TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by Gender with females listed first (reviews with no gender reported listed before females).

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 5  migraine prevention Initially I had numbness to my lips and strange areas like my heels and different parts of arms and hands. I had a little trouble finding words, but very gradually increased my dose and the side effects disappeared within a month. I had migraines five days a week which were crippling before Topamax. I started on 25 mg once a day and worked my way up to 200mg twice a day. In addition to supplements, I now have migraines maybe twice a month, which are easily controlled with Imitrex and Fioricet. I never could have said that before. Topamax has saved my life and let me live again. F 46 15 years
200 mg 2X day
5/3/2018
 5  Migranes Tingling in hands and feet, slight temporary memory issues Took about six weeks to reach full dosage, but headaches that were almost daily have completely stopped - nothing else worked! F 45 3 months
100MG
8/31/2019
 5  SEIZURES SOMETIMES BEING COLD,WEIGHT LOSS. BEST MED OUT THERE. F 46 25 years
400 MILLIG
3/8/2019
 5  Chronic Daily Migraine Tingling in hands, weight loss of 10lbs, daytime sleepiness, improved mood. The tingling and sleepiness resolved after about 6mo-1yr. I still get headaches but this medication reduced the frequency and severity by about half and the side-effects weren't terrible. F 34 16 years
100 mg 1X day
1/9/2020
 5  Migraine Weight loss F 61 0 days
30
3/10/2020
 5  Hydrosyphilis / headaches Itchy scalp/ no appetite/ nausea/ tiredness F 46 7 years
200 Mg 2X day
8/1/2020
 5  Migrains Soda tastes flat, I have loss, about 30 lbs, but I rarely have headaches anymore and if I do a tylenol gets rid of it! I was a little foggy for the first couple months but nothing I couldn't deal with after what I had been thru with all the headaches. Think the trick is to be on the lowest possible dose. My Dr started me on just one tablet for 6 months and that was plenty. I have heard some go to two tabs right of the bat ...took a bit for the body to get used to. F 55 3 years
50mg 1X day
7/7/2015
 5  Migraines F 21 8 years
50
10/11/2015
 5  Migraines Coughing, stomach pain, diaharea. Weight loss of 22 lbs in a month and a half. Migraines have lessened. I take 50mg 2 times a day. Love it F 37 2 months
10/8/2015
 5  migraine Stomach ache F 65 1 days
100mg
10/23/2015
 5  diabetic & high BP Dry mouth,I have so many other things going on I don't know what if any side effects I have. I have lost without being hungry. F 63 4 months
46 mg s
12/11/2015
 5  Uncontrolled Migraines None so far... I took the first dose last night before bed and I woke up today completely headache free!! I am on a taper increase dose so I will take 25 MG for one week, then increase to 50 MG for one week, then 100 MG at bedtime until reevaluated by my Headace Specialist. I hope this medication will help with my migraines. I have tried nearly everything else. If this medication works it will be worth any negative side effects. At least for me anyways! F 35 1 days
25 MG
3/23/2016
 5  anxiety I've been taken off of topomax by my neurologist and having terrible withdrawals. F 56 2 years
400 mg
4/20/2016
 5  Uncontrolled migraines I have increased my taper from 25 to 50 and noticed sleepiness the first day, but not the second. Some indigestion, but not intolerable. My goal is 50 mg BID, so I am hopeful it continues to go smoothly. The huge thing NO HEADACHES. This is the first time in YEARS I have gone without severe headaches. It is life changing. F 39 1 weeks
50 mg
5/1/2016
 5  Migraines and depression So far Topamax has been a blessing for me.Helps from having to suffer from having headaches for days.Also helps to stabilize my depression meds. F 60 3 years
200 x day
5/29/2016
 5  Hormonal Migraines Tingling (Potassium Fluctuation), "Topamax Moments" (knowing I want to say a word, but not being able to pull it out of the file of my brain), and at higher levels - trails of light periodically along with a loss of appetite. This medicine works. It's been a God-send for me in terms of controlling the length of time my body will entertain a migraine, along with the severity. I have been using it for over five years. Each person is different and each drug has side effects. What I can say, is I've been at 400 Mg and 50 Mg - back and forth - and 100Mg seems to be the perfect place for me. I can keep my appetite. When I'm having a "Topamax Moment", and muddle a word - I know why and I openly share it with whomever I'm amusing. It sure beats four days of not being able to converse at all. If you are coming here looking to see if you should give this drug a shot, I personally recommend having a heart to heart with your MD about it. The way I see it is - if you take this daily and allow yourself a good 14 weeks to let it settle in, you may be able to get on with your life in a way that's not possible when you are migraining. F 33 5 years
11/3/2009
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 5  Rapid-cycling Bipolar--NO HCTZ!!!!! HUGE CAUTIONARY WARNING NEEDS TO GO TO ALL USERS ASAP NO HCTZ!!I WAS PRESCRIBED HYDROCHLOROTHIAZIDE FOR MY BLOOD PRESSURE MED.CAUSED CHRONIC VERTIGO! 4 DR.'S 2 ENR SPECIALISTS LATER,ICONSULTED A PHARMACIST) REGARDING MY CONCERN THAT THE SERIOUS VERTIGO SITUATION WAS BEING CAUSED BY A CHANGE IN MY BP MEDS.(THAT WAS AN UNBELIEVABLE 7 MONTH NIGHTMARE EXPERIENCE).I'VE BEEN REFERRED TO NEUROTOLOGY FOR FURTHER TREATMENT JAN/10?).ALL REVIEWED MY RECORDS (INCLUDING TOPAMAX (AKA TOPIMIRATE) PRESC))& SAID NOT SOURCE.I FINALLY DEMANDED NEW BP MED 76 HRS AGO FROM GP;WHAT A DIFFERENCE! DO NOT TAKE HCTZ W/TOPAMAX!!!! I AM NOT 100% BETTER...BUT I FOUND THE SOURCE (100% SURE) NO HCTZ!! MAY CAUSE SEVERE CHRONIC VERTIGO ISSUES NOT REGOGNIZD BY HEALTH CARE PROVIDERS OR PHARMACISTS AS ISSUE. F 49 6 years
11/27/2009
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 5  Chronic Daily Headaches Weight Loss, limb tingling, loss of short term memory, felt stupid, "phantom bladder infections", achy legs Topamax worked great for my daily headaches 100mg a day, I lost 20 pounds which was also great! BUT the side effects made me give it up. I could handle the tingling and the aching. But the stupidiness was unbeleivable, I would forget the simpilest things and at the worst time. And then the phantom bladder infections started after 3 months, symptoms would last 2 - 3 days and then go away, this would happen 2 -3 times a month. This was the final straw for me even though my doctor could not say it was because of the topamax, I knew it was. Sure enough I weaned off the topamax and have not had a "bladder" infection since.It has been 8 months. F 44 6 months
11/18/2009
 5  Bipolar II (rapid cycling) Nausea all day but could also be due to Yasmin that I started taking at the same time; anxiety in the first two weeks; difficulty with word retrieval; stumbling over my words; silly typos; a bit emotional (could be Yasmin); weight loss; stopped craving sugar and carbs; I think Topamax is wonderful! I was on Epilim (sodium valproate) for 15 months and although it helped stabilize my moods to a certain extent, I gained 40 pounds and experienced severe fatigue and brain fog. I have never felt so stupid in my life! I experience only about 10% of this brain fog on Topamax which I can cope with plus I have lost 11 pounds in just 6 weeks. It is wonderful to be freed from the binge eating and shopping sprees that I was prone to before. I feel like the real me has emerged from bipolar hell - a calm, in control, happy person who is in touch with the world. It took me 28 years to get the right diagnosis for my condition and 2 years to find the right drug... what a miracle! I am so grateful! F 44 6 weeks
12/10/2009
Email
 5  migraines dizziness,tired,weight loss Topamax has for the most part made migraines disappear. I do have occasional stress headaches and use OTC migraine medication. It also stabilizes my weight which is an additional bonus. F 35 6 years
12/31/2009

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