TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 5  Migraine Weight loss F 61 0 days
30
3/10/2020
 1  Migraines Lots of dizziness, lethargy, lots of stomach upset, as it would feel like it was severely ruining my digestive system the longer I used it, and it gave me stones in my gallbladder which resulted in my having to have my gallbladder removed and I also had to have surgery to have a stone removed from my bile duct as well. This stuff is absolute poison. It does more to ruin your body than it does to help it., Avoid at all costs! F 44 5 months
50mg
2/16/2020
 1  Migraine Anxiety, ataxia, confusion, trouble speaking, memory impairment, lack of concentration, joint pain, loss of energy, weakness, dizziness, nausea, change in sense of taste, double vision, psychomotor problems, weight loss, mood changes I experienced problems that severely impacted my daily life, and by the second dose I was basically unable to function. I was told to give the medicine a chance, but I still experienced the migraines that it was supposed to treat, along with these awful, and sometimes painful, side effects. F 23 6 days
50 mg
2/15/2020
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 3  Seizures and chronic migraines Shaky nervousness, hair loss, nausea, extreme weight loss, no appetite and eventually tachycardia Don't let your doc prescribe it with depakote unless you want a mentos with coke effect in your gut!!! F 52 6 years
200-300mgs
1/15/2020
Email
 3  Mood disorder Great to get my mood stable but then once stable I was aware of my body changes..lethargic ..could not get up from bed ...motivated in my mind but not body.. SEVERE hyperpigmentation and acne( never in my life) which is causing me to have self esteem issues . I am going the holistic route ..I found the gorilla glue number four strain medicinal marijuana or honey for tea works wonders . Happy that medicinal cannabis is legal .i have had more side effects and spent more money and time on so many other medications ..the worst side effect with finding the right cannabis was sleep and eating ..where ass with medications like topamax I experienced nausea acne sleep no motivation . Depakote made me suicidal .respeirdal gave me severe nightmares and made me feel drugged out .nausea . Strayers made me lose 15 pbs no appetite .lets end the stigma and educate on medical cannabis .if we are taught by doctors how to use it properly the stigma would end . The same way we are trust to be compliant and not abuse our meds that’s how cannabis should be treated . Thank you F 30 100 days
100mg
1/15/2020
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 5  Chronic Daily Migraine Tingling in hands, weight loss of 10lbs, daytime sleepiness, improved mood. The tingling and sleepiness resolved after about 6mo-1yr. I still get headaches but this medication reduced the frequency and severity by about half and the side-effects weren't terrible. F 34 16 years
100 mg 1X day
1/9/2020
 2  Weight loss Noticed anxiety as main symptom. I even felt the anxiety creeping the next day. After two days not taking topamax anxiety was gone. Just a restless unsettling feeling but I never have anxiety without added medications. Gave it a couple months but anxiety effect never ended until I quit it. Anxiety and discomfort no weight loss. F 30 100 days
2X a day
1/9/2020
 4  Antidepressant Hair loss..diarrhea..upset stomach....loss of interest in food...weight loss....increased thirst F 66 6 months
30 mg
12/9/2019
 5  Vestibular disorders Diarrhea Tingling feet and fingers Words loss 57 30 days
100 mg
11/20/2019
Email
 1  Migraine headaches Agitation, crying, memory loss, brain fog, tingling in hands and feet, hot and cold flashes, insomnia, anxiety. Horrible medication! Nightmare experience! F 35 7 days
30 MG
11/15/2019
 1  Chronic vertigo. Tingling legs, arms, face. Forgot words. Agitated. Angry. Insomnia. Severe period bleeding. Excessive blood loss!! Uterine cramping. Severe thigh cramping felt like muscles were locked on. Confusion. Depression. Unable to eat. Unable to think!!! Seriously dangerous side effects. 7 days
25mg
10/22/2019
 3  Migraine Memory, dizziness, inability to focus, some blurry and double vision. I had pain level 10 headaches, right side weakness like stroke. After 6 months of scans and dr visits determined I had migraines. Topomax allowed me to start functioning better almost immediately but it does have lots of nuisance side effects for patients to consider M 55 2 days
100 mg
10/10/2019
Email
 3  Migraines Topamax did help with my migraines , but I still got them, just not as often. This medication affects your thinking and energy level. It can also damage your eyesight and cause a lot of hair loss. I wasn’t told any of this by my neurologist. The fatigue and foggy brain were not good, but I became concerned about my eyes. I now have to wear two pairs of the strongest magnifying glasses or contacts and strong glasses to read. I read a lot, so had to quit this drug. I’m not sure it caused my sight issues, but I didn’t use any glasses before taking it. This is the hardest drug I’ve ever withdrawn from and I’ve used many meds for a chronic pain condition over the years. I tried several times on my own- cutting down the dosage from 100 to 50, then cutting that down, but the horrendous headaches and constant sweating- lasting weeks- always had me reach for it again. I finally asked my doctor for something to help get off it and am now Topamax free. My migraines are a little more frequent, but taking Sumatriptan quickly works well. I’d suggest trying every other option before using this one. There’s a nasal inhaler now that delivers an instant dose of Triptan to where it’s needed and that stops migraines for many. F 55 10 years
50 mg
9/14/2019
Email
 5  Migranes Tingling in hands and feet, slight temporary memory issues Took about six weeks to reach full dosage, but headaches that were almost daily have completely stopped - nothing else worked! F 45 3 months
100MG
8/31/2019
 1  Migraine Prevention Feeling very dopey and unbalanced, at times having concentrating, frequent urination, diarrhea, slight weight loss, increased loss of appetite and lots of nausea. The medication stopped me the first day I started taking it from having anymore headaches, but the side effects are some of the worst I've experienced especially the nausea. It is do bad till I have had to be prescribed generic Zofran in order to keep taking the medication, to help with controlling the nausea so that I can start eating better and stop feeling nauseated all day long instead. The other side effects have started to lessen up somewhat, but I would only recommend taking this drug if it's your last choice, and you've gone through a ton of others beforehand they just didn't work for you when it comes to migraines. I didn't rate the medication a 1 because it doesn't work, because it does (at least for me), but the side effects, dear God are absolutely awful, and is nothing but major poison that I'm ingesting that I feel is doing more harm than good to my body overall. They need to take this medication off the market and the drug companies need to start coming up with better migraine medications with very little side effects that are completely tolerable overall. F 44 8 days
25mg 1X day
8/10/2019
 1  Migraines My 3rd attempt on this.. I can not tolerate the dizziness (feel like I am going to black out every time I stand up) nausea, fatigue, hot, then cold, general malaise and, I have had an unrelenting migraine for 2 weeks! It is not worth it to me. I'm stopping it. I will live with the migraines. The side effects, for me, even at a low dose, are unbearable. I can't function, can't work, don't take care of my family. It just isn't worth it. I won't be giving it a 4th try. F 54 4 days
25mg
5/12/2019
Email
 5  SEIZURES SOMETIMES BEING COLD,WEIGHT LOSS. BEST MED OUT THERE. F 46 25 years
400 MILLIG
3/8/2019
 4  Weight loss/alcohol;drug addictions Initial or after increased dosage (2 weeks): memory loss, speech disorder, confusion, minor fatigue and coordination problems: Long-term: apathy, irritability, unstable mood, decreased appetite, reduced carbs and alcohol cravings (good thing), weight loss of 90 lbs (6 pack back : ); moderate cognitive problems. These side effects are dose-related: at 50 mg/day, they are minor but at 100 mg/day they become more present. I started Topamax after gaining 70 lbs from antipsychotics medications for borderline personality disorder, because in Canada, Quebec, the psychiatrists I saw (about 8) prefered prescribing antipsychotics, but it made me a zombie, low functional fat looser with apathy but when the anger comes out, it's 10 times worst. Also, those drugs, decreased my dopamine level so much that I became a drug addict. So I did my reasearches, switch to Lamictal, Wellbutrin XL and topamax to loose the weight and treat all my problems. Now I'm a high functioning drug/alcohol free, but fitness addict because I love my new shape and want muscle mass and my carbs cravings are better, and my mood is stable with no abnormal impulsivity or agressivity. If I can keep my new healthy life this way, I will try to stop topamax only, but is symptoms come back, I will go back on it. M 1 years
25-50 mg 2X day
2/9/2019
 2  Bipolar Disorder Not sure. I didn't notice anything. But I had my first panic attack 3 years after taking it. I had never experienced one. Since the first panic attack I had multiple mild ones that I learned to keep under control. I have been off for 1 month after finally discontinuing it as I am on other drugs and Topomax is not prescribed in my country. I had an ok withdrawal for the first few weeks and now after 1 month have some mild symptoms of the panic attacks. My body throbs a bit, hard to get to sleep. I wish I had never gone on this drug. I cannot say it is definitely related to my panic attacks. But I do hope to feel better as months go by without it. I currently take lithium (Bipolar) and paroxetine (Depression) and Clonazepam (panic attacks). After a number of years with no symptoms of the above I am going to weak off the Clonazepam this year and hopfully the Paroxetine next year and stay on the Lithium. M 37 8 years
100 mg
1/31/2019
Email
 4  Binge eating Parathesia (tingling in feet), decreased appetite, low critical thinking, low memory, low attention. It does what it was expected. Althought it lowers your IQ severly and independent of sedation. F 21 40 days
200mg
8/9/2018
Email

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