COPAXONE Reviews (GLATIRAMER ACETATE)

Average Rating: 3.5 (300 Ratings)

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 Type: Rx Drug

  

COPAXONE  (GLATIRAMER ACETATE):  This medication is used to treat a certain type of multiple sclerosis (relapsing multiple sclerosis-MS). It is a protein that is thought to work by preventing your immune system from attacking the nerves in your brain and spinal cord. This effect can decrease the number of periods of disease worsening (relapses) and prevent or delay disability. It is not a cure for MS.   FDA Approval Date: 2014-01-28 (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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More on COPAXONE: Reviews Summary  |  Drug Safety Information

RATING  REASONSIDE EFFECTS FOR COPAXONECOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 1  RRMS took Copaxone for nine months. The infection sites were unbearable and stayed that way for days. I am full of unsightly pitts on arms, legs and hips. However, this is not as bad as the asthma allergies that came on suddenly. I am allergic to most food, grass, pollen but not animals. As one that has experience in the medical field, it parallels to the allergic site reactions, then the sudden onset of asthma and allergies. I wish I had never taken this drug. It did nothing for my MS, My life with allergies and MS is trying to say the least. The drug company was very nice to me but it doesn't make me feel any better. F 59 9 months
1X day
6/29/2012
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 1  to avoid relapse Severe burning welts tiredness etc. I hate it. I have tried betason and avonex F 47
daily 1X day
6/25/2012
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 3  MS just a bit of pain at shot site. It don't last long, only a few minutes M 48 3 months
20mg
6/11/2012
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 4   I have been on it for 13 years!!! I have terrible "dips" destroyed fatty tissue in all sites. They have deformed my body. I am 47 and very upset about this. Athough I feel better than I have felt since dx in 1997! F 47 13 days
1 shot 1X day
4/30/2012
 4  Multiple Sclerosis I've had 6 incidents of hot flushing, 1 PHENOMENAL bruise, 1 bout of nausea and a very occasional bitter taste in my mouth. F 28 8 months
1 x day
4/27/2012
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 4  Multiple Sclerosis Huge lumps , burning , itching , sometimes extreme pain when injecting [usually in hips and legs] Every once in awhile when I do a injection the drug does not inject into site properly so when I pull out the needle the medicine sprays everywhere. I also noticed that after 8 years some lumps are not going away. I have huge indents at sites. Permanent damage to injection sites. Bruising. I am using the auto inject. F 33 8 years
20 MG 1X day
3/28/2012
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 5  MS None M 27 5 days
20 1X day
3/21/2012
 1  MS of others All drugs are poisoness eventually. On the bright side all diseases are vitamin deficiencies and can be cured with proper dosing [Your doctors will never tell you! The drug companies own them.] MS is likely another autoimmune disease like RA for which I am effectively cured with vitamins and proper nutrition partially covered at Dr (PhD) Saul's site doctoryourself.com. There are also some new products out with concentrated B1 and 12 in addition to the critical B3 (the niacin form has 500 mg available off the shelf)but I am running out of space, you can e-mail me any questions. Good luck! M 56
1X day
3/16/2012
Email
 4  MS Feels like a beesting. At first I only had redness for about an hour. Then all of a sudden I started getting huge lumps everywhere I injected with a lot of itchiness and swelling and redness that lasts for days, to weeks. I had to skip a couple days because of the soreness and lumpiness. Most of the lumps have shrunk into very small buttons after almost a week, but a few are still very agitated. F 18 30 days
20 mg 1X day
3/9/2012
 1  RRMS I took copaxone for over 13yrs with minimal, typical side effects. (pain at inj site, welts, divots, etc.) In December I experienced a severe reaction and my whole life changed. First my arm looked like it had a bad bruise. Then the area turned dark red and finally black. I had to have the black areas (skin necrosis) surgically debrided out of my arm on 3 separate occasions. My arm wound was so deep you could see the tendons, nerves, and bone. I was taking antibiotics, pain medicine, lyrica, vitamins and I then got drug induced hepatitis. I have missed 2months of work and will have severe scarring on the back of my arm. There are many quesses as to why this happened. What I am upset about is that Shared Solutions says this can happen, but they say it is rare. It usually happens to people who have been on the drug for a long time. WHen I called to report it, they told me.....wowwe havent talked to you in many many years. They need to be educating their long time copaxone users patien M 45 13 years
1ml 1X day
2/19/2012
Email
 4  MS burning and itching with redness to site which lasts for about 10-15 min. Except when I inject my thighs they last all day with soreness. My Blood Pressure has been running very low 74/42 and I dont know if thats because of the copaxone But I believe it is. I woke up last year 02/2011 and collapsed and I couldn't see , double vision , walking side ways and had a severe migraine with nausea that lasted for 2 weeeks. The ER said it was a migraine. I had a MRI done and the first neurologist I went to said, You have a migraine take this", He gave me topamax and said I'll see you in 6 months. I went to the next nuerologist and besides having chronic migraines since I was 16, they ran all kinds of tests to rule out everything,and they even did a spinal tap that was negative. But my MRI had signs of new progressive lesions growing in my head from 6 months ago and had been since 2003. So, they monotoired me and I got worse around christmas,woke up and had leg spasms from the groin down to my ankles and it felt like charlie horses and I couldn't walk. I had trouble with my urine. My doctor finally said you need to come in for some chemo/IV infusion therapy. I have had that twice in two months and it sucks. I was diagnoised with MS in 01/2012. Before that I was working as a nurse and had to quit my job. My symptoms vary day by day but pretty much are vertigo, paroxymal hemicranial headaches, leg spasms, cannot stand for no longer than 30 min at a time and low blood pressure which makes me dizzy, lightheaded, and tired which I am battling everyday right now. Does it get any better? I cant tell if the shots will help but my legs do feel better. F 33 2 weeks
20 mg 1X day
2/15/2012
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 5  MS Injection site reactions vary each day; redness, burning, itchy, bruising, soreness, lumps. Reactions lasting anywhere from an hour to several days per injection site. ONE time, immediate post injection reaction; rapid heart beat, chest pain, flushing, lasted half an hour. I have been on and off COPAXONE for 9 years. While I was on it, my MRIs never changed- and I had no relapses (except for the ongoing fatigue, and mild cognitive issues) however because the injections were painful and tiresome I would stop taking it occasionally, and finally quit for 2 years. After I quit, I started having small relapses lasting 3 weeks- 3 months. Then after 2 years I had an MRI showing new and active lesions. Needless to say I have chosen to go back on COPAXONE and put up with the pain, as I know it was working for me before. F 33 9 years
20 mg 1X day
1/9/2012
 5  RRMS Little stinging not bad. Some welts that go away within an hour. Large egg formed with one of my arm injections with no pain it may be because I dont have a lot of fat there. Other than that it has become just another part of my daily routine. I was recently diagnosed October 24, 2011. This was after years of issues that could not be explained. I had no health insurance so an MRI was out of the question. After getting insurance i was diagnosed within a few weeks. I am doing very well and have very positive outlook. My symptoms were mostly numbness in hands and feet and some days of severe fatigue. In the past month all symptoms have gone away. I have high hopes for capaxone and look forward to staying as active as I have been all my life. I am a 10 year old in a 41 year olds body and believe capaxone is going to help me stay this way!!! Stay positive and give it a chance. F 41 30 days
20MG 1X day
12/25/2011
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 3  RRMS Heart palpatations bee sting feeling at injection site itchy large lump that is very hot for about 3 days after injection eye twitch anxiety extremely dry flaky skin Intermittently injections would seem to trigger numbness in left hand. After about 5 months on the drug skin had an ashy white hue that lotions could not even combat. And there was a full body itch that upon scratch would produce hives and redness especially on the palms of the hands and tops of the feet M 46 6 months
1X day
12/25/2011
Email
 3  ms I took avonrx7 yrs18 lesion latter cervical spinal ms also I haven't had no bad side effects but am thin need I more injection. Places. Will it work if I use my butt /I cellulite upper legs. Calves. We have a whole body I don't won't atrophy so scared I am on ldn2 mg also I just pray I don't get dents 90 percent of users do overall im ok I manual. Inject F 34 1 weeks
1 a day
12/8/2011
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 3  MS The usual redness and itching at injection sites with some bruising. On 9/29/11 I had a severe IPIR. The symptoms included flushing, exreme anxiety, severe back pain in the kidney area and the feeling that I was going to pass out. The ambulance was called, but by the time they arrived all of the symptoms were gone except the anxiety. The SS nurse, who responded promply assured me that everything I described to her was quite normal for a PIR and that she had heard these same symptoms 4 or 5 times that day. My Neuro doc said to to stop taking the Copaxone for 1 week, but I have so far not had the courage to inject again. I am in the process of changing Neurologists and so wil get a second opinion before a take a chance on this happening again. M 55 5 years
20 ml inj. 1X day
10/17/2011
Email

Patient History
 4  RRMS Large swollen lumps that are hot, red and itchy. Last about a week and then fade to ghost bruising that doesn't go away. Im taking Zyrtek nightly and using cold pack before and after. I also tape on a cotton swab with Lanacane after injecting manually. During the day I put on topical Benadryl. Does anyone have any other "tricks" that might help me? I would love to get some relief from the side effects. F 45 30 days
20 mg 1X day
8/29/2011
Email
 3  RRMS Bee stinging feeling with burning. Sometimes a lot of burning. Really itchy the next day and very hot to the touch that can last for days after. The normal welts are always there. I use a hot pack that Shared Solutions sent to me every night after my injection. I apply pressure for about 45 mins to an hour with it which helps me. I try to massage some of the bumps days later, but it also causes it to be itchy again. I've tried everything that my nurse from Shared Solutions has suggested for the itching, but nothing has worked yet. I just continue to itch. I could be a lot worse i suppose. I was diagnosed in Sept., 2002. I was stubborn about this type of treatment and perhaps in a bit of denial. But i had a major attack New Years Eve Day weekend and i realized that i didn't want to go back to that again. I started the Copaxone 7 months ago as of yesterday. This is still new to me. Every night it's different in some way and i still second guess the area's to be done. My family is bending backwards for and with me. I can't complain. My husband does the injections on my buttocks and the back of my arms for me as i find it hard to reach. My left limb from elbow to hand is still healing from the last attack and i find it very hard to use it. I'm okay on my own with my thighs and tummy. I can't say if this medication is doing anything for me as i don't notice a difference other then i'm alot better now then i was at the beginning of the attack. I find i'm more tired through out the day also. I see my neurologists in 2 days and i really hope he sends me for an MRI just to see if there is anything more going on. I had a possible relapse 2 weeks ago that landed me back on IV meds. But the doctor wasn't really sure if it was a continuation of the previous attack or a new one. Hopefully some thing will become of this stuff. I'm proud to say that i haven't missed a dose yet. I'm getting better at it, but i don't think you can every get use to doing it!!!! F 31 7 months
20mg 1X day
8/29/2011
Email
 4  MS Bee sting, lump, itchiness F 32 4 months
20 mg 1X day
8/12/2011
 4  MS Copaxone was great for the first 1.5 yrars. Then one evening right after the injection I started feeling hot and got a bitter taste in my month, my chest felt heavy and I could bearly breath I got bad stomach cramps and had to go to the bathroom I was terrified went to the ER and they told me it was a reaction to the medication. not another reaction for a year then it just happend again last night, I called my Neurologist and she said that other patients on that medication have been passing out, and told me to stop taking it. I go see her next week hopefully we can find something else to keep my relapse remittin MS in check. F 47 4 years
1X day
8/1/2011
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