TOPAMAX Reviews (TOPIRAMATE)Average Rating: 3.0 (1824 Ratings)Filter ResultsCompare TOPAMAX with similar:
Type: Rx Drug
|
Results are sorted by Gender with females listed first (reviews with no gender reported listed before females). Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 61 62 63 64 65 66 67 68 69 70 71 72 73 74 75 76 77 78 79 80 81 82 83 84 85 86 87 88 89 90 91 92 |
More on TOPAMAX: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR TOPAMAX | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 5 | Seizures and migranes | I had it all. But really tired of reading post of people complaining about this awesome drug. Side effects only last 90 days after you up a dosage. People quit to fast. This medicine took away my seizures and migraines, I had a healthy baby girl taking it.. And breast feeding on it. At first tingling in hands feet,paranoia,mood swings, thought people were breaking in my house, couldnt sleep,soda tasted gross,heart palpatations,bad taste in mouth,loss of appetite once I hit 100 mg,lost 40 pounds, loss memory , sometimes couldnt remember where home was, loss words and kidney stones. Low immune system causes weird sickness too. At first this is all a nightmare, I even hillucenated when my dose was too high. I'm just a normal girl .i was freaked out. But you get through it and it goes away. No more side effects ecept some kidney stones and a few lost words are well worth zero headaches and zero seizures and weight loss. Many people wonder why they gain once there off the medicine. Well,topamax makes its own matabolism in your body so once you start brvareful stopping. You might have problems. I would just continue on a low does. Lamictal is great second choice. No side effect and aids in weight loss too. I took this as well. Awesome drug. | F | 33 | 4 years 200mg | 12/7/2011 | 5 | chronic daily headache | a little tired, spacey, off balance, but those have gone away. I tolerate this medication very well | I had been taking 75 mg topamax for migraine and chronic daily headache prevention for years and only minor breakthroughs - - UNTIL 5 weeks ago when I got raging daily headache.with neck and back pain, ringing and buzzing in ears. After one week of being on 100 mg topamax, there has been significant improvement: hardly any headache, some neck pain and minimal noise in ears. This dose works great for me! | F | 46 | 7 days 2X day | 12/19/2011 | 5 | Migraines and Cluster headaches | Tingling in feet, difficult finding the right word (sometimes) | Since hitting puberty i've always delt with headaches and migraines. For a period during my twenties after seeing a nurologist and going on a medication (not sure what it was) they pretty much went away or were managable. After having my second child almost 5 years ago, it's been a down hill battle. Progressing to the point where my headaches were beyond daily, they never truly left, they would take a break for a couple of hours. The severity of the headach would change from worse to uncontrollable. And due to my life, i couldn't crawl into bed. I had to be here and available for my kids because my husbad is away alot. So i was not always the nicest Mommy. Since starting Topamax on Dec. 22 2011, i've had 2 shadow headaches and 2 actual headaches which were easily taken care of with Advil and a nap. I have my life back, I have my personality back, and so does my family. You could tell my I was going to die in 15 years from taking this medication, and I would still take it. I'd rather deal with any side effect present or future, and have feel good everyday, and turly enjoy those years, then go through the daily hell I was living in before. | F | 36 | 90 days 50mg 1X day | 2/1/2012 | 5 | chronic migraines | Side effects that I dislike are change in taste of some foods and drinks. Mainly pop, it burns when I drink it and if I eat candy, it just makes my mouth taste weird. Im losing weight, but thats not bad b/c I need to anyway. The first few weeks I was overly tired all the time. | I went from having 1-3 migraines a day to having 1 a week. Much better. | F | 31 | 1 months 50mg 1X day | 3/11/2012 | 5 | Bipolar Disorder | Initially, a little foggy, jitters, light tremors, dry mouth, blurry vision | I take generic Topirimate now, after taking Topamax for 7 years. Very glad to get this med because all of the other meds had so many crippling side effects. I have virtually no side effects with this drug, unless I miss a dose for several days and need to start over. It is a great mood stabilizer without the weight gain that is common in this type of med. I was able to halt the rapid personality changes from all of the other meds we were testing to find a good fit. This drug was an add-on to another drug that caused severe akathesia (sp?). The other drug was discontinued and topamax came out the mild winner. It is expensive, but necessary. | F | 55 | 14 years 400 mg 1X day | 1/6/2018 | 5 | Severe Migraine | Drowsiness after taking dose. Problems finding the right word (word searching). Mood swings. Some pains in legs. Jerking in legs and arms starting about an hour after dose. Shaking in hands (tremors). Confusion, forget what I was about to say. Weight loss. These sound like bad side effects and many of them, but since starting this medication I have not had a migraine. The side effects I have got used to, the migraine's I could never get used to. I owe a lot to this medication and the side effects to me are a small price to pay for getting my life back. I take my dose before bed so the jerking doesn't effect me much as by the time I wake up its settled, the drowsiness is good because I take it before I sleep, the pain in my legs in not constant, on and off and not severe at all, the tremors usually start a few hours before I'm due to take my dose so I think it could be my bodys alarm clock letting me know I'm due to take it. Word searching can be a little annoying but bearable, forgetting what I was going to say, happens to everyone anyway!! Just a little more with this medication, and the weight loss, I'm still at a healthy weight for my height with a BMI of 20. If you can try stick with it, this medication could change your life for the better. I tried so many medications and they all failed but this one changed everything. Kelly. | F | 24 | 1 years 100mg | 1/5/2012 | 4 | Migranies | I love Topamax and have been on it for over 3 years. I started out at 25 mg once a day and my DR stepped me up slower than most people because I am a smaller person. I'm 4'10 and weighted 120. I lost almost 20 lbs on it and went on the depo shot which is birth control to gain weight. At first and any time my dose was upped I couldn't drink pop I later found out I can drink it as long as its caffeine free and there is no weird taste. I couldn't eat butter, or sweets but the only thing I could eat was meat. Right I went off my meds for almost two months because they thought I was pregnant turns out I'm not so I'm starting back on them at the 150 mg. I am having problems with getting dizzy, forgetting, and now when I try to eat I can only eat a little at a time and I feel like I'm going to puke after I eat. That has never happened before. | As for the numbness or anything like that my hands and feet stopped after maybe 6 months on it, however my face and nose tingle and feel numb. All of the weird food things stopped within about a week every time my dose was changed and this time after going back on it I've not noticed it, only it making me sick to my stomach. But I went from having headaches that would last days or having 2 or 3 headaches a week and ending up the hospital to only having 3 to 4 a month. I believe its worth it. | F | 22 | 3 years 50 3X day | 12/25/2011 | 4 | migraines | tingling hands/feet, weight loss | update: since my first post in september, my doc upped my dosage because the migraines came back. but finally my insomnia went away, the tingling in my hands and feet are still happening, only on occasion though. confusion also went away, lasted about 2 months for me, that was probably the hardest side effect to deal with, almost made me toss the bottle. i've had only two "breakthrough" migraines. an extra bonus is the weight loss, after weight gain from being on another migraine preventative i have lost it all plus some on the topamax. i'm satisfied with this drug so far, it's been a blessing for me, i wish everyone else could say the same and i'm glad i stuck it out through the side effects those first few months! | F | 39 | 9 months 75 mg 1X day | 5/28/2012 | 4 | Migraines | Initially: tingling in hands and feet. Continue to have memory issues and kidney stones | VERY IMPORTANT: If you take this drug long term, you MUST take Potassium Citrate (ask your doc for a prescription). I had 5 kidney stones this last year after being on Topamax long term. But as long as you take this supplement, it will prevent the kidney stones. Also, I have found that Ginko Bilobia helps with the cognitive issues. The tingling in my hands and feet went away after a year or so. This drug has REALLY helped with my migraines and is worth the side effects since I learned how to combat them! | F | 35 | 4 years 200 1X day | 2/10/2012 | 4 | Migraines w/Aura, Tremors | Tingling in feet and finger tips, forgetfulness, drowsiness | Has helped tremendously with my migraines. Not so much with my tremors. The tingling comes and goes so it is not too bad. My appetite has decreased and I have lost abt 5lbs. Hopefully I will lose more as I can stand to shed abt 20 lbs. I sleep better at night and recommend taking this at bedtime as it knocks me out cold. | F | 36 | 15 days 25 mg 2X day | 9/11/2013 | 4 | migraines | Initially I experienced tingling feeling in fingers and toes occasionally but this subsided after a month or so. It did cause me to feel tired and a little fatigued, not wanting to get out of bed when the alarm went off. Long term side effects were memory loss and a kidney stone. | Despite the side effects (even the kidney stone that I had to have laser surgery to have removed) Topomax has helped greatly with my migraines. It reduced the frequency from 12 a month to 2 or 3 and it reduced the severity. I no longer get them so bad that I can't stop vomiting and end up in the E.R. In fact, the relpax pills now work to get rid of my migraines 95% of the time. I realized after the kidney stone and seeing a urologist that I need to drink 2 to 3 liters of water per day to prevent kidney stones while on topamax. Since I have been doing this I have not had stones and I feel great. The topamax also makes my memory not so sharp, I tend to forget names when I meet people an my short term memory is horrible while taking it. The topamax seems to numb your whit and sharpness just like it numbs or reduces your migraines. | F | 43 | 3 years 50-100 mg 1X day | 10/12/2011 | 4 | Bipolar Disorder | Minor sleepyness, weight loss, minor confusion, memory loss. | I am satisfied with this drug for the fact I wanted to be on it to help lose my weight I gained from another drugs bad side effect. The confusion is distracting but it does go away. Just have to make sure that the dose is increased slowly. Sleepyness is not a problem for me since i take it at night to help me sleep. | F | 25 | 3 months 50 1X day | 10/12/2011 | 4 | migraines | Started taking 25mg once a day last year. In the beginning, I had tingling in my feet and a weird metallic taste in my mouth from time to time. Raging appetite and then I would lose my appetite all of a sudden after I sat down to eat. I lost about 10 pounds after I was on it for a few months. I also had a lot of anxiety that easily turned into panic attacks. My doctor ended up starting me on Zoloft and that has worked for me for 10 months. I have had more frequent migraines- my doctor increased my Topamax dose to 25mg BID and after one extra dose I am DIZZY!! I hope this goes away soon because it is annoying. | F | 31 | 10 months 25 1X day | 9/27/2011 | 4 | migrains | Food tastes metallic,extermely thirsty,sinus infection,floaters in eyes, blurry sight, can't read out loud { miss words, mistake words} slurred speech, increased fibromylgia symptoms | I was on 25 mg 2 x per day for the last 2 years with no side effects and good contol of migrains until 3 weeks ago. My doc upped my dose. My migrains have gone away but the side effects have appeared. Unfortunatly my migrains are worse than the side effects but not by much, so I will keep on the topamax for awhile longer and see if the side effects go away or get better. I wish there was something else that worked this well for migraines but didn't have all the side effect. | F | 44 | 14 days 50mg 2X day | 9/27/2011 | 4 | chronic migraines | Tingling in hands and feet, foggy mind, tired a lot at first, memory loss, weight loss. | I have been on an off of this medicine for several years. I am a writer and have to go off of it for periods to clear my mind. I feel like a veil is lifted and I see the world so clearly when I stop taking it, yet it is the only medicine that fully relieves my chronic migraines -- a bittersweet pill to be sure. The tingling in hands and feet feel strange at first but I can adjust quickly; however, the tingling becomes painful if my feet fall asleep! Also, the generic does not work for me (and my neurologist said it is made in another country and isn't surprised) so I pay the huge difference in copay. Love the weight loss side effect (which NEVER occurred with the generic for me). Good luck to all. | F | 50 | 60 days 50 mg 4X day | 10/23/2011 | 4 | daily migraines | occasional tingly hands/lips, beverages have diff. taste, i had trouble sleeping, but it seems to be getting better as time is going on. | i have to say i fought taking this drug for a very long time because of friends who have had bad exp.(hair loss, sexual side effects) on it, and i've followed this board for a long time, and quite frankly, it scared the crap out of me! but i'm at wits end, fighting migraines for 10+years, and i'm tired. decided to go for it, so far on the lower dose it's not so bad, it's helping so far and i feel good. seems the higher the dose, the worse the side effects(?). anyways, since i've used this board for reviews for so long, figured i might as well jump in for once! i'll get back to it as things progress and let you know how it's going! | F | 38 | 3 weeks 50 mg 1X day | 9/4/2011 | 4 | migraines!!!! | not much weight loss and bad memory. | I was takiing topamax for four years and receently went off (2 yeasr) on my own thinking I didn't need it anymore. I was WRONG!!! Migraines are back 3 times a week and as bad as before. Im wondering if i go back will it have the same effect on my migraines???? | F | 36 | 4 years 150 mg 1X day | 8/22/2011 | 4 | Alcohol Dependence | Tingling in hands and feet. Loss of sexual desire. Forgetting owrds and a general spacey feeling. | This was an amazing drug for me. It helped me to quit drinking were before it was impossible. I would recommend this drug. Highly. Had to go off of it because of the sexual side effects that husband did not like. Other than that, GREAT! | F | 36 | 2 months 50 mg 2X day | 8/6/2011 | 4 | Migraine | Tingling in Hands and Feet (first two months), Forgetting words (still suffer that effect sometimes), Feel the heat more intensely in summer | As a menstrual migraineur who was bedridden twice each month with the most shocking migraines imagineable, I did not think anything was going to help me. Topamax has quite literally given me my life back. I think the side effects of this drug are exaggerated by many people and once you get over the first month, it's quite easy to tolerate. Every other migraine drug did absolutely nothing for my migraines, but Topamax makes them like a mild headache and I can fully function throughout them. | F | 45 | 2 years 50 2X day | 7/31/2011 | 4 | migraines | slight dizziness, tingling in hands and feet, loss of appetite, slight stomach problems, trouble finding the right word, trouble memorizing (college student), | I usually don't have problems with medicine, so what I'm experiencing is the worst that's ever happened to me. However, it has helped me with my migraines. I'm functional in the afternoons (which is when I had my headaches), and that's a step in the right direction. I've lost a little bit of weight, but I've also been exercising more as well, so I'm not sure what is the cause. This medicine will make you lose your appetite, however. Food isn't as appealing to me anymore, and carbonated sodas taste terrible (I didn't really drink them much to begin with, though). My stomach makes a lot of weird noises, but it doesn't really hurt. I feel slightly dizzy at times, but it is only occasionally and nothing that is really frightening. The numbness in my hands and feet, however, does get old after a while. If I cross my legs or sit on my feet, they get pins and needles in about half the amount of time they used to. I also sleep funny, so I wake up with numb hands and fingers. Being a college student is a little tricky with this as well. I can get through the word association okay because I write for fun on a daily basis, but trouble with memorizing has impacted a few of my grades. I would recommend this medicine, however. ONLY if you know you don't have strong reactions. | F | 18 | 2 months 50MG 1X day | 2/9/2011 |