TOPAMAX Reviews (TOPIRAMATE)

Average Rating: 3.0 (1824 Ratings)

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 ANTICONVULSANTS

 Type: Rx Drug

  

TOPAMAX  (TOPIRAMATE):  Topiramate is used alone or with other medications to prevent and control seizures (epilepsy). This medication is also used to prevent migraine headaches and decrease how often you get them. Topiramate will not treat a migraine headache once it occurs. If you get a migraine headache, treat it as directed by your doctor (such as by taking pain medication, lying down in a dark room). Topiramate is known as an anticonvulsant or antiepileptic drug.   FDA Approval Date: 1996-12-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR TOPAMAXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 5  Migraines I have had no side affect that I am aware of. I have been migrane free for 10 years now and I used to get them several times a month. Topamax had changed my life. F 49 10 years
100mg 2X day
8/23/2012
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 4  Tremors abd migraines I've been on topamax since I was 17. I had some side effects a higher dosages but found that 75 works well for me. I even lost about 1( pounds back when I started but I gained it back after a while F 4 years
75 mg
8/22/2012
 1  Migraines There is a reason they call Topamax Dopeamax! I could not think or talk properly. I could not remeber my address and I have lived there for over 10 years! The needles and pins in my legs never went away and it was painful. Did not help with my migraines. F 51 2 months
25mg-100mg 1X day
8/14/2012
 5  Migraines Tingling in arms, hands,fingers,legs,&toes. Memory loss. Weight loss. Taste change. It has helped with my migraines. Had to give it a couple weeks for it to work. Give it a try don't give up it works. I had a migraine every day. Was in hospital for a week, then they prescribed me topamax. I was ready to give up on medicine, then decided to give it another week or two glad I did! :-) F 39 2 months
100mg
7/28/2012
 5  migraines loss of appetite, irritability, mild tremors, occasional eye twitching I started with 50mg per day for migraines and recently was moved up to 100mg per day since the migraines got a bit worse. The side effects are so mild, I'll take them any day over the head splitting migraines that were causing me to pop imitrex like candy. M 34 2 years
100mg 1X day
7/25/2012
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 1  Migraines Numbness and tingling in FACE as well as hands and feet, audio hallucinations as in hearing voices and they told me to jump off my balcony..so i guess that would be suicidal ideation? Was not warned about half the side effects and the entire time i had a "hangover headache". I lost maybe 2 lbs and I fell asleep almost immediately after taking it, but not normal sleep more like blacking out and I have 2 little kids so j weaned myself off after these horrific experiences. Since then I have missed my period entirely and nope not pregnant, took 2 HPT and one beta hcg blood test all negative but still no period! F 28 1 months
50 mg
7/22/2012
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 1  Essential Tremor Anger, mood swings, headaches, pimples, memory loss, losing train of thought, can't find right words to say at times, lethargy, loss of appetite, didn't stop tremors, nutritional deficits, sleep disturbances Began with 25mg twice a day for a week then to 50 mg twice a day. That lasted for about two weeks. I couldn't handle the tiredness and it was affecting my work so went back down to 25mg twice a day. That's when anger and mood swings became really bad. Began cursing a lot. Gotta stop. M 41 45 days
50mg 2X day
7/13/2012
 5  anxiety after hysterectomy Tingling, weight loss, hair breakage, memory challenges and sentence forming issues. LISTEN UP TOPAMAX USERS. If this medicine is helping you but the side effects are rough, here is some help. For things such as memory loss and speech issues, you have to drink plenty of water and take vitamins...that helps a lot. Things like tingling go away after a while. If taken at night it relaxes you and helps you sleep for those with insomnia issues; and don't be afraid to ask for something to help you sleep as this can be an issues with age because the body producing less selenium. The one side effect that you are not always warned about that feels really debilitating is the hair loss and the bowel blocking constipation. For the hair loss especially for women in menopause take niacin..add it to your vitamin regiment regularly. It will help with thinning, hair loss is certain spots and breakage. For the constipation which can stop normal life activity as you currently know it, you have to take two things if it is severe for you...regular laxatives do not help..you need something stronger. Here's what I found that works for me...Reneu from FirstFitness. Go to anewu2stay.firstfitness.com. Then go to shop now-herbal cleansing and you will see where you can order Reneu. This is the only thing that helped me and I also take a generic (equate brand) stool softener as well. Topamax is no joke when it comes to constipation and most of us don't drink the daily recommended dosage of water anyway. LISTEN UP TOPAMAX USERS. If this medicine is helping you but the side e F 48 4 years
100mg 2X day
7/12/2012
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 1  Migraine Insomnia, word loss, intermittent twitching eye, mental processes slowed, mood swings, suicidal thoughts, crying spells, extreme rage, restless feeling inside F 39 2 weeks
25mg
7/4/2012
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 1  Migraines Memory Loss, Lack of concentration, weight loss, food tasted strange While this did help my headaches & I enjoyed the quick weight loss, it was not worth it. I began having pretty bad memory loss & trouble forming my thoughts. F 24 1 years
1X day
6/27/2012
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 2  Migraines Memory loss, not as articulate as I used to be, have a hard time forming thoughts, get depressed often While I am still on this medicine I would not reccomend this to people if there are alternatives. I have been on it for a long time and I truly believe your body builds up an immunity towards any medicine. I still have frequent headaches and migraines, but the reason I am still on this med is because while I stil have the pain, it dulls it enough so I can continue to work and live. F 27 13 years
50 mg 2X day
6/25/2012
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 1  migraines I developed high histamines, body aches and when I went off the medication it got WORSE. I've been off topamax for a month and my whole body hurts every day. F 45 1 years
12.5 1X day
6/24/2012
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 2  weight loss Sore throat, mucas in throat, very dizzy, tired all the time, cough, felt like i had the flu. My doctor prescribe me to take this medicine to jump start my weight loss. He told me to take 1 25mg tablet the first week then increase 1 tablet each week until your at 4 tablets or 100mg. I got 3 tablets and i felt like crap and called him up and told him to get me on something else. I felt like was in la la land everyday, could not function with my family, and even though i was tired i slept terrible. So hopefully he has something better for me. And in the three weeks i didnt lose any weight but didnt gain any, didn't see any difference in eating either. M 35 21 days
25mg 1X day
6/22/2012
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 5  Migraines, Cluster Headaches I experienced most of the warned side effects for a period of a few days and then I got over them as my body adjusted to the meds and later to the dosage increase*. I was concerned and thought I was getting sick- but I learned to just wait it out for a few days. (This happened again when i changed the dose.) Now the only lasting side effect is occasional tingling/ loss of feeling in my feet and lower legs. (*I was on 50 mg for the first month then increased the dose when it wasn't working enough.) This medication has almost completely gotten rid of my migraines and has completely gotten rid of my cluster headaches. I have had about 2 migraines since increasing the dose (compared to about 4 a week.) I have tried other prescription meds and was disappointed. Personally, for my situation, this medication is impressive stuff. F 21 4 months
100 1X day
6/20/2012
 3  Migraine Sex drive gone. Forgetfulness. Lack of concentration. Eye problem. Legs feel heavy. Feeling drowsy. Helps to reduce migraine. M 55 2 years
50 1X day
6/18/2012
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 1  Chronic Headaches Weight loss, change in taste, blurred vision, acne, difficulty finding the right words, depression I was prescribed this medicine for chronic headaches. At first, it worked great! After a few weeks, though, I experienced weight loss, blurred vision, changes in taste, acne, and difficulty finding the right words. Those side effects weren't that bad......until I started to feel like I was withering away. I was literally grossed out by how I looked and felt. At my lowest, I weighed 92 pounds. (I'm only 5 feet tall, but I looked almost anorexic). I had horrible face and upper back acne. It made me really depressed after awhile. I had to quit taking it, because I was afraid I WOULD die if I kept taking it. Emotionally, I felt horrid. I never wanted to eat, because everything tasted disgusting! I couldn't drink anything with carbonation, because I would get a bizarre fizzy taste in my mouth. I would see flashes of light at odd times and I felt really out of it all the time. And the difficulty finding the words I wanted to use was ridiculous!! I would drive myself nuts because I couldn't even put a sentence together! I just felt stupid. Ultimately, it was a terrible medication for me and I've been off Topamax for awhile now. I still suffer from headaches, but at least I don't feel like I'm withering into nothing. I wouldn't recommend this medication. F 31 7 months
50 MG 1X day
6/18/2012
 2  Headaches Flu like symptoms (cough with mucus, soar throat, runny nose, sinus pain, pain in the ears, allergies) from the very beginning, for the whole 3 months. Took 2 antibiotics that didn't help much. As soon as I was done with them, the symptoms came back. Other symptoms: tired and dizzy all the time, dry mouth, loss of appetite, weight loss (18 pounds in 3 months), nausea, nervousness, numbness and tingling, trouble sleeping. It helped me with my headaches, but I stopped taking it because of the side effects (mostly flu like symptoms for 3 months). F 43 3 months
75MG 1X day
6/13/2012
 5  Migraines and MS(nerve pain) At first it gave me a bad taste in my mouth and I felt a little funny but it did help with the migraines and as with any medications theres gonna be some side effect. I have lost about 25 pounds in a total of 6 years now of being on it an kept it off it does work if you give it time to do its job. I think maybe some people may have other health issues other then what their saying topamax did or is doing to them. 2 or 3 months isnt long enough to get the full effects of this drug. Im on 200mg 6 years later maybe one headahe a year and it helps with my MS pain. F 37 999 days
200 mg 1X day
5/30/2012
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 4  migraines tingling hands/feet, weight loss update: since my first post in september, my doc upped my dosage because the migraines came back. but finally my insomnia went away, the tingling in my hands and feet are still happening, only on occasion though. confusion also went away, lasted about 2 months for me, that was probably the hardest side effect to deal with, almost made me toss the bottle. i've had only two "breakthrough" migraines. an extra bonus is the weight loss, after weight gain from being on another migraine preventative i have lost it all plus some on the topamax. i'm satisfied with this drug so far, it's been a blessing for me, i wish everyone else could say the same and i'm glad i stuck it out through the side effects those first few months! F 39 9 months
75 mg 1X day
5/28/2012
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 1  Chronic pelvic pain Topamax was extremely effective in dealing with my pelvic pain, however, the side effects were so debilitating that I had no choice but to go on long term disability. It started slowly with speech problems, memory loss and slow motor skills as well as unable to finish tasks. Finally it affected my concentrations level so significantly to the point where I could not work anymore. I worked so hard to get this point in terms of education (B.S in chemical engineering and M.S in organic chemistry) as well as my career as medicinal chemist for last 15 years will be wasting away. Not only that, my family life has been changed completely for last few years. I lost all my interests, including many of my kids' activities. I can't tell you how awful I feel everyday. I know many people are thinking this would not happen to you. I don't even know how many people are awear of FDA warning about increased risk of birth defect by Topamax. I can't stress this enough " please do not take this med unless you absolutely don't have any other choices. It is not worth it. F 43 1 years
50-100mg
5/23/2012

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