TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by Gender with females listed first (reviews with no gender reported listed before females).

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 5  Migraines toes tingling(sometimes painful), slight weight loss, fatigue at first I used to get about 1 migraine a week, now I am almost migraine free. Topamax helped a great deal and the only annoying side effect is the tingling in the toes. Sometimes it does hurt but it goes away after a little bit. I had slight weight loss, but I gained most of the weight i lost back after I got my appetite back. Topamax works better than any other medicine I've tried for migraines, which is a lot. F 19 1 years
11/3/2005
 5  migraines If I fall asleep and I get woken up, I have "waking dreams" and flip out. I have to tell myself "stop wake up." This never happend until I started taking topamax. My dream is happening with my eyes open while awake. Also in the middle of the night if I wake up my mind wakes up and then my body is still paralyzed and I cant move it. I panic but I can't breathe heavier because my body is still paralyzed from sleep so I feel like i am dying. It has taken away my headaches. The only thing after 11 years. When I up the dose it makes me feel crazy and emotional for a couple of weeks though, and really scattered. It's difficult with school and ADD but i dont care because migraines are horrible. F 23 60 days
10/22/2005
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 5  meneires diease tingley hands and word thought loss my ringing in the ears is caused by menieres diease. Added with migraines. Alot of people get miss diagnosed.please check into it if you also have dizzy moments F 35 4 years
2/22/2007
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 5  Migraines (severe & frequent) Tingling in fingers & toes, carbonated beverages taste flat, weight loss (30 lbs in 3+ months), some memory loss, hard to find words, skin absolutely glows (perfectly clear), increased energy, better mood (a little calmer) Love this drug! It's working beautifully for me - no interest whatsoever in snacking, binging, or really, eating in general (only for hunger, and much less frequent then before Topamax). Headaches are gone (it's really amazing). F 42 4 months
2/20/2007
 5  migranes tingling in hands and feet, and i get very tired, though i still get random times of where i cant see, its great my migranes have gotten a lot betetr and dont come as freequently. F 15 2 weeks
3/11/2007
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 5  Headaches due to brain tumor Hands and feet painfully tingle. Forget things, words, events. Hard to pay attention. Soda, especially colas taste flat, kinda soapy. Some foods taste different. Increased thirst. Weight loss. I can be fine one minute, then space out, forget what I'm doing the next. I forget where letters are on keyboard in the middle of typing. Balance is off. Lost more eye site since starting Topamax (not sure if due to med or tumor)I'm cold more, needing a sweatshirt often. (I usually wear shorts year round!) I didn't realize how much pain I was putting up with until starting this drug. I'm feeling better than I have in over 3 years. I've got a benign, inoperable brain tumor and it got to the point that I was living with constant, severe pain in my head for over a year. I was at 100 mgs a day, but am going up (now 125mg/day) due to some pain coming back. The side effects are nothing compared to the headaches I had before! I would trade "pain" for "stupid" anyday!! (as long as my family is around to make sure I'm OK) F 37 4 months
4/25/2006
 5  chronic daily headaches, migraines soda tasting flat, weight loss, decrease in appetite, fatigue, difficulty concentrating, tingling in hands and feet, difficulty finding words. I rarely eat 3 meals a day and this just started when I started taking Topamax. My doctor never told me any of these side effects before I started taking Topamax, but when I started - my headaches were absolutely awful, so living with these side effects (now that I know what they are) is fine with me...I can function like a normal person. The weight loss wasn't much, but it was a nice benefit! F 23 3 months
4/26/2006
 5  Migrane Tingle in hands & Brain Fog Helped me get rid of 13 migraines in a month! I have only had 1 in 1 year since I started! F 34 1 years
5/27/2006
 5  Migraines/Chronic Headaches Tingling/Numb Feeling in Hands...not all the time though. Feet go numb, esp. in my heels and is a little painful at times. I've had bouts of fatigue. Definate periods of confusion..can't think. Don't know how to explain it. Forget what your talking about in the middle of a story. Not to the point that you can't function..not like that at all..just to the point to get on your nerves! I've noticed I'm more irritable at times..a little moody. Not all the time though. I've had some heartburn. Pop by the 3rd day tasted HORRIBLE..like lead! I drink Iced tea, lemonade or water now. I have not lost my appetite at all. My stomache does feel slighty upset at times but not bad. I'm now on 50 mg daily but each week I will go up 25my util I reach 100mg. My headaches are gone. I can't believe it. I was extremley hesistant to start Topamax after reading all of the side effects. So far, it's working for me. I suffered from headaches 4-5 days a week for years and finally decided to do something about i It has really helped me. F 35 14 days
6/2/2006
 5  Migraines Not Really I have gone from Daily Migraines to maybe one per week. Fewer side effects than I was having taking daily Imitres. F 45 6 weeks
10/12/2007
 5  Seizures Extreme Nausea the first day,anxiety attactd first day, shaking first day, stupidness, vey thirsty, cant eat very much, confusion I'm taking 200 Mg a day and it works wonders! i have already lost a few pounds and have only been on it a few days. The first day i was EXTREMELY sick but now i am easily able to tolerate it! I started taking 50 Mg but had to go down to 25 but am already up to 100 each dose! Lovely Med. but makes you stupid :). F 15 7 days
12/12/2006
 5  migraines Sodas and any carbonated beverages taste bad, some foods don't taste as good to me as they used to, loss of appetite, weight loss as a result, tingling in hands & feet at first now just feet, loss of sensitivity in genitals during sex - it is hard for me to reach climax - this didn't show up until recently when my dosage increased to 150mg per day. Started slow, at 50mg a day and then went up to 100mg a day, and just in the last 2 months have increased to 150mg per day. Migranes have been limited to only once or twice during my periods, and they aren't very bad compared to the ones I have had in the past. The weight loss has been a major plus and actually I like topamax more for the weightloss than the migranes now. I have lost 50 pounds in 7 months, but that is in part to excercise as well. When I realized that this would be helping me lose weight I figured I might as well use this as an excuse to get "fit" and I am now in the best shape of my life. I am worried about the new sexual side effect. I have never had to struggle to orgasm before, and sex doesn't even feel that great to me anymore, there is hardly any feeling down there at all!! I don't know if that relates to the numbness and tingling in my hands and feet, could be. I have not shared that news with my husband, and I plan to just fake it until F 34 7 months
11/29/2006
 5  Cmplx Migraines/Migraine Prevention Excessive daytime drowsiness, loss of appetite, tingling in feet & hands, short term memory loss, clumsiness, hard time finding the right words to say when having a conversation and hard time staying focused. All decreased after a few weeks except for memory loss, finding the right words and staying focused. I was having severe migraines 3-4 times a month. The pain was so intense I had to go to the ER for injections every time I had one. After one year of dealing with dragging my 2 small children to the ER, because my husband was overseas I was finally referred to a neuro. He put me on Topamax the final dosage being 200mgs a day increasing by 25mgs per wk until I reached that dosage. I am migraine free and happier than ever! I did that for 7 months and then the short-term memory effect really started becoming a problem. I was forgetting so much that I was stressing myself out more than I care to remember. Went back to my neuro and he reduced my dose to 100mg a day and in addition to that he put me on Pamelor, 25mgs a day. I have most of my memory back and still migraine free! If the Topamax/Pamelor combination failed, I'd go back to my original 200 mgs of Topamax a day. I'd rather deal with my memory loss & stupidity then the pain from a migraine any day. Topamax was a Godsend! F 32 1 days
7/15/2006
 5  depression/migraines ringing ears-but it's gone now, tingling heels very occasioanlly, can't drink any soda, but I don't miss it, weight loss-always happy about that!! I did have a 6 month period where all I could eat was granola bars because anything else caused severe tummy pain, but, I don't know if that's related and my husband says having conversations with me can be like playing charades with words and that was before the topamax. (I never can find the words I am looking for) I love topamax because it has decreased my nightmares that I have suffered from since I was a child and it helps with my depression, with the headaches, and it helps me sleep. F 27 2 years
7/11/2006
 5  migraine Weight loss; initial dizziness which subsided after a few weeks; insomnia; misuse of words and/or difficulty finding the correct word; currently experiencing severe mood swings Mood swings may or may not be attributable to Topamax as I also take Ambien for insomnia. Topamax has drastically reduced severity and frequency of headaches. F 63 7 years
7/21/2008
 5  Migraines, weight loss sodas and some taste flat or odd, the weird tingling thing in extremities occasionally, double vision on awakening, and making more "typos" in first few months of taking it. Sleep like a baby! Overall, great. Started this drug since I have perimenopausal migraines and I am allergic to all NSAIDS and aspirin -- the amount of Tylenol I was taking was going to fry my liver, so Topamax is the lesser of two evils even thought this is a very powerful drug. Prediabetic also so my doc would welcome a 20 pound weight loss, so she wanted me to try this. Sleep definitely improved -- sleep soundly and wake refreshed. Some daytime sleepiness but this has passed as I got used to it. Fat around my midsection has started to go away -- even though I've only lost a couple of pounds my figure looks better because of this slimming in this area -- guess it is due to less cortisol/stress hormone and therefore less fat there. Feel less stressed and am doing better at work ( a new career.) Topamax still scares me but I think it has definitely improved my life -- wish it weren't so expensive though! F 51 4 months
1/14/2007
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 5  Migraine Sodas taste horrible. Weight loss. Tingling in my hands. Loss of words. The first few days were horrible. I didn't think I was going to make it.... but honestly after day 5 I feel like my world has finally opened up and for once in my life I'm going to start living migraine free. It's been wonderful and I'm so happy to be on this drug. It's not for everyone, but it is for me. F 33 2 months
1/16/2007
 5  migraines soft drinks taste bad which is a blessing in disguise, incompletion of orgasms for a while, dry mouth, tingling in only my hands and feet at first with lower milligrams, when reached 100mg. tingling in face, which is the most disconcerting, loss of weight I suffered silent migraines for many years thinking an ailment no one could diagnose. I had blurred vision, glazed eyes, pale and droopy face, full blown lethargy, sometimes unable to get out of bed for 3 to 5 days (with depression). And they said it could be menstrual migraines. Topamax is working better than anything thus far. It's not perfect, but I would say that at least 2/3 of my migraines have been conquered. I used to suffer, and I mean suffer insatiable cravings of chocolate/salty foods every day - now they are gone and I rarely have chocolate. What a blessing that is. It has also controlled my eating habits (during migraines I had insatiable cravings for food of any kind). Too many carbonated drinks aren't good for us, either, so I'm glad they taste bad, even though I miss them. And the best side effect - 15 lb. weight loss thus far. I'm not too happy with the tingling in my face which just recently started, but hoping that will pass, since I am happy with Topamax thus far. F 55 4 months
7/18/2006
 5  Migraines Loss of appetite, forgetting words, saying the wrong words, confusion, getting lost in my own thoughts/sidetracked, tingling in my toes, soda tastes flat, None of these side effects matter to me because for the first time in 5 years I have been free of constant migraines. I had 3-5 migraines a week with aura and had given up hope that they would ever go away. I was just hoping that something would be able to dull the peak pain that occured a few hours after the visual aura. I hadn't even realized how bad it had become until I started on Topamax and have only had one migraine in 3 weeks. I still sometimes have the auras but no headache! It is completely worth it. F 25 21 days
7/21/2006
 5  Migrane & Ocular Migrane confusion, loss or hard to find choice of words to use, space out, extreme forgetfulness I was 20 weeks pregnant when I started having migranes/ocular migranes. Without the topamax I could not function due to the pain. However it only takes the migrane away, it doesn't take the visuals from the ocualr migranes away. And my OB assures me that it is safe for the baby. F 25 5 months
7/19/2006

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