Drug Ratings for ARIMIDEX

Average Rating: 2.6 (1226 Ratings)

Compare ARIMIDEX with similar:
ANTINEOPLASTICS    AROMATASE INHIBITORS   

  

Results are sorted by Date Rating Was Added    

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)   

Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21
Filter Results


    New! Reviews Summary for ARIMIDEX  | Top 10 Adverse Effects (reported to FDA)

RATING  REASONSIDE EFFECTS FOR ARIMIDEXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
sort down sort up F  M  
 3  Stage 2A breast cancer Stiffness, body pain, brain fog, tendinitis, plantar faciitis, high cholesterol, crying, high blood pressure, male pattern baldness, hot flashes and vaginali dryness. Oncologist wanted to get me on antidepressant. Thank God I learned about MAGNESIUM. Pain gone. Blood pressure normal. Can live with other side effects. I take 400-800 mg a say. Oncologists just don't get how bad patients feel. I I have 4-5 more years to go. Really don't think I can last that long. F 65 4 years
1 mg 1X D
7/9/2014
Email
 2  Breast cancer Hot flashes, fatigue, bone pain, muscle pain F 3 years
1mg 1X D
7/9/2014
Email
 3  Breast Cancer Hair thinning (a lot), insomnia, awful hot flashes, and I've always had perfect triglyceride levels...now they are triple. Went from 70 to 233. Scared I will die of heart disease instead of cancer. Bone pain. I take Vitamin D 2000 mg a day for that. Fatigue. Loss of sex drive, vaginal thinning, painful intercourse. I want to continue taking it but at 54 I feel 84. I don't know if I can go another 3 years. I think the doctors really don't listen to these symptoms and consider the quality of life we are losing...5 years is a long time, yet I am scared if I stop I will see the cancer come back, even though there is no guarantee, I keep taking the arimidex (generic form) because I don't know what else to do. F 54 2 years
20 MG 1X D
7/7/2014
Email
 4  breast CA; mastectomy; no lymph joint pain, depression, emotional episodes, thinning hair but not loss Joint pain is very real with this drug. I had bad knees before taking arimidex, but they got so bad I had a double knee replacement. Now, they are not much better than they were. Mostly, stiffness, some pain. I think arimidex enhanced the arthritis pain --- doc said my knees "were shot" after he did surgery, but I am convinced that arimidex has a lot to do with it. Hope it is reversible when I stop taking this drug, if I ever stop. Don't rush into joint replacement if you are on this drug. Wait and see what it's like when you stop taking arimidex. F 69 3 years
1 mg 1X D
6/15/2014

 1  Stage 1A Breast Cancer FINE - for first 24 months, now in HELL with back, hip and lower extremities pain that is making it hard to walk and function Had been feeling end first year into second year ... back pain stiffness when rising and have pulled my right hip out more often when lifting heavy things ... something I first did 20 years ago but only occurred 5 times in past year. Lately happened alot which I attributed to age. Also leg stiffness with need to stretch legs out straight when lying down and harder to cross leg when tying shoe. Two weeks ago lifted heavy suitcase and hurt hip but was going on vacation, Came back and bad leg pains making it hard to sleep including Charley horse left calf, Taking Motrin, helps bit but not enough. Seeing my oncologist this week to discus. Dreading going to work. Just recently rejoined gym and worked out alot and loved it. Thought it was helping but then again no bad symptoms were happening, just little stiffness. Have not been to gym in 2 weeks since bad reaction. F 61 28 months
1 MG 1X D
6/15/2014
Email
 4  Breast Cancer Stage 3A Hot flashes that went away in the first few months, depression, fatigue, osteopenia, high cholesterol levels, and the worst was joint and muscle pain. I tried exercise and it really helped the joint and muscle pain. I go to the gym 4 times a week. 45 minutes on weight training and 30 min on weight bearing cardio. This takes a lot of time but I no longer have the joint/muscle aches except for the top of my feet. I haven't figured out how to work those muscles. I would like to quit the gym and Arimidex but I know it is helping. Exercise has also helped to greatly lower my cholesterol levels and to slightly reverse my osteopenia. After a double mastectomy, chemo , and radiation, I am not giving up now even though I still hate going to the gym. F 57 3 years
1 mg 1X D
6/10/2014

 1  2013 double mastectomy EP Everything mentioned by other miserable ladies. And quality of life plummeted. Noone tells me what happens after the 5 year stint. Will estrogen disappear from my body? Forever? But for sure I shall not get to the 5 year recommendations. F 66 6 months
1 x daily
6/8/2014
Email
 2  stage 1 bc, post mastectomy & chemo Joint pain and stiffness (hands, feet, knees, neck), fatigue, vaginal dryness, hot flashes, reduction in sex drive, occasional insomnia, shoulder stiffness and decreased range of motion I experienced achiness and hot flashes when first taking Arimidex for a few weeks, then it subsided. Have had vaginal dryness throughout. At 6 months, developed calcific tendinitis in left shoulder (same side of mastectomy) which acupuncture helped. Acupuncture also helps the AI symptoms. Then around 7 months of taking it, I have extreme fatigue and moderate joint pain and stiffness, and depression because of all of the above. Am afraid of the cancer returning so will probably continue but will definitely ask my oncologist about trying another AI. But this is full of trepidation also...the devil you know as opposed to the devil you don't. F 54 7 months
1 1X D
6/3/2014

 1  Breast cancer Extreme pain in hands and tendons, male pattern baldness. My hair grew back thick after chemo. This pill totally did me in. After months on it they switched me to tamoxifen . My hair just keeps getting thinner and thinner. Why? Rogaine doesnt even help. F 62 6 days
3g
6/1/2014
Email
 3  Breast cancer Fatigue, fatigue, fatigue, it's a severe fatigue F 38 4 years
5/30/2014

 3  stage 3a lobular bc;3/17 nodes pos Horrible joint and muscle pain that destroys my quality of life and makes it difficult to sleep. Fatigue, dizziness, hot flashes, and weakness also, but I can more easily live with the last symptoms. I feel like an OLD woman. Pre-bc, I rode my horse in hunter/jumper competitions and felt younger and more fit than others my age. Now, I can't even clean my own house, much less think of getting on a horse. Studies show that those who develop new joint pain or new hot flashes when started on Arimidex are less likely to have a breast cancer recurrence than those who do not have these symptoms (new hot flashes-16% reduction; new joint pain- 40% reduction). This makes me more determined to continue on this drug. Stage 3 bc has a high rate of recurrence and I want to do all I can to beat this disease so that I can be around long enough for my grandchildren to remember me. Take naproxen, Instaflex, 3000 IU vitamin D3, and tylenol for the pain, These, plus daily exercise, seem the reduce my pain to tolerable levels. F 60 14 months
1 mg 1X D
4/27/2014

 3  Stage One Breast Cancer Horrible joint pain in hands and hips, muscle pain, swollen ankles, dry eyes. I have been living with the pain for three years and downing the Motrin to keep the pain under control. My eye doctor just diagnosed me with dry eyes and said it is probably from the Anastrozole. I have also started having swollen ankles and feet with no other changes in medication or disease. Counting down to 60 months...only 23 more to go! F 67 3 years
1MG 1X D
4/24/2014
Email
 4  Stage1 breast cancer This is the medication from hell. Every side effect possible. But I will keep taking it cause don't want cancer to come back F 59 2 years
1mg
4/22/2014
Email
 3  breast cancer I had very painfully joints and head ace and was told its not do to the tablets .it was wear in other words it was my age F 72 5 years
4/21/2014

 1  prevent breast cancer recurrence suicidal thoughts, joint pain (hands and feet), hot flashes F 50 2 months
1 mg 1X D
4/17/2014
Email
 4  Breast Cancer Insomnia...I can't get to sleep and I wake up early, blurred vision, I think this drug is making me itch everywhere! Daily headaches, hot flashes, joint pain. I know the insomnia is from the medication because it started as soon as I went on the meds. I am really tired from lack of sleep. I got on this drug when Aromasin suddenly started giving me migraines everyday. The itching is really getting to me. I have 7 more months on it and that will be 5 years of this cancer treatment for Breast Cancer. F 53 5 months
1 mg 1X D
4/9/2014
Email
 1  grade one stage one breast cancer joint pain, depression, tiredness,strange odour to skin, on sex drive, foggy thinking, memory terrible I have taken this medication for 4 .5 years, side effects really bad but kept going, have come off it 6 months early cannot tolerate it any longer, quality of ;life 0000 been off it for 1 week, feel so much better more energy, happier, still a little achey at this point F 54 4.5 days
1mg 1X D
3/22/2014
Email
 5  Stage1 invasive ca;mastectomy x 2 Significant insomnia, hot flashes, increase of joint pain, arthritis, & back pain. Total vaginal dryness, which make any sexual activity very painful. OTC lubricants do not relieve this at all... I plan to continue the Arimidex for the recommended 5 years. I did have a "micro Mets" in the 1st lymph node. The next 2 were negative. Along with my PCP & my oncologist, we are managing symptoms, with the exception of the vaginal dryness. No one seems to care that a woman may want to remain sexually active after a mastectomy! If I could give up 1 side effect, it would be the vaginal changes secondary to the elimination of the estrogen in my body! F 63 6 months
1 mg 1X D
3/8/2014
Email
 1  Grade 4 malignant breast can ef Depression, joint pain, 2 stone weight gain, anxiety attacks, hot flushes, fatigue, insomnia, lethargy. Has changed me from a fit, active, 54 year old to an old woman. Keep being told its worth it to stop cancer spreading. F 54 4 days
1 mg
3/7/2014

 3  stage 1 BC First 1-1 1/2 years suffered total body joint and bone pain. Fatigue, loss of interest in my crafts and other daily joys. Extremely emotional. 20# weight gain and moderate hair loss. Now managed to lose 10# and still emotional, pain no more! Will continue the full 60 months. F 75 46 months
1 MG 1X D
3/2/2014
Email
 2  Stage 1 breast cancer Severe all over pain. I feel like I'm 90 yrs old. But I have to keep taking it cause I don't want cancer to come back. I've got every side effect and more. F 58 2 years
1 mg
3/2/2014
Email
 2  Stage 1 breast cancer Severe all over pain. I feel like I'm 90 yrs old. But I have to keep taking it cause I don't want cancer to come back. I've got every side effect and more. F 58 2 years
1 mg
3/2/2014
Email
 3  Bc Every side effect known I have had and just decided to stop on jan. 30 of 2014. Was supposed to take it for 60 months but stopped one month ahead of schedule due to being sick and tired of being sick and tired. After 2 weeks my blurred vision is gone and I feel a slight bit more alert and my memory has improved. I had stage 1 BC ,lumpectomy and radiation. Luckily no chemo but now I read that this drug is a chemo drug and I feel like I'm poisoning my body. Clear margins and lymph nodes. Doctor not happy that I quit one month early but I don't think a month will make any difference. After all he's not the one who has had to take it. I had bad side effects the entire time and what made me quit was I noticed a line was forming across my teeth at the gum line. It is about 1/4 the way down from the gum line and is darker than the rest of my teeth . Called onc . And he said he never heard of that, but I think it is a buildup of the med. in my body. Anybody else notice this . If you want to F 72 59 months
1X D
2/20/2014
Email
 2  Breast Cancer Stage 1 Joint pain and stiffness, especially in the knees and hips. I found it difficult to walk at times. Almost impossible to keep from gaining weight, compounded by an under-active thyroid. Had trouble sleeping. Got to a point where I considered stopping taking the tablets as the quality of life was very poor. However, I heard that acupuncture might help. 3 sessions and I'm a new person!!! Now I can move so freely without the need for any painkillers or other drugs. Life looks bright once again. F 65 14 months
1mg 1X D
2/11/2014
Email
 4   Cancer free. But just had double knee replacement surgery because even before the cancer my knees were in bad shape. Doc doubts that arimidex affected my bones, but the joint pain could have been enhanced by arimidex. I'll never know. My body has been through the wringer with anethesia, pain killers, and arimidex continuing. Fatigue is major symptom with depression right up there. Of course I feel like crap, but if the arimidex keeps me cancer free, it will have been worth it. My doc has added calcium and Vit D 2000 iu per day since being put on arimidex. I make sure I take extra protein, Vit C, E, A and a multi vit with iron. I also have liver issues prior to cancer so adding things like iron and Vit E have to be managed by the doc. F 68 2.5 years
1 mg 1X D
2/8/2014

 2  Post-treatment for breast cancer. Severe joint pain, bad enough in my left foot that walking has become difficult. Severe depression. Emotional lability. Insomnia. Fatigue. I have to stop this medication; it's destroying my quality of life and my ability to do my job. F 54 2 months
1 mg 1X D
1/28/2014

 4  Breast Cancer stage 2, - lymph node sharp pain in upper arms, extreme fatigue, hair loss, pain bottom of feet HAD BILATERAL MASECTOMIES WITH IMMEDIATE RECONSTRUCTION X 3 MONTHS. F 55 4 months
1X D
1/15/2014
Email
 1  breast cancer I have been diagnosed with Raynaud Disease in fingers of both hands and also suffer with clinical depression. Has anyone else had these side effects? F 60 5 years
1 mg 1X D
12/29/2013
Email
 1  Breast Cancer Thigh and arm gets numb. Dizziness. Hot flashes. Fatigue. Leg pain. Breast and arm pain. M 58
10 mg 1X D
12/25/2013

 5  breast cancer I have not experienced any side effects F 60 1 years
1mg
12/14/2013

 2  Breast cancer Thin hair, trigger fingers, hyperthyroid, big time discomfort in joints, Dr said will be on this 5 yrs. F 20 months
1 mg 1X D
12/12/2013
Email
 1  stage 1 grade 1 estrogen + bc Trigger finger, joint pain in fingers now wrist - mental function not as lucid Think most drugs are bad but this one has such adverse side effects I wonder if I ever will be the same again. Sad case if the drug/medical industry is hiding from us a simple solution. F 59 10 months
1X D
12/6/2013

 2  Breast Cancer joint stiffness, trouble sleeping, tiredness, urinary tract infection, no sex drive, moodiness Not happy taking this medication. This medication has changed my quality of life. I am considering stopping this medication due to all the side affects. F 58 10 months
1 1X D
11/27/2013
Email
 1  Stage 4 breast cancer Dry cough which does not go away. F 62 1 months
1xday
11/23/2013

 1  Breast cancer Metallic taste, nausea, vomiting, head aches, muscle pains, not sleeping. I am a carer, cannot afford to feel like this Not told this is a CHEMO drug, this is wrong Really got to think is it worth it, will look at natural therapy rather than this poison F 58 4 days
1mg 1X D
11/21/2013
Email
 3  stage 3 bc; lumpectomy; nodes neg. all over body aches - especially in knees, back and neck. Very tired - need nap every afternoon. Brief passing periods of nausea and/or dizziness. Have to take this for at least 5 years - cannot imagine continuing to feel like this but don't have a choice. Don't want bc to come back. F 60 6 months
1 MG 1X D
10/18/2013
Email
 4  breast cancer stage 1 post op No side effects at all and I'm 60 yrs. old. After reading so many bad reviews, I had decided that if I were going to suffer bad side effects, I would rather take my chances on getting cancer again, especially since I had the bilateral mastectomy and the cancer did not spread to the lymph nodes. I figured my chances are pretty good for a non-recurrence of this cancer. Fortunately, at 47 days of taking Arimidex, I have not suffered any side effects. I was dreading the hot flashes as they were unbearable when I was going through menopause. So far, so good with Arimidex! F 60 47 days
1mg 1X D
9/27/2013
Email
 5  Breast cancer Moderate hot flashes and night sweats. As of 9/15/13 am officially off "the pill". 5 yr mark this past June. So far so good on no side effects from coming off Arimidex. Not finding too much on Internet on coming off the pill. F 58 5 years
1 MG
9/20/2013
Email
 2  Breast cancer Severe peripheral edema and severe joint pain F 50 7 weeks
10 1X D
8/22/2013

 4  Breast cancer Not really had any side effects. F 63 8 weeks
1 1X D
8/10/2013

 2  Stage 2b IDC, gr 3, 8/10 nodes pos Severe joint pain, 50 lb weight gain, muscle cramps, carpal tunnel, trigger finger, TMJ, extreme insomnia and fatigue. F 52 1 years
1mg
8/4/2013

 4  Breast Cancer Stage 3 lymph nodes Hot flashes (this can be due to removal of estrogen from my body and not the drug), hard to sleep (take trazadone to counteract this) and weight gain (I finally feel better so I am eating more). I have had very little trouble with Arimidex. Everyone has a unique experience. Because mine has been good, I wanted to put it out there. Before I took it, I read the blogs and I was scared to death to even try it! But thank goodness I gave it a chance. Please do not ignore your oncologist's advice before giving something a chance. Most of what is posted will be negative. People that are happy with the drug will just take it and move forward. Please find out for yourself. F 48 8 months
30 mg 1X D
7/31/2013
Email
 4  Breast Cancer Stage 1, no nodes Night sweats. Achy all over. Feel older than I am and sometimes have a lost memory. I cry more though not depressed Gained weight and started Weight Watcher and found I could lose. Not sure this pill is good with all the side effects but can tolerate it for another 2 years. Medical team might want to re-evaluate the effectiveness and need for this pill, especially in woman who have low risk beast cancer. It is awful to take with the side effects and iffy as to what good is being done. F 66 3 months
1 mg. 1X D
7/23/2013
Email
 1  Breast Cancer Extreme fatigue, severe joint pain, trigger fingers, TMJ, cubital tunnel syndrome. Surgeries: trigger thumb release after 1 month on Arimidex. Trigger release opposite hand thumb and 2 fingers 5 months after last dose. Repeat release on 1 finger at 6 months. Cubital tunnel release at 13 months. Opposite elbow release and finger release at 18 months. Have 1 trigger finger remaining but am contemplating having all remaining fingers released (small fingers were not affected). Hands and fingers remain stiff and painful day and night and am unable to return to work yet. Have not yet addressed TMJ issues except to be diagnosed. F 52 4 months
7/8/2013
Email
 1  breast cancer blurred vision, depression, bones hurt, hot flashes, nausea, dry mouth, pan in chest.i I had stage 1 prog.,est. pos. breast cancer in my right breast. Had radiation and lymph nodes were clear. Also had a PET and no cancer seen anywhere. This is my second bout with cancer. 20 years ago had the same kind in my left breast. Started taking arimidex and feel horrible. read that it contains potassium cyanide. I am quiting this and will start taking Brevail which is a natural supplement. F 68 3 months
1mg 1X D
7/7/2013
Email
 2  2 x breast cancer huge weight gain, hot flashes, mini depressions, achy feet, pain in my hands, mild stomach pain and just in the last year Blurry vision I have been on Arimidex for 5 1/2 yrs or so, started right after my chemo was done which I took after my bilateral Mastectomy with Immediate tram-flap reconstruction that I had in Nov.of 2007. Three yrs before that, I was diagnosed 2.2 cm ER+,PR+,her2-, & had a lumpectomy.Took Tamoxifen as I wasnt menopausal.Three yrs later,I had recurrence in same breast, same tumor markings,I decided to remove both breasts as my family has BRCA2-although I was negative. At that point I was moved to Arimidex. I had some joint pain issues right away and was put on Avastin for 3 months-that was worse, so back to Arimidex until the generic was available. I'm now aware that 10 yrs is the recommended time to get full benefit from this drug. I am trying to decide if a better quality of life is worth the chance of reoccurrence. Since I had 2 nodes involved on my 2nd cancer in 2007, I was told 50% chance of it coming back,. So,should I consider , if I do not use Arimidex anymore, that would also be a 50% chance of it coming back??? not sure what to do..... F 56 5 years
5 mg 1X D
7/4/2013
Email
 5  Metastatic ER+ breast cancer Severe hot flashes, poor short-term memory and executive function, inability to concentrate, extremely dry mucous membranes, foot and hand cramps, leg pain, blurry vision. For 2 1/2 years I have had no evidence of disease so I work hard to manage side effects. F 72 5 years
5mg 1X D
6/25/2013
Email
 4  Stage 3C Interductal Breast Cancer Stiffness and difficulty flexing my feet in the morning until I loosen up. At age 48, after lumpectomy, mastectomy, removal of 44 lymphnodes, of which 32 were positive, six sessions of TAC, three weeks apart, and 25 radiation sessions, I was started on Tamoxefen. When I was determined to be post-menapausal, I switched to Arimidex. I've taken it more than five years and will likely take it the rest of my life. My cancer was aggressive and advanced. I trust my team, who continue to work together to treat and support me, and I will do what's recommended. In addition to the Arimidex, I get PET scans annually and breast MRIs every year, offset by annual mammograms. I love my life, my family, my friends, my pets, my work, my volunteering, etc.; I'll do all I can to maintain this amazing life!! F 53 5 years
1mg 1X D
6/11/2013

 5  breast cancer Hot flashes F 65 4 years
6/7/2013

 4  breast cancer - so far so good, some swelling in my knees and stiffness. I had problems with my knees before taking Arimidex. . F 68 6 months
1mg 1X D
6/7/2013
Email
 1  breast cancer joint pains, dry skin problems face very painful cdnt moisturise or wash with water, stomach problems bloating back pain headaches , weight gain , exhausted all the time 55 7 weeks
1mg
6/6/2013

 1  Breast cancer Hot flashes, bone pain all over body, weight gain , stomach problems F 61 5 months
1
5/28/2013

 1  Diagnosed with breast cancer Bone/muscle pain, very poor memory, EXTREME FATIGUE, digestive/gastro issues, depression, drastic mood change Actually, I took Anastrozole (generic for Arimidex for the 14 months...took only one Brand Arimidex with the same side effects. I never related my symptoms to the "little white pill"because I had experienced so many devastating experiences within the 14 mos. period, e.g., death of 2 love-ones, the dx. of br. ca. for me AND my best friend who also has Parkinson's Disease for whom I am her care partner; surgery for both of us; radiation treatments (37); 2 horrific auto accidents; 3 agonizing months of trying to help my pwp who experienced horrendous cognitive problems due to the change of manufacturer in 2 of her medications; a fall for my pwp resulting in a concussion and a subdural hematoma...and my age...I thought that was causing me all the physical and mental issues. I am 85. I have just written a letter to my surgeon (I do not have an oncologist...was told I didn't need one...just right-breast lumpectomy, no node invasion, followed by 37 weeks of radiation. I was told NOTHING about the side effects of this drug, and I didn't have the good sense to ask...was just happy the cancer seemed to have been "caught"in its very early stages. I happened to mention to my pwp that I would like to find a site where I could read the reviews of others who were taking this drug...she found it...Ask A Patient...this site has about convinced me that I need/want to stop taking this drug. In fact, I did a "process of elimination"test...stopped taking the drug F 85 14 months
1 mg 1X D
5/21/2013
Email
 2  Breast Cancer Stage 1 No lymph Jt pain, memory loss, jittery, anxious, mood swings, tachycardia, EMG abnormalities, abdominal pain Like others my doctor would discount my symptoms and tell me to continue on the drug. My episode of fainting recently which led doctors to discover a heart rhythm abnormality caused me to do some more research on side effects of Arimidex...prove it's the drug , disprove it, I don't want to not be here and find out it was the drug, will continue with my Vitalzym XE supplements and exercise to return to my normal life again. F 58 3.5 years
1 mg 1X D
5/20/2013
Email
 1  Small Stage 1 Breast Cancer These things have helped me: 250 mg. of Resveratrol twice a day; for memory and clear thinking. Boswellia and Devil's claw 2-3 times a day. Natural anti-inflammatories. They help tremendously. Also, I am starting Stinging Nettle. I work out a lot; but what helps the most is walking in a pool, or a water aerobics class, or swimming, of course. It loosens your joints and just makes you feel better. I want to also give you a diet strategy that works for me--I am 5' 5 3/4" and weight 129. I am not naturally thin. But, I am a successful dieter. The trick is to eat earlier. That's it! It doesn't matter what you eat in the morning and up to about 3:30 in the afternoon. So you have your main meal at about 2:30-3:30. You eat a good meal and you can even have dessert. No diet foods. At about 8:30 or 9 you might start to feel a tinge of hunger. So, you eat something really light, but enough to hold you until the next morning, when you can eat whatever you want. If you still feel a bit hungry at 10 or 11, then have a tiny no-carb snack, like a piece of cheese and celery. If you do this, you are guaranteed a 1 lb weight loss daily. The problem is that this is when most people lose their self restraint. With this method, you just tell yourself that you'll go easy at night and have whatever you want for breakfast. This works! I just want to give hope to you girls who have gained weight and are feeling hopeless. This is how I do it. Good luck, my friends F 65 6 months
1 mg 1X D
5/16/2013
Email
 2  BC,stage 3 Bilateral Mastectomy Hot flashes, vertigo & dizziness, severe bone, joint & muscle pain, blurred vision, thinning of hair, cramping in arch of feet, brain fog, memory & concentration issue, insomnia, locking joints in thumbs (trigger finger) thyroid has ceased to function (hypothyroidism) Started out well with only minor side effect 3 months in. At 13 months in I can barely move. At the current time I cannot say if the side effects of this drug are worth the risk of recurrence as it has become a quality vs quantity issue. I am not sure if I will manage to stay on this drug another 4 years but for now I'm still trying. F 59 13 months
1 mg 1X D
5/15/2013
Email
 1  B/C prevention re-occurance I weighed 130 after a dbl mastectomy, stage 3, triple positive. Had chemo (ACT, herceptin), then had surgery which gave me clear borders and no spread to 13 removed lymph nodes. I was clean. And then last July I was put on 1 mg of Arimidex. After 2 weeks I cut the pills in half and only took 1/2 mg. I could barely walk after two weeks on the full dose. I didn't not tell oncologist. She would have switched me to another AI which she told me in advance "they're all the same, just different brands". I reached the point two weeks ago where I couldn't walk up or down stairs. If I sat, I couldn't stand up. My muscles were locked and I could no longer exercise. The symptoms got progressively worse as I kept trying to exercise more, yoga, stretching, lots of minerals, organic foods, no sugar. No diet change or any amount of exercise could improve my symptoms. And then 3 days I started crying and couldn't stop. I wanted to die. I could barely walk. If I got o I feel that estrogen receptive breast cancer might have more to do with environmental estrogen which attaches to receptor sites than the body's own natural estrogen. Arimidex does not prevent environmental estrogen from attaching to receptor sites. All this drug does is cause problems for older women....How can anyone heal or survive for the next 20 or more years at the age of 70 if they can't walk? Just want to die. I have yet to tell my oncologist I'm done with this drug. I know she will try and push another brand. Not taking it. Oh, and my Blood pressure kept rising. I was getting broken blood vessels in my legs....was told my heart muscle was "stiff". One way or another the drug companies will kill us all even though we might have survived breast cancer. I know this sounds insane....but I'd rather spend another year bald and on chemo than to continue with this drug. It's poison and the scariest thing that has ever happened to me. Having breast cancer was nothing compared to this drug! F 70 10 months
1/2 mg 1X D
5/5/2013
Email
 1  Dbl Mastectomy - Chemo Joint Pain From Toes To Neck - Sprained Ankle - 2nd Wk I'm on Cane & Boot - Blurred Vision - Viral Infection (Oral & Vaginal) Digestive Issues, Weight Gain, Insomnia, Emotional Upheaval - All Within 1st Week - Floated Thru Chemo Comparatively Against Arimidex - Researched & Met W/Onc & Physician Today - Gonna Take My Chances - Last Pill Today - Husband Housebound Impossible Situation If We Both End Up Immobilized - Im A Retired RN/Tumor Registrar - Statistics Are Just That ..."Numbers" We're Each An Entity Truly Distinct Individuals - Research Ask & Look For What's Good For You Not What's ""Given" As What's Right - Stay Strong & Surround Yourself With The Power From Within F 65 2 weeks
1XDay
5/3/2013

 1  Bc, stage 2, ductal, estrogen posit Felt fine after the chemo and radiation and was getting my strength and energy back. Started with letrozole (Femara) one month after the radiation was over and experienced excruciating pain under the right rib cage (liver) to the point where they did an MRI. Stopped this and was put on Arimidex. Oncologist said that some women tolerated the 'better'! Within two weeks the symptoms started. I had pain all throughout my spine,especially neck and lumbar area. knee pain, shoulder pains, developed trigger fingers on both hands, lost the grip in left hand, pain in finger joints, pain in ankles, painful right TMJ, total brain fog, no energy, itchy scalp and skin, skin looks like a dried prune, tingling and buzzing sensations from the tailbone down the legs.Eyes are dry, itchy and vision has gotten worse. Still need sleeping pills to get a decent nights rest. Felt like I was turning into a cripple overnight! Stopped the arimidex after 2 months. It's been almost two months now without it, but the joint problems continued to get worse and the trigger fingers are now painful when they lock up. Don't know how long it will take or if the damage done by this pill will actually resolve in time. Now I'm using alternative medicine to get my body back on track towards helping to resolve the damage done. Taking natural aromatse inhibitors, habanero pepper and garlic sandwiches once a day, and other supplements. As a side note, I had myself tested with kinisiology muscle testing before I even put the drug in my body and I had no strength at all in my arm, this was a clear indication that this drug was NOT what my body wanted or needed, but I took it out of 'fear'. Now that fear is gone, I now chose to live a quality life rather than be ravished by the total breakdown of my body due to this pill! So glad to have found this site to be able to share. F 64 2 months
1 mg 1X D
4/23/2013

 1  BC, invasive dcis, stage 2 No sex drive painful intercourse, bottoms of feet hurt could hardly walk, brain foggy, blurry vision, hair loss, fragile no energy, developing osteopenia, liver enzymes up, depression. Why do Doctors not test estrogen levels to see where they are at? After researching low estrogen levels and damage it was doing to my body I decided to quit taking medication. Research low estrogen and damage it does to your brain and heart plus other damage it is doing. Oncologist told me, Arimidex isn't a chemo pill that I didn't need chemo only radiation for my treatment. My Gyn informed me if I am taking Arimidex I am taking Chemo for 5 years. (Look up Chemo Pills and Arimidex is listed.) My quality of life was gone taking this medication and after being off of it for 6 weeks now I am starting to feel better. My husband said he can tell a difference in my personality and I am more like my old self again. I will risk cancer again rather than the side effects of this medicine. I can't even imagine what my health would be like if I continued to take this medication for 5 years. With all of the money being given for Breast Cancer and Research there has to be something better on the market. F 58 15 months
1 MG 1X D
4/17/2013

BACK TO TOP
Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21