TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 1  Migraines and occipital neuralgia Nerve pain, stiff neck on left side, anxiety and panic attacks, occipital neuritis, tremors, hallucinations, joint and muscle pain, Electric nerve shocks and pulses, tingling in feet and hands weight loss This drug made me crazy, suicidal in fact. I went to the emergency room 4 times thinking the worst. I would ask my neurologist if these were side effects from Topamax and was told no, there must be something else wrong. They were testing me for MS and looking for blood clots in the brain. I finally got an appointment at Boston MA General and traveled. My first appointment he told me to get off the drug, a lot of this could be a side effect. Within 4 weeks of being completely off Topamax most have gone away. I am still left with deteriorated muscle in my neck and left side, nerve pulses through the body, and muscle pain. It has been 8 months and I fear this will never go away. I receive acupuncture and massage therapy once a week with little relief. I also gained back all the weight I lost pulse an extra 15 that will not come off no matter what I do. This drug should be advertised on TV with every side effect possible so people can make their own decision. I only wish I had gone with my gut in the beginning that this could be from the drug, and got off of it much sooner. F 42 10 months
100mg 1X day
2/21/2017
Email
 1  Weight loss Topamax caused interstitial cystitis and severe urgency to void. I actually took the drug a 2nd time thinking the symptoms were coincidental but the symptoms were even worse the 2nd time. I have been off of the medicine for 3- 4 weeks and still have symptoms. I hope the symptoms pass in time. 53 10 days
25- 50mg
2/20/2017
 1  Epilepsy side effects began within a month of beginning it. First my breathing was effected, couldn't get a deep breath, then gradually it got worse. Pins and needles in my hands and feet, my eyesight went from 20/20 to needing glasses to see anything, I lost 12kgs in 3 months, severe vulvadynia, and extreme buzzing in my head. Symptoms came in waves, every couple of hours. Ended up in 8 emergency rooms until the last one I was admitted to hospital for 2 weeks taken immediately off the evil drug as was suspected as having a toxic reaction to it. Coming off it was just as bad and took forever to get out of my system because of its long half life. This drug should be banned. I trusted my neurologist and didn't do the research. Don't be like me, 2 years later and I'm only just beginning to feel normal. It is an evil evil drug F 46 6 months
125
2/18/2017
Email
 1  Migraines I believe my husband killed himself because of this drug He couldn't remember things, had a hard time finding words, lost massive amounts of weight. Thought he was waisting away. Finger wiggling. Not him at all. I think if he had realized it might have been the drug and quit taking it he would still be here M 58 1 years
400mg a da
2/13/2017
Email
 2  Headaches Pain and swelling in legs and feet and shaking all over F 60 10 days
2/11/2017
 3  Headaches Difficulty concentrating,numbness tingling sensation in hands and feet,loss of appetite,fatigue,memory loss,stomach problems worse than before, I've been on this due to Headaches that would never go away. I like the appetite loss and the taste buds changing all the other symptoms need to go I don't have headaches like I did I may not be a Dr and I see that symptoms do run the same really depends on what you were prescribed it for. F 29 2 months
2/9/2017
 1  Nerve pain for Ms This is the devil drug. Two days after taking it I developed Bell's palsy. The entire right side of my face, tongue and throat. Dry mouth so bad it hurt, urine retention it hurt. Flashes in eyes. Color changes in eyes like giant orange spots everywhere. No energy, suicudal, depressed, anxious, horrible memory. Major hair loss, acne, not sure what hapened to my eyelashes and nails.I just wanted to escape the nightmare, it was so bad and coming off only on fir that short time was its own hell. It helped my nerve pain but once it came back it was worse. I got stabbing electric pain. Don't do it, it should be illegal this drug. Not only did it almost turn me into a toad but I'm not sure I'll ever be the same again :( life changing experience and not a good one F 34 10 days
100 mg
2/7/2017
Email
 1  Migraines, weight loss Very tired, foggy, chills, flu like symptoms, ichy, dizziness, rapid heartbeat I only took this medication for 2 days and that is all it took. I started experiencing these side effects right after the first dose. I was just sick and unable to function. I will never take this medication again. F 32 2 days
25mg
2/5/2017
Email
 3  TLEpilepsy Nausea,muscle pain and fatigue,breathlessness,slow thought and speech,cold and tingling hands and feet, urgency and pain to urinate but battle to pass urine, Started 2xweeks 25mg @night, ( 2 seizures ) next 2xweeks add 25mgs morning ( 2 seizures) 5th week 50mgs @night - F 52 28 days
25 2X day
12/26/2016
 2  Epilepsy Extreme nervousness or anxiety, physical nervous reactions, and lowered autoimmune system. Topamax lowers the white count, which makes it difficult to use for someone talking a med like phenytoin for nocturnal epilepsy. The white blood count issue makes it less likely that higher doses can be taken. M 50 28 days
100 2X day
12/7/2016
Email
 1  Migraines Was prescribed topamax for migraines, 25 MG to start for the 1st week, then 2x day. I never started that 2nd dose & thankfully I didn't. Almost immediately, I began to lose my hair but it would be a month and a half later & 50% hair loss to make the connection. I also remember experiencing frequent, vivid, mostly unpleasant dreams. I've since stopped taking it and noticed almost immediately the relief from the pain in my muscle, particularly where I have damage from a recent accident. F 41 6 weeks
12/7/2016
 1  Chronic migraines Was hopeful at the start to get rid of my migraine. Side effects started almost immediately: aggression, brain fog, 24/7 tiredness, tingling in hands, nausea and loss of taste. The second week I was severe depressed, could not stop crying and was suicidal So I weaned myself off that drug. And guess what? No more problems. I am the happy myself again-, with migraine but still better than the two weeks of hell. F 45 2 weeks
25 mg bd
11/7/2016
Email
 1  Chronic migraines Was hopeful at the start to get rid of my migraine. Side effects started almost immediately: aggression, brain fog, 24/7 tiredness, tingling in hands, nausea and loss of taste. The second week I was severe depressed, could not stop crying and was suicidal So I weaned myself off that drug. And guess what? No more problems. I am the happy myself again-, with migraine but still better than the two weeks of hell. F 45 2 weeks
25 mg bd
11/7/2016
Email
 1  Migraine prevention Fatigue, brain fog, language disturbances, weight loss, painful tingling in hands and feet, irritability, anger, rage I began taking topamax several years ago for migraine prevention. I can remember in the first week asking a friend who also took topamax if she ever felt anger on it. I had been at Target with my kids and a woman looked at my daughter and I almost screamed obscenities at her. I considered stopping, but my migraines had gone away and I had the added benefit of effortlessly losing weight. I dealt with the painful tingling in my hands and feet. That was worth the headaches being gone. Flash forward 3 years, I came to the realization that this medication has changed my personality. I gradually became more hostile and personally aggressive (sometimes physically but not violent), having temper tantrums, getting annoyed or pissed about every little thing, my patience went way down, anger would spike up unexpectedly. It has had negative effects on my personal relationships and at work. I am weaning down slowly to go off of topamax but the side effects are magnified as I taper. I experienced a horrifying fit of rage so bad my boyfriend threatened to call the police, I slammed a door so hard it broke things in his kitchen, I threatened suicide. He broke up with me because of it. Never have I acted this way prior to taking, and weaning from, this med. So while this medication worked for taking away my migraines, it has taken away much of my life. I never would have gone on it had I known. Beware. F 44 3 years
75 mg
9/2/2016
 3  yes Diarrhea dry mouth tiredness F 33 1 days
200 mg
9/1/2016
Email
 3  Mood stabilizer /weight loss Started Topamax after significant weight gain from seraquil. After one does soda tasted flat, appiteite is a lot less, the worst side effect is shortness of breath and pins and needles in my hands and feet have gotten progressively worse with the increase of the dose. It's almost enough to stop the medication it's hard to walk and write when it feels like your hands are asleep all the time.. F 45 2 months
100 mg
7/25/2016
 3  Gained too much Weight 50mg at night/25mg day Taking Topomax because I gained over 30pound due to taking Zyprexa. only my 2nd day taking Topomax. felt fine yesterday(day 1) feel a little hungover today. fuzzy, carbonated drinks taste flat, dry mouth. no pins and needles though. Will Soldier through though and see how long the effects last F 35 2 days
75mg 1X day
7/13/2016
 1  weight loss bipolar Lots but most importantly the dimpling on my skin basically gave me cottage cheese legs and stomach never ever take this medicine my body is ruined F 29 2 months
100mg 2x d
7/13/2016
Email
 1   My Dr put me on it to help me loose weight it was the worse decision I ever made. I have had major mood swings (I currently take Prozac and have taken it for years and have done well on it) major major depression got mad easily had major pressure in my head could feel my heart beating in my head. Tingling in my feet and hands. It made me very tired all the time. I decided to take myself off of it which I do not recommend to anyone without a Dr advice the withdraw side affects are much worse then I would have imagined. Stay as far away from this drug as you can. F 45 3 weeks
300 mg
6/19/2016
 1  Lose weight Very tired, eyes heavy, loss for words I felt like I was drunk all day long I could not stand the feeling in my head, slurred speech, sleepy, cranky. Aweful feeling. I will never ever take that again. Worst decision ever. Omg F 40 7 days
25mg
6/7/2016

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