COPAXONE Reviews (GLATIRAMER ACETATE)

Average Rating: 3.5 (300 Ratings)

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 Type: Rx Drug

  

COPAXONE  (GLATIRAMER ACETATE):  This medication is used to treat a certain type of multiple sclerosis (relapsing multiple sclerosis-MS). It is a protein that is thought to work by preventing your immune system from attacking the nerves in your brain and spinal cord. This effect can decrease the number of periods of disease worsening (relapses) and prevent or delay disability. It is not a cure for MS.   FDA Approval Date: 2014-01-28 (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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More on COPAXONE: Reviews Summary  |  Drug Safety Information

RATING  REASONSIDE EFFECTS FOR COPAXONECOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 1  multiple sclerosis Anxiety, loss of appetite, mood swings;fatigue Beeen on 20 mg for 14 years and am switching back ASAP F 64 6 weeks
40 3X W
8/21/2014
 1  switched from copaxone 20mg Decreased appetite Increased fatigue Mood swings Ms exacerbation Increased anxiety Inability to slow down to rest and sleep F 41 1 months
40
7/30/2014
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 3  I have tried other medicine dont wo I have been taking 40mg copaxone for 3 weeks now and the injection site reactions are terrible. I get an huge 3" by 3" red welt with severe pain and burning with itching that lasts a good 3 days or more. No other side effects tho, which is a good thing.I do not use the autoject, however my shared solutions nurse thinks it will help and that I may be injecting to deep. F 37 3 weeks
40mg
6/18/2014
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 4  RRMS Nothing for the first two months except twice after injecting in my right arm, I had extreme pain in that arm for about 4 hours. I stopped injecting in that location and everything was great for 3 months (I did not use the auto-injector). after starting my 4th month ( started using the auto injector because it is easier) and I started getting red welts at the injection sites which would itch two days later (strange). Somedays I get EXTREME fatigue, but I'm not sure it this is Copaxone related. I will be switching to the 3x a week 40 MG next week. Although I have only been on the medication for a short time, I do think that it helps, I feel better overall. M 47 4 months
20 MG 1X day
5/14/2014
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 3  MS Horrific injection site reactions, hard as a rock, bruising, lumps, bumps. Nausea, night sweats, eating away at my teeth, IBS exacerbations , weight gain Despite the reactions I will stay with this or just go off of it until something "better"comes alone. Slow progression of disease with lack of endurance, lack of appetite despite weight gain which is steady, walking but short distances but no major exacerbations. F 62 13 years
20 mg 1X day
5/8/2014
 5  Multiple Sclerosis None F 40 1 days
1/12/2014
 3  Rrms Last 3 weeks I experienced the most painful post injection-anxiety, heart palpitations and body spasms for an entire 15 minutes. My dr said "if I was game, see if it happens a third time." Are u kidding me??? I took myself off completely. F 55 10 years
30mg
10/13/2013
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 4  RRMS A quick question for all the females out there. Have you at all noticed any change in your menstrual cycle since starting Copaxone. Would really like to know as I have been dealing with this for a while now. F 33 2.5 years
20 MG 1X day
8/7/2013
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 4  RR MS Lipoatrophy on upper arms, some anxiety, the usual burning and itching, but they left after I'd been on drug a month. I took a break off Copaxone and went to Tysabri from Feb, 2012 to Feb. 2013 as my neuro wanted me to. I did NOT. I was scared of Tysabri. After finding that it caused me severe respiratory distress and bladder infections, I went back on Copaxone last week. For the first time in 7 years I had a site reaction: a huge red welt of hives, hot as a furnace. I put cold on it and it left after 25 minutes. This drug has been very good for me, and oddly, when I started it I ceased having migraine headaches. I do occasionally have weak legs after injecting, and reactions can happen no matter how many years you've been on the drug. As I already had depression, Avonex or Betaseron weren't options. The only real concern I have is of lipoatrophy, as I'm running out of places to inject. I've hit a blood vessel occasionally, never pleasant, but nothing permanent. Basically I'm grateful indeed for this drug. And they're coming out with a once-a-month version of it, I heard this week. Should be interesting. F 60 7 years
1X day
5/11/2013
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 5  Multiple Sclerosis Have been on Copaxone for 18 years,(study participant), and have NEVER experienced the "post injection" reaction like you describe. Have been extremely happy with the lack of adverse reactions to this medication. F 63 1 days
20 MG
3/31/2013
 3  multiple sclerosis When I first started I had no issues but as I kept injecting .... About a year ago I started having the "post injection site side effect" [what feels like a heart attack / panic attack] Which I was told mostly effects people just starting Copaxone. What I found online is when you inject into a vein this will happen. To date I have had this happen 2 times. So now I have to really check where I inject. If I see any "blue" at all I will not inject in that spot or near. It's getting harder to find virgin spots . In Nov 2012 I noticed pitting edema in my shins. I've been through many tests which always seem to come back negative. I am interested to know .... If anyone else has huge lumps on the top of their legs. They seem to be permanent as they never go away. I also have bad varicose veins on my legs near the injection sites. Is it possible that the medicine is either not being absorbed properly or the damage from injecting for years is some how stopping the flow of blood[fluid] from the knees down and causing pitting edema and stabbing pain and what feels like burning veins. On me my hips and legs are the worst. If I inject that day the pitting edema seems worse in that leg. A few days ago the pitting was gone and the day I injected into leg the pitting was back. I just put this together as being a cause so I am still interested to see if the pitting starts to go away and then when I inject again does it get worse and if it does it every time. I also stopped injecting in hips since both times I had the "post inje F 34 9 years
20 mg 1X day
3/21/2013
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 2  ms Pain , itching and redness at injection site. Feeling very fatigued and weak. F 43 10 weeks
2/25/2013
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 3  MS 30 minutes after injection had IPIR. Reaction was I was burning up, weak, dizzy, heart racing, face and especially lips tingly and numb, right hand week. At the 4 hour mark was able to walk although unsteady, at 6 hour mark was heading back to my MS normal. At 8 hour mark after reading multiple Internet comments and Shared Solutions plus my neurologists nurse took a Tylenol and Benadryl. At the 12 hour mark I napped and feel weak and wrung out. Wonder if The injection went into an area that was directly linked to blood supply? Don't know. Will try tomorrow and see how I react. All in all a long day M 57 77 days
20 1X day
1/23/2013
 5  RRMS Redness, flushing, fevers every once in a while. For fever times I take a Benadryl and it seems to help. Had one episode 13 years ago none since, I will defiantly stay on copaxone even with some lousy side effects M 50 10 years
20mg
1/10/2013
Email
 4  RRMS Each day is different. I've had redness, hard lump just under the skin, pain, burning, fatigue, dry eyes, flushing, couple of bruises, and weight fluctuation. I inject at night before bed, apply heat to intended injection site prior to injection, and have med at room temp by the time I inject the med. I never us my arms (my choice). Most severe pain was the first one - med was cold, I was cold, and put it in my inner thigh. I have to watch what I eat d/t weight shifts and gain. Everyday each injection hurts, but only for around 10 min. Difficult to know that medication is not working fully until after being on the med for 6 months, but every day without a flare up is worth it. F 29 2 months
20 MG 1X day
12/6/2012
 2  to stop relapses with my ms red sore lumps, pain at injectioin sites, have to take painkillers beforehand, swelling in hips, thighs and bad red swellings in both arms, feel like a overused pin cusion. will not be taking it anymore from tonight, have not told my doctor yet, but am not putting myself through anymore pain, without any proof of its working. F 55 5 months
20 mg 1X day
12/5/2012
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 4  RRMS Pain at injection site. Now after 10 years, my thighs are rock hard at the injection site and I have tissue loss at my hips. I showed my doctor that I have loss of tissue down to the bone on one buttock, said he's never seen anything like it. Copaxone works but I am running out of places to inject. It is also taking a toll on my teeth. F 52 10 years
20 MG
11/11/2012
 5  ms The usual nasty skin reactions most times. I HAVE FOUND THAT KEEPING ABSOLUTELY STILL FOR ABOUT 1/2 HR. AFTER INJECTION HAS HELPED DRAMATICALLY WITH THE PAIN. After 13 yrs. my skin is in pretty good shape (discoloured, lumps but no degredation). I have had the severe body side effects occassionally. In the last few years have become more frequent, severe, lasting longer (several hours). Yesterday was really bad so I am researching if there is anything I can do to lessen the reaction. The first time I had a severe reaction was about 1 yr. after taking Copaxone in 1998. My MS doctor took me off it immediately. After about 6 month I felt my symptoms getting worse so I asked to start again. Copaxone has really helped and I do not want to stop, but am concerned about severe reactions. Others have suggested 25 mg. of benadryl and an Epipen. I will try the benadryl and talk to my Dr. about the pen. Anyone have any other ideas? F 60 15 years
20 1X day
10/20/2012
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 5  MS none been working great M 50 7 years
20mg 1X day
8/27/2012
 4  diagnosed in July,2012 with MS The only side effects so far are a little welp after injection that has left before the morning. I do have burning at time of injection and do use heat before and cold after per the nurse. I have some pain in the sites still but only if touched to hard. I feel better, but I am sure that is only because I now know what I have and that Copazone will make it better. (Hopefully) I feel like I have made the right choice taking Copaxone because of the least amount of side effects. I can deal with the medicine buring at time of injection and if I have a post injection side effect 20 mins. will end alot faster then being sick for days after as some of the other meds. can cause. I will check back in a few months though and let you know if I feel the same way. F 37 7 days
30mg 1X day
8/1/2012

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