Drug Ratings for COPAXONE

Average Rating: 3.5 (280 Ratings)

Compare COPAXONE with similar:
IMMUNOMODULATORS   

  

Results are sorted by Date Rating Was Added from most recent to oldest    

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)   

Page: 1 2 3 4 5
Filter Results


    Charts & graphs: Reviews Summary for COPAXONE  | Top 10 Adverse Effects (reported to FDA)

RATING  REASONSIDE EFFECTS FOR COPAXONECOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
sort down sort up F  M  
 1  multiple sclerosis Anxiety, loss of appetite, mood swings;fatigue Beeen on 20 mg for 14 years and am switching back ASAP F 64 6 weeks
40 3X W
8/21/2014
Email
 1  switched from copaxone 20mg Decreased appetite Increased fatigue Mood swings Ms exacerbation Increased anxiety Inability to slow down to rest and sleep F 41 1 months
40
7/30/2014
Email
 3  I have tried other medicine dont wo I have been taking 40mg copaxone for 3 weeks now and the injection site reactions are terrible. I get an huge 3" by 3" red welt with severe pain and burning with itching that lasts a good 3 days or more. No other side effects tho, which is a good thing.I do not use the autoject, however my shared solutions nurse thinks it will help and that I may be injecting to deep. F 37 3 weeks
40mg
6/18/2014
Email
 4  RRMS Nothing for the first two months except twice after injecting in my right arm, I had extreme pain in that arm for about 4 hours. I stopped injecting in that location and everything was great for 3 months (I did not use the auto-injector). after starting my 4th month ( started using the auto injector because it is easier) and I started getting red welts at the injection sites which would itch two days later (strange). Somedays I get EXTREME fatigue, but I'm not sure it this is Copaxone related. I will be switching to the 3x a week 40 MG next week. Although I have only been on the medication for a short time, I do think that it helps, I feel better overall. M 47 4 months
20 MG 1X D
5/14/2014
Email
 3  MS Horrific injection site reactions, hard as a rock, bruising, lumps, bumps. Nausea, night sweats, eating away at my teeth, IBS exacerbations , weight gain Despite the reactions I will stay with this or just go off of it until something "better"comes alone. Slow progression of disease with lack of endurance, lack of appetite despite weight gain which is steady, walking but short distances but no major exacerbations. F 62 13 years
20 mg 1X D
5/8/2014

 5  Multiple Sclerosis None F 40 1 days
1/12/2014

 3  Rrms Last 3 weeks I experienced the most painful post injection-anxiety, heart palpitations and body spasms for an entire 15 minutes. My dr said "if I was game, see if it happens a third time." Are u kidding me??? I took myself off completely. F 55 10 years
30mg
10/13/2013
Email
 4  RRMS A quick question for all the females out there. Have you at all noticed any change in your menstrual cycle since starting Copaxone. Would really like to know as I have been dealing with this for a while now. F 33 2.5 years
20 MG 1X D
8/7/2013
Email
 4  RR MS Lipoatrophy on upper arms, some anxiety, the usual burning and itching, but they left after I'd been on drug a month. I took a break off Copaxone and went to Tysabri from Feb, 2012 to Feb. 2013 as my neuro wanted me to. I did NOT. I was scared of Tysabri. After finding that it caused me severe respiratory distress and bladder infections, I went back on Copaxone last week. For the first time in 7 years I had a site reaction: a huge red welt of hives, hot as a furnace. I put cold on it and it left after 25 minutes. This drug has been very good for me, and oddly, when I started it I ceased having migraine headaches. I do occasionally have weak legs after injecting, and reactions can happen no matter how many years you've been on the drug. As I already had depression, Avonex or Betaseron weren't options. The only real concern I have is of lipoatrophy, as I'm running out of places to inject. I've hit a blood vessel occasionally, never pleasant, but nothing permanent. Basically I'm grateful indeed for this drug. And they're coming out with a once-a-month version of it, I heard this week. Should be interesting. F 60 7 years
1X D
5/11/2013
Email
 5  Multiple Sclerosis Have been on Copaxone for 18 years,(study participant), and have NEVER experienced the "post injection" reaction like you describe. Have been extremely happy with the lack of adverse reactions to this medication. F 63 1 days
20 MG
3/31/2013

 3  multiple sclerosis When I first started I had no issues but as I kept injecting .... About a year ago I started having the "post injection site side effect" [what feels like a heart attack / panic attack] Which I was told mostly effects people just starting Copaxone. What I found online is when you inject into a vein this will happen. To date I have had this happen 2 times. So now I have to really check where I inject. If I see any "blue" at all I will not inject in that spot or near. It's getting harder to find virgin spots . In Nov 2012 I noticed pitting edema in my shins. I've been through many tests which always seem to come back negative. I am interested to know .... If anyone else has huge lumps on the top of their legs. They seem to be permanent as they never go away. I also have bad varicose veins on my legs near the injection sites. Is it possible that the medicine is either not being absorbed properly or the damage from injecting for years is some how stopping the flow of blood[fluid] from the knees down and causing pitting edema and stabbing pain and what feels like burning veins. On me my hips and legs are the worst. If I inject that day the pitting edema seems worse in that leg. A few days ago the pitting was gone and the day I injected into leg the pitting was back. I just put this together as being a cause so I am still interested to see if the pitting starts to go away and then when I inject again does it get worse and if it does it every time. I also stopped injecting in hips since both times I had the "post inje F 34 9 years
20 mg 1X D
3/21/2013
Email
 2  ms Pain , itching and redness at injection site. Feeling very fatigued and weak. F 43 10 weeks
2/25/2013
Email
 3  MS 30 minutes after injection had IPIR. Reaction was I was burning up, weak, dizzy, heart racing, face and especially lips tingly and numb, right hand week. At the 4 hour mark was able to walk although unsteady, at 6 hour mark was heading back to my MS normal. At 8 hour mark after reading multiple Internet comments and Shared Solutions plus my neurologists nurse took a Tylenol and Benadryl. At the 12 hour mark I napped and feel weak and wrung out. Wonder if The injection went into an area that was directly linked to blood supply? Don't know. Will try tomorrow and see how I react. All in all a long day M 57 77 days
20 1X D
1/23/2013

 5  RRMS Redness, flushing, fevers every once in a while. For fever times I take a Benadryl and it seems to help. Had one episode 13 years ago none since, I will defiantly stay on copaxone even with some lousy side effects M 50 10 years
20mg
1/10/2013
Email
 4  RRMS Each day is different. I've had redness, hard lump just under the skin, pain, burning, fatigue, dry eyes, flushing, couple of bruises, and weight fluctuation. I inject at night before bed, apply heat to intended injection site prior to injection, and have med at room temp by the time I inject the med. I never us my arms (my choice). Most severe pain was the first one - med was cold, I was cold, and put it in my inner thigh. I have to watch what I eat d/t weight shifts and gain. Everyday each injection hurts, but only for around 10 min. Difficult to know that medication is not working fully until after being on the med for 6 months, but every day without a flare up is worth it. F 29 2 months
20 MG 1X D
12/6/2012

 2  to stop relapses with my ms red sore lumps, pain at injectioin sites, have to take painkillers beforehand, swelling in hips, thighs and bad red swellings in both arms, feel like a overused pin cusion. will not be taking it anymore from tonight, have not told my doctor yet, but am not putting myself through anymore pain, without any proof of its working. F 55 5 months
20 mg 1X D
12/5/2012
Email
 4  RRMS Pain at injection site. Now after 10 years, my thighs are rock hard at the injection site and I have tissue loss at my hips. I showed my doctor that I have loss of tissue down to the bone on one buttock, said he's never seen anything like it. Copaxone works but I am running out of places to inject. It is also taking a toll on my teeth. F 52 10 years
20 MG
11/11/2012

 5  ms The usual nasty skin reactions most times. I HAVE FOUND THAT KEEPING ABSOLUTELY STILL FOR ABOUT 1/2 HR. AFTER INJECTION HAS HELPED DRAMATICALLY WITH THE PAIN. After 13 yrs. my skin is in pretty good shape (discoloured, lumps but no degredation). I have had the severe body side effects occassionally. In the last few years have become more frequent, severe, lasting longer (several hours). Yesterday was really bad so I am researching if there is anything I can do to lessen the reaction. The first time I had a severe reaction was about 1 yr. after taking Copaxone in 1998. My MS doctor took me off it immediately. After about 6 month I felt my symptoms getting worse so I asked to start again. Copaxone has really helped and I do not want to stop, but am concerned about severe reactions. Others have suggested 25 mg. of benadryl and an Epipen. I will try the benadryl and talk to my Dr. about the pen. Anyone have any other ideas? F 60 15 years
20 1X D
10/20/2012
Email
 5  MS none been working great M 50 7 years
20mg 1X D
8/27/2012

 4  diagnosed in July,2012 with MS The only side effects so far are a little welp after injection that has left before the morning. I do have burning at time of injection and do use heat before and cold after per the nurse. I have some pain in the sites still but only if touched to hard. I feel better, but I am sure that is only because I now know what I have and that Copazone will make it better. (Hopefully) I feel like I have made the right choice taking Copaxone because of the least amount of side effects. I can deal with the medicine buring at time of injection and if I have a post injection side effect 20 mins. will end alot faster then being sick for days after as some of the other meds. can cause. I will check back in a few months though and let you know if I feel the same way. F 37 7 days
30mg 1X D
8/1/2012

 1  RRMS took Copaxone for nine months. The infection sites were unbearable and stayed that way for days. I am full of unsightly pitts on arms, legs and hips. However, this is not as bad as the asthma allergies that came on suddenly. I am allergic to most food, grass, pollen but not animals. As one that has experience in the medical field, it parallels to the allergic site reactions, then the sudden onset of asthma and allergies. I wish I had never taken this drug. It did nothing for my MS, My life with allergies and MS is trying to say the least. The drug company was very nice to me but it doesn't make me feel any better. F 59 9 months
1X D
6/29/2012
Email
 1  to avoid relapse Severe burning welts tiredness etc. I hate it. I have tried betason and avonex F 47
daily 1X D
6/25/2012
Email
 3  MS just a bit of pain at shot site. It don't last long, only a few minutes M 48 3 months
20mg
6/11/2012
Email
 4   I have been on it for 13 years!!! I have terrible "dips" destroyed fatty tissue in all sites. They have deformed my body. I am 47 and very upset about this. Athough I feel better than I have felt since dx in 1997! F 47 13 days
1 shot 1X D
4/30/2012
Email
 4  Multiple Sclerosis I've had 6 incidents of hot flushing, 1 PHENOMENAL bruise, 1 bout of nausea and a very occasional bitter taste in my mouth. F 28 8 months
1 x day
4/27/2012
Email
 4  Multiple Sclerosis Huge lumps , burning , itching , sometimes extreme pain when injecting [usually in hips and legs] Every once in awhile when I do a injection the drug does not inject into site properly so when I pull out the needle the medicine sprays everywhere. I also noticed that after 8 years some lumps are not going away. I have huge indents at sites. Permanent damage to injection sites. Bruising. I am using the auto inject. F 33 8 years
20 MG 1X D
3/28/2012
Email
 5  MS None M 27 5 days
20 1X D
3/21/2012

 1  MS of others All drugs are poisoness eventually. On the bright side all diseases are vitamin deficiencies and can be cured with proper dosing [Your doctors will never tell you! The drug companies own them.] MS is likely another autoimmune disease like RA for which I am effectively cured with vitamins and proper nutrition partially covered at Dr (PhD) Saul's site doctoryourself.com. There are also some new products out with concentrated B1 and 12 in addition to the critical B3 (the niacin form has 500 mg available off the shelf)but I am running out of space, you can e-mail me any questions. Good luck! M 56
1X D
3/16/2012
Email
 4  MS Feels like a beesting. At first I only had redness for about an hour. Then all of a sudden I started getting huge lumps everywhere I injected with a lot of itchiness and swelling and redness that lasts for days, to weeks. I had to skip a couple days because of the soreness and lumpiness. Most of the lumps have shrunk into very small buttons after almost a week, but a few are still very agitated. F 18 30 days
20 mg 1X D
3/9/2012
Email
 1  RRMS I took copaxone for over 13yrs with minimal, typical side effects. (pain at inj site, welts, divots, etc.) In December I experienced a severe reaction and my whole life changed. First my arm looked like it had a bad bruise. Then the area turned dark red and finally black. I had to have the black areas (skin necrosis) surgically debrided out of my arm on 3 separate occasions. My arm wound was so deep you could see the tendons, nerves, and bone. I was taking antibiotics, pain medicine, lyrica, vitamins and I then got drug induced hepatitis. I have missed 2months of work and will have severe scarring on the back of my arm. There are many quesses as to why this happened. What I am upset about is that Shared Solutions says this can happen, but they say it is rare. It usually happens to people who have been on the drug for a long time. WHen I called to report it, they told me.....wowwe havent talked to you in many many years. They need to be educating their long time copaxone users patien M 45 13 years
1ml 1X D
2/19/2012
Email
 4  MS burning and itching with redness to site which lasts for about 10-15 min. Except when I inject my thighs they last all day with soreness. My Blood Pressure has been running very low 74/42 and I dont know if thats because of the copaxone But I believe it is. I woke up last year 02/2011 and collapsed and I couldn't see , double vision , walking side ways and had a severe migraine with nausea that lasted for 2 weeeks. The ER said it was a migraine. I had a MRI done and the first neurologist I went to said, You have a migraine take this", He gave me topamax and said I'll see you in 6 months. I went to the next nuerologist and besides having chronic migraines since I was 16, they ran all kinds of tests to rule out everything,and they even did a spinal tap that was negative. But my MRI had signs of new progressive lesions growing in my head from 6 months ago and had been since 2003. So, they monotoired me and I got worse around christmas,woke up and had leg spasms from the groin down to my ankles and it felt like charlie horses and I couldn't walk. I had trouble with my urine. My doctor finally said you need to come in for some chemo/IV infusion therapy. I have had that twice in two months and it sucks. I was diagnoised with MS in 01/2012. Before that I was working as a nurse and had to quit my job. My symptoms vary day by day but pretty much are vertigo, paroxymal hemicranial headaches, leg spasms, cannot stand for no longer than 30 min at a time and low blood pressure which makes me dizzy, lightheaded, and tired which I am battling everyday right now. Does it get any better? I cant tell if the shots will help but my legs do feel better. F 33 2 weeks
20 mg 1X D
2/15/2012
Email
 5  MS Injection site reactions vary each day; redness, burning, itchy, bruising, soreness, lumps. Reactions lasting anywhere from an hour to several days per injection site. ONE time, immediate post injection reaction; rapid heart beat, chest pain, flushing, lasted half an hour. I have been on and off COPAXONE for 9 years. While I was on it, my MRIs never changed- and I had no relapses (except for the ongoing fatigue, and mild cognitive issues) however because the injections were painful and tiresome I would stop taking it occasionally, and finally quit for 2 years. After I quit, I started having small relapses lasting 3 weeks- 3 months. Then after 2 years I had an MRI showing new and active lesions. Needless to say I have chosen to go back on COPAXONE and put up with the pain, as I know it was working for me before. F 33 9 years
20 mg 1X D
1/9/2012

 5  RRMS Little stinging not bad. Some welts that go away within an hour. Large egg formed with one of my arm injections with no pain it may be because I dont have a lot of fat there. Other than that it has become just another part of my daily routine. I was recently diagnosed October 24, 2011. This was after years of issues that could not be explained. I had no health insurance so an MRI was out of the question. After getting insurance i was diagnosed within a few weeks. I am doing very well and have very positive outlook. My symptoms were mostly numbness in hands and feet and some days of severe fatigue. In the past month all symptoms have gone away. I have high hopes for capaxone and look forward to staying as active as I have been all my life. I am a 10 year old in a 41 year olds body and believe capaxone is going to help me stay this way!!! Stay positive and give it a chance. F 41 30 days
20MG 1X D
12/25/2011
Email
 3  RRMS Heart palpatations bee sting feeling at injection site itchy large lump that is very hot for about 3 days after injection eye twitch anxiety extremely dry flaky skin Intermittently injections would seem to trigger numbness in left hand. After about 5 months on the drug skin had an ashy white hue that lotions could not even combat. And there was a full body itch that upon scratch would produce hives and redness especially on the palms of the hands and tops of the feet M 46 6 months
1X D
12/25/2011
Email
 3  ms I took avonrx7 yrs18 lesion latter cervical spinal ms also I haven't had no bad side effects but am thin need I more injection. Places. Will it work if I use my butt /I cellulite upper legs. Calves. We have a whole body I don't won't atrophy so scared I am on ldn2 mg also I just pray I don't get dents 90 percent of users do overall im ok I manual. Inject F 34 1 weeks
1 a day
12/8/2011
Email
 3  MS The usual redness and itching at injection sites with some bruising. On 9/29/11 I had a severe IPIR. The symptoms included flushing, exreme anxiety, severe back pain in the kidney area and the feeling that I was going to pass out. The ambulance was called, but by the time they arrived all of the symptoms were gone except the anxiety. The SS nurse, who responded promply assured me that everything I described to her was quite normal for a PIR and that she had heard these same symptoms 4 or 5 times that day. My Neuro doc said to to stop taking the Copaxone for 1 week, but I have so far not had the courage to inject again. I am in the process of changing Neurologists and so wil get a second opinion before a take a chance on this happening again. M 55 5 years
20 ml inj. 1X D
10/17/2011
Email

History
 4  RRMS Large swollen lumps that are hot, red and itchy. Last about a week and then fade to ghost bruising that doesn't go away. Im taking Zyrtek nightly and using cold pack before and after. I also tape on a cotton swab with Lanacane after injecting manually. During the day I put on topical Benadryl. Does anyone have any other "tricks" that might help me? I would love to get some relief from the side effects. F 45 30 days
20 mg 1X D
8/29/2011
Email
 3  RRMS Bee stinging feeling with burning. Sometimes a lot of burning. Really itchy the next day and very hot to the touch that can last for days after. The normal welts are always there. I use a hot pack that Shared Solutions sent to me every night after my injection. I apply pressure for about 45 mins to an hour with it which helps me. I try to massage some of the bumps days later, but it also causes it to be itchy again. I've tried everything that my nurse from Shared Solutions has suggested for the itching, but nothing has worked yet. I just continue to itch. I could be a lot worse i suppose. I was diagnosed in Sept., 2002. I was stubborn about this type of treatment and perhaps in a bit of denial. But i had a major attack New Years Eve Day weekend and i realized that i didn't want to go back to that again. I started the Copaxone 7 months ago as of yesterday. This is still new to me. Every night it's different in some way and i still second guess the area's to be done. My family is bending backwards for and with me. I can't complain. My husband does the injections on my buttocks and the back of my arms for me as i find it hard to reach. My left limb from elbow to hand is still healing from the last attack and i find it very hard to use it. I'm okay on my own with my thighs and tummy. I can't say if this medication is doing anything for me as i don't notice a difference other then i'm alot better now then i was at the beginning of the attack. I find i'm more tired through out the day also. I see my neurologists in 2 days and i really hope he sends me for an MRI just to see if there is anything more going on. I had a possible relapse 2 weeks ago that landed me back on IV meds. But the doctor wasn't really sure if it was a continuation of the previous attack or a new one. Hopefully some thing will become of this stuff. I'm proud to say that i haven't missed a dose yet. I'm getting better at it, but i don't think you can every get use to doing it!!!! F 31 7 months
20mg 1X D
8/29/2011
Email
 4  MS Bee sting, lump, itchiness F 32 4 months
20 mg 1X D
8/12/2011
Email
 4  MS Copaxone was great for the first 1.5 yrars. Then one evening right after the injection I started feeling hot and got a bitter taste in my month, my chest felt heavy and I could bearly breath I got bad stomach cramps and had to go to the bathroom I was terrified went to the ER and they told me it was a reaction to the medication. not another reaction for a year then it just happend again last night, I called my Neurologist and she said that other patients on that medication have been passing out, and told me to stop taking it. I go see her next week hopefully we can find something else to keep my relapse remittin MS in check. F 47 4 years
1X D
8/1/2011
Email
 5  rrms the expected itching , lumps in thighs, slight stinging...... All things I can live with vs. The alternative. Copaxone has helped me greatly! No more tingling in legs, no more weird sensation in my back when I tilt my head down, no more numbness in my hand! Yaaaay copaxy! Only thing I am is extremely exhausted tired.... Boo! Not sure if that is related to the meds or just an MS thing.... F 35 9 months
20 1X D
7/28/2011
Email
 5  MS Minimal side effects--I think. My weight has fluctuated a lot over the last 21 years, so I don't know if Copaxone has anything to do with that. Same thing with anxiety & back pain. I've been treated for anxiety since before I started Copaxone almost 12 years ago (started 10/99) and I'm quite heavy and my lifestyle is very sedentary, so that's probably why I have back pain. Sometimes I have injection site reactions (big lump, pain, hot feeling) but they don't last very long (just a few minutes). The injection itself almost never hurts. Sometimes I try to inject in a place where scar tissue is present and that hurts quite a bit and the needle doesn't want to go in. So of course I try another spot and don't force it. I think Copaxone is a great medicine. The symptoms I used to have frequently (dizziness/light-headedness, numbness in limbs) have all but disappeared. And I haven't had a major relapse since I started Copaxone. I continue to have severe, chronic depression and a lot of anxiety, but it is unknown whether that is caused by my MS. F 45 11 years
20 MG 1X D
7/24/2011
Email
 2  Multiple sclerosis itching, lumps, rashes, dizziness after a week, two months after an acute panic attack, spasm and pain in his right hand, now swollen lymph nodes in the groin I stopped to inject into the hands because they have no fat and I think that the panic attack occurred because I'd probably hit a vein M 40 4 months
40 mg 3X W
7/18/2011
Email
 5  Multiple Sclerosis Redness and soreness at injection site; It can be a little embarrassing in a bikini to have welts but it is well worth it to be healthy and relapse free. I have been on Copaxone for over 9 years and it has been terrific. Although the injections are not fun, the medicine really works. Not only have I been relapse free, but my lesions have gone away. Despite the injection daily (which I have gotten used to), I cannot see myself changing medications since it is working so effectively and without side effects (other than the welts from the injections). I am looking ahead to kids and research shows you can continue to take it during pregnancy without harming the baby and continue taking it while you breast feed. Copaxone has kept me healthy, feeling great, and looking forward to not having another relapse for many years to come. F 29 9 years
1mg 1X D
7/15/2011
Email
 4  RRMS I get the usual injection site reactions, a hive sometimes, and the ghost bruises that stay for awhile. My main concern right now is that I feel I am immunosuppressed. Every three to four weeks I am coming down with a cold that often requires the use of antibiotics (azithromycin) to get rid of. This has been going on for the last 7 months and I don't know how to live a productive life like this. My doctors cannot figure it out, and their only answer is that it is likely the copaxone which I am quite reluctant to stop. Is anyone else experiencing this? I have not had a relapse in exactly one year. I think copaxone is an excellent treatment for MS and the injection site reactions are really quite negligible (for me personally) given that I would much rather have a hive than optic neuritis or another such relapse. F 29 1.5 years
20mg 1X D
7/15/2011
Email
 3  MS usual site reactions. Itchy red lump. Had first immediate post injection reaction after a year. Flushing, heart racing, low back pain followed by chills for the day. After that, I noticed increased joint pain. I do have arthritis, but my hands were becoming increasingly stiff. Had my 2nd immediate post injection reaction 8 month later...not as bad as first...but the joint pain became unbearable. Neuro told me it's one of the side effects. She took me off (med holiday) for three months. I've been off for a month now and have absolutely NO joint pain in my hands!!!! I Have another appointment in 2 months when we will decide whether to try one of the other drugs, go back on the copaxone or use nothing. My last MRI was done a week after this appointment. There have been no changes in the past 2 years. Was it the Copaxone? Don't know. Maybe I'll start back up in August. I'm contemplating quality of life over the joint pain. It seems to be doing what it's suppose to with the least amount of other worse side effects...I didn't want to mess with my liver or kidneys and I already have a thyroid problem. F 52 2 years
20 1X D
6/24/2011
Email
 1  MS Copaxone was great for one year. Then one evening right after the injection I got a bitter taste in my month, my chest felt like I was having a heart attack and the pain went down my spine and hit and bladder (which I lost control of) My face was beet red and hot and I truely thought I was dieing. Then after that passed in about 20 minutes I starting shaking and was freezing and couldn't breath. My blood pressure was sky high..... This has happened four times this past yr and told my Nero that there is NO WAY I am taking this med It is a scary medicine.....Did it work or help...... who knows. Weight gain was immediate upon starting injections.. F 70 2 years
30 mg 1X D
6/16/2011
Email
 5  RRMS I experience the usual site redness, bee string appearance, and wt gain. Asked WHOM motivates me to take the THERAPY...it is NOT a medication, ME,ME,ME I am the only one who suffers if I don't, my Dr.,hubby, son, don't!!! Take responsibility for YOURSELF. If you are deciding to "go off" copaxone, ask yourself how you will feel NOT being on it..you can't answer that one!!! Let alcohol swabbed area DRY before injecting!!! F 61 6 years
20mg 1X D
6/14/2011

 3   Itchy left hand (drives me crazy); peeling skin on my feet; the usutal injection site burning, itching, redness, brusiing or discoloration; weight gain; memory issues; anxiety; I have only been on the shots for 1 year. I want more time before I say whether it works or not. I really don't want to start over on anoher drug. I have had MS for 25+ years and this is the 1st time I have seriously taken medication. Does anyone feel I have too many side effects and should get off the CoPaxone? F 48 365 days
20 MG 1X D
5/6/2011
Email
 3  RRMS F 56 6 months
20 MG 1X D
4/20/2011
Email

History
 1  MS I was fine until I suddenly developed edema in both legs they became huge I developed cellulitis in both legs I devsloped high temperature and became confused. Three weeks later after antibiotics and water tabs my legs are still swollen unable to wear any shoes I have also developed a leg ulcer, Needless to say I won't try this drug again. I was on avonex for 6years. I had flu like symptoms but got used to it, the Drs thought it was no longer working as I have been having increased relapses. F 53 2 weeks
1X D
4/13/2011
Email
 5  Diagnosed with MS 6 years ago I inject at night before I go to sleep. slight sting, sometimes not even that, a small welt that is usually gone the next day. I was diagnosed 6 years ago and starting taking Copaxone right away. I used to ice the area to be injected and that was good. But one night I just injected to a nice fatty part usually my stomach or my thighs. I don't know if it's working but so far there have been no changes that would effect my quality of life. It seems my doctor picked the right medicine. F 52 6 years
30 mg. 1X D
3/28/2011
Email
 5  rrms nothing major in 5 years. little swelling at site. because of thin arms hated arm shots. dr said skip this. if it aint broke dont fix it! no relapses but worried if rest of my innmune system is ok. had kidney stones 2 years ago, and am in midst of prostate scare. M 55 5 years
20 1X D
3/26/2011
Email
 2  RRMS I have had the regular "bee sting" feeling and welts that are itchy and last for days-all of which I could deal with. Last night was the decinding factor for going off this drug...I did my injection in the upper left arm and thought "funny, this time doesn't hurt. What's up with that" and then all of a sudden I started feeling a burning and numbness all over and ran upstairs to get my husband. As I was going up the stairs the pain got worse and I almost didn't make it. I stumbled into the bedroom and fell onto the bed telling him that I couldn't breathe and my chest was constricting and then my face started to burn and get really red and swollen. I was drenched in sweat and terrified. I thought I was going to die. I remembered that I was told that any symptoms should only last about 15 minutes so I tried to hang on, as time passsed I could breathe again but I had severe cramping in my stomach and had a severe, urgent bowel movement. After that I laid down an F 43 2.5 months
10mg 1X D
3/19/2011

 3   The usual culprits. And, occasionally no initial side effects at all :), until the day after :\. Does anyone have purple patches or 'ghosts' of previous injection sites? They are not really "bruises" by definition, e.g., co-agulated blood that disperses over time. These patches that I have, haven't gone away yet (5 months and counting), although they have become lighter in color and at times completely invisible only to reappear. Also, my attempts to tame the injection site side effects that have helped me include: **OTC medicated Cortizone10 anti-itch salve -- a couple of applications may be needed within 24 hr period (up to 4 allowed per directions). **After injection, I hold a cotton ball on site for about 1 minute and relax the site as much as I can, after which I swab with alcohol and apply a band-aid ( the 1/2-inch square style) for 6-12 hours, any longer and the band-aid may irritate skin. **Mint toothpaste (paste not gel) works to cool area, best done after 24 hours of injection. **A mint poltice also relieves the itching -- if you have an herbal garden with mint plant(s). Remember although alcohol cools, relieves, and cleanses, it is also a drying agent and will dry out your skin where it is applied, need to follow-up with a good moisturizer, I like Gold Bond -- it's kind of pricey but is worth it, plus it lasts longer than you might think. That's my 2-cents worth! F 51 5 months
20 1X D
3/15/2011
Email
 5   Some itching, burning at injection site. Fat atrophy on top of thighs. One episode of chest tightness, wheezing and flushing-lasted only few minutes but frightening. MS nurse specialist suggested Zyrtec 10 mg at bedtime daily to help with injection rx's-has helped tremendously!! Take at bedtime as can make you sleepy. I have not had a relapse since the one that gave me a diagnosis-as far as I'm concerned there are no other drugs! No longer have to have yearly MRI-my scans improved steadily for several years and now show no new progression F 45 7 years
20mg 1X D
2/25/2011

 4  RR Bee sting, lil knots at injection site and weight gain. The weight gain is the biggest problem. I am having such a hard time getting it off. I want to stop the injections. I have tried Avonex but ended up in the Er with an allergic reaction, wasn't a fun weekend. I'm tired of having MS & I'm tired of doing these injection. Sick & tired of being sick & tired... Copaxone is a good medication. I would want to do any other drug for MS unless they finally got oral drugs for MS… F 46 8 years
1X D
2/24/2011
Email
 4  RRMS I've had the bee sting effect early on but after 15 months, it is much diminished. I have been very happy with this drug. I was DXed when I was 45, but looking back had symptoms for about a decade. I had the welts early on, and itching, but all that went away after the first few month. I rarely see any site reactions now. Every person reacts differently, but I recommend trying Copaxone to see if it works for you. M 47 438 days
40 1X D
2/22/2011
Email
 2  MS Very painful stinging. Red injection-site reaction. Itchy for days after injecting area. Heart palpitations. Flushy feeling. Easily out of breath. High blood pressure for a few hours following injection. Nausea. Sudden loss of appetite. Muscle twitches everywhere. Eye twitches. Limb spasms. Extreme fatigue. I went nine years without consistently being on therapy and was relatively well. I decided to finally give MS therapy another chance. I confessed to the new neurologist that I have not been 100% honest with previous neurologists, but I was ready to give any MS therapy he prescribed a chance. After hours of lecturing and scolding, I was prescribed Copaxone. Now I feel worse than the previous nine years. I tried bringing up these side-effects to the neurologist, but he dismisses them as irrelevant to Copaxone. I am beginning to feel like this honest patient streak is backfiring. Just because I confessed to past transgressions with my medical care, I feel the neurologist cannot look beyond it and start a clean slate and deal with the present. I do not want to appear like I'm looking for any excuse to be off therapy, so I am forcing myself to stay on therapy until it kills me. Cheers! F 25 4 months
20 MG 1X D
2/16/2011
Email
 3  RRMS burning after injection, swelling at injection site, intense itching for days after, some bruising. I have been on copaxone for 2 months now and I have no idea if it is working or not. I have a MRI in 2 weeks so I will find out then. At first I had very mild reactions to the injections but after time they became worse. I have huge goose eggs at injections site (especially in the arms) and the itching is making me crazy. Nothing seems to help and it gets so bad it keeps me awake with the burning and itching. I'm not sure how much longer I can continue if this keeps up. I keep my shots out for the entire month because my memory is so bad now and I do not trust myself to remember to take them out each morning. F 35 60 days
20 mg 1X D
1/24/2011

BACK TO TOP
Page: 1 2 3 4 5