TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by Gender with females listed first (reviews with no gender reported listed before females).

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 5  headaches and twitching eyelids weight loss impaired speech in the beginning This has been a wonderful med for me. My headaches are gone. I have actually experienced clearer vision, and better sleep. Yes, soda tastes awful, but I needed to cut back anyway. The delayed thinking and speech went away after about a month. I take 25mg in the morning and 50mg at night that helps with daytime fogginess. F 42 9 days
1/14/2010
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 5  Seizures When I first started taking it I had sharp tingles in fingers/toes and numbness around my lips, early on I also had strong memory loss, word recall issues, severe weight loss, and weird pains and hair loss. I started it in 1997 at 450mg/day- slow increase. I now have no side effects due to taking potassium supplements, vitamins and also drinking a lot of water. Even my memory and word recall are back to 'nearly' pre-topamax levels. I had to work at that though through brain activities. Topamax was started after failing mutiple anti-seizure medications. It was the first drug to stop my grand-mal seizures so I found it to be a miracle drug despite its numerous side effects. I found that I could get rid of the side effects with some research-- potassium supplements, increased vitamins, ensure shakes for weight, lots of water, brain exercises for memory and word-recall... I'm happy to say that along with my other seizure medications I've remained (almost) seizure free and nearly side-effect free also for a long time. Topamax has kept me entirely grand mal free since 1997. I only have partials now which I'm still trying other medications to get under control. F 31 12 years
1/15/2010
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 5  Migraines Some cognitive delays early in treatment. Sleepy early in treatment. Possible loose stools due to drug. Is anyone else having loose stools due to topamax? I am wondering if this is a common side effect I am on 250mgs a day and they seem to be getting worse. Has cured my migraines. I really cannot complain. I have noticed that as of late with a dose increase I have had some stomach issues. I had some beofre, but they are getting worse with a 50mg dose increase. F 30 1.5 years
1/19/2010
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 5  Bipolar II tingling in nose and lips, loss of appitite, weight loss, diarreah, stomach cramps, shortened menstrual period, trouble spelling i've only been on topamax a little over a week, but have noticed that i am no longer a "human garbage disposal," and only eat when i am truely hungry. i've lost nearly five pounds already. my mood swings are fairly stable, with a tendency towards light mania if they swing at all. the diarreah is annoying, and i now fear passing gas in public in case of an accident. the stomach cramps are lighter than asscociatiated with normal diarreah. i have had only one period so far on the topamax, but it was very light and lasted only 3 days. usually it is heavy and lasts 7. it was also five days late, causeing a lot of concern and two negitive pregnancy tests before showing up. [by the way, topamax does cause the pill to be less effective, consider other or additional forms of birth control.] the tingling was quite annoying at first, but i hardly notice it any more. my spelling was poor to begin with, but now it is terrible. F 24 1 weeks
1/20/2010
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 5  Cluster Headaches Tingling in hands and feet, Weight loss, slight memory loss Please don't let the horror stories scare you away from trying this drug if it's suggested. All meds have side effects. If it's not right for you, then you can always try something else. I have always had hormonal headaches and miagraines but this past Sep I started having almost daily on/off severe pain that could make a person crazy. This went on for 3 months. After lab work, CT scans, and a MRI I was diagnosed with cluster headaches. After starting this medication I have had 2 headaches that I was able to treat with advil. I don't know how I could have kept going without it, my life had come to a standstill. If the side effects are just bothersome try a lower dose. It's a powerful drug, but it can give you your life back. F 32 5 weeks
1/21/2010
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 5  headaches prevention I started on 25 mg then after 2 week went up to 50mg I was feeling confused tired shortbrethe moody n tingles hands feet it stops all my headackes I then went to 25mg ather tgen beong bit sleepy n short brethe nothing else o decided to stop for a week still get short brethe which doc looking on to I no it aint the tabs even on small dose no head ackes n o feel much betsr plus lost bit weight I dont mind F 39 6 months
25 mg
1/1/2014
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 5  Migraines Tingling Sensation Hands and Feet - Worse in Feet Foggy mental Clarity in the first few weeks Carbonated Drinks taste terrible Loss of sex drive Absoultely no migraines Reading the internet will give Topamax a bad rep but the drug has absolutely changed my life. I was getting 30-40 dizzy spells a day and migraines leaving me bed bound for 3-4 days every couple of weeks. The side effects are uncomfortable at best but have made an incredible difference to my life. F 31 3 months
25MG 4X day
6/24/2014
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 5  I'm taking topamax for seizures This medicine works great for me, my only problem is the side effects. It interferes with my speech, my memory and my nerves. Therefore it intereferes with my job. It's to the point where I feel like I can't work anymore. When I'm at work or in public I feel like everyone is watching me I'm always nervous. F 29 4 years
500mg
4/27/2014
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 5  Migraines Weight loss 20lbs in first 6 months then stabilized, tingly hands/feet for first 3 months, memory problems. Good: 15 year hx migraines tapered from daily to weekly to once a month then stopped completely. I stopped topamax and they have not reoccurred in 3 months. Regained 5-10lbs F 30 2 years
50mg
4/27/2014
 5  Migraines/Mood Swings Some hair loss - comes and goes. Some weight loss without appetite loss, I still eat as much as I ever have. If anything, the only thing I ever want to eat is gobs of sugar and sugary foods! Meat is less appealing. My mood swings have leveled out and my depression has lifted - I feel like my eyes have been opened! Its been wonderful! I was scared of the side effects. But I very slowly worked my way from 16 mg to 25 to 37.5mg to 50. I don't have any issues with memory or brain fog, or feeling dopey - and trust me: I run a business with over 700 clients, so I need to be clear minded at all times. I take this in conjunction with 300 mg of Wellbutrin every day and its been the missing link. My social anxiety is gone, and I feel on top of the world. F 32 2 months
50 Mg 1X day
8/26/2014
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 5  Bipolar, rap.cycl. Pins needles, some weight loss while already underweight, but this stabelized. Some hair loss, stabelized as well. Much more focused. Finally able to do what I want, feel like I can be myself and enjoy life. I do no longer feel locked up. Am a bit annoyed by all those people who speak so negatively about this drug. Yes, I mix up words too, but that is nothing compared to all the crap that has been keeping me from living a life for years and years. Topamax is the first drug that really makes a difference. I feel like all my creativity inside is no longer locked up. I can do something with it now, and that makes me so happy. My eating disorder and all the other things I needed to control my mood is now slowly leaving me. I do not need it anymore. After 1 pill I never purged Again. I felt stable, and no longer scared for switches. This is indeed a drug with many side effects, but it helps me so much, I feel like I can finally live and be the person I always wanted to be. F 33 20 months
150 1X day
8/15/2014
 5  Migraines Severe tingling in the feet and hands. Memory loss and speech slip ups all the time. Also severe stomach aches. Used to get migraines 7x a week after bad car accident and now I can easily go a day without it. If i do, I just double up with relpax and I'm good to go. Though the weight loss is fast so make sure you get food in when you can. F 22 5 months
100 MG 1X day
10/31/2014
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 5  Migraines/Arteriovenous malformatio This is my second time being prescribed topamax. It has helped me tremendously with my migraines. I went from 5+ migraines a week to an average on 2 or less a month. It is amazing! Most bothersome side effect the first go round was I lost 50+ pounds in about 6 months which really killed my energy. I just wasn't eating enough. The appetite was a problem. After about 3 months of being off the meds my migraines were back up to 5+ a week so I began taking it again about 2 months ago. I have not been losing weight this time. But I am having this tingling in my lips and chin area and twitching in my fingers. The good definitely out weighs the bad! It helps me!! F 30 3 years
75mg
10/30/2014
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 5  Migraine Works beautifully. Was having 12 blinding migraines months. Some leading to ER visits. I had been to all kinds of specialists and no help. I also lost 40 lbs. which was nice. I really didn't care about that. This drug have me my life back. I have an occasional break through headache once a year, but they are very full and I'm sure it is due to the Topamax! Thank you! F 54 5 years
200mg 2day
11/14/2014
 5  Bulimia Temporary loss of critical thinking skills, temporary loss of extended vocabulary, tingling in extremities, loss of appetite. The cognitive side effects were temporary and affected my work but I bluffed and fortunately went out of town and had a sinus infection within the first 10 days on the drug so I played it off nicely. I feel like I am back to about 85% of my pre-Topamax intelligence. I am more than effective at that level. The positives outweigh the negatives. I have not binged and purged one time since I have been on this medication. I suspect it must act on the addiction response center in the brain because my pesky other bad habits have lessened in my time on this med (nail biting, over shopping, over dating, etc.) The weight loss leveled off as well and I stabilized at a healthy weight. Overall I am satisfied. F 34 1 years
200mg
11/15/2014
 5  Migraines Weight Loss / Then gained it back Slight loss for words and spelling Decreased beverage taste Tiredness Dull Mood Lowered Sex Drive (Vision issues at the very beginning) I have experienced many side effects on this but they far out way the migraines. I hardly get any now from being on the Topamax for me it has been a life saver. At the beginning I did experience weird vision issues in low light. Kind of trails and light halos but I stuck it out and they went away just fine. My eye dr said my eyes were fine. In the adjustment phase my brain was sort of catching up with my eyes in a way. Most people may not have waited through this but this medicine was the only thing that helped me. I hope it helps others. I did also loose about 20 lbs which was an added bonus but after a year or two I gained it all back and I'm still on the medicine I have no idea what will happen when I go off of it. F 36 5 years
50 MG 3X day
1/12/2015
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 5  migraine Memory loss, tingly fingers. Love this med. Changed my life F 42 1 years
150
1/29/2015
 5  mirgraines I have been taking it since Nov for migraines the dr worked me up to receive max dose I went from 245 in Nov to 195 in July. The only side effect I have had is the tingling toes. Every one I'd different though I wish I would have been one of the ones that would have lost more weight on it. I did experience one more side effect I hate the taste for soda pop it taste Nasty. Any kind is gross. Haven't had any since I started the meds. F 33 3 months
200 mg
7/16/2015
 5  Migraines Minor weight loss, mental slowness, memory loss, thursty all the time (however this ensures I get my 8 glasses a day!), irritable this medicine does mess with your head and some days are better than others but chronic migraines do the same and are far worse. I used to get migraines lasting weeks at a time and would keep me from working for days. I still get migraines that break through every once in a while while taking this med but they aren't as intense as without meds. I have tried a dozen other drugs, side effects from topamax for me are much more manageable than other drugs. F 29 6 months
50 1X day
3/1/2015
 5  Migraine Some weight loss, itchy feet, tingly fingertips (when first taking pills only) This medication has changed my life! I can finally function without the worry of having migraines stopping me in my tracks constantly it's been fantastic, I haven't had any of the awful side effects thankfully only a massive reduction in migraines usually only have an odd one break through now which really is life changing for me. So thankful to these meds. F 31 9 months
100mg 2x
9/23/2015
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