COPAXONE Reviews (GLATIRAMER ACETATE)Average Rating: 3.5 (300 Ratings)Filter ResultsCompare COPAXONE with similar:
Type: Rx Drug
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Results are sorted by Satisfaction lowest to highest. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) |
More on COPAXONE: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR COPAXONE | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 1 | MS | I have been injecting for years 14 years. Had a extreme reaction of extreme burning in my leg for seven hours which kept me up all night. | Had a extreme reaction of extreme burning in my leg for seven hours which kept me up all night. It has turned me off of the drug forever. All eight injection sites are so flat that I barely have any area now to inject (Skin indentations) | F | 57 | 14 years 20 1X day | 2/27/2022 | 1 | MS | Abdominal cramping/contractions during episodes of bowel movements up to 8x a day (colotis), gallbladder disease, anemia, chills, night sweats, anxiety, depression, | I will never take this medication again. The symptoms of MS can easily be confused with side effects of this poison. Now, I am highly sensitive to Meds, but this is insane. My life revolves around episodes of bowel movements that felt like childbirth. I was screaming so frequently I had to warn my neighbors not to call the cops because I had a mystery GI condition. Nope. All GI tests normal. The only thing it can be is Copaxone. I have taken myself off of it and in two weeks, I can pee better (used to feel like a narrowed urethra) and my GI episodes are fewer and less severe. I have also had the worst quality of life on this medication due to the frequent and painful GI episodes. My anxiety is through the roof, I can't sleep and wake up cold drenched in sweat,, and can say with certainty that I feel as depressed as I have in my entire life. Also immediately after starting this medication, I developed gallbladder trouble and had to have my gallbladder removed. This is a known side effect of this med. If only I had read the side effects earlier. I feel so stupid. I honestly don't know what would have happened to me if I had not figured this out on my own. I did not know how I could continue to survive. Not that I'm off of the medication, I feel enough difference to feel hopeful for the first time in a looooong time. | F | 32 | 18 months 40mg 3X W | 9/11/2021 | 1 | Multiple sclorosis | I had lost my eye sight with this med not completely blind but couldn't see much be careful with this drug I started with a light in my eye and it got worse ! I couldn't see my grand kids well and I wanted to die! I got so depressed ! Stop the med per Nero and it came back after 4 weeks on a lot of steroids ! | F | 44 | 3 days 2X day | 8/11/2015 | 1 | Multiple Sclerosis | F | 61 | 40mg 1X day | 6/9/2015 Patient History | 1 | multiple sclerosis | Anxiety, loss of appetite, mood swings;fatigue | Beeen on 20 mg for 14 years and am switching back ASAP | F | 64 | 6 weeks 40 3X W | 8/21/2014 | 1 | switched from copaxone 20mg | Decreased appetite Increased fatigue Mood swings Ms exacerbation Increased anxiety Inability to slow down to rest and sleep | F | 41 | 1 months 40 | 7/30/2014 | 1 | RRMS | took Copaxone for nine months. The infection sites were unbearable and stayed that way for days. I am full of unsightly pitts on arms, legs and hips. However, this is not as bad as the asthma allergies that came on suddenly. I am allergic to most food, grass, pollen but not animals. | As one that has experience in the medical field, it parallels to the allergic site reactions, then the sudden onset of asthma and allergies. I wish I had never taken this drug. It did nothing for my MS, My life with allergies and MS is trying to say the least. The drug company was very nice to me but it doesn't make me feel any better. | F | 59 | 9 months 1X day | 6/29/2012 | 1 | to avoid relapse | Severe burning welts tiredness etc. I hate it. I have tried betason and avonex | F | 47 | daily 1X day | 6/25/2012 | 1 | MS of others | All drugs are poisoness eventually. On the bright side all diseases are vitamin deficiencies and can be cured with proper dosing [Your doctors will never tell you! The drug companies own them.] | MS is likely another autoimmune disease like RA for which I am effectively cured with vitamins and proper nutrition partially covered at Dr (PhD) Saul's site doctoryourself.com. There are also some new products out with concentrated B1 and 12 in addition to the critical B3 (the niacin form has 500 mg available off the shelf)but I am running out of space, you can e-mail me any questions. Good luck! | M | 56 | 1X day | 3/16/2012 | 1 | RRMS | I took copaxone for over 13yrs with minimal, typical side effects. (pain at inj site, welts, divots, etc.) In December I experienced a severe reaction and my whole life changed. First my arm looked like it had a bad bruise. Then the area turned dark red and finally black. I had to have the black areas (skin necrosis) surgically debrided out of my arm on 3 separate occasions. My arm wound was so deep you could see the tendons, nerves, and bone. I was taking antibiotics, pain medicine, lyrica, vitamins and I then got drug induced hepatitis. I have missed 2months of work and will have severe scarring on the back of my arm. There are many quesses as to why this happened. What I am upset about is that Shared Solutions says this can happen, but they say it is rare. It usually happens to people who have been on the drug for a long time. WHen I called to report it, they told me.....wowwe havent talked to you in many many years. They need to be educating their long time copaxone users patien | M | 45 | 13 years 1ml 1X day | 2/19/2012 | 1 | MS | Copaxone was great for one year. Then one evening right after the injection I got a bitter taste in my month, my chest felt like I was having a heart attack and the pain went down my spine and hit and bladder (which I lost control of) My face was beet red and hot and I truely thought I was dieing. Then after that passed in about 20 minutes I starting shaking and was freezing and couldn't breath. My blood pressure was sky high..... This has happened four times this past yr and told my Nero that there is NO WAY I am taking this med | It is a scary medicine.....Did it work or help...... who knows. Weight gain was immediate upon starting injections.. | F | 70 | 2 years 30 mg 1X day | 6/16/2011 | 1 | MS | I was fine until I suddenly developed edema in both legs they became huge I developed cellulitis in both legs I devsloped high temperature and became confused. Three weeks later after antibiotics and water tabs my legs are still swollen unable to wear any shoes I have also developed a leg ulcer, Needless to say I won't try this drug again. | I was on avonex for 6years. I had flu like symptoms but got used to it, the Drs thought it was no longer working as I have been having increased relapses. | F | 53 | 2 weeks 1X day | 4/13/2011 | 1 | Multiple Sclerosis | Extreme and almost overnight weight gain of forty pounds that doubled my struggles with MS. | I cannot say enough bad things about this drug. I was not warned at the time (5 years ago) that weight gain was a possible side effect and now my life is twice as hard. I would not have touched it had I known in advance. I have tried everything in my power and cannot get rid of this weight which has made my life with the disease much, much worse. | F | 49 | 45 days 1X day | 11/29/2010 | 1 | ms | pain,swelling,itching,bruises,hot to the touch | I was very dissapointed that my body rejected the copaxone.Going to try avonex.I am not crazy about a bigger needle & flu like symptons. I did not have any side affects until after 3 months. I was getting used to the pain. | F | 44 | 3 months 30mg 1X day | 6/16/2010 | 1 | MS | site injection welt, itching and burning | I was on Copaxone for 2 wks and I started to feel not right, I guess flu-like symptoms it went to full blown flu symptoms, nauesa, aches and pains, diaherra, no appetite, I almost went to the ER I felt sooooo bad....I have stopped using the med, my dizzness is extreme but I'd rather be on a perpetual rollercoaster than feel as bad as I did...need to do some more research to continue on some kind of therapy...nutrition and taking care of ourselves is one of the big answers | F | 49 | 2 weeks 20 1X day | 6/10/2010 | 1 | Multiple Sclerosis | Let's face it, side effects aren't on the side, they are actual effects. Lumps and itching that last for a few weeks. Tissue wasting. I lost tissue in my thighs, discoloration and dimples | It is not for me. If I had known about the tissue wasting, I would have never taken it. | M | 49 | 3 years | 12/31/2009 | 1 | ms | injection site welts that stayed, itching, flu-like symptoms, tongue swelled after roughly 4 weeks | Stopped copaxone 2 months ago, have not improved, immune system seems worse,and have developed severe allergies to previously well tolerated drugs,tongue and throat swelled. My joints and muscles hurt, I have rrms, since shots, there doesn't seem to be any remitting? Anyone else have similar problems? | F | 49 | 4 weeks | 10/13/2009 | 1 | RRMS | Initially I had the usual injection site reactions. The site is very painful for days. Two weeks after starting Copaxone I became very ill...vomiting, diarrhea. Had to go to ER cause severly dehydrated. Happened again the next day, but in addition I had double-vision. Back to ER. They said I had a MS flare-up and put me on 5 days of IV steroids. Needless to say I'm in pretty bad shape right now. I have only had one MS flare-up in 2001. No progression of the disease until they found a new "very small" lesion in Feb 2009 and said I should go on Copaxone. | Does anyone out there think that Copaxone can trigger an attack? I feel that is what happened to me. I have been doing so well and wish I would not have gone on this drug. It really set me back. I want to slow down the progression of the disease, but don't think this is the way to go. Your comments are appreciated. Shared solutions said the drug could not cause an attack, but I wonder.........???? | F | 51 | 2 weeks | 8/22/2009 | 1 | I have RRMS. | Side effects took about 2 months to start. Having come off of Avonex for 6 months and almost ending up in the ER for side effects from that one, I was hopeful for Copaxone. Side effects for Copaxone started with itchy red welts at the injection site that got bigger over a few weeks. Then I developed a severe rash over my body - huge red welts over arms, feet, hands, etc. Went to allergist - we think I am allergic to the Mannitol in the med - Rebif has Mannitol too. Allergy to Mannitol is not uncommon. Stopped Copaxone. Didn't work for me. That is my unique story - watch out for the Mannitol, some side effects could actually be an allergy to the med or to the Mannitol. Good luck everyone. | F | 43 | 3 months | 7/22/2009 | 1 | MS | WARNING WARNING WARNING Copaxone has caused me to have severe liver damage, cirrhosis of the liver. I am now on a liver transplant list. | Have the typical site pain. Chose Copaxone because it was the safest. Claims you do not need regular monitoring of blood or liver test. My greatest regret was not asking to be checked to be safe. No mater what they say get checked. My doctor took me off of Copaxone right away. I have never been a drinker. Recently spent over a week in the hospital. I under went every test possible. Copaxone was the only answer. | F | 53 | 8 years | 7/19/2009 |
COPAXONE (GLATIRAMER ACETATE): This medication is used to treat a certain type of multiple sclerosis (relapsing multiple sclerosis-MS). It is a protein that is thought to work by preventing your immune system from attacking the nerves in your brain and spinal cord. This effect can decrease the number of periods of disease worsening (relapses) and prevent or delay disability. It is not a cure for MS. FDA Approval Date: 2014-01-28 (Sources: U.S. Centers for Medicare Services, FDA)