TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by Gender with females listed first (reviews with no gender reported listed before females).

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 5  Chronic/ Daily Migraines Weight loss, Decreased appitite, pop tastes funny but like others i have switched to drinking water, hard time coming up with words sometimes I have had migraines since i was two years old. I have been on what seems like every drug on the planet earth and so far this is the only one that has brought me any sort of relief without horrible side effects. Depakote was the only other drug that helped but the side effects were so bad i couldn't stay on it. I love topamax and hope it keeps working for me. F 2 days
2/2/2006
 5  MIGRAINE VERY THIRSTY,CANT SLEEP AT NIGHT,HOT AND COLD FLASHES. PINS AND NEEDLES FEELING IN HANDS AND FEET, SLURRED SPEECH,CONFUSHION,CANT REMEMBER WHAT I WAS SAYING IN THE MIDDLE OF A SENTENCE. FELT STUPID,MY SPELLING IS BAD NOW, BAD LEG PAINS NO WEIGHT LOSS THOUGH I WAS 13 WHEN I STARTED HAVING MIGRAINES. I HAVE BEEN PUT ON EVERY KIND OF MEDICATION YOU COULD IMAGINE. NOTHING WORKED,UNTIL I WAS PUT ON TOPOMAX. I WAS ON TOPAMAX FOR 4 MONTHS BUT,THEN I THOUGHT THE SIDE EFFECTS WERE NOT WORTH IT SO I WENT OFF OF IT. MY MIGRAINES CAME BACK EVERYDAY LIKE I USED TO GET THEM. I USED TO GET THEM EVERY DAY. SOMETIMES FOR A WEEK I WOULD BLACK OUT, GO NUMB LAY IN BED FOR DAYS. SO I HAD TO GET BACK ON IT AND NOW I REALIZE THAT THE SIDE EFFECTS OF TOPOMAX IS WELL WORTH IT.. BELIEVE ME I WENT TO THE DR AND NOW IM BACK ON IT AND NOW IM BACK TO HAVING MY MIGRAINE'S 1 WEEK INSTEAD OF EVERYDAY. F 28
2/7/2006
 5  Back/Buttock Pain First month had "brain fog". Slow to react, would say wrong words, not attentive, walk out of store without of my changeetc. This went away after my system got used to the meds though. Get some tingling in my toes and face once in awhile, does not bother me though. Have lost 15 pounds in 2 months! This is without much exercise (wish I had time). Has really decrease my appetite like Dr said it would. Can't drink sodas anymore - don't miss them anymore though. I take it at bed time for my back pain and it helps a lot (also get steroid injection). Really helps me sleep better too. I have fibromyalgia so haven't got a good sleep in 7 years. F 38 3 months
9/26/2006
 5  Bipolar II, weight / alcohol probs First days were a nightmare. I was a complete zombie: Memory problems, confused, drowsy, insomnia, thirst, cognitive problems, concentration problems, low appetite (yippie), took alcohol craving away (yippie again). However, everything is getting MUCH better. I take this as monotherapy. Used to be on Lamictal but I wanted to try this because I was drinking too much (approx. avg. of 30 units per week). So far mood swings are under control but maybe too early to tell. It also took my anxiety away, much to my surprise. I am SO happy about that. I DO feel a bit disabled here though - with a highly academic work requiring lots of concentration and a brain that is not quite as fast as usual. Hope it gets better. Please feel free to write me if you have any comments. I think this medicine may need some patience. I have come a LONG way the past nine days. F 34 9 days
8/19/2006
 5  Bipolar Tingling in heels, feet, hands, and am now wondering if this is why school (college) is so hard for me this semester! Just started taking this about 1.5 months ago, and it is like a miracle! I feel like a new person! I get aggravated on occasion when I have to climb into the shower with both heels asleep, but it is worth it! I'm dropping my chemistry class this week as I have no clue what is going on in there, and I thought I was just stupid (have run off to the bathroom and hidden in a stall crying like a baby, and I'm 35 years old!) because all the other people understand it and I have no clue!!! I think after reading all this it might be due to the medication? But hey, I'm okay with that if I have to give that up to feel better!!! :-) And I'm starting to loose some weight, too! I will never ever go back to the way I was before Topamax by choice! My daughter is also bipolar and we are trying to get the doctor to try Topamax for her, too! FEEL FREE TO EMAIL ME AND CHAT!!! OR ADD ME AS A MYSPACE FRIEND!!! www.myspace.com/teachertobe F 35 1.5 months
9/25/2006
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 5  Bipolar II & Migraine Spacey feeling, flu like symptoms for 1 day, extremely tired, weight loss, I have read all the different comments about topamax, and I was hesitant about taking it. The first week was really rough with the side effects. But it was worth sticking it out. I started out taking 25mg for 4 days, and then 50mg, and now I am up to 75mg, and today is the first day I feel like myself! I am glad I stuck it out. One thing I figured out though, is the time I take it. I was feeling really sick about 12 hrs after I took it, so I take it around 4 or 5 in the afternoon, so it takes affect while I am sleeping, this has been a huge help. F 33 12 days
1/2/2006
 5  BiPolar II, Severe Headaches This is te second time that I have attempted to take Topamax. I have been on it for about a month now and have been in bed constantly. My face is constantly numb and tingling, I am in a fog so bad that I can hardly concentrate, I will find out Monday how much weight I have lost but I know it ust be a great deal because I cannot eat hardly anything, I stay so nauseated. Nothing sounds good to eat and everything hurts my stomach. Carbonated drinks are OUT!!!. It has caused my heart rhythm to really act up, and worst of all, my headaches have not improved but have only gotten worse in a different way. They are hard to describe now but much worse. But, I want to stay on the medicine becuase everything else that I have taken for my BiPolar has made me gain wieght and if this will help me lose it, it will be worth it. I just can't sleep at night, but I sure do fine during the day, sleep like a baby. I am currently on 50 mg twice a day now. F 53 1 months
9/7/2006
 5  Migraine Prevention Difficulty remembering and repeating some things, occasional brain fog, sinusitus is lasting 3 months now with (sorry) horribly sticky mucous that I feel may be related (anybody else have this?!), occasional tingling in the extremities and cheek. Started slow, built up to 50mg 2x a day. At first I was drowsy and had occasional dizziness adjusting to topamax. In conversations, it's frustrating to not be able to find the right word and to feel like I can't always keep up on the outside but I know in my head I'm NOT DUMB! But I know it's the drug and at worst I had 17 migraines a month, now I have maybe 3? And Imitrex does the trick. Voila. DEFINITELY worth it. Tried the whole bag of tricks before, including trials. I thought I was doomed to a life of near constant pain. F 40 7 months
8/11/2006
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 5  migraine prevention Hair Loss is the down for me, 25 mg at night, I can now think (no headache. I can deal with the not sleeping and weight loss. My doctor added Pamlor and that helps with the sleeping (up to 6 hours a night) and now trying to weed out what is causing the hair loss. Both have the side effect of hair loss but it started first with the Topamax and broke off down to the scalp. Help!!! F 42 3 months
1/27/2006
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 5  severe migraine weight loss, carbonation taste flat, tip of nose feels cold, burning in heels, tingling in pinky fingers, dry eyes, fatigue, temporary memory loss, and appetite loss I used to get migraines for an entire week around my menstrual cycle, and my life would have to be put on hold. The migraines were so debilitating that I would just put my head down at work and school, and then go to bed the minute I got home for an entire week. I finally went on topamax, and my entire life has changed. Not only do I not get migraines, but I don't even get minor headaches anymore. I have been HEADACHE FREE since I have been on this medication. The side effects were very obscure at first, such as the inability to recall simple words or names, the extreme fatigue, and the fact that soda looses its carbonation. The side effects have decreased significatly the longer I have been on Topamax and are almost back to normal. This medication has given me back my life, and I don't know why it took me so long to find it. F 20 3 months
1/30/2006
 5  Chronic/ Daily Migraines Weight loss, Decreased appitite, pop tastes funny but like others i have switched to drinking water, hard time coming up with words sometimes I have had migraines since i was two years old. I have been on what seems like every drug on the planet earth and so far this is the only one that has brought me any sort of relief without horrible side effects. Depakote was the only other drug that helped but the side effects were so bad i couldn't stay on it. I love topamax and hope it keeps working for me. F 2 months
2/2/2006
 5  migraines, fibromyalgia Tingling of face and hands in the first 4 - 6 weeks that gradually went away, slight dizziness in the beginning that also went away. Weight loss and appetite suppression (yay!), but that became more mild over time. My experiences with this drug have been great! After trying the nightmare that was Lyrica, I reluctantly went on Topamax because my migraines had gotten so bad and so frequent. I hadn't initially wanted to try it because I was afraid of what I had read about the side effects. However, they turned out to be quite mild and temporary and not bad enough to make me stop taking it. My headaches have been greatly reduced in number from several times a month to about 2 - 3 in a three month period, much more manageable. Also, much to my surprise, my fibromyalgia pain and stiffness has almost completely disappeared (I would actually take it just for the fibromyalgia even if it didn't help my migraines). I have also lost weight, which is a very good thing and have more energy! It's kind of been like a wonder drug for me. --------------LaTrisha F 50 3 years
50 MG 2X day
1/19/2012
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 5  Severe Migranes-Chairi Malformation I have hardley no side effects---only gradually lose weight, loss of appetite only....This is the only medication of most the worked for me! This saved my life!! I was on the verge of dying, i swear!! Living with migranes everyday all day with no break was enough for me! I've lived with migranes since i was as young as 5 and this was definently my cure. I eventually want to find a more natural way to overcome my migranes so my body wont have to depend on a pill, but i have not found a way yet, all i know is this medication CHANGED MY LIFE FOR THE BETTER! I am a happy mother of 3 and im able to work and still be a mom i always wanted to be without any migranes... F 23 3 years
2 a day
2/19/2012
 5  Weight Loss to Counteract Seroquel Mild sleepiness,tingling in hands,foggy feeling,no appetite,taste disturbances,dry mouth F 27 7 days
25mg
3/16/2012
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 5  for migrainea few Get cold easier, tingling, weight loss and the dreaded hair loss and damage F 47 4 years
200mg
7/25/2013
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 5  Bipolar Disorder Tingling in feet (painful but went away - returned only when dose increased), forgetting specific words ("dopamax" moments), memory issues (went away), very minor sexual side effects (went away), weight loss (now maintained) loss of appetite, diarrhea I was put on Topamax for my manic issues associated with my Bipolar disorder after Abilify failed for me. (Oh man, did that epically fail for me, AND make me balloon up!) When I first started it, I dropped weight like bricks! The side effects were very strange, however, I felt it was worth it to wait it out to try to find something to help me. My memory issues aren't really a bother because I also have neurological problems that cause the same problem, so I can't even say that it really from the medication. My "dopamax" moments only occur within two hours after taking my dose now. And yes, it IS 300mg once a day. This has been my miracle drug. The only problem I HAD was hair loss, which I found was from not eating enough. I added Selenium to my vitamins and problem solved. Now, I have a problem with constant diarrhea. This, too, is from only eating one solid meal a day. I may be physically hungry, just not mentally hungry. So now I have a timer that goes off to make sure I eat solid food at certain times during the day. F 30 1.5 years
300 1X day
3/28/2012
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 5  Mood Stabiliser and Alcoholism A bit tired first couple of days, tingly hands and feet but this go away if I take grapeseed extract. I also recommend you take a very good multivitamin with this as Topamax is a strong drug that can deplete your body from some nutrients. Topamax has absolutely saved my life. After 14 years of not having any help from all the different pills I tried Topamax finally lifted my depression and took away my gnawing alcohol cravings. I have more energy, I wake up with a song in my heart. I feel normal. To anyone reading this that has an alcohol problem I recommend http://www.mywayout.org where they explain how you can ask your doctor to RX Topamax to help you wean off alcohol. Also if you are like me and you are soft spectrum bipolar/treatment resistant depressive (not sure which one it is) and nothing else work, please don't let the other people's side effects scare you off Topamax. I have none of these and feel great. I thank God every day for finally giving me something that helps me feel better. F 32 60 days
50MG 1X day
4/27/2012
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 5  Migraines Tingling in arms, hands,fingers,legs,&toes. Memory loss. Weight loss. Taste change. It has helped with my migraines. Had to give it a couple weeks for it to work. Give it a try don't give up it works. I had a migraine every day. Was in hospital for a week, then they prescribed me topamax. I was ready to give up on medicine, then decided to give it another week or two glad I did! :-) F 39 2 months
100mg
7/28/2012
 5  Migraines and MS(nerve pain) At first it gave me a bad taste in my mouth and I felt a little funny but it did help with the migraines and as with any medications theres gonna be some side effect. I have lost about 25 pounds in a total of 6 years now of being on it an kept it off it does work if you give it time to do its job. I think maybe some people may have other health issues other then what their saying topamax did or is doing to them. 2 or 3 months isnt long enough to get the full effects of this drug. Im on 200mg 6 years later maybe one headahe a year and it helps with my MS pain. F 37 999 days
200 mg 1X day
5/30/2012
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 5  chronic migraine without aura Topamax has been very effective in reducing the frequency of migraines I experience. I was having headaches at least 15 days per month and they would sometimes last for days. With topamax, I only get a couple mild, manageable headaches per month. The only side effect I am aware of is a painful burning sensation in my feet. F 25 6 months
100 mg
7/4/2013

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