TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 3  dizziness & migraines loss of appetite, fogginess (space-i-ness) after taking until falling asleep, I notice I consume more water (but don't necessarily feel extremely thirsty) & taste of carbonation is almost completely gone & some foods taste different, acne, loose bowel & increase frequency (but think associated with large consumption of sugar (like cupcake). I'm only taking 25mg once a day for two wks then increasing to 50mg.- I drink carbonated drinks (not your typical soda) to settle my stomach but everything taste flat, also got gourmet cupcake & I almost vomit from the taste of it. Wondering if people losing weight from not having interest in eating/drinking those things again??? I don't regularly eat them but still hoping for the weight lost selling point *cough*cough* side effect.. I am almost positive that the increased frequency & loose stool is associated with high carb or high sugar intake on this medicine (again does this factor into weight loss). Ive gained 20lbs over the last 6 mos being house bond with health complications & immobility. F 37 1 weeks
25mg 1X day
10/26/2015
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 1  epilepsy Constant suicidal ideation, depression, crying jags, diminished cognition, insomnia, aggression, hostility and shitty seizure control. I must've had a banging last life because I'm paying for it in this one. Topamax is the only med that gives me the barest amount of seizure control and I've tried them all. This is a NASTY drug that makes you want to die, all day, every day. This has been my life since I started taking it. I had a sunny, funny personality before Topamax. Now I'm a virtual shut in and thoughts of suicide are my constant companions. DO NOT TAKE THIS DRUG IF YOU HAVE A CHOICE. F 40 5 years
100 mg 1X day
10/25/2015
 5  migraine Stomach ache F 65 1 days
100mg
10/23/2015
 1  Pain management MY FREAKING HAIR IS GONE!!!! It fell out in a week. This is horrible. My god. You people know this is happening. Why haven't you done anything!!!! WHAT YOU HAVE DONE to people is WRONG. people that needed help. Topamax helped with headaches and pain but it took away a persons hair in exchange. That's wrong. F 46 3 months
300 MG
10/22/2015
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 5  Migraines F 21 8 years
50
10/11/2015
 1  Migraine I was taking 100 mg for migraine for at least 8 months, no problems, but also no relief, no weight loss, also getting Botox injections.nothing really seems to work lately...doc added 50mg about 2 1/2 weeks ago, didn't put this together until I found this site, but I have been very nauseous a lot, useless, always lying down, itchy, thinking I have bugs in My house. Just missed 3 days of work, since adding the 50mg I haven't felt the same...stopping tonight F 54 2 months
150mg
10/10/2015
 5  Migraines Coughing, stomach pain, diaharea. Weight loss of 22 lbs in a month and a half. Migraines have lessened. I take 50mg 2 times a day. Love it F 37 2 months
10/8/2015
 1  Weight loss Felt weak, tired, back pain, dizzy, faint, mind foggy, breathing problem, F 62 6 weeks
10/6/2015
 1  epilepsy I was so dizzy I would fall down, vomiting, slurred speech, nauseated. I couldn't function foggy. Fall out of my bed. I had to be taken care of by friends. They had to do everything for me. Called peri medics constantly.Couldn't find out what was wrong until I was tested after a year of hell. I was toxic. DO NOT TAKE THIS MEDICINE. I DON'T RECOMMEND IT. IT WAS A YEAR I WON'T FORGET. I WOULDN'T EVEN LET MY WORST ENEMY TAKE IT. DON'T DO IT. F 50 1 years
10/6/2015
 3  migraine headaches Took it before bed couldn't sleep well I. Think it's because I was worried about the side effects. Woke up dizzy foggy then mood was good one minute. Next I was angry so angry. Don't know what to do wait it out or stop use any answers. looking forward to weight loss if it's true because I really have slow metabolism due to thyroid, but kinda ify, F 44 2 days
25
10/3/2015
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 1  Migraines Terrible all the way around. I started at the 25 mg dose. I took it at night. In the day I was so sick I didn't even think of food. My head felt full and strange. When I increased the dose to 50mg, oh my!!! I had panic attacks. I would wake up at night and my head, the inside would feel ice cold. Sometimes, my whole body felt that same coldness. Felt unnaturally afraid about everything. I felt like my husband stopped loving me. All sorts of thoughts with no basis.I Was even more sick at the 50 mg. I felt drugged and was rendered unable to function. Worst drug EVER!!!!I F 42 2 weeks
50 MG
9/27/2015
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 5  Migraine Some weight loss, itchy feet, tingly fingertips (when first taking pills only) This medication has changed my life! I can finally function without the worry of having migraines stopping me in my tracks constantly it's been fantastic, I haven't had any of the awful side effects thankfully only a massive reduction in migraines usually only have an odd one break through now which really is life changing for me. So thankful to these meds. F 31 9 months
100mg 2x
9/23/2015
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 3  mood stabilizer Loved the gradual effortless weightloss. Bothered by the difficulty of finding words....Horrified by the hairloss. I stopped the drug because i didn't want to lose more weight. Took me 3 years to figure out it had caused my gradual thinning/loss of 1/3 - 1/2 of hair. I believe the hair loss is a widespread side effect which is greatly under reported by patients and the drug companies. It is so gradual yet steady many do not notice it or think it is due to aging..Everybody I know and patients I know (I am a RN) who are on this drug lose a large amount of hair. I see the hair on their pillows....Though I would like to go back on it and lose 10 lbs, I will not because of the hairloss. F 58 9 months
100 1X day
9/19/2015
 2  Migraine Mood swings, irritability, highly anxious, headaches, fatigue, tingling and numbness in hands and face, in fact all the symptoms I had before the MRI scans for MS then diagnosed with migraines M 41 6 days
50
9/19/2015
 1  Migraine Extreme anxiety, brain fog, increased heart rate, irritability, confusion,insomnia. It's not even been a week and I am stopping this medication as from today. I haven't wanted to get out of bed for days I've felt so anxious and my head feels like it's going to explode. I barely sleep at night and when trying to talk to my partner I get confused and forget words. Horrid drug. F 26 5 days
25mg
9/18/2015
 1  Migraine extreme fatigue, tingly hands and feet, felt sick all the time. When I weaned off, I had insomnia and heart palpitations Topamax did not help my migraines at all. I felt so sick and had no energy to take care of my kids. When I took Motrin around the same time as topamax I became very agitated, with insomnia and racing heart. F 37 2 months
50 mg 1X day
9/11/2015
 1  "bipolar" took it one time. didn't taper it up from a low starting dose. scary drug. I absolutely encourage you to do the research on the permanent mental impairment that this drug has done to other people before you start taking it. If you need migraine meds or psych meds there are far better options. YOU DO NOT WANT TO PERMANENTLY DAMAGE YOUR BRAIN WITH THIS TOPAMAX STUFF. TRUST ME ON THIS. CHOOSE A DIFFERENT DRUG got irrational fears in the night of demons coming for me. ended up sleeping with the light on for a month because it messed up my brain so bad. Felt scared out of my mind for no reason like i was 4 years old again. Unusual aches and pains and took about a month to start to feel normal again. It's been exactly one year since I took this poison. Went to the ER that same night because I thought it was destroying my brain. Caused stroke-like symptoms a couple hours after taking it on top of what I've already listed. I get that some people need psych meds to function, but this stuff is an absolute poison. Read up on it and you'll see that the memory impairment often becomes permanent even after you stop the drug. I'm off all meds now and doing fine. Trust me when I tell you to avoid this stuff. It truly is an engineered poison--chemical torture in a tablet M 33 1 days
150 1X day
9/5/2015
 3  Migraine suppression I experienced several of the listed side effects when I first started this medication, most of which seemed to pass. However, after about 4 months, I am experiencing severe itching on my scalp and neck. I have now stopped taking Topamax after 7 months and it has been almost two weeks and the itchy scalp and neck continue. Does anyone know how long it will take for the itching to stop? It is unbearable. F 45 7 months
50 MG 2X day
8/31/2015
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 4  Migraines I started taking Topamax in Nov 2014 for Migraines.. Started out with 25mg then tapered up to now 100mg. At first I have the rapid heart beats but that went away. Then about a year ago started getting the tingling in my hands when it got cold. As soon as my hand warm up it goes away. Another plus, it has cut my migraines from avg. 15 a month to 4 a month . I did loose a lot of weight. Went from 145 to 108 in a year F 33 2 years
100mg
8/29/2015
 4  migraines Tired, pop made a weird fiz on my tongue,didn't quite taste the same. But I'm gonna continue taking it. F 36 1 months
25mg
8/26/2015
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