TOPAMAX Reviews (TOPIRAMATE)Average Rating: 3.0 (1824 Ratings)Filter ResultsCompare TOPAMAX with similar:
Type: Rx Drug
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More on TOPAMAX: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR TOPAMAX | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 5 | chronic migraines | Side effects that I dislike are change in taste of some foods and drinks. Mainly pop, it burns when I drink it and if I eat candy, it just makes my mouth taste weird. Im losing weight, but thats not bad b/c I need to anyway. The first few weeks I was overly tired all the time. | I went from having 1-3 migraines a day to having 1 a week. Much better. | F | 31 | 1 months 50mg 1X day | 3/11/2012 | 1 | Seizures and Mood Stabilizer | Severe acne, severe suicidal ideation, deep depression, did not experience the weight loss I hoped for since seroquel ruined me. This drug was not for me apparently. I even lowered the dose to 25mg and still felt suicidal... | Never felt any improvement on this medication. | F | 42 | 2 months 150 2X day | 3/11/2012 | 4 | daily migraines and trig. neuralgia | A reply to Helpless412: Your email address is invalid so I am writing you back here. I started to lose weight after being on 25 mg twice a day for two months, and then it was only about a pound or two a month. My previous medicine made me gain 15+ pounds in 6 months. I started at 115 lbs/ 5'3", so that is a lot of weight to gain. I have not changed my diet, (vegetarian), full of whole foods, and no junk food. What I have found is that the more Topamax I take and the longer I am on it, the sooner I feel satiety or fullness. I am almost back to my normal weight. As far as being tired, I have fibromyalgia, so I am tired all the time anyway. But what I have found is that when I increased the dosage of Topamax, my fatigue would worsen for about 2-3 weeks, then subside. It was worse in the beginning at the lower doses. Going from 25 mg a day to 25 mg twice a day was harder than going to 25 mg in the am and 50 in the pm, and then the easiest was 50 am/50 pm. At the that point, I think I was only extremely fatigued for about a week. I wouldn't say I am slow to react (as in if I drop a cup or in driving), I would say one of my worst problems is word loss, dyslexia (which I never had) and the inability to write down phone numbers or spell things as people are dictating them. I will be increasing my dosage soon. I too have reservations as I do not want to worsen my fatigue, but it has always been temporary, so for me it is worth it. Good luck and don't give up hope! | F | 41 | 4 months 50 mg 2X day | 2/28/2012 Patient History | 3 | migraines | Numbness/tingling that starts in my left pinky and ring finger and then moves to my middle finger, then to right hand then to left foot. Have been numb in all 3 at once. Temporary loss of train of thought, sleepiness and suppressed appetite. | M | 33 | 1 weeks 25mg 2x/d | 2/27/2012 | 4 | Migraine Headaches | So far I have experienced the following: (but please keep in mind my age) Dizziness, light headed in the mornings. Looking at the computer and BAM! Sleepy time! Cramping at times. Noticeable when sitting still, basically not doing anything. Rash of some kind. I am still adding up some details. | Please feel free to contact me about other side effects I might have or I am having. [email protected] | M | 41 | 2 weeks 25mg 2X day | 2/21/2012 | 3 | Migraines | Horrible anxiety, quick tempered, ZERO sex drive, chronic pelvic pain, and a deep, barky cough. | Tired this drug, 2 seperate times..While it helped with my migraines and teeth grinding (oddly enough), the side effects were just too much. The worst one was the chronic pelvic pain, it was so bad I couldve sworn I have cysts or worse!! Once I stopped the pain went away as did the above mentioned cough. Not going to try again, but will work on avoiding migraine triggers instead. | F | 39 | 3 months 25MG 1X day | 2/21/2012 Patient History | 5 | Severe Migranes-Chairi Malformation | I have hardley no side effects---only gradually lose weight, loss of appetite only....This is the only medication of most the worked for me! This saved my life!! I was on the verge of dying, i swear!! Living with migranes everyday all day with no break was enough for me! I've lived with migranes since i was as young as 5 and this was definently my cure. I eventually want to find a more natural way to overcome my migranes so my body wont have to depend on a pill, but i have not found a way yet, all i know is this medication CHANGED MY LIFE FOR THE BETTER! I am a happy mother of 3 and im able to work and still be a mom i always wanted to be without any migranes... | F | 23 | 3 years 2 a day | 2/19/2012 | 2 | Cyclothymia (Mood Disorder) | I've only been taking this medication for 2 days so of course it isn't long enough to kick in completely. However, The past two days I've been experiencing extreme exhaustion. I take the pill around 2pm and by 6:30pm I'm fighting to stay awake. Going to give it a while longer but I am unsure of whether this one is going to work for me. | F | 26 | 2 days 50mg 2X day | 2/19/2012 | 1 | Migraines | Sharp tingling in heels, toes, fingers, elbows, arms, sleepiness, memory loss/confusion, constant headache, severe depression, homicidal thoughts, constant ringing in ears, difficulty sleeping, thirsty all the time, back and neck pain, lack of concentration, spelling words wrong (I am an honor roll student, and my grades slipped in every subject; up to 14 points in 3 weeks), nausea, vomiting. | I ended up in a psychiatric facility 200 miles from home, because this drug made me have homicidal thoughts (after 3 weeks of taking it). When my Mom called the neurologist, she was told to rush me to the ER. After spending 18 hrs in the ER they deemed me psychotic, and sent me to a facility specializing in children, where I spent another 24 hrs. No one believed that it was this medication that was making me feel this way. I have been off of Topomax now for 1 week, and although I STILL have some of these side effects, I am pretty much back to my normal self. I will NEVER take this medication again. | M | 15 | 3 weeks 25 mg 1X day | 2/14/2012 | 4 | Migraines | Initially: tingling in hands and feet. Continue to have memory issues and kidney stones | VERY IMPORTANT: If you take this drug long term, you MUST take Potassium Citrate (ask your doc for a prescription). I had 5 kidney stones this last year after being on Topamax long term. But as long as you take this supplement, it will prevent the kidney stones. Also, I have found that Ginko Bilobia helps with the cognitive issues. The tingling in my hands and feet went away after a year or so. This drug has REALLY helped with my migraines and is worth the side effects since I learned how to combat them! | F | 35 | 4 years 200 1X day | 2/10/2012 | 5 | Migraines and Cluster headaches | Tingling in feet, difficult finding the right word (sometimes) | Since hitting puberty i've always delt with headaches and migraines. For a period during my twenties after seeing a nurologist and going on a medication (not sure what it was) they pretty much went away or were managable. After having my second child almost 5 years ago, it's been a down hill battle. Progressing to the point where my headaches were beyond daily, they never truly left, they would take a break for a couple of hours. The severity of the headach would change from worse to uncontrollable. And due to my life, i couldn't crawl into bed. I had to be here and available for my kids because my husbad is away alot. So i was not always the nicest Mommy. Since starting Topamax on Dec. 22 2011, i've had 2 shadow headaches and 2 actual headaches which were easily taken care of with Advil and a nap. I have my life back, I have my personality back, and so does my family. You could tell my I was going to die in 15 years from taking this medication, and I would still take it. I'd rather deal with any side effect present or future, and have feel good everyday, and turly enjoy those years, then go through the daily hell I was living in before. | F | 36 | 90 days 50mg 1X day | 2/1/2012 | 3 | migraines | had bad migraines, started taking topamax, i have all the side effect as everyone. tingling in feet and hands and in face. My memory is crazy. Its hard to hold a job and some times i cant remember my name. I had botox added because it was approved by the FDA. That was a life saver. It has helped to take the extra pain that i was having when i was curled in a ball and wanting to kill myself. I was taking 2-3 showers a day just for relieve. If you can get shot, i get in forehead, neck and shoulders. | M | 46 | 10 years 200mg 1X day | 1/30/2012 | 5 | migraines, fibromyalgia | Tingling of face and hands in the first 4 - 6 weeks that gradually went away, slight dizziness in the beginning that also went away. Weight loss and appetite suppression (yay!), but that became more mild over time. | My experiences with this drug have been great! After trying the nightmare that was Lyrica, I reluctantly went on Topamax because my migraines had gotten so bad and so frequent. I hadn't initially wanted to try it because I was afraid of what I had read about the side effects. However, they turned out to be quite mild and temporary and not bad enough to make me stop taking it. My headaches have been greatly reduced in number from several times a month to about 2 - 3 in a three month period, much more manageable. Also, much to my surprise, my fibromyalgia pain and stiffness has almost completely disappeared (I would actually take it just for the fibromyalgia even if it didn't help my migraines). I have also lost weight, which is a very good thing and have more energy! It's kind of been like a wonder drug for me. --------------LaTrisha | F | 50 | 3 years 50 MG 2X day | 1/19/2012 | 3 | migraines | At first I had awful side effects. Ringing in my ears,food taste bad...irony, numbness in feet and hands,weight loss (30pds),andmemory loss,extreme energy, up all night cleaning. Long term side effects are numbness in hands and feet, tired all the time,mood swings, even had to get on depression meds, loss of memory gets worse, but all the weird food tastes go away and weight stays maintained. The plus side of it all is the migraines have almost went away completely andi do have headaches weekly. I have been so depressed and have had zero sex drive...to which has lead me to take myself off this drug. I have been hearing how many divorces this has caused by this drugs side effects. I have completly changed as a person in the last 4u yrs and blamed it on everyone else but me? | F | 36 | 4 years 100mg | 1/17/2012 | 4 | migraines | Don't really have any side effects to speak of. Make sure to drink LOTS of water when taking this drug. Been on it for years, and just this year had kidney stone. Related?Maybe. Was also told I wasn't hydrating enough. Probably a bit of both. | Take this to prevent migraines which I would get roughly 6+ times a month. Still get them, but down to two or so. Taken with Relpax when migraine hits - Concerns I have NOW with Topamax is that there can be bone loss. With my age and with amt of years I have been on this drug... is this a concern? Going to check into it my next appt with neurologist for sure! | F | 45 | 5 years 100 mg 2X day | 1/10/2012 | 1 | Migraines | Tingling in hands and feet; food tasted bad; had headache every day and had atypical migraines 2-3 times a week | F | 27 | 60 days 30 1X day | 1/9/2012 | 5 | Severe Migraine | Drowsiness after taking dose. Problems finding the right word (word searching). Mood swings. Some pains in legs. Jerking in legs and arms starting about an hour after dose. Shaking in hands (tremors). Confusion, forget what I was about to say. Weight loss. These sound like bad side effects and many of them, but since starting this medication I have not had a migraine. The side effects I have got used to, the migraine's I could never get used to. I owe a lot to this medication and the side effects to me are a small price to pay for getting my life back. I take my dose before bed so the jerking doesn't effect me much as by the time I wake up its settled, the drowsiness is good because I take it before I sleep, the pain in my legs in not constant, on and off and not severe at all, the tremors usually start a few hours before I'm due to take my dose so I think it could be my bodys alarm clock letting me know I'm due to take it. Word searching can be a little annoying but bearable, forgetting what I was going to say, happens to everyone anyway!! Just a little more with this medication, and the weight loss, I'm still at a healthy weight for my height with a BMI of 20. If you can try stick with it, this medication could change your life for the better. I tried so many medications and they all failed but this one changed everything. Kelly. | F | 24 | 1 years 100mg | 1/5/2012 | 5 | Tonic-clonic Seizures | Tingling in feet, hands, face -- sometimes painful; cognitive impairment for the first few weeks; bad memory loss -- especially with names, etc.; mentally slower in general; the good stuff -- weight loss!!! 25 lbs. so far w/ no change in diet. | Despite the side effect profile of topamax, this drug works wonders for me in terms of completely stopping my grand mal seizures at 400 mg a day. So I'll take being a little slower mentally and seizure-free. At least Topamax doesn't make me really tired like the other drugs or make me hungry and fat. Moreover, I've lost weight without changing my eating habits or appetite, which rocks! It's a hard med to get used to in terms of side effects, but once your body adjusts to it, after about 1.5 months, then its smoother sailing. | M | 30 | 4 months 200 MG 2X day | 1/2/2012 | 2 | migraine/one seizure | tingling in hands, feet, face; confusion; memory loss; irritabilty, weight loss; inability to form words, change in taste (soda tasted awful for the first 6 months), racing thoughts, nightmares, suicidal thoughts, and I now wear glasses. I also experienced an unquenchable thirst. The water is good for you to help prevent kidney stones, but I couldn't get enough water. I felt like I had cottonballs stuffed in my cheeks. | I have had migraine with aura for over 20 years. I get all of the neurological fun with them as well which include visual auras, increased hearing sensitivity, partial paralysis, inability to speak or comprehend, and many others. On 2/14/10 I had a migraine which led to a grand mal seizure. The neurologist really advocated this topamax and following the seizure I was still a bit confused, thinking the medication was necessary. I took it for a year and a half then I was done. Once intelligent, I was no longer able to form words, couldn't remember why I was in a room only a few seconds after going in to get something. Once after putting the pill in my mouth and taking a drink of water to swallow it down, I instantly spit it into my hand, thinking my tooth fell out. (I forgot I had just put the pill in my mouth). As a social worker who must prepare court summaries to submit to judges, and whose job it is to ensure the safety of children....I could no longer take the side effects of this medication. I tried both topamax and topiramate. My migraines did lessen, but the auras changed to the point where it was difficult to determine the onset of the migraines because I had the same auras for over 20 years. Now that I have been off of it for about 6 months (took myself off of it), I have serious mood swings. These started after taking it, but never left. They have gotten worse. I am depressed or angry most of the time. My family misses me I'm sure. My husband did not w | F | 35 | 1.5 years 25mg 2X day | 1/2/2012 | 2 | seizures | slurred speech, discoulred/blurred vision, poor memory/recall, aching eyes, sore throat | I started on topirimate in about 1996/7 when it was brand new, I went up to 400 a day along with 3 other drugs, which changed with time and am now on 200 plus leveciteram 400 mg. Its hard to say what causes what for sure, but you can eleminate with a lot of reading and checking. Top didnt stop my seizures at all, and that is why the others were tried, keppra slowed them down. I had mood problems at first with top, angry, impulsive thoughts , aggresive etc, also hallucinations, saw ghosts etc,(but maybe they were seizures). Then that passed, and long term, cognitive impairment has been the main problem, I have studied been back to college at 30 and got certificates done open uni etc, but I could have done a lot more, and been a differnt person i think. Now my speech is starting to slur, my eyes are blurred, I get lost and forget anything, im not sure if I come off these tablets I will get smart and funny ! I have been on meds since I was 14, I knew the whole guiness book of records, then a few months later, sleeping all day, all evening, depressed ! Doctors will allways tell you that you prob dont have the side affects, and your family will too strangly ! They all have their reasons I guess. | M | 44 | 15 years 100 2X day | 1/1/2012 |