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Drug Ratings for ARIMIDEX

Average Rating: 2.6 (1214 Ratings)

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
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    New! Reviews Summary for ARIMIDEX  | Top 10 Adverse Effects (reported to FDA)

RATING  REASONSIDE EFFECTS FOR ARIMIDEXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
sort down sort up F  M  
 4  Stage1 breast cancer This is the medication from hell. Every side effect possible. But I will keep taking it cause don't want cancer to come back F 59 2 years
1mg
4/22/2014
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 3  breast cancer I had very painfully joints and head ace and was told its not do to the tablets .it was wear in other words it was my age F 72 5 years
4/21/2014

 1  prevent breast cancer recurrence suicidal thoughts, joint pain (hands and feet), hot flashes F 50 2 months
1 mg 1X D
4/17/2014
Email
 4  Breast Cancer Insomnia...I can't get to sleep and I wake up early, blurred vision, I think this drug is making me itch everywhere! Daily headaches, hot flashes, joint pain. I know the insomnia is from the medication because it started as soon as I went on the meds. I am really tired from lack of sleep. I got on this drug when Aromasin suddenly started giving me migraines everyday. The itching is really getting to me. I have 7 more months on it and that will be 5 years of this cancer treatment for Breast Cancer. F 53 5 months
1 mg 1X D
4/9/2014
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 1  grade one stage one breast cancer joint pain, depression, tiredness,strange odour to skin, on sex drive, foggy thinking, memory terrible I have taken this medication for 4 .5 years, side effects really bad but kept going, have come off it 6 months early cannot tolerate it any longer, quality of ;life 0000 been off it for 1 week, feel so much better more energy, happier, still a little achey at this point F 54 4.5 days
1mg 1X D
3/22/2014
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 5  Stage1 invasive ca;mastectomy x 2 Significant insomnia, hot flashes, increase of joint pain, arthritis, & back pain. Total vaginal dryness, which make any sexual activity very painful. OTC lubricants do not relieve this at all... I plan to continue the Arimidex for the recommended 5 years. I did have a "micro Mets" in the 1st lymph node. The next 2 were negative. Along with my PCP & my oncologist, we are managing symptoms, with the exception of the vaginal dryness. No one seems to care that a woman may want to remain sexually active after a mastectomy! If I could give up 1 side effect, it would be the vaginal changes secondary to the elimination of the estrogen in my body! F 63 6 months
1 mg 1X D
3/8/2014
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 1  Grade 4 malignant breast can ef Depression, joint pain, 2 stone weight gain, anxiety attacks, hot flushes, fatigue, insomnia, lethargy. Has changed me from a fit, active, 54 year old to an old woman. Keep being told its worth it to stop cancer spreading. F 54 4 days
1 mg
3/7/2014

 3  stage 1 BC First 1-1 1/2 years suffered total body joint and bone pain. Fatigue, loss of interest in my crafts and other daily joys. Extremely emotional. 20# weight gain and moderate hair loss. Now managed to lose 10# and still emotional, pain no more! Will continue the full 60 months. F 75 46 months
1 MG 1X D
3/2/2014
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 2  Stage 1 breast cancer Severe all over pain. I feel like I'm 90 yrs old. But I have to keep taking it cause I don't want cancer to come back. I've got every side effect and more. F 58 2 years
1 mg
3/2/2014
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 2  Stage 1 breast cancer Severe all over pain. I feel like I'm 90 yrs old. But I have to keep taking it cause I don't want cancer to come back. I've got every side effect and more. F 58 2 years
1 mg
3/2/2014
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 3  Bc Every side effect known I have had and just decided to stop on jan. 30 of 2014. Was supposed to take it for 60 months but stopped one month ahead of schedule due to being sick and tired of being sick and tired. After 2 weeks my blurred vision is gone and I feel a slight bit more alert and my memory has improved. I had stage 1 BC ,lumpectomy and radiation. Luckily no chemo but now I read that this drug is a chemo drug and I feel like I'm poisoning my body. Clear margins and lymph nodes. Doctor not happy that I quit one month early but I don't think a month will make any difference. After all he's not the one who has had to take it. I had bad side effects the entire time and what made me quit was I noticed a line was forming across my teeth at the gum line. It is about 1/4 the way down from the gum line and is darker than the rest of my teeth . Called onc . And he said he never heard of that, but I think it is a buildup of the med. in my body. Anybody else notice this . If you want to F 72 59 months
1X D
2/20/2014
Email
 2  Breast Cancer Stage 1 Joint pain and stiffness, especially in the knees and hips. I found it difficult to walk at times. Almost impossible to keep from gaining weight, compounded by an under-active thyroid. Had trouble sleeping. Got to a point where I considered stopping taking the tablets as the quality of life was very poor. However, I heard that acupuncture might help. 3 sessions and I'm a new person!!! Now I can move so freely without the need for any painkillers or other drugs. Life looks bright once again. F 65 14 months
1mg 1X D
2/11/2014
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 4   Cancer free. But just had double knee replacement surgery because even before the cancer my knees were in bad shape. Doc doubts that arimidex affected my bones, but the joint pain could have been enhanced by arimidex. I'll never know. My body has been through the wringer with anethesia, pain killers, and arimidex continuing. Fatigue is major symptom with depression right up there. Of course I feel like crap, but if the arimidex keeps me cancer free, it will have been worth it. My doc has added calcium and Vit D 2000 iu per day since being put on arimidex. I make sure I take extra protein, Vit C, E, A and a multi vit with iron. I also have liver issues prior to cancer so adding things like iron and Vit E have to be managed by the doc. F 68 2.5 years
1 mg 1X D
2/8/2014

 2  Post-treatment for breast cancer. Severe joint pain, bad enough in my left foot that walking has become difficult. Severe depression. Emotional lability. Insomnia. Fatigue. I have to stop this medication; it's destroying my quality of life and my ability to do my job. F 54 2 months
1 mg 1X D
1/28/2014

 4  Breast Cancer stage 2, - lymph node sharp pain in upper arms, extreme fatigue, hair loss, pain bottom of feet HAD BILATERAL MASECTOMIES WITH IMMEDIATE RECONSTRUCTION X 3 MONTHS. F 55 4 months
1X D
1/15/2014
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 1  breast cancer I have been diagnosed with Raynaud Disease in fingers of both hands and also suffer with clinical depression. Has anyone else had these side effects? F 60 5 years
1 mg 1X D
12/29/2013
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 1  Breast Cancer Thigh and arm gets numb. Dizziness. Hot flashes. Fatigue. Leg pain. Breast and arm pain. M 58
10 mg 1X D
12/25/2013

 5  breast cancer I have not experienced any side effects F 60 1 years
1mg
12/14/2013

 2  Breast cancer Thin hair, trigger fingers, hyperthyroid, big time discomfort in joints, Dr said will be on this 5 yrs. F 20 months
1 mg 1X D
12/12/2013
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 1  stage 1 grade 1 estrogen + bc Trigger finger, joint pain in fingers now wrist - mental function not as lucid Think most drugs are bad but this one has such adverse side effects I wonder if I ever will be the same again. Sad case if the drug/medical industry is hiding from us a simple solution. F 59 10 months
1X D
12/6/2013

 2  Breast Cancer joint stiffness, trouble sleeping, tiredness, urinary tract infection, no sex drive, moodiness Not happy taking this medication. This medication has changed my quality of life. I am considering stopping this medication due to all the side affects. F 58 10 months
1 1X D
11/27/2013
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 1  Stage 4 breast cancer Dry cough which does not go away. F 62 1 months
1xday
11/23/2013

 1  Breast cancer Metallic taste, nausea, vomiting, head aches, muscle pains, not sleeping. I am a carer, cannot afford to feel like this Not told this is a CHEMO drug, this is wrong Really got to think is it worth it, will look at natural therapy rather than this poison F 58 4 days
1mg 1X D
11/21/2013
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 3  stage 3 bc; lumpectomy; nodes neg. all over body aches - especially in knees, back and neck. Very tired - need nap every afternoon. Brief passing periods of nausea and/or dizziness. Have to take this for at least 5 years - cannot imagine continuing to feel like this but don't have a choice. Don't want bc to come back. F 60 6 months
1 MG 1X D
10/18/2013
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 4  breast cancer stage 1 post op No side effects at all and I'm 60 yrs. old. After reading so many bad reviews, I had decided that if I were going to suffer bad side effects, I would rather take my chances on getting cancer again, especially since I had the bilateral mastectomy and the cancer did not spread to the lymph nodes. I figured my chances are pretty good for a non-recurrence of this cancer. Fortunately, at 47 days of taking Arimidex, I have not suffered any side effects. I was dreading the hot flashes as they were unbearable when I was going through menopause. So far, so good with Arimidex! F 60 47 days
1mg 1X D
9/27/2013
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 5  Breast cancer Moderate hot flashes and night sweats. As of 9/15/13 am officially off "the pill". 5 yr mark this past June. So far so good on no side effects from coming off Arimidex. Not finding too much on Internet on coming off the pill. F 58 5 years
1 MG
9/20/2013
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 2  Breast cancer Severe peripheral edema and severe joint pain F 50 7 weeks
10 1X D
8/22/2013

 4  Breast cancer Not really had any side effects. F 63 8 weeks
1 1X D
8/10/2013

 2  Stage 2b IDC, gr 3, 8/10 nodes pos Severe joint pain, 50 lb weight gain, muscle cramps, carpal tunnel, trigger finger, TMJ, extreme insomnia and fatigue. F 52 1 years
1mg
8/4/2013

 4  Breast Cancer Stage 3 lymph nodes Hot flashes (this can be due to removal of estrogen from my body and not the drug), hard to sleep (take trazadone to counteract this) and weight gain (I finally feel better so I am eating more). I have had very little trouble with Arimidex. Everyone has a unique experience. Because mine has been good, I wanted to put it out there. Before I took it, I read the blogs and I was scared to death to even try it! But thank goodness I gave it a chance. Please do not ignore your oncologist's advice before giving something a chance. Most of what is posted will be negative. People that are happy with the drug will just take it and move forward. Please find out for yourself. F 48 8 months
30 mg 1X D
7/31/2013
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 4  Breast Cancer Stage 1, no nodes Night sweats. Achy all over. Feel older than I am and sometimes have a lost memory. I cry more though not depressed Gained weight and started Weight Watcher and found I could lose. Not sure this pill is good with all the side effects but can tolerate it for another 2 years. Medical team might want to re-evaluate the effectiveness and need for this pill, especially in woman who have low risk beast cancer. It is awful to take with the side effects and iffy as to what good is being done. F 66 3 months
1 mg. 1X D
7/23/2013
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 1  Breast Cancer Extreme fatigue, severe joint pain, trigger fingers, TMJ, cubital tunnel syndrome. Surgeries: trigger thumb release after 1 month on Arimidex. Trigger release opposite hand thumb and 2 fingers 5 months after last dose. Repeat release on 1 finger at 6 months. Cubital tunnel release at 13 months. Opposite elbow release and finger release at 18 months. Have 1 trigger finger remaining but am contemplating having all remaining fingers released (small fingers were not affected). Hands and fingers remain stiff and painful day and night and am unable to return to work yet. Have not yet addressed TMJ issues except to be diagnosed. F 52 4 months
7/8/2013
Email
 1  breast cancer blurred vision, depression, bones hurt, hot flashes, nausea, dry mouth, pan in chest.i I had stage 1 prog.,est. pos. breast cancer in my right breast. Had radiation and lymph nodes were clear. Also had a PET and no cancer seen anywhere. This is my second bout with cancer. 20 years ago had the same kind in my left breast. Started taking arimidex and feel horrible. read that it contains potassium cyanide. I am quiting this and will start taking Brevail which is a natural supplement. F 68 3 months
1mg 1X D
7/7/2013
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 2  2 x breast cancer huge weight gain, hot flashes, mini depressions, achy feet, pain in my hands, mild stomach pain and just in the last year Blurry vision I have been on Arimidex for 5 1/2 yrs or so, started right after my chemo was done which I took after my bilateral Mastectomy with Immediate tram-flap reconstruction that I had in Nov.of 2007. Three yrs before that, I was diagnosed 2.2 cm ER+,PR+,her2-, & had a lumpectomy.Took Tamoxifen as I wasnt menopausal.Three yrs later,I had recurrence in same breast, same tumor markings,I decided to remove both breasts as my family has BRCA2-although I was negative. At that point I was moved to Arimidex. I had some joint pain issues right away and was put on Avastin for 3 months-that was worse, so back to Arimidex until the generic was available. I'm now aware that 10 yrs is the recommended time to get full benefit from this drug. I am trying to decide if a better quality of life is worth the chance of reoccurrence. Since I had 2 nodes involved on my 2nd cancer in 2007, I was told 50% chance of it coming back,. So,should I consider , if I do not use Arimidex anymore, that would also be a 50% chance of it coming back??? not sure what to do..... F 56 5 years
5 mg 1X D
7/4/2013
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 5  Metastatic ER+ breast cancer Severe hot flashes, poor short-term memory and executive function, inability to concentrate, extremely dry mucous membranes, foot and hand cramps, leg pain, blurry vision. For 2 1/2 years I have had no evidence of disease so I work hard to manage side effects. F 72 5 years
5mg 1X D
6/25/2013
Email
 4  Stage 3C Interductal Breast Cancer Stiffness and difficulty flexing my feet in the morning until I loosen up. At age 48, after lumpectomy, mastectomy, removal of 44 lymphnodes, of which 32 were positive, six sessions of TAC, three weeks apart, and 25 radiation sessions, I was started on Tamoxefen. When I was determined to be post-menapausal, I switched to Arimidex. I've taken it more than five years and will likely take it the rest of my life. My cancer was aggressive and advanced. I trust my team, who continue to work together to treat and support me, and I will do what's recommended. In addition to the Arimidex, I get PET scans annually and breast MRIs every year, offset by annual mammograms. I love my life, my family, my friends, my pets, my work, my volunteering, etc.; I'll do all I can to maintain this amazing life!! F 53 5 years
1mg 1X D
6/11/2013

 5  breast cancer Hot flashes F 65 4 years
6/7/2013

 4  breast cancer - so far so good, some swelling in my knees and stiffness. I had problems with my knees before taking Arimidex. . F 68 6 months
1mg 1X D
6/7/2013
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 1  breast cancer joint pains, dry skin problems face very painful cdnt moisturise or wash with water, stomach problems bloating back pain headaches , weight gain , exhausted all the time 55 7 weeks
1mg
6/6/2013

 1  Breast cancer Hot flashes, bone pain all over body, weight gain , stomach problems F 61 5 months
1
5/28/2013

 1  Diagnosed with breast cancer Bone/muscle pain, very poor memory, EXTREME FATIGUE, digestive/gastro issues, depression, drastic mood change Actually, I took Anastrozole (generic for Arimidex for the 14 months...took only one Brand Arimidex with the same side effects. I never related my symptoms to the "little white pill"because I had experienced so many devastating experiences within the 14 mos. period, e.g., death of 2 love-ones, the dx. of br. ca. for me AND my best friend who also has Parkinson's Disease for whom I am her care partner; surgery for both of us; radiation treatments (37); 2 horrific auto accidents; 3 agonizing months of trying to help my pwp who experienced horrendous cognitive problems due to the change of manufacturer in 2 of her medications; a fall for my pwp resulting in a concussion and a subdural hematoma...and my age...I thought that was causing me all the physical and mental issues. I am 85. I have just written a letter to my surgeon (I do not have an oncologist...was told I didn't need one...just right-breast lumpectomy, no node invasion, followed by 37 weeks of radiation. I was told NOTHING about the side effects of this drug, and I didn't have the good sense to ask...was just happy the cancer seemed to have been "caught"in its very early stages. I happened to mention to my pwp that I would like to find a site where I could read the reviews of others who were taking this drug...she found it...Ask A Patient...this site has about convinced me that I need/want to stop taking this drug. In fact, I did a "process of elimination"test...stopped taking the drug F 85 14 months
1 mg 1X D
5/21/2013
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 2  Breast Cancer Stage 1 No lymph Jt pain, memory loss, jittery, anxious, mood swings, tachycardia, EMG abnormalities, abdominal pain Like others my doctor would discount my symptoms and tell me to continue on the drug. My episode of fainting recently which led doctors to discover a heart rhythm abnormality caused me to do some more research on side effects of Arimidex...prove it's the drug , disprove it, I don't want to not be here and find out it was the drug, will continue with my Vitalzym XE supplements and exercise to return to my normal life again. F 58 3.5 years
1 mg 1X D
5/20/2013
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 1  Small Stage 1 Breast Cancer These things have helped me: 250 mg. of Resveratrol twice a day; for memory and clear thinking. Boswellia and Devil's claw 2-3 times a day. Natural anti-inflammatories. They help tremendously. Also, I am starting Stinging Nettle. I work out a lot; but what helps the most is walking in a pool, or a water aerobics class, or swimming, of course. It loosens your joints and just makes you feel better. I want to also give you a diet strategy that works for me--I am 5' 5 3/4" and weight 129. I am not naturally thin. But, I am a successful dieter. The trick is to eat earlier. That's it! It doesn't matter what you eat in the morning and up to about 3:30 in the afternoon. So you have your main meal at about 2:30-3:30. You eat a good meal and you can even have dessert. No diet foods. At about 8:30 or 9 you might start to feel a tinge of hunger. So, you eat something really light, but enough to hold you until the next morning, when you can eat whatever you want. If you still feel a bit hungry at 10 or 11, then have a tiny no-carb snack, like a piece of cheese and celery. If you do this, you are guaranteed a 1 lb weight loss daily. The problem is that this is when most people lose their self restraint. With this method, you just tell yourself that you'll go easy at night and have whatever you want for breakfast. This works! I just want to give hope to you girls who have gained weight and are feeling hopeless. This is how I do it. Good luck, my friends F 65 6 months
1 mg 1X D
5/16/2013
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 2  BC,stage 3 Bilateral Mastectomy Hot flashes, vertigo & dizziness, severe bone, joint & muscle pain, blurred vision, thinning of hair, cramping in arch of feet, brain fog, memory & concentration issue, insomnia, locking joints in thumbs (trigger finger) thyroid has ceased to function (hypothyroidism) Started out well with only minor side effect 3 months in. At 13 months in I can barely move. At the current time I cannot say if the side effects of this drug are worth the risk of recurrence as it has become a quality vs quantity issue. I am not sure if I will manage to stay on this drug another 4 years but for now I'm still trying. F 59 13 months
1 mg 1X D
5/15/2013
Email
 1  B/C prevention re-occurance I weighed 130 after a dbl mastectomy, stage 3, triple positive. Had chemo (ACT, herceptin), then had surgery which gave me clear borders and no spread to 13 removed lymph nodes. I was clean. And then last July I was put on 1 mg of Arimidex. After 2 weeks I cut the pills in half and only took 1/2 mg. I could barely walk after two weeks on the full dose. I didn't not tell oncologist. She would have switched me to another AI which she told me in advance "they're all the same, just different brands". I reached the point two weeks ago where I couldn't walk up or down stairs. If I sat, I couldn't stand up. My muscles were locked and I could no longer exercise. The symptoms got progressively worse as I kept trying to exercise more, yoga, stretching, lots of minerals, organic foods, no sugar. No diet change or any amount of exercise could improve my symptoms. And then 3 days I started crying and couldn't stop. I wanted to die. I could barely walk. If I got o I feel that estrogen receptive breast cancer might have more to do with environmental estrogen which attaches to receptor sites than the body's own natural estrogen. Arimidex does not prevent environmental estrogen from attaching to receptor sites. All this drug does is cause problems for older women....How can anyone heal or survive for the next 20 or more years at the age of 70 if they can't walk? Just want to die. I have yet to tell my oncologist I'm done with this drug. I know she will try and push another brand. Not taking it. Oh, and my Blood pressure kept rising. I was getting broken blood vessels in my legs....was told my heart muscle was "stiff". One way or another the drug companies will kill us all even though we might have survived breast cancer. I know this sounds insane....but I'd rather spend another year bald and on chemo than to continue with this drug. It's poison and the scariest thing that has ever happened to me. Having breast cancer was nothing compared to this drug! F 70 10 months
1/2 mg 1X D
5/5/2013
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 1  Dbl Mastectomy - Chemo Joint Pain From Toes To Neck - Sprained Ankle - 2nd Wk I'm on Cane & Boot - Blurred Vision - Viral Infection (Oral & Vaginal) Digestive Issues, Weight Gain, Insomnia, Emotional Upheaval - All Within 1st Week - Floated Thru Chemo Comparatively Against Arimidex - Researched & Met W/Onc & Physician Today - Gonna Take My Chances - Last Pill Today - Husband Housebound Impossible Situation If We Both End Up Immobilized - Im A Retired RN/Tumor Registrar - Statistics Are Just That ..."Numbers" We're Each An Entity Truly Distinct Individuals - Research Ask & Look For What's Good For You Not What's ""Given" As What's Right - Stay Strong & Surround Yourself With The Power From Within F 65 2 weeks
1XDay
5/3/2013

 1  Bc, stage 2, ductal, estrogen posit Felt fine after the chemo and radiation and was getting my strength and energy back. Started with letrozole (Femara) one month after the radiation was over and experienced excruciating pain under the right rib cage (liver) to the point where they did an MRI. Stopped this and was put on Arimidex. Oncologist said that some women tolerated the 'better'! Within two weeks the symptoms started. I had pain all throughout my spine,especially neck and lumbar area. knee pain, shoulder pains, developed trigger fingers on both hands, lost the grip in left hand, pain in finger joints, pain in ankles, painful right TMJ, total brain fog, no energy, itchy scalp and skin, skin looks like a dried prune, tingling and buzzing sensations from the tailbone down the legs.Eyes are dry, itchy and vision has gotten worse. Still need sleeping pills to get a decent nights rest. Felt like I was turning into a cripple overnight! Stopped the arimidex after 2 months. It's been almost two months now without it, but the joint problems continued to get worse and the trigger fingers are now painful when they lock up. Don't know how long it will take or if the damage done by this pill will actually resolve in time. Now I'm using alternative medicine to get my body back on track towards helping to resolve the damage done. Taking natural aromatse inhibitors, habanero pepper and garlic sandwiches once a day, and other supplements. As a side note, I had myself tested with kinisiology muscle testing before I even put the drug in my body and I had no strength at all in my arm, this was a clear indication that this drug was NOT what my body wanted or needed, but I took it out of 'fear'. Now that fear is gone, I now chose to live a quality life rather than be ravished by the total breakdown of my body due to this pill! So glad to have found this site to be able to share. F 64 2 months
1 mg 1X D
4/23/2013

 1  BC, invasive dcis, stage 2 No sex drive painful intercourse, bottoms of feet hurt could hardly walk, brain foggy, blurry vision, hair loss, fragile no energy, developing osteopenia, liver enzymes up, depression. Why do Doctors not test estrogen levels to see where they are at? After researching low estrogen levels and damage it was doing to my body I decided to quit taking medication. Research low estrogen and damage it does to your brain and heart plus other damage it is doing. Oncologist told me, Arimidex isn't a chemo pill that I didn't need chemo only radiation for my treatment. My Gyn informed me if I am taking Arimidex I am taking Chemo for 5 years. (Look up Chemo Pills and Arimidex is listed.) My quality of life was gone taking this medication and after being off of it for 6 weeks now I am starting to feel better. My husband said he can tell a difference in my personality and I am more like my old self again. I will risk cancer again rather than the side effects of this medicine. I can't even imagine what my health would be like if I continued to take this medication for 5 years. With all of the money being given for Breast Cancer and Research there has to be something better on the market. F 58 15 months
1 MG 1X D
4/17/2013

 4  Stage 2 Breast Cancer Severe depression, trouble sleeping, "twitching" in sleep, fuzzy brain, joint pain in hip, ankles, lower back and shoulder Asked doctor to put me on anti-depressant (Effexor); reduced pains by 50% but hasn't helped depression or sleep issues. Going to double dosage of anti-depressant. i'm 55 but I intend to do whatever it takes to get through this. F 55 120 days
1X D
4/16/2013
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 1  BC, invasive dcis, stage 1, Er/pr+ Severe depression, fatigue, memory loss, general brain function, blood pressure increased Doesn't make sense to me (my body made that clear) that you take away all the many important and positive functions of estrogen for a very small decrease in the chance of recurrence. Why does everyone get the same dose? Why don't they measure estrogen levels before starting the med? What is happening to the brains of women 20' years after depriving their brains of estrogen for 5 years. I'm grateful my lymph nodes were clear. Ill take my chances now without this brutal drug. F 58 27 days
1 mg 1X D
4/14/2013
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 2  B/C, IDC Dx, Stage 1, ER+ Fatigue, hip and lower back pain, knee pain, cannot walk a mile w/o misery, thinning hair, joint pain throughout my extremities although not as bad as the back and hip pain. Also, memory trouble, but then again I did have chemo so it could be chemo-brain. Pains seem to get worse when it becomes humid outside or maybe with the change of the barometric pressure? Was certain a couple weeks ago that I had fibromyalgia, too. Could have been a flu virus.Nonetheless, I am determined to find something to help with the pain and continue to take it and remain active. F 52 90 days
1 mg 1X D
4/8/2013
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 1  Weighing taking it, deciding not to Idiot oncologist recommended, forget it after reading these accounts! Ladies, this is made from POTASSIUM CYANIDE. I'd like to thank everyone who blogged here, it made me decide to look further and forego this. It doesn't 'cure' anything, it just lowers your chances of recurrence very slightly. My idiot (now fired) oncologist told me that my request for a bilateral mastectomy after diagnosis of IIA invasive ductal and also LCIS in the lumpectomy specimen was 'overkill' and called it 'like having a splinter in your toe and amputating your foot'. I told him that I didn't have a splinter, I had diagnosed cancer, and that I was using my feet but my boobs at 59 were trying to kill me and weren't exactly in use anymore, either! What a jackass, beware if you live in Roseburg, Oregon. I'd put in his name if I thought it wouldn't get me in trouble. He smugly told me that I'd never find a surgeon to do a bilateral on me (with apparently large amounts of LCIS on one side, I presume also on the other); I talk to the surgeon next week who did my lumpectomy, I trust him and we'll see what he says. But no way I'm taking any drug that reduces your estrogen levels down to zilch; this is insane. Your body, your bones, your joints and your brains need a little bit of estrogen. The data on this says it doesn't change survival rates. If I was younger or had young children, I might be willing to throw everything at it, but at this point, I can't die young anymore. My cancer is also mucinous which may well be less aggressive and slower growing. I'd rather F 59 0 days
1 1X D
4/8/2013

 2  breast cancer reoccurence Joint pain from neck to shoulders, thighs and shins, nausea and vomiting and headaches Feel like I have a constant Flu - no quality of life -this drug should be pulled ! F 56 7 days
1mg 1X D
4/7/2013
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 3  Breast Cancer Stage1,Her2+,PR+,ER+ Joint pain, trouble sleeping, bone pain, foggy brain, slight nausea, weakness and blurred vision. considering how bad chemo and radiation was, I am pretty sure I can deal with this for 5 years if it will in fact keep the cancer from coming back. Not a great feeling but there is light at the end of the tunnel. At 45 years old I have a lot of living to do and am not going to let the SE of this drug stop me!! F 45 6 weeks
1MG 1X D
3/6/2013
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 1  post breast cancer jaw pain became so severe I couldn't chew. then it hit my right leg, couldn't put any weight on it and limped for about 3 months. Oncologist recommended an mri and that said I had bursitis which never happened before. Liver functions became elevated and oncologist took me off it. Then tried another aromatose inhibitor with same effects. Then tried Tamoxifen and took myself off that. Quality of life counts! I read that only about 20% experience side effects and apparently I'm in that group. I eat real food, go to a personal trainer to keep my muscles and bones in shape, and smile and laugh with my wonderful husband as much as we can. F 67 15 months
1 mg 1X D
3/3/2013

 2  Breast cancer painful, ankles, painful hands, itchy scalp and hair loss, leg cramps, lichen sclerosus, general stiffness I am 72 years old but have always been active. I enjoy walking and gardening, or did until recently. I was dignosed with breast cancer in August 1999. Grade 3 Invasive Ductal cancer. I had a mastectomy and was prescribed Tamoxifen. This caused problems with my uterus and I had a hysteroscopy and biopsy in January 2003. I was taken off tamoxifen and put on arimidex until September 2004. Some time after I experienced painful ankles but did not associate it with my treatment. Then I experienced pain and stiffness in my hands. Every morning I had to spend a log time stretching my fingers before they worked properly. My doctor suggested that when I was gardening I was using my trowel incorrectly. I started using Glucosamine and Devils Claw. After several months the stiffness passed. I have been off Arimidex for 8 years and would not have associated taking it with the problems I am having but on reading other ratings on this website I am now convinced that Arimidex has caused them. I had terrible itching and was treated for Lichen Sclerosus in June 2010. I have to wash with a special lotion in sensitive areas. More recently I have had pains in my left upper arm, right side of my neck and right hip. These problems are very similar to the lady's who rated the drug on 24 May 2012. I feel like a very old woman and I have difficulty getting in and out of cars. I have discussed this with my Doctor but she does not think my problems are due to taking Arimidex. . I have tri F 72 2 years
1X D
2/20/2013
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 1  Breast Cancer Stage 2 joint & muscle pain. Vaginal pain. the feeling that I had a UTI although I didn't. Severe back pain. Always feeling lousy. Totally stopped Iscador and every other pharmaceutical suggested by oncologist. I completed treatment (chemo, radiation, surgery)for stage 2 breast cancer 5 years ago.I've been taking supplements prescribed by my Functional Medicine Dr(such as Broccoli seed extract) and I also have been injecting Iscador for the past 5 years and continue to do so but at a decrease frequency Iscador was prescribed by my homeopathic/anthroposophical dr. Iscador has been used in Europe for more than 80 years as a cancer treatment.. no side effects from anything I've been taking. You can find info at Weleda.com Iscador is a mistletoe derivative. I heard it mentioned on the radio 5 years ago butnever again. I believe it was squashed by the oharmaceutical companies. I am not alone in my belief that a cure for cancer will not be found in this country because the business of cancer treatment is too profitable. You have to be your own advocate Check out what Dr. Christiane Northrup has to say about mammograms For the most part Arimidex can destroy your quality of life. There are other alternatives. Check them out Good luck! M 70 2 months
1X D
2/20/2013
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 5  Grade 1, stage IIa,ER+PR+HER2-,4cm night sweats and hot flashes not as bad or frequent as menopause. headaches, no bone pain yet, they keep asking me if I have any. slight weight gain, totally no libido. I have totally changed the way I eat. Only whole foods, no processed foods, only whole grains, fruits veggies nuts and seeds. switched to e-cigs(weight gain attributed to this) Had a second MRI in Jan. my tumor has shrunk to 2cm. I have refused chemo because of my results from the Oncotype DX Assay tests. My number came in at 12 which means chemo would be unlikely to help shrink my tumor. I will keep taking this pill until my tumor is gone, and I will not have surgery. My surgeon says that new studies have found that it will be more effective to take this med for 10 yrs intstead of 5. I will continue taking it. F 54 6 months
1mg 1X D
2/19/2013
Email
 3  B/C Stage 2 ER positive At the beginning, some joint pain, mainly knee and hip. Little brain fogginess, but not too bad. After a few months, most of the pain subsided and energy and stamina thru the roof. :-) I attribute my health and wellness, and high energy levels to my nutrition program. Almost all of my pain have subsided. I have a lot more mental clarity, energy and focus now. If anyone here is interested in overcoming and combating much of what you are going thru both mentally and physically, please send me an email. I would love to share some information on what has been an absolute blessing and miracle for me going thru this ! Hugs and blessings to all F 52 4 months
1X D
2/18/2013
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 4  Grade 3, Stage 1a,ER+,PR-,Her2- I had arthritis prior to L mastectomy, but knees, wrists, ankles and sometimes hips ache. Knees are the worst. Hair a little thinner but not breaking or coming out. Some depression; very emotional, cry easily. I elected not to have chemo based on my pathological results and other tests. Research indicated that for my particular case, chemo + arimidex was no more effective than just arimidex alone for 5 years. Three lymph nodes were removed and were negative at mastectomy and no signs of cancer spread since L breast removed in 8/11. Really can't say if my arthritis is just worse or if arimidex is contributing a little. Hope I am cancer-free at 5 years. F 67 15 months
1 mg 1X D
2/5/2013
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