TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by Gender with females listed first (reviews with no gender reported listed before females).

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 5  Migraines I have had no side affect that I am aware of. I have been migrane free for 10 years now and I used to get them several times a month. Topamax had changed my life. F 49 10 years
100mg 2X day
8/23/2012
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 5  Migraines, Cluster Headaches I experienced most of the warned side effects for a period of a few days and then I got over them as my body adjusted to the meds and later to the dosage increase*. I was concerned and thought I was getting sick- but I learned to just wait it out for a few days. (This happened again when i changed the dose.) Now the only lasting side effect is occasional tingling/ loss of feeling in my feet and lower legs. (*I was on 50 mg for the first month then increased the dose when it wasn't working enough.) This medication has almost completely gotten rid of my migraines and has completely gotten rid of my cluster headaches. I have had about 2 migraines since increasing the dose (compared to about 4 a week.) I have tried other prescription meds and was disappointed. Personally, for my situation, this medication is impressive stuff. F 21 4 months
100 1X day
6/20/2012
 5  anxiety after hysterectomy Tingling, weight loss, hair breakage, memory challenges and sentence forming issues. LISTEN UP TOPAMAX USERS. If this medicine is helping you but the side effects are rough, here is some help. For things such as memory loss and speech issues, you have to drink plenty of water and take vitamins...that helps a lot. Things like tingling go away after a while. If taken at night it relaxes you and helps you sleep for those with insomnia issues; and don't be afraid to ask for something to help you sleep as this can be an issues with age because the body producing less selenium. The one side effect that you are not always warned about that feels really debilitating is the hair loss and the bowel blocking constipation. For the hair loss especially for women in menopause take niacin..add it to your vitamin regiment regularly. It will help with thinning, hair loss is certain spots and breakage. For the constipation which can stop normal life activity as you currently know it, you have to take two things if it is severe for you...regular laxatives do not help..you need something stronger. Here's what I found that works for me...Reneu from FirstFitness. Go to anewu2stay.firstfitness.com. Then go to shop now-herbal cleansing and you will see where you can order Reneu. This is the only thing that helped me and I also take a generic (equate brand) stool softener as well. Topamax is no joke when it comes to constipation and most of us don't drink the daily recommended dosage of water anyway. LISTEN UP TOPAMAX USERS. If this medicine is helping you but the side e F 48 4 years
100mg 2X day
7/12/2012
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 5  Neuropathy and head injury migraine Hair falling out, hair is dry and brittle, numbness and tingling in hands and feet, tired, no appetite, no sex drive, stomach irritation, there are side effects but the benefits outweigh them. F 38 10 months
300mg day
6/20/2013
 5  Migraines/weight loss I'm Taking along with 37.5 phentermine. I've lost 15 lbs so far and have had only a few MILD Headaches before my period since December. Topamax has been a life saver as far as my migraines go! Mild Tingling in feet sometimes, and diet coke still taste gross. The only Downside is the Blurred vision I get when we have tried to increase the dosage. F 45 4 months
125 1X day
4/22/2013
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Patient History
 5  Migraines (1-3 a month) I have only had the tingling in my hands and feet periodically but nothing horrible and my diet DP tasting bad. I have also had an awful sore throat for the last 2 weeks but not sure if its related. I have lost about 10 lbs but I'm not complaining there!!!!! I haven't had a migraine since starting Topamax! For me, it's been a life saver! F 32 2 months
100mg
4/18/2013
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 5  migraines none F 39 6 months
100mg. 2X day
2/3/2013
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 5  Migranes/bi-polar None I have been on many medications over the past 23 years and Topamax is the second one that I have been on that I can take and not have any fears about. It has helped me get out of bed and off of the couch. I know that not every medication works with everyones system but I have been very fortunate to have had a great doctor to help me with Topamax. F 43 6 days
10/28/2005
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 5  migraines tingling in my face especially the tip of the nose (temporary) metalic taste I had a had a very bad car accident and that is when the migraines started also had some emotional problems as a result of the accident, I take 100 mg in the morning and 100mg at night. I do have problems if I don't consistently take at the same time everyday. I went from severe migraines 6 days a week to 1 or none in a month. I for sure got my life back with Topamax. F 25 4 years
11/17/2005
 5  epilipsy, headaches short term memory loss, bad taste in food, nothing tasted right, weight loss, trouble finding words, confusion, tingling in hands Topamax has helped me tremendously. I lived with a headache every day for years, and since i've been on it, no more headaches!! What a godsend. Only problem is the memory loss gets to me. With 3 kids, memory is vital. But, not having seizures is also a very good thing!!! The good definitely outweighs the bad! F 26 4 weeks
11/1/2005
 5  chronic daily headaches, migraines tingling in toes and fingers. stomach pain. Small decrease in appetite.feeling spacey. I was getting really bad migraines 3 times a week, and daily headaches that were lasting up to 18 hours a day. Topamax is awesome. I've been drinking tons of water, I don't want to get a kidney stone! Pop tastes fine.Im taking 25mg for 4 days, then increasing evry 4 days till I reach a max of 100 mg.So far though all is well. I'd deal with almost any side effect not to have those nasty migraines!!! F 26 7 days
11/10/2005
 5  Migraine prevention Insomnia, Tingling "buzzy" feeling in face, lips, arms, hands, Can't find the right words at times, Stomachache (not nauseau, but pain), Coated tongue, Weight loss -- 30 lbs. in 5 months, Antsy feeling in legs at night, Hot when sleeping, then cold, then hot, Slight Diarrhea at times, Food, drinks taste funny, Marked decrease in carbohydrate cravings, Bruising on arms I took Depakote for 3 years with OK results for migraines but found a weight gain of 50 lbs. to be unbearable. Topamax seems to be working-- Migraines down from several weekly (lasting 2-3 days to 1 or 2 per month, or fewer). Have now gone almost 1 month without a migraine. Currently taking 100mg. at bedtime. Most annoying side effect is coated tongue, dry mouth and "buzzy" feeling of face and lips. I do feel the bothersome side effects are worth it though because the migraines are so debilitating and interfere so much with work and home life. Hopefully the side effects will ease up over time. F 50 5 months
11/28/2005
 5  Bipolar Been on Topamax since Septemeber 2004 which is 3 months,, I am now up to 200 mg per day,, I feel great,, No symptons except some tingling ,,this is rare ,, other than that I feel great, some weight loss,, 10 lbs in the first 2 months and still losing I eat well no junk food ,, I can still drink pop,, but I drink alot of water as one should with this drug for kidney stones ,,, I think this is the best drug yet ,, since I have been diagnosed Bipolar in 1990,, I have been on Lithuim, Etc,, you can e-mal me at [email protected] F 46 3 months
1/17/2006
 5  migraine prevention Hair loss Hair Loss is the down for me, 25 mg at night, I can now think (no headache. I can deal with the not sleeping and weight loss. My doctor added Pamlor and that helps with the sleeping (up to 6 hours a night) and now trying to weed out what is causing the hair loss. Both have the side effect of hair loss but it started first with the Topamax and broke off down to the scalp. Help!!! F 42 3 months
1/27/2006
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 5  chronic daily headache itching, tingling, out-of-body experience, weight loss, eye pain, all mild I'm a physician with a 5 year hx of daily migraines; had to stop working. Imitrex, beta blockers, calcium blockers, Neurontin, Keppra stopped working/never worked. Neurontin + Depakote worked but lowered my white cell count severely. Increasing Depakote worked but I was too tired to even walk. Less Depakote + Topomax + nortryptiline (Pamelor) has done the trick. I still get 2 migraines a week, treat with Maxalt. No more narcotics, Tylenol or aspirin. You have to stop these drugs or you'll keep rebounding. BE SURE to start slowly with Topomax and be patient. So sorry some of you have had bad luck with it. I know how you feel; it took me a long time to get the right drug combination. Now I can think about working again. My brain manages to function fairly well; Topomax dose is up to 150 mg. F 53 35 days
3/9/2006
 5  chronic migraines, basilar migraine difficulty finding words, dizziness, soda tases funny--not a problem, I live in the South and drink tea instead :D I've had migraines since I was 5; over the last two years they became pretty much constant, I'd usually go blind in one eye, sometimes have stroke symptoms. I've been taking 50mg Zoloft and an aspirin a day (got rid of the auras, but still daily migraines). Since I started taking 50mg Topamax a day (in addition to the Zoloft), I haven't had a single migraine or anything. I had forgotten what it was like to be able to just go to class and walk around without worrying about getting sick. The side effects are NOTHING compared to what I was dealing with daily. (Drawing a blank << Aphasia) Hooray Topamax! F 20 14 days
5/1/2006
 5  complex migraine tingling in fingers and chin, can't detect carbonation unless very potent, loss of appetite, minor weightloss (only as much as you can afford-I think), I used to workout for 2 hours a day--running for at least an hour now I can't get through 20 minutes without stopping, but I can do everything else. I am migraine free and know what it is like to wake up in the morning without the fear of getting one, a freedom that I haven't known for sometime. I really got on this site to read about other peoples experiences, I was really apprehensive after I read about some of the side effects. I came to let others know, that I have had nothing but a positive experience, that there are a few very minor side effect for me, but I now can live my life. I have not had one migraine since I began taking it over a month ago. Over the years, I have tried Imitrex, Maxalt, Crainosacral treatments and Chiropractics, dietary changes, vitamins and other supplements, nothing worked, not even temporarily. F 28 6 weeks
5/15/2006
 5  migraines tingling(feet,hands,face,scalp)dry mouth,change in taste, loss of appetite, dizzy when getting up quickly, change in menstrual cycle This is my second try with topamax, the first time the doc put me all the way up to the full dosage, and this time he is keeping me at 25mg only. I love this medicine at a low dose. It works great for migraines, i have been pretty much migraine free since i have been on it, and i was getting them every day. i have to be careful of the weightloss though, i am a very thin person to begin with and the doc said that he will take me off if i lose any weight, so i force myself to eat. F 38 13 days
5/4/2006
 5  Migraines - DAILY AND SEVERE tingling in extremities and slight numbness in lips. some difficulty in word-finding on occassion. was only sleepy in beginning. I'm like the cheating girlfriend returning to the faithful boyfriend. I used this drug once before and it worked, I just didn't like the tingling. My toes -- especially my big toe -- would literally go purple when it tingled and it would be like pins poking me. So, I thought the grass would be greener elsewhere. Plus, it gave me a sweet tooth (no weight loss here!). So, I went to a neuro and had bunches of tests and tried at least 3 other drugs (the ones I can remember: Nortriptyline -- caused my hair to fall out, Zonegran -- caused deep muscle and joint pain, and Lamictal -- caused double/blurry vision so bad I had to go to the eye doctor b/c I thought I was going blind!) After all of those horrible experiences AND having to be hospitalized for rebounds from OTCs, I decided some tingling and minor cognitive difficulty was the lesser of the evils. Not too painful and I know I'm not stupid. So I'm back. I've gone from level 9-10 migraines (frontal, cluster, sinus, you name them) every single day to tiny, nagging headaches maybe every other day. And I've only been back on less than 3 weeks. Time will tell if any of the other side effects creep up this time. By the way, love the pp who said F 31 3 weeks
8/25/2005
 5  Migraine control much needed weight loss, some cognitive impairment (my husband says I seem more spacey) but I count it all worth it for how well it has taken care of the headaches. F 36 9 months
9/4/2005

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