TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by Gender with females listed first (reviews with no gender reported listed before females).

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 4  Migraines At first tingling in fingers, toes, and nose. Now that only occurs if I forget a dose (it is actually a nice reminder.) Side affects that are still occuring: Carbonated drinks taste awful, the effects of alcohol are unknown (for example one night I can have 2 martinis and be fine the next night have the same and feel wasted. But I certainly cannot drink a lot the combination of this drug and alcohol are BAD.), sinus issues- constant runny nose and some nose bleeds, loss for words, weight loss I have been able to deal with most of the side affects, but now the loss for words and sinus issues are really starting to get to me. I often feel really dumb when trying to articulate something. It will all be there in my head, but I will not be able to get the words out. I have to be careful around my employees because if I just start speaking quickly and not really speaking slowly the wrong words come out all together. I asked my husband the other day to start telling me everytime he noticed me having issues with this and in 2 days he must have said something at least 10 times. My goodness what do my employees and boss think of me, must think I am a total ditz! Also, I have been back and forth with the doctor about allergies and sinus issues, but I am now convinced it is the Topomax. I have tissues everywhere. On the other side of things for the 1.5 years I have been on this my migraines have significantly decreased. I went from having headaches almost every other day to F 26 1.5 years
3/12/2007
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 4  daily chronic headaches tingling hands and fingers, loss of words, difficulty talking I was hestiate about taking Topamax (all the bad side effects)but after trying so many other drugs, I was ready to try anything. Besides all the side effects, this is the best I have felt in 7 years. I am at least functional in the world- sometimes I can't find the words to actually say what I want to say but I am no longer laying on the coach or have my head pinned between two pillows because of all the pain. I am not painfree but I am at least among the living :) F 42 2 years
3/12/2007
 4  seizures, twitching tingling, loss of appetite, trouble finding words, crying, trouble with the heat - when I start to get warm I tingle and itch ALL OVER I sleep great, I have lost weight, I am not having seizures, my twitches have reduced but are not gone, the tingling that has replaced them can be annoying at times F 37 5 months
3/19/2007
 4  complex partial seizures fatigue, hair loss, acne, decreased libido,chest pain,severe tingling pain in legs and hands and some in face and nose, intolerance to cold, can't drink carbonated drinks anymore, fuzzy feeling sometimes when I'm trying to talk to some one or to think about something important,can't focus sometimes when people are talking to me, constantly thirsty- drink lots of tea and water, my vision has become a little fuzzy-after corrective surgery worked for seizure control, but I'm 34 years old mother of 2 very active children and married only 2 years- the other side effects are very trying on my marriage and very active lifestyle. F 34 9 months
6/27/2006
 4  complex partial seizures fatigue, hair loss, acne, decreased libido,chest pain,severe tingling pain in legs and hands and some in face and nose, intolerance to cold, can't drink carbonated drinks anymore, fuzzy feeling sometimes when I'm trying to talk to some one or to think about something important,can't focus sometimes when people are talking to me, constantly thirsty- drink lots of tea and water, my vision has become a little fuzzy-after corrective surgery, 30 pound weight loss(I needed), frequent urination just started. worked for seizure control, but I'm 34 years old mother of 2 very active children and married only 2 years- the other side effects are very trying on my marriage and very active lifestyle. F 34 9 months
6/27/2006
 4  complex partial seizures fatigue, hair loss, acne, decreased libido,chest pain,severe tingling pain in legs and hands and some in face and nose, intolerance to cold, can't drink carbonated drinks anymore, fuzzy feeling sometimes when I'm trying to talk to some one or to think about something important,can't focus sometimes when people are talking to me, constantly thirsty- drink lots of tea and water, my vision has become a little fuzzy-after corrective surgery, 30 pound weight loss(Iwas 142 and now 112), frequent urination just started. worked for seizure control, but I'm 34 years old mother of 2 very active children and married only 2 years- the other side effects are very trying on my marriage and very active lifestyle. F 34 9 months
6/27/2006
 4  complex partial seizures fatigue, hair loss, acne, decreased libido,chest pain,severe tingling pain in legs and hands and some in face and nose, intolerance to cold, can't drink carbonated drinks anymore, fuzzy feeling sometimes when I'm trying to talk to some one or to think about something important,can't focus sometimes when people are talking to me, constantly thirsty- drink lots of tea and water, my vision has become a little fuzzy-after corrective surgery, 30 pound weight loss(Iwas 142 and now 112), frequent urination just started,bruises are lasting alot longer-usually a bruise goes away in 2 weeks but now I still have them a month later and some come from nowhere. worked for seizure control, but I'm 34 years old mother of 2 very active children and married only 2 years- the other side effects are very trying on my marriage and very active lifestyle. F 34 9 months
6/27/2006
 4  Migraines and nerve pain These things went away in time: troubles finding keys on the keyboard, confusion, ability to drive, concentration. Still having these ones: Memory loss, soda tastes flat, food tasted funny, tingling in hands, feet and sometimes nose, metalic taste, drowsiness, inability to reach a full orgasm, can't spell. I am taking 50mg's in AM and in PM. MY headaches pretty much dissapeared until I had an ESI, now I am considering upping my dose, but I am concerned about having more sexual side effects. I think the med may have saved my life in a way. If you can give it a chance and wait out the initial side effects it will be well worth it. The more water you drink the better off you will be with the side effects. F 36 4 months
6/27/2006
 4  alcohol control, weight loss I have had numbing on the right side of my face. I have been prescribed the drug as part of the "my way out" program, to curb alcohol use as part of a program of topamax, nutritional supplements and hypnotherapy. The first week starts at 25 mg and the 2nd week goes to 50 mg. At the 2nd week, my right side of my face is numb and if I drink any alcohol at all (moderation is allowed) my right eye and right side of mouth droops. Other side effects include carbonated beverages taste flat and bad taste in my mouth. Hoping for weight loss as a side effect. F 46 10 days
2/27/2007
 4  depression Tingling in hands for about a month off and on. ALWAYS tired. I can sleep 14 hour nights every night easy. Communication is sometimes diffult. Slight loss of apetite. This medication has been very helpful. I get very frustrated when I can't remember words or when I'm in the middle of a story and my brain goes blank. I preach at a bible college and this medication has made me a lot more reliant on using notes and keeping my thoughts clear because I'm probably going to forget what I'm talking about. F 23 4 years
3/11/2007
 4  Migraines Queivering lips, weird metalic tastes to all foods - been to clinic several times because of weird effects, GREAT Weight loss - lost 25 pounds, kidney levels concern for doctor so reduced from 50 MGs to 25 MGS; No more headaches!! I had about six migraines a month which would literally put me to bed and miss work and my Imitrex wouldn't even touch them and this medicine has taken them all away!! I haven't had a one since I started taking it last October!! Wonderful! Just remember to drink your water!! Very hard on your kidneys!!! F 39 5 months
3/5/2007
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 4  migraines a little nauseous in the mornings but not bad. I'm only on my first week of this med at 12.5 mg per day. My Dr. is being very careful to start me off very slowly. Next week I start on 25mg per day and then go up to 37.5 the week after ... graudually up each week until I get to 100mg. At what point do most of you feel relief from your headaches? And ... the other thing I'm looking forward to is the weight loss (hopefully). When are most of you seeing that (how many mg's?) F 40 7 days
3/9/2007
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 4  migraines dry mouth, not feeling like myself, weight loss At the present juncture I take 300 mg. in the am and in the pm. so that's 600mg. per day. I also take six other migraine related medications, such as Amerge twice a day. Reglan helps my nausea. I have been in 2 other drug trials.Topamax is still a relatively new drug and we need to learn more about it. Good luck everyone. F 37 3 days
7/14/2005
 4  migraines Feeling I tried it before but did not give it a chance. I am taking 75mg a day and am working my way to 200mg a day. It has helped my migraines a great deal. I was taking maxalt and relpax as if they were m&m's. Have'nt needed any since starting topamax. tylenol has been helping. I think I will stick the side effects out. F 34 30 days
11/19/2004
 4  Migraines tingling in fingers, difficulty verbalizing thoughts (very frustrating but getting less frequent the longer I was on the med), have nightime trailing of lights especially when very tired which is totally new since taking this and, most frustratingly, the inability to reach orgasm. Initially started taking 25 mg od and gradually increased dose until I am now at 150 mg od. Am currently decreasing dosage to try to get my sex life back to normal. Has significantly helped my headaches: has eliminated almost all of them with the exception of my menstrual ones and the other, F 39 4 days
11/24/2004
 4  weight loss nausea in the first week, loss of appetite (especially for junk food like McDonald's), extreme thirst, clumsiness, tingling in fingers, toes and heels, confusion, delusions, indigestion, memory loss F 18 1 months
10/15/2006
 4  migraine Sleepiness and irritability, easily overwhelmed. Stomachaches w/o gas. Side effects eased after I had taken it for a few months, but in the beginning, while adjusting the dose, I almost lost some friends because of the extreme irritability because I was SO sleepy all day. F 44 4 months
12/3/2004
 4  migraine headaches it blocks words when you go to speak and makes you feel slightly stupid. I have lost 15 lbs in the 18 months I have been taking it and have reduced my headaches to by 2/3's and they are manageable do occur rather than raging. I take 200 milligrams each night. I was taking 300 but was getting too thin so I cut back. Some days I almost feel anorexic-no interest in food. F 62 500 days
12/27/2004
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 4  migraines severe, chronic pain same as everyone.. metallic taste at first, hair loss, tingling. all have gone away except chronic dry mouth and thirst. i do have some word drop and fuzziness but could be attributed to another med (also on percocet and methadone for chronic spinal pain) i am on 100mg BID. funny i didnt know about hair loss as a side effect but in retrospect i definitely lost some hair! just thinned out is all. i started taking this medication for migraines mainly and WOW it works. i am on a birth control pill which you take continuously for three months so i am only getting migraines during PMS for those four periods per year. if i miss birth control pills or topamax, even for a day, the headaches come back right away with a vengeance though! i wanted to assure people that have only been on this for a short time that the tingling and aversion to taste is short lived, as well as the hair loss. my fuzziness im sure is a mix of all my meds. the dry mouth unfortunately you have to get used to (at least in my case) IMPORTANT: DRY MOUTH MAKES YOU VULNERABLE TO GUM DISEASE AND CAVITIES. GET A MOUTHWASH WITH FLUORIDE ... MAKE SURE IT HAS FLUORIDE IN IT AND USE BEFORE BED. SALIVA HAS GOOD BACTERIA TO FIGHT PLAQUE. MAKE SURE TO TELL YOUR DENTIST THAT YOURE ON F 27 2.5 years
10/26/2008
 4  mood stabilization, weight mgmt my precious diet coke tastes like FLAT battery acid, yuck! Also some short term memory loss, writers/speakers block, thinking and moving at a slower pace, weight loss (woohoo!), sleepy This is my second time on Topamax and for the most part I am very happy with it. It seems to "boost" the effectiveness of my antidepressant (zoloft), as well as offset its weight gain side effect. The yucky tasting soda is a blessing in disguise as I find myself drinking more water. My headaches are very few and far between. The worst part for me is the "foggy" mind and the writers/speakers block. I have not had tingling, numbness, or vision issues. F 30
10/19/2008

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