIAGNOSED WITH MS Bee sting feeling after injection despite using warm packs, cold packs, etc. (everything that the nurse told me to use); next day I have severe itching and swelling around the sites, using benadryl cream but does not help. F 55 1 months
20MG 1X day
12/1/2010
 3  MS Burning, itching, swelling at injection sites. I do not have a lot of fat on the legs or arm areas, so these injection sites are torture. My legs swell all the way down to my knees, and the skin on my upper arms is now scaly and hard. Injection in stomach is wonderful - no reaction, but that is where I have fat. I have not had a relapse since I have been on Copaxone, however, and that's what counts to me. F 44 5 months
20 1X day
12/1/2010
 4  ms burning itching redness sore I have been taking Copaxone for only 12 days, the pain is pretty bad, it actually hurts tp put my pants on because of my thigh, hip, and stomach injection spots. They are all sore even a week after injection. My arm was so bad the other day I couldn't sleep on my side. But despite all of this, I am feeling better (obviously only mentally since it's only been 12 days) but I have an answer for whats wrong with me and this will help me. I am too young to let a disease slow me down, I havent even had a chance to have kids so Copaxone is very imporatant to me. F 23 12 days
20 1X day
11/29/2010
 1  Multiple Sclerosis Extreme and almost overnight weight gain of forty pounds that doubled my struggles with MS. I cannot say enough bad things about this drug. I was not warned at the time (5 years ago) that weight gain was a possible side effect and now my life is twice as hard. I would not have touched it had I known in advance. I have tried everything in my power and cannot get rid of this weight which has made my life with the disease much, much worse. F 49 45 days
1X day
11/29/2010
 4  ms 58
20MG 1X day
11/24/2010
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Patient History
 3  Low side effects I had my second injection this morning at 6am and had SEVERE reactions. My fiance was with me so he was able to help me through them and get my parents for me, but after I had done the injection I started feeling the burning/pressure that I was used to with the previous injection I had done, but then after a few minutes, I started having spots in my vision and warned my fiance i was about to pass out, I sat down and fainted. When I came to, I had noticed that I lost bladder control while unconscious and I was extremely nauseous, i vomited several times, my skin was cold and clammy, but I was hot, and I had bowl movement urgency. I felt as though everything in my body was trying to escape. I have only been on Copaxone for the past couple days, that's why i selected 3 as my rating. F 26 2 days
1X day
11/24/2010
 4  ms I take copaxone once a week - could only tolerate injecting once a week. First five years, I injected two to three times a week. After 6 years, went off medicine for 3 weeks and had an attack. Went back on the medicine and ms improved. Believe this drug has helped me. Have bumps on my thighs from all the injections and still feels like a bee sting for 24 hours after injection. Numbing area with an icepack helps. Will continue to take this drug - ms has improved and stabilized. F 54 12 years
1X W
10/30/2010
 4  Relapse/Remitting MS common injection site reactions...lump, redness, stinging, itching. Also had 4 extremely bad reactions. Heart palpatations, shortness of breath, pain up and down my spine followed by at least 1 hour of severe tremors and shaking. I was relieved to read that others have experienced the severe shaking after having a reaction to an injections. Several had told me that the shaking had nothing to do with the injection and was extremely rare. I have learned that if the injection is unusually painful going in it is likely I will have a severe reaction. I always take my injection at night so that if I have a reaction, I am home and able to ride it out. The benefits of Copaxone out weigh the few bad reactions so I will continue to take it. F 61 4 years
1ml 1X day
10/13/2010
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 4  MS For over 11 years I just had the usual injection site reaction,raised red egg-shaped area, warm to the touch. Then this year I have had 2 extreme reactions to Copaxone. The first was in January and the second was in Oct. where I was extremely hot (a dry hot like I felt I was going to combust) and racing heart, feeling faint and sick which lasted for about an hour then I was freezing cold. I was shaking all over. Put socks on, my robe any my husband made me some hot tea but he had to give it to me because I was shaking so badly that I couldn't hold the cup. It finally subsided but still didn't feel very well the next day. F 55 12 years
30 mg 1X day
10/11/2010
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 2  RRMS burning, itching, lumps, and redness I feel like never taking another shot again! The shot itself I can handle...its the effects afterwards. I have taken this for twelve days and have twelve lumps that are huge, itch like crazy - the burning after the injection has let up a lot but that is the only good thing I can say about it. My husband feels I should continue with it, but he has no idea how it really feels... you cannot imagine until you try it yourself. When I first read the "side effects" I thought oh - I can handle that but when your actually injecting... the symptoms are NOT mild. I cannot imagine what I will look like and feel like in 365 days of treatment! I will be sooooo lumpy :( Really feeling like a relapse isnt as bad as the injections - at least they come and go - the injections, its a reminder everyday... just not happy today! F 41 12 days
1X day
10/9/2010
 3  I HAVE MS NO SIDE EFFECTS AT ALL. I MEAN NOTHING. FIRST SHOT IN THE RIGHT THY. I SUPPOSE IT IS WAY TO EARLY TO TELL IF IT IS DOING MUCH/ANYTHING. M 46 1 days
40 MG 3X W
10/1/2010
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 2   injection site lumps, horrible fatigue didn't attribute the fatigue to copaxone until i checked this site. now it all makes sense. Tried rebif for one year, it was killing my liver. not interested in anything else, considering disability and retirement. I work on open steel installing elevators and I feel too unstable anymore. Very frustrated. M 51
1X day
9/28/2010
 5  RRMS Mild burning, sometimes raised welt but disappears by morning, also sometimes bruising but doesn't hurt. This is a relatively safe drug to take. For those of us who are trying to do everything we can to stave off another relapse, it is a lifesaver. It has stabilized my MS and has given me more energy (or less fatigue). While I am not crazy about giving myself shots everyday for the rest of my life, the mild site injection challenges are a small price to pay for the chance at slowing down this disease. All in all the autoinjector is a fantastic way to inject yourself if you can't seem to do it manually. F 48 3 weeks
1 ml 1X day
9/19/2010
 5  MS I haven't had any of the horrible side effects I have heard about. I do have lumps, but I rotate injections religiously and haven't had any issues with my tissue. :) Taking Copaxone is a non-event for me. My thighs are the worst - not much fat. But, everything else is easy. I use the autoinjector, don't use heat or cold, just make sure it's room temperature and shoot! :) I take mine at night, right before bed. F 39 1.5 years
1X day
9/17/2010

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