TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

Results are sorted by Gender with females listed first (reviews with no gender reported listed before females).

Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 5  migrane/vertigo bleeding and drowsiness for the first week I feel GREAT, I wasn't sure at first about the drowsiness because I am a single mother and working and going to school full time really concerned me but after the first week it's gone and I have never felt better. No more headaches and no more dizzy spells that I was getting real bad and this drug seems to my a miracle drug and my Dr. started me on 25mg and we have had to only up the dosage to 50mg so far, I have only been on 3 weeks as of now and loving it, I just can not express how great and back normal I feel. F 33 3 weeks
4/18/2005
 5  peripheral neuropathy mental confusion, spelling errors, etc. weight loss. I had migraines but didn't know topamax would take care of that. They're gone! And most of my side effects are too except I still struggle at times with F 50 7 years
5/1/2005
 5  MIGRAINES, DEPRESSION, OVERWIEGHT NUMBNESS AND TINGLING IN HANDS,FEET AND FACE. SWEETS AND SOFT DRINKS DIDN'T TASTE RIGHT FOR A WHILE(this will go away). LEG CRAMPS. SLEEPINESS. WIEGHT LOSS. MOST ALL SIDE EFFECTS GO AWAY ONCE YOUR DOSAGE GETS LEVELED OUT AND IS WELL WORTH IT! TOPAMAX SAVED MY LIFE! I HARDLY GET ANYMORE MIGRAINES AND THE DEPRESSION IS GONE. I'VE LOST A TOTAL OF 80 POUNDS IN 5 YEARS OF BEING ON IT. THE SIDE EFFECTS ARE MINIMAL AND WELL WORTH THE OUTCOME. F 36 5 years
5/13/2005
 5  back injury resulting in severe ner at first, unbelievable detachment and spaciness, but very shortlived, occassional forgetfulness, however the pain relief trade-off and hyper sensitivity relief I have gotten is well worth it. Yes, appetite is down but that's a good thing. weight loss did occur, but ok...cool with that too...it helped to take pressure off of the back. I was warned by my neurosurgeon to have a baseline eye examine prior to beginning topamax and I did and was not at risk ... I have 6 mo. prevention checks to assure he and myself that all is cpoasetic(?) w/ eye situation , altho I find when I am exceptionally fatigued , I do notice trailing and never did prior to taking this medicine. F 42 1 days
7/11/2004
 5  seizures weight loss, tingling in hands and feet, hair loss Benefits of the drug far outweigh the side effects. The only drug I have taken so far to that has controlled my seizures. F 44 4 months
7/13/2004
 5  Fibromyalgia-related chronic pain I had pins and needles side effects sometimes, but if I took vitamin B-6, it went away. I also lost 40 lbs. over 6 months, which was great because I needed to lose it, plus a lot more. The only bad side effect I've noticed is that I've been unable to have an orgasm. Now I am ready to come off of this medicine, but only for that reason. Will discuss this with my doctor on next visit. It greatly diminished my chronic pain from fibromyalgia. Also made my muscle cramps and spasms go away totally. All this on a somewhat F 45 10 months
6/14/2004
 5  Bipolar disorder Loss of appetite, memory and speech problems, loss of balance, slight anxiety anyone who's lived through bipolar long enough knows: a little slurring of the speech is nothing compared to spending months in the hospital and putting yourselves and your loved ones through hell. I say, live through the bad effects, and start to realize there is a life worth living. this drug has worked for me. F 28 2 years
4/14/2004
 5  Depression & Weight Loss Cannot drink carbonated soft drinks. They taste awful. All I can really drink is water. Nothing else really tastes right. Dry mouth. For the first couple of weeks I felt kind of spaced out all of the time. This did go away. It has decreased my appetite. I am currently taking 50mg of Topamax in the afternoon and 50mg at bedtime. I am also on 75mg of Effexor per day. F 29 1 months
10/4/2004
 5  seizure control hair loss, weight loss, sleep loss, moodiness After losing 35 pounds (I'm 5'2, that's a lot of weight for a small girl) and thinking this was a miracle drug, my hair began falling out and I couldn't sleep through the night. If my day became overly stressful I felt insane. AND I was only on 25 mg of Topamax a day. I'm not even on this drug to keep from having seizures, I'm on it for maintanence...thus the reason for such a low dosage. Now I'm afraid if I go off it I'll gain the weight back and to be honest, I just don't know what it feels like be normal anymore. But, I keep losing weight, never have an appetite and am worried that all of my hair will fall out. I feel great other than the fact that I can't sleep half the time. I'm motivated and alert, but when I'm high, I'm really high and when I'm low, I'm so low I think there's no coming back up. F 25 1 years
10/5/2004
 5  mood stabilization I know my 'side effects' are what others may be RX'd for, but FYI... It suppresses my appetite (which is FINE with me) and I haven't experienced a migraine since I've taken it, which -- apparently because I am peri-menopausal -- was beginning to be a monthly occurrence. I assumed that my mental fuzziness and occasional slurred speech was a function of aging and 15 years of hard drinking, but I now realize that the increase in the last year may have been due to the Topamax. F 50 1.5 years
10/5/2004
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 5  migraines weightloss F 35 10 months
5/5/2004
 5  Migraines occasional tingling and cold in hands/feet; some hair loss, soda tastes gross...except fountain root beer=); 30 lb weight loss, lose my train of thought I really am happy with this drug. Some of the side effects are quite annoying at times...medical professionals do call it "dopamax" but I have been on it for a year and my headaches keep getting better. I have lost weight (which wasn't a bad thing) gave up smoking (with almost NO withdrawl)...I just started HATING it after I started on the drug)...I think now that I have quit smoking the medicine will be able to help even more and my headaches will lessen even more! So I will take the occasional dopiness..I still function as a health care professional, and the tingley toes! I take 200 mg now, but I am hoping to be able to drop that down in the future. F 29 1 years
3/24/2007
 5  migraines tingling extremities, soda tastes flat, headache many mornings-manageable with otc meds, word-call issues, still feel stupid often, loss of apetite, I actually feel a little calmer and more centered now after 12 weeks. Most importantly, though, at 100mg I feel like fine. Absolutely like myself. At 150mg I was completely out of control, apathetic, depressed and suicidal, where I had never had issues with depression before. F 38 12 weeks
2/5/2007
 5  migraines hand, feet and leg tingling that can be maddening at times, been on topamax for a month now at 75 mg (titrated up from 25 slowly, on 75 mg for 2 weeks now). Tingling hasnt stopped but am used to it now, but still rather annoying. Weight loss and appetite loss. Taste issue with certain foods and/or drinks -sweets dont taste the same and certain foods dont taste the same. Brain fog - simplest things I forget even though I'm staring right at it (i.e., thats a button but I cant remember what it is) - STRANGEST SIDE EFFECT is that I get a sensation for about an hour or so every now and again (just happend yesterday again) that my head, hands, jaw etc. feel HUGE - and my mouth feels teeny tiny. Example: I was talking to my hubby on my cell phone and all of a sudden the cell phone felt like it was the size of a building in my hand against my head but my head felt that size too. I cant describe it but let me tell you if you have panic disorder, it will flip you the hell out faster than With all that said - my headaches have been reduced by about 75% so I'm going to say its a success for me. I've had migraines all my life but these past 2 years I've had a headache every single day and then I've been getting migraines more frequently on top of a constant headache. I'm 36 years old (soon to be 37), married, mother of 2 (eh..enough to give anyone a headache right?!). I have migrainal for the migraines but luckily I havent had to use it since being on the topamax. Weight loss has been great (as a woman, we all complain about our weight) about 8 lbs so far but I find that I'm forcing myself to eat because I dont want to drop 20 or 30 lbs (as my doc said that is the norm for most and I cant afford to lose that much), so I'm eating even though I"m not hungry. The biggest thing is the forgetfulness and that very strange "something is bigger than..." sensation - its enough to drive you insane - and I'm already bipolar as it is so anything that drives you nut F 36 1 months
10/4/2006
 5  Migraines Tingling toes, have a hard time concentrating and finding words, no weight loss here (unfortuately), and very large increase in how tired I am. I started at a very low dose of Topamax and it was a miracle. I went from having 1-3 migraines in a day for weeks at a time to only a couple a year. At first, I had no side effects. However, as my dosage has had to be increased, (I am still only at 100 mg/day) I have started to notice a drastic change in how it effects me. However, I will take those side effects any day over another migraine. I have tried so many other medications and this is the ONLY thing that has worked. F 25 3 years
10/4/2006
 5  Bipolar II, GAD,PAD Slight occasional tingles - much like my Multiple Sclerosis tingles, slight "off" taste of certain foods - nothing bad enough at 50 mg a day to complain of at all. I am also taking Remeron and Abilify, so I don't know exactly how much effect the Topomax is having on my mood disorder, but I do know that I haven't felt this good in years! I feel like I have my emotions back but they are great. The best part is that I have lost 7 lbs so far and have no appetite. I feel the best I have in a long while. F 43 3 weeks
6/29/2007
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 5  migraines tingling in feet, legs, hands. "soap-box" effect, tiredness that went away after I got used to the medicine, dry-mouth, soda tastes funny. my migraines have almost completely disappeared. and just about right away. I've had one since I started taking the medicine. I started with 25mg and have worked up to 100mg once a day at bed time. I sleep great. the tingling does not bother me at all. at first, I was on a "soap-box" as my husband calls it, but I've calmed down quite a bit now. I haven't lost an ounce. I have heard all these others losing weight on this drug, but I haven't lost one ounce on it and I've been on it almost 2 months and Not one ounce has left my body. I haven't lost my appetite very much at all. maybe, I have cut down on snacking and I still work out. I do get very thirsty. I guess I'm in that 1% of people that don't lose weight while they're on the drug. But the great thing is that it has relieved my migraine pain and that is why I take it in the first place. Life is great with topamax. F 46 2 months
10/2/2006
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 5  Bipolar Disorder Weight Loss, Tingling in Extremeties, Dehydration F 16 21 months
1/23/2003
 5  Migraines Weight loss, rigning in ears, loss of taste for soda pops, some things do not smell right any more. At first was shakey but that has stoped now. I love it for the migraines though. F 28
12/8/2004
 5  Pseudotumor Cerebri Tingling in hands and feet, weight loss. Took away my pain, pressure and is helping me to lose my excess weight. 100mg/day. F 23 2 months
8/29/2002

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