TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by Gender with females listed first (reviews with no gender reported listed before females).

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 4  Weight loss It's really not that bad for me right now. I have an aversion to carbonated beverages, some tingling and cramps not bad though. The worst is bad breath and dry mouth/ sore throat which I can deal with. I've lost 40 pounds in 3 months!!! F 33 3 months
50mg
10/27/2012
 4  Tremors abd migraines I've been on topamax since I was 17. I had some side effects a higher dosages but found that 75 works well for me. I even lost about 1( pounds back when I started but I gained it back after a while F 4 years
75 mg
8/22/2012
 4  Migraines Occasional loss of appetite, pins and needles in feet and hands, fatigue, rapid heart rate (over 100 beats per/min), when inceasing my dose it would make me feel sick. It did help with my migraines, I used to have a migraine like every day and now I'm down to 2 to none a month. As for the side effects I take like four other medications so you never know what side effect is from what exactly, I just started getting those side effects when I started this medication. F 18 2 years
125 1X day
5/2/2012
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 4  Migraine preventative Constipation, memory loss, insomnia The Topamax I take for migraine preventative has helped tremendously. I have much fewer migraines. When I do feel one coming on, I simply take my regular migraine medication, which is Zomig. I have tried a higher dose and get the tingling in my feet and legs. I have never had any weight loss with it, which I have seen in others, but I also have a thyroid problem. Overall, Topamax has helped change my life in a positive manner. I do have a prolonged QT interval on EKG, which I did not have prior, but I am on so much medication, it would be difficult to pin down which one is actually causing it. I rated Topamax a 4 because it is short acting, as if I miss a dose, I will already get a headache. F 40 4 years
100 MG 1X day
4/24/2012
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 4  migraine prevention initially: hands/fingers tingling... after a few weeks: noticed forgetfulness, confusion, memory issues The cognitive changes were, for me, drastic. I lost the ability to punctuate sentences freely and mixed up words like there/their and here/hear... I wrote some letters backwards when I was writing fast... I forgot how to use the ATM machine. Drove up to it, thought the keypad was "missing"... drove around to the other ATM and thought the same thing of the other ATM... had to get an assistant to come help me use it.. F 32 7 months
75 1X day
4/9/2012
 4  Mood disorder, Headaches, Bulimia Brittle/dry hair, loss of appetite I've been on topamax for awhile now. I don't really have terrible side effects like other people; what I do hate is that my once super thick, shiny hair is now dry and straw-like. I've lost some of my hair, but it's not that noticeable. F 19 1.3 years
100mg 1X day
4/25/2012
 4  epilepsy & migraines Kidney stones ,take stone free vitamin F 56 10 years
500 mg
4/2/2012
 4  Migraines Weight Loss, Hair Loss, Tingling of Hands/Feet that went away, Throat tightness that lasted for two months initially has redeveloped after I was switched from one generic manufactured company's tablet to another company's, carpal tunnel symptoms that lasted for a month in both hands and wrists once I had hit the current dosage Not all generic topiramate tablets are the same. I'm having different side effects after I started taking a different manufacturer's generic tablets after taking the same TEVA brand tablets for four years. F 38 4 years
50 MG 2X day
7/24/2013
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 4  migraines tingling in hands and feet if arms or legs crossed for just a few minutes. Cannot drink carbonated beverages because the fizz is increased almost like there is too much fizz in the drink. Migraines haven't reduced yet, still at least 2 per week, but now are coming back to back days rather than two to three days apart. Has helped with depression and anxiety, have not noticed weight loss yet, but appetite is decreasing. F 34 2 weeks
25mg 2X day
8/16/2013
Email
 4  migraines Don't really have any side effects to speak of. Make sure to drink LOTS of water when taking this drug. Been on it for years, and just this year had kidney stone. Related?Maybe. Was also told I wasn't hydrating enough. Probably a bit of both. Take this to prevent migraines which I would get roughly 6+ times a month. Still get them, but down to two or so. Taken with Relpax when migraine hits - Concerns I have NOW with Topamax is that there can be bone loss. With my age and with amt of years I have been on this drug... is this a concern? Going to check into it my next appt with neurologist for sure! F 45 5 years
100 mg 2X day
1/10/2012
Email
 4  Migraines and seizures So far a little paranoia and some slight, occasional tingling in my hands and feet.... also loss of appetite (which is good for me)... So far so good.. but I am only three days in... F 26 3 days
25 mg 1X day
12/28/2011
Email
 4  daily migraines and trig. neuralgia A reply to Helpless412: Your email address is invalid so I am writing you back here. I started to lose weight after being on 25 mg twice a day for two months, and then it was only about a pound or two a month. My previous medicine made me gain 15+ pounds in 6 months. I started at 115 lbs/ 5'3", so that is a lot of weight to gain. I have not changed my diet, (vegetarian), full of whole foods, and no junk food. What I have found is that the more Topamax I take and the longer I am on it, the sooner I feel satiety or fullness. I am almost back to my normal weight. As far as being tired, I have fibromyalgia, so I am tired all the time anyway. But what I have found is that when I increased the dosage of Topamax, my fatigue would worsen for about 2-3 weeks, then subside. It was worse in the beginning at the lower doses. Going from 25 mg a day to 25 mg twice a day was harder than going to 25 mg in the am and 50 in the pm, and then the easiest was 50 am/50 pm. At the that point, I think I was only extremely fatigued for about a week. I wouldn't say I am slow to react (as in if I drop a cup or in driving), I would say one of my worst problems is word loss, dyslexia (which I never had) and the inability to write down phone numbers or spell things as people are dictating them. I will be increasing my dosage soon. I too have reservations as I do not want to worsen my fatigue, but it has always been temporary, so for me it is worth it. Good luck and don't give up hope! F 41 4 months
50 mg 2X day
2/28/2012
Patient History
 4  migraine Coke DOES taste funny (I thought it was just me!). I have difficulty playing the piano and typing/spelling. My hands and feet tingle occasionally. I get stuck on words too. I've had migraines since 19 and this seems to work like a miracle. Only one headache in 6 weeks. The side effects are disconcerting. Will they get better over time? F 40 6 weeks
8/15/2006
 4  nerve pain Hair loss, soapy taste in mouth, tingly hands and feet. loss of words which I call my topamax moments. I stopped topamax before because of the hair loss so this time I am taking a multi vitamin with it since the topamax robs the body of biotin and other nutrients essential for the hair. I am hoping this works since topamax really helps with my nerve pain. Other then the hair loss I can deal with the other side effects and am really pleased with the med. F 38 1 days
9/5/2006
 4  migraines & back pain a little tingling, food tasted fine, pop fine, tired at each upped dose, have to force myself to concentrate, but when I do I'm really organized, a little vision alteration, no interest in food (but eat healthy), no desire for pain killers (which I had a problem with) - I think this may be a good drug for people with addictions. I had no problem with memory or word recall - everyone reacts different I guess. I took Topamax for 5 weeks about 2 months ago but went off cause I thought it was making me way depressed. But, I was on Wellbutrin XL (300mg) too. So, I think that's something people HAVE to consider about side effects: what OTHER meds are you taking? I went off both Topamax and Wellbutrin at the same time. I went back on Topamax yesterday and am looking forward to not having any more migraines (as it totally took them away before) and having no back pain (this too was relieved before) and also very much looking forward to the lack of interest in food and pain killers. Looking back I don't think the Topamax was causing the increased depression... it was more likely my circumstances and maybe the Wellbutrin poop-out. F 31 5 weeks
1/11/2006
 4  Encephalitis/Meningitis-Seizure Tingling in hands and feet, often nose and lower face. Onset of hair loss/breakage @ 15 weeks. Taste of foods altered. Soda/carbonation taste is awful. Difficult recalling words and sometimes stuttering. Side effects come and go. Soda/carbonation is no longer awful, but not as good as before. My neuro won't let me take other med's due to efficacy, however, this is probably unique situation. F 32 4 months
1/4/2006
Email
 4  combined migraine/tension headaches At 100 mg daily- tingling in hands, slight dizziness, temporarily feeling in a "fog" or out of it, difficulty finding the right word, extreme appetite decrease. After 4 months I lost 20lbs, then slowly appetite increased and weight came back to normal level, all other side effects ceased after a few weeks. After ten months, increased dose to 125mg because headaches came back, and I became nauseated, soda tasted flat, felt very out of it and mentally incompetant, didn't want to trust myself driving my car, and I was shaking a lot. I am able to go to school (college), and function, but I am hoping these effects normalize soon. F 21 10 months
9/14/2006
 4  Temporal Lobe Seizures Rapid heart beat, fast deep breathing, weight loss, insomnia, leg pain, increase in energy, some aggitation, memory loss, slowed thinking. The positive benifits of this medicine outweighs the negitive side affects by far, for me anyway. I lived on phenytonin for 3 years and never realized the affects of that medicine until I came off of it. I feel much better, and I have not had one seizure yet. I have not been taking Topamax for long, and it is a low dose, (100mg a day) so I'll keep that in mind. So far I am very pleased. F 37 2 months
1/23/2006
 4  Seizures Tingling/numbness in fingertips, occasional insonimia at night, significant cognitive blocks and incoherency, inability to stay on task and concentrate, extreme weight loss (over 100 lbs), nausea,dizziness, food often tastes strange, also I have eye pressure. In addition, I do have occassional depression, however, I do have an additional terrible illness. Therefore it is difficult to separate and blame one pill's side effects from another. Topamax has stopped the Generalized Seizures and this is outstanding and served the main purpose. I will tolerate the "minor side effects" which are from the pill. Topamax is a far better drug than others my body has had to endure for seizures. I am a teacher and I had seizures in front of the students and it was such an unfortunate ordeal for them to suffer through. I absolutely do not like being incoherent and at a loss of words. As a professional, standing in front of a group of people, staring at them and not having a word come to "mind" is a complete nightmare. Alas, I am now retired. It would be a pleasure to hear from others via email. F 55 2 years
2/5/2006
Email
 4  migraine prevention Tingling in hands, confusion (temporally), weight loss, don't like coffee nor chocolate anymore, concentration difficulties and still enjoy sex but CAN'T HAVE AN ORGASM ANYMORE with my husband???!!!! After a long search, I have finally got my sex life back to normal without having to quit topamax. I have tryed totally herbal and safe pills called SENSAFEM. You can read all about it on www.senfafem.nl and I bought them via www.drogisterij.net (the only online address where they send them around the world) This pill is for women only cause guys have the blue one... I just want to help women cause I know how frustrating it is to suddenly lose control of your great sex life with your husband. With this pill everything will go back to normal again! PS: I've also tryed SPANISH FLY and it also helps but it is different if you know what I mean... Good luck! Barbara. F 30 5 months
3/24/2006
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