Drug Ratings for COPAXONE

Average Rating: 3.5 (280 Ratings)

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)   

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    New! Reviews Summary for COPAXONE  | Top 10 Adverse Effects (reported to FDA)

RATING  REASONSIDE EFFECTS FOR COPAXONECOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
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 2  RRMS Brief stinging similar to a bee sting. Welts at first, few later. Arms are most sensitive and I don't usually inject in arms. Feel more tired than prior to taking it. It is, in my experience, almost impossible to recognize results with this med. Would my MRI show stable lesion formation anyway? I went 15 yrs without taking a DMD. Neuros want their patients on this, but admit it's not a cure and maybe it will halt progression... F 66 10 months
20 mg 1X D
1/23/2011
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 5  RRMS Some swelling at injection site. Stinging/burning after some shots. Tenderness. Sometimes minor brusing. I have found that gently pressing on the injection site w a cotton ball right after the shot for 1 full minute helps with keeping the lumps and bruising to a minimum. Apply cold pack after. Keep 5 syringes at a time in a room temp bag so I don't have to wait to inject. Thank goodness there is a drug on the market that is not an interferon. No relapses since on it. Hope to be on it for decades or until a cure. This drug is to lengthen time between relapses and lessen bad effects from relapses. Not meant to treat current symtoms or even help with fatigue. F 48 4 months
20 mg 1X D
1/3/2011

 5  MS Injection site "Bee Sting" but this seems to be less severe each time. Some redness and a lump (again less severe each time). Overall I'm actually excited with this treatment. Dx 2003, I tried Avonex for first 2 1/2 yrs. Hated side effects. Was on Tysabri 3 years and had shingles twice now trying Copaxone. I have to say I'm very happy. I don't have to rely on my husband for Avonex injections (I couldn't give myself the IM injection) and don't have to rely on an Infusion center for Tysabri. The needles don't hurt and my hopes are the site reactions will be minimal after some time. F 47 21 days
20 1X D
12/30/2010
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 4  Ms 1or 2x/year - violent rigors, severe pain around kidneys. These reactions tend to occur if I have given the injection IV instead of S/C. I chk carefully there is no blood in the cannula of the syringe B4 I inject now. I'm a nurse. F 54 10 years
1X D
12/24/2010

 4  RRMS Some stinging and redness @ the injection site that dissapates in a few hours. I am a Registered Nurse but have been symptomatic for 2 years but was only officially diagnosed last month. This is my first med attempt. The informational session with the RN from Shared Solutions helped as I had already begun injections when the med. arrived and she could not meet with me until the following weekend. Warm pack before injections helps. I do not use the ice pack afterward (too cold). I have not seen a change in any of my symptoms but my memory is terrible. I don't know if it is a side effect of the medication or progression of this disease but I can't think or concentrate, short term memory loss and difficulty finding the right words. I f/u with neuro. in Jan. and will revisit the topic then...If I can remember to. F 44 23 days
20mg 1X D
12/10/2010
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 4  MS It feels like a bee-sting and I get a pretty nasty welt after, which lasts a few days. Nonetheless, I have to say it beats injecting into the muscle! F 36 8 days
1X D
12/8/2010

 4  DIAGNOSED WITH MS Bee sting feeling after injection despite using warm packs, cold packs, etc. (everything that the nurse told me to use); next day I have severe itching and swelling around the sites, using benadryl cream but does not help. F 55 1 months
20MG 1X D
12/1/2010

 3  MS Burning, itching, swelling at injection sites. I do not have a lot of fat on the legs or arm areas, so these injection sites are torture. My legs swell all the way down to my knees, and the skin on my upper arms is now scaly and hard. Injection in stomach is wonderful - no reaction, but that is where I have fat. I have not had a relapse since I have been on Copaxone, however, and that's what counts to me. F 44 5 months
20 1X D
12/1/2010

 4  ms burning itching redness sore I have been taking Copaxone for only 12 days, the pain is pretty bad, it actually hurts tp put my pants on because of my thigh, hip, and stomach injection spots. They are all sore even a week after injection. My arm was so bad the other day I couldn't sleep on my side. But despite all of this, I am feeling better (obviously only mentally since it's only been 12 days) but I have an answer for whats wrong with me and this will help me. I am too young to let a disease slow me down, I havent even had a chance to have kids so Copaxone is very imporatant to me. F 23 12 days
20 1X D
11/29/2010

 1  Multiple Sclerosis Extreme and almost overnight weight gain of forty pounds that doubled my struggles with MS. I cannot say enough bad things about this drug. I was not warned at the time (5 years ago) that weight gain was a possible side effect and now my life is twice as hard. I would not have touched it had I known in advance. I have tried everything in my power and cannot get rid of this weight which has made my life with the disease much, much worse. F 49 45 days
1X D
11/29/2010

 4  ms 58
20MG 1X D
11/24/2010
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History
 3  Low side effects I had my second injection this morning at 6am and had SEVERE reactions. My fiance was with me so he was able to help me through them and get my parents for me, but after I had done the injection I started feeling the burning/pressure that I was used to with the previous injection I had done, but then after a few minutes, I started having spots in my vision and warned my fiance i was about to pass out, I sat down and fainted. When I came to, I had noticed that I lost bladder control while unconscious and I was extremely nauseous, i vomited several times, my skin was cold and clammy, but I was hot, and I had bowl movement urgency. I felt as though everything in my body was trying to escape. I have only been on Copaxone for the past couple days, that's why i selected 3 as my rating. F 26 2 days
1X D
11/24/2010

 4  ms I take copaxone once a week - could only tolerate injecting once a week. First five years, I injected two to three times a week. After 6 years, went off medicine for 3 weeks and had an attack. Went back on the medicine and ms improved. Believe this drug has helped me. Have bumps on my thighs from all the injections and still feels like a bee sting for 24 hours after injection. Numbing area with an icepack helps. Will continue to take this drug - ms has improved and stabilized. F 54 12 years
1X W
10/30/2010

 4  Relapse/Remitting MS common injection site reactions...lump, redness, stinging, itching. Also had 4 extremely bad reactions. Heart palpatations, shortness of breath, pain up and down my spine followed by at least 1 hour of severe tremors and shaking. I was relieved to read that others have experienced the severe shaking after having a reaction to an injections. Several had told me that the shaking had nothing to do with the injection and was extremely rare. I have learned that if the injection is unusually painful going in it is likely I will have a severe reaction. I always take my injection at night so that if I have a reaction, I am home and able to ride it out. The benefits of Copaxone out weigh the few bad reactions so I will continue to take it. F 61 4 years
1ml 1X D
10/13/2010
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 4  MS For over 11 years I just had the usual injection site reaction,raised red egg-shaped area, warm to the touch. Then this year I have had 2 extreme reactions to Copaxone. The first was in January and the second was in Oct. where I was extremely hot (a dry hot like I felt I was going to combust) and racing heart, feeling faint and sick which lasted for about an hour then I was freezing cold. I was shaking all over. Put socks on, my robe any my husband made me some hot tea but he had to give it to me because I was shaking so badly that I couldn't hold the cup. It finally subsided but still didn't feel very well the next day. F 55 12 years
30 mg 1X D
10/11/2010
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 2  RRMS burning, itching, lumps, and redness I feel like never taking another shot again! The shot itself I can handle...its the effects afterwards. I have taken this for twelve days and have twelve lumps that are huge, itch like crazy - the burning after the injection has let up a lot but that is the only good thing I can say about it. My husband feels I should continue with it, but he has no idea how it really feels... you cannot imagine until you try it yourself. When I first read the "side effects" I thought oh - I can handle that but when your actually injecting... the symptoms are NOT mild. I cannot imagine what I will look like and feel like in 365 days of treatment! I will be sooooo lumpy :( Really feeling like a relapse isnt as bad as the injections - at least they come and go - the injections, its a reminder everyday... just not happy today! F 41 12 days
1X D
10/9/2010

 3  I HAVE MS NO SIDE EFFECTS AT ALL. I MEAN NOTHING. FIRST SHOT IN THE RIGHT THY. I SUPPOSE IT IS WAY TO EARLY TO TELL IF IT IS DOING MUCH/ANYTHING. M 46 1 days
40 MG 3X W
10/1/2010
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 2   injection site lumps, horrible fatigue didn't attribute the fatigue to copaxone until i checked this site. now it all makes sense. Tried rebif for one year, it was killing my liver. not interested in anything else, considering disability and retirement. I work on open steel installing elevators and I feel too unstable anymore. Very frustrated. M 51
1X D
9/28/2010

 5  RRMS Mild burning, sometimes raised welt but disappears by morning, also sometimes bruising but doesn't hurt. This is a relatively safe drug to take. For those of us who are trying to do everything we can to stave off another relapse, it is a lifesaver. It has stabilized my MS and has given me more energy (or less fatigue). While I am not crazy about giving myself shots everyday for the rest of my life, the mild site injection challenges are a small price to pay for the chance at slowing down this disease. All in all the autoinjector is a fantastic way to inject yourself if you can't seem to do it manually. F 48 3 weeks
1 ml 1X D
9/19/2010

 5  MS I haven't had any of the horrible side effects I have heard about. I do have lumps, but I rotate injections religiously and haven't had any issues with my tissue. :) Taking Copaxone is a non-event for me. My thighs are the worst - not much fat. But, everything else is easy. I use the autoinjector, don't use heat or cold, just make sure it's room temperature and shoot! :) I take mine at night, right before bed. F 39 1.5 years
1X D
9/17/2010

 4  RRMS Itching, lumps, swelling, sometimes bruising I really appreciate everyone's shares and suggestion. I was dx 2009 and on copaxone 2 mo's. I feel less fatigued, but perhaps that's my imagination. I don't want another relapse, that keeps me motivated to inject. It's not bad, right before I auto-inject I tell myself "it doesn't hurt, it doesn't hurt!" My worst spot is my thighs, big swelled lumps. Not much fat there. Lasts 3-5 days. I bought 2 heat packs and yesterday, at work, sat them on my thights at my desk most of the day. Today I'm icing them. Nurse suggested massaging lumps with fingertips to "break up" lumps. F 46 2 months
1X D
9/16/2010

 5  RRMS Stinging, some lumps, some itching, some bruising I was very nervous about the stinging and itching before starting copaxone, but I have found both to be very tolerable. My hubby gives me my injections daily with the Autoject. I've actually given myself a few shots when time did not allow my hubby to do it. Sometimes I don't feel anything, sometimes the shot hurts (mostly for me in the thighs). I make sure to allow the shot to warm to room temp, rotate the sites faithfully, and always use an ice pack after. If you're a newby, please don't be afraid of the shots. I'm a total wimp and I can totally deal with them daily. F 38 90 days
20 mg 1X D
9/14/2010

 4  I have M.S Minor swelling at injection site and stinging for about 5 minutes I was so afraid of the side affects that I cried before my first injection. I was fine and was pleasantly surprise that I had the strength to inject myself with the auto injet. No where near the trama I had thought Copaxone injections would be. M 42 2 days
1X D
9/4/2010
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 4  MS I was Dx with MS in March 2010. I have been on Copaxone for 2 months. I use Auto injecter.I take 6 shots out of ref. a week and put in my Copaxone bag. I take my shot at 8:00 pm every night. My shots are room temp. I replace with 6 more shots when I use them up. I think the copaxone being room temp. makes a big difference. I am walking better since I started Copaxone, I still use a walker, but not as much as before the shots. F 50 2 months
30mg 1X D
8/19/2010

 5  ms Pain, Swelling, Itching At first I had pain, but you have to numb the area with an ice pack 10 to 15 min before and after the shot. My Dr. also said to take Tylenol Ĺ hr before taking the shot. That helps with pain. I also had itching. My MS specialist told me to take Claritin for the itching and it WORKED WONDERS for me. I tried cortisone cream everything and nothing worked. After my body acclimated to the Copaxone I had less swelling and pain. Now all I do is take my shot out in the morning and take it as is in the afternoon. I no longer have to ice the area, nor take the Claritin etc. Nor do I have pain. It took awhile to get to that stage but thatís what worked for me. Hope it helps someone. F 42 8 years
1X D
8/11/2010
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 5  RRMS Stinging, temporary hives in some site locations, itching It's me, the Laurel and Hardy video lady checking back in. It's now been 8 months, and I've got to say not much has changed from the first time I left feedback 90 days into Copaxone therapy. Still haven't had any of the panic attacks or heart attack-type symptoms. But as I said before, not everybody gets that. Maybe someday I will, but I'm not afraid of it; to me, it still beats seeing double or going to the hospital daily for Pred infusions - or worse. Will get an MRI in January, this will tell the story on whether or not RRMS is worsening, or (as I suspect) I'm holding my own. To the newbies out there just diagnosed or starting on Copaxone, take some comfort in knowing you are not alone by a long shot. I mentioned before a cure in the works; Google Dr. Paolo Zamboni. Think we're about to see the end of MS. F 49 8 months
20 1X D
8/9/2010

 2  rrms fatigue,hugh lumps,itching,dizziness,unable to wallk 1/4 mile cant stand the heat,depression,anxity attacks,before i was able to work in my yard,go shopping but not now. F 54 7 months
20mg 1X D
8/9/2010
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 4  RR MS Early days but mild side effects such as redness, delayed itching and lumps etc. I had no side effects for the first week, my ms nurse said this was due to steriods still being in my system I have no long term disabilities after many relapses (one severe) prior to copaxone. It's too early to say if it will prevent attacks but fatigue wise I'm feeling better than I have for years. F 35 2 months
20 1X D
8/1/2010
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 4  Relapsing remitting MS Swelling at site and itchiness for a few days after At first, Copaxone was my Waterloo. I was covered in hard lumps and red patches and the itching and swelling just did not seem to dissipate. But I have now perfected my technique and all is good and happy - no more lumps and only minor itching. Have a bath before injecting, keep the injection out of the fridge the night before and stick a small plaster on the site straight after injecting. Move around after injecting to increase circulation and do not wear clothes that will rub the site for 24 hrs. This is possible by having a strict rota for injection sites. There are a total of 10 injection sites and this will give each site enough time for recovery. F 41 180 days
20 1X D
7/17/2010

 1  ms pain,swelling,itching,bruises,hot to the touch I was very dissapointed that my body rejected the copaxone.Going to try avonex.I am not crazy about a bigger needle & flu like symptons. I did not have any side affects until after 3 months. I was getting used to the pain. F 44 3 months
30mg 1X D
6/16/2010

 4  RR Multiple Sclerosis I was diagnosed with MS last year after I started having tingling in my legs, they thought it was a herniated disk until they did some tests and found the 4 leisons in my brain and spinal cord. By the time I found the right doctor to run the right tests and diagnose the problem I could hardly use my legs and was in intense pain. They sent me to a place where I had steroids infused into me for a few hours a day, after a few days I regained the feeling in my legs and after I came down off the high levels of steroids I was much better. My neurologist and I went over a variety of MS drugs and although I did not want to do a daily injection, I couldn't imagion having the flu all the time, which is a common symptom of other drugs like Rebif and Avonex. Copaxone has worked well for me this past year, I have not had a relapse and have very few symptoms from the medication. The only issues I have are the lumps and swelling at the injection site and occassional pain during injection. The last se To those who are just getting diagnosis, having a diagnosis alone can be a huge weight off your shoulders if you let it, for the first time in 7 years I feel good because I know what is wrong with me and I know that I am not crazy. I've leard to embrace my illness and not let it embrace me. F 23 1 years
1X D
6/13/2010
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 5  MS Injections sites would sting at the time, and then be itchy for days afterwards. Witch hazel gel helped. But this only lasted for the first few months. Occasionally get a stinger now, but it's rare. Always warm the syringe in the palm of your hand for a few minutes so that the liquid is at body temperature before injecting! A couple of times have experienced the "panic attack" symptons they warn about. Went very hot (to the extent of having to strip off - couldn't cope with anything touching me) and felt a bit sick. However, this resolved within an hour. No relapse or progression (that I know about anyway) since I started. The neuro says this is because my MS is mild (two relapses 1 and 5 months before starting). Who knows, and who cares? Not about to risk it! F 41 4.5 years
1 1X D
6/12/2010

 1  MS site injection welt, itching and burning I was on Copaxone for 2 wks and I started to feel not right, I guess flu-like symptoms it went to full blown flu symptoms, nauesa, aches and pains, diaherra, no appetite, I almost went to the ER I felt sooooo bad....I have stopped using the med, my dizzness is extreme but I'd rather be on a perpetual rollercoaster than feel as bad as I did...need to do some more research to continue on some kind of therapy...nutrition and taking care of ourselves is one of the big answers F 49 2 weeks
20 1X D
6/10/2010
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 5  MS Lumps, itching, bruising, burning. When I first started using Copaxone the needle would slip right into my skin, now it takes some pushing to get it in at certain places. I'm wondering if this is in my head or if my skin is becoming tough from repeated injections (I rotate injection sites like I'm supposed to). I don't know if it's helping or not. I've only had two episodes of symptoms in my life. June 2008 and Jan 2010. Copaxone is the first therapy I've used. I like that it has few side effects and that 80% of users are still mobile after many years of living with the disease. I take my copaxone every day because I do NOT ever want to be in a wheelchair. Going to have my MRIs redone soon so I guess I'll find out if it's working! F 26 2 months
20mg 1X D
5/19/2010
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 5  M.S The general swelling, itching, and bruising Ditch the auto injector if you can. It does not hurt nearly as badly if your not getting punched with the auto injector daily. This medication works great for me only one relapse in 3 years. F 28 3 years
1X D
5/18/2010

 3  SPMS None to date other than "bee sting" feeling. I have been on Avonex, Rebif, Tysarbi & Novantrone since diag 4/2001 & I never had any side effects fr any of those drugs; I just don't seem to be getting better. Giving Copax a try..what to lose? Hopefully there will not be any more progression. F 56 2 days
1X D
5/7/2010
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 5  M.S. Stinging after injection was very bad at first..actually, horrible. But now, after nearly 2 months of being on it, the stinging only lasts a few mins and is much less intense Seems like it is working well M 24
20mg 1X D
4/29/2010

 2  MS The typical welts, itching, pain, bruising all lasting at least one week each -- I get a lump with every single injection which are very large (about 2 inches in diameter). I think I might have an allergy to this drug. Also have the hyperventilating at times. Everyone needs to understand that this is not a treatment for symptoms!! It's only supposed to lessen the possibility of new lesions. If anyone has fewer symptoms, it's due to being in remission, not because of the Copaxone. The drug company's own info states this. Okay, enough lecturing. I'm at an impasse about whether to quit or not. My neurologist says it's my call now, as nothing has helped the injection site reactions and they're getting worse with each shot. I can't take the beta interferons. It's scary reading these posts about the tissue damage -- makes me want to stop now! F 48 9 weeks
10 mg 1X D
4/27/2010

 4  RRMS Bee sting, burning, itching at injection site. Itching and welts seem to last several days. I was diagnosed in February 2010. I have been on Copxone for 11 weeks which seems to be working great so far for me. I have no tingling in my arms and legs, no more pain in my shoulders and neck and my walking and energy level has improved. I am hoping to get more active and shed the 20 lbs. I gained the last few years, not knowing that all my aches and pains were from MS. The shots are becoming more routine, wish they did not have to hurt everytime but I am glad to know that it is helping. F 50 11 weeks
20 1X D
4/21/2010
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 3  RRMS I have now used all 7 locations and, although certain locations hurt more than others, they all have hurt so bad I can barely move for about 30 minutes. I use the autoinjector which is great cause I can't even feel the needle (after using Avonex it seems amazing) but after about 10 seconds the pain starts and begins to spread. The legs are the worst for me and hurt for days. I don't have the itching or really all that bad of welts but the pain is just so unbarable. F 23 8 days
20 MG 1X D
4/21/2010
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 4  MS Therapy Bee Sting sesation lasting about 2-3 minutes. New to this medication and I will update any additional side effects in the event that they occur. I had periodic symptoms from mild to severe since 1989 and I was definitively diagnosed with MS in 1995. Began Therapy (Betaseron)in 2001. Minor to no flare ups--almost asymptomatic. Follow-up MRI revealed numerous-active lesions, indicating that Therapy was no longer effective. Blood Test confirmed that I had developed Anti-Bodies to Betaseron. Copaxone was my next line of defense. Initially, I was aprehensive about starting Copaxone after researching the side affects. I have been taking the Copaxone shots for the past 8 days and have seemed to tolerate the therapy without any problems to this point. I am hoping for the best for myself and all of you who have been touched by this disease. Best of luck and God Bless. M 51 8 days
20 MG 1X D
4/11/2010

 3  RRMS UNBELIEVABLE ITCHING for days after injection, goose egg at injection site, pain from the injection is like being stung by a bee or wasp but subsides & is gone by end of day. Sometimes after the injection I sense it spreading and think I feel it in the nearest joint where I injected. I could tolerate Copaxone better if it were not for the itching! I use a topical anti-itch gel but it doesn't really help that much. I try to stay busy and not scratch but COMMON...this is ridiculous! The goose egg doesn't bother me much and I have not had any "wasting." I rotate sites as instructed by my Shared Solutions nurse. I saw on here that someone used ice for 10 min. before and 10 min. after so I am going to try that. I have been using heat 5 min. before and ice 2 min. after. I have not had any panic attacks or trouble breathing. Other than the itching & goose egg I can tolerate the sting of the medicine. I was DX'd with RRMS in 2005 and was on Betaseron for 2 yrs. but the flu side effects were too much. I discontinues treatment. Recently I went from "some lesions" to "numerous lesions" on my MRI. I have weakness on my left side, numbness in feet and legs, hearing problems in left ear, muscle spasms in right eye (wink wink) fatigue easily, must take daily naps, I also have cognitive problems and have osteoporosis. My cousin on my dad's side also has RRMS. I am going to stay on Copaxone because I am afraid of getting more lesions and losing more body functions. MS sucks to say the least! F 53 2 months
20mg 1X D
3/31/2010

 4  RRMS Burning, itching, swelling, redness, bruising at injection site. Lower right back pain and throbbing after an injection. Anxiety after an injection. I have also been given Clonazepam to take as needed when I do my self injection. This really helps to avoid any anxiety attacks or breathing issues related to that. I have a heightened sensitivity to fragrance and flourescent lighting. I wear my sunglasses to drive even on a cloudy day. I get very fatigued and achey most days at around the same late afternoon time of day. I don't have brain fog that I am aware of because my job involes a lot of recording of information, observation and conversation. To lessen the effect of the injection, I mostly use an ice pack for ten mins before and ten mins after. I take the shot before I go to sleep, that way I am not bothered by the aftereffects as much. Rotation of sites is really important and I do not do my arms because they simply bruise too much. I am too chicken to do the self administer without the autoject 2; I am worried that it will hurt more. The autoject goes in quickly, I count to 17 and I am done! That said, I would rather take a pill than a needle any day. F 47 11 months
30 mg 1X D
3/27/2010
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 4  RRMS Bee Sting lasts a minute or two. Itching lasts 2 minutes. That is all. It goes away then no other effects I leave my shot out over night. My shot is taken in the morning when I am active to move it into my system. I noticed a rash under my injection site so gravity must drag the drug down. I raise the injection site like the arm to stop the stinging. Lay on opposite side from shot site for stomach or hips. Works for me. I have no lesions but abnormal white matter. I was undiagnosed for 12 years until I had bad heat sensitivity, unsteadiness and intentional tremor forcing me to get a MRI. Before I had optic neuritis, fatigue and numbness. I was finally confirmed with a pos.spinal tap M 42 3 weeks
20MG 1X D
3/26/2010
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 4   Mostly slight burning. Had on very bad side effect. First the shallow breathing started, then weird numbness in head, then numbness in left arm, then chest pain, and severe anxiety. My mom called ambulance because I thought I was having a heart attack. It was just that rare side effect from the medication. It was the scariest day of my life. I do believe I can handle that reaction if it happened again but I know the medication will help me so much more with the MS. I have had MS since I was 17 and was on Rebif for 7 years but had to stop because of liver problems. It was easy to adjust to the everyday schedule of giving the medication. F 25 46 days
1X D
3/21/2010

 3  rrms swelling at injection site, heart fluttering, worsening back pain 1 significant flare since starting with issues that still linger. i was dx with ms in 2003 and was started on rebif. taken off because rebif was no longer working. F 40 2 years
20 1X D
3/10/2010

 4  RRMS Stinging, Burning, Itching, Pain, Redness, Swelling, Huge Bruising At Location Sites That Are There For A Few Days I'm not really loving this treatment....but I guess if it works then that's good. I was diagnosed at 17 in 08 and I have numbness in feet and then optic neuritis. They found a little lesion and so I'm on this. I take the shot at night and this morning I woke up and my Tummy was bruised really bad..it's just scary having to look at all the nasty side affects. Also on my arms people look at them and tell me it looks like someone grabbed me real hard. Hmm so far I'm just not too much of a fan... F 18 1 months
1X D
3/9/2010
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 2  RRMS Lumps, brusing (tolerable) rapid heartbeat, fatigue, dizziness, mental fog, short term memory loss. Recently, loss of appetite and diarrhea. My first symptoms occured at age 20 and I was diagnosed with RRMS at age 25, in 1979. I would have a relapse every 5-6 years (really) and since there were no disease modifying drugs at that time all I took was prednisone during a relapse. I comtinued my lifestyle uninterrupted, continuing to water and snow ski until age 36 when my left leg was becoming too weak to perform as needed. I tried Avonex in 1993 and after 6 shots was afraid to take anymore. I would be sick with flu symptoms and couldn't walk for a day and a half after a shot. So I began Copaxone. At first I seemed to tolerate it well although I began having occasional rapid heartbeats. Over the years I started having the other symptoms listed to the right but I thought it was just MS progression and I didn't suspect the Copaxone. My MS has progressed rapidly during the last 5 years and I cannot walk more than 1/8 mile on good days. I rely on either a manual wheelchair or my motorized chair for any distance. Yesterday I came to this website and read every review. Right now I am seriously considering stopping Copaxone and trying LDN which I spent 4 hours reading about online yesterday. For me, Tysabri is out of the question. F 56
20 1X D
3/4/2010
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History
 5  RRMS Site sting, itch, some areas a small goose egg. Never thought I'd have to take a daily shot. Had 2 episodes of optical neuritis 7 years apart, and MRI came back showing 3 brain lesions this trip. After learning about drug options, Copaxone was a no-brainer for me (no pun intended); very nice Shared Solutions Instructor came to my house and I learned that even nervous newbies can self-administer easily with the AutoJect. Providing, that is, they remain calm and don't get rattled or have a spaz attack over burning, itching or skin indentations. You have to be honest with yourself as to which you'd rather deal with; burning, itching, dents and maybe a bad 15 minute episode - or MS progression and possibly more lesions. I haven't have any of the serious side effects, and may never experience them at all. Not everybody does. But if I do, I'll know what the deal is and have Laurel and Hardy ready to watch to pass the time. :) I don't mean to come off like I have all the answers, I sure don't; if I did, MS and RRMS would be a thing of the distant past. I'm fairly confident they soon will be anyway. But being as honest as I can, remaining calm before a shot and being careful to avoid veins at all cost may make all the difference (using a flashlight at close range can help you see veins that normal household lighting might hide). I'm staying with Copaxone - only complaint I'd have is my monthly cycle goofed up right after I started on it; but I'm also "at that age", so could be the big M setting F 48 90 days
20 MG 1X D
2/19/2010

 3  ms Lumps and bee sting everytime I inject my sites I have just started to use the manual method for my stomach and legs and it has worked much better. The lumps in my legs are much smaller this week. It seems they will disappear in less time than when I used the autoinject. It took over a week for the lumps to go away in my legs with the auto inject F 48 45 days
40mg 1X D
2/14/2010

 3  went off Tysabri for 6 months Injection site: wasp-sting type pain/itching. Last night had the deluxe reaction: tightening of throat, pain radiating from lower back and cervical spine, head exploding in flames, etc. Followed 15 min. later by an hour of chills, teeth chattering, body shaking, numbness in extremities, exhaustion. Went on Copaxone as only non-interferon treatment while taking a 6 month break from Tysabri. Like that no flu-like symptoms, and was having no troublesome site reactions. Last night's episode was something though, even though I was aware of the possibility, the severity and duration of the reaction was scary. Hope that doesn't happen again! M 46 6 weeks
30 MG 1X D
2/8/2010
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 5  RRMS The usual. Itching at the injection site. I was diagnosed in March, 2009 after two exascerbations in 5 months. After the diagnosis, I started an all-out assault: Copaxone & LDN, along with a Low-fat/No Gluten diet. I'm glad to say that I have had no relapses in almost a year and the number of enhancing lesions on my MRI has went from 19 to 2. M 43 300 days
1/27/2010
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 5  MS Injection site lumps redness, short lasting. Permanant scars yuck Have been using Copaxone since diagnoses Macrh 2000 10 years. No real MS issues, it's toss up between menopause and MS F 50 10 years
1/23/2010
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 3  MS dx injection site itch,hive-like bump. using the injector helps alot.Have had skin issues whole body rash and skin growths including melanoma since starting May 09 F 49 8 days
1/15/2010

 2  Multiple Sclerosis For the most part I had no side effects fromtaking copaxone. I did,however, feel that it was not doing much and I decided to go off of it. My Neurologist even suggested it if side effects were bothering me. Since going off the copaxone my blood pressure has been high;160/94. Has anyone else gone off of copaxone for a short period of time and experienced the same problem? M 56 4 years
1/14/2010
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 4  RRMS Only "classic" injection site reactions -- redness for a day post-injection, itching the next day (worst for the stomach injections), hard lump for the next 5-7 days. Injections on my thighs cause bruise-like discolorations that take about a month to completely fade, and some old ones have never faded. I haven't had a "bad" reaction (trouble breathing, anxiety, heart racing, etc.) yet, but I'm sure I will sooner or later, and I'm not worried. Since beginning therapy, I've had no exacerbations (my primary symptom is numbness in legs/feet, and that has almost totally gone away). My one-year MRI showed no new lesions and no progression. I'm not delighted with the side effects, or the daily shot, but they're a small price to pay if I continue to feel well (which I definitely do). One gripe: when Shared Solutions calls periodically to check on me, they always express huge surprise that I have any side effects (site reactions) at all, and then lecture me about correct injection technique, letting the medicine get to room temp, etc. (all of which I do), and basically tell me that I'm doing something wrong and that if I was just a better user, I wouldn't have any effects at all. This really pisses me off -- the product literature specifically states that the side effects I have are common and usual side effects of the medicine. I resent the implication that somehow we're responsible for effects that Teva itself acknowledges are going to occur. Every time I get off the phone with those people, I'm irate about it. SS, stop blaming us for a known issue! Your medicine has flaws -- but I plan to stick with it daily, nonetheless. F 44 14 months
1/11/2010

 4  RRMS I have the typical redness and swelling. Some injection sites ich more than others but it's manageable. I don't have much body fat so the sites with less fat seems to itch more. I started using Copaxone after three years of avoiding any modification therapy. MRI's showed that the demyelinations was spreading even though I wasn't having any major attacks so I decided I'd better do something. I like the auto-jector, it makes taking control of my treatment easier. I use a topical antihystamine to aleviate the itching-doesn't take it away completely but it does help. I have found that a cold-pack helps more than heat to lessen the pain after the injection. I don't freeze the cold-pack, I just keep it in the fridge. I've only been on the medication for a few months so until I have another MRI I won't really know if Copaxone has slowed/halted the progress of MS. I'm very active and I don't have time for the side-effects that come with other available therapies. F 43 3 months
1/11/2010
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 1  Multiple Sclerosis Let's face it, side effects aren't on the side, they are actual effects. Lumps and itching that last for a few weeks. Tissue wasting. I lost tissue in my thighs, discoloration and dimples It is not for me. If I had known about the tissue wasting, I would have never taken it. M 49 3 years
12/31/2009

 4  RRMS Moderate swelling at injection site. I only use tummy and "saddlebags" as other locations were not good. Upper thigh had large white "bee-sting" patch; have hit vein in arms too many times to even want to try there again. I REALLY need to know if anyone has experienced heightened allergies or sensitivities since being on thid drug. PLEASE post any increased allergies/sensitivity info. I am a middle school teacher. Last year, I started having reactions to fragrances. One student was using a very fragrant hair oil, and when I asked him not to his mother decided that my reaction was based in racism and filed charges against me (even though I was reacting ANYONE'S fragrance). In fighting this case, I'm looking for reasons why I might have developed this sudden fragrance allergy. My lungs burn, my eyes water, I cough to the point of not being able to catch my breath, I get a headache. Since Copaxone is a group of amino acids, could it be that the immune system recognizes it as a foreign protein? As such (or even as an MS patient) is my immune system always active(my neuro calls it "frisky") and easily tipped into allergic reaction? Please help me!! The stress of this situation has my symptoms flaring. F 50 5 years
12/12/2009
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 2  ms golf sized injesction size lumps, insane itching at injection sights, they do shrink down to marble size lumps after a few weeks F 45 2 months
12/3/2009

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