Drug Ratings for COPAXONEAverage Rating: 3.5 (296 Ratings)
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Results are sorted by Date Rating Was Added Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 |
Charts & graphs: Reviews Summary for COPAXONE | Top 10 Adverse Effects (reported to FDA)
| RATING | REASON | SIDE EFFECTS FOR COPAXONE | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| F M | |||||||
| 4 | Relapsing Remiting Multiple Scleros | Slight sight injection inflammation that dispersed with in an hour. Med going in body felt like a monkey bite occasionally but it is a substance and once disbursed I was fine. Never any other real side effects, I did cry every time I self injection just due to the reality of having the MS dx. | I am incredibly grateful for this medicine. I have gone from being home bound and unable to think well or fill out paperwork to regaining my former quality of life. It takes about 6 months to really register in your system. I did have 1 major relapse where I had to be inpatient and on Sol U Medrol for 5 days. Hated that! Copaxone halted my progression. I was bordering on Secondary Progressive, and have now been able to commit myself to future plans where previously I was unable. I also use Baclofen in conjunction for the spasticity and Tramadol twice daily for pain, and Xanax for the anxiety that comes with MS. Over all Copaxone 40mg 3x week is a life safer for me and my family. | F | 50 | 24 months 40 3X W | 10/5/2016 | 5 | Diagnose with 2013 with RRMS | Cops one has really helped me. I was crippled and couldn't speak well. My doctor put me on Avonex and it had so many side effects. Then I ask about cops come and I'm speaking better,can move the top part of my body now. Only bad affect I have had was cramping in my leg but I will deal with that considering all the disabilities I had before. My focus is to walk again. Those that have site reactions put ice on before and after your injections to avoid site reactions and bruising. | F | 1 months | 9/2/2016 | 2 | RRMS | I was diagnosed August of 2015 and started copaxone Sept/October 2015. I ended up stopping around Feb/March of 2016. I would get dime or quarter size welts at the injection site, shortness of breath, a flush feeling and anxiety from the shot to the point of crying. I would get these horrendous chills that would like 45 min. Nothing could warm me. So I eventually just stopped taking it overall | I would like to try something different. My neuro doesn't like the pills as he calls them ineffective and can cause liver problems. I was looking into the monthly IV medication. But the side effect of that is brain disease, which I don't think is worth it. | F | 25 | 6 months 40 3X W | 8/8/2016 | 3 | for MS | I have been on this meds for one month now.And I call my Nero the nurse I call she is rude,like she dont have time. i have cramping and I feel like my legs r going to drop me to the ground.My lower back is hurting me too.The pain shoots in my left legs while I"m asleep and wakes me up.It feels like someone is sitting on my chest.I have four lesions on my brain and I dont know what is going on.I know my body but nobody wants believe me. | cramping,dry mouth soreness around the area.3 by 3 bee sting.burns more than 5 minutes.very warm to touch.Joints hurts.hard to breath.I have to keep walking to get my mind off the leg pain. | F | 46 | 3 weeks 40 3X W | 7/14/2016 | 3 | Rrms | Nausea , restless at night , chest pain , racing heart that is scary , I don't know if this is working or not ! Weight loss I think I am losing muscle , digestion problems seem after I eat a little stomach growls as if I am hungry but am not ! | F | 46 | 3 months 20mg | 10/24/2015 | 5 | RRMS | It always blows my mind to read about severe side effects being attributed to Copaxone. I have never experienced a single adverse reaction in the 18 years I've been taking it (that's over 6,500 injections!). I consider the mild discomfort at the injection site a small price to pay for the benefit of experiencing fewer relapses -- and ultimately protecting my brain for the future. I am 100% certain that I would be in a wheelchair by now if Copaxone hadn't come along when it did. I do envy the patients who are newly diagnosed and can get started on the 40mg right away -- as they will likely experience very little lipoatrophy -- the only adverse reaction I've had to "endure." But I'm not in a wheelchair, I'm still working full time, I cycle at least 1,500 miles per year (in rainy Seattle!), and I honestly believe that none of that would be true if I hadn't started on Copaxone immediately after my diagnosis. | Of all the medications out there now (there was only Avonex & Betaseron when I was diagnosed -- we've sure come a long way since then!!), I believe Copaxone to be the most convenient (3x/week injections with an AutoJect) and most effective with the least amount of side effects. If I were newly diagnosed, I would start with Copaxone. If it doesn't seem to work, or if the injection site reactions are too severe, there are more than a dozen other FDA approved meds to try. But I feel like I "won the lottery" when Copaxone was released right after my diagnosis. | F | 50 | 18 years 40mg 1X D | 10/23/2015 History | 2 | MS Dx 11-2014 | When I first begin I just had basic normal injection site burning, pain, itching, redress and swelling. I use a cold compress for about 30 minutes to an hour following the injection and was fine. I always did my injections at night before bed and in the morning after I always wake up with severe flu like symptoms fever the whole nine yards but Dr said this is better than the alternative. So I continue to take Copaxone now October 2015 6 months after starting Copaxone I relapsed causing the usual cycle of IV Steroids as well as follow up with pill form. So I continue taking it and for the second time now shortly after my relapse but the first time this happened before my relapse. About 30 minutes after taking the injection I start feeling really flush heart racing and then extremely extremely cold to the point that I shake my entire bed chattering and usually I'm very hot but this happens and I get extremely cold like I lose every ounce of heat in my body, my body goes into full body spasms I yawn excessively my eyes water I can't see anything it's like my whole body is in pain and my muscles are reacting in some sort of strange seizure type of occurrence. This can last for an hour to several hours causing me to hardly sleep through the night and then when I wake up the next morning as usual I feel the normal flu like symptoms. Now I was willing to deal with the painstaking side effects but when I relapsed I'm thinking now what is this really doing to help me its supposed t | Going to see what else is available | F | 33 | 6 months 40 mg 3x w | 9/25/2015 | 1 | Multiple sclorosis | I had lost my eye sight with this med not completely blind but couldn't see much be careful with this drug I started with a light in my eye and it got worse ! I couldn't see my grand kids well and I wanted to die! I got so depressed ! Stop the med per Nero and it came back after 4 weeks on a lot of steroids ! | F | 44 | 3 days 2X D | 8/11/2015 | 5 | MS | I have done very well on Copaxone 3x a week . All was ok for about 3-4 mos. then started having severe itching, redness, and pain at injection site. I started warming area to be injected and also getting syreinge as close to body temp as possible. This really helped a lot and severe itching and pain eventually subsided. I still get a little redness and pain but easy to deal with now. | My experience with Copaxone has been very good! Feel better than a year ago. | F | 57 | 1 years 40mg | 8/8/2015 | 5 | MULTIPLE SCLEROSIS | Flu like symptoms, and injection site burns for hours | F | 44 | 2 years 40 mh | 7/22/2015 | 1 | Multiple Sclerosis | F | 61 | 40mg 1X D | 6/9/2015 History | 5 | RRMS | When I first started Copaxone I was taking the 20mg.daily for about 6 years No side effects but maybe a little red and itching. I then startedtaking the 40mg. 3 times a week. It was great but in 7 months I gained about 60lbs and was so extremely tired ALL of the time and am now so week with hip and shoulder pain for no reason. I am switching back to the 20mg. This next week because myself and my doctor believe it is a possibility that is was the medicine switch because it all began 3 weeks after the change. | I love the lack of side effects on the 20mg. | F | 43 | 7 months 40MG | 3/31/2015 | 5 | Multiple sclerosis | I have been taking copaxone for 19 years. I have been incredible successful with thre results. My choice for starting, minimal side effects and the fact that it uses amino acids found within your body naturally | F | 47 | 10 years 20/40 | 2/22/2015 | 5 | RRMS | Injection site soreness. | Switched to 40mg, 2months ago,experienced more symptoms,so say hint back to 20 mg,as soon as new script,arrives. | F | 61 | 4 years 20mg /40mg 1X D | 1/30/2015 | 2 | Joint pain. I had taken Copaxone for about 8 months when I started having debilitating joint oain. My neuro had me stop for 2 month to see if there was any change. No joint pain after 2 weeks off. Stopped for 9 months then had an exebation which my neuro recommended I needed to be on a maintenance drug. Started Copaxone again and joint pain returned after 1 month. I will be dicontnuing all meds and taking my chances. Quality is better that way I think. | M | 53 | 2 years 20mg | 12/28/2014 | 2 | Multiple Sclerosis | Mild anxiety, depression, no appetite, increased spasticity/ muscle tension, headache.Have been "sick" with cold/ flu symptoms since starting 40 mg 3x week. | Switched from 20 mg to 40 mg approx six weeks ago. Symptoms distressing enough that I may ask Neuro to switch back. | F | 54 | 6 weeks 40 mg 3X W | 12/15/2014 | 1 | multiple sclerosis | Anxiety, loss of appetite, mood swings;fatigue | Beeen on 20 mg for 14 years and am switching back ASAP | F | 64 | 6 weeks 40 3X W | 8/21/2014 | 1 | switched from copaxone 20mg | Decreased appetite Increased fatigue Mood swings Ms exacerbation Increased anxiety Inability to slow down to rest and sleep | F | 41 | 1 months 40 | 7/30/2014 | 3 | I have tried other medicine dont wo | I have been taking 40mg copaxone for 3 weeks now and the injection site reactions are terrible. I get an huge 3" by 3" red welt with severe pain and burning with itching that lasts a good 3 days or more. No other side effects tho, which is a good thing.I do not use the autoject, however my shared solutions nurse thinks it will help and that I may be injecting to deep. | F | 37 | 3 weeks 40mg | 6/18/2014 | 4 | RRMS | Nothing for the first two months except twice after injecting in my right arm, I had extreme pain in that arm for about 4 hours. I stopped injecting in that location and everything was great for 3 months (I did not use the auto-injector). after starting my 4th month ( started using the auto injector because it is easier) and I started getting red welts at the injection sites which would itch two days later (strange). Somedays I get EXTREME fatigue, but I'm not sure it this is Copaxone related. | I will be switching to the 3x a week 40 MG next week. Although I have only been on the medication for a short time, I do think that it helps, I feel better overall. | M | 47 | 4 months 20 MG 1X D | 5/14/2014 | 3 | MS | Horrific injection site reactions, hard as a rock, bruising, lumps, bumps. Nausea, night sweats, eating away at my teeth, IBS exacerbations , weight gain | Despite the reactions I will stay with this or just go off of it until something "better"comes alone. Slow progression of disease with lack of endurance, lack of appetite despite weight gain which is steady, walking but short distances but no major exacerbations. | F | 62 | 13 years 20 mg 1X D | 5/8/2014 | 5 | Multiple Sclerosis | None | F | 40 | 1 days | 1/12/2014 | 3 | Rrms | Last 3 weeks I experienced the most painful post injection-anxiety, heart palpitations and body spasms for an entire 15 minutes. My dr said "if I was game, see if it happens a third time." Are u kidding me??? I took myself off completely. | F | 55 | 10 years 30mg | 10/13/2013 | 4 | RRMS | A quick question for all the females out there. Have you at all noticed any change in your menstrual cycle since starting Copaxone. Would really like to know as I have been dealing with this for a while now. | F | 33 | 2.5 years 20 MG 1X D | 8/7/2013 | 4 | RR MS | Lipoatrophy on upper arms, some anxiety, the usual burning and itching, but they left after I'd been on drug a month. | I took a break off Copaxone and went to Tysabri from Feb, 2012 to Feb. 2013 as my neuro wanted me to. I did NOT. I was scared of Tysabri. After finding that it caused me severe respiratory distress and bladder infections, I went back on Copaxone last week. For the first time in 7 years I had a site reaction: a huge red welt of hives, hot as a furnace. I put cold on it and it left after 25 minutes. This drug has been very good for me, and oddly, when I started it I ceased having migraine headaches. I do occasionally have weak legs after injecting, and reactions can happen no matter how many years you've been on the drug. As I already had depression, Avonex or Betaseron weren't options. The only real concern I have is of lipoatrophy, as I'm running out of places to inject. I've hit a blood vessel occasionally, never pleasant, but nothing permanent. Basically I'm grateful indeed for this drug. And they're coming out with a once-a-month version of it, I heard this week. Should be interesting. | F | 60 | 7 years 1X D | 5/11/2013 | 5 | Multiple Sclerosis | Have been on Copaxone for 18 years,(study participant), and have NEVER experienced the "post injection" reaction like you describe. Have been extremely happy with the lack of adverse reactions to this medication. | F | 63 | 1 days 20 MG | 3/31/2013 | 3 | multiple sclerosis | When I first started I had no issues but as I kept injecting .... | About a year ago I started having the "post injection site side effect" [what feels like a heart attack / panic attack] Which I was told mostly effects people just starting Copaxone. What I found online is when you inject into a vein this will happen. To date I have had this happen 2 times. So now I have to really check where I inject. If I see any "blue" at all I will not inject in that spot or near. It's getting harder to find virgin spots . In Nov 2012 I noticed pitting edema in my shins. I've been through many tests which always seem to come back negative. I am interested to know .... If anyone else has huge lumps on the top of their legs. They seem to be permanent as they never go away. I also have bad varicose veins on my legs near the injection sites. Is it possible that the medicine is either not being absorbed properly or the damage from injecting for years is some how stopping the flow of blood[fluid] from the knees down and causing pitting edema and stabbing pain and what feels like burning veins. On me my hips and legs are the worst. If I inject that day the pitting edema seems worse in that leg. A few days ago the pitting was gone and the day I injected into leg the pitting was back. I just put this together as being a cause so I am still interested to see if the pitting starts to go away and then when I inject again does it get worse and if it does it every time. I also stopped injecting in hips since both times I had the "post inje | F | 34 | 9 years 20 mg 1X D | 3/21/2013 | 2 | ms | Pain , itching and redness at injection site. Feeling very fatigued and weak. | F | 43 | 10 weeks | 2/25/2013 | 3 | MS | 30 minutes after injection had IPIR. Reaction was I was burning up, weak, dizzy, heart racing, face and especially lips tingly and numb, right hand week. At the 4 hour mark was able to walk although unsteady, at 6 hour mark was heading back to my MS normal. At 8 hour mark after reading multiple Internet comments and Shared Solutions plus my neurologists nurse took a Tylenol and Benadryl. At the 12 hour mark I napped and feel weak and wrung out. Wonder if The injection went into an area that was directly linked to blood supply? Don't know. Will try tomorrow and see how I react. All in all a long day | M | 57 | 77 days 20 1X D | 1/23/2013 | 5 | RRMS | Redness, flushing, fevers every once in a while. For fever times I take a Benadryl and it seems to help. Had one episode 13 years ago none since, I will defiantly stay on copaxone even with some lousy side effects | M | 50 | 10 years 20mg | 1/10/2013 | 4 | RRMS | Each day is different. I've had redness, hard lump just under the skin, pain, burning, fatigue, dry eyes, flushing, couple of bruises, and weight fluctuation. | I inject at night before bed, apply heat to intended injection site prior to injection, and have med at room temp by the time I inject the med. I never us my arms (my choice). Most severe pain was the first one - med was cold, I was cold, and put it in my inner thigh. I have to watch what I eat d/t weight shifts and gain. Everyday each injection hurts, but only for around 10 min. Difficult to know that medication is not working fully until after being on the med for 6 months, but every day without a flare up is worth it. | F | 29 | 2 months 20 MG 1X D | 12/6/2012 | 2 | to stop relapses with my ms | red sore lumps, pain at injectioin sites, have to take painkillers beforehand, swelling in hips, thighs and bad red swellings in both arms, feel like a overused pin cusion. | will not be taking it anymore from tonight, have not told my doctor yet, but am not putting myself through anymore pain, without any proof of its working. | F | 55 | 5 months 20 mg 1X D | 12/5/2012 | 4 | RRMS | Pain at injection site. Now after 10 years, my thighs are rock hard at the injection site and I have tissue loss at my hips. I showed my doctor that I have loss of tissue down to the bone on one buttock, said he's never seen anything like it. Copaxone works but I am running out of places to inject. It is also taking a toll on my teeth. | F | 52 | 10 years 20 MG | 11/11/2012 | 5 | ms | The usual nasty skin reactions most times. I HAVE FOUND THAT KEEPING ABSOLUTELY STILL FOR ABOUT 1/2 HR. AFTER INJECTION HAS HELPED DRAMATICALLY WITH THE PAIN. After 13 yrs. my skin is in pretty good shape (discoloured, lumps but no degredation). I have had the severe body side effects occassionally. In the last few years have become more frequent, severe, lasting longer (several hours). Yesterday was really bad so I am researching if there is anything I can do to lessen the reaction. | The first time I had a severe reaction was about 1 yr. after taking Copaxone in 1998. My MS doctor took me off it immediately. After about 6 month I felt my symptoms getting worse so I asked to start again. Copaxone has really helped and I do not want to stop, but am concerned about severe reactions. Others have suggested 25 mg. of benadryl and an Epipen. I will try the benadryl and talk to my Dr. about the pen. Anyone have any other ideas? | F | 60 | 15 years 20 1X D | 10/20/2012 | 5 | MS | none | been working great | M | 50 | 7 years 20mg 1X D | 8/27/2012 | 4 | diagnosed in July,2012 with MS | The only side effects so far are a little welp after injection that has left before the morning. I do have burning at time of injection and do use heat before and cold after per the nurse. I have some pain in the sites still but only if touched to hard. I feel better, but I am sure that is only because I now know what I have and that Copazone will make it better. (Hopefully) | I feel like I have made the right choice taking Copaxone because of the least amount of side effects. I can deal with the medicine buring at time of injection and if I have a post injection side effect 20 mins. will end alot faster then being sick for days after as some of the other meds. can cause. I will check back in a few months though and let you know if I feel the same way. | F | 37 | 7 days 30mg 1X D | 8/1/2012 | 1 | RRMS | took Copaxone for nine months. The infection sites were unbearable and stayed that way for days. I am full of unsightly pitts on arms, legs and hips. However, this is not as bad as the asthma allergies that came on suddenly. I am allergic to most food, grass, pollen but not animals. | As one that has experience in the medical field, it parallels to the allergic site reactions, then the sudden onset of asthma and allergies. I wish I had never taken this drug. It did nothing for my MS, My life with allergies and MS is trying to say the least. The drug company was very nice to me but it doesn't make me feel any better. | F | 59 | 9 months 1X D | 6/29/2012 | 1 | to avoid relapse | Severe burning welts tiredness etc. I hate it. I have tried betason and avonex | F | 47 | daily 1X D | 6/25/2012 | 3 | MS | just a bit of pain at shot site. It don't last long, only a few minutes | M | 48 | 3 months 20mg | 6/11/2012 | 4 | I have been on it for 13 years!!! I have terrible "dips" destroyed fatty tissue in all sites. They have deformed my body. I am 47 and very upset about this. Athough I feel better than I have felt since dx in 1997! | F | 47 | 13 days 1 shot 1X D | 4/30/2012 | 4 | Multiple Sclerosis | I've had 6 incidents of hot flushing, 1 PHENOMENAL bruise, 1 bout of nausea and a very occasional bitter taste in my mouth. | F | 28 | 8 months 1 x day | 4/27/2012 | 4 | Multiple Sclerosis | Huge lumps , burning , itching , sometimes extreme pain when injecting [usually in hips and legs] | Every once in awhile when I do a injection the drug does not inject into site properly so when I pull out the needle the medicine sprays everywhere. I also noticed that after 8 years some lumps are not going away. I have huge indents at sites. Permanent damage to injection sites. Bruising. I am using the auto inject. | F | 33 | 8 years 20 MG 1X D | 3/28/2012 | 5 | MS | None | M | 27 | 5 days 20 1X D | 3/21/2012 | 1 | MS of others | All drugs are poisoness eventually. On the bright side all diseases are vitamin deficiencies and can be cured with proper dosing [Your doctors will never tell you! The drug companies own them.] | MS is likely another autoimmune disease like RA for which I am effectively cured with vitamins and proper nutrition partially covered at Dr (PhD) Saul's site doctoryourself.com. There are also some new products out with concentrated B1 and 12 in addition to the critical B3 (the niacin form has 500 mg available off the shelf)but I am running out of space, you can e-mail me any questions. Good luck! | M | 56 | 1X D | 3/16/2012 | 4 | MS | Feels like a beesting. At first I only had redness for about an hour. Then all of a sudden I started getting huge lumps everywhere I injected with a lot of itchiness and swelling and redness that lasts for days, to weeks. I had to skip a couple days because of the soreness and lumpiness. Most of the lumps have shrunk into very small buttons after almost a week, but a few are still very agitated. | F | 18 | 30 days 20 mg 1X D | 3/9/2012 | 1 | RRMS | I took copaxone for over 13yrs with minimal, typical side effects. (pain at inj site, welts, divots, etc.) In December I experienced a severe reaction and my whole life changed. First my arm looked like it had a bad bruise. Then the area turned dark red and finally black. I had to have the black areas (skin necrosis) surgically debrided out of my arm on 3 separate occasions. My arm wound was so deep you could see the tendons, nerves, and bone. I was taking antibiotics, pain medicine, lyrica, vitamins and I then got drug induced hepatitis. I have missed 2months of work and will have severe scarring on the back of my arm. There are many quesses as to why this happened. What I am upset about is that Shared Solutions says this can happen, but they say it is rare. It usually happens to people who have been on the drug for a long time. WHen I called to report it, they told me.....wowwe havent talked to you in many many years. They need to be educating their long time copaxone users patien | M | 45 | 13 years 1ml 1X D | 2/19/2012 | 4 | MS | burning and itching with redness to site which lasts for about 10-15 min. Except when I inject my thighs they last all day with soreness. My Blood Pressure has been running very low 74/42 and I dont know if thats because of the copaxone But I believe it is. | I woke up last year 02/2011 and collapsed and I couldn't see , double vision , walking side ways and had a severe migraine with nausea that lasted for 2 weeeks. The ER said it was a migraine. I had a MRI done and the first neurologist I went to said, You have a migraine take this", He gave me topamax and said I'll see you in 6 months. I went to the next nuerologist and besides having chronic migraines since I was 16, they ran all kinds of tests to rule out everything,and they even did a spinal tap that was negative. But my MRI had signs of new progressive lesions growing in my head from 6 months ago and had been since 2003. So, they monotoired me and I got worse around christmas,woke up and had leg spasms from the groin down to my ankles and it felt like charlie horses and I couldn't walk. I had trouble with my urine. My doctor finally said you need to come in for some chemo/IV infusion therapy. I have had that twice in two months and it sucks. I was diagnoised with MS in 01/2012. Before that I was working as a nurse and had to quit my job. My symptoms vary day by day but pretty much are vertigo, paroxymal hemicranial headaches, leg spasms, cannot stand for no longer than 30 min at a time and low blood pressure which makes me dizzy, lightheaded, and tired which I am battling everyday right now. Does it get any better? I cant tell if the shots will help but my legs do feel better. | F | 33 | 2 weeks 20 mg 1X D | 2/15/2012 | 5 | MS | Injection site reactions vary each day; redness, burning, itchy, bruising, soreness, lumps. Reactions lasting anywhere from an hour to several days per injection site. ONE time, immediate post injection reaction; rapid heart beat, chest pain, flushing, lasted half an hour. | I have been on and off COPAXONE for 9 years. While I was on it, my MRIs never changed- and I had no relapses (except for the ongoing fatigue, and mild cognitive issues) however because the injections were painful and tiresome I would stop taking it occasionally, and finally quit for 2 years. After I quit, I started having small relapses lasting 3 weeks- 3 months. Then after 2 years I had an MRI showing new and active lesions. Needless to say I have chosen to go back on COPAXONE and put up with the pain, as I know it was working for me before. | F | 33 | 9 years 20 mg 1X D | 1/9/2012 | 5 | RRMS | Little stinging not bad. Some welts that go away within an hour. Large egg formed with one of my arm injections with no pain it may be because I dont have a lot of fat there. Other than that it has become just another part of my daily routine. | I was recently diagnosed October 24, 2011. This was after years of issues that could not be explained. I had no health insurance so an MRI was out of the question. After getting insurance i was diagnosed within a few weeks. I am doing very well and have very positive outlook. My symptoms were mostly numbness in hands and feet and some days of severe fatigue. In the past month all symptoms have gone away. I have high hopes for capaxone and look forward to staying as active as I have been all my life. I am a 10 year old in a 41 year olds body and believe capaxone is going to help me stay this way!!! Stay positive and give it a chance. | F | 41 | 30 days 20MG 1X D | 12/25/2011 | 3 | RRMS | Heart palpatations bee sting feeling at injection site itchy large lump that is very hot for about 3 days after injection eye twitch anxiety extremely dry flaky skin | Intermittently injections would seem to trigger numbness in left hand. After about 5 months on the drug skin had an ashy white hue that lotions could not even combat. And there was a full body itch that upon scratch would produce hives and redness especially on the palms of the hands and tops of the feet | M | 46 | 6 months 1X D | 12/25/2011 | 3 | ms | I took avonrx7 yrs18 lesion latter cervical spinal ms also I haven't had no bad side effects but am thin need I more injection. Places. Will it work if I use my butt /I cellulite upper legs. Calves. We have a whole body I don't won't atrophy so scared I am on ldn2 mg also I just pray I don't get dents 90 percent of users do overall im ok I manual. Inject | F | 34 | 1 weeks 1 a day | 12/8/2011 | 3 | MS | The usual redness and itching at injection sites with some bruising. | On 9/29/11 I had a severe IPIR. The symptoms included flushing, exreme anxiety, severe back pain in the kidney area and the feeling that I was going to pass out. The ambulance was called, but by the time they arrived all of the symptoms were gone except the anxiety. The SS nurse, who responded promply assured me that everything I described to her was quite normal for a PIR and that she had heard these same symptoms 4 or 5 times that day. My Neuro doc said to to stop taking the Copaxone for 1 week, but I have so far not had the courage to inject again. I am in the process of changing Neurologists and so wil get a second opinion before a take a chance on this happening again. | M | 55 | 5 years 20 ml inj. 1X D | 10/17/2011 History | 4 | RRMS | Large swollen lumps that are hot, red and itchy. Last about a week and then fade to ghost bruising that doesn't go away. Im taking Zyrtek nightly and using cold pack before and after. I also tape on a cotton swab with Lanacane after injecting manually. During the day I put on topical Benadryl. Does anyone have any other "tricks" that might help me? I would love to get some relief from the side effects. | F | 45 | 30 days 20 mg 1X D | 8/29/2011 | 3 | RRMS | Bee stinging feeling with burning. Sometimes a lot of burning. Really itchy the next day and very hot to the touch that can last for days after. The normal welts are always there. I use a hot pack that Shared Solutions sent to me every night after my injection. I apply pressure for about 45 mins to an hour with it which helps me. I try to massage some of the bumps days later, but it also causes it to be itchy again. I've tried everything that my nurse from Shared Solutions has suggested for the itching, but nothing has worked yet. I just continue to itch. I could be a lot worse i suppose. | I was diagnosed in Sept., 2002. I was stubborn about this type of treatment and perhaps in a bit of denial. But i had a major attack New Years Eve Day weekend and i realized that i didn't want to go back to that again. I started the Copaxone 7 months ago as of yesterday. This is still new to me. Every night it's different in some way and i still second guess the area's to be done. My family is bending backwards for and with me. I can't complain. My husband does the injections on my buttocks and the back of my arms for me as i find it hard to reach. My left limb from elbow to hand is still healing from the last attack and i find it very hard to use it. I'm okay on my own with my thighs and tummy. I can't say if this medication is doing anything for me as i don't notice a difference other then i'm alot better now then i was at the beginning of the attack. I find i'm more tired through out the day also. I see my neurologists in 2 days and i really hope he sends me for an MRI just to see if there is anything more going on. I had a possible relapse 2 weeks ago that landed me back on IV meds. But the doctor wasn't really sure if it was a continuation of the previous attack or a new one. Hopefully some thing will become of this stuff. I'm proud to say that i haven't missed a dose yet. I'm getting better at it, but i don't think you can every get use to doing it!!!! | F | 31 | 7 months 20mg 1X D | 8/29/2011 | 4 | MS | Bee sting, lump, itchiness | F | 32 | 4 months 20 mg 1X D | 8/12/2011 | 4 | MS | Copaxone was great for the first 1.5 yrars. Then one evening right after the injection I started feeling hot and got a bitter taste in my month, my chest felt heavy and I could bearly breath I got bad stomach cramps and had to go to the bathroom I was terrified went to the ER and they told me it was a reaction to the medication. not another reaction for a year then it just happend again last night, I called my Neurologist and she said that other patients on that medication have been passing out, and told me to stop taking it. I go see her next week hopefully we can find something else to keep my relapse remittin MS in check. | F | 47 | 4 years 1X D | 8/1/2011 | 5 | rrms | the expected itching , lumps in thighs, slight stinging...... All things I can live with vs. The alternative. | Copaxone has helped me greatly! No more tingling in legs, no more weird sensation in my back when I tilt my head down, no more numbness in my hand! Yaaaay copaxy! Only thing I am is extremely exhausted tired.... Boo! Not sure if that is related to the meds or just an MS thing.... | F | 35 | 9 months 20 1X D | 7/28/2011 | 5 | MS | Minimal side effects--I think. My weight has fluctuated a lot over the last 21 years, so I don't know if Copaxone has anything to do with that. Same thing with anxiety & back pain. I've been treated for anxiety since before I started Copaxone almost 12 years ago (started 10/99) and I'm quite heavy and my lifestyle is very sedentary, so that's probably why I have back pain. Sometimes I have injection site reactions (big lump, pain, hot feeling) but they don't last very long (just a few minutes). The injection itself almost never hurts. Sometimes I try to inject in a place where scar tissue is present and that hurts quite a bit and the needle doesn't want to go in. So of course I try another spot and don't force it. | I think Copaxone is a great medicine. The symptoms I used to have frequently (dizziness/light-headedness, numbness in limbs) have all but disappeared. And I haven't had a major relapse since I started Copaxone. I continue to have severe, chronic depression and a lot of anxiety, but it is unknown whether that is caused by my MS. | F | 45 | 11 years 20 MG 1X D | 7/24/2011 | 2 | Multiple sclerosis | itching, lumps, rashes, dizziness after a week, two months after an acute panic attack, spasm and pain in his right hand, now swollen lymph nodes in the groin | I stopped to inject into the hands because they have no fat and I think that the panic attack occurred because I'd probably hit a vein | M | 40 | 4 months 40 mg 3X W | 7/18/2011 | 5 | Multiple Sclerosis | Redness and soreness at injection site; It can be a little embarrassing in a bikini to have welts but it is well worth it to be healthy and relapse free. | I have been on Copaxone for over 9 years and it has been terrific. Although the injections are not fun, the medicine really works. Not only have I been relapse free, but my lesions have gone away. Despite the injection daily (which I have gotten used to), I cannot see myself changing medications since it is working so effectively and without side effects (other than the welts from the injections). I am looking ahead to kids and research shows you can continue to take it during pregnancy without harming the baby and continue taking it while you breast feed. Copaxone has kept me healthy, feeling great, and looking forward to not having another relapse for many years to come. | F | 29 | 9 years 1mg 1X D | 7/15/2011 |
