TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 4  migraines Initially I experienced tingling feeling in fingers and toes occasionally but this subsided after a month or so. It did cause me to feel tired and a little fatigued, not wanting to get out of bed when the alarm went off. Long term side effects were memory loss and a kidney stone. Despite the side effects (even the kidney stone that I had to have laser surgery to have removed) Topomax has helped greatly with my migraines. It reduced the frequency from 12 a month to 2 or 3 and it reduced the severity. I no longer get them so bad that I can't stop vomiting and end up in the E.R. In fact, the relpax pills now work to get rid of my migraines 95% of the time. I realized after the kidney stone and seeing a urologist that I need to drink 2 to 3 liters of water per day to prevent kidney stones while on topamax. Since I have been doing this I have not had stones and I feel great. The topamax also makes my memory not so sharp, I tend to forget names when I meet people an my short term memory is horrible while taking it. The topamax seems to numb your whit and sharpness just like it numbs or reduces your migraines. F 43 3 years
50-100 mg 1X day
10/12/2011
 4  Bipolar Disorder Minor sleepyness, weight loss, minor confusion, memory loss. I am satisfied with this drug for the fact I wanted to be on it to help lose my weight I gained from another drugs bad side effect. The confusion is distracting but it does go away. Just have to make sure that the dose is increased slowly. Sleepyness is not a problem for me since i take it at night to help me sleep. F 25 3 months
50 1X day
10/12/2011
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 3  Anxiety, Frustration At first I had the whole "cant spell anything, cant find my car, etc" I also lost like 10 lbs. I couldnt drink pop because the carbonation made it taste awful. I was taking this in combination with lamictal and wellbutrin. No sex drive either. Not sure what caused it. I'm now a lot hungrier! Here's my issue. I decided to go off of the Topamax and lamicital because I am going back to school and I wanted my head to be clear. I found out that I didnt like to be frustrated, angry and grumpy all of the time. I gained about 10 lbs quickly in the meantime. I put myself back on it and still NO WEIGHT LOSS!! I couldnt get in to see my Dr so all of this was done without a dr's help (All within a 3 month period) Has anyone else gone back on and not had any weight loss? I know its trivial but its really affecting my self esteem I feel awful all of the time...not fitting into my clothes etc. I am a part time model so this is really scary. Does MORE topamax help?? Ps,. I didnt put myself back on the lamictal, just the wellbutrin. Email me at [email protected] Thanks F 33 4 years
150 1X day
10/11/2011
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 5  frequent migraines tingly hands and feet, metallic taste in mouth, weight loss, lack of concentration I was put on topamax my senior year of high school and so was my sister one after the other. We were both having constant migraines inherited from our mom (who is also on topamax)i could not handle the tingly feeling!! (I also have panic attacks to the nth degree and when ones coming on my hands and feet get tingly.... So the side effect made me think I was having a panic attack no good) but as long as I took it the migraines stopped and the tingly would subside after a couple of weeks of taking it. The metallic taste was awful. Can't complain about the weight loss as I dropped 30-40 lbs while on the drug. And yeah I needed to lose exactly that to be at a good weight (yay!) after 6months of taking it though the tingly came back with a vengeance and that was the end of that! My sister stopped taking it about a year later as she realized her migraines were stress related and now that she's understands this does not have migraines. I just take Excedrin for mine and mom is still on it 3 years later successfully no side effects. F 21 6 months
50 mg 2X day
9/30/2011
 5  Migraines minor tingling in fingers and toes, some thirst, weight loss initally but tapered off at 30 lbs, minor issues with concentration Overall, this medication has been a GODsend! I suffered from nearly 25+ migraines per month and now only approx 5 per month and this has allowed me to live a productive life. It is not perfect, but it is also a good performer in that it prevents severe migraine attacks and allows me to prepare for the "smaller" ones with my abortive medication by taking my preventative daily......until this medicine was out there, there was no hope......now, at least there is a day to day buffer against the beast of the harsh daily hammer on my head.....thank you Topamax! F 37 6 months
100 MG 2X day
9/28/2011
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 3  Bipolar Disorder Overall sleepy all the time, tingling in hands and feet. Slept 15.5 hours the other night. No energy at all. Somewhat of a loss of appetite. Hope this sleepiness goes away because I've already missed two days of work because of it. F 40 7 days
50 mg 2X day
9/28/2011
 4  migraines Started taking 25mg once a day last year. In the beginning, I had tingling in my feet and a weird metallic taste in my mouth from time to time. Raging appetite and then I would lose my appetite all of a sudden after I sat down to eat. I lost about 10 pounds after I was on it for a few months. I also had a lot of anxiety that easily turned into panic attacks. My doctor ended up starting me on Zoloft and that has worked for me for 10 months. I have had more frequent migraines- my doctor increased my Topamax dose to 25mg BID and after one extra dose I am DIZZY!! I hope this goes away soon because it is annoying. F 31 10 months
25 1X day
9/27/2011
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 4  migrains Food tastes metallic,extermely thirsty,sinus infection,floaters in eyes, blurry sight, can't read out loud { miss words, mistake words} slurred speech, increased fibromylgia symptoms I was on 25 mg 2 x per day for the last 2 years with no side effects and good contol of migrains until 3 weeks ago. My doc upped my dose. My migrains have gone away but the side effects have appeared. Unfortunatly my migrains are worse than the side effects but not by much, so I will keep on the topamax for awhile longer and see if the side effects go away or get better. I wish there was something else that worked this well for migraines but didn't have all the side effect. F 44 14 days
50mg 2X day
9/27/2011
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 3  bipolar II mood stabalizer My doctor put me on this med after I gained over 100 pounds on seroquel and other meds for bipolar. He starte me with only 25 mg for the first 7 days and within the first 7 days I lost 6-7 pounds and then gained back 2 pounds by the 8th day when I got on 50 mg. I am also cutting back on the seroquel by 100 mg. I have to say the 25 mg at first week made my body temp higher than usual but it gave me energy and I was able to better focus and teach ( my job). However, when I got to the 50mg, it almost felt like it was too much for my body to handle at once becasue I felt like a zombie after I took the second 25mg pil. I am wondering if maybe I should just stick to the 25 mg and tell my doctor? After all I was losing weight and feeling pretty healthy on the 25 mg... F 29 8 days
25-50mg 1X day
9/23/2011
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 5  migranes and rsd loss of appetite, I forget to eat, but alot of my other med do that too. but with this medicine the only new side effect i notice is sometimes i feel like i have a sunburn all over my body from the inside out. other than that it works pretty good. my migranes have decreased some and i dont have them as often, but my rsd is still about the same. My memory is not good but i don't know if it is soley from topomax or the other meds(i'm on 13 other meds too) overall the side effects are worth the benefit. F 44 60 days
100mg 2X day
9/19/2011
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 5  Mood Stability/Weight Loss Can't taste carbonation occasional tingling in hands/feet After gaining 40# on Cymbalta, My doctor decided to try Topamax for both mood stability & weight loss. I was scared to death after reading some of the horror stories on here. I have been on it for 3 months, & it has really given my life back to me. I have lost 20# in 3 months- without even "trying" too much except adjusting portions. My mood has improved a great deal, I focus better, and just FEEL better. I am so glad I started taking this medicine. F 26 3 months
50 MG 2X day
9/17/2011
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 3  Depression It did not relieve ANY of my mood issues in any way; however, I gave this medication a 3 because it helped me to quit smoking and to control my overeating--I lost 50 pounds. F 29 1 years
50mg 1X day
9/15/2011
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 3  Manic Depressive At first the nausea seemed unbearable. It has somewhat passed. Numbness and tingling in left arm and fingers. Tired and feeling of weakness. I am not eating really because I have no appetite so the weight loss part is an okay side effect. weird taste in mouth. I hope to keep Topamax as part of my cocktail as it has leveled my moods out better then any other drug I have been on thus far. I never get angry anymore. That is a good thing...very dulled down. As long as side effects don't get any worse, I am all for the drug. F 34 2 months
75 mg 1X day
9/12/2011
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 1  migraines ringing in my ears, insomnia, fuzzy mind. DO NOT TAKE THIS DRUG. The ringing in the ears is a permanent affect of this drug. I will be plagued by this for the rest of my life. F 54 60 days
1X day
9/5/2011
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 4  daily migraines occasional tingly hands/lips, beverages have diff. taste, i had trouble sleeping, but it seems to be getting better as time is going on. i have to say i fought taking this drug for a very long time because of friends who have had bad exp.(hair loss, sexual side effects) on it, and i've followed this board for a long time, and quite frankly, it scared the crap out of me! but i'm at wits end, fighting migraines for 10+years, and i'm tired. decided to go for it, so far on the lower dose it's not so bad, it's helping so far and i feel good. seems the higher the dose, the worse the side effects(?). anyways, since i've used this board for reviews for so long, figured i might as well jump in for once! i'll get back to it as things progress and let you know how it's going! F 38 3 weeks
50 mg 1X day
9/4/2011
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 3  Depression Impaired memory, weight loss, tingling in extremities, metallic taste in mouth Overall, I wasn't that impressed with Topamax. I couldn't think of words that were so easy (for instance, once I forgot the word "generate.") and name-recall was horrible. I did lose some weight on this drug, but the doped up feeling just isn't worth it to me. Also, it wasn't very helpful in treating my depression. If you're looking for an anti-depressant that doesn't cause weight-gain, try Wellbutrin XL! F 21 6 months
50 MG 2X day
9/4/2011
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 3  Severe Tension Headaches I didn't have severe side effects like some people said they did, and that could be because I was on a low dosage. At first I experienced being a little light headed, dizzy, tired, and REALLY REALLY thirsty. Soda, slurpees, energy drinks, and even beer tasted really strange. They tasted flat and SPICY, like they were burning my tongue. After a 2 days I started experiencing really bad joint pain in my knees, elbows, hips, and shoulders. Then I started having trouble concentrating and was unable to read a sentence without having to look it over a few more times to understand. I had a little loss of memory. All these side effects were not severe. I mostly stopped taking Topamax because of the really bad joint pain (my knees were really sore & I couldn't even crouch down or ride a bike). I also became concerned with the lack of concentration because I'm a full time college student that works, I didn't want to be a zombie. I feel really bummed that I didn't give Topamax a chance to take effect. It could have possibly prevented my headaches, but the joint pain & lack of concentration was stressing me out. I might give it a chance again some day. I've started taking fish oil & vitamin b12, plus I do some neck exercises when I get my tension headaches now. F 23 1 weeks
25 MG 2X day
8/31/2011
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 1  migraines word loss, foggy mind, memory loss, hair loss, weight loss DO NOT take this drug! It affects the language and recall areas of the brain! I took this medication for migraines and at first liked that while on it I lost weight and my anxieties went away. It did not, however, reduce my migraine frequency or intensity which is the reason I was on it in the first place. After a few months on it, I started to notice that I couldn't remember the right words and would frequently say the wrong word or say words in the wrong order. I also felt as though I was in a fog or a stupor most of the time. I would be in the middle of a sentence and completely forget what I was saying or what the conversation was even about! I also started to have recall problems in general. I lost so many memories due to this drug! I finally weaned myself off this drug about three years ago. I started working on improving my memory and language skills and have gotten a little better, but I STILL suffer from the effects of this drug. I still have memory, recall and word problems, and I still have migraines! This drug is very SCARY and it has ruined the quality of my life. Again, DO NOT TAKE THIS DRUG!!!!!!!!!!!!!!!! F 35 1.5 years
15mg 1X day
8/27/2011
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 5  headaches can't sleep F 70 9 months
30mg 1X day
8/26/2011
 1  migraines Made me loopy, slow and incoherent had to get off the stuff, slowed me down at work cause I felt like I could not concientrate. It also made me rearend someone, felt like I was going in slow motion. F 40 2 months
N/A 1X day
8/26/2011
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