TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by Gender with females listed first (reviews with no gender reported listed before females).

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 5  Cluster Headaches,Migraines To say speech problems would be putting it mild, slow thought process,restless,sore throat,soda taste bad, decreased appetite, and minor hair shedding. After talking to someone who was once on the same medication, I decided to stay on it even though I was having all of the side effects. One day after the second week, the speech problems just went away and everything else just followed. Now I am headache free and no side effects for now. I am praying that I will not get any new ones, so for now things are great. Good luck to any one who is starting and to those who are already on it. F 34 4 weeks
50 2X day
3/29/2011
 5  Migraines Some tiredness and irritability, lightheadedness, slurred speech initially when I started the medication, but after a few months those symptoms disappeared. My mind always tended to race and I had difficulty concentrating prior to starting medication, thus medication did help improve my ability to focus, prior to starting Topamax I suffered from migraine headaches almost on a daily basis. If caught early I was able to take another medication called Imitrex, but this only worked on migraines in the early stages. Often I would wake up with a full blown migraine with the sensitivity to light, noise, frequenly vomiting and feeling like my head was going to explode! The Topamax prevents the migraines from getting that bad. Occasionally I have a breakthrough migraine. This only occurs maybe twice a month. I guess I got lucky, I could not function before taking Topamax. It was a lifesaver for me. F 47 13 years
100 mg 2X day
6/29/2011
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 5  epilesy tingling like sever pins and needles in hands and feet and even in mouth at the beginning. weight loss. word loss. spaced out. insomnia. i started out on a 100 and lost a stone and a half in a month the pins and needles were very odd but settles down after a few weeks i still get them quite badly in my feet, if i sit in the wrong position, ones i could before sometime it is almost painful. the word loss can be very frustrating mid sentence its just gone, but that to has tailed off,still get it from time to time. the side effect i dislike the most is the weird spaced out part. think someone else describe it as the something to do with a train stopping but the world still moving, it can feel a bit panicy at times and because of the epilepsy can make me feel i am about to have a fit which can lead to more panic. this to has tailed off and overall i am very happy so far with this drug as i have only had one seizure in 8 months and that is just brilliant. F 29 8 months
100 2X day
6/15/2011
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 5  migraines moods Yes some forgetfulness, I miss my Diet Pepsi. Can't stand the taste of sodas and some foods tase funny. It has worked well for me, I can tell when I let my precription run out and don't take it for a couple days. F 40 90 days
50MG 2X day
7/9/2011
 5  Mood Stabilizer weight loss, insomnia, energy, feeling positive "up" "good" out of my depression. If anything that is close to negative about Topamax is that it keeps me awake for all hours.. I can get a max of 3 hours of sleep at night, BUT when I wake up the next day I will STILL have all this energy as if I slept for 9 hours. AND not get tired all day. I read as many reviews as I could about Topamax, and all/most of the reviews were negative. I have not yet experienced ANY of the side effects except for the weight loss. I have NOT experienced brain fog, "dopey" feeling, tingle feeling, hair loss, loss of energy/tiredness. F 35 2 months
50 mg 2X day
7/23/2011
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 5  PTSD I have lost weight and had the fogginess people talked about, but that passed. Overall this drug has helped me overcome my panic attacks and other things that come with PTSD. It's been a miracle, really. It's also great for migraines (which I have and it's also prescribed for.) I take it at night, but it doesn't make me drowsy. I have heard that it does make people drowsy, but not me it sometimes made me tingle in the mornings - so I now take it at night. I do notice if I miss a dose, I get tingly hands and things.. that's one disadvantage, but certainly not enough to make me want to stop it. If you notice any hair loss, ask your doctor about Biotin. I started taking that and it's helped a lot. I noticed more hair breakage than anything, but my hair is really thick. This drug is one drug that has helped me face my trauma and get through the days. I fought through the tingles and the fogginess for a few weeks and now it's great! I'd say that lasted 4-6 weeks or so, in the end.. totall F 26 10 months
300 mg 1X day
7/31/2011
Email
 5  severe migraines 2+ years Tingling in hands, feet, scalp, face. Initially much worse, has lessened dramatically with time. This medication has made my life so much better! Yes, it has caused some daze, and fog. There are times when I do feel like I am at a loss for words, but they are few and far between. I am working full time, a full time mother and doing very well. I know with out this medication I would be completely homebound. For me, the benefits FAR OUTWEIGH the side effects!!! F 42 2 years
150 MG 2X day
7/27/2011
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 5  Daily migraines Initially I had a difficult time finding the right word or saying the wrong word, but this went away over time. Weight loss, appetite loss, hair loss, feeling "spacey" or "out of it" or like I was really tired or had low blood sugar even when I had slept well or just eaten, this also tends to improve with time. Soda tastes strange, other foods sometimes taste odd. Tingling in hands and feet. I was scared to death to take this medication because I had heard so many horror stories about it and finally gave in because nothing else had worked so far to prevent my chronic migraines. I wish I had not waited so long!!!! Yes, there are some strange and honestly a little scary at first side effects. They don't call it "Dopamax" for nothing. You feel really out of it, but its managable. I honestly felt just as dumb after a really bad migraine and it works really well for me in preventing them. I can see if it didn't work for you why it wouldn't be worth it, but the benefits SO far outweigh the funny side effects. and they really do wear off after a few weeks. Also an added bonus I found is I I tend to have an addictive personality. But on Topamax, I could care less about playing video games, eating junk food, having a drink etc. That is just something I found interesting... F 32 1 years
50 mg 2X day
7/28/2011
 5  migraines weight loss, tingling of hands and feet This pill has given me a new life. I had chronic migraines and it has reduced them completely. I barely have any side effects, can work and study with no problems whatsoever. F 22 4 months
50mg 1X day
8/10/2011
 5  headaches can't sleep F 70 9 months
30mg 1X day
8/26/2011
 5  migranes and rsd loss of appetite, I forget to eat, but alot of my other med do that too. but with this medicine the only new side effect i notice is sometimes i feel like i have a sunburn all over my body from the inside out. other than that it works pretty good. my migranes have decreased some and i dont have them as often, but my rsd is still about the same. My memory is not good but i don't know if it is soley from topomax or the other meds(i'm on 13 other meds too) overall the side effects are worth the benefit. F 44 60 days
100mg 2X day
9/19/2011
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 5  Mood Stability/Weight Loss Can't taste carbonation occasional tingling in hands/feet After gaining 40# on Cymbalta, My doctor decided to try Topamax for both mood stability & weight loss. I was scared to death after reading some of the horror stories on here. I have been on it for 3 months, & it has really given my life back to me. I have lost 20# in 3 months- without even "trying" too much except adjusting portions. My mood has improved a great deal, I focus better, and just FEEL better. I am so glad I started taking this medicine. F 26 3 months
50 MG 2X day
9/17/2011
Email
 5  Epilepsy tingling, numbness, some slight slurring of speech, memory loss, weight loss, exhaustion, loss of libido(?) I'm lucky, despite having similar side effects that everyone else has, they don't bother me much and I have very few issues that are problematic. I used to take Tegretol for years, but that started changing its effect. Then my doctor switched me to Topomax. I have the tingling and numbness, and have some slurring of speech, but it's not noticeable, really, just sounds like average person messing up. I do have trouble remembering things, which sucks because I feel dumber than I know I am. I lost weight, but was also trying to-- about 30 pounds, whereas with Lamictal (I took that for awhile and hated it) I gained the 30 and couldn't get rid of it no matter what. Topomax has completely done away with my anxiety, panic attacks, auras, EVERYTHING. My period has become irregular lately; I'm 41 and I am wondering if I'm perimenopausal or if it has anything to do with the Topomax. I definitely have less of a libido in the last year or so-- may be just my age. F 41 4 years
100 2X day
10/22/2011
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 5  Migraines minor tingling in fingers and toes, some thirst, weight loss initally but tapered off at 30 lbs, minor issues with concentration Overall, this medication has been a GODsend! I suffered from nearly 25+ migraines per month and now only approx 5 per month and this has allowed me to live a productive life. It is not perfect, but it is also a good performer in that it prevents severe migraine attacks and allows me to prepare for the "smaller" ones with my abortive medication by taking my preventative daily......until this medicine was out there, there was no hope......now, at least there is a day to day buffer against the beast of the harsh daily hammer on my head.....thank you Topamax! F 37 6 months
100 MG 2X day
9/28/2011
Email
 5  frequent migraines tingly hands and feet, metallic taste in mouth, weight loss, lack of concentration I was put on topamax my senior year of high school and so was my sister one after the other. We were both having constant migraines inherited from our mom (who is also on topamax)i could not handle the tingly feeling!! (I also have panic attacks to the nth degree and when ones coming on my hands and feet get tingly.... So the side effect made me think I was having a panic attack no good) but as long as I took it the migraines stopped and the tingly would subside after a couple of weeks of taking it. The metallic taste was awful. Can't complain about the weight loss as I dropped 30-40 lbs while on the drug. And yeah I needed to lose exactly that to be at a good weight (yay!) after 6months of taking it though the tingly came back with a vengeance and that was the end of that! My sister stopped taking it about a year later as she realized her migraines were stress related and now that she's understands this does not have migraines. I just take Excedrin for mine and mom is still on it 3 years later successfully no side effects. F 21 6 months
50 mg 2X day
9/30/2011
 5  Epilepsy Initially, soda tasted disgusting. From time to time, I still get the pins and needles feelings in my feet. I am still waiting on the weight loss everyone else gets to experience..lol. I haven't ever really experienced the "dopamax" effect many people talk about. when I was first diagnosed, I was put on Dilantin. I hated the blood tests. It also did not completely keep my absence seizures at bay. I was placed on depakote which made me vomit in technicolors. Carbatrol made me a zombie. Topamax was the wonder drug. With provigil as a morning chaser to ward off sleep deprivation seizures, I am a happy camper! F 39 12 years
150 mg 2X day
10/30/2011
Email
 5   This is a great med.... it works great for migraines and you do lose weight.. you just have to get past the tingiling in your toes and fingers...give up anything with carbonation, and forget trying to concentrate ;) lost 45 lbs on this went from 145 lbs too 100 F 26 2 years
50 mg 2X day
11/10/2011
Email
 5  As a mood stabilizer for Bipolar Tingling in arms, hands, legs, feet, face, eyes, and lips; Hot flashes; loss of concentration and ability to spell correctly; muscle spasms; aches and pains; nausea; diarrhea; loss of appetite; these get really bad if I miss a dose! I have been on this medicine several times before now, but have had to stop taking it for one reason or another (once because I stopped sweating in the middle of a very hot summer, but usually because it stops working.). I know that this medicine helps me more than any other, but I can't take it without an antidepressant, as it causes me to have crying spells at the drop of a dime for no apparent reason. I actually feel normal when I'm on this medicine. I rated this medicine a 5 because it truly is my life saving happy pill! F 27 5 days
50mg 1X day
11/12/2011
 5  chronic migraines Tingling in fingers and toes at first a lot, now only on occasion. I still sometimes have trouble doing simple math in my head. Word-finding problems on occasion. Weight loss that evened off. From the time I was 11 I had migraines everyday, all day, nonstop. Topamax saved me from a life of living in the dark. F 24 4 years
250 1X day
11/12/2011
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 5  Migraines For a few months at the beginning, tingling fingers and feet and I still can't enjoy soda (a good thing). I lost approx 15 lbs (also a good thing). Fabulous drug. I started getting migraines at age 47 (Dad had them) and had 5 - 6 per month. Each migraine lasted a day and was awful. I travelled a lot for work and had to miss flights, stay in hotels. Once I was on my own at home with my younger child and couldn't even manage to get to the phone to say I couldn't bring him into school. I haven't had a full blown migraine since I started taking Topamax. I still get quite a few headaches including what I consider would otherwise have been migraines, but which are now dampened to a very manageable level now. I just take Rx strength ibuprofen and I'm pretty much OK. Previously I found no medication whatsoever that even started to make a dent in the migraine pain and related issues. F 51 4 years
50 MG 2X day
11/19/2011

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